The Future of Lymphatic Drainage: Revolutionizing Lymphedema Treatment
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- čas přidán 16. 05. 2024
- I speak a lot about lymphatic drainage on my channel. I explain the traditional method of manual lymphatic drainage (MLD) that's been used for many decades. But that may start to change! Let's dive into the latest research findings from the ALERT program on lymphedema treatment. I discuss how these findings are changing the way we may begin to perform lymphatic drainage. We also learn about ICG lymphography and how it's being used to diagnose lymphatic dysfunction. I will also explain how these new findings can lead to more efficient and effective care for patients with lymphedema.
*All credit for video clips, slides, and data to the Australian Lymphoedema Education, Research and Treatment (ALERT) Program at Macquarie University. Find their Information here:
www.mqhealth.org.au/about/fla...
Suami, H., Heydon-White, A., Mackie, H., Czerniec, S., Koelmeyer, L.A., & Boyages, J. (2019). A new indocyanine green fluorescence lymphography protocol for identification of the lymphatic drainage pathway for patients with breast cancer-related lymphoedema. BMC Cancer
doi.org/10.1186/s12885-019-61...
𝐋𝐨𝐨𝐤𝐢𝐧𝐠 𝐟𝐨𝐫 𝐋𝐲𝐦𝐩𝐡𝐚𝐭𝐢𝐜 𝐃𝐫𝐚𝐢𝐧𝐚𝐠𝐞 𝐨𝐫 𝐄𝐱𝐞𝐫𝐜𝐢𝐬𝐞 𝐏𝐫𝐢𝐧𝐭𝐚𝐛𝐥𝐞s?
Check out my e-guides with directions, visual diagrams, and more in my shop: www.cancerrehabpt.com/shop
00:00 New research on lymphatic drainage
02:06 Arm Lymphedema
06:23 Leg Lymphedema
Lymphatic Drainage Playlist: • Lymphatic Drainage Rou...
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*I am a physical therapist, but not your physical therapist. Although I do monitor comments, I cannot respond to personal medical questions. Please know that these are questions for your own doctor or provider as this is general information only. Thanks!
DISCLAIMER
The content of this website, Instagram, CZcams, lectures, webinars, blogs, digital products, or other platforms does not replace the care of physical therapists or other healthcare professionals. This content is in no way to be construed or substituted as physical therapy or any other type of medical advice but is for general education purposes only. Don’t use this content to self-diagnose or self-treat any health, medical, or physical conditions. You agree to hold harmless indemnify Cancer Rehab PT, LLC and its owner/employees for any and all losses, injuries, or damages resulting from any and all claims that arise from your use or misuse of this content. The company cannot guarantee the outcome of educational content or recommendations on the company’s website, social media, products, blog, or email series, and Cancer Rehab PT, LLC’s, and owner, Kelly Sturm’s comments are expressions of opinion only. Keep in mind that we may receive commissions when you click our links and make purchases. However, this does not impact our reviews and comparisons. We try our best to keep things fair and balanced, in order to help you make the best choice for yourself.
𝐋𝐨𝐨𝐤𝐢𝐧𝐠 𝐟𝐨𝐫 𝐋𝐲𝐦𝐩𝐡𝐚𝐭𝐢𝐜 𝐃𝐫𝐚𝐢𝐧𝐚𝐠𝐞 𝐨𝐫 𝐄𝐱𝐞𝐫𝐜𝐢𝐬𝐞 𝐏𝐫𝐢𝐧𝐭𝐚𝐛𝐥𝐞 𝐇𝐚𝐧𝐝𝐨𝐮𝐭?
Check out my e-guide with directions, visual diagrams, and more in my shop: www.cancerrehabpt.com/shop
Can’t wait to view the video for leg manual lymph drainage that you plan to send out! This is very exciting! Have had leg LE for 26 yrs now and am always open to try new things to keep my leg under better control!
Thanks so much for sharing this!
There will be 2! One for mild swelling/lymphedema and another for moderate/severe. These come out starting in a couple of weeks 🙂
@@CancerRehabPT Hi, I haven't missed these yet have I? Thank you for the knowledge, it makes such a difference.
current Lymphedema therapist here! and im always looking for new research. Thanks for the info!
Yay! This is such great literature and I know they have more coming
Thank you for this information. Glad there are still some studies trying to make things better for us.
Exciting news and so thankful for your knowledge! Thanks to the researchers who help the lymphedema community live their best life !!
Thank you, Kelly ! ❤
Thank you, Kelly.
Thank you so much for this information. Look forward to any new content you provide for left breast/arm lymphedema as LDM should drastically change as a result of the study.
Instinctively I've known this all along!! My PT kept saying don't push so hard & slow and DON'T go to the armpit where lymph nodes were taken. I only saw her twice... Thank you so much for this video, now I can do the exact thing my body has been telling me & I've been fighting and maybe get somewhere with the build up in my arm & breast!! It's been 3 years. I feel like it's about asking the existing lymph nodes to work again (I had 7 removed), I like to massage them gently along with pushing firm & slow under my arm and breast. I'm excited & plan to work on it every day!! Thank you! 🤍
Excellent video and information. Thank you so much for sharing.
Thank you so much for sharing this information! It's very useful and look forward to future videos!
Thank you, I will be watching.
I am new at this lymphedema stuff. Stage one. No cancer. No lymph nodes removed that I know of. I have Crohn’s disease,. I have a colostomy for 33 years now of which I am so thankful for. Dealing with parastomal hernia as well of which I am not thankful for. Have had other surgeries due to Chrohn’s. Other physical issues as well and lymphedema added to my list. I have started therapy. Saw your video and have subscribed. Very interesting to watch. Thank you. Oh, I will be 74 in August.
I've had no surgery but have edema in my ankles and feet. I'm using everything I can think of to aid me. I use a foot massager, acupoint slippers and finally a rebounder with bungee type springs. The Rebounder is excellent for lymphatic drainage and you needn't be jumping up in the air to necessarily see results!
I just ordered a rebounder today, I sure hope it helps!
The rebounder didn't help me and I use it every day...
@@libafried5840 Sad to hear that because it certainly helped me! I suppose everyone is different.
What I understand is that there is a new way to better diagnose lymphedema problems, and that surely would lead to better treatment, now that we know better about these paths where the fluid goes. Many thanks to you Kelly for providing the best up-to-date information- Always learning and feeling taken care of from your videos 😊
Yes! These are big steps that are much needed to continue to help treat and manage lymphedema. This team of researchers are doing wonderful things to make sure we can support each individual. Thanks for being here 😊
Im from pakistan.itried my best to understand but idid not.kindly su
mmerse it.thanks alot.we pts of lymphedema see hope from u
Thank you Kelly! I have learned much and I look forward to your new videos for head and neck. I had cancer surgery and many lymph nodes were removed. So I’ve applied your tips to work on drainage in conjunction with my doctors and others.
Thank you Rob
@@TheRobaction1 there are a couple new ones for head and neck being recorded this Summer 🙂 thank you for being here and the feedback!
Good Evening. My name is Gena. I had breast cancer next month it will be 19 years ago. I took chemo and radiation. I had lymph nodes removed. And maybe a year later.......Yep.lymphadema. I've had therapy from time to time. But I'm tired of people asking me "WHAT HAPPENED TO YOUR ARM???" The lymphadema went down a little bit but my left arm and hand are almost twice the size as my right hand. One question does the food you eat have anything to do with the swelling? I do not have any pain BUT!!!!! If I Take off my compression sleeve.....boy does my arm itch!!!! I try not to scratch it.
I've never had surgery but i do experience lymphatic issues and i SO APPRECIATE YOU.
Thank you for all you do and all you offer to guide and educate us.
You are appreciated 🙏🏼💗
Oh you're so welcome! I know lymphatic issues aren't only lymphedema, so I'm glad you have found these helpful!
@@CancerRehabPT - I began having mild lymphedema in my left foot in junior high, so I had to alter the kind of shoes I wore. I knew nothing about wrappings or compression garments, though, so it gradually got a bit worse over time. I have immune deficits, so it may be genetically tied to that.
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Then I had pelvic and groin radiation, and BOOM!! much worse with both legs now, left worse than right. So far, it stays at bay with compression stockings and a compression pump, but I cannot get away without a daily wearing o' the stockings or I swell.
Thank you for presenting this interesting new info!
I am a student of the ALERT Lymphoedema Practitioner programme which is highly recommended
My sister has been diagnosed with lymphedema and cellulitis. I'm worried. Can it be cured?
- From India
@@venudoddavarapu9186My husband has lymphedema only the 1st stage can possibly be reversed but there is no cure. Its a progressive disease so it's best caught early.
It cannot be cured, it can be managed some.
@@tam4givin Yea. Would you please share some things to take care and managed successfully?
I had a mastectomy in February of 2023 and 22 lymph nodes were removed with two that were cancerous. One of the lymph nodes was severely overcome by the aggressive type of cancer. I’m 78 so the chemo tx was less severe than if I had been 30. Oncologist and radiologist believe radiation will reduce chances of return by a lot. However the area to be targeted is the area above the collarbone. The radiologist says this will affect my already stage one lymphedema. I’m concerned that the radiation will leave me with an increasingly bad case of lymphedema. At my age I don’t want to spend what little time I may have left of my life compromised by a worsening case of lymphedema. I’m tempted to forgo radiation and take my chances.
Thank you! Very interesting. Sharing with my friends. X and I've bought some compression socks thanks to you and they're helping
Very interesting.... looking forward to more info and techniques
Thank you! You're very helpful.
found this info/channel by chance, I had/have a staph/cellulitis infection in my right leg. Since then been fighting lymphedema. No doctor or proper care since 2006. This is not just a cancer issue. Now knowing this info trying learn all I can here/find a local doctor that practices this kinda of care. 😢Thank you.
Thanks for sharing this Kelly. It's so helpful to have credible medical professions like you helping the lymphedema community. I'll never forget how essential your videos were when I began to experience post-lumpectomy lymphedema - it was during the holiday season + COVID and the cancer survivor centre was closed for several weeks. My breast had swollen like a balloon and I was scared. Thankfully I found your videos, was able to learn how to do MLD on myself and did it quickly enough that I was able to bring down the swelling and it didn't progress. I only have Stage 1 lymphedema, and I think that is because your videos gave me the tools I needed to manage the situation quickly.
Your words mean so much to me and give me purpose to continue my best to try and help further. Thank you! I am so happy to hear they were helpful for you in a time of need. I hope you're doing well! 😊
Thank you so much Kelly - your videos are so helpful. I've had full axillary clearance on my left side due to breast cancer. Twice I've had lymphedema on my left hand/arm. I've managed to clear it from my hand but still have mild in my lower arm/wrist. I do your mld practice daily and its helped enormously. :)
Congratulations on managing the lymphedema on your arm, could you please share the videos that have helped you? I have exactly same experience as you. Thanks!
Hi, Kelly - First, let me say how much I love your videos, and how helpful they've been for me since getting lymphedema in my left arm, breast, and torso following my 3/31/20 lumpectomy.
This was a very interesting video. I will definitely be following this research to see where it goes. Meanwhile, I'm a little confused about how to best utilize this info for new massage techniques. I am going to see if I can get access to the imaging process to determine where my fluid goes. But in the meantime, how can I best utilize the strategy/assumption that it is going to my left armpit area? Should I just focus more and/or only on that area for MLD? Or just try and spread those fluids to other areas? I'm confused. Thanks in advance for your response. And thanks for this informative video! 🥰
Hi Kelly, I had 11 lymph nodes removed from my left arm pit that were cancerous and a couple of cancerous growths from my left breast. The cancer in the lymph nodes were the largest. I forgot and had blood drawn from my left arm and of course I have swelling now in the bicep and elbow region. It happened also when I hurt very badly my left thumb with a severe cut to the bone. I really can't afford therapy, but I would love to see an updated video on the best way I can give myself a lymphatic massage to alleviate the swelling from the areas I mentioned in my left arm. What I mean updated is one to show us what is the best recourse to follow without wasting time going to the groin area and how to get the fluid to the neck area from the arm without bringing close to the armpit which had the removal of the infected nodes. I find it all very awkward. Thank you.
Thank you so much for this video. Your explanations were so clear and I am so excited about these findings to help my patients with lymphedema (I'm a PT).
On another note: Do you have any videos on Lipedema? I'm not finding too much reliable information on the treatment of Lipedema.
Thanks for the current info Do u recommend compression garments while doing these?
Fantastic content and informative! thank you!
Thank you! I didn't know you were following over here on youtube, too 🙂 I appreciate you being here!
I actually discovered you via youtube in 2020 :) thanks again for the great content and builiding this community!
@@francescaclemente2655 oh my, you've been here from the very beginning then! Thank you!! 😊
When will you be sharing modifications of MLD based on this science? I have been diagnosed since December and just began intense treatment late January. I had been so active, fit and healthy before. Even as a nurse for many years, I was unaware of lymphedema until I developed it. I am sure that it is devastating and life changing for all of us in many different ways. I am "discharged" from the clinic, but I return for followups. I have a pump, know how to wrap compression wraps, and have garments. However, now that I'm more on my own, I'd appreciated hearing more on changes in MLD that could be more effective. As wonderful as my treatment has been, it has not addressed the emotional impact of lymphedema. I wonder if there is a network of therapists/counselors who understand or have lymphedema that could provide support. I am in Houston, TX. Thank you, Kelly. You provided a lot of support until I could find a lymphedema treatment center.
Good comments.
thank you so much for everything you do! i follow 3 of your videos for left arm, chest, and 10 min cardio (most of the time or whenever i could)
i know both is best but which is better exercise or MLD in making fluids flow faster?
Thank you for the content
Thank you, Kelly. I appreciate your videos very much. Your explanations are easy to understand and tutorials are easy to follow along. You are truly a blessing.
Wow,!!! Amazing and brilliant video. Thanks
You're welcome! We can thank the ALERT team 100 times more for their work 😊
Thanks ALERT team!💗
Thank you!!!
Thank you for the knowledgeable you are sharing. Kelly I am greatful for you. I did want to ask if you are doing lymphatic drainage to elevate fluid and swelling.
Great information!
Sounds like a game changer! I have Lymphedema of the right leg and have found swimming 1 1/2 hr three to five times a week more effective than LDM .. I do a lot of other things that contribute but the swimming as lf it is yoga I have found to be the most restorative thing I do for my Lymphedema ... I an grateful that there is some research in the world as I feel it has been very much in the medical blindspot.
I have Primary Lymphedema--it became pronounced at puberty and I am now 58. I too find that swimming helps so much to keep the swelling of my leg and ankle under control.
Very interesting and informative 🧐.
Kelly, could you do a video on lymphatic drainage for lymphoedema in the back and chest - females. Thank you.
This was very interesting and informative. I am leaning my massage practice to lymphatic drainage. I have lymphedema in both legs as did my mother. I did my mother’s massages and wraps. Doing my own, I have switched to using a gua sha tool to assist. I am a little firmer than I was with my hand only, and found that I have better success, than the lighter strokes.
Please share where I can get the gua sha tool?
@@missok7535I’m pretty sure you can find tools for gua sha on line.
@@kathyestes6577 Thank you
Thank you
Amazing new research! Will you be doing a new video for upper extremity lymphedema to show the modified version of MLD? That would be amazing!
I am! I will have one video for mild lymphedema (coming next in the next 1-2 weeks) and one video for moderate/severe lymphedema, coming a few weeks after that 🙂
Kelly bless your heart. You are encouraging patients and providers to think about what they are doing… in essence, “practicing” therapy. No cookbook, no recipe, simply solid information that won’t hurt anyone if they practice it.
You are so genuine. Very well done Kelly.
I really appreciate this response because that is exactly what I intended 🙂
Wow great new info! Is this study done only for people who had surgery in the area! What about non surgery patients, does the lymph also work this way! Also very interesting finding on the type of massage movement for the two differing conditions. Thank you Kelly for your update.
Thank you for all the help and information. However, when you say there is a new better way and don't explain what this way is it makes me feel like the old way is incorrect so I have trouble doing it for fear it has been found wrong. Now I am not sure what to do. I know you said to keep doing the old methods but I fear doing harm if a new studies have shown them less than effective. You you give more details on the updated methods?
I have POTS & would like to know if dry brushishing helps move the blood that pools in the lower 2/3 of our bodies?
All I can say it's about dang time they started updating the research.
@@CancerRehabPT it's ridiculous in this day and age all we have is massage and compression to treat it.
Traditional MLD didn’t help me much I hope this will help more. ❤
Could this change the way pumps are used as well? Could it be that only the shoulder/arm and arm/hand would be effective versus the whole trunk at some point?
Is the firmer pressure you mention at the end related to fascia manipulation? Myofascial release? I’m in the middle of a fascial fitness class and was thinking about the melding of MLD and fascia manipulation. Is MLD itself considered fascia manipulation? Can’t wait to hear more.
I been watching some of your videos, I subscribed so I could refer back. I had Non Hodgkin's Lymphoma in my chest lymph nodes an up at my collar bone on my right side. , I had Chemo for 6 months. I am in remission, Thank the Lord. Amen. But I worry abit about it coming back. Is your information you give a benefit for me , Im somewhat thinking so. But not sure what massaging technics benfit me. Thanks for all your information, Marla. Have a Blessed Day.
Hi !! A friend of mine in Saskatchewan said she had to fight pretty hard but eventually convinced her doctor to do drainage with a syringe. She said that when drained, the arm returns to its pre- damaged state and takes about 3 months to return back to the damaged state. We live in Edmonton, and my dad has severe lyphedema. Is this something my father should pursue ? What is your professional opinion ? Why do doctors not want to do the syringe drainage ? Thank you for taking the time to read and reply 🙏🙏
How could the syringe have removed your father's excess lymphatic fluid when it is not contained in a balloon-like vessel but rather is spread throughout tissues?
I have lymphedema in my left groin area from cancer and my lymph nodes removed. I use a leg pump to move the fluid. Is there anything more I can do to help myself? I wear compression hose that are 20-30.
What if you have never had lymph nodes removed but have unilateral lymphedema?
ALERT webinar
Personalising Oedema Management: Lymphoedema, Lipedema and Chronic Oedema czcams.com/video/DICvybzJNBM/video.html
❤many thanks
I did a session with someone who used a cool machine and it was nice.
Just wanting to know if it is okay for me to work the side of the neck where the lymph nodes were removed. Stomach, axillary (bilateral), subclavian, and up, with going back down to sweep out more junk. Where do you respond so I don't miss it?
Thanks!
Thank you so much!
How do you feel about pressotherapy? Its often to hard to do self lymphatic drainage.
My sister has been diagnosed with lymphedema and cellulitis (left leg). I'm worried. Can it be cured?
While treating for the same, Doctors also found out a hole in her heart. Doctors say that would be a minimal invasive surgery.
But me and my family is mainly worried about her leg condition. She might also have varicose veins issue.
- From India
I had a bilateral mastectomy & 27 (R) lymph nodes removed yet I’ve never really had a prob w (R) side. I had lymphedema in (L) leg prior to surgery. Can lymph nodes regenerate?
Thanks, Kelly, for always keeping us current. 🕊
I’ve had double mastectomy I have LE in both arms chest and back. Left side worse so I’m not sure of the new findings are they doing double mastectomy or just one side?
Hi! I'm wondering can you clarify? - are these findings of where the lymph fluid goes, made after LMD, or just in general? I'm missing something. Thank you so much! I have had a lot surgeries and radiation and am just starting to experience stage 1 lymphedema (and it's terrible) and really want to work a lot of self massage into my plan. ♥
it goes back into the thorasic duct , and eventually wee out what our body doesn't need. Our blood stream and lymphatic system and digestion system- all work together and interact with each other to manage all the fluid in our bodies. SO we need to drink water to keep it all flowing.
I have breast and trunk lymphedema with no arm, hand or leg swelling. I had a lumpectomy with radiation and 4 lymph nodes removed. My surgical site is near my armpit (about 90 degrees around the full 360 degrees of my breast). I also have cording in my arm and armpit. I think this is why my armpit area and just below are my problem spots. Were there any findings on that? I would think that breast lymphedema fluid pathways would be more unique to the individual since our surgical sites are different sizes, locations and have unique scar tissue. I would love to hear more if there is research on this. Thank you.
I heard they are currently working on researching this area- so hopefully we learn more soon 🙂
Does this apply to the neck too I had all my lymph nodes removed after cancer and radiation on my mouth and throat?
I find compression of any kind extremely painful, my legs are always wet, what can I try?
What do we do for bilateral leg lemphadema?
Bonjour, j'ai découvert récemment votre chaîne. Malheureusement, je ne parle pas anglais. Sur CZcams on peut mettre la traduction selon notre langue. Dans vos vidéos ce n'est pas le cas. Est-ce que vous arrivez à modifier pour qu'on puisse avoir la traduction en français. Je suis frustrée car vous faites un travail remarquable et je ne comprends pas grand chose. J'espère que vous trouverez une solution pour les nombreux abonnés qui vous suivent. Un grand merci pour votre magnifique travail. Salutations de la Suisse francophone ❤
Un grand merci d'avoir activé le traducteur ❤
My lymph specialist said there’s another level of training that addresses fixing wrong way flow outside of surgery. Not sure I’m understanding that fully but is there a name for process?
I have never had surgery except carpal tunnel, and I've never had nor been diagnosed with cancer. I do have lyphedema in both my leges. I manage to keep the swelling down but have bad harding of the skin on my calves. Is what I have curable?
I have a limpoia what can i do to get rid of it they say its not cancer thank you for what you believe in
Thank you for all you do, I noticed most of your talk/videos are on secondary lymphedema. You don't really talk on Primary lymphedema (Lymphedema precaux). I'll appreciate it if you do.
Thanks.
It pretty much the same treatments. Its just with surgery then it is easy to identify where the blockage.damaged area is and then work out compensatory pathways. But with primary lymphoedema it is a little harder , but not impossible,to figure out where your missing/blockage/narrowing of lymph pathways are.Anyone that has any type of lymphoedmea has to figure that out and then figure out where to redirect the fluid to help it move along. Thats what makes it so hard, what works for one person may not work for someone else.Its a process of try one common pathway masage for a while , observe , see if it helps.Learn about pathways, think about where it started swelling , where is it the hardest. You can learn a lot from watching vidoes like Kellys, even if your a primary lymphie. We still all have to do pretty much the same self management , but personalised to our own body and history. Secondary is just easier for standardising for research . But we are all in this together.Lymphies forever.
I read your comment I want you to know over the years primary Lymphedema turns into Secondary Lymphedema because there is no cure for Lymphedema. Please wear your compression garments, if you are in pain take ginger it helps me a lot. I hope this helps.
What if you’ve had full axilla lymph nodes? Will this be effective?
My Grandmother had intense backflow of Fluid into her legs and feet. She would have us press our fingers into her limbs especially the ankle very slowly and hard. Impressions would start to appear and as we pressed towards the groin the fluid would start to leave and Grandma would feel less congestion in the limbs
What caused her back-flow? Isn't lymphatic fluid kept going one way because of "levers" within the lymph vessels?
Is this helpful for congenital lymphedema? My son was born with this condition and it affects both of his legs. People think he is over weight but he is just backed up with lymphatic fluid. Nothing we have done has really helped. He is 38 yrs old and has suffered many episodes of cellulitis and constant pain.
Yes, its for lymphedema.
Very good information. Please demonstrate in panjabi.
I never had edema on my ankles and legs, until I had my first pregnancy in 2016. I lost that pregnancy at 3&1/2 months, and til this day I still deal with bad swelling on my lower legs, ankles, and feet. I have consistently asked different doctors, my orthopedic, my endocrinologist, my pcp. No one gives me an answer other than to lose weight and to take my water pills.
I went to a vein Dr and it wasn't till then I was told I had lipodema and that was what the swelling in my ankles and legs were . Not to lose weight or not to be told I'm not sure. It all makes sense now
@@tcooper802 What if any help did they give you?
@@blackmagicwoman1493 Sorry, I thought I replied back already.. So they said some of the swelling was obviously because I have venous reflux of the veins and causes swelling but also about a stage 2 lipodema. They referred me for lymphatic drainage massage and that was a waste of time for me , no results but some people say it does for them. Also said wear compression hose, I have tried multiple pairs but none that is tolerable just yet but when I have surgery I HAVE TO WEAR FOR 2 WEEKS STRAIGHT so I have to find a pair that is going to be doable. I found a Dr and his name is Dr Hu. He is at artlipo in Tampa Florida( google artlipo Tampa Florida he will come up). He specializes in lipodema liposuction. He post on CZcams while he does procedures,it's amazing!!! Within 30 minutes you have normal legs again it's so crazy. He removed the lipodema while your awake. Do look him up here on CZcams. That's the more permanent thing for lipodema if you don't gain weight afterwards . That's my future goal once I get veins done and lose about 30 pounds. Very costly but I don't want this for rest of my life. I'm 49 and I'm done with the pain and embarrassment of it. I wanna wear shorts again it's been years . Let me know what you think of his videos. Hope this gives ya some more info
In the UK the basic treatment depends on where you live. We need to improve our doctors training because a lot don’t recognise that this is not a weight issue.
If its lymph fluid swelling then water pills won't help and can make it worse as it concentrates it. Wearing medical graduated full leg compression , specific sequence and direction self massage and lots of other possible things can be seen in Kellys vidoes. Often a diagnose comes from a lymphoedema therpaist- not a doctor.
After having peripheral nerve excision in the left side of the groin 5 YEARS ago, I developed excruciating lymphedema in the feet, around the ankles and going up the back of my legs. After a year of weekly lymphatic drainage therapy, it won't budge. The therapist said I needed it drained but neither she or any doctor knew who or how to do that. Another provider referred to it as "third spacing" but also has no idea who/how go treat it. It hurts constantly.
Can this ALERT Group help folks find professionals who can help? Thank you.
Ask your doctor about subcutaneous lymphatic drainage. It's not a well known method and has mostly been used in palliative care for breast cancer patients. I decided to do this on my own because my doctors were against, stating increased risk of infection. A year later, that never happened. I lost a massive amount of weight due to subcutaneous lymphatic drainage. I kept it clean with saline solution. I changed the bags daily. I still drain but less comes out now because less pressure due to reduced volume. It's not a cure. For me personally it has improved the quality of my life. I hurt less. However, I wasn't able to use this method on my left leg. Sometimes it worked but mostly not. There are articles online. Do your research. Wish you the best. Remember to speak to your doctor about it first.
Can you please clarify - when you talk about the lymph moving to certain areas - is this just watching the fluid after ICG or is this watching the fluid w/ a session of lymphatic drainage - ie the traditional way of using the AAI anastomosis to move fluid from affected axilla, down the same side to inguinal nodes? Thanks for the info
I put some links in my comments above , of the ALERT webinars if you want to watch them show and explain the ICG process more.They inject tiny amounts at end of the limb, wait, watch where it goes, then massage up and observe in real time where it naturally wants to flow to . ( No one showed movement of fluid from arm down to linguinal)
@@crispykmm9646 Thanks for the clarification
I have left leg lymphedema secondary to radiation for Prostate cancer. I want to be in the alert study. Dr. Of neurology.
Where can I find lymph dye visualization on California?
How can the direction of lymphatic drainage be changed when the lympatic-vessel pathways already have been established in each person? It seems to me the only hope is to encourage lymph flow to follow its regular paths to keep it from backing up. So if lymph nodes have been removed, where will already established pathways take the flow? Along already established paths there to the next "community" of lymph nodes? When lymph nodes have been removed, how about replacing them with transplant lymph nodes or artificial lymph nodes?
I have an HMO insurance , can the alert program help me ?
I had ALND I/II with 21 lymph nodes removed and already have seroma in that axilla. Seems like fluid is accumulating in that axilla because, duh, no more lymph nodes. So why would I purposely move fluid to that area instead of trying to move it OUT of that area?
Somewhat agree. What happens to fluid when it’s moved to axilla when those lymph nodes removed?
Relates to lipedema also
Chronic lymphedema can also be reduce,i have stuff lymphedema in my arm due to breast cancer ,i have diagnosed from this before 8 years
How does ALERT and ICG benefit people with lymphedema unrelated to cancer or lymph-node removal?
Research is still in process for primary lymphedema - which is much needed and we’re excited to finally see!
@Cancer Rehab PT I'm not postsurgical but have severe bilateral phlebolipolymphedema, more pronounced on the left.
I'm not under "professional" care because I've found it to be a waste of time; they just don't know much. I realize that I obviously haven't found the right person/team but, as in my tinnitus, the blank stares are simply too much for me to bear.
Once they run tests and say that nothing is wrong (ie: no likely imminent death lol), I feel safe to pursue my own care.
I'm going to try some of your teachings (bandaging, breathing, drainage...) and look forward to a good result.
So, among the others here, a hearty thanks to you. 💕
That said...
To your point of slow deliberate massage, I've developed (just doing what felt natural) a way to get rid of backed up solid waste. I press along my lower back, then lower sides, then around to my lower belly, with long deep firm strokes of my hands and fingertips. If it feels right, I'll knead my belly and gently rock back and forth (I'm neurodivergent). Groaning is optional.
Within a few minutes, and several... uh... rounds of results, voilà, a massive amount moved from where it doesn't belong.
Then I can walk a lot better.
This lymph thing is a trip.
😂
This is the epitome of excellence. I read a book with similar content, and it was the epitome of excellence. "Your Body Your Temple" by Sophia Wintergreen
Thanks for your video but I'm not sure lmd works for everyone. As for me, I've never tried. What is working for me is something else called subcutaneous lymphatic drainage. I have massive lymphedema in my hips and legs, mostly left leg and mostly hips. I lost a tremendous of weight over the past year using subcutaneous lymphatic drainage. I'm just too large for bandages on hips and buttocks. My left thigh is now huge. Bandages are too small, not wide enough. This hospital I'm in does absolutely nothing for me even after a year of being here. Subcutaneous lymphatic drainage doesn't work on my left leg. Strangely enough it works on my hips and buttocks. Most of the lymphatic fluid is moving in my body and exiting through that one opening. This hospital doesn't even offer lmd.
bueno!
So I had an experience that nobody is talking about. I was in an accident and got a very small scrap on my leg. It wasn’t bigger than a freckle. At first I didn’t know what was going on but my shoe was filling up with water . It went on for several days. I finally realised it was lymph nodes. It completely emptied the lamp in that leg. And year and half later it still hasn’t backed up like it was before. . Why are they doing this kind of drainage ?
You dont have videos or explanations to advice or help persons that have stroke problems with their hands or bend fingers to make a fist and / or do a massage limbs.
hlo mam my mom have tripple negative breast cancer stage 3 she has a lump in her left axilla she also got her 2 chemotherapy but she has swelling in her left hand since 5 days mam pls help me what should i do whats the cause of the swelling plss 😢 help me
Hi Payal.. I am breast cancer champion and sharing my opinion as I have dealt with it.. foremost to keep away from heat & sweat due to our hot tropical climate in India. Next Manual Lymphatic drainage massage is important and do bandaging on affected arm done specially for stage 2 n above lymphedema. I did n it worked well :)
@@goonjfrenchkibyjosumanprog5016 thank you
This does not bode well for compression stockings (thigh-high or tights) that go beyond the knee where over the course of the day, those uncomfortable wrinkles form in the back of the knee when you must bend your leg. Hopefully, manufacturers will take this information and find a way to minimize those pain-causing wrinkles.
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This could also explain why when I buy knee-highs that match my measurements, they end up causing a constricting band around the top. The fluid must accumulate behind my knee over the day and tighten the top of the knee-high. I have been cutting slits in the top band of these pricey stockings to lessen this effect. >_
Am from India can u help
Does this count for people who haven't had any lymph nodes removed? Just poor lymph function