People need to remember that the PIP assessment is NOT to see what money the claimant is entitled to but rather for the DWP to see just how little they can get away with paying the claimant😔
A mistake I made was based on my character. I was 50 and very ‘proud’. I was trying to tell them how well I’m trying. Also how I use apps, timers, gadgets xx n so on. I hate describing how hopeless and handicapped I am.
@@mrlawilliamsukwarmachine4904 This is a quality that is installed in us growing up . Where people get praised for pushing through. Unfortunately, that does more harm than good, not just for pip assessment but your health in general. My chronic condition started when I was 29, I didn't even know there was something wrong untill I was talking to hospital for my asthma when they found this elevate enzyme in my blood. Prior to that I thought maybe I was just run down. But in high enough level the enzyme could cause full renal failure. The biggest mistake I made was a few months later where I had a good few days. I decided I could start back at the gym. As I always went after work daily. A 30 minutes lite. Work out had me floored for that entire week. As the years went on I had to stop working because I had no control over my pain or fatigue my tremors where getting worse. I had no idea of my limits . When I got my pip or dla as it was . I had help filling it in with citizen advice. What they explained you need to answer the questions based on your worse days. You also need to Them , you cant just tell you have in my cases it was leg and arm tremors . You have to explain that because of these you struggle getting in and out-of the bathroom or getting up as in my case ive had a few falls, so they installed safely rails this goes for every question. Dont feel guilty about needing help. that's what it's their far. I spent most of my life helping others , never being off sick. So i understand the want to be independent . The first thing you need to do is come to terms with your disability accepting this as the new normal. Its very hard when society is taught to look down on anyone on benefits. Like we have some advantages. They dont know what our daily lifes are like. From my experience, my illness stolen all aspect of my life. Stole my career. My soical life. I stopped dating because the idea of being a burden on someone else or holding them back i just couldn't do that to someone else. If i had a choice of undoing it, i would jump at it. So try and fight the urge to say im ok when youre not ..because its ok not to be ok. I wish you all the best .
My husband tried to claim PIP, he had terminal mouth cancer, they refused him, he died before we could appeal, they messed us about for months. We had to use what little savings we had to pay, council tax, rent and utility bills, so come the funeral there wasnt a penny to pay for it, I can honestly say it was the lowest I had ever been in my life, I just wanted to die, and it was all because we couldn’t get help from anyone.
That is an absolute disgrace how they treated you and your husband. They need that money to house and clothe the third world illegals that are arriving by the thousands every day .
When you actually stop and think how much your illness affects your daily life it can be so demoralising and upsetting, i ended up in tears and barely able to speak because up until then i hadnt even realise hkw much i was struggling every single day.
I couldn't agree with you more. I ended up on depression medication after going through the process. Only to be told that I didn't meet their requirements, so had to appeal. Affects my husband too.
Me too , I have been in denial about my disability for 20 years, Charlie’s videos made me very angry and very sad but I’m glad I’ve finally admitted how bad I am.
I have requested for the how my disability affects me form waited the full 10 working days and had nothing so gave them another call on the 13th day just to give them chance to come they never turned up so they supposedly sent another lot out and guess what the new 10 days are up today so i guess ill be back on the phone to them again its getting past a joke now. I found out that i have a crumbling disc after having my mri scan results back and i only had one after still having constant pain 10/10 daily even after getting over having a kidney stone for 6 months so even on my pain meds i have been prescribed still in constant pain and struggle with sleep every night. Im 27 and always done heavy lifting roles for work obviously had to leave that working life behind and still currently on the hunt for a new job but finding it extremely difficult for what im looking for. Sorry to everyone who suffers on a daily basis its not nice and or fun in any way and i hope you are ok dont suffer in silence.
Oh so true! PIP and DLA are so depressing. I had a good spell when I began to think I no longer qualified but then BANG I had a desperate spell of 7 weeks when I was unable to do anything.
Charlie, you have had me in tears. 'on a good day' on a good day, I have looked and re read my forms and think oh that poor person then realise thats me, its all true but because we live daily with our conditions everything becomes the norm. Its only when we have to think of life BEFORE that. oh and the bit about PIP guilting you .
You are absolutely correct. I applied and got PIP with the mobility component by telling them how it affected me. Again you mentioned buttons, this was one of the questions I was aked about and told them I wear T-Shirts because I cannot do buttons. As you said, tell them the truth about it affects your daily routine, not about what you can do, but what you cannot do. Don't be afraid, tell the truth and you will succeed at the first attempt like me.
I started crying when you said but then you asked “yea but when was your last good day” 😭 Thank you so much for these videos. I had an appointment with the CAB woman who advised me to wait to send my forms in so I had been on my medication for another 6 weeks, and now they have sent me an appointment for a phone assessment, which is tomorrow. I have had awful anxiety for the last two weeks over it and have just found your channel.
I've been through he'll getting my pip. You are exactly right. This is the best information I've ever seen. Just tell them what's wrong, don't waffle on, that's the best way💯❤
Great video well done. As an advisor myself I have always told my clients to keep a bullet point diary from the day you call for your PIP form until the day you complete it, why? because you will only fill out the form on a good day and you need to recall your bad days. Also, have someone who knows you well when you complete the form and see if they agree with what you think you should be putting another persons perception can be helpful in this.
Hi Charlie, I found your channel thank you so much, I had a traumatic brain injury in Sep 2012, and was claiming via the DLA no issues, then once I was transferred over to PIP, I was fully rejected, approached the Citizens Advice, went to court with PIP, and it went in my favour, and the judge gave me 5 years. Last November but PIP review was in place, went straight to Citizens Advice this time, was rejected, went back to them, submitted again, rejected again (but given medium living allowance no mobility) we (citizens advice and I) appealed again they have until the end of February to come back to me, likelihood is I'll have to go to Court again. I am going to watch all your video's to look for tips to prepare for court. I'm most shocked they haven't given me enough points on mobility, and thats my biggest problem area (not in same position as you I know) but from a different angle. Clair x
It all comes down to if you’re getting an employment support allowance and if you receive severe disability premium or disability premium in your ESA if you don’t receive that they will not accept your PIP. Also, the CAB, they get 25% for turning claims down and the involvement in that is DOCTORS social services your housing officers they take reports they use neighbours to spy on us and that’s what they do to turn down and claims I’ve had my experience. I have Motoneuron Disease. and I’m still down. Everybody makes a cut from turning our claims down, especially DOCTORS they are liable for everything they make a report regardless what we fill in the PIP or the ESA assessments. DOCTOR has a great deal involvement in that DOCTOR den any claim because it comes out of the DOCTORS pocket. In the olden days when you applied for anything you have to write to the government even for prescriptions what the government has done if you disable with conditions they pay the DOCTOR the whole amount the amount to spend on us but DOCTORS fiddle that and put it in their pockets how do I know this? Because I have a family member that works in these departments and therefore that’s how I found out my.. What they do is called NHS fraud. I hope my information helps you. Thank you 🙏
I’m glad I found you Charlie. I’ve been diagnosed with MS over 20 years and going through PIP is an annual grind, as is the PIP assessment for my Autistic son and ADHD son. Phew!🥵
What a brilliant channel and such an informative video. I’m 20 weeks into waiting for my 3rd review. I was down scored on first 2 and didn’t get what I was due. On both I was told I couldn’t record the assessment. Now I know this time I can, so thank you.
While I respect (as much I am able to process) you are helping people that honestly really need this PIP and basically want to "scroungers" to do one fair enough. However like many I feel very much in 2 minds (speaking as someone who is Niro divergent and still waiting to see what is actually going on in my head) as to if I should put mla claim in. Both the job centre and citizens advice believe I should. But hearing some of what you say makes me feel like I don't qualify.
I always read the things in the media about being entitled to PIP with certain conditions and think that's BS because you can have every condition on the list and the assassin will fail you on your claim. I use the maps app on my phone if I go somewhere new that's local and will use it for about the first 20 times I go there. In some cases I use it more as I forget the directions and make wrong turns. I get out of breath just going to the bin to put a bag of rubbish in it. I use a mobility scooter whenever I go out. I always send DWP forms by recorded signed for delivery so they cannot say they haven't received it, I put the form in the DWP envelope then in another envelope with the Address that was on the DWP envelope. If they ever said they haven't received it then I will send them a copy of the signature of the person who signed for it, the DWP use a mail opening unit, I think it's part of the royal mail but I can't be sure.
what is the point doing the form, doing the points, the non medical assessor will white wash over it, case manager will make the decision based on the one sided report, THEY ARE PAID TO FAIL YOU
Former PIP assessor here. Good info in this film. Just want to add extra reassurance that assessors are trained to work in your favour. The DWP actually fines the PIP company £16000 if we underscore you. And tgats for one claim. There's no monetary award for rejecting claims. However, we can usually figure out when claimants are over reporting (exaggerating). Advice: Send evidence to support what you're reporting. You cannot tell us you're in excruciating pain every day, when you're only taking over the counter paracetamol with no specialist input etc. Also, contrary to popular belief, most claims are successful. I underscored someone once and I had to explain myself in a horrible interview with 2 managers present. It was awful.
They said it because you consent against the people and work for the masons controlling said perosn. Wef 2030 agreements as points.@@deedeemegadoodoo2864
Really? One came to our house. He wasn't British. Could hardly understand his very thick accent and he had trouble understanding us. He never looked up from his laptop the whole time. Asked my husband to walk across the room and left. My husband was already on the lower rate. He has had a stroke. Has serious heart failure, diabetes and thyroid problems. This foreigner gave him not a single point! Of course, I'm not someone to mess with and wrote a letter that was less than pleasant, insisting they reconsider their decision. In short, I went absolutely crazy. Three weeks later, we got the middle rate. Don't let them mess you about and don't be afraid to show your massive displeasure.
@@Nellb-u2w if this happens again, you can terminate the assessment. It doesn't affect your benefit as its backdated to when you applied. Although will take a little longer to process.
Pip refused me , I was advised to get the report Capita sent in Well I was so glad I was accompanied on the assessment Because Capita seems to have made things up and changed what was said at the assessment
And they do this for practically every assessment they perform... they are given bonus' based on how many applicants are turned down... so yes... they are financially motivated to downplay everything that you tell them... That is just the way it is and we have to accept it and follow the process to ensure we get the points that we deserve to be awarded. Keep going, You will get there in the end. Good Luck
@imbonkers3629 Unless the top box is the truth, of course. This isn't about maximising a claim, This is about being correctly awarded points for the given activities... If you have put a lot of thought into it and decide that the top box is the truth, then that is what you should tick.
@@GaruthiusWhy would you be claiming then, plus illnesses are fluid the top box should never be ticked if you think you have a legitimate claim there would be no point applying, your advice is silly.
When I had my assessment over the phone I was lucky that my assessor was a paramedic (I got a copy of the report and they had disclosed their main job role ) they said that it’s highly likely my conditions will change , which is true . So I’ve been given an ongoing award. I worry greatly what will happen with pip
Failed twice in claiming PIP - got nothing. Third time I sat and thought about what was actually needed, submitted a more concise application, less evidence and got ER in everything. Have just helped a friend through his assessment, he was starting to waffle in the phone interview so I squeezed his hand - he was almost embarrassed to admit how affected he is..
Thanks Charlie for your knowledge and wisdom I suffer mental health condition depression and anxiety disorders and many health condition s aswel thanks for your knowledge and wisdom😊
You are so right Charlie, our good days are good days compared to our normal awful days. I've wok many mandatory reckons and two tribunals, one judge even apologised for me being there are it was a "joke that pip had made me go this far". I never trust pip I ALWAYS send their letters recorded and I also record any interviews. It's a faff getting the paperwork done to allow recording but we'll worth it. As often I have had the reply to an interview and wandered what interview they were talking about...
The only reason I got high mobility is because I got a letter from my doctor stating that I cannot travel anywhere unaided (which is true). Got the full 12 points. So don’t completely eliminate the thought of asking your doctor in certain situations. 🙏🏼💖
Really helpful video, I did not realise that you have to compare to how it would be done if healthy and it is astonishing how your mind accommodates changes and you forget what you did when healthy. Incredibly thought provoking. Much appreciated- thank you.
I sent my pip form back in the brown envelope but done recorded delivery cost me nearly £5 but worth it as in a few days had an email from them saying they had received it. Thanks for making this video was so informative and had me crying in some parts as I thought yes that's how I feel most days. I suffer from rheumatoid arthritis and when you said about when was your last good day I had to think when mine was, and that made me sad
very good advice there i had review papers for pip 2023 february i got face to face as i requested it on 8th march reason i said no to telephone is that on phone i wont get anxiety and social withdrawal issues as im at home in safe place i want them to see me at my worst and since i last went to face to face in 2019 it can now all legally be recorded my conditions are aspergers syndrome severe epilepsy severe depression and severe personality disorder i have always had to take to tribunal and always won good advice on there by the way
A very good friend of mine struggled through the pip process, she got there in the end and the best bit of advice she gave me was fill out the form based your answers on your worse day ever. It worked eventually and they back dated from when I first claimed. I was assessed at home 1st time, she did not ask me about cooking at all but she marked me down saying I was able to cook, she asked me nothing about walking outside of the house, indoors I furniture surf, out side I use walking sticks, she said I could walk 50 metres easily, I went from zero scores on several occasions to passing with 'Flying colours ' when I went to tribunal. 2 days before it went to tribunal I was suddenly awarded higher rate in both sections. I had nothing to loose, I was stronger willed then than I am now, but I would not wish this process on my worst enemy. Thankyou for doing what you do. Your are their guardian Angel. Bless you x🎉😊
I just had my award letter in it she stated I drive therefore I have strong legs and a good grip so I can walk further than I stated . I have COPD and osteoarthritis in my spine. These conditions affect my walking not my apparent strong legs.she also commented that I don’t see specialists for my conditions. I am now filling in the paperwork for Mandatory Reconcideration
Hi i have the same OA in spine and hands, knees, left elbow, i got the same write up because i drive a manuel car (even though i hardly drive now because it hurts is that much) I also have limited grip on my left hand so i struggle with the gears - i put all this on and i even put a added info form in with extra hospital letters and it made no difference so my award stayed the same standard and low mobility. I also have small airways disease and restrictive lung capacity in me right lung - so i get out of breath very quickly. I got grilled on my assessment about walking to my gate and shopping in the supermarket - how long does it take me 🙈🤷🏻♀ I hate doing the forms and renewals 💜
Car reason is uses a lot.make it clear how often you drive and have to pull up and I'm always with someone and only use it for doctors and local familiar places if my husband can't take me and that's rare
2:54 so I personally see 5, two hand rails so 1&2, the seat 3, the wetroom itself 4 and maybe the mat been the 5th but that ones iffy I couldn’t really see anything else that sticks out. I told my mum the same thing about the statement from a family member and she said it must be in there for a reason I reminded her that these people don’t actually care you may as well not be talking to a person for all it counts.
i just found your channel and have to say i am so glad i did as some one who suffers from severe chronic pain and other problems have done for years and gotten worse over time its good to see you explain it all for me and so many others i fought so long to get pip didn't help that the dr said it was all in my head the pain i was going through now they cant do anything for me but give me pain meds which doesn't help much but its good to see how to do the forms they send you and other stuff so thank you so much for doing this and i subbed too
I needed this. I’m so stressed as my renewal is arriving any day now and it breaks me every time. I actually cried watching this as you hit soo many nails on the head. Thank you so so much! Subscribed xxxx
This is absolutely great advice you have helped me so much I sent my form recorded delivery a few days later I had a text msg from them telling me they received my form, that was about 3 weeks ago, so now I am just waiting with anticipation, however after listening to your advice and going over it several times, then writing down on separate paper so I could correct anything finally wrote down what I am confident is right my form is absolutely covered except for the bit about reading and writing as I can do that, sorry this is so long but I am very confident for the outcome even if I have an accessment I have asked for a phone call accessment, but I will let you know what happens, thank you so so much for your help xx
YES I'M SHOUTING THIS, I DON'T KNOW IS AN ACCEPTABLE ANSWER. One lawyer asked me how often I went to the housing office in a yearl, I said as and when I need to, "yes but how often is that"? 9 effing times, by the end I was hysterical. I survived horrific child abuse and neglect I thought the only person who could make me suicidal was dead and buried, I was wrong. His final stab was "if it takes you so long to get anywhere why do you bother"? It took me a little over 3 years to get strong enough emotionally to leave the house.
Great video well explained, wish I’d have came across this earlier, my sister suffers from extreme anxiety and depression, and arthritis,applied for PIP, she broke down on the telephone consultation I stepped in to help her, five months later still nothing, we called and was told decision was sent out two days after the phone consultation, it was re sent, outcome 0 points on everything she was so upset couldn’t bring herself to appeal.
I was refused PIP with 0 points despite having to work from home because I can’t work in an office due to Autism & ADHD and I don’t speak to anyone other than my adult son at home. I only wash once a week and change my clothes at the same time, and am struggling with debt due to no support. I don’t eat regular meals daily and don’t have hobbies or socialise. The assessor said I didn’t sound anxious on the phone, but due to my ASD I struggle with delayed processing. After the assessment I was a mess :( The assessor said afterwards I can’t be that bad as my ADHD medication was reduced, even though I was going through titration and the dose isn’t reflective of how bad your condition is. The decision maker said that my medical records didn’t reflect my struggles, even though I explained that I didn’t go to my GP because I found it too stressful. A massive depressing waste of time :(
😮, you virtually described me! I only speak to my adult son at home and I only got the autism diagnosis a month ago but ADHD for past 12 yrs. I'm seeing my psychiatrist Monday but have been struggling even more lately. Your comment made such a difference to me and I truly want to thank you ( through tears 🥲,) even though I'm in Australia, I don't feel like I'm the only one this way, bless you 💐
Great information, very useful! I've been receiving PIP for ten years or thereabouts and if I'm having an assessment I just stick to the point and don't over complicate with unnecessary details. I don't need to, they HAVE all the evidence of my multiple conditions and medications! I don't HAVE 'good days', I just have slightly more tolerable ones. I've always found it useful to bear in mind to play a straight game with them, don't be tempted to exaggerate and you can expect a fairly (?) straight game in return; they don't need the trouble of being caught in a case of provable deception any more than you do! I always send any correspondence by recorded mail and always keep copies. And for the record I'm fairly convinced that those genuinely trying to 'game the system' are vanishingly few in number, but they can eff off; they know they'll be used by government as examples to justify screwing all the rest of us to save a few bob to fund tax breaks for themselves and their Chums. 🤬 Great video!
Missed your videos my friend had no internet for a few days mate xxx oh had my pip telephone assessment the other day on I recorded my assessment. I'll keep you posted buddy xx
This was useful Thankyou . In my normal everyday life I try to be positive and am grateful for all of my blessings . I’ve found the PIP process to be a useful thorough look at my health and ability, but it feels wrong to me as I have to suspend my non complaining positive outlook until it’s done. It’s exhausting but I feel more grounded afterwards
So helpful. Thankyou very much🙏my problems are with my mental health though and the questions dont account for that so much. But your video still very helpful
Thank you for your advice. I’ve been on pip since it began and was on DLA before that. I have a number of conditions yet was only given an hour to give my information. Most of the time I couldn’t give the full extent of my conditions or aids I use and why as she told me to just answer questions as we didn’t have time. So now I’m dreading finding out how much my pip will be decreased. So I may need to hire you for a reconsideration as I have no one who could be with me during the video to keep my mind on track and with mental health and suspected ADHD I had no chance. It’s actually a symptom of my mental health disorder. So now I’m petrified to get the letter 😔😔
Thank you for your video, I’ve had my claim stopped before, I was lucky that the one thing they didn’t ask was about why I originally claimed, because I could no longer stand at the bus stop for more than 5 minutes and had buses so full 5 buses would go by and not stop and I had to keep going to sit on a damp wall til the next bus was due. At the appeal I mentioned this and I was awarded it again with an increase and back payments. I’m due another assessment now so your video has really helped.
Charlie this is so helpful. Please be aware suggesting using Recorded Delivery is not always guaranteed as it simply goes through the mail system the same as ordinary post .../d
DWP ask for evidence in the letter they ask for prescription slips and GP letters however I advise my clients to just print off their GP record if they have patient access online which will just list all their diagnoses, last week during a review of a claim the assessor stated they had no evidence of some of the condition? despite it being submitted 2yrs prior,also for the first time ever we got asked about driving and pets,i agree dont waffle on however the assessor can sometimes linger on the same question asking it in different ways
Thank you much for the information, I am one of those people who is unable to wear a sock due to my back, my left shoulder. I have been in pain for a long time time now.
Just had my telephone assesment today and it went on for two hours. The lady was plesant she said at the begining that it wwould only take an hour but my paperwork said our and a half. It took two hours and she was intrested in feelings and therapies. I suffer with a degenerative issue in my neck from c3 to c7 and a disk pressing on a nerve as wello as athoritis in the joints of the neck and lower back. All from an accident 2 years ago. I found iit very difficult. But I took your advice and revorded the interview anbd told them that I was with no pushback.
@@PamelaGreen354Hi, hope you are ok? just had a text this past week saying that a decision hasnt been made yet and that they will be in touch within 8 weeks... dont know if thats a good or a bad thing... I had so much more data and felt rushed even though it took two hours...
@@PamelaGreen354 Hi, hope you are ok? just had a text this past week saying that a decision hasnt been made yet and that they will be in touch within 8 weeks... dont know if thats a good or a bad thing... I had so much more data and felt rushed even though it took two hours...
Just had my pip review on phone they where really helpful and I got more points this time they said I am dyslexic so watched your videos took bits in as can't remember it all but it helped thank you
by posting this you are not only helping out genuine people who need it, but you are helping the benefit frauds, well done for even more reasons people hate this country and its people.... because all you are boasting overall, is how to fill out MORE BENEFITS
Read most of the messages, and agree with 99%, all I can say is make sure you record the assessment, then when they refuse make sure you argue your case 😢
I have MS and I done everything you said, I still got 0 for everything! Only reason I ended up getting PIP is my husband done a phone assessment for me after mandatory consideration and basically told them he does everything for me, and a woman from dwp said she understood my condition and awarded me full PIP. In the end it wasn't even a person from PIP who awarded me it, it was actually dwp.
i live in Ireland, when i moved here i stopped my dla claim as i did not relise i could claim. dwp contacted me after 9 yrs to say i was still entitled to my claim. i sent 3 forms back during 5 months as they were not recieved by dwp. in the end dwp allowed my claim to be done by phone, the advisors were so helpful and i got back 9yrs that was owed to me. they did inform me that dla has now stopped and it will be done via pip so i will be re assed for pip in near future.
Very well said Charlie Anderson. I broke my back 4 years ago and in pain 24,7.im take morphine tablets and a few beers every night to get decent sleep.
Long term we all forget what we used to do. When we plan days around doing zero we can feel more accomplished than we are. I’ve managed with no help today. Yea because you laid in bed and did a microwave meal. You really have change mind set.
I have been waiting for eleven months for my Tribunal. I am not looking forward to it although I am not going to take any cr*p from anyone in this meeting. I am going to be teary, but they are going to hear about some of the lies the assessor made about me a few years ago. I was one point off getting the higher mobility component. But because the assessor watered down my claim... I am going to be very vocal about how I was short changed last time. I shall also be teary, but from the frustration l have had bottled up inside me I have requested an advocate
My friend applied for PIP, she has scoliosis of the spine ,and In a lot of pain, she was turned down and was unable to claim, she needs an aid to walk and had numerous hospital visits and also paid private , .
In my PIP assessment I was told I was being awkward because I could or would not answer if I could lift a box, I said what size and weight?. How should that or could that be answered. Great video by the way, very helpful.
Thank you found you today will be going through form this morning then sending it off made many silly mistakes but because of you i can sort this out brilliant
I have to keep listening and listening to your videos Charlie. I've started my pip application process - ie they've emailed me the form. A charity is going to help with filling in the form as I need someone to get me started! Then I'll check what they've written against what you tell us to do. I am going through the process of being assessed for cptsd but I won't have that diagnosis for months so I'm guessing I can't use anything from that?? Thanks again for all you are doing for us when you're dealing with so much yourself ❤❤❤❤
You most certainly CAN use it on the form, you can state that you are currently under assessment for the condition and / or that you are seeking or awaiting diagnosis for it... PIP is NOT about what you have been diagnosed with... It is about what symptoms you have and how they affect your ability to live a normal every-day life. naming a condition only gives them the opportunity to better understand what symptoms you have and what you are going through medically. Good Luck :D
@@Garuthius thank you so much for taking the time to write this. That is encouraging. A friend of mine has been telling me for years to apply for pip but because the application form is geared to mechanical functioning I could never see how it applied to me even though I had to stop a job a loved almost a year ago! I'm slowly getting my head around it all.
I know three people who receive PIP. Not one of them deserve it, one of them even has a blue badge. I think it is THE most abused benefit in the system and the eligibility for it needs massively restricting and I say this as someone with restricted movement, who does use aids for daily life.
My claim took 16 months to get to tribunal stage,only ever had ONE phone call regarding claim just prior to tribunal. Other than that no consultation nor assessment.
I've recently sent off my PIP form. I included a letter from my therapist whom advocates for PIP. Diagnosis letters proving I'm I'll and a brief summary of my medical history and you're telling me that means Jack squat????
The information that you have sent in means nothing to the "Assessor" on the day of the assessment, their job is only to Assess you based on the findings of how you are during the assessment. It is the DWP "Decision Maker" who has to read and take into account for all of your supporting evidence and apply it to the outcome of points they are going to award. (and even still they will try to downplay everything, which is why MOST people who get awarded PIP have had to go through Mandatory Reconsideration, Appeal and Tribunal to get all of the points that they are fully entitled to).... Stick with the process.... You will get there in the end. Good Luck :D
If you arrive at your assessment looking like Steven Hawkins then you’re pretty sure of getting PIP. If you are asked to pick up a pencil from a standing position and you do you won’t. Despite all the evidence to the contrary, evidence from heart surgeons, diabetic nurses and GP’s if they see you walk into the assessment centre, stand, sit, communicate with staff, hear your name called well my friend you’ve lost before you’ve started!
My pip forms always went to tribunal (had assistance from CAB) to prove my epilepsy affects me as my seizures are unpredictable, as the people questioning me were always referring back to me when I’m well but pip is about me being seriously unwell so I always had to refer back to when I have a seizure/s and how they affect my daily living. I hope my next assessment doesn’t go through that again
Just make sure you record it, if it goes to tribunal you will be so glad that you have your own recording (because they WILL lose theirs.) Good Luck :D
My mum has suffered with Polio since around 2 years old. She has no strength in 1 leg/foot and has a drop foot. She was awarded full disability living allowance for life and was assessed many years ago. However in 2015/16 the government changed the process and she had to have an assessment and they reduced her claim to the minimum award. Is a process where we can appeal the decision made in 2015/16 this was before she retired. As she can only walk a few steps and this has not changed throughout her life.
DWP don't check if you're diagnosed with the condition/s you say you have. They send a factual report form to the gp which the secretary fills in. Secretary only answers questions on the form doesn’t volunteer any extra information. I know because my pip was stopped, daily living component, mobility stops in December. They said there was no evidence of Epilepsy. Sure enough no questions about my Epilepsy on that form.
hi just stumbled on your video the people who do the assessments do lie about what you say to them I had one who said I was holding the phone when I was speaking to her and I was not as she was on loudspeaker I was not holding the phone, that's just one of the lies she put on the form, but in end went to tribunal and I got a full rate for both backdated got just over 4k back pay. i will be watching your videos very interesting x
My walk in shower and plastic garden chair are my aids. I cannot get in or out of a bath tub, I got trapped in a bath for 40 mins a couple of years ago. . I never have a good day. As for walking 20 yards, I can't walk 10 yards before agonising pain sets in. I'm waiting for double hip replacement and operation on my lower back. Also been offered knee replacement both knees. I only want pip to help me get to work as I am still in full time employment (support worker). Edit,, Oh and I record every meeting. I don't ask for permission, I just tell them I am recording.
This advice is excellent when your claiming for physical health but what about mental health....any advice for people claiming pip for mental health please
I know so many people on PIP who claim for conditions and as soon as their claim was accepted, they're living the good life and then there are absolutely no sign of their 'condition', it's about how you can act.
So many people?? How many is that exactly that you know claim pip that apparently don’t need it? What kind of signs were they showing before that these people you know don’t show now? Had you considered that all these sick people you know may actually be sick and that they fake being well because it’s easier to keep explaining and repeating to people who don’t understand chronic illness!!
@@Rise-and-Shine333 I know them personally and have done for many years.. that's why I talk fact, otherwise I wouldn't say anything. It's a system up for reform and those who have now, and need the support, absolutely should get more.
My mates wife had cancer, she had chemo and got through it. She then had a heart attack, closely followed by a brain tumour. Her speech is slurred, she’s very immobile and got refused PIP. It seems the only way to get government help in 2024 is to come here from another country……………….
I sent mine registered post on the Friday and they received it Monday morning. The lady I. My post office told me that if not, the forms tend to go missing!
I have been told by my local Post Office AND Royal Mail customer services that as the DWP receive so much mail on a regular basis, they do not even sign for recorded delivery - something I can personally vouch for. The only guaranteed way it seems of getting a signature is by using the Next Day Guaranteed Delivery service but even then it doesn't necessarily mean that the papers have got to the right person, just that an office clerk stationed at the front door has signed for it!
@@mica412 Very true ... BUT they cannot end your claim, someone HAS to sign for it to be delivered, as long as someone signed for it (no matter who it was or whether it got to the right person) they cannot reset or end your claim.
I have trouble at every assessment trying to convince them how bad my M.E is they say well you look well. Last time I lost points on my mental health because they said I wasn’t undergoing any therapy or medication. I did pay for a private full assessment of my M.E from a M.E specialist and did include a short statement from my carer. But I do agree before that I included a lot of irrelevant information that they probably did not even read.
Even though I'm autistic and have osteoarthritis, venous issues, etc, I think I won't score many points. I can prepare basic meals, I can travel on the bus into town, I can get dressed, unaided. I can also use a phone and a computer. The Disability Advisor, at my local job centre, told me that she knows of autistic people, who have got PIP. I don't know how; I can only think that they are severely autistic, What is the point of having an assessment, when I know I'll fail?
I was refused even tho I was in a wheelchair , one of the reasons I was refused was because I picked up me bag from a seating permission, they have never taken my fibro into consideration, they have only ever awarded me for my mental health.
I tried to claim pip but failed miserably. not understanding the questions that they asked me on the form didn't help, That's where i think i failed. Getting the "sorry denied the help letter" did not help either. I have gotton to the point now where i have had to give up work due to my situation on a daily basis. Thanks for the help in this video. It's opened my eyes a little on my mind set.
I feel like I need to mention this. I basically applied on the phone for the pip form. It was bad timing on my part and ending up withdrawing the claim because my mental health team were on vacation it was over a Xmas period. However I got a phone call to book a phone call with an assessor. I said "I haven't sent the form back as it was really bad timing so it wasn't filled out , the reply I got was , direct quote: " don't worry about that they ask the same questions that are on the form anyway " I withdrew my claim because my assistant practitioner told me to apply again get the forms and she will fill them in for me. That's where I am right now waiting for the paperwork. My claim is about mental health which was added not so long ago to the form. I don't know anything about filling the mental health part of the form as the rest is pretty much irrelevant. Does it help my claim if a mental health specialist fills the forms out for me?
People need to remember that the PIP assessment is NOT to see what money the claimant is entitled to but rather for the DWP to see just how little they can get away with paying the claimant😔
Brilliantly said
A mistake I made was based on my character. I was 50 and very ‘proud’. I was trying to tell them how well I’m trying. Also how I use apps, timers, gadgets xx n so on. I hate describing how hopeless and handicapped I am.
Absolutely true!
@@mrlawilliamsukwarmachine4904 This is a quality that is installed in us growing up . Where people get praised for pushing through. Unfortunately, that does more harm than good, not just for pip assessment but your health in general. My chronic condition started when I was 29, I didn't even know there was something wrong untill I was talking to hospital for my asthma when they found this elevate enzyme in my blood. Prior to that I thought maybe I was just run down. But in high enough level the enzyme could cause full renal failure. The biggest mistake I made was a few months later where I had a good few days. I decided I could start back at the gym. As I always went after work daily. A 30 minutes lite. Work out had me floored for that entire week. As the years went on I had to stop working because I had no control over my pain or fatigue my tremors where getting worse. I had no idea of my limits . When I got my pip or dla as it was . I had help filling it in with citizen advice. What they explained you need to answer the questions based on your worse days. You also need to
Them , you cant just tell you have in my cases it was leg and arm tremors . You have to explain that because of these you struggle getting in and out-of the bathroom or getting up as in my case ive had a few falls, so they installed safely rails this goes for every question. Dont feel guilty about needing help. that's what it's their far. I spent most of my life helping others , never being off sick. So i understand the want to be independent . The first thing you need to do is come to terms with your disability accepting this as the new normal. Its very hard when society is taught to look down on anyone on benefits. Like we have some advantages. They dont know what our daily lifes are like. From my experience, my illness stolen all aspect of my life. Stole my career. My soical life. I stopped dating because the idea of being a burden on someone else or holding them back i just couldn't do that to someone else. If i had a choice of undoing it, i would jump at it. So try and fight the urge to say im ok when youre not ..because its ok not to be ok. I wish you all the best .
No mate the money is there if you need it
I hate claiming pip. I so miss not being able to work. I miss so many friends and colleagues. Who wants to be sick? Great post by the way.
My husband tried to claim PIP, he had terminal mouth cancer, they refused him, he died before we could appeal, they messed us about for months. We had to use what little savings we had to pay, council tax, rent and utility bills, so come the funeral there wasnt a penny to pay for it, I can honestly say it was the lowest I had ever been in my life, I just wanted to die, and it was all because we couldn’t get help from anyone.
That is an absolute disgrace how they treated you and your husband.
They need that money to house and clothe the third world illegals that are arriving by the thousands every day .
This is heartbreaking. These people have no conscience and no shame.
Horrible heartless People .
Neither do those that claim @lindacraig7486
So sorry for your loss and what you have been put through 😢
When you actually stop and think how much your illness affects your daily life it can be so demoralising and upsetting, i ended up in tears and barely able to speak because up until then i hadnt even realise hkw much i was struggling every single day.
I couldn't agree with you more. I ended up on depression medication after going through the process.
Only to be told that I didn't meet their requirements, so had to appeal. Affects my husband too.
Me too , I have been in denial about my disability for 20 years, Charlie’s videos made me very angry and very sad but I’m glad I’ve finally admitted how bad I am.
Am just too scared that I don't bother going through their mind games to get pip. i think you are amazing, and the way you explain it is brilliant xx
Be strong, learn from this lady and get what you deserve. ✌️♥️ 🇬🇧
go and do it if you have proof no need to wary when I did it I had a scan to say I had a slipt disk so deep breath go for it
I have requested for the how my disability affects me form waited the full 10 working days and had nothing so gave them another call on the 13th day just to give them chance to come they never turned up so they supposedly sent another lot out and guess what the new 10 days are up today so i guess ill be back on the phone to them again its getting past a joke now. I found out that i have a crumbling disc after having my mri scan results back and i only had one after still having constant pain 10/10 daily even after getting over having a kidney stone for 6 months so even on my pain meds i have been prescribed still in constant pain and struggle with sleep every night. Im 27 and always done heavy lifting roles for work obviously had to leave that working life behind and still currently on the hunt for a new job but finding it extremely difficult for what im looking for. Sorry to everyone who suffers on a daily basis its not nice and or fun in any way and i hope you are ok dont suffer in silence.
Don’t give up girl you’re just as important as anyone else sweetheart 💕
Well what’s up with you then dear? You look fit as a fiddle lol
Oh so true! PIP and DLA are so depressing. I had a good spell when I began to think I no longer qualified but then BANG I had a desperate spell of 7 weeks when I was unable to do anything.
I also got refused so took them to court and won. They were ordered to pay my pip for 3 years.
Good 4 you I’m glad you got a positive result as it’s a really hard 2 go through all that stress 4 nothing so well done sweetie ❤️ xx
Charlie, you have had me in tears. 'on a good day' on a good day, I have looked and re read my forms and think oh that poor person then realise thats me, its all true but because we live daily with our conditions everything becomes the norm. Its only when we have to think of life BEFORE that. oh and the bit about PIP guilting you .
You are absolutely correct. I applied and got PIP with the mobility component by telling them how it affected me. Again you mentioned buttons, this was one of the questions I was aked about and told them I wear T-Shirts because I cannot do buttons. As you said, tell them the truth about it affects your daily routine, not about what you can do, but what you cannot do. Don't be afraid, tell the truth and you will succeed at the first attempt like me.
I never did
Glad you succeeded but telling the truth serms to not guarantee a fair result.
I started crying when you said but then you asked “yea but when was your last good day” 😭
Thank you so much for these videos.
I had an appointment with the CAB woman who advised me to wait to send my forms in so I had been on my medication for another 6 weeks, and now they have sent me an appointment for a phone assessment, which is tomorrow.
I have had awful anxiety for the last two weeks over it and have just found your channel.
You will be great on your telephone appointment tomorrow so don't worry and I hope you get the results you need 😊
Hope it was as okay as could be.
I've been through he'll getting my pip. You are exactly right. This is the best information I've ever seen. Just tell them what's wrong, don't waffle on, that's the best way💯❤
Great video well done. As an advisor myself I have always told my clients to keep a bullet point diary from the day you call for your PIP form until the day you complete it, why? because you will only fill out the form on a good day and you need to recall your bad days. Also, have someone who knows you well when you complete the form and see if they agree with what you think you should be putting another persons perception can be helpful in this.
Hi Charlie, I found your channel thank you so much, I had a traumatic brain injury in Sep 2012, and was claiming via the DLA no issues, then once I was transferred over to PIP, I was fully rejected, approached the Citizens Advice, went to court with PIP, and it went in my favour, and the judge gave me 5 years. Last November but PIP review was in place, went straight to Citizens Advice this time, was rejected, went back to them, submitted again, rejected again (but given medium living allowance no mobility) we (citizens advice and I) appealed again they have until the end of February to come back to me, likelihood is I'll have to go to Court again. I am going to watch all your video's to look for tips to prepare for court. I'm most shocked they haven't given me enough points on mobility, and thats my biggest problem area (not in same position as you I know) but from a different angle. Clair x
It all comes down to if you’re getting an employment support allowance and if you receive severe disability premium or disability premium in your ESA if you don’t receive that they will not accept your PIP.
Also, the CAB, they get 25% for turning claims down and the involvement in that is DOCTORS social services your housing officers they take reports they use neighbours to spy on us and that’s what they do to turn down and claims I’ve had my experience. I have Motoneuron Disease. and I’m still down.
Everybody makes a cut from turning our claims down, especially DOCTORS they are liable for everything they make a report regardless what we fill in the PIP or the ESA assessments. DOCTOR has a great deal involvement in that DOCTOR den any claim because it comes out of the DOCTORS pocket.
In the olden days when you applied for anything you have to write to the government even for prescriptions what the government has done if you disable with conditions they pay the DOCTOR the whole amount the amount to spend on us but DOCTORS fiddle that and put it in their pockets how do I know this? Because I have a family member that works in these departments and therefore that’s how I found out my..
What they do is called NHS fraud.
I hope my information helps you.
Thank you 🙏
I just sent in my review last week, I wish I’d seen your channel before filling the form.
I’m glad I found you Charlie. I’ve been diagnosed with MS over 20 years and going through PIP is an annual grind, as is the PIP assessment for my Autistic son and ADHD son. Phew!🥵
Thanks for your help, I got max ADL and Mobility. Your amazing
Thanks Charlie I can attest that my documentation went missing twice. Then I sent it recorded and it was acknowledged. Funny that!
I always send recorded delivery
I’m so glad I found your channel. I felt quite emotional watching it. I’m going to watch all your videos. Thank you 🥰❤️❤️
You are fantastic person, dear Charlie! Manu thanks for your advise and support!
What a brilliant channel and such an informative video. I’m 20 weeks into waiting for my 3rd review. I was down scored on first 2 and didn’t get what I was due. On both I was told I couldn’t record the assessment. Now I know this time I can, so thank you.
While I respect (as much I am able to process) you are helping people that honestly really need this PIP and basically want to "scroungers" to do one fair enough. However like many I feel very much in 2 minds (speaking as someone who is Niro divergent and still waiting to see what is actually going on in my head) as to if I should put mla claim in. Both the job centre and citizens advice believe I should. But hearing some of what you say makes me feel like I don't qualify.
I always read the things in the media about being entitled to PIP with certain conditions and think that's BS because you can have every condition on the list and the assassin will fail you on your claim. I use the maps app on my phone if I go somewhere new that's local and will use it for about the first 20 times I go there. In some cases I use it more as I forget the directions and make wrong turns. I get out of breath just going to the bin to put a bag of rubbish in it. I use a mobility scooter whenever I go out.
I always send DWP forms by recorded signed for delivery so they cannot say they haven't received it, I put the form in the DWP envelope then in another envelope with the Address that was on the DWP envelope. If they ever said they haven't received it then I will send them a copy of the signature of the person who signed for it, the DWP use a mail opening unit, I think it's part of the royal mail but I can't be sure.
what is the point doing the form, doing the points, the non medical assessor will white wash over it, case manager will make the decision based on the one sided report, THEY ARE PAID TO FAIL YOU
So well said and true. I just don't think I can go through it again. I would rather starve😢
Former PIP assessor here. Good info in this film. Just want to add extra reassurance that assessors are trained to work in your favour. The DWP actually fines the PIP company £16000 if we underscore you. And tgats for one claim. There's no monetary award for rejecting claims. However, we can usually figure out when claimants are over reporting (exaggerating). Advice: Send evidence to support what you're reporting. You cannot tell us you're in excruciating pain every day, when you're only taking over the counter paracetamol with no specialist input etc. Also, contrary to popular belief, most claims are successful.
I underscored someone once and I had to explain myself in a horrible interview with 2 managers present. It was awful.
Rat
@@keith890 why do you say that? Are you blaming me for your unsuccessful pip claim. Hope not.
They said it because you consent against the people and work for the masons controlling said perosn. Wef 2030 agreements as points.@@deedeemegadoodoo2864
Really? One came to our house. He wasn't British. Could hardly understand his very thick accent and he had trouble understanding us. He never looked up from his laptop the whole time. Asked my husband to walk across the room and left. My husband was already on the lower rate. He has had a stroke. Has serious heart failure, diabetes and thyroid problems. This foreigner gave him not a single point! Of course, I'm not someone to mess with and wrote a letter that was less than pleasant, insisting they reconsider their decision. In short, I went absolutely crazy. Three weeks later, we got the middle rate. Don't let them mess you about and don't be afraid to show your massive displeasure.
@@Nellb-u2w if this happens again, you can terminate the assessment. It doesn't affect your benefit as its backdated to when you applied. Although will take a little longer to process.
Pip refused me , I was advised to get the report Capita sent in
Well I was so glad I was accompanied on the assessment
Because Capita seems to have made things up and changed what was said at the assessment
And they do this for practically every assessment they perform... they are given bonus' based on how many applicants are turned down... so yes... they are financially motivated to downplay everything that you tell them... That is just the way it is and we have to accept it and follow the process to ensure we get the points that we deserve to be awarded. Keep going, You will get there in the end.
Good Luck
@@Garuthius Thankyou😉
Record them and let them know your recording, and never tick the top box that’s zero points 😊
@imbonkers3629 Unless the top box is the truth, of course. This isn't about maximising a claim, This is about being correctly awarded points for the given activities... If you have put a lot of thought into it and decide that the top box is the truth, then that is what you should tick.
@@GaruthiusWhy would you be claiming then, plus illnesses are fluid the top box should never be ticked if you think you have a legitimate claim there would be no point applying, your advice is silly.
When I had my assessment over the phone I was lucky that my assessor was a paramedic (I got a copy of the report and they had disclosed their main job role ) they said that it’s highly likely my conditions will change , which is true . So I’ve been given an ongoing award. I worry greatly what will happen with pip
Failed twice in claiming PIP - got nothing.
Third time I sat and thought about what was actually needed, submitted a more concise application, less evidence and got ER in everything.
Have just helped a friend through his assessment, he was starting to waffle in the phone interview so I squeezed his hand - he was almost embarrassed to admit how affected he is..
Hi how can you help me please I have had the worst time lately buts it's so personal x
Or do you have a email address plllllllz x
Thanks Charlie for your knowledge and wisdom I suffer mental health condition depression and anxiety disorders and many health condition s aswel thanks for your knowledge and wisdom😊
You are so right Charlie, our good days are good days compared to our normal awful days.
I've wok many mandatory reckons and two tribunals, one judge even apologised for me being there are it was a "joke that pip had made me go this far".
I never trust pip I ALWAYS send their letters recorded and I also record any interviews. It's a faff getting the paperwork done to allow recording but we'll worth it.
As often I have had the reply to an interview and wandered what interview they were talking about...
The only reason I got high mobility is because I got a letter from my doctor stating that I cannot travel anywhere unaided (which is true). Got the full 12 points. So don’t completely eliminate the thought of asking your doctor in certain situations. 🙏🏼💖
Really helpful video, I did not realise that you have to compare to how it would be done if healthy and it is astonishing how your mind accommodates changes and you forget what you did when healthy. Incredibly thought provoking. Much appreciated- thank you.
I sent my pip form back in the brown envelope but done recorded delivery cost me nearly £5 but worth it as in a few days had an email from them saying they had received it. Thanks for making this video was so informative and had me crying in some parts as I thought yes that's how I feel most days. I suffer from rheumatoid arthritis and when you said about when was your last good day I had to think when mine was, and that made me sad
very good advice there i had review papers for pip 2023 february i got face to face as i requested it on 8th march reason i said no to telephone is that on phone i wont get anxiety and social withdrawal issues as im at home in safe place i want them to see me at my worst and since i last went to face to face in 2019 it can now all legally be recorded my conditions are aspergers syndrome severe epilepsy severe depression and severe personality disorder i have always had to take to tribunal and always won good advice on there by the way
A very good friend of mine struggled through the pip process, she got there in the end and the best bit of advice she gave me was fill out the form based your answers on your worse day ever. It worked eventually and they back dated from when I first claimed. I was assessed at home 1st time, she did not ask me about cooking at all but she marked me down saying I was able to cook, she asked me nothing about walking outside of the house, indoors I furniture surf, out side I use walking sticks, she said I could walk 50 metres easily, I went from zero scores on several occasions to passing with 'Flying colours ' when I went to tribunal. 2 days before it went to tribunal I was suddenly awarded higher rate in both sections. I had nothing to loose, I was stronger willed then than I am now, but I would not wish this process on my worst enemy. Thankyou for doing what you do. Your are their guardian Angel. Bless you x🎉😊
I just had my award letter in it she stated I drive therefore I have strong legs and a good grip so I can walk further than I stated . I have COPD and osteoarthritis in my spine. These conditions affect my walking not my apparent strong legs.she also commented that I don’t see specialists for my conditions. I am now filling in the paperwork for Mandatory Reconcideration
Based upon that what is their reasoning behind the Motability scheme!!
I was also told that because I could drive my car I wasn't entitled to the mobility part. I was so harrowed by the whole experience I didn't try again
Hi i have the same OA in spine and hands, knees, left elbow, i got the same write up because i drive a manuel car (even though i hardly drive now because it hurts is that much)
I also have limited grip on my left hand so i struggle with the gears - i put all this on and i even put a added info form in with extra hospital letters and it made no difference so my award stayed the same standard and low mobility.
I also have small airways disease and restrictive lung capacity in me right lung - so i get out of breath very quickly.
I got grilled on my assessment about walking to my gate and shopping in the supermarket - how long does it take me 🙈🤷🏻♀
I hate doing the forms and renewals 💜
Mine was exactly the same. You can drive an unmodified car so you can use all your limbs and are mentally sound (words to that effect).
Car reason is uses a lot.make it clear how often you drive and have to pull up and I'm always with someone and only use it for doctors and local familiar places if my husband can't take me and that's rare
Well said as always Charlie & thank you for your PIP support information , your a legend .
2:54 so I personally see 5, two hand rails so 1&2, the seat 3, the wetroom itself 4 and maybe the mat been the 5th but that ones iffy I couldn’t really see anything else that sticks out.
I told my mum the same thing about the statement from a family member and she said it must be in there for a reason I reminded her that these people don’t actually care you may as well not be talking to a person for all it counts.
i just found your channel and have to say i am so glad i did as some one who suffers from severe chronic pain and other problems have done for years and gotten worse over time its good to see you explain it all for me and so many others i fought so long to get pip didn't help that the dr said it was all in my head the pain i was going through now they cant do anything for me but give me pain meds which doesn't help much but its good to see how to do the forms they send you and other stuff so thank you so much for doing this and i subbed too
I needed this. I’m so stressed as my renewal is arriving any day now and it breaks me every time. I actually cried watching this as you hit soo many nails on the head. Thank you so so much! Subscribed xxxx
This is absolutely great advice you have helped me so much I sent my form recorded delivery a few days later I had a text msg from them telling me they received my form, that was about 3 weeks ago, so now I am just waiting with anticipation, however after listening to your advice and going over it several times, then writing down on separate paper so I could correct anything finally wrote down what I am confident is right my form is absolutely covered except for the bit about reading and writing as I can do that, sorry this is so long but I am very confident for the outcome even if I have an accessment I have asked for a phone call accessment, but I will let you know what happens, thank you so so much for your help xx
YES I'M SHOUTING THIS, I DON'T KNOW IS AN ACCEPTABLE ANSWER. One lawyer asked me how often I went to the housing office in a yearl, I said as and when I need to, "yes but how often is that"? 9 effing times, by the end I was hysterical. I survived horrific child abuse and neglect I thought the only person who could make me suicidal was dead and buried, I was wrong. His final stab was "if it takes you so long to get anywhere why do you bother"? It took me a little over 3 years to get strong enough emotionally to leave the house.
Great advice. Thank you for the hard work that you put into the videos.❤
I now finnish each form with my conditions have no cure atm and will not spontaneously depart, these are lifelong chronic conditions. Stay strong.❤
Great video well explained, wish I’d have came across this earlier, my sister suffers from extreme anxiety and depression, and arthritis,applied for PIP, she broke down on the telephone consultation I stepped in to help her, five months later still nothing, we called and was told decision was sent out two days after the phone consultation, it was re sent, outcome 0 points on everything she was so upset couldn’t bring herself to appeal.
I was refused PIP with 0 points despite having to work from home because I can’t work in an office due to Autism & ADHD and I don’t speak to anyone other than my adult son at home. I only wash once a week and change my clothes at the same time, and am struggling with debt due to no support. I don’t eat regular meals daily and don’t have hobbies or socialise. The assessor said I didn’t sound anxious on the phone, but due to my ASD I struggle with delayed processing. After the assessment I was a mess :( The assessor said afterwards I can’t be that bad as my ADHD medication was reduced, even though I was going through titration and the dose isn’t reflective of how bad your condition is. The decision maker said that my medical records didn’t reflect my struggles, even though I explained that I didn’t go to my GP because I found it too stressful. A massive depressing waste of time :(
😮, you virtually described me! I only speak to my adult son at home and I only got the autism diagnosis a month ago but ADHD for past 12 yrs. I'm seeing my psychiatrist Monday but have been struggling even more lately. Your comment made such a difference to me and I truly want to thank you ( through tears 🥲,) even though I'm in Australia, I don't feel like I'm the only one this way, bless you 💐
@@Susan.Burns63 I'm really sorry to hear that, but I'm grateful I'm not the only one too. Sending a hug 🤗
Great information, very useful! I've been receiving PIP for ten years or thereabouts and if I'm having an assessment I just stick to the point and don't over complicate with unnecessary details. I don't need to, they HAVE all the evidence of my multiple conditions and medications! I don't HAVE 'good days', I just have slightly more tolerable ones. I've always found it useful to bear in mind to play a straight game with them, don't be tempted to exaggerate and you can expect a fairly (?) straight game in return; they don't need the trouble of being caught in a case of provable deception any more than you do! I always send any correspondence by recorded mail and always keep copies.
And for the record I'm fairly convinced that those genuinely trying to 'game the system' are vanishingly few in number, but they can eff off; they know they'll be used by government as examples to justify screwing all the rest of us to save a few bob to fund tax breaks for themselves and their Chums. 🤬
Great video!
Missed your videos my friend had no internet for a few days mate xxx oh had my pip telephone assessment the other day on I recorded my assessment. I'll keep you posted buddy xx
If you are in pain 24/7 answer to distance you can walk is zero, you are in pain before you start walking.
Thank you for more amazing content and great advice, it’s been a god send Charlie . Hope your well and settling in to your new abode ❤️
Thank you so much for the info. I think like most CP people, we play it down.
This was useful Thankyou . In my normal everyday life I try to be positive and am grateful for all of my blessings . I’ve found the PIP process to be a useful thorough look at my health and ability, but it feels wrong to me as I have to suspend my non complaining positive outlook until it’s done. It’s exhausting but I feel more grounded afterwards
So helpful. Thankyou very much🙏my problems are with my mental health though and the questions dont account for that so much. But your video still very helpful
Thank you for your advice. I’ve been on pip since it began and was on DLA before that. I have a number of conditions yet was only given an hour to give my information. Most of the time I couldn’t give the full extent of my conditions or aids I use and why as she told me to just answer questions as we didn’t have time. So now I’m dreading finding out how much my pip will be decreased. So I may need to hire you for a reconsideration as I have no one who could be with me during the video to keep my mind on track and with mental health and suspected ADHD I had no chance. It’s actually a symptom of my mental health disorder. So now I’m petrified to get the letter 😔😔
Thank you for your video, I’ve had my claim stopped before, I was lucky that the one thing they didn’t ask was about why I originally claimed, because I could no longer stand at the bus stop for more than 5 minutes and had buses so full 5 buses would go by and not stop and I had to keep going to sit on a damp wall til the next bus was due. At the appeal I mentioned this and I was awarded it again with an increase and back payments. I’m due another assessment now so your video has really helped.
Charlie this is so helpful. Please be aware suggesting using Recorded Delivery is not always guaranteed as it simply goes through the mail system the same as ordinary post .../d
Your 100% they have lied so many times on my assessments . Wish I new I could record it do now thank you ♥️
DWP ask for evidence in the letter they ask for prescription slips and GP letters however I advise my clients to just print off their GP record if they have patient access online which will just list all their diagnoses, last week during a review of a claim the assessor stated they had no evidence of some of the condition? despite it being submitted 2yrs prior,also for the first time ever we got asked about driving and pets,i agree dont waffle on however the assessor can sometimes linger on the same question asking it in different ways
Thank you much for the information, I am one of those people who is unable to wear a sock due to my back, my left shoulder. I have been in pain for a long time time now.
Just had my telephone assesment today and it went on for two hours. The lady was plesant she said at the begining that it wwould only take an hour but my paperwork said our and a half. It took two hours and she was intrested in feelings and therapies. I suffer with a degenerative issue in my neck from c3 to c7 and a disk pressing on a nerve as wello as athoritis in the joints of the neck and lower back. All from an accident 2 years ago. I found iit very difficult. But I took your advice and revorded the interview anbd told them that I was with no pushback.
May I ask , was a decision made or are you waiting.
@@PamelaGreen354Hi, hope you are ok? just had a text this past week saying that a decision hasnt been made yet and that they will be in touch within 8 weeks... dont know if thats a good or a bad thing... I had so much more data and felt rushed even though it took two hours...
@@PamelaGreen354 Hi, hope you are ok? just had a text this past week saying that a decision hasnt been made yet and that they will be in touch within 8 weeks... dont know if thats a good or a bad thing... I had so much more data and felt rushed even though it took two hours...
Just had my pip review on phone they where really helpful and I got more points this time they said I am dyslexic so watched your videos took bits in as can't remember it all but it helped thank you
by posting this you are not only helping out genuine people who need it, but you are helping the benefit frauds, well done for even more reasons people hate this country and its people.... because all you are boasting overall, is how to fill out MORE BENEFITS
Give ya head a wobble.
Read most of the messages, and agree with 99%, all I can say is make sure you record the assessment, then when they refuse make sure you argue your case 😢
The old days of DLA was far less hassle than this PIP sh**e. But it's a hassle for a reason.
Cheers for this, my assessment on Friday so feeling a bit confident after seeing this
I have MS and I done everything you said, I still got 0 for everything! Only reason I ended up getting PIP is my husband done a phone assessment for me after mandatory consideration and basically told them he does everything for me, and a woman from dwp said she understood my condition and awarded me full PIP. In the end it wasn't even a person from PIP who awarded me it, it was actually dwp.
It's always DWP who award PIP in England and Wales.
So basicaly your husband lied
i live in Ireland, when i moved here i stopped my dla claim as i did not relise i could claim.
dwp contacted me after 9 yrs to say i was still entitled to my claim.
i sent 3 forms back during 5 months as they were not recieved by dwp.
in the end dwp allowed my claim to be done by phone, the advisors were so helpful and i got back 9yrs that was owed to me.
they did inform me that dla has now stopped and it will be done via pip so i will be re assed for pip in near future.
Very well said Charlie Anderson. I broke my back 4 years ago and in pain 24,7.im take morphine tablets and a few beers every night to get decent sleep.
Long term we all forget what we used to do. When we plan days around doing zero we can feel more accomplished than we are. I’ve managed with no help today. Yea because you laid in bed and did a microwave meal. You really have change mind set.
I have been waiting for eleven months for my Tribunal.
I am not looking forward to it although I am not going to take any cr*p from anyone in this meeting.
I am going to be teary, but they are going to hear about some of the lies the assessor made about me a few years ago.
I was one point off getting the higher mobility component.
But because the assessor watered down my claim...
I am going to be very vocal about how I was short changed last time. I shall also be teary, but from the frustration l have had bottled up inside me
I have requested an advocate
Many people have been waiting nearly 2 years for a tribunal and for reviews over 1 year
@@deano_bites bleedinell I hope I am not going to have wait that long🙏
@@deano_bites - I sent my review papers back in March 2023 and it has only now just been assigned to an assessor.
@@mica412I sent mine a just after Christmas not herd anything back yet
People suffer with illnesses and depression and they make people more nervous
My friend applied for PIP, she has scoliosis of the spine ,and In a lot of pain, she was turned down and was unable to claim, she needs an aid to walk and had numerous hospital visits and also paid private , .
In my PIP assessment I was told I was being awkward because I could or would not answer if I could lift a box, I said what size and weight?. How should that or could that be answered.
Great video by the way, very helpful.
Thank you found you today will be going through form this morning then sending it off made many silly mistakes but because of you i can sort this out brilliant
I have to keep listening and listening to your videos Charlie. I've started my pip application process - ie they've emailed me the form. A charity is going to help with filling in the form as I need someone to get me started! Then I'll check what they've written against what you tell us to do.
I am going through the process of being assessed for cptsd but I won't have that diagnosis for months so I'm guessing I can't use anything from that??
Thanks again for all you are doing for us when you're dealing with so much yourself ❤❤❤❤
You most certainly CAN use it on the form, you can state that you are currently under assessment for the condition and / or that you are seeking or awaiting diagnosis for it... PIP is NOT about what you have been diagnosed with... It is about what symptoms you have and how they affect your ability to live a normal every-day life. naming a condition only gives them the opportunity to better understand what symptoms you have and what you are going through medically.
Good Luck :D
@@Garuthius thank you so much for taking the time to write this. That is encouraging. A friend of mine has been telling me for years to apply for pip but because the application form is geared to mechanical functioning I could never see how it applied to me even though I had to stop a job a loved almost a year ago! I'm slowly getting my head around it all.
@claremaslin6481 Yes, it is a long and frustrating process but ultimately worth it in the end... Good luck 👍
@@Garuthius thank you 😊
I know three people who receive PIP. Not one of them deserve it, one of them even has a blue badge. I think it is THE most abused benefit in the system and the eligibility for it needs massively restricting and I say this as someone with restricted movement, who does use aids for daily life.
My claim took 16 months to get to tribunal stage,only ever had ONE phone call regarding claim just prior to tribunal.
Other than that no consultation nor assessment.
I've recently sent off my PIP form. I included a letter from my therapist whom advocates for PIP. Diagnosis letters proving I'm I'll and a brief summary of my medical history and you're telling me that means Jack squat????
@@deano_bites then why the fuck are they asking for it if means nothing. I'm so sick and tired of this governments bullshit!!!
@@deano_bites I'm a woman so please stop calling me 'mate'.
At one assessment the assessor openly admitted that she did not have the time to look through letters I had sent from my consultants.
The information that you have sent in means nothing to the "Assessor" on the day of the assessment, their job is only to Assess you based on the findings of how you are during the assessment. It is the DWP "Decision Maker" who has to read and take into account for all of your supporting evidence and apply it to the outcome of points they are going to award. (and even still they will try to downplay everything, which is why MOST people who get awarded PIP have had to go through Mandatory Reconsideration, Appeal and Tribunal to get all of the points that they are fully entitled to).... Stick with the process.... You will get there in the end.
Good Luck :D
i think you are brilliant and tells it how it is, well done
If you arrive at your assessment looking like Steven Hawkins then you’re pretty sure of getting PIP. If you are asked to pick up a pencil from a standing position and you do you won’t. Despite all the evidence to the contrary, evidence from heart surgeons, diabetic nurses and GP’s if they see you walk into the assessment centre, stand, sit, communicate with staff, hear your name called well my friend you’ve lost before you’ve started!
My pip forms always went to tribunal (had assistance from CAB) to prove my epilepsy affects me as my seizures are unpredictable, as the people questioning me were always referring back to me when I’m well but pip is about me being seriously unwell so I always had to refer back to when I have a seizure/s and how they affect my daily living.
I hope my next assessment doesn’t go through that again
I have re-assessment tomorrow and have been told that there will be a lead technician listening on the phone call as well.
Just make sure you record it, if it goes to tribunal you will be so glad that you have your own recording (because they WILL lose theirs.)
Good Luck :D
I honestly can't cope with the system and the process and am slipping into pointlessness. There is so little hope for me .
My mum has suffered with Polio since around 2 years old.
She has no strength in 1 leg/foot and has a drop foot.
She was awarded full disability living allowance for life and was assessed many years ago. However in 2015/16 the government changed the process and she had to have an assessment and they reduced her claim to the minimum award.
Is a process where we can appeal the decision made in 2015/16 this was before she retired. As she can only walk a few steps and this has not changed throughout her life.
DWP don't check if you're diagnosed with the condition/s you say you have. They send a factual report form to the gp which the secretary fills in. Secretary only answers questions on the form doesn’t volunteer any extra information. I know because my pip was stopped, daily living component, mobility stops in December. They said there was no evidence of Epilepsy. Sure enough no questions about my Epilepsy on that form.
hi just stumbled on your video the people who do the assessments do lie about what you say to them I had one who said I was holding the phone when I was speaking to her and I was not as she was on loudspeaker I was not holding the phone, that's just one of the lies she put on the form, but in end went to tribunal and I got a full rate for both backdated got just over 4k back pay. i will be watching your videos very interesting x
My condition has got worse, but I'm scared to ring and tell them because when I did it b4, my pip was taken away from me
I think it was one of the hardest things I've ever done Trevor
I agree about Recorded Delivery. DWP completely ignored a succession of six or seven letters, even though the last couple were sent this way.
My walk in shower and plastic garden chair are my aids.
I cannot get in or out of a bath tub, I got trapped in a bath for 40 mins a couple of years ago. . I never have a good day. As for walking 20 yards, I can't walk 10 yards before agonising pain sets in.
I'm waiting for double hip replacement and operation on my lower back. Also been offered knee replacement both knees. I only want pip to help me get to work as I am still in full time employment (support worker).
Edit,, Oh and I record every meeting. I don't ask for permission, I just tell them I am recording.
This advice is excellent when your claiming for physical health but what about mental health....any advice for people claiming pip for mental health please
What a brilliant video at last its all clear to me.
When I had to do DLA/PiP forms I was advised to use your worst day for the assessment. Dont play martyr and claim for the worst!
I know so many people on PIP who claim for conditions and as soon as their claim was accepted, they're living the good life and then there are absolutely no sign of their 'condition', it's about how you can act.
So many people?? How many is that exactly that you know claim pip that apparently don’t need it? What kind of signs were they showing before that these people you know don’t show now?
Had you considered that all these sick people you know may actually be sick and that they fake being well because it’s easier to keep explaining and repeating to people who don’t understand chronic illness!!
@@Rise-and-Shine333 I know them personally and have done for many years.. that's why I talk fact, otherwise I wouldn't say anything. It's a system up for reform and those who have now, and need the support, absolutely should get more.
My mates wife had cancer, she had chemo and got through it. She then had a heart attack, closely followed by a brain tumour. Her speech is slurred, she’s very immobile and got refused PIP. It seems the only way to get government help in 2024 is to come here from another country……………….
1) dont expect the government to give a damn.
I sent mine registered post on the Friday and they received it Monday morning. The lady I. My post office told me that if not, the forms tend to go missing!
I have been told by my local Post Office AND Royal Mail customer services that as the DWP receive so much mail on a regular basis, they do not even sign for recorded delivery - something I can personally vouch for. The only guaranteed way it seems of getting a signature is by using the Next Day Guaranteed Delivery service but even then it doesn't necessarily mean that the papers have got to the right person, just that an office clerk stationed at the front door has signed for it!
@@mica412 Very true ... BUT they cannot end your claim, someone HAS to sign for it to be delivered, as long as someone signed for it (no matter who it was or whether it got to the right person) they cannot reset or end your claim.
@@Garuthius - True!
I have trouble at every assessment trying to convince them how bad my M.E is they say well you look well. Last time I lost points on my mental health because they said I wasn’t undergoing any therapy or medication. I did pay for a private full assessment of my M.E from a M.E specialist and did include a short statement from my carer. But I do agree before that I included a lot of irrelevant information that they probably did not even read.
Even though I'm autistic and have osteoarthritis, venous issues, etc, I think I won't score many points. I can prepare basic meals, I can travel on the bus into town, I can get dressed, unaided. I can also use a phone and a computer.
The Disability Advisor, at my local job centre, told me that she knows of autistic people, who have got PIP. I don't know how; I can only think that they are severely autistic,
What is the point of having an assessment, when I know I'll fail?
Thank you Charlie.
I was refused even tho I was in a wheelchair , one of the reasons I was refused was because I picked up me bag from a seating permission, they have never taken my fibro into consideration, they have only ever awarded me for my mental health.
I tried to claim pip but failed miserably. not understanding the questions that they asked me on the form didn't help, That's where i think i failed. Getting the "sorry denied the help letter" did not help either. I have gotton to the point now where i have had to give up work due to my situation on a daily basis. Thanks for the help in this video. It's opened my eyes a little on my mind set.
I feel like I need to mention this. I basically applied on the phone for the pip form. It was bad timing on my part and ending up withdrawing the claim because my mental health team were on vacation it was over a Xmas period. However I got a phone call to book a phone call with an assessor. I said "I haven't sent the form back as it was really bad timing so it wasn't filled out , the reply I got was , direct quote: " don't worry about that they ask the same questions that are on the form anyway " I withdrew my claim because my assistant practitioner told me to apply again get the forms and she will fill them in for me. That's where I am right now waiting for the paperwork. My claim is about mental health which was added not so long ago to the form. I don't know anything about filling the mental health part of the form as the rest is pretty much irrelevant. Does it help my claim if a mental health specialist fills the forms out for me?