Eagle Syndrome Surgery Changed My Life!
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- čas přidán 13. 02. 2023
- OHNI Case Files, Season 4, Episode 4 - Kevin
Learn more about Eagle's Syndrome at: eaglesyndrome.com/
Kevin, an information security consultant by day, and a racing enthusiast by night suffers from Eagle's Syndrome. Kevin has experienced terrible neurological symptoms and seeks a way to feel whole again. Having gone to Dr. Osborne to remove the styloid process on one side, he returns to have surgery on the other side.
About Dr. Ryan Osborne: (Instagram @drryanosborne)
Ryan F. Osborne, MD FACS, is the Director of Head and Neck Surgery at the Osborne Head and Neck Institute (OHNI) and is an internationally-renowned expert in head and neck oncology. Dr. Osborne has developed a special interest in the treatment of parotid gland tumors and focuses on the use of minimally-invasive techniques in the care of patients needing parotid surgery. He has innovated many groundbreaking surgical procedures, including a treatment for accessory parotid gland tumors, which requires no skin incisions and leaves no facial scars.
Dr. Osborne completed a fellowship in advanced head and neck oncology under the mentorship of world-renowned expert, Thomas Calcaterra, MD, at UCLA Medical Center. After completing his fellowship, Dr. Osborne, became an Assistant Professor of Head and Neck Surgery at UCLA, and was awarded the Clinical Instructor of the Year Award for outstanding training of surgical residents. While at UCLA, Dr. Osborne collaborated with Dr. Calcaterra to provide their patients with unsurpassed surgical care.
In 2003, Dr. Osborne left UCLA to become the founding Director of the Head and Neck Cancer Center at Cedars-Sinai Medical Center. In 2007, he resigned the position, dedicating all of his time to advancing the mission of OHNI and the Osborne Head and Neck Foundation, where he serves as President. The overall mission of the Osborne Head and Neck Foundation and OHNI is to create of a center of excellence where patients' comprehensive needs can be delivered; to collaborate with respected surgeons to advance surgical techniques offered to patients in the United States; and to pursue unrestricted clinical and biomedical research projects to advance the diagnosis and surgical management of patients. Dr. Osborne has traveled throughout the United States, Asia, and Europe to observe and exchange ideas with other surgeons who have similar goals.
Dr. Osborne is a board-certified diplomat of the American Academy of Otolaryngology- Head and Neck Surgery, a Fellow of the American College of Surgeons, a member of the Society of University Otolaryngologists/Head and Neck Surgeons, and a member of the Triological Society.
To schedule an appointment with Dr. Ryan Osborne:
ohni.org
Shot on @canonusa @BlackmagicDesignOfficial @ImagingbySony @DJI - Krátké a kreslené filmy
You have been given such a gift. God is using you. God bless you.
My sincere thanks to Dr. Osborne and his dedicated team for the incredible service they have provided to so many desperate patients! I can't begin to tell you how much I appreciate the heart-warming attitudes of these wonderful medical professionals. Thank you all for taking the time to create and post these videos. God bless!
Here's a list of my ongoing symptoms through all of this that were under/misdiagnosed, brushed off, etc. in the event it can help someone along with what was resolved by these surgeries. Many of these would get worse - MUCH worse - when my atlas vertebrae misaligned. Some symptoms increase when my illium(s), sacrum, or tailbone misalign. It's important to note that I also have cervical instability (CCI and AAI). Oh, and I have a tethered spinal cord which is likely the root of all of this...
1) Terrible brain fog and executive dysfunction, just a step or so above being bedridden (~75% RESOLVED)
2) Sensation of "feeling" my brain, like it was lit up and glowing (100% RESOLVED)
3) Disassociation, like I was floating above my body and watching a movie of myself (100% RESOLVED)
4) Feeling of impending doom (~90% RESOLVED)
5) Dysautonomia, stuck in fight or flight mode constantly and unable to handle *any* amount of stress, physical, emotional, or chemical...including ketosis (with the ketogenic diet), alcohol (even just a sip) and caffeine (even decaf coffee and tea) (~75% RESOLVED)
6) Limbic system dysfunction, especially personality changes (~50% RESOLVED)
7) Major head/intracranial pressure, like my eyes were going to pop out or my head was going to explode (100% RESOLVED)
8) Loss of the natural shape of my mouth and smile (100% RESOLVED)
9) Heart palpitations, especially when lying on my left side but also when upright (100% RESOLVED)
10) Random blood pressure spikes (100% RESOLVED)
11) Loss of voice, I was hoarse and struggled to get my words out when speaking and singing (100% RESOLVED)
12) Visual disturbances and eye tracking challenges (~75% RESOLVED)
13) Strange piercing headaches that would go away as fast as they came on (100% RESOLVED)
14) Trouble swallowing and harsh popping during most swallows (100% RESOLVED)
15) Super stiff neck when turning side to side or looking up and down (~50% RESOLVED)
16) Hypersensitivity to light and sound (~75% RESOLVED)
17) Ear fullness (100% RESOLVED)
18) Multiple ear infections (same side) and a ruptured eardrum (ouch!) (100% RESOLVED)
19) General feeling of unease / dizziness / occasional vertigo (100% RESOLVED)
20) Gastrointestinal "challenges" (~50% RESOLVED)
21) Tinnitus (UNRESOLVED)
22) TMJ disorder, constant clenching/grinding (~25% RESOLVED)
23) My tongue felt too big for my mouth (100% RESOLVED)
24) Terrible nightmares (100% RESOLVED)
25) Acid reflux/GERD (~75% RESOLVED)
26) Cervical dystonia, especially when my atlas was misaligned (~75% RESOLVED)
27) Found myself constantly flexing my ab muscles (100% RESOLVED)
28) Heat and humidity intolerance (~75% RESOLVED)
29) Sleep apnea symptoms (constantly snorting myself awake when sleeping on my back due to my jaw falling backwards and closing off my airway) (UNRESOLVED)
30) Terrible dystonic storms as shown in this video (~90% RESOLVED, I had one more after my second surgery and none since...it seems to be related to both Eagle Syndrome and instability)
...possibly others that I don't currently recall but will add to this list as I think of them.
So:
50% of my symptoms *completely* resolved
6.7% of my symptoms improved by ~90%
23.3% of my symptoms improved by ~75%
10% of my symptoms improved by ~50%
3.3% of my symptoms improved by ~25%
6.7% fully unresolved
The styloidectomies didn't magically fix all the above symptoms for me but, from what I've gathered, they're not supposed to. My instability increased after these surgeries but I'm getting it back under control. The 25/50/75/90% resolved AND the unresolved sleep apnea symptoms above have improved via a combination of continued prolotherapy injections, a properly-fitted mouth appliance, physical therapy and many other things I do for self-care. I've had tinnitus since I was a kid and still have it as bad as ever. I suspect it may never go away but, frankly, it's one of the least of my worries.
One BIG thing that's more of a side-effect than a symptom, yet perhaps worst of all, is tarnished relationships with those around me. It seems that so many people...family, friends, and (especially) doctors, are quick to judge...thinking that you're crazy yet they haven't a clue about how it goes and the absolutely terrible things we experience. 🤷
Also, I have found that there is a broad spectrum of symptoms with Eagle Syndrome and associated neck issues especially as it relates to instability. Many of these are often confused with conditions such as MS, chronic fatigue syndrome, Meniere's, Lyme disease, dementia, Parkinson's, general anxiety disorder and so on. Everyone seems to experience it all a bit differently. It pays to have doctors who are actually caught up on their reading and can truly help with these things rather than blow you off or make you think it's your fault. Keep digging for answers!
If you're currently suffering from Eagle Syndrome and related neck issues, I truly hope you can find some relief. 🙏🤞💪
I went to a specialist for my teeth grinding and she found I had Eagles Syndrome.
I am being referred to an ENT. I have been suffering for years and have been brushed off by so many doctors. Reading this list I have checked off so many things, along with the dystonia. It is terrifying to lose complete control of your body, and have no one be able to tell you why. I am happy I found this video. Thank you!!
@@tanyalucas772 I'm so glad you're getting to the bottom of things! Isn't it frustrating being brushed off by doctors!? I'm so happy that you found the video and are on the path to healing. Best of luck! 🤞🙏💪
@@tanyalucas772se va a operar ?
@@KevinBeaveri think i have this am i 18 years old 😢, i feel a bone stuck in my throat left side, am i actually living in Mexico Tijuana City, no doctors here who treat this disease 😔
So sorry to hear! Can you come to the States for help?
First I have ever heard of this. How something so small can cause such horrible problems. Y’all are amazing, with God given talents. If I ever need something in my head and neck region, I am coming to California from Texas to see you. God Bless.
Dr. Osborne, YOU ARE A ONE OF A KIND DR. AND HUMAN BEING. BLESS YOU FOR ALL YOU AND YOUR TEAM DO. 😊💕🙏🏼
I have really missed seeing you, & your very special team that you work with. Your team, are some of the best, most selfless medical professionals around. Thank you for all you do to help your patients and educate us.
Incredible story. Just goes to show that the biggest mistake med schools make is not teaching baby docs to LISTEN!!!!
Also. Many of the older doctors who's been in practice for years dont listen to you either. They think all they learn many years ago is all there us to know. So what you say is foriegn to them so you dont know what you taking about . Or you cant teach them nothing they dont know , cause it's not in there education of learning. So patients suffer. I've had my share over about 3 years with many. Especially with some specialist has blown my mind how I been treated. None of us know it all. We all can teach each other things you dont have to been to med school to know medical things. Learning is a forever thing in life for us all from us all. The day some think they know it all is the day they stop progressing in learn. Dangerous period! Especially when you dealing with people's body's, lives, and mental mind set how they be treated, and dismissed.
You are so right! I'm dealing with health issues and it's incredibly frustrating to have to try to explain how you're doing to someone who doesn't believe you because what you're describing isn't "textbook."
🎯
Dr. Osborne. Thank you for being a caring medical doctor! Many are not this days. I've had my share over 30 doctors the ways I was treated , and mean things I was told like I'm crazy. Cause they dont know about, and careless to learn from you to help them understand. Cause it's not in they understanding of their education in med school they was taught. So many are suffering with no help to turn too. You did a ct 3d scan for me order it to be done where I live. I thank you for that, cause doctors here thought I was crazy making it up. I have a book to write how I've been treated! Things sad to me terrible from doctors who suppose to be compassionate. And many tried todoctors who would listen to me to to just through me anything. Telling me I'm lying . But I stood my ground on what I know. I still have it, but I won't for long with Gods help praying to him. It's my time to free? And go on with my life. And be an advocate to help others know about it suffering with it when many doctors think they crazy, and wont listen. Keep doing what you doing , and having the heart you have like a doctor should in dealing with people's lives! I been my own advocate for 3 years to find out all I was dealing with that's all started from my neck injury. It's not many doctors who know about eagles syndrome or do the surgery. God bless me to come across your video last year in 2022 when I was seeking answers what's wrong with me no answer from doctors. But you need to see s psychiatrist get on meds and you stressed. This is sad. I've suffered many days floating to survive people have not a clue what I've been living through. But God. But I've fight everyday.. Research to help myself get my life back .
Prayers
Let’s speak up and write it . I have gone through so much trying to get a diagnosis of it wasn’t for Facebook I wouldn’t know , I was told I was anxious tricked into another surgery that butchered me. Went to the er so much and nothing ..
I have missed seeing your posts. Love you and your great team Dr. Osbourne. Please share more often.
What an amazing caring doctor! You don’t see that very often! 😢
Thank you for all you do Dr, and your team. You all are amazing people, thanks for sharing also!!! God bless you all!!!
This was really interesting to hear about and watch. Great outcome for Kevin and the OHNI surgeons and staff.
👏👏👏
You and your partners healing hands are Gold,A gift from Jesus ❤️
I had never heard of this. Thank you for this video which was highly educational and, Dr. Osborne who was able to help this man.
How wonderful. Dr Osborne!! You and your Team truly change lives. You have such a Gift to give to others. You Inspire me. 😊💕🙏🏼
Thank God for the talents of Dr. Osborn, all the doctor, and staff!
I wish you would show what the other doctors and their teams do also. I’ve watched from the very first video. I also wish you would show more so people with other illnesses know that they can get help. Thanks for all that you do.
You are so strong, Kevin! All the very best for prolo and so on (saw you on fb).
I have this and have both resected several times. However, my neurosurgeon cut one of my vocal cords at the same time he activated my symptoms with Eagles Syndrome. I had scans showing them years earlier, without symptoms. Post cervical fusions, wow. Awful.
Now, however, I have an erratic voice after five surgeries relating to my voice (and I am a trial lawyer, I need my voice). I also have recurrent aspiration that leads to aspiration pneumonia. Scans show I now have a glottis web which often leads to bubbles or clicking noises in my breathing at the back of my tongue.
I am thrilled you exist but I am insured and in St.Louis. I want my life back.
You are gifted and blessed
I love that he will travel to check on his patients
God bless you and your team you’re one of a kind
Thank you Osborne
Thank you Canada
Same with most medical conditions it's only understood by other sufferers.I find this with having Fibromyalgia, it's only my fellow Fibro Warriors who really understand.
I suffered from this and ended up getting desperate and letting a head and neck surgeon who had never done the procedure to do it. I'm equally grateful and sad bc I have giant terrible scars and my tongue is now tied on one side. But I feel like a human again.
I have been struggling with a particular problem for over a year. I’ve already had 2 different cancers so I know when something is seriously wrong with my body.
Symptoms: pain like an open sore in the very back of my head near the base of the neck.
Swollen lymph nodes in my chest and under my arms (much more on left side).
Pain in my abdomen and groin area.
The swelling is off and on. I’ve had a head MRI, tons of CT scans, bloodwork.
I’ve seen a neurologist (who was useless) and 2 internists.
The symptoms have gotten significantly worse.
I’m now losing my hair and tons of weight.
My last colonoscopy (I have Lynch Syndrome and had endometrial and colon cancer) and endoscopy showed strong possibility of Crohn’s disease which also runs in my family.
The lymph nodes don’t really go down anymore. But when I do something (take my mom to grocery store) the next day I’m bedridden with left chest and under arms lymph nodes swollen and painful to the touch.
I’m finally going to see an Ears Nose throat doctor after a 6 month wait (I’m in Toronto 🇨🇦🇨🇦). I’m going to get a special test with air going up my colon. I need the test where you swallow a small camera to look at my intestines (small bowel).
My stool is very bumpy, thin and covered in a jelly mucus. Not digesting fats and vitamins well.
I’m very weak and can’t attend my AA meetings (I’m 4 years sober with stage 2 liver cirrhosis and diabetes).
I’m so grateful to have found this channel!!
Hopefully I’ll learn what’s wrong before it’s too late.
I haven’t returned to emerg because our hospitals are in full crisis mode with a shortage of nurses and doctors.
They do the bare minimum now. I have a lot of numbing and neurological pain issues mainly on my left side. My left leg is redder than the right.
I don’t know why I’ve just told you my life story. Probably because I’m 52 and got diagnosed with ADHD last year lol. Oh I also almost died in ICU with Covid back in March 2021 so I have long Covid now.
I don’t talk about it because everyone thinks I’m wallowing in self pity.
The emerg doctors and specialists get frustrated because they can’t label me “drug seeking “. I have a pain doctor and I receive long and short acting opiods which I’ve never abused. I carry extras to the hospital with me to prove I’m not asking for pain meds.
I have a great family doctor who is frustrated because he’s run almost every blood test available and except for a low platelet count my numbers are ok.
But I haven’t seen him or any other doctor in 6 weeks.
I need to get these tests done and see the ENT doctor first.
My question is at what point should I seek immediate medical attention? It’s going to be at least 6 weeks before I start getting any results back. My left lower abdomen also really hurts.
I soak in Epson salts to try to flush my lymphatic system. I heard cod liver oil applied directly to the swollen lymph node areas can also help. I can’t touch it right now. My shoulder bone is also swollen. I’m left handed so it’s a real issue right now to use it at all.
I'm a victim of this with many doctors not knowing what this is. So they think you psycho need to see a psychiatrist and put on psycho meds. Cause they dont know. And careless to listen to you to learn. Its aweful living with this. It's very mentally challenging and does make you dont want to live if you have to live like this , and cant get no help. I been living with it since 2020. With a host of symptoms. Aweful all day . Make your life living in darkness. And he's right only those who have it understand what we going through daily just to survive. It's just existing not living. And does want you to take your life at times. Its terrible?
Prayers
Because of the pain?
So true. The gaslighting from ignorant doctors is *unbelievable*. For others experiencing that behavior, here's a good video with ideas that can help: czcams.com/video/CH3iSKanN7s/video.html
Kevin, I’ve seen you in the groups. I’m glad you had much improvement! I had right side done in Sept and left side will come out 4/15 with Dr Hepworth. ❤🎉
🙏
How wonderful xx
Yo truly are a gift from God, bless you, you are an angel
You guys are ANGELS. ♥
Whew! I’m thankful I found help at all, but I’m especially glad that my surgeons were able to remove the calcified styloid and insert a jugular stent through a tiny incision in my neck.
Who and where are your surgeons… I need this… thanks!
@@flora5398
Dr. Ed Hepworth in Denver, Colorado has a waiting list for out-of-state patients.
Respects au Docteur Osborne et son équipe un beau métier que vous avez dans vos mains que dieu vous protège Merci pour ses Patients Bravo Docteur Osborne
great doctors
I saw 5 doctors and the only one who found my Eagle Syndrome was my chiropractor.
Would love to work with these guys one day ❤
Awesome 💯💖
Thank you so much for this, I have Eagles too! What causes the dystonic storms?
More videos 🥰
I have eagle syndrome in the UK. The NHS doesn’t seem to take my symptoms seriously and I keep being discharged but I have all of the symptoms listed. I’m 22 and struggling to work. I’ve been looking for someone’s experience. There’s not much online
Eagle syndrome is putting me on my breaking point
It tests you to your CORE! Hang in there - hopefully you can get some help!
I truly understand. I’ve had it 6 years + and slowly gotten worse and worse. Doing surgery next month when I finally found a doctor that didn’t just look at me like I wanted pain pills. As much as I wanted to get on them I never did. Just a ton of ibuprofen. Stay strong! I know it’s insanely mentally exhausting and you can feel useless and hopeless, but you will come through the other side stronger and a love of life you never knew was possible. This is me saying this in extreme pain. There is hope!
Get mine in 15 days. 6 years of constant doctors and test. My depression is unreal because your quality of life is cut by 70%. It only gets worse as time goes on
So true...best of luck with everything! You CAN (and will) get better!
@@KevinBeaver Thanks for that.
Hi I would like you help .I have the same problem.
Мога ли да попитам ,кошко времв след операцията изчезнаха симптомите ви, колко време ви отне да се отървете от тях
Why isnt it a problem to losse the 3 muscles and 2 ligaments coming from the processus? Arendt they important for swallowing?
I am post op 5 days now. Got odema and laryngitis from intubation and have a hart time breathing. The parts of the face and ear where the wounds are are numb but all work i hav little pain and problems in the angle of my mandible. And i cannot speak because of the odema and mybe conprrdsion of nervus recurrens. What are the chances of everythibg getting back to normal?
Wow, so sorry to hear you are experiencing these things. Have you reached back out to your doctor?
@@KevinBeaver yes they say they cannot do shit. Voice comes back now but breathing is still hard and my throat seems very narrow and produces very much very hard mucus. Its hard like tissue abd i cannot get it up or down. Also the swelling if the incision adds up to the narrowing from the other side. I hope it gets better soon. At least the eagle symptoms seem to be mostly gone
@@loktron90how do u do ?
@@maysnaciri9886 still not better
Amazing.🌺🙏🏻💕💕💕 17:19
How long does this surgery take?
Each of mine were ~2-3 hours, I believe.
How does something physically so small cause so many symptoms? Our bodies are crazy
Cause it compressed on major structures in neck area. Vessels, nervers. Jugular veins. Headaches. Eye pain. Neck, head, temple spasms. Throat pain. Tongue pain . Feel like something stuck in your throat.can mess with your swallowing. Blurry vision. Dizziness. Anxiety. Tinnitus. Cant sleep. Some have serious pain all day. Plus more. Remember people the body works as a whole. So if something is off it can throw much of plenty of the body off. Brain fog at times. Aweful. Makes you dont want to be here living in this mess if you cant get help!
@@crystalcarter1199 Thanks!
I was just told by my dentist that I may have Eagles syndrome. Spotted the extended bones in panoramic x-ray. I had previously been to the family doctor due to ear pain but the Dr said there was nothing wrong with my ears. I also experience brain fog, headaches and neck pain. The next step is figuring out what type of doctor I need to go to for further evaluation.
I need desperate help..please help me. I'm almost bedridden. Can I send you my imaging. I feel very unwell.
You can do a virtual consult with Dr. Osborne - just contact his office. They have been very responsive to my requests.
How long did it take you to recovery from symptoms, and swelling went down. Did you experience tinnitus with yours?
Most things were not immediate. It was several weeks to several months for everything. Yes on tinnitus... That could be instability related. Confirming that you saw my list of symptoms in the comment above?
Thank you for response. Tinnitus is terrible! Did you have instability too? If so what you do to fix it? Did you have any numbness and thick scar tissue afterwards for a while?
I just saw your list so that answered my questions. What did you do to fix your instability or did you?
What did you do about your instability? Hiw long it took for your tinnitus to go away?
@@crystalcarter1199 Still working on that! I'm doing much much better. It's a long difficult road. I've been doing prolotherapy injections.
❤
Je suis victime de cette opération malheureusement j'ai fait une opération et je suis entaine de souffrir
Tu l'a fais ou svp ? Et comment tu sent maintnent ?
How wonderful. Dr Osborne!! You and your Team truly change lives. You have such a Gift to give to others. You Inspire me. 😊💕🙏🏼