Living a Half-Life: PMDD Patient Experiences and Insights -- Patient Insight Panel IAPMD Roundtable

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  • čas přidán 8. 07. 2024
  • Living a Half-Life: PMDD Patient Experiences and Insights -- IAPMD Patient Insight Panelists: Ashley Taylor Adams (US), Gina Friel (UK), Ali Michaud (CA), Julia Mosher (US), Melissa Sue Vair Ogden (US), Wencke Plaß-Maerker (DE), Deyjianna Turner (US), Heather Williams, CCRC (US)
    Learn More: IAPMD.org/pcc

Komentáře • 9

  • @MyPMDDDiary
    @MyPMDDDiary Před 4 měsíci +2

    *desire to run away/escape* this is so true thank you so much for sharing this research I can relate to all of these!

  • @pmddadvocacy7308
    @pmddadvocacy7308 Před 2 lety

    I can't wait for the insight panel to recruit again. I would love to be a part.

  • @Anonamouse-jh8uj
    @Anonamouse-jh8uj Před 2 dny

    This is me

  • @kiraknuckey4098
    @kiraknuckey4098 Před 2 lety +1

    Amazing! So, so proud of the PIP members that represented on behalf of us at the roundtable. I can't wait to see what happens next in terms of research and advocacy. I was part of the PIP and have been inspired to become a peer support facilitator, with the first Australian group. It was so great to be a part of the PIP, give my Australian perspective and meet and learn from so many other strong women with PMDD. Thanks so much to everyone that made this happen.

    • @IAPMDglobal
      @IAPMDglobal  Před 2 lety +1

      Kira, Thank you for being apart of this, for sharing your story, and for spreading awareness! We are always in your corner!

  • @betsyclark5772
    @betsyclark5772 Před 2 lety +1

    Wow! This was AMAZING information! I just want to thank all the AMAZING Women doing all of this work! I have suffered with pmdd for many many years. I am 39 and just had a full hysterectomy a little over 2 months ago. At times I felt as I was alone and going crazy with all the symptoms and had no idea how many other women suffered with this. I thank GOD for you all! I am feeling much better but still figuring thing's out as I struggle at times. I wish there was more I could do as I know what every one of those symptoms feel like and not having any support because others do not understand. I am here in anyway I can be! Thank you again for all of you and all you are doing!

    • @IAPMDglobal
      @IAPMDglobal  Před 2 lety

      Hi Betsy! SO glad this video found you! We are so proud of you for your resilience ❤️ Did you know we have a support group specifically for Life Post op? Come Join us! iapmd.org/group-support/#ourgroups

  • @helenflint9033
    @helenflint9033 Před 2 lety +1

    This is absolutely amazing! I was so proud to be chosen for PIP but unfortunately due to other health issues on top of it I wasn’t able to participate as much as I had wanted and planned to. After watching this I feel like I have finally been heard and I’m sure this will be the case for so many women across the world. I really would like to thank Laura and all of the PiP members for your hard work. The ladies chosen to present the PIP were the perfect choice and I as a pmdd sufferer am proud of their representation of this awful disorder. Bravo!

    • @IAPMDglobal
      @IAPMDglobal  Před 2 lety

      Thank you for being apart of this! We couldn't have done this without you, Helen ❤️ You are NEVER alone!