Have I Gained More Function?! | SCI Q&A
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- čas přidán 21. 07. 2024
- This is an Official Cole & Charisma Video Of: Have I Gained More Function?! | SCI Q&A
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About Cole & Charisma:
Welcome to the official Roll with Cole & Charisma CZcams channel! Since the start of our relationship we've gotten a lot of questions about our experiences as not only an interracial couple, but an interabled one as well. On this channel you can catch us doing travel and adventure vlogs, challenges, our inclusion series, couple first times, music, and so much more! We started this vlog to bring people into our lives, to answer some questions about how we navigate the world, and hopefully raise awareness surrounding accessibility and dating in a wheelchair. You'll quickly see in our episodes that we're all about inclusion and keeping a great attitude no matter your circumstances, so if that's what you're into, you're in the right place!
Sometimes I think I know why Charisma loved and still loves this man. Cole is the most lovely person. He was brought up well. He is very considerate and you can tell he never take Charisma for granted 🎉you can tell he deeply cares for and appreciate the care she gives
They were truly made for each other.
C'mon Cole....lotion is a language of love for a blackwoman. We need to talk on this... Charismas reaction to lotion made my day 😂😂😂😂
🤣🤣🤣
All women use lotion.
😂 Has anyone seen the stand up with Bill Burr about using lotion? He said that he didn't use lotion for over 30 years of his life 🤣🤣🤣
Charisma u killed me when u said “ as a BLACK WOMAN “ lol cuz I know that’s right
@@lettiegrant9447I slather it on EVERY SINGLE NIGHT! Love Palmers cocoa butter & all that. ❤
I know you guys must help a lot of people. I got in an accident last week and I knew my spine was injured. While I wad lying in the ground the first thing I thought of was cole and I was super comforted and kept reminding myself if my toes don't move I can still do so much. Thankfully when I then tried to move my toes they did move and I just fractured my spine but I love the thought that Ina situation as serious as that you guys can bring comfort and knowledge to anyone who actually does become disabled. Keep doing what your doing!
My prayer is that God will grant you a full recovery. Blessings
I know I am being weird but I love you guys. I am an ER doctor and I have learned so much about Spinal Injuries from you guys than I did in medical school. Thank you
The way Cole looks at charisma is Soo beautiful you can see the love. They are one of my favorite social media couples and I can't wait till they share their love with a little one
Oh my gosh! How can you make such serious conversations so easy and FUNNY?!?!! What a breath of fresh air!!! You two are so refreshing to listen to. You should be doing motivational speaking conferences.
Awww thank you so much for this kind message!! Thank you for watching 🥰💙
Although nobody would wish to have serious disabilities, I see that people who have to deal with them, like Cole and Charisma, know how to cherish simple and precious moments like few people do. We see people arguing and being unhappy because of unimportant things. Cole and Charisma are great examples for me of how to be happy, being loyal, simple and realistic. That is so great! Thanks
@@juliadegouvea❤
@@juliadegouvea19:06
I have cerebral palsy and if a child asks me why I walk or talk differently. I tell them I was sick as a baby. In the past when I have told people that my lungs didn’t open up at birth people flip out, so I tone it down for children.
Be happy
“I’m being a T3 paraplegic for 33 years. When I am in pain. My blood pressure will usually go up, and this is how I know I am experiencing pain, when I had broken my foot.”
In situations like that you're likely experiencing Autonomic Dysreflexia.
Interesting that I’ve never really though about it, but im the same way. Im also a paraplegic and anytime I hurt my foot from banging it or something I only know it’s in pain because I can feel my blood pulsing through it.
@@frostydinosaur8187 if your injury is T6 or above you have a high likelihood of experiencing Autonomic Dysreflexia although some people with injuries as low as T12 experience Autonomic Dysreflexia it's just less common.
I've been a quad for over 34 years and AD is no joke!!! It can mean many things are wrong. Watch your blood pressure. If it goes on too long you can have a stroke. They make me sweat profusely. I'm a c5-7 incomplete and don't sweat on a regular basis. During AD I am miserable!
Also it can be a bladder needing to be emptied type thing
“Thanks!”
I had a stroke that left me with complete right side hemiplegia. Through years of intense physical and occupational therapy, I'm back on my feet again. But my right arm/hand and right foot are always cold to the touch. The blood pools in my right foot so at the end of the day my foot is purple. I have always been an active, healthy person (the stroke was cryptogenic) so am incredibly in tune with my body.
The temperature differentiation was explained as a circulation issue. My right side will likely always be compromised but I'm so grateful to be breathing, swallowing and talking normally again! Like a spinal cord injury, people don't realize how complex it is to lose function of half your body through an acquired or traumatic brain injury. It is not "just" arms and legs. I've been following your channel for what feels like years and I appreciate your open and easy way of explaining things. You are both so amazing and I'm grateful to have found you both!
My dad used to get UTIs often. I suggested a probiotic to his Dr & he agreed. We bought Reuteri from Amazon. They are very tiny pearl shaped. He never got another UTI again. Hopefully this will work for you.
You’re hilarious Cole!
"...snorting without noticing..." made me laugh and spit out my drink!😂😂
Third year nursing student here so I'm just guessing but one theory why one leg is warm and the other is cold could be due to impaired thermal regulation (which has to do with poor circulation as you mentioned). Basically when you're cold your body sends more blood to your body's core so that your vital organs remain at a good temperature. One leg staying warm means the signal is broken or the mechanics for getting your blood from your peripheries to your core is impaired. I actually work as an assistant nurse in a Spinal Cord Injury unit so I will try and find out the answer to this! xx
Interesting!
You two are so easy going with each other. Loving and understanding with each.
Cole just try to ignore the negative comments Ya'll are doing a great VIDEO with each other
As someone with a disability, telling someone to just ignore negative comments is annoying. If people told you to " just go to the hospital and get fixed" or "you're too beautiful to walk that way," or, God made a mistake on you, or Noone will ever marry you walking like that or when people in the parking lot tell me I'm faking just so I can park in that space. I have so many more, but one thing is don't tell that to people. That whole sticks and stones crap is lies, and mental health for many is crumbling.
@@stelanie28 You sound like that you have more than just being a handicapped person you feel like the whole world ose you pittie party. You see I also have a disability but I don't have a negative attitude towards everyone Sounds to me like maybe you should grow up some
You’re so honest. I’m impressed with both of you. Kids are curious and if they ask , it’s good to answer.
You two are amazing!! Don’t let people put you down. They don’t know.
I appreciate your candid willingness to share. Very educational. Thanks guys.
I find this amazing that anyone has the gall to question what Cole can and cannot do. This channel has been very informative and appreciate how open and honest the both of you are.
You two can be hilarious! I’m just an old able bodied person, but I enjoy being educated by your lessons on spinal cord injuries. You’re good teachers. Thank you, Professors Cole and Charisma!
Love you guys! following you for years, since Coles accident. I can't wait to see the children that you will both have. Wishing you both many blessings.
I was in a boating accident and had to have 3 back surgeries. L5-S1, L1-4, T7-10, C2-5 was injured but only surgery on L5-S1.. I was fortunate enough to still be able to walk but I did loose bladder function. And I did therapy for 15 years on my back but now I have SPS and I’m bed bound. But I. Oh lent imagine what cole goes through. God bless you and what you go through. All situations are different and no one should try and compare or try and say thing about someone else’s injury without living in their shoes! Thanks for being so open. My drs always wanted me to write a book or CZcams channel on my 17 year story but if I don’t remember it all bc I have over 32 autoimmune, autonomic, neuromuscular and gut diseases and I don’t think anyone would be interested in see a girl talk about my rare sps while stuck in bed
Absolutely beautiful spirits and loved the discussion about being in comas! Laughed out and made my morning! Keep on with the lovely videos and awareness of SCI ❤
Simply put, THANK YOU! I had a SCI four years ago (at the age of 59) and it changed my world. Every time I hear you two talking about your SCI I learn something, so keep it up, because knowledge is the key!!!
AZO is a cranberry supplement I used to stop my 2nd UTI from progressing and I don't need antibiotics with that AZO 👍🏼
yes, it works by changing the Ph and it makes it harder for some bacteria to hang onto the bladder wall.
I have used Azo as a preventative ever since my mother's urologist suggested she take it. I had to stop when I couldn't have "extra" vitamin C.
@@TweetyPAK7 Same thing here, the 1st UTI doctor told me to get AZO, just the plain one with no extra ingredients & get lots of water so my kidneys could heal with hydration
I second this - I have a sister with disabilities (and a catheter) who struggled with UTI's for years and AZO was helpful with us getting her urine cleared up
My sister in law was in a coma for 12 years before she passed away. I would never let my family do that to me. She had a brain embolism and put on a ventilator. When they decided to take her off, she started breathing on her own but never came out if the coma. It was hell on the family. 😢 So trust me, Charisma is real. I don't think you could dream such a sweet and gorgeous wife.😊
❤❤❤😊
I’m sorry this happened. This is why having a living will is so important. I have all my ducks in a row with my will and living will.
Thank you for sharing. Its intresting.
12 years? OMG. 😢
Very informative, thank you
Happy Anniversary! I hope your first official anniversary year was amazing and congratulations on the new house. So much more to come and keeping my prayers for a baby.
Cole is incredible 😊
Awesome
Hope you have a good caretaker as Christmas doing to cole or wish to be one from Kenya
Always a pleasure to spend time with you two. Thanks 😍
Thank you for answering all the good questions ...many of them I didn't know . Especially one on fundraising .Cole and Charisma you are such a inspirational couple .
Love you guys ❤
You do look really good Cole much better and has improved . Just great handling yourself. You guys are great together.💕 Love your hair Charisma❤
You two care for each other deeply! Two really great people❤️💕
I love the way both of you have shared your lives with us. Thank you for all of your honesty.
love you guys! Been following your story for a long time and was always more inclined towards Cole , the inner strength and determination, healthy insight and intelligence , etc.. etc .. is purely amazing, to overcome such nightmares and remain positive and collected.. wow.. The last video I watched of answers 5yrs ago vs now.. it really shined Carismas personality and perspective in more detail , and clearly this girl loves Cole , she is very intelligent, determined etc..etc .. and Coles present condition shines , he seems to be doing so well ... all in all I wish you both infinite happiness and those triplets asap !!! xoxox
Great video Cole and Charisma. Thank you for sharing 🫶🏽🫶🏽🫶🏽
Can i just say.. out of all the influencers.. and u tubers.. yall are so genuine. I love you both soooo much . . And your relationship.
Thanks for sharing..cole have such good sense of humor..never a dull moment...blessings guys ,one love..watching from Jamaica 🇯🇲 I don't cements alot but looks forward for your up dates on Sundays..😊
The thing I love most about Cole is he never stops trying new things. He had come so far since his injury happened. He's had lots of support along the way, of course, but he has worked his butt and learned tricks of the trade, so to speak to enable him to do almost everything.
Love the MATRIX graphic!!
Good info - normalizes differences in people.
I read some COMMENTS too - y’all are making an impact. POSITIVE impact!!
wow. your last question and answer was very important. I don't think many people know that. you both are so natural and comfortable in front of the camera. great content. God bless you both
I wanted to make a comment on what you were saying about people comparing themselves to your injury. I want to say this with the most respect but I feel like a lot of times what people are trying to do when they compare themselves with your injury is relate to you. Some people aren’t really good at relating to other people And I agree I’ve been through some stuff that has nothing to do with the physical injury more emotional and I felt very similar to the way you feel it only you know but that’s what I wanted to say is that sometimes people want to be able to relate, and “some people just are really disrespectful and rude “ and there’s no excuse for that .
I love you guys I love your contact and I’m glad you share all the stuff that you share you guys always put a smile on my face. Thank you.🙏🏻🤗🙏🏻🤗🙏🏻
Hello Charisma and Cole. I really love you both. You both are really great together. Thanks for the information. I am 70 yrs. Just love watching you both.
Thanks for the education. This is such a different world for me so I appreciate the knowledge that could give me greater empathy for people with that different experience.
Cole and Charisma are amazing, honestly responding to everyone's questions and opinions even the negative ones.God has been with you,giving you needed strength and capabilities exceptionally. Continue to enjoy divine grace and mercy 🙏God bless and bond you more divinely 🙏❤️❤️🔥🔥🌹🌹
You both spoke about these topics already. These people are new followers I guess. I am happy to see you both.
Cole and Charisma explaining his functions so well!
You have some crazy people in the world keep doing you Cole I was a nursing assistant for over 35 years
You two are soooooo good together!!! I pray that God will continue to bless your love and union.
So much of what you talk about is the same with a lot of disability groups! Thanks for sharing your perspective!
I learned a lot from this video and y'all did an excellent job explaining things. Thanks and hope to see more of this type of content!
awesome couple. Thanks for answering the questions most people want to know and keeping us informed.
Love you guys from Ethiopia ❤
The information was very informative. Blessings to you both 🙏🏾
You two are so adorable together! You both have such a fun sense of humor, and this video in particular had me laughing out loud so many times! 😂Thank you for another very informative video. 😊
This was so interesting, Charisma and Cole. Thank you.❤️❤️🤗🤗
Cole and Charisma I just love you guys. You guys have such a bond. God bless and I am waiting for your little ones. 😊🌺
Y’all are so funny together! It’s obvious how you communicate, with humor and light ribbing. You guys would be fun dinner guests. “Your parents would have pulled the plug by now” I laughed out loud at the whole coma conversation. 😂
So proud of you two!
Informative and very funny! Love that you two have fun with each other❤
Even thought I’ve heard a lot of questions answered in the past ,I realize there’s always going to be new ones, you’re right kids are curious 💪🏾👍🏾
Thank you for this episode. So informative
I am a final year physio student in Aus and this video was so helpful! I often watch your videos to help me get a better grasp of what life is like for someone living with a SCI. Framing your function/ability as still being able to learn new skills with the function you have is such a great point! 🙏
You two are such an amazing people I have so much respect for you both and how you treat each other
Very informative video. Thanks Cole and Charisma. ❤ Great ending Cole 😂
Lol 😂 Loved the very ending Cole when you realized you were still recording!
This video was so funny to me. 😆 Cole has a wonderful sense of humor.
I really think you have Cole it's amazing you got this, next chapter is the baby so happy for you guys ❤❤❤ strong caring loving couple
Thank you for every answer that you have done today, we are so enlightened and encauranged by you, you are always positive and I thank God for you stay blessed
I love this - u guys r so open and willing to share.❤
Thank you for this episode. I have learned a lot, and my misconceptions are cleared up.
My son Chris was a c6/c7 quad injured in 2002. About six years later, we met a former neighbor and he asked 'Is Chris walking again?' It is very difficult to educate people about the severity of a spinal cord injury. I must admit, I was ignorant before my sons accident. Ten years into his life as a quad, he made all of us in the family promise to not ever 'let him exist as a vegetable'. After his stroke late January 2021, the hardest thing I have ever had to do, was pull that plug. Love you guys, Charisma, you are a gem; and you Cole, are amazing.
🙌🏽🙏🏽 stay strong
I enjoy watching your channel because you are so open and optimistic about your life experiences, my life motto is I'm upright and moving forward with my life. I was born with spina bifida and hydrocephalus,and have had several surgeries, including :three brain surgeries for hydrocephalus ,and two back surgeries, the first one was at five days old ,and the second one was spinal cord release because of scar tissue, I also had an injury to my neck ,my discs collapsed C 3,4,5 .I use a walker or a cane for mobility. I don't mind if a child asks me questions about why I walk funny or why do you use that I don't discourage them asking questions I give simple short answers like I hurt my back, I had an operation. If an adult asks questions about my situation how much information I give depends upon what they ask me and why they are asking. This video and previous videos about your injury have been very informative and understandable and helpful to people who are new to the spinal cord injury community.
i am a para. have been since birth, i have been very much enjoying your channel, keep it up
Para since birth here too 🙂
Thank You for Your Openness.
Your ending Cole was hilarious. 😊
Your ombré braids look really nice on you Charisma. Happy Holidays to you and Cole🙏🏽✨
These two are so at ease with each other.
I was born with a disability, called spina bifida, my legs don’t work real well, so I don’t walk I’m confined to a wheelchair, but my arms worked just fine, but I do know how it feels to be asked, or judged about my disability
SB here too ❤
Same here
“Yes!
After 33 years and as the new year approaches, because my injury will be 34 years. People are still asking questions that doesn’t relate to you what I personally am experiencing as Runett as a T3 paraplegic spinal cord injury, because as Cole stated. There may be certain level of spinal cord injuries, but there’s no two people will experience the same problem.”
SB here too. Relating to a lot of what Cole experiences
I have a disease called Charcot Marie Tooth. It effects my hands and wrists as well. My fingers, on my right hand, no longer straighten out and I hold the phone just like you. The reason I started watching the two of you is because I issues have quite a few things in common. I can walk, but nowhere near how I use to and I’m using a chair most of the time now.
I wish all the best, especially when it comes to those who think all disabilities are alike and don’t give us room to be unique.
I sooooo miss Christopher Reeves, I watch all his movies all the time. Coles does almost everything and be everywhere so he’s good 💪🏾🙌🏽❤️
Love you guys! Love both of your personalities! Perfect match! And LOVE informational videos! Love and prayers ❤
Thank you for answering all the questions and thank you also for including me in your coma. 😅
As always, I totally enjoyed your video and thanks for the info!
I hope you'll get invitations to talk about this. It's really important to educate people to have more knowledge and awareness about spinal injury . The more information they get the better. You can share your experiences to other people and to children as well , in school for example . You're both incredible. God bless 🙏 ❤
Thank you so much always educating us... You are so amazing. Cole God loves you so much and He knew you would be of great help in the entire world. CZcams really plays a major role in allowing such info to reach so many people who used to lack such incredible knowledge. Thank you Charisma for your amazing love and eagerness to equip yourself with so much knowledge and see how confident you present to us... I love you family... Stay positive❤️❤️❤️🙏🙏🙏💐💐💐🇿🇦🇿🇦🇿🇦
I just watched this today and I truly can spend my whole day with the two of you. I love your personalities and info. My mom broke her neck and the doctors told her she would never walk again - she proved them wrong by the Grace of God. She's gone now but she had an attitude like Cole and she made things happen. Cole if you use cortisone on your elbows and knees that is fast healing and soothing. Keep doing you and know that I consider Charisma and you family...you're both a Godsend to us all. Much love and God bless.
Loved the information about fundraising! I learn something new every time
You two are the best!!!!❤❤❤ I believe God placed both of you in each other's life for a reason. You two have so much love for each other, I admire both of you and I enjoy your vlogs. ❤❤❤ Continue to stay positive!!!😊❤️
Many blessing your way!
Hi Cole, the natural tightening of your grip when your wrist is in extension is called tenodesis grip.
I have Been following you guys from the very beginning.
Thanks for sharing as always.
You two are adorable..
Informative insight too.
Double comma. 🤭💕
My cousin years ago.
She had a spinal Injury,
And she had broken her leg.
She kept trying to tell her caregivers at the rehab center.
But they didn't take her seriously.
Of course infection set in and she had to have her leg ambutated.
Love you having fun!!!
I love the, 'with all due respect, hush' :)
And I'm glad to be in this 'coma' with you both :)
I think Cole’s hush comment was very respectful. It’s short and to the point! 👍
Cole maybe you could use elbow pads to take pressure off your elbow.
I was going to recommend the same thing but as I was I'm listening to wifey say he won't use lotion so... I'd say the elbow pads aren't going to be worn as often either 😂😂
Pads might might cause pressure points.
You guys are great, true love is what you have for one another ❤❤
As a OTA student its great to watch these videos.
Q1 - drives me nuts! Totally get it!!!
Thank you guys so much for sharing look forward to hearing more things when you guys very interesting questions and people answered until next week Sunday or on Wednesday I'll see you guys then
Hombraids and fresh fades, lookin' good!
Good job! I’m learning a lot!