What to Expect When Going Blind
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- čas přidán 27. 04. 2021
- Hey everyone, here are the stages of vision loss. The 7 stages of Stargardt's may vary of course all of our experiences and ways of coping are different but this is a general breakdown of what it's like to go blind
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Comment 🤩 if you have Stargardt's Disease too
#30DaysOfBlind
I can TOTALLY relate to the frustration of “but I could do that yesterday!”. I appreciate knowing that this may be ‘normal’ / something that may come up consistently. 😁 (smiling face emoji)
literally yesterday! LOL but it's helpful having people out there relate so I don't feel crazy when I realize the change
What a wonderful video, positive yet realistic about challenges. And what a great smile you have 😊 I see you put this out a couple of years ago, so I hope you’re okay now. From a 73 year old in the UK, just diagnosed with AMD and trying to get through these stages. Well done and all the best to you xx
73 years young! We all have so much to learn! Thank you for the kind words and hope you are adapting the best you can!!
Spot on! I have RP so I can relate to all of this. I think you make a VERY good point that sometimes accepting the vision loss feels like giving up. Thank you, this perspective really did help me :)
Oh and something I started doing was referring to my RP as a eye condition not a disease. It makes a massive difference mentally.
Accept that you cannot drive anymore or stuff like that. Yes it sucks asking for help, especially if it's something really "small" and quick.
Keep safe out ther
one, the red looks awesome! I love that shade! I wish more people would use it. anyways, thank you so much for sharing! you really help me feel like I was normal. I am the only chronically ill person I know in my life and a lot of people don't understand why I have the emotions that I do and these are primarily the things that I go through plus a bit more obviously but, this is the best list I've seen of what goes on when you're losing your vision or for me it's vision loss and also my muscles and a few other things but, I thought this video was going to be in a different direction but I am super happy I clicked on it because it was definitely a video I needed to hear.
aww thanks love a little red lip never hurt anyone lol
I'm glad that you like how different the video and it resonated with you. It's extremely hard going through something alone when you don't know anyone personally you can relate to. Hope you continue to reach to content, communities, creators that can build you up and strengthen you on this journey. Stay blessed
Great video Alisha as always. I'm so with you about the denial stage, I went straight there after my RP diagnosis. The loss of what could/should have been was and is overwhelming some days. I need to work on Gratitude, it's a journey. Loving the content ❣
It is overwhelming thanks for sharing and being open with me. It's not easy to vocalize what we're going though sometimes it's scary how real it makes it
Loving the consistency ❤️
Thank you! 💞💞💞
You have an amazing attitude and lovely personality. 💖
thank you so much appreciated!
So cute how you explained it❤
love how much I relate to you!!! even though we don't have the same vision
Hey Kat Hey/! Happy we relate too 💞 We dont have to endure the same thing to feel the same things Life's funny like that
You have a beautiful smile. Love your positivity
thanks love
Thanks for the info. How did you feel at stage 5 & 6 again please? I'm trying to understand feelings of blind people.
You're amazing :)
thanks Philip!
I just want to hug you 😞 i really need someone positive like you around me lord 🙏
Thank you!
I have sarcoidosis-uveitis also a blinding disease. Thanks for the video!
TFS hope life is treating you well
I do feel for you going blind I just could not cope going blind I could not live
Thanks for this. 🧡 I was diagnosed with Glaucoma this year at the age of 24. Taking it day by day but it sucks.
yes that's all you can do, stay strong and as positive as possible
glaucoma doesn't mean you'll go blind hun. stay with your treatment and try to be positive as well as change your diet
Love your attitude to this Somedays everything feels fine Then other day get so Angry It’s like Ya I’ve now got to keep going People don’t know your struggles With day to day living ….. I’m doing it Long text …SORRY Take Care x
Yessss, the only thing worse than the experience is discrediting the experince you gotta acknowledge the ebbs ad flows of vision loss. I'm happy you're doing that and I hope you are doing ok
Yep, it matches entirely, only the timing is different, cause I decided to choose a slowly creeping variant of Stargardt’s. Finally I reached stage 7, but what percentage of acceptance is hard to estimate, 100% definitely is a myth…
The stories you've shared, I feel like you have accepted it so much! I wonder if the slow deterioration gae you time to or made it harder to. It could either way.
Confident lady
My girlfriend has Stargardts! I have sent this video to her 😊
pls support all you can
ok hope it helps 💞
@@alishainc me too. I have been disabled my whole life and apparently my disorder means I could end up finding out I have this as well, my eyes have been getting worse my whole life and I have been told I am not a good candidate for Lasik... I have accepted it. She is newer to this world. Things you said in this are really relatable and feel so raw and real.
I’ve been told I have macular degeneration (but not how long until my central vision will be gone). I think I hopped straight to shock and I’m still there 😅. Ok I’m gonna go blind but when? will I actually? what will change? will my life goals have to die? etc
I know it's super weird when they can't give you a definite answer. You will be best trying to take things moment by moment. goals don't have die, more so reframe
Ive been on steroids for 3 years for my eyes just saw an opthalmologist outta pocket now i am going to a huge opthalmologist in seattle soon no one can figure out whats going on..red blurry eyes, they hurt , They ruled out lupus..i went from regular glasses to bi focals in less than a year..
oh wow out of pocket? Yikes I hope you find out what's happening soon. Praying for you 💞
I hope you are fine and happy , I have glaucoma in my both eyes and I am 34 healthy man , I have to alter my whole life to prepare myself for what is unknown .
oh wow thanks for sharing 🤍 it really is a whole life adjustment
@@alishainc I wish you a happy life and happy days :)
Listen going blind from glaucoma now days is rare cause of medicine
I related so much to this . Expect I suffer from keratoconus
Sorry to hear love, hope your managing ok 💗
If my eyesight is -5 and getting -1 worse every year am I going blind?
no, you'd have t o see an opthamologist
Man, you are fine. Glasses are your good friend.
How did u cure it
you can’t cure it
❤thank you for sharing 🙏 am sorry 😞 your beutyful n i pray 🙏 for you for us for all in the name of Jesus for healing 🙏 ❤️
is it me, or does it sound similar to the stages they developed to help big trauma in life?
Never heard of that send a link! I'd love to see!! losing vision is traumatic LOOOL but seriously lol
All that. Especially the acceptance. It's like there's no closure with Stargardt. No "new normal" b/c there's always a "new normal". Frustrating.
never get used to it but we still got to manage it