James♡♡♡ You give me the courage to be more independent during this transition of my vision loss. I really appreciate all your videos buddy. You help so many Just you being you. thx again!
Riding a bike isn't one I expected to be on this list, thanks for busting that myth for me! As a sighted person it's less complicated for me, but if I'm in a place I don't know very well, I use Google Maps to figure out my route. If it's a country / area I'm not too familiar with I also look up local customs. A friend of mine actually Googled how to use a zebra crossing because he wanted to check that it worked the same in the US as it does in the UK haha (it does).
I'm legally blind in my right eye and completely blind in my left. I currently use a cane at night when I'm not with my mom (my sighted guide) but am looking into getting a guide dog when I graduate highschool
Th3L0nelyP0et I am a guide dog user you will love them :-) be sure to check out guide dogs of America in my opinion they are one of the best programs out there :-)
I'm really glad to see you and others on CZcams educating people about the variety of vision problems that can happen. It's kind of weird how people assume that vision is either 100% blind or 100% correctable. And it leads to some really dumb comments... (as I'm sure you know!) And yes, double yes to the contrast thing! XD This is why my furniture is dark and my walls are white. lol
Hey James I'm legally blind 20/300 with Nystagmus and I am a new cane user. I'm lucky enough to get orientation and mobility as an adult. Another good way I use to to travel is paratransit.
I am legally blind in Australia. I am from Sydney and got around there with a monocular to read bus numbers. However It was much easier as I grew up there and spent 24 years there sighted so I knew where most places were and how to get around. I now Live in Melbourne and struggle somewhat to go places. I get trams and that is about it. I normally just go from work to home and with the wife driving if we go somewhere. I would love to live in America but unsure about getting work there. Thanks for your great vids and taking the time to rad this if you did.
I am someone with both vision and hearing issues. I just found out about public transportation here in our small town for elderly and disabled people 6 months ago. I did use a can at night some years ago. I don't go out much at night now. I have found your accessability videos very helpful. Also, it has helped me explain the situation to others easier. I can show them what it is like. Say, yes I can see you, but at the same time I loose you. it shifts in and out. yes, I can navigate but maybe it is by a color because my detail just left or white spots like lights just obscured everything. yes, I have glasses but that does not mean my vision is corrected.
I totally blind in my left eye and almost totally blind in my right. I always use my white cane, day or night. I live in the suburbs of Baltimore where I take public transportation. It gets me around okay, but I still have to walk a bit sometimes.
Yea, there's still plenty of areas I can't take the bus to. I just do what I can though. Byses are a bit scary sometimes with all of the charactersbthat also need to ride. Lol. But I'd say, most of the time other passengers have helped me navigate or orientate me so I know where I'm at.
I have RP as well. when I walk at night I sort of thrust my right foot forward (a slightly larger step that I would take with my left foot) and scrape my heel on the ground to make sure I don’t step off a curb or trip over something.
Tryin to give me a damn heart attack on that bike! My son is blind and we're moving to Portland soon. I'm hoping he will like the balance of nature and city there and learn to get around well. :) Absolutely adore your videos. ♡
I love your channel I am Irish and have albinism also I think getting around can be frustrating but I find it is mainly in low sun I struggle ! I don't have a Kane I used to but didn't actually need it anymore but that apple watch sounds incredible especially for new areas ! keep making great content your helping so many including my younger brother and I 😀
Legally blind, use para transit mostly for times when I can't get a driver living in rural Bear DE. When I'm in the northern part I use the regular bus. I do walk a bit also.
I am hoping to move into a city soon, as there are no options for transportation (except for medical appts). I walk everywhere and always use a white cane. Always crossing an intersection counterclockwise is important bc drivers here are oblivious to white cane or even regular pedestrian rules and safety.
Someplace with good transportation services, no snow and ice, and roads and sidewalks that are actually maintained, would be a good place for me to live. lol the pot holes are huge here. I grew up in Southern California and am a total klutz on winter walkways. I am too dependant here in Nebraska.
I'm an 18-year-old, near-sighted person (meaning that the farther things are, the harder it is for me to see/read without glasses). Despite my age, I do not have a driver's license let alone a car to drive. I could ride a bike alternatively, but every time I try, I lose balance and nearly fall into the road, so riding down busy streets terrifies me. I often take the bus because my student card lets my ride for free, but if I'm running really late, I usually end up using Uber/Lyft (which is usually a last resort since each ride is $5-6 minimum).
I'm legally blind minimal training with white cane and still figuring out how to get around in certain siItuations like snow and ice. Not comfortable with crossing at major crossing yet, but working on it. I use sighted person and cane when in public places, unless going for a walk, then its my cane. Have no electronics to help.
I wish that I could move to a big city. I am 90% blind and live in a small town with no audible crosswalk signals, few sidewalks except on the main highway and no taxi service. Not to mention that it's BORING! No mall, no activities, only four good restaurants that I rotate between when I want to go out and no socialization with other blind people
Hi, James. I am visually impaired like you and I love that you share your perspective on CZcams. I use a cane when crossing streets during the daytime for identification and I use a cane constantly at night.
I'm glad I found you in the trending section of CZcams! I'm considered by our terms of society legally blind myself. Glad to see another content creator like myself that didn't let that get in the way!
lols hi James I was not expecting the bike ! I just saw your video and Tommy yesterday it really opened my eyes (no pun intended) to this part of CZcams you guys are really awesome and positive sending love and positivity you way !😁
I have heart issues and knee and back issues so elevators are a necessity for me for most places. It's hard sometimes to walk long distances and that's not because I'm lazy it's because I hurt. People judge me and call me all sorts of names but the fact of the matter is I've had a major knee surgery that was actually 2 surgeries and when I play sports now I'm not allowed to run. I get around little by little some days I can go farther than others. 8)
it's totally embarrassing but I'm usually out with my mom at night so when we are walking and crossing the street I just hold her hand it's funny because despite me being one of the oldest (14) I'm the only one that'll hold her hand or I'll grab onto whoever I'm with so I can safely get across ( I love your channel btw)
Accessibility in Egypt isn't easy at all i have extreme myopia and my sister has it too It is hard to walk around even for the sighted ,we have really bad pavments and roads with alot of holes snd bumpes and randomness. My sister was really considering the cane but we never saw even a blinded person with a cane in the streets so we are a little worried about societies stereotypes.
I use public transport and night is better then day for me but one has to work so I go out in the day public transport and my lovely wife helps to - keep up the nice work amte
How do you feel walking around with homeless folks around? And is LA dangerous? I'm Deaf and I rarely go venture out into DC on my own, I only use Metro, I haven't actually ventured on my own, but I make sure to not flash fancy things and look around at my surroundings.
I have bind spots on my left eye and I am also deaf.I when I do get around ride on the bus because I live in the country area or I have have someone to drive me to places.
i navigate simular, only i use gps lass. i am ligaly blind have eye site on my left eye only. i never ride bike et night , i did only in day light, i see better , but reasently i get self balanced scooter, i tryed tu ride it in the parc using my vision and caine, its worcs!
I am visually impaired I use a long cane it is very different to yours mine has a roller tip. I have nystagmus like you and I've just discovered your channel and I love your videos. I do art although I'm red/green colour blind.
I have Retinitis Pigmentosa I am legally blind due to loss of peripheral vision. I have 20/80 vision with corrective lenses and I ride a bike. My mother got this bike as my grad present. I won't ride a bike at night because my vision is terrible but she is absolutely afraid for me to ride my bike in the day time now. I would love to take my bike to college but it's a small campus and I would be so afraid I would hit people. But come on, I have a bike trail in my hometown and she refuses to let me ride that alone.
Is the reason of the sun looking extra bright to you because your eyes can't adjust the size of your pupil(is that what albinism causes?) I just wondered :D
I just lost most of the sight in my left eye (I have about 5% left but it's in the upper left corner where it is totally useless. My right eye still has vision though so I can still see I'm just dealing with having no sense of depth.
I can see. With glasses. I'm wondering if I should go a day without them kinda as a challenge because I have 20/450 vision without them. Might have interesting results and maybe I'll tell ya about it haha
I have ocular migraines with nystagmus and diploplia and I use a cane if I get a bad migraine for feeling curbs etc in front of me and as you said, for alerting others of my impaired vision. I have my cane with me all the time but often don't use it if I am going somewhere near my house, that is familiar, or if I am going with someone. I just started using it (and I'm 28) and I'm not going to lie. I feel a bit of trepedation using it as I am not used to it. more specifically I am not accustomed to having people treat me differently when I use it. ....because I have definitely noticed they do. quite frankly I find it simply absurd!!!!! anyway thanks for the video!!! It's always interesting to hear about people who have visual impairments thriving vocationally
At first, but now I know what it is I see it as an inconveniece. I also have Meniere's Disease. So, my hearing will just randomly cut out for periods of times. It's just, "oh, I'm deaf" "oh crap, I can't see. Well this sucks". I just let people around me know that it is a fact of life for me. If I am loud, I probably can't hear you at the moment, but hopefully it will be back in a little while.
fantastic attitude. Yep, if you can't change it, I think it's essential one learn how to function with it regardless. It must be absolutely horrific to feel like you cannot hear, I can only imagine....:S
Yes. I had to. It was frustrating when I went to doctor after doctor to be told there was nothing there. Like it was in my head. They only started getting a clue in the last couple years. It was like how they treated people with fibromyalgia. If they do not see it on an x-ray, it must not be there. 25 years of suffering with it, being told by family that I was being dramatic or not paying attention, then, oh it has a name. It was actually not officially diagnosed until last year. I figured it out and started asking to be tested 5 years ago. Now, I have seen 3 eye doctors and got 4 vastly different perscritions in the past 15 months. They say, something is going on. I think, "you think!" what is it. Wait weeks, get new glasses, can't see the board 5 feet away from me.
Hi James, I just stumbled across your channel, and really like your videos! I'm also albino, and legally blind, but my vision is much less severe. (Though I do look MUCH more albino XD) I have a question about your nystagmus! I do have it, but mine actually seems to improve slightly. as I age. Some days I actually have quite a bit of control over my eyes to the point the shaking is hardly noticeable, though really straining them sets it off pretty badly, Have yours ever shown any changes, good or bad over the years, and do you feel you might've gained some form of control over it...?
I had glasses that helped for a long time. however, my mother was crazy and took them as a punishment and I had to do without them from 14 until I left at 18. yes, that is medical neglect. but, I had no way of standing up for myself. she told the school I refused to wear them. It made me adapt, however. I continued to make art. my nose was to the paper, but I did it for the love of it. I learned to feel with my body. I felt vibrations before I walked into objects. I felt sidewalk changes with my toes. I got glasses again in my twenties. I still remember that night. I sat for hours staring at the stars and the moon. I had never seen them. Now, it has changed again. I have no idea what that means for me, but I know I have skills. I can adapt!
sageandcandle Oh wow, I can't believe you would've been deprived of glasses for so long! But it's really impressive you were able to adapt so well to life without them. It must've been absolutely amazing to get to see right again after so many years! I find it a little ironic that so many of us with vision disabilities love art so much though! Most people won't believe I'm legally blind because I'm more advanced in art than a lot of other people in my age group... :')
Yes, I know blind artists, deaf musicians, and one guitar player that had his fingers lost in a machine but still plays with just 2. We find a way. My mother was a quite intense, yet a public figure in town. She was cunning and manipulative. She had a cruel streak. She decided I did not "respect" my glasses. So, at 14 she told me I could have them when I was able to buy them myself. I ran away at 18, dropped out of school, and married just to be out. It was a mistake, but I didn't think I had an option. It took me quite a while to heal. I did not always deal with it as well as I do now. I had accepted that I was blind and adapted on my own. I had no teacher to turn to. She worked at the school. So, no one helped with visual aids, magnifiers, canes. I figured out ways on my own. But, some teachers would not accomidate. So, I failed classes and got detentions. Again, she told them I refused to wear them. I was a kid. They would not believe me. People were shapes of color and voices. I had enough sight to navigate the world at 20/450.
hey James my name is sean I am 17 and also have albinism but it's not ocular my sight is quite good I'm told 6 over 20 but idk no different so to me it's perfect I've really enjoyed watching ur videos I enjoy art and music and want to be able to incorporate my view into these mainly the art I guess do u have any advice tnx again
Low partial - 20 percent peripheral remaining foggy at best I use a guide dog ! Check out Guide Dogs Of America in Sylmar ca ! Once you've had a guide dog you will never go back to using a cane - so much easier to travel :-) although they are not for everyone .... I have had two dogs from that school and have been working dogs from their school since 2004 - first dog worked 10 years second dog I'm on now so far have been together Almost four - Ever thought about getting a guide? I would totally take the train to union station and meet you someday and show you all the cool things my dog does :-)
I don't know if you've answered this in any of your videos, but how do you use your computer? Like typing here in the comment section? Is it difficult for you to use a keyboard? Do you use a voice that reads stuff to you, or does enlarging everything help?
I have about -5 diopter in both my eyes, but when I wear glasses I can see (almost) perfectly. I can't wait to get a surgery to fix it (hopefully). (Sorry for my bad english)
Sounds about like my situation, Siria. I used to wear contacts that I had to special order, but they were harming my eyes (something about oxygen deprivation or something), so I had to stop! Now I'm stuck with glasses. I wish I could afford the surgery!
I'm sighted but sometimes I forget my glasses. If I then try to watch, let's say tennis at TV I find it oddly boring (I love it otherwise). Then I realize I don't wear my glasses and can't actually see the ball. No wonder it gets boring, haha!
please do not ride a bike with the cars/traffic in la, they drivers there are so careless and do not pay attention! If you cannot see and anticipate any wrong move just dont do it its not worth it. I have had drivers run lights, or turn into me because they did not check the bike lane! Be careful!!
I would strongly recommend against it even if your in a hurry and its a short ride, all it takes is one bad driver or someone texting. It's just not worth it.
Julia Brown, I used to ride a bike everywhere when I was young. Even at 20/450 vision, I had enough to see cars and lights. I fearlessly went at night. Then I saw nothing but car lights and the lines. I did it anyway. oh to be young and impulsive again. As long as I could feel the tire on the road, I was good.
I'm legally blind and I use a white indenfication cane day and night I'm also a youtuber and I make flims as well I have severe ROP in my right eye I'm blind in my left eye
James Rath I am a legally blind teen and I use a cane. People always talk about guild dogs when the find out I'm blind, but I don't think I would want one because as much as I love dogs it's a lot of responsibility and I don't want to worry about it finding my cane is enough of a hassle.
James♡♡♡ You give me the courage to be more independent during this transition of my vision loss. I really appreciate all your videos buddy. You help so many Just you being you. thx again!
Riding a bike isn't one I expected to be on this list, thanks for busting that myth for me!
As a sighted person it's less complicated for me, but if I'm in a place I don't know very well, I use Google Maps to figure out my route. If it's a country / area I'm not too familiar with I also look up local customs. A friend of mine actually Googled how to use a zebra crossing because he wanted to check that it worked the same in the US as it does in the UK haha (it does).
I'm legally blind in my right eye and completely blind in my left. I currently use a cane at night when I'm not with my mom (my sighted guide) but am looking into getting a guide dog when I graduate highschool
Th3L0nelyP0et I am a guide dog user you will love them :-) be sure to check out guide dogs of America in my opinion they are one of the best programs out there :-)
I'm really glad to see you and others on CZcams educating people about the variety of vision problems that can happen. It's kind of weird how people assume that vision is either 100% blind or 100% correctable. And it leads to some really dumb comments... (as I'm sure you know!)
And yes, double yes to the contrast thing! XD This is why my furniture is dark and my walls are white. lol
Hey James I'm legally blind 20/300 with Nystagmus and I am a new cane user. I'm lucky enough to get orientation and mobility as an adult. Another good way I use to to travel is paratransit.
I am legally blind in Australia. I am from Sydney and got around there with a monocular to read bus numbers. However It was much easier as I grew up there and spent 24 years there sighted so I knew where most places were and how to get around. I now Live in Melbourne and struggle somewhat to go places. I get trams and that is about it. I normally just go from work to home and with the wife driving if we go somewhere. I would love to live in America but unsure about getting work there. Thanks for your great vids and taking the time to rad this if you did.
***** good stuff man. Look forward to more videos
Love this video, and thank you for making it
I am someone with both vision and hearing issues. I just found out about public transportation here in our small town for elderly and disabled people 6 months ago. I did use a can at night some years ago. I don't go out much at night now. I have found your accessability videos very helpful. Also, it has helped me explain the situation to others easier. I can show them what it is like. Say, yes I can see you, but at the same time I loose you. it shifts in and out. yes, I can navigate but maybe it is by a color because my detail just left or white spots like lights just obscured everything. yes, I have glasses but that does not mean my vision is corrected.
I totally blind in my left eye and almost totally blind in my right. I always use my white cane, day or night. I live in the suburbs of Baltimore where I take public transportation. It gets me around okay, but I still have to walk a bit sometimes.
Yea, there's still plenty of areas I can't take the bus to. I just do what I can though. Byses are a bit scary sometimes with all of the charactersbthat also need to ride. Lol. But I'd say, most of the time other passengers have helped me navigate or orientate me so I know where I'm at.
Diagnosed with RP last year and still can see but my night vision is shit. Would love to hear about more tricks from anyone who has mastered this. 🙄
Excellent advice! Lol. 💩😲
I have RP as well. when I walk at night I sort of thrust my right foot forward (a slightly larger step that I would take with my left foot) and scrape my heel on the ground to make sure I don’t step off a curb or trip over something.
Tryin to give me a damn heart attack on that bike!
My son is blind and we're moving to Portland soon. I'm hoping he will like the balance of nature and city there and learn to get around well. :)
Absolutely adore your videos.
♡
I love your channel I am Irish and have albinism also I think getting around can be frustrating but I find it is mainly in low sun I struggle ! I don't have a Kane I used to but didn't actually need it anymore but that apple watch sounds incredible especially for new areas ! keep making great content your helping so many including my younger brother and I 😀
Legally blind, use para transit mostly for times when I can't get a driver living in rural Bear DE. When I'm in the northern part I use the regular bus. I do walk a bit also.
Thanks James for making the video I asked for.
I am hoping to move into a city soon, as there are no options for transportation (except for medical appts). I walk everywhere and always use a white cane. Always crossing an intersection counterclockwise is important bc drivers here are oblivious to white cane or even regular pedestrian rules and safety.
Someplace with good transportation services, no snow and ice, and roads and sidewalks that are actually maintained, would be a good place for me to live. lol the pot holes are huge here. I grew up in Southern California and am a total klutz on winter walkways. I am too dependant here in Nebraska.
Boston my friend
I'm an 18-year-old, near-sighted person (meaning that the farther things are, the harder it is for me to see/read without glasses). Despite my age, I do not have a driver's license let alone a car to drive. I could ride a bike alternatively, but every time I try, I lose balance and nearly fall into the road, so riding down busy streets terrifies me. I often take the bus because my student card lets my ride for free, but if I'm running really late, I usually end up using Uber/Lyft (which is usually a last resort since each ride is $5-6 minimum).
I'm legally blind minimal training with white cane and still figuring out how to get around in certain siItuations like snow and ice. Not comfortable with crossing at major crossing yet, but working on it. I use sighted person and cane when in public places, unless going for a walk, then its my cane. Have no electronics to help.
I wish that I could move to a big city. I am 90% blind and live in a small town with no audible crosswalk signals, few sidewalks except on the main highway and no taxi service. Not to mention that it's BORING! No mall, no activities, only four good restaurants that I rotate between when I want to go out and no socialization with other blind people
Hi, James. I am visually impaired like you and I love that you share your perspective on CZcams.
I use a cane when crossing streets during the daytime for identification and I use a cane constantly at night.
I'm glad I found you in the trending section of CZcams! I'm considered by our terms of society legally blind myself. Glad to see another content creator like myself that didn't let that get in the way!
lols hi James I was not expecting the bike ! I just saw your video and Tommy yesterday it really opened my eyes (no pun intended) to this part of CZcams you guys are really awesome and positive sending love and positivity you way !😁
I have heart issues and knee and back issues so elevators are a necessity for me for most places. It's hard sometimes to walk long distances and that's not because I'm lazy it's because I hurt. People judge me and call me all sorts of names but the fact of the matter is I've had a major knee surgery that was actually 2 surgeries and when I play sports now I'm not allowed to run. I get around little by little some days I can go farther than others. 8)
It's true hahah I'm used to it now so I just listen to my music and let it be
it's totally embarrassing but I'm usually out with my mom at night so when we are walking and crossing the street I just hold her hand it's funny because despite me being one of the oldest (14) I'm the only one that'll hold her hand or I'll grab onto whoever I'm with so I can safely get across
( I love your channel btw)
Chloe Jackson I'm 19, albino and visually impaired and still holding the hand or arm of my mum when we go together in streets lol
Accessibility in Egypt isn't easy at all i have extreme myopia and my sister has it too
It is hard to walk around even for the sighted ,we have really bad pavments and roads with alot of holes snd bumpes and randomness.
My sister was really considering the cane but we never saw even a blinded person with a cane in the streets so we are a little worried about societies stereotypes.
I use public transport and night is better then day for me but one has to work so I go out in the day public transport and my lovely wife helps to - keep up the nice work amte
How do you feel walking around with homeless folks around? And is LA dangerous?
I'm Deaf and I rarely go venture out into DC on my own, I only use Metro, I haven't actually ventured on my own, but I make sure to not flash fancy things and look around at my surroundings.
I love your videos, James. :-)
I have bind spots on my left eye and I am also deaf.I when I do get around ride on the bus because I live in the country area or I have have someone to drive me to places.
RIP Anna.
i navigate simular, only i use gps lass. i am ligaly blind have eye site on my left eye only. i never ride bike et night , i did only in day light, i see better , but reasently i get self balanced scooter, i tryed tu ride it in the parc using my vision and caine, its worcs!
I am visually impaired I use a long cane it is very different to yours mine has a roller tip. I have nystagmus like you and I've just discovered your channel and I love your videos. I do art although I'm red/green colour blind.
Amazing video well done you are an inspiration
Thanks for the insight, James! This video made me feel like I was walking through a street in the middle of the night, and I just loved it. 😉
I have Cone Dystrophy, I was wondering about the Apple Watch anc I I could use one.
They’re very accessible!
I have Retinitis Pigmentosa I am legally blind due to loss of peripheral vision. I have 20/80 vision with corrective lenses and I ride a bike. My mother got this bike as my grad present. I won't ride a bike at night because my vision is terrible but she is absolutely afraid for me to ride my bike in the day time now. I would love to take my bike to college but it's a small campus and I would be so afraid I would hit people. But come on, I have a bike trail in my hometown and she refuses to let me ride that alone.
Is the reason of the sun looking extra bright to you because your eyes can't adjust the size of your pupil(is that what albinism causes?) I just wondered :D
can you do more videos on your use of the white cane
it's very hard to cross road
How do you ride a bike???
I just lost most of the sight in my left eye (I have about 5% left but it's in the upper left corner where it is totally useless. My right eye still has vision though so I can still see I'm just dealing with having no sense of depth.
I'm legally blind I use my white cane and the local bus
I also am terrible with directions so google maps is my savior.
I can see. With glasses. I'm wondering if I should go a day without them kinda as a challenge because I have 20/450 vision without them. Might have interesting results and maybe I'll tell ya about it haha
I have ocular migraines with nystagmus and diploplia and I use a cane if I get a bad migraine for feeling curbs etc in front of me and as you said, for alerting others of my impaired vision. I have my cane with me all the time but often don't use it if I am going somewhere near my house, that is familiar, or if I am going with someone. I just started using it (and I'm 28) and I'm not going to lie. I feel a bit of trepedation using it as I am not used to it. more specifically I am not accustomed to having people treat me differently when I use it. ....because I have definitely noticed they do. quite frankly I find it simply absurd!!!!! anyway thanks for the video!!! It's always interesting to hear about people who have visual impairments thriving vocationally
Monica Newton, I panicked the first time I had an ocular migraine. I had no idea what was going on. I had never had them until 3 years ago. I am 45.
god that sounds traumatic
At first, but now I know what it is I see it as an inconveniece. I also have Meniere's Disease. So, my hearing will just randomly cut out for periods of times. It's just, "oh, I'm deaf" "oh crap, I can't see. Well this sucks". I just let people around me know that it is a fact of life for me. If I am loud, I probably can't hear you at the moment, but hopefully it will be back in a little while.
fantastic attitude. Yep, if you can't change it, I think it's essential one learn how to function with it regardless. It must be absolutely horrific to feel like you cannot hear, I can only imagine....:S
Yes. I had to. It was frustrating when I went to doctor after doctor to be told there was nothing there. Like it was in my head. They only started getting a clue in the last couple years. It was like how they treated people with fibromyalgia. If they do not see it on an x-ray, it must not be there. 25 years of suffering with it, being told by family that I was being dramatic or not paying attention, then, oh it has a name. It was actually not officially diagnosed until last year. I figured it out and started asking to be tested 5 years ago.
Now, I have seen 3 eye doctors and got 4 vastly different perscritions in the past 15 months. They say, something is going on. I think, "you think!" what is it. Wait weeks, get new glasses, can't see the board 5 feet away from me.
Hi James, I just stumbled across your channel, and really like your videos! I'm also albino, and legally blind, but my vision is much less severe. (Though I do look MUCH more albino XD) I have a question about your nystagmus! I do have it, but mine actually seems to improve slightly. as I age. Some days I actually have quite a bit of control over my eyes to the point the shaking is hardly noticeable, though really straining them sets it off pretty badly, Have yours ever shown any changes, good or bad over the years, and do you feel you might've gained some form of control over it...?
I had glasses that helped for a long time. however, my mother was crazy and took them as a punishment and I had to do without them from 14 until I left at 18. yes, that is medical neglect. but, I had no way of standing up for myself. she told the school I refused to wear them. It made me adapt, however. I continued to make art. my nose was to the paper, but I did it for the love of it. I learned to feel with my body. I felt vibrations before I walked into objects. I felt sidewalk changes with my toes.
I got glasses again in my twenties. I still remember that night. I sat for hours staring at the stars and the moon. I had never seen them.
Now, it has changed again. I have no idea what that means for me, but I know I have skills. I can adapt!
sageandcandle Oh wow, I can't believe you would've been deprived of glasses for so long! But it's really impressive you were able to adapt so well to life without them. It must've been absolutely amazing to get to see right again after so many years!
I find it a little ironic that so many of us with vision disabilities love art so much though! Most people won't believe I'm legally blind because I'm more advanced in art than a lot of other people in my age group... :')
Yes, I know blind artists, deaf musicians, and one guitar player that had his fingers lost in a machine but still plays with just 2. We find a way.
My mother was a quite intense, yet a public figure in town. She was cunning and manipulative. She had a cruel streak. She decided I did not "respect" my glasses. So, at 14 she told me I could have them when I was able to buy them myself. I ran away at 18, dropped out of school, and married just to be out. It was a mistake, but I didn't think I had an option.
It took me quite a while to heal. I did not always deal with it as well as I do now. I had accepted that I was blind and adapted on my own. I had no teacher to turn to. She worked at the school. So, no one helped with visual aids, magnifiers, canes. I figured out ways on my own. But, some teachers would not accomidate. So, I failed classes and got detentions. Again, she told them I refused to wear them. I was a kid. They would not believe me.
People were shapes of color and voices. I had enough sight to navigate the world at 20/450.
hey James my name is sean I am 17 and also have albinism but it's not ocular my sight is quite good I'm told 6 over 20 but idk no different so to me it's perfect I've really enjoyed watching ur videos I enjoy art and music and want to be able to incorporate my view into these mainly the art I guess do u have any advice tnx again
Low partial - 20 percent peripheral remaining foggy at best
I use a guide dog ! Check out Guide Dogs Of America in Sylmar ca ! Once you've had a guide dog you will never go back to using a cane - so much easier to travel :-) although they are not for everyone .... I have had two dogs from that school and have been working dogs from their school since 2004 - first dog worked 10 years second dog I'm on now so far have been together Almost four -
Ever thought about getting a guide? I would totally take the train to union station and meet you someday and show you all the cool things my dog does :-)
I don't know if you've answered this in any of your videos, but how do you use your computer? Like typing here in the comment section? Is it difficult for you to use a keyboard? Do you use a voice that reads stuff to you, or does enlarging everything help?
Thank you for answering! I love your videos!
I have about -5 diopter in both my eyes, but when I wear glasses I can see (almost) perfectly. I can't wait to get a surgery to fix it (hopefully).
(Sorry for my bad english)
Sounds about like my situation, Siria. I used to wear contacts that I had to special order, but they were harming my eyes (something about oxygen deprivation or something), so I had to stop! Now I'm stuck with glasses. I wish I could afford the surgery!
I use à white cane to get auround
I'm sighted but sometimes I forget my glasses. If I then try to watch, let's say tennis at TV I find it oddly boring (I love it otherwise). Then I realize I don't wear my glasses and can't actually see the ball. No wonder it gets boring, haha!
How often do you ride a bike?
That's cool. Stay safe out there!
wait what
u can ride a bike but how???
James Rath I try to ride a bike but it's very scary n I offen bump into things
please do not ride a bike with the cars/traffic in la, they drivers there are so careless and do not pay attention! If you cannot see and anticipate any wrong move just dont do it its not worth it. I have had drivers run lights, or turn into me because they did not check the bike lane! Be careful!!
I would strongly recommend against it even if your in a hurry and its a short ride, all it takes is one bad driver or someone texting. It's just not worth it.
either way good luck and stay safe!!
Julia Brown, I used to ride a bike everywhere when I was young. Even at 20/450 vision, I had enough to see cars and lights. I fearlessly went at night. Then I saw nothing but car lights and the lines. I did it anyway. oh to be young and impulsive again. As long as I could feel the tire on the road, I was good.
I'm legally blind and I use a white indenfication cane day and night I'm also a youtuber and I make flims as well I have severe ROP in my right eye I'm blind in my left eye
my vision is bad in my right eye
your welcome James
Hi James. This is GJ. I'm totally blind. I get around with my cane.
James RathWhat do you mean?
James Rath I don't know.
James Rath I am a legally blind teen and I use a cane. People always talk about guild dogs when the find out I'm blind, but I don't think I would want one because as much as I love dogs it's a lot of responsibility and I don't want to worry about it finding my cane is enough of a hassle.