Video

Wow nice..👏👍

I have a question, my daughter have spina bifida occulta she is one month old , MRI showing tethered cord , neurosurgeon saying she need surgery I want to ask is it 100% safe to do this surgery. Or is there any risk ? Can she overcome this tethered cord without surgery?

FIRST WATCH INSIDE OUT N INSIDE OUT 2 INSIDE OUT (IS FOR ALL AGES KIDS N ADULTS) N INSIDE OUT 2 (IS NOT FOR KIDS IT’S FOR PRETEENS/TEENS/YOUNG ADULTS N ADULTS (THESE MOVIES R AWSOME FOR PEOPLE THAT HAVE MENTAL N/OR PHYSICAL DISABILITIES/N/OR EMOTIONAL DISABILITES TOO N THIS MOVIE IS ALSO AWSOME FOR NON DISABILITY PEOPLE TOO

My new born daughter have spina bifida occulta we did MRI now we are going to consult with neurosurgeon, she had a hole in her back when she was born...

Does it mean that Laceys healing now ...being able to walk etc will not be permanent

I’m 42 and living with MMC. I’m still going strong with very few, if any, issues.

Does spinabifida effect the growth of the penis

FIRST I’VE HEARD OF A GAIT WAIST TRAINER OR A GAIT BELT N BTW WHAT MANUAL WHEELCHAIR BACK SHOULD U BE USING IF U R AN ADULT?

FIRST OMG 😳 ENGLISH PLEASE? I THOUGHT THAT U COULDN’T SPEAK SPANISH?

Can you tell me who the speaker in this video is?

HERE IN USA 🇺🇸 WE CALL THEM HOIER LIFTS ALSO IN USA THERE IS ANOTHER WHEELCHAIR COMPANY CALLED NU MOTION FOR ME NU MOTION TOLD ME THAT I SHOULD BE IN A MANUAL WHEELCHAIR CAUSE THEY WANT ME TO ROLL N GET EXERCISE N DAILY LIVING WHEN I WAS A CHILD N NOW AS AN ADULT) THERE’S A FAMOUS HERE IN USA SAYING IF U DON’T USE IT U LOSE IT

FIRST FOR THE LAST QUESTION THE ANSWER IS YES THE DOCTOR'S WANTED ME TO HAVE BOTH SURGERIE'S AT AGE 3 BUT MY MOM THOUGHT THAT THAT WAS TOO YOUNG N BY AGE 3 I HAD ALREADY HAD SOOOOO..... MANY SERGERIES ALREADY N SO I HAD THEM BOTH TIME AT AGE 9 I AM NOW 34 YEARS OLD

Way to go, Maranda!

FIRST WHEN IS THE WALK ~N~ ROLL IN GEORIA? (THE STATE)

I'm 72 years old I aged out of spina bifida clinics more than 50 years ago where is the help for adults with spina bifida

FIRST THE EXECUTIVE DYSFUNCTIONING IS NOT ONLY IN CHILDREN WITH SB THE EXECUTIVE FUNCTIONING IS IN SPINA BIFIDA ADULT'S LIKE ME ALSO I AM A 34 YEAR OLD ADULT

FIRST HAVE ANY OF U SB AWORRIERS HEARD OF A CHAT CATHATER N HAVE A STOMA IN YOUR APENDIX TO N PUMP WORM WATER INTO THE CHAT CATHETER USEING A SYRINGE?

I feel the a.d.a doesn't exist

Salom bu kasallikda bõy õsmay qolishi mumkinmi meni qizimga SBO VS1 vaVS4 tashxisi qõyilgan oyoģi oģrib ôzi 5 dan oshsa ham 3 yoshga õxshab qolgan

Hi do people with SBO normally have severe weight problems later on In life or does It depend on how active you are?

j' avais, mon enfant qui avait la spina bifîda melongosel sacé majeur

Sir Can the hairs on the lower lumber region be removed parmanently for lifetime?

Thank you for this <3

disappointed that the conferences are gone, first conference I attended was in 2011? in Washington DC (Alexandria, VA) and I loved it because it was the only place I found people with Spina Bifida close to my age (40s), I attended the conferences several times. I went to different chapters and all I found were babies and teens, too young to make friends. I made lots of friends from all over the USA and Canada at the conference but over the years we lost touch. Currently I don't know any adults with Spina Bifida close to my age (58).

U all will see me in November of this year 2024 HAPPY 50th BIRTHDAY 🎂 🥳 🎉 🎈 🎁 🎊 TO ALL OF MY SB WORRIOR'S N FAMILIES WORLDWIDE

I think this was wonderful !

Any information for men?

THIS IS MY FAVORITE (OUT OF 2) SPINA BIFIDA TALKS SO FAR CAUSE A FRIEND OF MINE (WHO ALSO HAS SPINA BIFIDA (THAT WAS NOT A FRIEND WITH AFTER BEING FRIEND'S ALL THROUGHOUT HIGH SCHOOL CAUSE OF THIS VERY THING (TOPIC) WERE BACK TO BE FRIEND'S AGAIN CAUSE SHE FINALLY UNDERSTANDS

Hello dear doctor I am a patient of myelomeningocele spina bifida and have undergone surgery twice for lumbar abscess but I have erectile problem plz tell me what to do

My challenge with having spina bifida as well as a shunt and diabetes AND a kidney transplant is that even though I'm only 54 years old, my memory is failing. Just when writing this question I had to check the date to remember how old I am. (It's December 25, 2023, by the way.)

Hi Juanita

Hello my daughter is Spina bifida my daughter both legs no moment please help me

I’m so thankful for this information as an adult w/ SB. I find it increasingly difficult to find resources and medical experts that deal with us as adults. It has always seemed like once you turn 18 w/ SB you are on your own. It’s good to know that’s getting better.

Thanks Mrs tebido. I very much appreciate this webinar.

Would love to know more about your association. My son has spina bifida

Abelisim is a control ingredient behavior. How can you control ablism

Hey my name is Malachi I’m a small town Artis I was born with spina bifida this video has helped me a lot I would love to sit down and talk to you guys.

Are people with spina bifida allowed to participate in 5his con conversation?

Thank you! ❤

I just got diagnosed with this is it anything to be concerned about

Hi Judy

I had some major cleaning to do at home and my sister came over to help me to stay focused on the task. It was annoying--but necessary.

I never thought ot spina bifida as a "head injury," but then I remembered hydrocephalus. See? I almost FORGOT they were related.

I found out today (at the age of 41) that I have spina bifida. I’ve come to this video as I’ve no idea what to do now. I’m in England

Shared with Shine Charity

This was very interesting. I had not heard of this before but I really don’t feel like this describes me very often (at least not anymore often than the typical adult without SB). I am a pretty organized person that likes to gets tasks done quickly and sticks to plans.

🤯

I'm 52 yrs. old and I have never heard of this. This is so me.

Exactly what Vaccines are they speaking about? If they are speaking on one in particular vax, I'm curious if they read the scientific documents? I think it is likely they may have been misinformed. Not to mention if you have already had the infection then what is the use of getting something that will prevent you from getting it? Besides those who have had Covi have much better immunity than those who get the shots. This information was documented in a congressional hearing among well known physicians and scientist. Are you saying they ALL testified under oath to tell the truth and lied? I know too many people who have had major reactions and they didn't have Spina Bifida, or Hydrocephalus.

It's so inspirational to hear these people speak the truth about their spina bifida. Spina bifida will always be so close to my heart after losing my boy.