How Migraine Attacked One Woman's Gut | Me vs Migraine Ep 1
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- čas přidán 10. 07. 2024
- Discover how Wendy's family trip to a theme park ended up with migraine, hospital, and a life-saving emergency surgery in this incredible patient story that we can all learn from.
Questions addressed include:
- How long Wendy had migraine for?
- What was her treatment plan?
- What happened and why?
- Where did things go wrong?
- What she learnt from the experience?
- How she manages her migraine condition today?
- What tips would she give to others?
You’ll also hear excerpts from several medical experts from the Migraine World Summit covering several questions raised.
This is Episode 1 of a new series called ‘Me vs Migraine’. Join Migraine World Summit hosts Paula and Carl to hear compelling stories from people with migraine, expert insights and audience Q&A:
- Episode 2: • Recovering From Rock B...
- Episode 3: • When Migraine Throws Y...
00:00 - Introduction
02:54 - Wendy's Story: From Disney to the ER
13:25 - Migraine and over the counter meds
20:12 - Dr. Trupti Gokani: Migraine meds & gut health
22:14 - Wendy's Story: Rare but real
24:20 - Dr. Steward Tepper: Rebound headaches
27:51 - Wendy's Story: After the colostomy
33:51 - Dr. Andrew Charles: Risks with caffeine medication
34:36 - Prevention and treatment innovations
38:48 - Wendy's Story: Conclusion
40:21 - Q&A with Wendy, Carl, and Paula
Thanks for sharing this story. Many, many, many years ago I was told to never take any NSAIDS, ASA, IBUPROFEN b/c of ulcers. I'm so sorry that you had to go through this, you are one tough lady! The medical people failed you!
Really appreciate you sharing this. Your information has helped me tremendously, I also take a lot of pain medications on top of the medications I use for migraine. Your story has informed me to be more cautious of this. Thank you!
I’m so sorry you had to go through the challenge of an uncaring doctor. Bless you and your family.
I can totally relate to Wendy and her story. I had migraines ever since I came back from the first Gulf War in 90-91. However, decades go by and military doctors are still telling me I have stress headaches due to my military position. The drugs they gave me never worked so I just kept popping over the counter medication like Excedrin Migraines and many others. No one told me about the risks of these drugs and I ultimately paid for it later down the road. It wasn't until 2013 when I was a few months before I retired from the Army that an Army doctor had me take detailed notes of my migraines. He finally ended up giving me Zolmitriptan and that was a life savior for me. Unfortunately, my neck issues are keeping me still having migraines into my 50s, but Aimovig has been a lifesaver for me since it has reduced my migraines from 16 to about 7. The problem I had with the over counters was that all those years of NSAIDs that I was taking left me with stage 3 Kidney disease.
Thanks for sharing this. Since I have been suffering from migraines, so many people thought I was just making things up. I took a lot of Tylenol and aspirin and Excedrin and finally realized none of it was helping. I quit taking it mostly. I am currently on a low dose aspirin that is prescribed by my doctor for other medical issues. I rarely take any over-the-counter pain medicine now, because Medicare kicked in and allowed me to go on Botox Injections for my migraines. These injections of Botox has been a game changer for my migraines. Of course, it is very expensive, so thankfully I get it paid for. This story is amazing and I am glad that you shared it.
Thank you so much for sharing this story. I had the same experiences with excedrin migraine and Topiramate. And I too have layered meds to be able to function. I will make sure I’m more careful from here on.
Thank you for sharing - makes me wonder if these contributed to small bowel obstruction I had almost 2 years ago that had no other explanation as to cause…
Triptans are rationed to 10 or 12 per month because overuse can cause serotonin flush which can kill. Can also cause other kinds of harm - not sure - maybe cardiac for seniors.
What is safe for tension or cervicogenic or migraine? Imitrex and NSAIDs and caffeine are the most effective. Then there is acetaminophen. Fioricet has been helping me - a combo of acetaminophen, butalbital & caffeine.
31:29 7:01pm Thank you for sharing your story. I have taken every medication prescribed by my many neurologists, as well as the Nerivio device and Cefaly device. I have just been told that I have rebound headaches caused by the Excedrin-free OTC. The only abortive medication that has ever aborted my migraines is meperidine by injection. I have been off of the meperidine and excedrin-free medication for over two weeks and I now have a migraine every day. I have just tried Ubrelvy but that hasn’t worked either. The next step for me, is an IV infusion of Vyepti every 3 months. I’m hoping that my insurance covers the infusion or I don’t know what is left. My migraines increased after I had Deep Brain Stimulation surgery 2 years ago for a tremor, which had to be extracted because of infections. I was an LPN so I’m aware of addiction as well. 60 years of migraines is enough for me! I wish Wendy and her family all the best.
I have failed on Botox, ubrevly, topomax, maxalt, relpax, ajovy, Emgality, water pills, barbiturates, and just started Vyepti. Really hope it works for me, but I'm still recovering from the terrible days of side effects after the infusion. Absolutely horrible just FYI to watch out for that. No one warned me and I was puking and in so much muscle pain everywhere, especially upper back, shoulders, neck, and all over my head.
Opiods can cause headache and are hard on kidneys.
Topamax can contribute to bone density loss.