MIGRAINE CONFUSION / BRAIN FOG QUOTES: 5 of my Favorite Surprising Moments from During Migraines
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- čas přidán 21. 05. 2020
- Weird migraine symptoms! Migraine confusion can lead to shocking moments during migraines. These are some of the most surprising things I've ever said during migraine brain fog. These are real migraine stories from times I was having acute confusion during migraines.
The truth about migraine is it's so much more than a headache! There are so many strange migraine symptoms and this video only touches on some of my migraine confusion examples. I hope you enjoy hearing about some of my weirdest migraine moments! =D
I aim to spread awareness of the reality of living with chronic migraine disease by sharing my honest migraine stories. I have vestibular migraine and complex migraine with basilar aura or brainstem aura.
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MIGRAINE AURA VIDEOS:
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I've got another one!! During a migraine I said "I brushed my teeth with both hands because I couldn't remember which one." Do you have a funny migraine story?? 👇 Drop it below!!
It sounds like you are in a partial sleep state during a migraine? Like that state between sleeping and awake...really interesting!
I forgot how to use my silverware during Thanksgiving dinner with a vestibular migraine. I was trying to cut with my fork and stab my food with my knife. 🤣
My most memorable migraine quote, I wanted the curtains closed because the moon was too bright but couldn’t figure out how to say that or remember the word for moon so I said “can you turn off the (pause) night sun...?”
Once being light-sensitive I was in the dark bathroom my GF turned on the light to check on me and I told her to turn off the sun.
Okay had to work with a migraine tonight, which sucked, but it did lead to a funny quote on my way home. I had to fill my car and had to keep reminding myself of it so what came out of my mouth. "I have to remember to get marshmallows so my car doesn't run out."🤔🤣 Even Migraine Jim knew the sentence was wrong, but couldn't say the proper word. So from now on cars run on marshmallows and you can thank Migraine Jim for that lol.
I have also forgotten my husband, I was terrified and I could see the terror in his eyes too, my empathic side asked if he was okay, he started to tear and I felt so terrible to have said something that hurt him. Now, my biggest fear is forgetting him...again.
So if I felt disoriented it’s okay
Me asking my husband to get the shower stool: “I need the small chair you can’t lean back on, the one you can wash.” Also migraine me thinks putting something away means putting it in the fridge, regardless of what it is. Finished brushing my teeth? Better go put the toothbrush and toothpaste in the fridge. I tried to empty the dishwasher into the fridge once, got the plates all stacked on a shelf, went to put the silverware in the snack drawer, and got stymied by the lack of a silverware divider in the snack drawer.
It’s true. Silverware is hard.
I once asked for the 'bread kettle' because I couldn't remember the word for toaster.
My husband and I once lived in an apartment once where the A/C unit was right by the door and my very tall husband always hit his head coming in the house. For the longest time when I'd have a migraine and it was warm, I'd ask for him to turn on the head banger.
I usually just reverse my words. "I want to go to bed but there are cats in my sleep." My son knew exactly what I meant: the bed had five of our 10 cats on it and I had no idea how to move them. So apparently I just stood and watched them until I couldn't stay awake anymore and went for help. My son then rearranged the felines and I went to bed. I also forget words. Eggs are "things that come from chickens." I'm just happy I remembered the word chickens.
I also told my mother that my car took his son to the vet. I had just taken one of the said cats to the vet the day before and my son had gone to the auto mechanic the same day. My mother laughed, which made me cry. She wasn't being mean spirited but Migraine Carol has no sense of humor. I did ask them the other day if I had nystagmus and I was told no. Previously they'd just backed away from me quietly and quickly, and removed sharp objects from my reach. But that day they willingly watched my eyes, albeit from a safe distance. I guess they treat me like a feral cat when I have a migraine.
Ages ago my son was being loud - probably being normally loud for a teenager but it sounded like he was having a full-on rock concert in the next room. I stormed in and said, "What are you doing?" To which he said, "Nothing." To which I said, "Well, do nothing more quietly." And then stomped back to my room.
Small pants, I love it. Your hubby sounds like my gem of a husband
Hilarious, huh =P The phrase is still a common one in our house. What a blessing to have such understanding loved ones!
@@MommingwithMigraine How did he keep a straight face...or did he? I would've burst out laughing.
Yes!!! The confusion is so real! One time I was trying to make dinner with a vestibular migraine, figured spaghetti with store bought sauce would be easy. Got the noodles and jar of sauce out of the cupboard, set them on the counter. I just stared at them not knowing how to make them hot or edible. Eventually I just ended up slumped over the counter sobbing.
I find it was FASCINATING that you recognized your husband as a safe person from the wedding. Like I am seeing it from the positive spin but that is amazing!
A few years ago on our anniversary, we had gone to a nice restaurant. When we were leaving, I was in the passenger seat and feeling very anxious and impatient (why? I have no idea). My husband was driving and pulled up behind a car that was at the parking lot exit. Obviously, the car had to wait for traffic to ease so that it could exit and merge. Also obviously, we could not go anywhere until the car in front was gone. Suddenly, I burst out, "I knew I should have driven" because of my impatience. Somehow I thought that if I was driving then we would already be out of the parking lot. He turned and said, "Why is that?" I said, "Oops, did I say that out loud?" We laugh about it now, but I was horrified when we got home and I got my wits back.
I frequently say thoughts out loud and then have to ask if I really said that. I made a comment once about a woman walking on the sidewalk while my son and I were out in the car. It was only the horrified look on his face that made me realize I'd said the thought I had out loud. And I really would never have felt or thought that particular way about the woman. It was really a horrible thing to say and I felt terrible. It was totally out of character for me, nothing I'd even think without having a migraine.
My funny migraine moments that I recall are usually finding my keys in random places because migraine Sam seems to like to create scavenger hunts for me. This has resulted in me finding my keys in the pantry, in my wardrobe, in the bathroom and even in the fridge a few times!
My dad (Migraine Ken) put his phone in the Cheez-It box one time while in the throws of a migraine hahahahaha!
you can get key locator buzzers, you push the button, then the thing on the keys makes sound. Highly recomend, one spoonie to another. I have yet to actually get them, but its on the list
I have migraines and I also get a lot of somnambulism. When I sleep from a migraine and get somnambulism it's the worst. This one time migraine-asleep Dalia though it was life or death keeping my cellphone at a safe place and I just remember 3 am me looking on drawers so I could keep it safe. Till this day I have not found it nor I have the slightest idea where it is or why in the hell I wanted to hide it so bad, it's so good it was just an old cheap extra phone I had for use of my second sim card but wtf was I even thinking
@@susanwilliams2392 I actually bought them but have yet to put them on my keys. Now I lost them and can't put them on my keys...
I had my first migraine when I was 10. I was out for pizza with my family, and didn't quite understand what it was at the time. Ten year old me was *starving* . I kept eating, then getting up to go puke because.... Migraine. We finally headed home when the symptoms got too bad. Over stimulated, dizzy, and puking. We thought I had a stomach bug. Looking back, it's funny, but I was so sick.
Thanks for sharing #1, I forgot my children once. Afterwards I emotionally beat myself up, like what kind of mother forgets her children. But you make me feel more normal. Like I am not that weird. Thanks again for your videos.
I was working as a cashier and during a migraine had aphasia. I was saying the right words in the opposite order. I sounded like Yoda.
With my migraines I end up forgetting where I am. Like if I'm in the ER I'll forget why. And the doctor will come in and touch me (who I have probably seen 3 times by now) and I get really confused and be like "What? Who are you now?" The car is the worst. I'll just be sitting there, no idea where I am or where I'm going. I think my brain is looking out the window and trying to recognize something, but because we are moving.... I just can't figure it out.
I live with someone with Dementia and it's like he's Migraine Jen all the time. He always tries to take the seatbelt inside with us and says nonsensical things and forgets things. One time he just started laughing and said "Now THATS gonna hurt" out of nowhere 🤣
One of my migraine stories involves my sister who also gets migraines. It was nighttime and settling down for bed, our Corgi stats barking at the patio door. Fearing that someone was there, I carefully checked and was so relieved that I said to my sister, "it's okay, there's a goat in the tree." We live in the city. She ask "goat". I said " yes, a goat". " A goat in the tree?" I insisted it was a goat. She realized migraine me had crossed wires so she kept questioning goat. This went on until I could see from her face that something wasn't right. Finally it clicked. "It's a squirrel in the tree!"
The main thing I get a kick out of during my migraines is I tend to swap the first couple of letters of two words in sentences. So say instead of birds chirping it comes out churds burping. My coworkers now know when I have a migraine, but they do find the letter swap hilarious too. Everything you are describing with number 3 and bonus number 3 is brain fog at its finest it's a complete disconnect between emotional and logical centers and is actually quite common in migraines partly because , and they don't tell you this, there's a lot of neuron misfires in the brain during a migraine hence the reason some anti-seizure medications work so well with some migraines. Glad you can share though and let people know they are not alone in this confusion.
The letter swapping is one of my first cues.
But I have migraines and seizures. I totally get it.
Migraine is certainly way more than a headache....it's a brain attack. It's all the symptoms of a stroke...and exhausting ☹️
I have suffered with this for years and I thought I was the only one! So many weird unusual things, thoughts and feelings. When I have migraines, I cannot read most of the time and I do some pretty weird stuff.
First of all I want to thank you for sharing your experiences. I've suffered from migraines since puberty but never had the level of symptoms as you do. Bless you for sharing and dealing with this disability like a champ.
You're so welcome. Thanks for stopping in 😊
@@MommingwithMigraine so if I felt disoriented is that okay
“I get dumb sometimes.”
Lol we all do. ❤️
I’m crying pretty hard after the last one. The other stories are kind of light hearted and funny even though it’s horrible when it’s happening it’s nice to look back and laugh but dang it is a horrifying illness to have to deal with and it is also scary for loved ones. I used to call my boyfriend during attacks when we were still together and once I was walking him through what was going on and I had fallen on the ground because my legs gave out and I heard him pause on the phone and he was crying because he was so worried about me.. that was the first time I had heard him cry at that time and it was absolutely heartbreaking.
When my housemates migraines kick in and she forgets the words for stuff she uses other words to try and make us understand what she means. My favourites are she forgot the word for BBQ and said it was "when you tried to iron the steaks from the under side" and also when she forgot the word for "reflection" she said it is the mirror picture.. I've gotten really good over the years being able to understand what she means and it makes it easier to play card and board games where you have to describe things without using the real word
Those are hilarious examples!! Very frustrating to have the trouble in the moment though 😕
@@MommingwithMigraine it is very frustrating, but silver lining once you're on the other side of it we have these hilarious quotes which get laughs every time. Thankfully she no longer suffers from them as often! She has found Botox injections have reduced them from nearly every day to a couple of times a month. Thank you science!
So when I get migraines I quite often get some super dramatic mood swings but the mood I'm feeling isn't always the one I'm displaying. There's been a few times where I've been really confused and scared and I've just been sat laughing to myself and other times I've been really happy that my partner or housemate have brought me a drink and painkillers that I've cried. Often when that happens I'll quickly switch to the polar opposite without warning. And sometimes I'll just randomly laugh or cry for no real reason, just because my body interpreted the weird brain activity as a a cue to laugh/cry. Also often when I'm in pain with something like a migraine, particularly if there's a lot of different meds in my system or it's been triggered by my mental health, my sleep gets really disturbed and I tend to sleep talk. One time I woke up with my partner trying to stifle a laugh as he checked I was OK, apparently he'd woken up to me literally saying "boohoo boohoo" in a really upset voice whilst I was a sleep and flailing like a dramatic greiving Greek goddess in a renaissance painting. I was fine and I also found it funny the next day once I was actually able to process what had happened
Migraine Erica has considered myself wearing pants with only compression socks on too 😅😅 “small pants” verses “big pants” was so relatable!
Oh gosh... 😅😅
My mom told me to go put the clothes in the washer s ok I took the entire basket outside three them in the snow and threw the bottle of sope in the snow and rolled around and told my mom that imma washer (p.s. u was in shorts
How do you always smile with a migraine your so strong
Thank you 💜 Doing this migraine cycle over and over did take a long time for me to emotionally accept. It took conscious work. Now I smile a lot, but there are still hard days, too.
I've had two major brain surgeries and I'm dealing with a third mass on my neck that the Dr can't remove its painful.I thank lord for my fiance and my service dog that I'M training
When you live with chronic and unpredictable pain like migraine, you learn to do a shit ton of stuff because if you don't do it, it just won't get done. I'm a single woman without a partner - I want the bills to be paid, I went to work. Someone needs to walk the dog, I get the sunglasses, the hoodie, ice pack, and off we go just enough to pee or poo; nothing extra. Migraine robs me. Yet it's given me a unique window into the world of chronic pain.
There are so, so many for me 🙄. But the 2 that always come to mind for me & my family are:
2) Turning out of the parking lot into the roadway from a fast food restaurant, I told my Dad, " It's clear, nothing coming," referring to my side of the car. The road dead ended on that side, leading to an open field. In other words, traffic would only have been on my Dad's side. He thought I was joking until my own shock blurted out after what I said had sunk in. 🤦♀️ Since I had to move back in w/ them a decade ago, he's pretty much gotten used to my migraine scrambled brain...heard & seen the seriously malfunctioning robot zombie they turn me into. Thank God I gave up driving 5 years ago. If the stupid mistakes I made more & more (not to mention collapsing & having to be hauled by ambulance to the ER) weren't so dangerous...it would be a laugh.
1) A repair technician came to update our computer system & needed a temporary password. I gave him my son's name. This was on a please either let my head crack or make it stop hurting migraine day. I MISSPELLED MY CHILD'S NAME. The child that was almost old enough to drive. Being a mom, I forget tons of things from information overload. But my own child's name...never. Forget how to spell my own name (which I have often done during a migraine), but forgetting the name of the human I brought into the world & raised.. sounds ridiculous. My son's never let me forget it.
6:03 - this is why I don't drive when I have a migraine. If you can't figure out a chair there's no way I know I can figure out how a car works.
Driving + migraine is a BIG no.
On my way to a week long stay at an AirBnB with a few relatives and their families I made a stop to stock up on groceries for the week. Sent a text asking if anyone had any requests while I was at the store, and only got one reply asking for some Sprite. So of course I bought the Sprite... and completely forgot to buy all the other food that I'd gone to the store for in the first place.
I can't tell you how good it is to see someone sharing and talking about things that have caused me to doubt my sanity. Thanks for this video. I'll be working my way through your library over the next few weeks, and I'm already making notes about things you've mentioned that I want to talk to my doctor about.
I've had a few episodes of migraines over the years. Far,too many of them involve me vomiting all over a variety of people and/or electronic devices or other non-electronic devices. A sampling of people that have had their clothing soaked and things destroyed are a wide array of law enforcement officers (local police, sheriff deputies and state troopers), several nurses and a few doctors. Shit I've managed to destroy with vomit has been several tazers, radios and guns (law enforcement officers), computers and cell phones. And then on two other occasions in which I ended up having to go by ambulance because of the severity of the particular migraines I've caused the paramedics to not only need to change their clothes but also have to wash the ambulance down before they could become available again. And then one quite memorable migraine I've had was one that ended up getting diagnosed as being a remote migrainous stroke- yup, while I had no blood clot or bleed, the migraine ended up behaving like a stroke and I had to go through several months of physical therapy to regain function of my left arm and leg and I ultimately worked a third of my ass off in regaining that functionality back.
I cried once because I forgot what tp was called... I didn't need to know what it was called just needed to tear some off the roll to wipe. But I didn't know what it was called. Bless my husband for not laughing to hard at me at that moment while helping me.
Here is a funny one for you- I had just woken up after a migraine/in the middle of migraine and my husband was concerned about my sluggish speech. To make sure I was ok, he asked me who the current president was. After watching Hamilton the night before, I sensibly answered, “George Washington!” Then to his mounting concern I tried to recover and give the correct answer. My first answer seemed completely sensible at the time! 😆
More than quotes is an anecdote, when I started getting migraines, non-pain ones, the neurologist put me on preventive medication, one that it suppose to take out migraines for a couple of years if I took it for 3 months. Well the meds were actually worse than the migraine, I felt all day as a migraine, mind foggy, hard to speak, hard to think, light and sound sensitive. And when I have a bad migraine day it's easy for me to speak in english (second language) than in Spanish. Something about brain connections, curious thing. With those pills I didn't know if I was talking in one or the other, I mixed them constantly even in a sentence. I had my husband really confused (luckily he speaks english too or that would be a really bad situation). Now it only happens in really bad migraine days and I do notice that I have to change language to be more fluent. I also had what I call "typing dislexia" I'm typing and I change the order of the letters in a word... or the words in a sentence, pretty annoying considering that a big part of my work is made typing things, tutorials, manuals, emails... so I have to re-cheack several times before giving the ok to something I did. If an email is urgent I even get to send it to my husband so he can tell me if it is ok....
I knew your voice reminded me of someone else but I couldn't put my finger on it. Until 11:00. I immediately went "LESLIE MANN!" You look a little like her too.
I'd never heard of her before, but you're actually not the first to say it!
@@MommingwithMigraine She's in the 1997 movie George of the Jungle with Brendan Frasier.
If I could get this doorknob open it wouldn’t be so fuzzy outside. Yep. Said during the day while inside my closet that is 100 percent light proof.
The heart monitor, the sleep deprived EEG, the seven day EEG, MRI, MRA, CT scans (I’ve been scanned so many times since I was about fourteen that I literally could not come close to guessing the number) blah blah blah... nothing has helped with my Acute Confusional Migraine (I just deal with my “regular” migraine - it’s always on the right side, I have imitrex, verapamil, & emgality currently...have tried everything under the sun and use super super cold ice packs). So, I have had the regulator migraines I was four years old and I’m now 46. I began having Greater Occipital Neuralgia about ten years ago.
The Acute Confusional Migraines (ACM) began about two years ago and they feel like I’m stoned or stroking out or nodding out. I’m now having random twitching all the time and inability to recall or use higher level thinking at times, I still have my “regular” migraines 15-20 times a month, and last night I actually had an ACM that felt like I had “locked-in syndrome”. There is nothing funny or entertaining about my normal ice pick in my right temple migraines, my occipital neuralgia, or the ACM. I say and do crazy things with the ACM. It scares my kids and my husband to death. I feel like I can’t BE ME anymore because we never know when this will happen. I do in-home daycare and, as they have started happening so much more frequently and with worse symptoms, I don’t know what will happen when my husband has to start working in the office again (he’s been working from home due to Covid since March). I was a stay at home mom for quite a few years doing all the kid stuff and volunteering with some very part-time jobs. I didn’t make enough to now qualify for disability. I feel like I’m in a living nightmare.
Stacie, I could not scroll past. I like to touch and 2020 is no touching, so sometimes I tell people "Just pretend I'm hugging you."
Stacie, Just pretend I'm hugging you.
Best from Michigan / U.S.
It sounds like you have a good enough case to push for disablity even without enough credits. You'll likely need to look up a disablity lawyer and it may take a while but you should be able to get disability.
Your husband is great. The last one is kind of relatable to me even though I do not have migraines. I was asleep when one of my parents told me that one of my grandparents has passed away on two separate occasions and when I woke up I had no clue why everyone was sad. I'm not sure why I was asleep the time my grandma died but I did a nightshift when my grandfather died so I was fast asleep. To end on a light note I did an asleep phonecall once my boyfriend at the time called I did not know who he was and that I had a boyfriend he was cool about it.
Your husband sounds amazing. When I get migraines I only tend to stutter or mix up my words. I can't even imagine what it must have felt like to forget about your husband... Or how he must have felt. I guess you guys are just made for eachother if you can get through stuff like that. Wishing you all the best ♥️
Just found your channel and love it! Chronic daily migraine (semi controlled) and fibro here.
I might have been known to cry when I couldn't find my PJ's 😂
You are adorable. I’m old enough to be yer gramma so I can say that. Also thanks for posting because my migraines have taken an ugly fit in the last couple of years. What used to be visual aura, no pain is now can’t talk can’t walk confused migraine🤷🏽♀️. It helps to hear what others are experiencing. Oh, I also have POTS I’m 80 and the aura only started at 41. Love the sense of humor-it’s the way I cope too🤓🤓🤓
You have made me laugh remembering the times I have done similar stuff
That's the goal 😝 What's one of the funniest things you've said??
@@MommingwithMigraine I couldn't remember how to say blackberries and I tried to explain my mom what I wanted her to get me from the store by telling her which animals eat them in the wild
This is so relatable . I cried, I've been there.
When I'm having a migraine the thing that happens to me the most is swapping around letters in a word. Words come out they just take a minute and they don't come out right and I won't realize it until it's already out of my mouth. For example my name is Seven and it might come out as Vesen or Svenen. So embarrassing to not even be able to say my own name correctly. Thankfully it usually happens with words I don't use as commonly and have to think a little harder about to get out. My partner and I often talk politics, news, etc. and that's the hardest when I'm having a migraine because so many of my words just get jumbled. The other thing people sometimes catch me doing is biting one of my hands. I think it's only happened once or twice where someone's seen me doing it and asked what I was doing. I got into this habit when I was a kid, usually my auras make me struggle with vision but sometimes that passes quickly or is skipped entirely and instead one of my hands or part of my face will go numb, and if I couldn't tell if I was having an aura I would bite my hands really hard, right at the base of my thumb. If I looked down and saw tooth marks but didn't feel anything that was a surefire way to know I needed to call mom to come get me. Now after living with it for so long (Migraine Seven is more than old enough to vote!) I usually don't need to do that anymore but out of habit sometimes I still bite my hand during an aura.
I was leaving the emergency dept after receiving an injection for a week long migraine. I stopped in the parking lot and said, " Ohhh the street lights look so cool. When did they put triangles around them?"" The combination of Toradol, Gravol and Buscopan and a week of pain and vomitting did indeed take a toll.
it's funny how much I relate to you based on a completely different set of conditions. I have DID and one of our alters was heavily dissociating and they didn't recognize or feel comfortable verbally talking to my wife, at all. This was probably only a few months ago, my wife and I have been together since we were 17 and I'm now 25. Even though it absolutely makes sense and everyone who wasn't me in that moment understood what was happening, I was also still afraid that it would hurt or scare her and it definitely did scare other people close to me in that moment.
You make me feel so inspired. Inspired to share my story. From having migraines since before I could talk, to having stage 3a Hodgkin’s Lymphoma at 16/17yrs old(lymphoma cancer) prescription drug addiction from being given narcotics without even knowing for the first two months what I was taking, my parents just gave me a little medicine cup with my pills in it every day. There was like 12-15 different medications 3 times a day! It wasn’t until my boyfriend at the time saw my discharge papers and saw what medications I was on and the abuse started from there....mental, physical, verbal, every single way you could abuse someone, he went the extent. From 17-19 was very rocking times that I don’t remember too much of now. It was a super traumatic time. At 19-20 I got sober off narcotics for the time cold turkey but turned to alcohol. After a year a constant drinking my boyfriend at that time started taking narcotics for a broke hand and his life then took the same downhill battle with addiction. We both got sober again for a couple years. We got pregnant and had a daughter....after having her post pardum depression hit, along with several other health issues with me. I’m almost 30 and 4 years sober as of November. 1 yr and 4 months of being a single mother! Finally out of abusive traps and can focus on my own health and recovery! The migraine days suck so badly being alone with my daughter. But since she’s almost 6, she’s able to know when I have a migraine and what the means and what that means for her and her day. She knows how to get herself certain foods and make certain foods like a sandwich or bowl of cereal. I always keep a little one liter of milk for her to make cereal with so it’s not too heavy. Also after I had my daughter my teeth all went to hell. They were getting bad before I had her and went all downhill afterwards. The radiation I had to my neck was too much for my teeth And they were rotting from the inside of the tooth to the outside. They looked fine from the outside but were completely rotted on the inside. I’m not exactly sure why radiation does this but the internet has info on it. I ended up having to have surgery and get all my teeth extracted because I had an infection in my head for over a year and it was almost to my brain. And if it got to my brain it was kill me daily quickly. My migraines got MUCH worse when there was infection in my head. They are still just as terrible now they the surgery is complete. I actually have a migraine as i’m writing this. I’ve already taken a tripton but not sure about relief today. Being in treatment and dealing with chronic pain and migraines is so debilitating at times. I’m in a MAT treatment clinic that deals with pain management patients as well, i’m both of those patients. But it’s sucks when I have a migraine and then throw up my medication right away. And it happens more often than it should. I honestly don’t think nobody’s migraines are the same, just like no two migraines are ever the same either. They’re all different, and they all have different symptoms every time. It’s frustrating having so many goals for myself but they all take twice as long as they should. Or having so many aspirations but doubting myself to the point that it never happens. Or my migraines causing me to have even worse procrastinations....”I’ll do it when my head feels better” “I’ll do it when I can actually open my eyes” etc etc. The look and tone of people when I tell them I missed something because I had a migraine is so disrespectful I can’t even handle it!! Just makes me think, those people have NEVER had a migraine!!! And I agree with what you said in one video that said topamax is dopamax!!!! AGREE 100%!!!! If I would of know what it was going to do to me before I took it, I never would I’d taken it!! I lost friendships and work because of how bad that medication changed my personality, and I couldn’t see it, only they could. Then I went through and figured out the ONLY changes I had during that time and it was the topiramate (topamax). So I stopped taking the crap. Went through two weeks of withdrawal, my legs were so swollen for two months they were popping the little veins in the legs, it was so bad. But I pushed through it, and got hit on Halloween on the way to my dads two hours away while driving with a crazy fricking migraine. I ended up not being able to take my daughter trick or treating which was fine because covid, but I was throwing up constantly, everything was dizzy I was white, almost needed to go to the ER, but I made it through 4 DAYS LATER!!!! I had to have my dad drive me and vehicle 2 hrs back home, and then have my sister drive him back home 2 hours. After 4-5 days of a nonstop throwing up migraine with hardly any relief I finally got relief from my swollen legs. Had so many tests done for my swollen legs and got no answers. I have DVTs and have to wear compression socks also. But I didn’t have a clot and didn’t have a pulmonary embolism. But after that migraine and being in bed off my legs for days, I finally got relief. I thank my daughter for being such a good girl. My house was covered in all her stuffed animals and other toys lol. It was a long week y’all! But I will never take topamax again! And I don’t recommend it to anyone!!!!
Happy 4 Year WeddingAnniversary!!! You look gorgeous! Such a beautiful dress 😍😍😍 Thanks for sharing your top 5. Josh’s favorite quote of mind is “Brain words hard. Your husband rocks! Bravo 👍🏻👍🏻👍🏻👍🏻 Wow, #1 is heartbreaking 🥺 I’m so sorry, Jen. I’m glad you have one another! 💞
Happy belated anniversary to you as well, I can't believe we got married only 2 weeks apart! We are both so lucky to have our loves. That's a hilarious quote... you were definitely speaking the truth! 🤣
Omg love this video. Small pants and big pants. Number 1 is so sad. You poor thing. Your husband is so sweet. Congrats on your anniversary
My mom is no longer with us... but i remember as a kid she would migraines associated with lights and movement. And I couldnt understand why she couldnt function. I would think, "take advil and move on". Not like in a rude or mean way, but like I had bad headaches before, so I didnt understand why she couldnt think and reverted to a child version almost. Your channel has brought back a lot of memories for me, and new understanding. So thank you
My most memorable migraine quote was during a motor/sensory aura phase; I couldn't feel my hands/arms. I couldn't think of the words that my "hands went to sleep" so I said that "my arms went to bed"
I also tried to put milk back but instead of putting it in the refrigerator, I put it in the cupboard
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Be at ease, Jen. I would be completely shocked if your husband felt any heart-pain whatsoever when you forgot him. He knows the reason, and he knows that when you recover from the worst of a migraine, you'll return to him, faculties and memory intact.
Which isn't to say he feels nothing when you're hurting like that. But it's your hurt, not his, that is on his mind.
How do I know that? I know that because he's there for you. He's a trooper. You snagged a good'un.
I once had a migraine attack with short-term memory loss and confusion. I had just showered and when I just had put my clotes back on, I told my mom that I was going to get a shower. She answered: "No Nils, you just have been in de shower." So I left the bathroom. One minute later I once again told my mom that I was going to get a shower, she of course again replied with: "No, you just have been in the shower." So I again left the bathroom. 2 minutes later, I had to go to the toilet and I again told my mom I was going to get a shower. So I started to undress myself and I threw my clothes into the "laundry basket". Then my mom saw me and said: "Nils, you just have showered, so you are not going to shower again." Then she noticed my clothes in the "laundry basket" and she started to laugh. I asked her what was wrong and then she told me that I didn't throw my clothes into the laundry basket, but into the toilet...
A couple months ago I was getting dressed and I couldn't find one of my AFO's (ankle foot orthosis to keep my ankles and feet aligned) and was getting frustrated. I was like "Oh God Bless America I can't find my other AFO" to which my 12 year old niece slowly looks down and dies laughing saying "it's on your foot." I was like "oh. Thanks babe." She was like "well you can't feel it" (I'm a paraplegic and paralyzed from the waist down).
I Love your Hubby. What a sweetheart ❤️
I'm not sure if it's a migraine thing or a brain fog thing or what but I do and say a lot of strange things like putting dry pasta in the fridge, milk in the cupboard. One of the funny ones is I am a person that ALWAYS has a blanket with them and I was sitting on the couch with a blanket and I asked my dad "wheres my blanket" well obviously I had a blanket so he was confused so I said "I'm cold I want the blanket that does the warm" (my heated blanket ) luckily it got understood and I got my blanket! Or not knowing the name or the species of my dog when trying to ask my dad to take her outside (luckily when he didn't understand the fluffy thing she was close enough to touch her and say "this fluffy thing can you take it outside I cant get up" )
I have chronic vestibular migraines Jen and did not know for almost 2 decades. Ugh. I get light headed and brain fog...not quite as bad as yours, but I know the feeling. Can you talk about whether you get intense sleepiness? Also what your EEGs looked like. You said you were misdiagnosed with epilepsy or partial seizures? Did you have abnormal brain waves? Be thankful you can just be home in safety. You'll get through this. Maybe after baby things will improve? Thank you for sharing with us. It helps to know you're out there.
I have also not recognized my husband. That's heartbreaking to me. But he understands and is so amazing, caring and so supportive. I've said things like can you get a cold thing from that big white thing. Meaning get me an icepack from the freezer, lol. 😃
I don't get migraines but I do get other weird things (thanks dissociation) so sometimes I will just pause and if you look at me it looks like I'm trying to hold up the walls but I'm not that's how I don't break down into a ball of tears (whenever I start crying I wind up having a panic attack as a result) I would start crying becose nothing seems real
Your husband really seems like a amazing man. Thanks to him for being so supportive. It's really important.
Oh yeah. My rock 💜
I don’t get migraine, but I do have suspected POTS and some level of brain fog. I was washing my makeup brushes and I was rinsing off the bottle of the product I was using on them. I went to flip it around as I was drying it off and…it was flea shampoo for my cat. I had just washed some 2 dozen makeup brushes with cat soap! To my credit, the bottles are both of similar size, color, and product scent, and they have the same lid type. I decided to not attempt a rewash until I felt better the next day.
Another thing is directions, this happened to me a couple of times during a period of vertigo attacks, but in a lesser way during migraine attacks. I was feeling really dizzy, I was at work and my co-workers told me to go home. I was in no condition to go alone by public transport so they called me a taxi. I enter the taxi and at the moment of telling him the addres I blanked out, couldn't remember it, just remembered it was close to a certain metro station, so I told the driver to go to that place and that I'll give him the address shortly. During migraines I get confused I will stop in the street not knowing which direction I need to go, in an area that I go through ever day... In a big bad one I even had to call my husband and told him "I'm coming from the train station, I can see this shop, this restaurant, that thing, please come for me cause I don't know how to get home" I was like 3 blocks from home....
I am directionally dysfunctional (as I know alot of people are) so this may not really pertain to this but I know part of my directional dysfunction is being exacerbated by the neurological issues so I thought I would share this story. One time when I was a senior in high school I was in Agri trying to explain to the teacher how to get to my house and of course failing miserably. Luckily my friend Brian who I'd gone to school with my whole life was like "it's okay Ash you don't have to explain I got this" and he had to explain to the teacher how to get there. Embarrassing but he of course knew (somewhat) about my neurological issues and was so patient and understanding.
That is incredibly sweet, what a kind and attentive friend! My husband is Brian, they're pretty cool people 😎
@@MommingwithMigraine Yeah I have yet to meet an unsweet Brian ;) I lived in a really close knit community in high school and the people at my school (well most of them) were always pretty tight. I was always pretty quiet except for with a few close friends but when I did talk to people I would always try to be friendly and upbeat.
I once texted my friend to ask what a swingy swingy chop chop was. It was an axe.
Oh my 😳 🤣🤣🤣
I usually get slurred speech for about 20-30 minutes after the initial numbness feeling of an aura migraine… the last time it happened, my husband got super freaked out because he never has seen me go through it, and he also had experienced a friend have a massive stroke in his mid 30s ( same age as me )… anyways… he called 911 because I literally couldn’t articulate anything… but towards the end of this 20-30 minute “slurred speech” session I grabbed the phone from him and wanted to speak to the 911 dispatcher…but I just ended up saying random numbers to the dispatcher…
I thought it was so funny and once the ambulance got to our house I just wanted to laugh … at least until the actual pain started to kick in 😅
I used to live with another migraineur and while she was having a migraine and her best friend came over (not a migraineur) and she was asking me to put the kitchen item (can't remember exactly what it was) she was holding "in the uppy downy thingy" and I said "sure" knowing exactly what she was referring to and her best friend was so confused how I knew what an "uppy downy thingy" was right away, but it was because I get migraines too, and she was referring to a jar.
Who is watching this video during their migraine?
I'm just happy I can write and read again.
I always get my words mixed up for some reason my favorite one to mix up is asking for a pickle when I really need a pencil (I hate pickles lol) I also like to sleep walk when I have a migraine (mine last for days which sucks so bad!) I have been found outside, in the bathtub, making a 40 egg omelet, and calling and petting imaginary puppies lol. I'm a mess!
I was teaching and I kept calling my students by the wrong name and my speech was slurring 🤣 my students were "ok cool" when it happended once, then twice, but by the twelfth time I had to explain that I was having a migraine because I was afraid they thought I was drunk kkkk
I was on a date a few years ago before I really figured out my chronic headaches and migraine attacks, and I was at a coffee shop and turned to him and said "I can't use the coupon because I took the phone off the app. .... What did I say? .... Oh, yeah. that's what happens with my migraine." LOL they (my date and the cashier) were confused but nice about the whole exchange.
Once I was in the middle of the worst migrane of my life, not only did I forget how to read the sign in front of me (which said "emergency", I knew what word was there but I couldn't get myself to read it), also, I wasn't clear what my name was. I asked my dad, who was with me at the time, what is my name? My poor dad, having only seen me on a couple way less serious migrane attacks before, started crying and reassuring what I said was my name
I had a bad migraine one afternoon and was light sensitive but not sound sensitive, a rarity for me but I was deciding to lay down for a nap because it was midday and the sun was too much for me.
Migraine Skye: Hey Google, turn the rain on. (I play thunderstorm sounds to sleep better. The proper google command to do this is Play Thunderstorm Sounds but my migraine having state didn't remember.)
Google told me she didn't understand and I apparently just started hysterically bawling, and my mom came in asking if the pain of the migraine had gotten to that point and if I needed a cold towel, water, my meds, help to the shower, anything she could think of.
Migraine Skye turned the water works on max and told my mom google was mad at me and wouldn't turn the rain on so I could sleep. My mom, bless her heart, was trying not to laugh at me and she used the proper command to make the thunderstorm sounds start and I apparently shut right up and curled up under my blanket like nothing occurred.
Wow do sorry that happens to you. Migraines hit me at age 6 and at 45...have only Been mean to family or friends friends. But, never said weird things. But, you bet your small pants, I am going to investigate when I get one again.
Apparently last night (was 4th or 5th day of a migraine) I asked for something to drink (I had already tooken my night medicines, one of which makes me SUPER LOOPY which only adds onto the silliness of Migraine Me), said I was dizzy and didnt want to move, but wanted to be in my bed. Mom handed me the big 2 liter of mnt dew with the last bit in it.
Apparently I hugged the bottle like a toddler and sat on the floor with it, but couldn't figure out how to open it.
Migraine me has said and done many silly things but this one: had set a 5 minute timer, it went off and I said when did I set this timer...5 minutes ago B, you did 5 minutes ago and of course I forgot why I needed the timer as well.
Yes!! Happens to me too😢
thumbs up for the hubby
I didn't even have a migrane at this time so I have no excuse, but I once put raw chicken away in the pantry. Didn't find it till the next day when I went to go get bread from the pantry.
It’s fascinating to me how similar “migraine Jen’s greatest hits” are to my sleepwalking stories. I was a terrible sleepwalker as a child, mostly outgrew them, and now I get aura based migraines...I wonder if there’s any connection...🤔 (deep dives into google)
I don't get confused with migraines - I just need to sleep and/or vomit. I've found that peppermint oil on my forehead and neck helps me to remain functional. My kids have the funny quote - when they smell peppermint they ask "do you have candy or a migraine?"
I know this is an older video, but I remember onetime having a migraine and looking at my partner and saying "Can you hand me the hospital sticks" because I could not remember that they were called crutches.
My cousin called them arm stilts lol
I dont know if ive even not recognized a person, maybe i have but i dont remember most of my migraines that bad i have done it with places. Actually i think a few times i didnt recognize my mom as a kid.
my boyfriend when half asleep is great. i was looking at my phone and he wakes up and goes "...hey, you know what you are looking at?............ Flux Dust" then passed back out XD ill never let him live it down
I got a migraine at work. It was so bad I had to leave but my drive home was about a half an hour. Unfortunately that was the day I had to drive my husband’s car to work. It was a manual transmission which I was capable of driving but not comfortable. Halfway home an overpowering wave of nausea hit and the only thing available to vomit in was an empty Wendy’s bag. So I’m driving down the road puking in a Wendy’s bag because there was no time to pull over. And shifting gears. So it has been a family joke since then that we know what a Wendy’s bag is capable of holding! Sorry to be gross. Hope you LOL!
I’d tell you what I said was funny but I can’t remember it right now 😝
Your husband is awesome! He doesn't by chance have an Australian cousin you could set me up with does he? Zombie Callie sounds a lot like migraine Jen, zombie callie can be the result of migraine, insomnia or a combination of both.
You amazing husband
one night i started tapping stomach crying saying "my tum tum feel funny", my boyfriend asked "in what way?", i replyed back with " the wumble". funny but kinda embarrassing.
That's like Migraine Jen when the baby wiggles 😂 I appreciate you sharing, I love it!
@@MommingwithMigraine if I get confused as to why my stomach is rumbling, I can't imagine how migraine Jen feels with a wiggly baby in the oven 😂. Thank you for being such a strong and brave voice in showing the reality what it's like having migraines ❤💜.
I know it must have felt horrible for your husband that you didn’t recognise exactly who he was in a really bad moment.
But he should also take solace that somewhere inside, you knew he was to be trusted, and that he would keep you safe in your time of need, even though you didn’t know who he was right then ❤
Ohhhh I love that. The trust in him is instinct 😭
@@MommingwithMigraine just the way you talk about him and the little bits of him in your videos shows how much of a great person he is and how much he loves and cares for you and the same from you to him ❤️
I slur my speech and words always come out wrong when I have migraines. Also I can’t really remember any specific funny things I’ve said, partially cuz migraines and I’m dory even when I don’t have a migraine but yeah. I know I say inappropriate things instead of normal words but I can’t remember for the life of me 🤦♀️🤣
I don't have a migraine story but I do have a story that pertains to neurological issues. But a little backstory first. I had a septic gallbladder attack and slipped into a coma for 9 days (that lead to something called metabolic encephalopathy which is a pretty severe neurological condition) and was on a ventilator for 11 so of course I wasn't able to have any food or drink orally. Well the day I they took me off the vent my mama was talking to me and was like "I think I'm gonna go get me a banana." I love bananas so of course I wanted one (I still wasn't able to have anything orally because I had failed my swallow study) and was like "bring me a banana and a Big Mac (which I've never eaten in my life) and mom was like "you wouldn't be able to eat it honey I'm sorry" and so I was like (really adamantly and frustratingly) "yes I can you have to puree it and put it in my NG tube! I've seen it done many times at the center!" (adult development center that I went to years ago) Anyways at this point my mom was trying (successfully) to keep a straight face and was like "well why do you want a Big Mac" to which I replied "because it's big and I'm hangry!" My dad told me later that she almost fell in the floor laughing. But that was when they really knew that I was gonna be okay because my stubborn streak was back (and because I was rolling my eyes like "duh mom you should know this you used to make our baby food homemade")
Great husband I have one too!!!
I think I might just have to start calling undies small pants 😂. Probably my worst migraine story was when I was 14ish. My friend was spending the night and I woke up around 4 in the morning to go pee. Well it was also the first time I’ve went blind from a migraine and of corse was freaking out. It freaked her out and I was just yelling get my mom. So my mom comes in there and I’m like mom I can’t see. She was like oh that will happen with migraines. Like honey I’ve been having migraines since I was 6 and you’re just now telling me that you can go blind from them. 😂 then came to realize she had told me several times. Pots is genetic in my family and we get migraines from pots. So my nana and my mom and my aunt all have symptoms. But yeah. I defiantly like the small pants story better 😂
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is it possible that you can talk more about your amazing dog whom help you lot??
Totally! Check out my "Service Dog" playlist =)
@@MommingwithMigraine thank you for understanding. I am not saying that your disabilities/issues aren't important. everyone have issues that they have to deal with, it's just that it's amazing how your train dog can care/detect your disabilities well
Not something said but I was trying to catch my bunny who had escaped her outside pen and walked into a heavy wooden bird feeder - smacked me right across the eyes
Migraine nina saw it was there and knew she needed to not hit it but couldn't figure out how - so instead of stopping to figure it out, ducking, or leaning around it I just kept trucking on right smack into it • . •
I looked like I'd been in a fight for the next week from the knot on my head and bruising around my eyes
Thumbs up to your husband...