Special Books by Special Kids
Special Books by Special Kids
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Living with one of the World's Rarest Syndromes (The Story of Sweet P)
P is diagnosed with a form of primordial dwarfism that only she is known to have. As a child, she loved to make silly sounds and play hide and seek with her friends. Now a teenager, P still enjoys the same activities but her same aged friends have moved on. P wants others to know that if you want to be her friend all you have to do is say "hi".
Support SBSK and help us continue making these videos at www.patreon.com/SBSK
zhlédnutí: 384 685

Video

Living in a Body that's Melting (A Rare Connective Tissue Disorder)
zhlédnutí 264KPřed dnem
Kayley is diagnosed with a rare connective tissue disorder known as Loeys-Dietz syndrome. This impacts every part of her body including the internal organs. People with Loeys-Dietz have a life expectancy of around 37 years old, and Kayley is a young adult in college. She has learned that it is okay to grieve a potentially shortened life, but Kayley is also dedicated to making the most of howeve...
An Autistic Kid with OCD Who Just Wants a Best Friend
zhlédnutí 174KPřed 14 dny
Olivia is an autistic kid with OCD who really wants a best friend. She sees other people becoming best friends and doesn't understand how they do it. Olivia's special interest is ophthalmology (the study of eyes) and she is confused why other children her age don't share the same passion for this topic. Olivia is hoping to make a best friend who enjoys discussing eyes. Support SBSK and help us ...
The Son of a Schizophrenic Mom Who Believed Her Hallucinations
zhlédnutí 317KPřed 21 dnem
Chris is the son of a schizophrenic mom who believed her hallucinations and delusions were real. When he was a child, she would constantly tell him things like "There are demons around you, feasting on your soul." Now an adult who is diagnosed with schizophrenia, Chris struggles with the same delusions that his mother once believed, but is in treatment and trying to live a fulfilling life. Chri...
The Story of Sunny (A Kid with Williams Syndrome)
zhlédnutí 214KPřed měsícem
Sunny is diagnosed with Williams syndrome, a condition that is known to create a friendly and happy demeanor. She loves to spend time with her family and wants to be friends with everyone she meets. Sunny wants others to know that, "You are the best!" and "Love is everything!" Support SBSK at www.patreon.com/SBSK
A Child Left to Die Because the Cure Wasn’t Profitable (And How You Can Help)
zhlédnutí 186KPřed měsícem
Max was born with TBCD, a rare genetic condition that leaves children with a life expectancy of about 5 years old. His family was told a cure was not possible because it is not profitable for pharmaceutical companies to cure a rare disability. Helena, Max’s mom, started asking for donations online to fund research that could potentially save Max’s life. This research has started and is looking ...
An Autistic Kid with a Genius IQ
zhlédnutí 1,5MPřed měsícem
Ana is an autistic kid with a genius IQ. She also has a physical disability known as arthrogryposis. At 8 years old, Ana wants to become an astrophysicist and study space. Many people tell her, "You are too smart to be autistic!" but Ana wants others to know that a person can be both highly intelligent and autistic. Support SBSK at www.patreon.com/SBSK Follow Ana's family at @AMCPrincessAna Ana...
An Autistic Woman who was Misdiagnosed and Wrongfully Medicated for a Decade
zhlédnutí 472KPřed měsícem
Kassondra is an autistic woman who was not diagnosed until adulthood. As a child, she was misdiagnosed as bipolar and wrongfully medicated for a decade. This caused her to become withdrawn and isolated. After receiving the proper diagnosis, Kassondra is now learning to love and accept her autistic self. Support SBSK at www.patreon.com/SBSK Kassondra's CZcams Channel: @kassi4837 A channel Kasson...
A Child with Rett Syndrome (Esther the "Quiet Queen")
zhlédnutí 230KPřed měsícem
Esther is diagnosed with Rett syndrome, a rare genetic disorder that impacts the brain. Her family refers to her as the "Quiet Queen" because she is nonspeaking yet still loves to be involved and included. Esther's family wants others to know that she is smart and can understand what you are saying. Support SBSK at www.patreon.com/SBSK Help Cure Rett syndrome at reverserett.org/ Esther's Family...
A Mom with Postpartum Depression
zhlédnutí 95KPřed 2 měsíci
Kerilyn is diagnosed with postpartum depression and anxiety. She feels guilty for experiencing a deep sadness after the birth of her daughter. Kerilyn tries to hide her feelings, but senses that others can see her struggles. Although she often feels invisible, Kerilyn wants others with postpartum depression to know they are not alone. Support SBSK at www.patreon.com/SBSK
The Story of Piper (The Only Known Case with her Rare Genetics)
zhlédnutí 1,1MPřed 2 měsíci
Piper is a nonspeaking child with two rare genetic conditions. She has learned to communicate by humming songs that are relevant to her mood. For example, when Piper is joyful she hums, "If You're Happy and You Know It". Piper's family wants others to know that her form of communication is valid. Support SBSK at www.patreon.com/SBSK
A Teenager with Dementia and his Loving Family
zhlédnutí 158KPřed 2 měsíci
Michael is diagnosed with a form of childhood dementia known as Hunter syndrome. He is progressively losing the ability to communicate as his health declines. His family is working to find new ways to connect with him, like through singing and dancing. Michael has already surpassed the life expectancy for Hunter syndrome, so he and his family are focused on enjoying every day they get together....
Two Autistic Teen Orphans (A Story of Resilience and Survival)
zhlédnutí 290KPřed 2 měsíci
Melina and Deimos are both autistic teen orphans and siblings. After surviving a traumatic childhood, they both were diagnosed with multiple mental health disorders. Melina says, "I haven't been living, but only surviving my whole life." She hopes that others will be nice instead of calling her weird. Support SBSK at www.patreon.com/SBSK Melina's IG: mothrelics Deimos' IG: instag...
The Tallest Kid in the World (A 10-Year-Old with Gigantism)
zhlédnutí 1,4MPřed 3 měsíci
Jase is diagnosed with gigantism and is the tallest kid in the world. At 10-years-old he is already 6'3". He loves to dominate in sports against his peers while standing tall above everyone else. Jase wants others to know that it is okay to embrace yourself exactly as you are. Support SBSK at www.patreon.com/SBSK
Brain Injured by a Kiss (The Danger of Kissing a Baby)
zhlédnutí 1,6MPřed 3 měsíci
Breelynn was born a healthy baby but was kissed by a person with a cold sore as an infant. Since her immune system was not developed, this infection attacked her brain and left her with a severe traumatic brain injury. Now 8 years old, Breelynn is unable to walk or talk and is not expected to live into adulthood. Breelynn's family wants others to know that there is real danger in kissing a baby...
An Autistic Marriage (A Unique Love Story)
zhlédnutí 619KPřed 3 měsíci
An Autistic Marriage (A Unique Love Story)
A Kid with Tourette's, OCD, and Anxiety
zhlédnutí 273KPřed 3 měsíci
A Kid with Tourette's, OCD, and Anxiety
Living with Trisomy 18 (An Extra 18th Chromosome)
zhlédnutí 131KPřed 4 měsíci
Living with Trisomy 18 (An Extra 18th Chromosome)
Who Wants to Interview in Southern USA?
zhlédnutí 35KPřed 4 měsíci
Who Wants to Interview in Southern USA?
A Child with Dementia and her Loving Sister
zhlédnutí 749KPřed 4 měsíci
A Child with Dementia and her Loving Sister
Best Friends with Down Syndrome
zhlédnutí 69KPřed 4 měsíci
Best Friends with Down Syndrome
Living with Spinal Muscular Atrophy (Type 1)
zhlédnutí 101KPřed 4 měsíci
Living with Spinal Muscular Atrophy (Type 1)
Living with Severe Brain Damage (Caused by Meningitis)
zhlédnutí 242KPřed 5 měsíci
Living with Severe Brain Damage (Caused by Meningitis)
Autistic Twins with High Support Needs
zhlédnutí 182KPřed 5 měsíci
Autistic Twins with High Support Needs
A Child Who Can't Speak or Blink (And How He Communicates Anyway)
zhlédnutí 322KPřed 6 měsíci
A Child Who Can't Speak or Blink (And How He Communicates Anyway)
A Disabled Artist who Communicates by Painting
zhlédnutí 317KPřed 6 měsíci
A Disabled Artist who Communicates by Painting
A Kid with 30% of a Brain (And How to Be Her Friend)
zhlédnutí 194KPřed 6 měsíci
A Kid with 30% of a Brain (And How to Be Her Friend)
Living with Relationship OCD
zhlédnutí 219KPřed 6 měsíci
Living with Relationship OCD
Braleigh's Syndrome (The Only Known Case Ever)
zhlédnutí 947KPřed 6 měsíci
Braleigh's Syndrome (The Only Known Case Ever)
Young Love with a Progressive Disease (Stiff Person Syndrome)
zhlédnutí 214KPřed 7 měsíci
Young Love with a Progressive Disease (Stiff Person Syndrome)

Komentáře

  • @MissSweeTSmarT1983
    @MissSweeTSmarT1983 Před 3 hodinami

    Omg these girls are tough! Im fascinated with them! Gods most special creations such as these girls. are just so beautiful. They are like a work of art. ❤ id be so proud to be there momma❤

  • @Cutie_Arii123
    @Cutie_Arii123 Před 3 hodinami

    I think Olivia would love to be my friend bc I meet all of her standards and she meets all of mine! Also I have a lot of autistic friends so I understand them well, I also have ocd myself❤️

  • @PAPPADASH
    @PAPPADASH Před 3 hodinami

    At least there will be someone to take over space X when Elon's gone. Has the mom seen if she's interested in Chess yet? She may as well get GM to add to the acolades. The body was like ok boys we can't develop these arm muscles, let's just double up on the brain.

  • @lakebafondren5868
    @lakebafondren5868 Před 4 hodinami

    What is the name of her condition.

  • @CrystalBeesSSO
    @CrystalBeesSSO Před 4 hodinami

    As a Autistic person with ADHD and ODC i' d be friends with her, she seems so fun and silly and just amazing all around ❤❤❤ Keep growing Olivia!!! I believe that you can jump the big jumps and things that are to hard you can slow your race down, save enery, (practice and see what you dont understand) and come back and jump the jump ❤

  • @ravenjaxsnerdymommy5297
    @ravenjaxsnerdymommy5297 Před 4 hodinami

    Wait this isn’t normal for everyone? Wait what? I thought this was normal, that’s just how my brain works. Everything she is saying something I do every day since I was a kid. I’ve almost ruined friendships saying these thoughts aloud.

  • @elenafrancavilla7428
    @elenafrancavilla7428 Před 4 hodinami

    Fantastica P

  • @Kayla11139
    @Kayla11139 Před 4 hodinami

    Im autistic to and i am impressed by how intelligent ryan is! he seems like a pretty nice and charming guy! Great video 👏

  • @user-kd5ig3vc3s
    @user-kd5ig3vc3s Před 4 hodinami

    Bless her innocent precious soul ❤

  • @PAPPADASH
    @PAPPADASH Před 4 hodinami

    I'm Type 1 diabetic 43 years old, I've had like 2 or 3 times in my life where bloodsugar was low. I always have sugar pop with me, and at home sugar pop, ceral and stuff, but when I leave in my car I bring sugar pop with me, and I don't overdo the insulin to the point it drops so fast that you can't catch up with it being low. My situations have been when I'm sleeping, and it got low, which is dangerous. But for anyone who wants to know what it's like, it's hard to explain, when it gets really low you have no cognitive thought like at all and you won't remember what you did, and you don't have the strength to even stand up or move sometimes literally, you just feel so weak your body doesn't function right, and your brain doesn't function right almost like it's starved for oxygen which may very well be part of whats happening. If it's just a little low you can feel it getting low and then drink or eat whatever you need to and it's not a huge deal. The when it gets dangerous is when you take so much insulin that it's dropping so fast you can't react and drink or eat something quick enough. I can't imagine also having schizophrenia that is a terrible combo.

  • @LilianaRaftas
    @LilianaRaftas Před 4 hodinami

    Such a sweet boy his biological mom didnt deserve him

  • @yvonneshaub6111
    @yvonneshaub6111 Před 4 hodinami

    Ok first of all..autistic people are probably not aware of their sociopathy.. usually autism maskes sociapathy..another wards they are not aware of the sociapathy because of the cognitive deficiency..they're the ones that will eventually end up in the criminal system and people will cry why they shouldn't be..

  • @tonyarose4186
    @tonyarose4186 Před 4 hodinami

    I fell in love with this young man❤️

  • @Karen-kw4jl
    @Karen-kw4jl Před 4 hodinami

    I can't even imagine her life would have been had she not been adopted by this wonderful couple!!

  • @stephenhenson2819
    @stephenhenson2819 Před 4 hodinami

    ❤ ❤

  • @willodinga14
    @willodinga14 Před 4 hodinami

    I never did because no one has the right to do so! not my own kids, not my grandkids! (no one except my lover). always kiss(ed) them on the forehead and then they feel so special! 😃🥰

  • @user-wz2mc4wc6r
    @user-wz2mc4wc6r Před 4 hodinami

    I hope you gets better soon and you are strong young man I will keep you in my prayers

  • @19th-Nervous-Breakdown
    @19th-Nervous-Breakdown Před 4 hodinami

    What an AMAZING mother. ❤🎉

  • @dollfactory
    @dollfactory Před 4 hodinami

    She is a beautiful treasure. I hope she always has lots and lots of frends!!! 😊🫂🙏🏼💙🤍🥰

  • @PAPPADASH
    @PAPPADASH Před 4 hodinami

    towards the end of this video you can tell how much smarter she is then the start. It's pretty amazing actually.

  • @learningwithlaura6105
    @learningwithlaura6105 Před 4 hodinami

    Lol when they said Ananah back and forth my dog barked back each time. He wanted in on it too. What great energy!

  • @patriciabuttner7511
    @patriciabuttner7511 Před 4 hodinami

    Amazing interview!

  • @TheGuzdar
    @TheGuzdar Před 4 hodinami

    i know this isnt the point but just because the insurance denies the medicine doesnt mean they cant still get the medicine it will just cost them more money. The parents could offer to pay the medicine off insurance. Im aware medicine is expensive and they may not be able to afford it but this is a point they dont cover. I wish they would've listed the price of the meds off insurance just to give us an idea.

  • @heathermusa-francis5784
    @heathermusa-francis5784 Před 4 hodinami

    What a sweet child!❤

  • @403fruit
    @403fruit Před 4 hodinami

    John, I think about you all the time, your message to “decide to be part of your life” is so important.

  • @sigma_supremo2121
    @sigma_supremo2121 Před 4 hodinami

    Poor girl... no one should kiss babies on the mouth... foreheads a better option ngl. The mom is such an angel: forgiving, rational and supportive. The way she follows the subjects at hand with her expressions is everything.. and shes happy too!

  • @denises.8203
    @denises.8203 Před 4 hodinami

    😘 if we all had her ❤ and spirit,oh what a wonderful world to live in.

  • @PAPPADASH
    @PAPPADASH Před 5 hodinami

    It's a lot of the family talking I would have liked to hear more from her. Like is she happy? Is it difficult to have trouble communicating, it's so tough having a normal mind but having mobility and communication so limited, and then the deformity, I'm sure people make crappy comments and stairs,e etc. It makes you question god, giving someone such a tough road who did nothing wrong, if you believe in that. Also that mom is a saint, you can see the tiredness, and sadness deep down in her eyes. What a tough woman, and a good woman. Also I'm pretty sure by 12 min she's sick of her little brother, like ok dude stop parroting mom, this is getting borderline inappropriate. LOL

  • @jojoplinjoveci
    @jojoplinjoveci Před 5 hodinami

    Nossa! Sem palavras!

  • @user-hd3tf7cj4c
    @user-hd3tf7cj4c Před 5 hodinami

    Какие хорошие девочки. Счастья вам девчонки и всего самого лучшего в жизни.

  • @jamesprendergast6183
    @jamesprendergast6183 Před 5 hodinami

    What a f*****g trooper!

  • @oliviaedwards2267
    @oliviaedwards2267 Před 5 hodinami

    I been following you guys since you brought her home. Im so happy that she has found a loving family. Does she still gef excited about Disney World?? I remember her singing her favorite disney song with her new princess dress on. ❤❤❤❤

  • @ParkerMeyer-bd1qj
    @ParkerMeyer-bd1qj Před 5 hodinami

    I’m really sorry this happened to you guys, but atleast she is happy! I wish you guys luck :)

  • @user-hk4ep7rw3q
    @user-hk4ep7rw3q Před 5 hodinami

    I would be ur friend and you deserve the best ❤️

  • @gingerjones1988
    @gingerjones1988 Před 5 hodinami

    I’m curious whether or not Piper has been given an instrument… I wonder if she can learn to play at all?

  • @reginabowman8529
    @reginabowman8529 Před 5 hodinami

    I adore her ❤❤❤❤❤❤❤

  • @PretzelTwist0
    @PretzelTwist0 Před 5 hodinami

    I WILL BE YOR BEST FRIEND!!!!!❤❤❤

  • @roseygirl8853
    @roseygirl8853 Před 5 hodinami

    HAHA he's sharp and funny! I like his outlook on life 😂❤

  • @Sharon-zu7oq
    @Sharon-zu7oq Před 6 hodinami

    I always say disabled people have alot to say we just need the right audience

  • @Sharon-zu7oq
    @Sharon-zu7oq Před 6 hodinami

    Hi Emily, I clicked on this video because I also have a disability and can relate to alot of what she says and friend requested her on IG she just seems so nice

  • @roseygirl8853
    @roseygirl8853 Před 6 hodinami

    I love Timmy! I come back sometimes to re watch his videos !

  • @marvadunn5062
    @marvadunn5062 Před 6 hodinami

    She's adorable

  • @DonnHowes
    @DonnHowes Před 6 hodinami

    I suffered severe anxiety and mental disorder 22 years ago as a teenage. Got diagnosed with cptsd. Spent my whole life fighting cptsd. Not until my wife recommended me to psilocybin mushrooms treatment. Psilocybin treatment saved my life honestly. 6 years totally clean. Never thought I would be saying this about mushrooms.

    • @Ronkaja
      @Ronkaja Před 6 hodinami

      Congrats on your recovery. Most persons never realizes psilocybin can be used as a miracle medication to save lives. Years back i wrote an entire essay about psychedelics. they saved you from death bud, lets be honest here.

    • @Bastianbishops
      @Bastianbishops Před 6 hodinami

      Can you help me with the reliable source 🙏. I'm 56 and have suffered for years with addiction, anxiety and severe ptsd, I got my panic attacks under control myself years ago and they have come back with a vengeance, I'm constantly trying to take full breaths but can't get the full satisfying breath out, it's absolutely crippling me, i live in Germany. I don't know much about these mushrooms. Really need a reliable source!! Can't wait to get them

    • @SusanaGomez-mp8sk
      @SusanaGomez-mp8sk Před 5 hodinami

      Yes sure of Dr.benfungi

    • @Mcdogmom288
      @Mcdogmom288 Před 4 hodinami

      100% agree I used to have Psychosis and paranoid thoughts like "people thinking about me talking about me etc. Very odd behavior after getting off Adderall from 7-16. Antidepressants at 18-29. 31 now. I took way to much, but took about 20g of Gold caps (Psilocybin containing mushroom) I analyzed my entire life. The emotions that came out helped me understand behavior etc more. Wont ever need to do it again because I'm happy and contempt forever, but I wish more people did this to alter their perception of reality. Would help with healing much trauma

    • @VanRyan-bv7du
      @VanRyan-bv7du Před 4 hodinami

      How do I reach out to him? Is he on insta

  • @jensanders1930
    @jensanders1930 Před 6 hodinami

    My son has all this also his dad ,i didnt habe any opiods during my pregnancy

  • @eurithapool900
    @eurithapool900 Před 6 hodinami

    I already love and accept her. When I saw her the 1st time on youtube I thought she was a doll. Love you mom and dad ❤🇸🇷

  • @robophobic_police
    @robophobic_police Před 6 hodinami

    such a pretty girl omg

  • @CassiePass-gs2gz
    @CassiePass-gs2gz Před 6 hodinami

    I wish i had her confidence

  • @grangrampa832
    @grangrampa832 Před 6 hodinami

    She’s a sweetheart 😊❤

  • @domenicoitalico115
    @domenicoitalico115 Před 6 hodinami

    This mom sems to be the mother of Jesus, as she is speaking !! Respect ❤

  • @user-zx1ub2jn5i
    @user-zx1ub2jn5i Před 6 hodinami

    ДА ЧТО ГОВОРИТЬ. ВСЕ ЯСНО /ДОМ У ДОРОГИ. ВОТ АМЕРИКАНСКАЯ МЕЧТА! с их едой водой и образом жизни! они еще позволят ей рожать... там итак почти все уже дебилы.