The Moments I Realized I Was Going Blind...
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- čas přidán 1. 09. 2016
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Every time I'm depressed about my eyes I try to watch this and identify with your story. Here's what happened to me:…
When I was six years old and I went to the stairwell in my mothers house to do child like stupid things… I saw a piece of string tied to the railing on the stairs and decided to cut it off for whatever reason. I pulled on the scissors because the string would not break in the scissors broke the string and went into my left eye.
I screamed and went up to my mother telling her I poked my eye with the scissors and that everything was "fuzzy". I was rushed into surgery for six hours and a doctor, Dr. Smith, was able to "save my left eye."
There after I was required to wear a patch over my right eye to gain more strength in my left eye which I did not understand as a child. Why would I have to wear a patch on the eye that was not affected?
After wearing the patch on my right eye for six months or stitches have dissolved and I moved on to wearing contact lenses at age 7. Not only was this difficult for me because I had a hard time getting the lenses in My eye to begin with but I also had a problem with losing them. My parents did not have a lot of money at the time so this was not a reasonable way of helping myself.
Over the years I attempted to wear glasses and contact lenses to improve my vision in my left eye. By the time I became a team of a darker realization had come to turn. At age 18 I was diagnosed with optic atrophy in both eyes and it turned out that my vision was getting A lot worse and much faster than the doctors expected.
Optic atrophy is a very rare and hereditary disease that my father, my uncle and my grandmother all head. In this disease the optic nerve deteriorates overtime which eventually leads to potential total blindness. To make matters worse I found out that glasses and contact lenses are not very effective in healing or dealing with this issue at all.
I am now 27 years old and I have been dealing with being legally blind in my left eye since age 6 and legally blind in both eyes since age 18. I cannot drive a car, I cannot read a book, I cannot see faces anymore (this is a more recent development).
Although my blindness may make life more difficult at times I try to find different ways to deal with it and make things easier. Through technology, assistant programs, support groups, family and friends I have been dealing with this as best as I can! Optic atrophy may be something that makes my life order call at times but it also motivates me to follow through with my career goals.
Just recently I graduated from college with my bachelors degree in psychology and I am in rolled in the Graduate Program at Northern Illinois University for the counseling and education program! Mike Graduate Program allows for 50 people per year to be enrolled and they are very selective. I wrote my graduate program essay on my eyes and how I struggle and hardship can make you a better person and teach you very important life lessons. In a way my vision loss as not only made me blind but it has also made me a much stronger and more motivated to accomplish my goals and follow through with my dreams.
My story isn't over though, I'm going to keep following my dreams, I'm going to go to grad school, I'm going to graduate and become a counselor! I will help children who are dealing with the same and even worse issues because I don't with them and I know their pain. I know what it means to have a hard time and struggle but still be willing to stand up and keep moving forward!
I hope that when you read this you cannot only reflect on it but also take some deeper meaning from it. No one is alone in their stroller and no matter how hard your life gets you can always make it better. You have to keep getting up and keep moving forward or what's the point!!!
Never give up no matter what,
~
J Darko i also have optic atrophy! Im glad im not the only one!!
Were they kid scissors? Or audult ones. If it’s kid i5 should not do that
J Darko I’m scared to read your story I feel like if I read it the law of attraction will do it to me
I also have optic atrophy since birth and have always been legally blind. My oldest brother has it, his son , and my nieces daughter have it too.
I got my degrees in psychology and I’ve been a licensed professional counselor for the past 12 years.
I'm sure you'll have your ups and downs. I am not blind nor know anyone who is, but I think that you have an advantage that people with vision cannot see and that is the beauty in people's souls. Keep working on reaching your dreams! I know you'll get there before you know it.
you should do a TED TALK
J
Myshoeshurt420
Yes!
Myshoeshurt420 I 100000% agree
I think she did!
jaky andreevna yeah she has now, you can see the picture in Shane’s video.
I smiled so hard when she said "Dancing Eyes"
PatWizard I love that.."dancing eyes"
PatWizard same 😄😄
I think it's beautiful that she was able to turn her condition into something happy and find goodness by calling them "dancing eyes" that has taught me that even when the circumstances aren't the best, you can also find a way to brighten things up. Thank you molly burke for changing my insight on life and my world.
I fell a little in love when she said that. She and her dancing eyes are adorable!
I like her story
I am legally blind, although I consider myself very lucky that regular prescription glasses correct my vision most of the way. I remember in 8th grade when I got glasses I realized that people had different faces. It sounds crazy, but I always just memorized people's voices and walking patterns. I couldn't see facial details until after my vision was corrected. I even learned I have freckles.
Melissa Stephan Deja vu, my thought reading your post. As someone who has been extremely nearsighted since elementary I can readily identify with being terrible with faces but very familiar with people's voices, movements and gestures, and even the broad color patterns they wore on a particular day but often unable to really see them at a distance (and that is still very true to this day) -- but especially before I first got my glasses in fifth grade (I remember telling my parents that I thought I needed glasses because sitting in the front row I could never see what was being written on the chalkboard unless I was standing within a foot or two of the board, as my friend had just gotten new eyeglasses). My vision, thankfully, is sufficiently correctable, but without glasses I can not even make out the top letter of most eye charts without straining very hard since my eyes have difficulty accommodating correctly (which is typically around 20/800, or greater), exacerbated by medications I take to deal with a very painful and disabling chronic illness. I always struggled with gym/PE class because I could not see a softball or baseball until it was within a few feet of me and I would have difficulty with basketball since I could only really go by how many paces I was, roughly, from the basket since I could not wear glasses for that period. On the positive side, if my eyes are not too tired from straining all day, I can see things exceptionally well that are within a few inches of me, which is great for detail work like repairing electronics and woodworking.
But thank you for the memory.
Ethan Poole Oh man, PE class is rough. Getting whacked in the nose by a ball you can't see coming lol
Melissa Stephan your story is similar to mine! I was in first grade when one of my teachers asked why I squinted all the time, and when I told her it was because I couldn't see what she was writing on the board, or was pointing at on the wall, she told my parents who got me glasses. After, i was so surprised that trees had leaves, and that stuff wasn't supposed to be blurry.
Melissa Stephan I got mine last year in May or June, and wow was it different, I saw people's actual faces, not just shadows of people's face and I could see the trees properly... I noticed how you actually see people inside their car, I could see the signs on buildings! It was amazing but now I'm used to seeing but it was fun.
Melissa Stephan if your vision can be corrected, you're not legally blind.
Wow, I know it's not the point of the video, but I find it really interesting how young children are when they start understanding how to "lie" just to make adults feel better.
ME TOO especially when I realize it in own of my own memories
My ex boyfriend is autistic but most people don’t know and he told me how exposure therapy never actually helped him get used to things, he’d just lie and say he was okay with certain textures so that he didn’t have to keep experiencing them.
I find that part interesting too as well as sad. I don't understand why adults don't listen to kids when they tell them something is different. I mean, if I had a kid who was telling me that they couldn't see something in dim lighting or whatever the situation was, I'd take them seriously and take them to an eye doctor right away. Adults really need to listen to kids more.
@@HaleyMary Oh please. Stop with the virtue-signaling. "I don’t understand why adults don’t listen to kids when they tell them something’s different" - yeah, because literally _everything_ is different. They’re kids. Otherwise saying "I have an imaginary friend that talks to me" would warrant an immediate trip to a mental health clinic, saying "the floor is lava!!" would prompt a frantic call to fire services, and "there are monsters under my bed" would have one looking for the nearest exorcist.
The adults in her life acted as would be expected of any human being, based off the situations she described. If you had a 3yo telling you they “can’t see" when you turn the lights off, you’d say the same thing literally everyone on earth would and explain that yes, we all can’t see in the dark and it’s normal. If you’ve ever switched off the lights around a bunch of kids, they immediately start yelling "aaah! I can’t see!" No one in their right mind would start calling parents and setting up doctor appts. Same with the 2 mirrors, everyone would do what her neighbor-mom did and angle it different ways because it’s hard getting the position just right so the person can see in the mirror. I’ve done my little sis & cousin’s hair loads of times and they repeat "I can’t see it" until I finally get the angle. If she’d kept insisting especially once they got to the bathroom I’m 100% sure the neighbor would’ve clocked something was wrong.
None of the adults were at fault, it was just a case of taking extremely normal statements at face value.
"Dancing eyes" is the sweetiest description ever
I know you probably won't read this, but I wanted to tell you about my story.
I had Brain Cancer in 2010, and after my surgery I was blind for a good 3 months. I was like you I could perceive light, but all I could see was darkness. My peripheral vision was all but gone once my sight was restored, but now after 7 years, I can drive a car, I can make my way around and even though I put on a lot of weight, I'm surviving. I want to thank you for your inspirational videos, I think you are amazing, and I hope the doctors find a way to restore your sight ❤️
Mal Sint
❤️❤️❤️
adults absolutely struggle with believing the simple "i can't" statements of kids. like i guess it's fair for most kids, but while i'm not blind i do have eating difficulties and remember struggling SO much to describe that i _could not_ eat something. i didn't have any of the language to describe what was wrong with the foods, and so there was a lot of vomiting when i was little. to my mom's credit she did end up taking me to a doctor at one point, but he straight up told her i was just being picky and that i'd grow out of it without really checking anything.
if i ever have kids, i hope i don't get desensitized to their "i can't"s
I had sort of a similar experience. I am autistic (I wasn't diagnosed until a few months ago even if I had suspected it for a long time because people always say those kinds of things like 'you are just picky, or a little different but you're "normal" anyway' ) and because of that a have a lot of sensory issues and I remember telling my teachers I could not stand being in a class when I was little or that I could not eat a certain thing (that's why your comment made me remember this) and they would just insist that I was just picky or that I just needed to concentrate more at school. Turns out I have big problems with noise/light/touch sensibility so I just couldn't do all these things.
Feel better soon Molly, these stories were so interesting. Dancing eyes is just adorable!
Kate's Adventures 
Kate's Adventures what if she faked this the whole time?
Larry Medina that would be idiotic
Larry Medina she isn’t
She does look adorable. She looks a lot like Kylie Jenner except prettier and more authentic for real!
If your child is saying they can’t see constantly it seems like you would have it checked out a lot sooner..
I don’t know how long it went on, but I just don’t understand why they would dismiss it so much.
But I love watching you, and you’re so beautiful ❤️
I don't really understand either, but I think part of the problem is the child down playing the issue. The reason I say that is because I first remember noticing blurriness when I was about 7 or 8. I never mentioned it to my parents as I thought it was normal. It wasn't until they took me to an optometrist when I was 13 that they found I needed glasses.
Sandra Chapman z
Ceara Bostick I think many parents don't want to face the possibility that something is wrong with their child. I brought up my mental health issues multiple times to my parents throughout my life. I even said to my doctor and a counsellor, I think I'm depressed. I repeatedly referred to myself as emotionally unstable. (It was depression and anxiety that I was trying to describe). It took years and me almost dropping out of University after one semester for my mother and doctor to acknowledge that I might have a mental disorder. And I know its not quite the same as saying you can't see, but I feel like its the same reasoning whereby parents have a hard time thinking that something might be wrong with their child, once they can explain it away or convince themselves that their child is overreacting. Not saying that this is what Molly's parents did, just that it's a possibility. Also, they may not have realised that something like that was actually possible.
When I was in high school, I almost died from an asthma attack. My family spent my whole life denying I had asthma. I also have agoraphobia which I was also diagnosed with in high school, but had my whole life. When I would get in a crowd and freak out, my family always made me feel like I was just over exaggerating or whatever.
maybellinelover I was always made to feel like I was over-reacting and just needed to toughen up too. It's really sad and I'm sorry that you went through that. I hope things are going better for you now.
Most people would feel like they couldn’t get a career because of being blind...
molly made a career out of being blind. She literally took her weakness and turned it into happiness
goals 💫
"You're eyes are dancing" is honestly such a beautiful understanding of it, I just cant.
I’m the oldest of the three boys Nicole had. I remember coming to visit you when you were getting your first companion at Mira. Truly inspirational and amazing seeing you on CZcams nw with almost 2 million subs 👍👍👍👍👍👍👍👍
I would be terrified if I went blind. I'm VERY near sighted since I was a kid. And I'm scared sometimes if my retina would detach and I would go blind, but you're so confident in how you present yourself. I know you must have hard times, but I'm so glad you push thru. You really are an inspiration. 😸
It kinda cool how she moves her eyes as if she isn't blind I think she is amazing
A lot of blind people can move their eyes, what you said is a stereotype.
@@briannamcd350 she means it's cool how molly even bothers to open her eyes and move them around because a lot of blind people dont do that even if they can
@@Jessicurrrrrrrrr it depends on when the person went blind, the type of blindness, the severity, etc. I don't think Molly is "trying" to move her eyes to appear as if she isn't blind. That is just the way her eyes move naturally. When you say a lot of blind people don't "bother" to open their eyes, you're making it sound like they are lazy or something. Those blind people who don't open their eyes probably can't keep them open for long because it strains their muscles and they can't see anyway, so there's no reason to keep them open.
@@mygirldarby I know her eyes shake by themselves but like if she's pointing at something she'll kinda face norwards it
I‘m experiencing the same. 😶 I‘m in the time of the shock right now. I always knew that there is something wrong with my vision, but I didn‘t really want to think about it.. and now I realize what it could mean for me and my future. I‘m an artist and I love to paint. I will paint as long as I can. I love it so much. ♥️
Dancing eyes!! How sweet!
Great video, Molly. I'm legally blind and have nystagmus. I actually also use the term "dancing eyes".
YES! hahahah We'll just make it a thing. ;)
i am exactly the same but i have never called my shaky eyes "dancing eyes"
The first person to refer to my nystagmus as "dancing eyes" was my girlfriend/partner, and I thought it was the sweetest thing in the world. It was normalizing something that I have always been so self-conscious about, so it meant a lot. Thank you for sharing your story and stories, Molly. And thank you, Casey! :)
+Andrea You're lucky to have her. It's something I'm self-conscious about too, so hearing that from someone is so sweet! :)
This made me smile. I also have nystagmus, and used the term "dancing eyes" only briefly in elementary school. Maybe I'll go back to saying it. Thank you for sharing.
That shirt is so pretty on you!
Presaiah It really is! I wonder where she got it???
Hey, CZcams: Stop putting Lasik ads on a blind woman's channel! That's just mean!
Thats so cute "Dancing eyes". You say parents a lot but i don't hear you talk about your dad a lot. I don't know if that he just doesn't want to be a part of your videos or not. I love when you talk about your family. It would be kinda cool to see it from his perspective.
Throughout my childhood my dad worked long and hard hours to ensure my mom could stay home to be with me, so many of my stories/moments of childhood don't involve him. I am VERY close with both my mom and dad, but my dad works full time (luckily he has significantly less working hours then he did when I was a child so I get to see him a lot more now then I did when I was growing up) but my mom works full time for my company, so again, I just see my mom more and spend more time with her. Even now, you'll see her in videos more or I'll mention her more, but that's just because we work together and are together most of the time. haha :) I love both of my parents and am very close to both, but mama bear is like my best friend because I'm with her so much and always have ben.
That makes a lot of sense.
Shannon Hensley
I agree
+Lynnette Knapp - perfectly said. I love this comment! It is so refreshing to have someone see (and comment) something like this for what it was. I was thinking the same thing, as I read Molly's reply.
Watching a few of your videos, I've made a bit of an observation. You seem to be more authentic, and genuine than many people. you are beyond "normal." you're what so many people will never be. Themselves. That to me (not that I'm anyone special lol) makes someone so much more of a person... i don't know. I'm not sure how to explain it. but you've got a new subscriber! and in a bit of a story-plot type twist, you have some of the most beautiful eyes I've ever seen!
You have no idea what this comment means to me!
I couldn't be more ecstatic you actually read my comment, much less took the time to reply to it :) Thank you, seriously! And I'm glad it meant something to you, It feels good when I can maybe make someones day a bit brighter! I have to say, I envy your braveness to put yourself out there as you mentioned, I've always dream of being a writer of some sort, but am to self conscious to let anyone read anything I write lol, even though I could do it completely anonymous. But do us a solid (your subscribers/ future subscribers) Keep pushing and making videos, and we'll keep watching. Also be sure to reread the comment whenever you may feel down! -Jason
Molly Burke
I subscribed because your videos are educational interesting and fun. Its wonderful watching how you make everything seem so effortless and showing us life from your perspective. Thanks for teaching & sharing.
Jason Lashley perfect comment from a guy. She’s what girls should be instead of being super obsessed with looks and all the superficial things people r into these days.
jelinaangel, I agree with your comment, except that it should not be just girls. Many guys are very superficial, too.
Pretty random but I love your top and your necklace!!
Gabby Palacios me too
Gabby Palacios she can't see your comment
Yeah! She has really good taste
Crazy Unicorn stuff she can’t see it but she can read it
Crazy Unicorn Stuff no but she can hear it...
This brought tears to my eyes.. my son was diagnosed with optic nerve hypoplasia and nystagmus when he was less than a year old. He is now 6 years old. And has to use black markers and colored paper.. and has an easel to bring things closer to him. we try to make him feel like he isn't different.. he hasn't really started noticing too much yet.. but as a parent I didn't know how he would feel when he gets older... and this video kind of brought that into perspective for me. This is only my 2nd video I've watched of you. I have subscribed but still do not know what your actual diagnosis is. Just very relatable in the sense that I'm a parent of a little boy who deals with being legally blind. Not fully.. but thank you.
StowersFamilyof5 not to offend you but i think you should start teaching him that he is different and to embrace that, otherwise he's going to have quite the shock
@@Lasomie I’m 5 years late but yeah hiding a diagnosis is almost never good. The poor kid still struggles, they just feel it’s their fault and they don’t know why.
You remind me of Keira Knightley in this video!
Cat23 She reminded me of Natalie Portman :D
Cat23 I
YES! Molly, you are so gorgeous!
Cat and Ginny, here's some trivia I bet you will both get a kick out of! In Star Wars Episode One, Keira Knightley played a small part as one of Padme's handmaidens, the one dressed up as the Queen while Natalie Portman was standing right behind her and off to the side. Keira was thirteen, I think she said. It's while they were still the same height. Obviously with all the makeup, it would be practically impossible to tell the difference between the two of them. While watching that movie, I had actually thought they had Nat do both parts with a green-screen (since that movie was WAY MORE green-screened than the older movies)! But no, that really was Keira. She talked about it during an interview somewhere...I think it was on Graham Norton...? I still think they could play sisters in some film or other. :)
i see Natalie Portman!
As a legally blind girl with a bad nystagmus, it's nice to see one of us making it somewhere
I have nystagmus too.
I'm currently a CNA, trying to get into med school to become a doctor. I'm so grateful for people like you who help enlighten me to different conditions, it makes understanding patients so much easier, as a nurses aid and eventually a physician. So indirectly you've improved their care as you've educated me. So thank you
I remember when my vision started going really downhill, I was scared to tell anyone because as a vain little kid, I was scared I would have to wear super thick glasses all the time (I hadn't been diagnosed at this point in my life with my condition so I didn't know to think it was something serious, at that point I just thought having to wear glasses would be the outcome and didn't want to be made fun of). I vividly remember being in class in 4th grade and the teacher had written 20 math problems on the chalkboard for a test and I couldn't see them at all. I finally spoke up and told her I couldn't see them, so she moved my desk closer. I still couldn't see them but I was scared she would get mad at me so I just guessed. I got every single answer wrong obviously. it was the first time I'd failed a test, I was a really good student and I was so upset. I remember she had us grade our answers, so the kid next to me graded my paper and handed it back with a big red x next to every answer.
how is your vision now?
I feel so grateful that i have my sight .. I can only imagine how conflicted i would feel if i knew i was losing my vision ....
I love your top!!
Thanks! :D
Molly Burke I have cerebral palsy
Molly Burke enjoy watching your videos. May God give you strength in going through whatever challenges you are going through Molly. Have faith! From Singapore.
Courtney Renee Elkins i do too
this is so beautiful. i love how you're getting successful because you 100% deserve it!
Every time I hear I hear "legally blind," I always think of Legally Blonde, and I want someone to make a parody of that movie called Legally Blind.
EDIT: Imagine how powerful that movie would really be. Instead it would be about a blind girl who was left by the only guy who ever dated her (because she was very attractive, and she didn't realize the guy was using her for her appearance and taking advantage of her vulnerability). She managed to follow him to Harvard, and people didn't think a blind girl would be able to succeed like the rest of them. Vivianne would have seen her as incapable of anything because of her disability, and would say Warner would want someone who can actually see (and I can see her using the line "at least you can't see what you're missing"). Elle would meet Emmett, a guy who helped her and actually liked her for her, and he helped her succeed in a highly demanding environment that relied on sight, and he would help her navigate campus and the cases she was given for class. Bruiser would be her guide dog. She would initially struggle with the work because she can't see the physical evidence used to fight the case, but Emmett would help explain it to her. She would get the internship, and it would make her realize she is just as powerful and capable as sighted people. Instead of a fitness coach, the case could be about a woman who trains guide dogs that she bought Bruiser from, and that's how Elle knows her (also from the sorority). The teacher could also be taking advantage of her because she's attractive, but in the end says he knew she would never be able to be a good lawyer because she is blind. I'm still trying to figure out a better way for her to win the case, but my only idea was that the daughter is also blind and says she was upstairs reading a Braille book, but not only is a Braille book not found in her room, but Elle heard her saying she couldn't read the Braille on something before the case, and went tested, she can barely read any of it. Elle could get so aggressive because the daughter was using her disability as an excuse/alibis, and that's how her disability helped her win the case. This needs to be a movie.
Olivia D'Angelo w
Girl,that's a long edit ......wow
Bruh Legally Blonde is a pun on legally blind…
I’ve always had bad eye sight. I’m not blind or anything but let’s just say without glasses my vision is really bad. One of the moments I remember so vividly is my friend had a basement with a concrete floor, and there was a small space which you could roller skate on. They had these little rope things you could hold on to while skating and skate back and forth with support. They had a poster with a bunch of hokey player names on it. We would play this game and say the player name or something. My friend could read the names perfectly. I thought that I was a failure because I couldn’t read it. Maybe 4 years later I get prescribed glasses. It still amazes me how I can see the leaves on trees. Well thanks for listening to my ramble. Have a nice day :)
This is actually really fascinating to hear about. The human mind is such a crazy thing! I love the "dancing eyes"!
I love that you still move your eyes when you are processing and thinking and changing emotions. Truly inspiring, and your eyes are extremely beautiful!
Seriously you light up my world. Been so sad lately and depressed and you just made it all a bit easier to deal with. You are awesome. Take care
You look like Natalie Portman! So pretty
She looks like a Natalie aswell
I know you mean that as a compliment, but she doesn't even know what Natalie Portman looks like. So its hollow. Compliment her voice or personality. Compliment her memory or speaking skills.
Joseph Dockemeyer There’s nothing wrong with saying that I think it gives her a slightly better idea of what kind of person people think of when they see her
Bruh I never realized that lmao
I am so lucky to see color thx Molly for making me realize
I love how you can not be upset about being blind and I so inspired by you. You earned a new Sub
I love watching your videos. I have struggled with sight the majority of my life, and I have been told that my sight will continue to get worse until I am around 30 or so. My prescription changes about every 6 months, so I have always worried that I am going to become legally or completely blind. Your videos make it easier for me to accept that blindness is not something I should stress over. That I can accept it and there are accommodations that are available to help me live nearly as normal a life as I have now. You will never know how much I appreciate your genuineness about being blind and not treating it or letting it be treated like it's a life ending disability. Thank you so much for choosing to put your life experiences out there.
you are gorgeous and inspirational - i'm so happy you are living a happy live as you deserve
so i have exactly what molly has, retinitis pigmentosa (RP) and dhe dancing eyes lol but kids in class would call my shaking eyes the ferbie doll eyes because the ferbie dolls eyes would move left to right for those who remember ferbie lmao. hearing mollys stories rings soooo many bells and brings up memories specially when she talks about the confusion she felt when ppl around her were seeing things that she couldnt see right before the diagnosis. i can remember standing in lunch line 3rd grade and 1 of my friends trying to show me a small number inprinted on the back of every spoon. he says you cant see that number?? i thought he was tricking me but when everyone else can see the number accept me i was confused. thats around the time i found out i had a vision problem.
You have such a positive attitude on the obstacles you have gone through, thanks for seeing the world differently and showing me a different perspective.
The dancing eyes story made me cry!! It’s so beautiful and a positive way to look at this. My story is completely different story than yours...But I was diagnosed with Optic Nerve Hypoplasia. I was completely blind in my right eye since birth...so i know-literally-half of what that’s like. Not being able to see the way the other kids did. But anyway.
I’ve seen a few videos of yours now and i love seeing how you live your life to the fullest. You’re such an inspiration. ❤️
I started losing my eyesight almost 2 years ago and the thing you said about pretending to see to make people happy is so real.
I was born with cataracts and my right eye had it way worse than my left eye my right eyes vision was 20/400 and my left I was only like 20/30
I had multiple surgeries in my right eye at age two
I had my eye cut open and an artificial lens replaced with my lens
I grew more clouding in my right eye and had to have that surgically removed
I also had my eye lazered three time too let more light in
I now have what’s called a surgical pupil in my right eye were it is at the top of my eye instead of in the middle because two of my muscles that held my pupil in place were cut during surgery
Luckily this doesn’t effect my vision at all
From age 2-8 I had to wear a patch on my left eye for six hours a day
Now I am 10 and my vision is a lot better My vision in my right eye is now 20/40 and my left eye is still 20/30 without glasses
With glasses my right eye is about 20/30 and my left 20/20
I still have a cataract in my left eye that’s looks like a little white dot in the center of my eye but since it is so small it doesn’t effect my vision that much at all and didn’t need surgery while my other eye’s cataract covered my pupil and blocked al the light out of my eye
I was very lucky and thanks to the help of my eye doctor and my parents I can now see
that's an amazing story. keep going dude. you've been through a lot
I’ve been binge watching her videos and I never realized that her eyes shook until she said it.
Anyhow, I love you videos so much and your positive personality throughout them.
Girl, I came from seeing you on Shane’s channel, and I instantly fell in love! You’re such a beautiful human being inside and out!!
I was born three months early, and was diagnosed with ROP (retinopathy of prematurity) and I've always been legally blind. I'm losing more vision steadily now, and I cannot explain to you how happy your videos make me. My eyes dance as well, and they go to the left, so I never make full eye contact even when I'm looking straight towards someone. I know our situations are not exactly the same, but I feel so good knowing that living differently is not a bad thing, we simply have to adapt. Keep doing what makes you happy, girl. Thank you so much for sharing your stories.
Nikole Rain Me too, today my left eye is false, detached retina in right eye, cataracts, with more scarring than I care to mention, have had laser four times. Today my lens has slipped, misties like being in a foggy bathroom or half a circle coloured brown in middle of vision. Legally blind, love my colours still anything bright, pink, kindle and as many apps are white on black background. My arthritis causes me more trouble than my eyes, that’s only 3 years where bad eyes I’ve always had.
This is so sweet and touching Molly! Thanks for sharing your stories. I love your videos. 💖
Glad you enjoyed!!
why you blind I like your videos and your stories
I like your video so much happy face
Zyen stewart she has a voice over setting on her devices that reads everything for her. She made a video on how she uses technology if you want to know more.
I want to know more
Molly, Thank You for telling your stories! I am also disabled, I am in no way comparing. I just wanted to let you know that I appreciate how you use your platform to educate people. Sometimes people don’t understand. My sister cares for me so she doesn’t understand why I’m on pain medication. So you are an inspiration to me! Thank you very much for all that you do!
I have so mutch respect for you... i am batteling with cronic migraines for almost 3 years now and i just hate life i can't do anything.. i couldn't imagine how it is to be blind you are such a strong and beautiful woman and you always give me courage to keep fighting for my dreams even if it looks inpossiple.. ilysm and keep up the good work here on youtube ❤️
This videos so sweet! Your an inspiration to everyone, carry on being awesome Molly! ❤️
I'm considered legally blind without my contacts. And my vision keeps getting worse and worse.
LadyStephyLynn what's your prescription? I feel like I am considered that but I can see fine with my contacts and glasses so I don't think it counts?
LadyStephyLynn im considered legally blind without contacts too
LadyStephyLynn I'm sorry :/. Can you get lasik?
LadyStephyLynn oh rip i hope u dont go blind
alyssa valentine I'm a -6 soo my eyes are bad too
I just found your channel thanks to Kandee and I’m so glad I did. Your positivity is absolutely inspiring and let’s just say that I could learn a bit from you! I look forward to see where life takes you.
You're so brave for telling us your inspiring story. I couldn't possibly imagine how hard it was but you really are a hero for telling us about your eye sight xx
I didn't even noticed that you have dancing eyes until you mentioned. Love you ❤️
Omg the dancing eyes part made me so happy 💖
Molly, you are amazing. I'm no longer horribly afraid of losing sight, and I'm more greatful that I can see. I'm so happy you are doing well and that you are sharing your experiences with the world!
I'm coming back and watching this video because it makes me realize how amazing people can be. My best friend Alci is legally blind. Her eyes "dance" , although she can almost see clearly with glasses, and she is one of the most positive people I've ever met. And she reminds me so much of you. Instead of complaining about her condition, she embraces it. And that's what I love about you. You're amazing and you inspire me to do great things!! I also have poor vision, but thankfully I can wear glasses so I can fully see the world. And I'm thankful for that so I can watch your videos. You're amazing and I love you!! Keep being amazing
My friends fiance has the same condition, he is slowly losing his vision, he is 26 now and still has some vision, his case is progressing much slower, he is expected to be blind by 40. I'm going send him to your channel with the hope it can help. I can see the fear in his eyes when ever the topic is brought up, hopefully your videos can help him.
it may seem different, but i can relate so much with growing up with fibromyalgia. "it hurts" was so common to come out of my mouth that a teacher literally told me i wasnt allowed to see the nurse because i was fine. oh yea, the chronic pain is fine. being diagnosed at 19 is totally fine! im not disabled, i would never say that. but lifting an empty glass and dropping said glass can be extremely discourging at 19. not being able to walk around the block or up the stairs... it was honestly scary to feel that way and no one else did. talking with my mom about her pain and journey was eye opening and i finally understood what was wrong with me the whole time...
That last story was so sweet. "Oh so your eyes are dancing?"aaaaaawwwww what a nice friend.
Love how your mom explained that your eyes just like to dance 💕. You are so inspiration, thank you for sharing all these years! 💖
My eyes don't shake on their own, but I can make them shake and everyone is so confused about it and honestly I am too. I don't know why I can do it but I think it's pretty cool and a fun trick to freak people out if they've never seen shaking eyes before.
Little M dancing*
Little M I can only do it when I cross my eyes 🙃
Thank you for sharing, it is not a easy process.
Duuuuuuude I can’t believe I had not come across your channel sooner😫 I’m legally blind and even though our situations are different I can sooooo relate to the struggle with school and seeing yourself as different as a kid. You are so inspiring keep killin it!
I love the 'dancing eyes' that is such a beautiful, positive way of describing it
When I watch your videos you always seem so... Smart. You probably are, too.
You're cool
AWWWh Molly this made me tear up
I loved this! My son has Septo Optic Dysplasia- he’s 10 now- diagnosed at 5 months old, we first brought him to the doctor at 3 months old because sometimes when he would open his eyes they would shake so quickly and found out it was nystagmus which led to his other diagnoses. I so clearly remember around 6 when he first realized something was a little different with his eyes and having that conversation explaining to him that he is blind in his right eye and all of the other things we never told him about. You’re such an inspiration for me being a mommy to a child with visual disabilities!! Keep on shining bright beautiful 💙
I have pretty bad vision and without my glasses I can’t really navigate or do much without being super close to it, but I never realized how ignorant I was to people who are actually blind and all the things that I never knew, I just recently found your channel and it has literally been a god send! I love how much work you put into educating those of us who don’t know much about blindness. You’re such an amazing person and I’m so glad that I’ve found your channel! Keep up the good work Molly!💕
I'm not blind (20/400 vision but correctable with lenses) but I have nystagmus too. It doesn't happen all the time, but I can just be walking around minding my own business and my eyes will just roll up in my head for a second and I have to move them back to where they were. I can shake them voluntarily as well, which I didn't know was weird until I was older.
I'm 20/400 but correctable to 20/30 & 20/40 also. I'm so sorry to hear about your other vision problems. I hope you are able to reverse them.
the reason your eyes are randomly moving when you don’t want them to is because they will move slightly off a certain point in your eye called the nolspot. if your eyes move off that spot they will move involuntary. i also have nystagmus so that’s why i know. hope this helped :)
I also have Nystagmus and I am asked why my eyes shake pretty frequently. I think that telling children your eyes are dancing is awesome! I'll definitely be using that from now on.
Valerie Swart is nystagmus painful?
Oh my gosh molly! I loved this video! I know I'm watching this in 2018 but I've recently started watching you and going into your older videos, and this video almost made me tear up, just listening to your innocent childhood stories was so heartwarming. You have such a positive outlook on life, and I'm glad you've come so far. Great video and hope you keep doing well!
I could tell your eyes shook when you talked about them shaking! Your so unique and I’m so inspired !!!
I am so sorry for u!
Molly, you are absolutely amazing. Thank you for sharing .
wow your such a strong,resilient woman. SO PROUD!
well that's an amazing way to" see" things..very positive and inspiring...bless ur heart💛
the dancing eye part was so adorable
I can see but I'm legally blind I wear glasses lol its not bad at all for me but when I was young my parents used to make me sweep the floor over and over because I didn't get all the dirt but I couldn't see the dirt and my mom had the same problem as a kid so I'm surprised it's my dad who realized I was blind. I was diagnosed in 1st grade and got glasses that improved my vision until recently my vision has stabilized years later and if I want to have clear vision I just need Lazer eye surgery. in kindergarten I was told I was stupid because I couldn't read (switched teachers Cuz that was just mean.) but I did take special classes after I got my glasses to improve my reading ability and catch up. just thought it was funny the "I can't see it" was so me with the dirt on the floor but my parents were yelling at me and I was crying from frustration and people being disappointed in me xD
Bratt Rox I'm exactly the same!!!
Hi Molly! I’ve recently found your channel and I usually dont comment anywhere but I could not help it! I have Nystagmus since birth, very weak sight that I cant see in dim light, or sunlight, and I hate the white light glare. I have been bullied non stop for my shaking eyes...I have had other kids impersonate me as they talked to me, I was never offered the help, given that I am not fully blind...and I’ve led a difficult life. Or so I thought! Watching you has given me a new meaning, a new determination for life. I cannot even imagine the struggle you go through every day, and yet here you and so positive, and so upbeat about everything, while I thought I struggled with my partial vision and shaking world. I’ve never heard someone put nystagmus in such a positive way, so from now on, I’m gonna embrace this, all my weaknesses, and proudly tell the whole world I have dancing eyes. Thank You, Molly. Stay positive and continue to spread your beautiful light in this dark world. All my Love ! xx
Just bought your book on Audible. Glad you're the narrator; you are very easy to listen to and have excellent enunciation.
I just realized she is from the Dove commercial!!
She looks a bit like Natalie Portman
I'm new to your channel and you make me so thankful for all I have. You're an amazing human being and I'm beyond amazed of how strong you are.
1 dislike how!? what is in that person's head to dislike this?
Shame on the person who disliked it! Molly always produces great videos x
I have to imagine that it was a mis-click.
The dislike will be from a teenage girl who is jealous of the pretty girl
+Galakyllz yea, must be a blind person.
They must feel very lonely being the only unlike up there!
Hi Molly when you speak clearly the auto-generated captions are what you are saying most of the time. Sometime there is a slight mix up, but for the most part it works.
Maureen O'Brien yeah the slight mix up is just youtube being youtube
Yea with all the clear spoken "common" words it works fine but for example when you said "my nystagmus" it turned it into "minus diagnosis"
I noticed that. The technology needs a bit of tweaking. Otherwise, it works well enough for people to get the idea.
James Curfman it’s better for real people to make the captions. Anyone can help add captions, you know
You are a great person Molly! Stay strong, stay cheerful!
The dancing eyes is so sweet! I love how the adults in your life wanted you to feel normal and enjoy your childhood!
I am blind in one eye and a dancer as well sometimes one is moving and the other isn't because I wear a prosthetic from know on I will think of it as my dancing eye😉❤️😉
I am Blind in 1 Eye as well
My son wears a prosthetic eye also!
my baby cousin (4 y/o) has stagnant eyes and he just went through surgery for them.
rednecklife 16 yea, stagnant means 'still'
JoRock well you know what i mean
"My eyes just like to dance." that's such a positive and cute way of putting it!
Thank you so much for opening yourself up to the world. I can really relate to you, I am legally blind and I can COMPLETELY relate to you and your stories. Thank you so much. ❤️
I'm lucky enough to be able to fix my vision with glasses, but I have really bad near sightedness that I was too young to recognize when it started to develop. I had no idea that other people could see better. I thought I was totally normal, but I couldn't read the words off the board when we were learning handwriting. I basically couldn't even tell that there were words on the board; they were just black smudges. The teacher thought I was purposely acting up and ignoring what she was telling us to do. She yelled at me in front of everyone to the point where I cried (I was only 8 btw). Luckily, there was a teaching assistant that just hung out in the class room and did whatever the teacher needed help with. She took the time to read the words to me so I could write them down. She was also the one who told my parents to bring me to an eye doctor. That was 12 years ago, but it still makes me tear up when I think about her because she made me feel so much better, instead of making me feel dumb for not being able to do things others could. It was such a simple action, but it made the biggest difference to me.
Was it just me, or when she said her eyes shake , the only thing I foucused on was her eyes?
Thank you for sharing your story ! i have a similar disease as you and you just made me feel so mich better. i realize im not the only one to struggle. I found out i was sick at 18 and felt so alone all those years so thanks you for sharing this ! love xx
I recently moved back home to the LA area and I love your videos :) I'm a newer follower, and I hope that at some point I have the opportunity to meet you! You really inspire me with how genuine you are as a person, and I wish nothing bust the best for you Molly!!
You were just not able to explain to adults that guide you why you cant see. You had no idea it was such a thing, because thats how you've always been.