How I Found Out I had Pancreatic Cancer - Matthew | The Patient Story
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- čas přidán 5. 05. 2024
- Matthew started getting concerning symptoms like dark urine, pale stool, and intense itching. He was eventually diagnosed with stage 4, metastatic pancreatic cancer
In this cancer vlog, he shares how how he was initially misdiagnosed because doctors assumed his symptoms were from his Crohn’s disease. After his diagnosis, Matthew underwent different combination chemotherapy treatments, including FOLFIRINOX and GAP
#pancreaticcancer #pancreas #weightloss #highbloodsugar #bloodsugar #cancer #cancerdiagnosis #cancertreatment #chemotherapy #surgery #diagnosis #cancerstories #advocacy #cancerstories #stage4cancer
Read Matthew's Full Story HERE → tinyurl.com/bdhtpemc
To Learn More About Pancreatic Cancer Symptoms → tinyurl.com/ycy5wfx3
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[Video Chapters]
00:00 Introduction
00:30 The beginning process of my diagnosis
01:56 Experiencing my first symptoms
07:14 Going to the doctor with my symptoms
12:00 They said “you definitely don’t have cancer”
14:15 Finding out I had pancreatic cancer
16:10 Preparing for surgery
16:52 They found a tumor
17:22 My tumor was inoperable at that time
19:50 Starting chemotherapy
21:23 My side effects
25:48 My life expectancy now
27:00 I beat the odds twice
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The interview has only been edited for clarity. The interview has only been edited for clarity.
How I Found Out I had Pancreatic Cancer - Matthew | The Patient Story
• How I Found Out I had ...
My father lived another 20 years after pancreatic cancer and 2 whipple surgeries. He died at 83. One of the longest surviving patients in the world at the time. Good luck to you Matthew, it can happen.
Thank you for sharing and giving us hope!!!
🙏😇💫
Amazing, that's good to know.
what is whipple surgery?
My Mom had the Whipple surgery in January 2006. While they had her open they went ahead and removed some lymph nodes around the area and sent them to the lab. They had told us surgery would be I believe 2-3 hrs, about 45 minutes in the family was asked to gather in a room for the Dr to talk to us. I think we pretty much knew it wasn't good. He walked in and saw her Mom (grandma) and us six kids some of her grandkids her 5 siblings some nieces and nephews and he teared up and left the room,to compose himself. The nodes sent to lab were full of cancerous cells. Mom was 70 (8/30) and died 9/6 . She made it exactly 1 week after birthday. My birthday is 8/31 so the day after hers. It's a rough time getting through those days that come up every year for the past 18 yrs so far. It's just not those days, I still feel an incredible loss. *** She died at 71 ***
I cannot express to anyone how insanely important it is to juice vegetables organic and raw/fresh. First you need to find a treatment center that will watch you while you fast for 20-30 days, then they introduce you to juicing with 1 celery stick, 1 lemon, 3 golf ball sized beets bulls blood type, 2 cups of spinach, 2 lbs of carrots. Find a doctor that will treat you with Ivermectin 9mg doses 3 times a week, and IV Vitamin C infusions. I highly advise using coffee enemas and intermittent fasting, drink at least 8 ounces of that juice twice a day, once at morning and once at night. You need to eat properly too, avoid as much sugars as possible.
As a nurse going on 30 years, I’ve seen patients beat the “odds”… I’m rooting for you ❤
since you are a nurse how many young ppl you see with cancer these days?
30 years after pancreatic cancer?
@@polarvortex6601I’ve seen very few in the 12 years I’ve worked in a cancer center. I’ve seen far more young colon cancer patients (several in their mid to late 30s, a few in their early 30s). My most memorable pancreatic cancer patient was a 41 year old mom with two very young children (18 months and 6 months old). She was diagnosed during COVID and thus her surgery was delayed a little.
@@ravenc4912 no. She said she has been a nurse for 30 years and has seen many people survive
Pancreatic cancer is a death sentence, those success statistics are extremely rare, almost miraculous.
Pancreatic cancer survivor here 🙋♀️ After a huge chevron scar in my belly I am still around and no signs of ca. Love not being part of the statistics 😊❤❤❤
That is fantastic! God bless you.
Congratulations! You’re truly blessed!
You ARE "part of statistics" LOL. No escaping probability. You are just lucky to be part of numerator rather than denominator. The common denominator being the dude with scythe, and numerator being the lucky few who manage to postpone the appointment. I hope you remain among the lucky few.
how long? I am still surviving and thriving after 4 years.
@@NEKRWSPHERE"appointment in Samara"
My dad's pancreas was completely destroyed by the tumour. He was given 3 months, but went on to live a further 24 years and passed away when he was 77. Wishing you all the best.
Did he end up living as a type 1 diabetic for the rest of his life?
@gregorymalchuk272 Yes, he did. The diabetes lead to kidney failure and he needed dialysis. His kidneys not working put strain of his liver, and when his liver was at 4% function, the dialysis was no longer enough and he declined quickly from there. But for the most part, he had a full and enjoyable 24 years.
Wow thanks for sharing your story. This is what people need to hear. Glad you had many extra years with your dad!
Wow did he have a Whipple ?
Did he have surgery?
Dear God, please watch over this young man. Amen
Amen 🙏
Amen 🙏
🙏 amen
Amen!
❤ 🙏 ❤
My dentist has pancreatic cancer, and they did a Whipple on him as soon as he could, he was right back to work he was 63 when he found out he had the cancer he's 66 and still going strong. I hope you live to be 100 and blow the statistics out of the water. You're one of the good guys I can tell.
What's a whipple
@@Jack-russell103
It is the only surgery that I’m aware of for pancreatic cancer.
My neighbor had the Whipple procedure as well. He was about 64 or 65. That was in 2011. He is doing very well and living a good life. It is a challenge to go through that but it does have great success. Not everyone is eligible for the procedure though. Pray for all who go through Cancer treatments.
Having been involved in the care of grandparents,parents,an uncle,aunt and friends,whenever any medical professional says "You definitely don't have cancer"-It's time to panic!
My dad had the whipple, it went good but they missed some of the tumor that was wrapped around an artery. He suffered for two more years. And passed away in December. He was 62.😢
I just gave my phone screen a kiss. Consider yourself kissed and cared about by a total stranger. ❤
Ew, what a weird, ridiculous & perverted, thing to do! 🤮
No it isn't, Karen
@@californiadoll6273you felt such a strong need to be nasty and negative. Maybe it bothers you so much because you aren’t capable of vulnerability, empathy and compassion. You’re the weird one actually, and very rude too.
The comments in this section under your comment...😂 Must give him some good natured laughs! Lol
very sweet of you to help lift this very nice man ...discard the 3rd comment down...and keep being yourself
My husband passed from pancreatic cancer a month ago yesterday, at 35 years old. It was found in November, and only folfirinox was offered. After 2 rounds of chemo, the doctors had nothing else to offer, so he started hospice. I'm so glad that your doctors advocated for you and that you're still here. ❤
I am so sorry, Ms. Meaghan. These are early days, sometimes it feels unbearable and others not so bad. Wishing you the best on your Grief Journey.
So sorry for your loss 😔 xo
My aunt had pancreatic cancer in the early 80's when she was pregnant. She's still alive today and doing great (and so his her son). I hope you are as blessed as she was on your journey.
Wow, what a wonderful thing that she was able to keep her baby!
I'm guessing she had pancreatitis as pregnant women do get that. I'm sorry but being pregnant rules out treatment, surgery or chemo, so this viscously aggressive cancer would have spread. No way it was primary pancreatic cancer.
@@rosalvabooksllc354She means pancreatitis not pancreatic cancer.
@@annabizaro-doo-dah Definitely cancer mate. She had chemo after baby was born.
@@shad5107 what chemo?
My neighbor is an oncologist. He is the most caring and positive person I have ever met, despite being surrounded by death. When asked, he said the human spirit plays a large part in the cure for cancer. You exude that spirit my friend. Be well and live a long life and continue to spread your story of hope.
Sorry I hate this approach. Do you mean to tell me that all those that could not overcome their disease did not have the human spirit to reach a cure? All those that were not cured did not want more time with loved ones, children, and every other person in their life? Sorry, this is a dreaded disease. Your attitude is for you while you're here and for preparation for where we all are going someday. The timing of finding the cancer (stage 1 - stage 4), the treatment of the cancer at that stage, and your body's ability to fight back the cancer cells. Sorry can't get on your bandwagon and feel -good approach.
Familial support, strong Faith, which is in fact, the Holy Spirit in you can make a world of difference in terms of longevity and quality of life.
My 81 year old father was diagnosed with late stage 4 terminal. 3 months to 6 months prognosis.
Well, he bore down and his church, neighborhood, best friends and 3 out of 4 of us children did too. That family time we had, even under the circumstances was so precious. It was spirit, indeed the Holy Spirit that gave us 18 more months from diagnosis.
Never underestimate the worth of the priceless. @stevenwiehl7011
I leaved a message below, check it and use the info if you desire. Best wishes for your neighbor!
I agree this seems jarring (especially since i don't think i would have a great spirit to fight cancer if i had it), but it comes from an oncologist, and not only this one... not from the poster who is just relaying the message, so even if we don't like the message and find it morally reprehensible etc, it's probably true.
@@stevenwiehl7011Agree on everything you said! It's also putting a burden to an already ill person, like if your're not positive enough (who ever is that, being diagnosed with a life threatening disease..) you may not make it. I also think the phrase, "he/she lost the fight" is another bad one. No one ever lose their fight with cancer, or is being weak, it's the type you get, how early caught, age and so on. I think everyone going through this disease is extremely brave, courageous and deserves respect, not being put down by words that actually has no scientific value.
My best friend’s good friend had PC at 45. He had surgery and has been healthy since then. He will celebrate his 80th birthday soon. I wish you and all those inflicted all the best from the bottom of my heart. Myself a bc survivor, 13 years cancer free.❤
My mom had the whipple surgery 19 years ago. She’s turning 82 soon! You’ve got this 🙏🏻🙏🏻🙏🏻
My ex-husband had a Whipple procedure for pancreatic cancer and lived 15 more active and happy years.
Where did he go?
@@wandarollen2535he probably passed away
@@wandarollen2535He died. That’s how I interpret that as.
My ex-husband also was diagnosed with pancreatic cancer - stage 4, metastasized and all. He couldn't even get an appointment with an oncologist until he arranged to get Social Security Disability, which took 3 months. Fortunately, once he began treatment, it did help his quality of life for awhile. He lived 14 months past his diagnosis, and died on Valentine's day, the day he originally proposed to me. He was only 46 years old.
@@wandarollen2535 to get rid of a migraine really fast you get into a bathtub with hot water and you put your head in there but close your ears like take your fingers and close your ears so it won’t go into your ear and it’ll take it away real fast, but then sometimes you get nauseous but that’s OK then drink a lot of water if you vomit
What a beautiful young man. I hope he lives many many wonderful years.
So ugly people dont deserve to live? Why does his physical appearance even matter or is taken into consideration on whether he should live or not.
I went to high school with Matt and he was always a positive and entertaining kid. I can’t imagine the hell he’s been through. Hearing him tell his story is very emotionally touching and it goes without saying that it felt so joyous to hear about the success of his treatment. Loved his message at the end about enjoying life too. Hopefully advancements in treatment and detection for this cancer will continue to get better. Thanks to him for sharing his story.
What lovely sentiments! 😊
I lost my dad to pancreatic cancer, he was 62 years old. He had the whipple surgery but died five months from diagnosis. He was just semi retired and a rock solid intimidating figure of a man. To see him wither away was heartbreaking to say the least. Good luck to you bud and be strong.
I’m so sorry for your loss. My grandma died from pancreatic cancer and my mom died from covid. We’ll see them again.
Sorry for your loss. You lost him too young.
I am in the same boat with my father in law. Diagnosed in January and he probably has days left at this point
This is almost exactly how my husbands dad went. Truly awful. Prayers to you all.
I’m an ovarian cancer survivor. My tumor was as big as a football. They got it all, didn’t spread, so I had no chemo or radiation, it was a miracle that’s what the doctor told me. I’m glad you’re doing well, amazing!
Sorry to ask but what was your signal something was wrong?
That's Really Great to Hear!! Wishing You God's Continued Blessings!!❤
What were your main and early symptoms of the ovarian tumour, and did doctors listen and believe you right away?
At 29 I had to ovarian cancer. I'm now 69. My systems were strange periods. They would start and run for 2-3 days, stop for a few days and then flood for a few days. My Dr tried me on different hormone pills that didn't help. He said all I can do is a D&C so he did that and found uterine cancer. I was sent to Birmingham immediately for surgery. The right ovary had a tumor. Had 2 totally different cancers
@@virginiariley994
Wow-that’s 40 years ago-the docs and surgeons did a great job, and you healed very well!!
When he said the surgery was extremely successful, I smiled so big. He seems like a happy, positive, sweet person…I hope he lives to be a ripe old man.
The first text message I received when I woke up was from my best friend. It read, “I guess I’m going to have to hear this story for the next 75 years” 😂
I was caregiver for a 72 year old lady with pancreatic cancer. She lived 3 years from1st diagnosis. There were times for sure that it looked impossible that she would get sick. Sadly when it happened it happened fast. She was tough as nails. The only wish I had is that she wouldve had more FUN experiences. She had a lot of anxiety and was always worried about keeping up the household etc but I begged her to let me take her to the beach, etc. I did get special permission for her to play the piano for the kids at my sons school and it made her so happy. I miss her. I learned so much from the expereince.
Early Symptoms
1. Dark urine
2. Very white stool
3. Itchy skin - bottoms of hands, feet itch
Osler nodes and janeway lesions.
@@Pardesifoodshortsoooh as a doctor, I enjoyed this comment. Not for what it signifies…but that someone knows it
Sometimes it takes time for a structure to form if it does, and then these sx from liver/duct involvement are apparent. Lesions at the tail of the pancreas and even the head csn take years to show this. The pancreas is so enmeshed in other organs that it’s also very hard to see on CT.
@traciprovins3221 Thank you. I know those signs are predominantly for infective endocarditis however, the way it was described by the Op , i couldnt think of anything else. Regarding your comment, that's the reason why pancreatic cancer has poor prognosis because it is almost retroperitonoal and almost always found accidentally. I'm not sure if this would help, but wouldn't it be good to regularly screen people with pancreatitis for pancreatic cancer?
Regards
From 🇦🇺
@traciprovins3221 are you specialists doctor or under training?
Not necessarily Matthew. My friend had the same cancer and operation you did. She’s still alive 10 years later honey. Think big and live well every day xxxxx ❤❤❤
I also know someone who had the whippel procedure after being diagnosed and she is still alive after 12 years .
@@tamarafigge8800 That’s wonderful. So Matthew, keep your spirits up honey. Xxxxx ❤🥰🌹
It depends upon which part of the pancreas got the cancer. Plenty of people die from it.
Pretty misleading and not useful to say "same cancer" - every case / person is different.
((Hugs))❤
my lifepartner got diagnosed with pancreatic cancer when he was 39, he lived to be 43 when he passed away, he stopped treatments 6months after they started,and lived as long as he could just to cleaning his died ,intermitting fasting and cleaning his body. He stopped treatments because they were making him so sick and they said that its not going to cure him,because cancer was quite agressive and in very tough stop that coudnt be removed aither. He said,he rather live happy short life than live the rest of his life sick of treatments that doesnt work. but he did worked trained and lived the best he could right to the end. he coudnt stop working or training, that was part of his life ,it gave him sense of normality and ruiteen,he said that if he stops doing his normal things its like he has given up,he just refuced to be the patient. he also competed in bodybuilding show before his death,because he was always in shape and never even had a bad habits. doctor said that because of his physical strength ,always clean diet and health he lived so many years after final stage. it was sort of the miracle. it was a honor to be his partner. miss him dearly.
I am so sorry for you and for your partner ~ that you both had to go through that. It’s a vicious disease.
I’m so sorry for your loss. 😢
DEEALEX. Thank you for sharing that. It reminded me of the song LIVE LIKE YOU WERE DYING.
God bless you both!!! 🙏😇💫
My condolences :-(
Currently dealing with pancreatic cancer myself thanks for sharing your story. 😊
Gods Blessings for healing ❤🙏🏻❤️
I feel for you. Virtual hugs.
Hugs for you and yours.
Best of luck to you ❤
What were your symptoms? I'm experiencing an intense pressure discomfort on my left side. A little under the rib cage, right under my breast. Been doing a bunch of tests and did an xray of my chest and a barium swallow test and still nothing
My father is 12 years pancreatic cancer free. His first symptom was the insane itchy skin. We caught his cancer very early.
My grandfather had a whipple around your age. He died in his mid 90s. I'm not positive but I think he had it done in the 1960s. I hope you live as long and as well as he did.
Wow, your grandfather was a pioneer! I bet that whipple scar was a whopper.
The singer/songwriter Chris Rea had the wimple surgery for Pancreatic cancer over a decade ago and he is still rocking and rolling. Best of Luck Matthew. Dont look back, look forward.
Chris Rea had his whipple procedure 24 years ago!!
3:24 wtg Matthew keep your chin up.
Praying for you to have continued success.
My son is a diabetic, I just wish his pancreas was still well and he didn't have to rely on insulin.
Keep an even stride, many people are proud of how far you have made it.🎉🎉🎉🎉🎉🎉🎉
Great story
Whipple NOT wimple
Whipple procedure.
Live long my friend. You could have thrown in the towel, especially not having insurance. Your story should do nothing but inspire us all.
A buddy of mine tried to have wipple 3 separate times, each time they found more cancer on his liver and surrounding areas. He passed away at 45 a few months ago. He very much wanted to live, but the cancer just would not let go. Im so happy that you were able to beat the odds. We need more wins in this world.
Absolutely we need more wins with Pancreatic Cancer. We need more research and trials for meds as well!
So sorry about the loss of your friend.
They are working on a vaccine for pancreatic cancer, and early results show a significant reduction in recurrence! There's a ton of momentum in cancer research right now.
I think at this point NO ONE should even consider a vaccine for pancreatic cancer! No way! No one would be paying attention if they even considered getting one.
My mum was diagnosed with this, and passed away 3 weeks later. I will never get over it.
My mother died in 1980, I have never gotten over it either. X
I’m sure you won’t darling. I’m so sorry.
My fiance only lived 2 months after diagnosis,it was devastating and I understand how you feel.I wont ever forget or recover from how badly he was treated because he didn't have insurance.
Heartbreaking!💔
You never get over losing a parent…. I think there is something about the human brain that doesn’t give in and sometimes it just gives up….. not that there isn’t strength in both! God Bless you!
My beloved sister, an incredibly strong and vibrant woman just passed after a brutal 6-month battle with PC. I am so happy to hear your story. It gives hope to many suffering from this evil disease. I wish many years of health.
I'm so glad you survived! I am saddened to know your mom passed away due to breast cancer. I had a slow moving cancer last year (endometrial) and I'm totally cancer free now. I'm just SO HAPPY FOR YOU!
Matthew, you're such a bright light. I hope you're in that 13 percent. Wishing you the very best.
That’s very sweet of you 💜
Congratulations!!!! My mom died in 1999 of metastatic pancreatic cancer. It was an awful five months. They opened her up to see what they could remove and the cancer had wrapped around her aorta…they closed her back up… did some chemo…. And said go live your best life. Sad. I miss her. Indeed…. Your story is inspiring.
Your congratulating him? 😮
@@colettejaques2559 Any milestone is worth congratulations.
I"M VERY HAPPY FOR YOU
THANK YOU FOR TELLING YOUR STORY.
GOD BLESS YOU YOU ARE AN
AMAZING PERSON.❤❤
He was cured.
My mum too. Diagnosed and then exploratory surgery but the cancer was everywhere. 5 weeks after diagnosis and she was gone. I miss her everyday. 💔
Thank you for sharing your story to inspire others. I read all the positive comments of people beating the odds and statistics. You are and will be one of them. I’m wishing you a long healthy and happy life.
Agree on not believing stats. Someone I know had stage 4 pancreatic cancer. He beat it and that was 18 years ago! Prayers for a full recovery!
Matthew, I’m generally not “soppy”, but your story of courage & optimism has touched me so. I will remember your words and keep you in my prayers.
💜💜💜
My aunt got cancer stage 3 and lived for next 25 years. It was all about having good spirit that beat the odds. Thank you for sharing your experience. Never give up!
I wish that were true
@@marlenegold280it is.
Had pancreatic cancer in 2016 had the whipple operation at the age of 67 yrs old I’m still here 8yrs later wishing you the best for the future x
I lost my brother to same cancer 4/1/2018. He was in hospice actively dying, just 7 months after DX. This morning I woke up after a visit from him smiling, giving me a thumbs up, and eyes twinkling. Then first time ever seeing your video. So happy that you have beaten the odds.
I pray Matthew is one of those 13%. What a delightful young man; such an inspiration!
What a genuinely upbeat guy with a great outlook on your prognosis. You said “I’m no doctor” and not good with the terminology. As a registered nurse listening to you, I’m here to tell you that you did a fabulous job telling your story and getting all the terminology correctly pronounced 😃 Wishing you all the best. Seems like it was no coincidence that you moved to Durham and have access to some of the best healthcare anywhere in the world😊
After multiple mini strokes I was diagnosed with pancreatic and liver cancer 8/23/13. Declined treatment and have been diet based existing. Hospice has been keeping me comfortable as it has advanced. Thank you for sharing ur story!
Wonderful!! 💕 What is your diet like?
Three years with pancreatic cancer! Very fortunate to not have the version with the 6 month lifespan.
I’m happy we’re both still kickin’ 💜
🇬🇧 My husband passed away, 4 months after being diagnosed with Bowel Cancer, with cells in the Prostate being found too! This happened during COVID and being dyslexic, and the only contact with doctors being via a phone call, he couldn’t describe his symptoms properly. He would just say he had difficulty passing motions so the doctor assumed it was constipation! I had a feeling it was more serious than that, but he wouldn’t let me speak for him, so, by the time he could get an MRI, he was already at Stage 4, and at 84 he was beyond surgery or chemo.
He was one of those men who thought he was dying if he sneezed, a real drama would ensue but, the way he handled this terrible diagnosis’, was so admirable! You remind me so much, of the way my husband handled the news! I still tear up, almost 3 years along from his passing!
GOD BLESS YOU FOR TELLING US YOUR STORY! ❤❤🇬🇧
My mom had a whipple and survived 17 years ❤❤❤❤god bless her surgeon ❤❤❤❤
That’s amazing, my father died 3 months after diagnosis
This guy is refreshingly real and relaxing, very cool.
He is a gentle soul. I get that from the way he talks. May he be blessed.
Thank you for sharing your amazing story. There is a reason you are still with us. God bless! My dad had the whipple procedure when he was 79, They said he may get another 5 years. He had some complications after the surgery and was in the hospital for almost 4 months, but he is now 92 and still with us. August will be 13 years since his surgery. Enjoy every minute of your beautiful life.
God bless you and your dear Dad. It's amazing that it's been thirteen years 🙏🏼
My husband died from pancreatic cancer. It was a confusing and grim 12 month journey to diagnosis with doctors who never quite articulated the truth. You're so right about the oncologist personality! We found out from an aide who came into the hospital room to get something and said offhandedly, "I'm so sorry about your cancer. I know it's a tough road." We were like "what the hell?" Then the doc came in and gave us more info. He suggested we take a trip to make memories. Trip?!! He can't eat, can't sleep, lots of pain, etc...trip to where?? He had chemo and all that and died at home about 3 months later. 13 years ago and I still feel guilty about it to this day. Matthew, I wish you all the love and happiness you deserve. You seem to be doing well and I pray the good news continues! Live long and prosper ❤
You say reality on Trip advice..doctors can be unrealistics. Sorry for your lost.
🙏🏽
Sorry for your loss. As someone in the medical field, I think this was the physician’s way to say “time is short, please make the most of it.” A lot of doctors are not great at the Bedside, they do me a well. In addition, sometimes anything we say can be taken wrong… again, I apologize for your loss.
Guilt is such a horrible emotion. I’m very sorry. As the survivor of a partnership, you will feel like half of you is missing and it’s not easy seeing someone you love go through this. I’m a nurse and I understand how some Drs can be. All you want is for that Dr to be as truthful as they can be, put themselves in your shoes and go right back to before he /she ever knew anything about medicine and relay the information/findings/therapy/outcomes in a kind and basic methodological approach. It’s a very overwhelming experience all round when faced with a potiential terminal diagnosed and then when faced with jargon it’s just too much. Navigating the system is hard. I’m sorry you have had to watch someone you love so much go through this. Let’s hope this fine young man gets all of the available treatments, tolerates everything well and his prognoses is a bright one ❤ hugs
I had a similar experience with my mom. An aide walked in the room, with a smile on her face, pointed at us and said, Pancreatic Cancer right? We just stared back at her - we didn't know that yet. then a young doctor came in and said, "Well you had a good life, right?' "You have a few months, We will start treatment on Monday". My mom was 69 years old and she actually had a difficult life. I hate medicine after that. She did not go back. She felt absolutely hopeless. She died weeks later in my arms. Greatest mother ever.
Currently fighting cancer on my brain. Sometimes it feels very isolating. Thank you for sharing your story. I am young like you as well, we are going to leave a legacy of perseverance and strength no matter how long we are here. “ you are not the statistic!!” I agree that treatment is not linear.
You are doing an incredible job.
love from .. also Michigan 😊
God bless you Jennifer. I hope you never feel alone. Sending love and best wishes.
Lost 2 friends under the age of 40 to pancreatic cancer. Both African American women, both had several bouts of symptoms that were expressed but brushed off due to age and demographic. We planned cancer walks and remission cruises but neither of those beautiful, vibrant, larger than life souls made it past 3 months from diagnosis to their last day in the physical realm. I'm still angry at the dismissal of their voices. I've chosen to be thankful they didn't endure what many have and that's the loss of peace when diagnosed and have long heart wrenching battles before moving to heaven. This video was bittersweet for me; I went through so many emotions as I rejoice at the victory I'm seeing and hearing. I know Jerlone (Lonnie) and Nyia would rejoice with you and at the same time, would've given anything at all for the same outcome. I watch videos like this to honor myself by being my own advocate and for the friends who undoubtedly would've pushed harder to be heard had they even considered the possibility of not being here because of "tummy trouble". Keep pushing, every day keep pushing.
I am shocked that in ER you never had a CT WITH CONTRAST, it would have been found immediately. So sorry you were put through so much. ❤
I think it's because, as I said before, statistical probability is the deciding factor. He didn't fit the typical profile so they dismiss the possibility that he has cancer.
A friend just found out that they were sending her for a contrascan & the operator refused to do it cos it's radioactive & can be very damaging to the kidneys (hers are too damaged). The doctor sending her had no clue about this danger she was prescribing. Scary
In any other western country in the world you’d be given this scan without hesitation. But US doesn’t value its citizens and there’s no universally free health care.
I went to the ER twice for shortness of breath. No tests were run either time. DRs discharged me and told me I had a sinus infection. I found out later that I had hurthle cell thyroid cancer. They took the thyroid out but left a piece in there. No oncologist referred to follow. 10 years later looking at a lymph node removal in my neck. I now question how drs are qualified for their professions.
I'm sure they scanned him before surgery to make sure there wasnt a tumor pressing on the duct causing the stricture. Unfortunately, the pancreas is so deep in the abdomen that CT's and even MRI's can miss tumors. I have had many abdominal surgeries and they always scan me right before for better surgical success. Pancreatic cancer is so hard to diagnose - even with all the imaging, they sometimes cant diagnose it until the actual suregery
You are an incredible storyteller. Your wit and energy make even the grim parts of your story palatable. I hope you continue to share your journey or simply share your life and times with the world. I thoroughly enjoyed watching. I’ll be rooting for you.
Thank you for the kind words. I really appreciate the love and support
Matthew, from what I see God has already blessed you.
May it continue to bless you every day.
I have lost two people to pancreatic cancer. Thank you for sharing this information because pancreatic cancer does not receive enough exposure.
Wishing you only the best.
Please get all your family and friends to call on your State Legislators and insist they lobby for Pancreatic Cancer Research Money, You have to contact one of the Senators to bring this to attention when they lobby for money for medical research. I say this because I have been told exactly what I'm telling you to do by the Pancreatic Society I joined . My daughter has Stage 4 and on Chemo,but we need to get the word out that pancreatic has fast become as notable as any other cancer, though once unheard of.
Thank you for sharing your story. I live in the area and know your surgeon well. My husband is a CT surgeon at the same medical center. Your dr is world renowned in the pancreas world. I wish you continued good health!
Could you tell me again What surgeon and medical center it was?
Duke. Dr. Peter Allen@@kristinemcallister6322
@kristinemcallister6322 it was probably UK HOSPITAL..
@@roseminter_jones5365it was not! I received treatment at Duke and my surgeon was Peter Allen
He lives in Hazel Park, MIchigan.
One of the ladies I worked with died of pancreatic cancer. From diagnosis to death was less than a month. She was one of the loveliest people you would ever want to know.
Stories like this are truly unfair
Please don't share stories like this to people who are fighting for their life. This is not helpful to that person.
My best friend had pancreatic cancer and she got the Whipple operation and chemo and it’s now three years and She’s doing great and life is back to somewhat normal!
She travels all over the world! Thank you for your story I wish you many many happy years
My mom passed from pancreatic cancer . It’s good to see others living longer with this now . Thanks for sharing your story.
As a Lymphoma patient, I have much appreciation for your informative and inspiring words, thank you Matthew.
I’m a Stage IV NH lymphoma patient; sending good vibes from Canada!
My sister was a health oriented person her entire life, went into hospital for her gallbladder and was diagnosed with pancreatic cancer. Had the Whipple surgery and stayed with us for a few years longer after that. It was a battle, but I never would acknowledge the statistics, just the fact that some things are out of our hands. The challenges ahead of you are formidable, but love and support can produce miraculous results. You got this!
Thank you. My dad passed from stage 4 Pancreatic Cencer in 2015, and I appreciate every new post with information.
Sounds like you had a really nice surgeon-the one you called “salt of the earth”-we need more like that!
This man is absolutely delightful and I sincerely wish the best for him and good health
I’v been declared panreatic patient at 72 sept 22. Had chemo to prepare me for whipple surgery June the 14 th.23. Today is the 22nd of march. Doing a lot for exercices muscular and cardiovascular, and heating very healthy. Your case giving me a lot of hopes. Moreover I have beaten prostate cancer with brachytherap 27:23 y
Matthew Thank you for sharing your story in such a positive and upbeat way. Wishing you well. ❤️🇬🇧
Thanks for you message. My brother was diagnosed with pancreatic cancer. Because of his, age 83 now, he has refused chemo treatment and id currently in Hospice care. He is very quiet and stubborn to acept care but I know he is depressed about the whole thing. It was helpful to hear your story to understand him better.
Your spirit is INFECTIOUS! Thank you so much for sharing your personal story. Please know that someone in Southwestern Ontario is praying for you, that God would have His merciful hand on your life and your spirit. GODSPEED, Sir.
Retired RN, couldn’t be happier for you🤗💕
You seem so sweet. My mother died from pancreatic cancer in July 2020. I hope you live for a long long time. You look well
Thanks so much for posting your story. I LOVE your message that you are not a statistic. I don't think I could do the chemo though. My sister at 36 was diagnosed with late stage and rare deadly cancers - TWO!!! - She was told chemo was not an option and expect six weeks, six months, maybe one year. She lived cancer free post surgery, no chemo, for 22 years.
I wish you the best!
God Bless you what a powerful smile you have as u share your cancer story I SALUTE 🤦♀️you for sharing with us and ty u for given us Hope ❤
Such an eloquent young man. Good luck to you and I hope you have many healthy years ahead of you.
Thank you so much for sharing your battle with pancreatic cancer. My brother-in-law died in one year of it. My aunt did too. I am a cancer survivor too. I pray you continue to do well🙏🌷
Thank you, so much, for telling your story , Matt. When you're all healed up and shiny again, I hope you return to academic pursuits. You are a gifted and engaging speaker and I'm sure you would be a favorite professor or lecturer on any campus. My best to you.
That's si important don't wSt you're tallent
Don't waste the students need tutors like you !!!!Best luck sent fromGB
my grandmother was diagnosed in September 2000 and she passed in January 2001. I'm so glad that you've gotten an amazing treatment!!!
Mathew. You are a wonderful storyteller, being able to relay the story of your cancer. You tell the facts but display such a positivity. I’m so glad you are doing well, and pray that you have seen the lady of this cancer. I think your tremendous attitude helps tremendously. You are an inspiration
Sorry, last not lady.
My mom had all these symptoms with gallbladder cancer that spread to the liver. May you be healed 🙏🙏🙏
Matthew, I’ve worked with cancer patients for 14 years and you taught me so much in this video, especially patient perspective!💜
THANK YOU so much for sharing your story, the mire mention of the words Pancreatic Cancer, send shivers…. Here’s my story: My mother died of pancreatic cancer 2 years ago at the age of 81. Her mother died of natural causes at the age of 98… so she had high hopes of a long life. No other cancers in the family, other than her brother’s fairly easily cured prostate cancer…. She hid everything from me, she was scared…. As it presented itself in her breast, and that’s how I “saw” something was wrong!! We were told by several doctor’s that it was inoperable breast cancer, the tumour was getting bigger every week (crazy!!) and that she was terminal, and had 6-18 months to live…. The tumour got so big, that the lesions and bleeding were now life-threatening (she was taking blood thinning drugs)…. It was hell!!! Eventually they removed the breast and tumour, and finally diagnosed it as pancreatic cancer that has spread everywhere at this point… she died 3 weeks later while waiting for a spot in a palliative care facility!!! I miss her dearly, and wonder how this happened, and if I’m at risk…. Not sure what to do… 😢❤
I listened to every word you said. A really good mood, always happy and positive. That was part of the cure I think. May you live and prosper!
Love how you randomly smile while talking about your cancer! It’s your positivity shining through. 😊
Thank you for sharing your journey to date. As a 60yr old male, I can relate to some of your symptoms,may I offer prayers for your continued wellbeing. May your god, guide bless and protect you. Take care 28:18
Amen
I had the Whipple for adenocarcinoma carcinoma on the head of my pancreas. My surgery was 12/31/21. I’m now 81 and doing great. Prayers for you! ❤
Matthew you have such great courage, firstly, to have gone through so much, and secondly, to talk about your experiences. Without doubt this will encourage others to seek medical advice. You deserve the very best for a long and happy future.
Two things here
Great spirit and personality of the patient
Excellent medical team. Our Creator is watching over this guy.
Please don't bring your God into this.If he exists this man never would have gotten cancer at all
@@peggygraham6129
Hey Peggy
Go pound sand. I stand by what I said
@@peggygraham6129 Really? You realize we are on Earth, not Heaven, right? It’s wonderful, scary, and full of beauty and sorrow here. And many unknowns. There’s nothing wrong with seeking out our Heavenly Father with faith He listens to us. Faith can bring miracles, and one of those miracles that comes from God is peace to handle anything that comes our way. He can also provide miracles of healing, but the most important blessing is peace, knowing we are ultimately in our Father’s loving care. I hope you find that out someday.
There's also nothing wrong in not believing in God...everyone is free to make there own minds up
Peggygraham6129 please dont bring your negativity and ugly attitude into this. You have no idea what you are talking about
When you described burning your hands and feet for relief i totally understood. While I was pregnant I couldn’t stop itching. I was ill, I would scratch til I bled and the sheets would stick to my body at night. The only time that horrendous feeling left me was when I scalded myself on the shower. The pain of the scalding water was pleasing in comparison. Very few have understood this, but I understand you.
I wish you well and will be thinking of you. You’re a great man for sharing your experiences.
That sounds terrible. Do you know what caused that? I’m always so curious when I hear something I’ve never heard before
Cholestasis of pregnancy. I had it. The moment I heard him describe the itching I knew it. I too burned my feet and hands as well. For months.
From some guy in Oregon, wishing and personally praying that you get another 50 years or so.
My dad had the whipple surgery but unfortunately passed away 9 months later. He was 81. It’s so good to hear a good story (your story) where pancreatic cancer is concerned. Everyone in my family dies of some form of cancer. It terrifies me. I hope I’m spared and God just let’s me die in my sleep. I don’t think I could handle that diagnosis well. I’m telling you, you really are courteous and I applaud you.
So happy you beat the odds . You were given this 2nd chance for a reason . God has plans for your life.❤
I had surgery over 21 years ago to remove a neuroendocrine pancreatic tumor from my pancreas. Along with the tumor, the surgeon removed about half of my pancreas and my entire spleen. I'm still here, but neuroendocrine pancreatic cancer tends to be more survivable than adenocarcinoma cancer.
Same here. Are you taking the monthly chemo to keep it at bay?
@kcashut I never had chemo or radiation therapy. The tumor was completely removed and it hadn't spread to any lymph nodes or other organs. I've had no reoccurence in over 21 years.
Same, my tumor. Was in the tail, removed Aug 2020. It was supposed to be adenocarcinoma after ultrasound fine needle aspiration, but the tumor removal after a month revealed NET, and is stage 2 grade 2 because the margins were not completely clear. It was over 2 cm, and I was told to be watchful, but be not scared, we would see for the next ten years at least.
There was a 25 year NET Survivor in my rehab group, and he had so many therapy options, PRRT was just started for him a few months ago.
No bleak prognosis, I 😊think.
@@gogreen7794 I am trying to remember the name of my medicine. It is injected monthly and helps with carcinoid syndrome and blocks serotonin. PNEats like to eat Serotonin and grow. I remember now, It’s Lanreotide Somatuline Depot. My tumor was removed in 2008 but I still have some markers and symptoms. I tell ya, I miss my spleen. Do you get sick easily without yours? Anymore pancreas pain?
@@NickUncommon how are you doing? Still getting scans? Do you have a NET specialist? I recommend taking the injections so it won’t come back. I still have a lot of pancreas pain so it worries me pretty often, is it here, is it spreading, but I try to not get consumed with worry. Did the surgery make you diabetic? I did not realize at the time that insulin cells are mostly in the tail so I had no idea I would be diabetic.
This guy is hilarious. He's so likable and genuine. I wish he had his own channel.
I AM SO HAPPY FOR YOU. I AM A CHEMO SURVIVOR FOR 25 YEARS NOW. NEVER GIVE UP
Matthew is a great story teller. I hope he lives a long, long life. The 2nd chemo seemed to be a game changer. I am so glad his dr. switched it up.
Fellow Brca 2 carrier here and I wish you all the best! Keep positive and don’t live your life based on statistics. The mind is so powerful and you seem to have a positive one😊
Lost a dear friend in 2022 to pancreatic cancer. It had spread to her liver and she actually passed from liver failure. I worked with her and remember well her complaining of back pain. She got new shoes to help. Then her side hurt so the docs told her it was her gallbladder. Finally the pain got so bad that she went to the ER. She had imaging done and was subsequently diagnosed with matastic stage 4 pancreatic cancer. She was diagnosed in Sept and passed shortly after Thanksgiving. I miss her so much. I wish I'd known she wasn't going to be around much longer. I would have spent more time with her. I'm a cancer survivor and I wish she could have been too. Cancer sucks!
So sorry, my best friend passed liver cancer😢
One of my coleagues husband had a second cancer, a new one in esophagus, and this time he couldn't go under surgery, or finish all the rounds of chimo and radio. He was given threw months the maximum. All nourishment by gastric tube device. It was fifteen and a half years ago. He is doing well, they managed to put this feeding matter under control, they go on hollidays very often, and he goes on beeing this calm guy, in peace with life, and though he told me once that he doesn't guess about death, he feels grateful for every day he is given. I suspect this is a part of the "formula". Wishing you the best recovery. 🙌🙏
Thank you for sharing your story. My mom died of pancreatic at 81, lived about 14 months from diagnosis. No treatment offered to her other than a few radiation sessions, thankfully she was not in much pain until the very end. This was 20 years ago. Fast forward to this year, my friend just died at 68 after a terrible 1-1/2 years. Had Whipple, it did not work. l learned from him to be very careful if you get into the clinical trials stage. He was a healthy athlete, he so much wanted to live so he kept trying everything. They kept throwing trial after trial at him, he suffered so much. It might have been better to stop treatment earlier, but none of us know what we would do in that situation.
Matthew, my mom had that same intense itching. No pale stool and normal urine. She was not a drinker or a smoker which doctors say are causes. You got this! ❤
Not all smokers get pancreatic cancer, but smoking is the 30% risk factor for pancreatic cancer. My friend was a heavy smoker and was diagnosed with it at age 57. She died 6 months later.
My mother died of pancreatic cancer in 1980, three months after dx. She never smoked and probably drank a total of four glasses of wine in all her 67 years.
So sad for you both and you're family
I was happy to hear that your cancer story ended good for you. So often I watch these videos and the patient just waste away in front of our eyes. Congrats on beating the odds.
I listened to the entire video and came away with an encouraged heart. You truly are a Trooper for Hope.