Video

My eyes are sensitive I can’t even use a highlighter without my eyes burning 😅 Edit: which is called photophobia ❤

Can excessive burping and sweating also be symptoms of CVS? Because that is how my 'attacks' usually start. First the extreme burping, then the dizzyness, lightheadedness and nausea, and then the relentless vomiting; every 10 minutes for a couple of hours (usually 15 hrs in total where the first 3 hrs are worst and then the frequency slowly goes down). Insane sweating in that period, I mean literally dripping sweat and having to change shirts 4 times per hour... I also get songs or sentences stuck in my head that just go over and over and I can't think of anything else anymore. Normally I never have that. And, hyperosmia 🤨. I can smell everything way better and even regular water suddenly has a stronger taste. Is there any information to be found about this, or do others have similar sympoms? I'm a 39 year old woman btw.

My son have CVS 😢, we live in Germany. Doctors are failed 😨, thay can not help us 😢. We habe no medicine 💊. What can we do can u pls tell me

I have this during and in-between migraines. I can only use hard pillows and keep my head shaved because anything touching my face lightly is so painful. My neurologist had me try topical lidocaine and it numbs my face for a time.

I got BADDDD tasting burps

😢😢😢😢😢so what is the treatment

Can you fix it. Mine causes left side stroke like symptoms. Mild but the thinking process is affected. I've had this since a accident in the military. 40years. A long time. Can you help?😢😢

Can you have Abdominal Migraine with no stomach pain? Or am I being categorized wrong?

I was also an educator in a large high school in NYC, now retired. Many of us discussed our migraines. I am good friends with one person due to our migraines. My migraines also have become more frequent as I age.

Almost 40 years now. Not getting better. In the most stressful situations I pushed through because life goes on. They started when I worked as a military officer in a Missile Wing. I tried to find a less stressful career after military service. Finally the VA is on a quest to help me.

My neurologist has never bothered to ask me how my mental health is doing. Twenty-two years of chronic, treatment resistance migraines. Not once. I always thought that my migraines and depression/anxiety were isolated from each other since I had suffered from them before migraines. I didn't realize it worsened. I'm on a new treatment that has reduced the number of migraines and I feel I have greatly improved my mental health. This lady's story resonates so much. My studies came so easily before the migraines. I didn't remove my college books from the shrink wrap. Now, I want to complete a master's program, and just don't think I have the headspace for it because my memory is not the same. My working memory is completely shot.

Can I contact the migraine world summit for help? Can I? I'm not so sure about that.

I've always called it a stress hangover. In the midst of a crisis or the experience of intense emotions, I'm OK, but the days after I'm in migraine and panic attack hell. Ugh, those shimmery jaggedy circles. I know them all too well. Thank you for producing this series!

This video has really helped me. Thank you

I can totally relate to Wendy and her story. I had migraines ever since I came back from the first Gulf War in 90-91. However, decades go by and military doctors are still telling me I have stress headaches due to my military position. The drugs they gave me never worked so I just kept popping over the counter medication like Excedrin Migraines and many others. No one told me about the risks of these drugs and I ultimately paid for it later down the road. It wasn't until 2013 when I was a few months before I retired from the Army that an Army doctor had me take detailed notes of my migraines. He finally ended up giving me Zolmitriptan and that was a life savior for me. Unfortunately, my neck issues are keeping me still having migraines into my 50s, but Aimovig has been a lifesaver for me since it has reduced my migraines from 16 to about 7. The problem I had with the over counters was that all those years of NSAIDs that I was taking left me with stage 3 Kidney disease.

Thank you for sharing - makes me wonder if these contributed to small bowel obstruction I had almost 2 years ago that had no other explanation as to cause…

Thanks for sharing this. Since I have been suffering from migraines, so many people thought I was just making things up. I took a lot of Tylenol and aspirin and Excedrin and finally realized none of it was helping. I quit taking it mostly. I am currently on a low dose aspirin that is prescribed by my doctor for other medical issues. I rarely take any over-the-counter pain medicine now, because Medicare kicked in and allowed me to go on Botox Injections for my migraines. These injections of Botox has been a game changer for my migraines. Of course, it is very expensive, so thankfully I get it paid for. This story is amazing and I am glad that you shared it.

31:29 7:01pm Thank you for sharing your story. I have taken every medication prescribed by my many neurologists, as well as the Nerivio device and Cefaly device. I have just been told that I have rebound headaches caused by the Excedrin-free OTC. The only abortive medication that has ever aborted my migraines is meperidine by injection. I have been off of the meperidine and excedrin-free medication for over two weeks and I now have a migraine every day. I have just tried Ubrelvy but that hasn’t worked either. The next step for me, is an IV infusion of Vyepti every 3 months. I’m hoping that my insurance covers the infusion or I don’t know what is left. My migraines increased after I had Deep Brain Stimulation surgery 2 years ago for a tremor, which had to be extracted because of infections. I was an LPN so I’m aware of addiction as well. 60 years of migraines is enough for me! I wish Wendy and her family all the best.

Topamax can contribute to bone density loss.

Opiods can cause headache and are hard on kidneys.

Triptans are rationed to 10 or 12 per month because overuse can cause serotonin flush which can kill. Can also cause other kinds of harm - not sure - maybe cardiac for seniors.

What is safe for tension or cervicogenic or migraine? Imitrex and NSAIDs and caffeine are the most effective. Then there is acetaminophen. Fioricet has been helping me - a combo of acetaminophen, butalbital & caffeine.

Thanks for sharing this story. Many, many, many years ago I was told to never take any NSAIDS, ASA, IBUPROFEN b/c of ulcers. I'm so sorry that you had to go through this, you are one tough lady! The medical people failed you!

Really appreciate you sharing this. Your information has helped me tremendously, I also take a lot of pain medications on top of the medications I use for migraine. Your story has informed me to be more cautious of this. Thank you! I’m so sorry you had to go through the challenge of an uncaring doctor. Bless you and your family.

Thank you so much for sharing this story. I had the same experiences with excedrin migraine and Topiramate. And I too have layered meds to be able to function. I will make sure I’m more careful from here on.

Thanks to Carl for getting the Migraine World Summit off of the ground and to Paula for joining in and helping to take the battle against migraine to another level❣