Uncovering the Unexpected Reason You're not Getting a PET/CT Scan!
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- čas přidán 5. 08. 2024
- Wondering why you're not getting a PET/CT Scan? In this video, we'll uncover the unexpected reason and discuss how to fight your insurance.
If you're struggling to find coverage for a PET/CT Scan, don't worry! We'll discuss the steps you need to take to get approved and get your scan done as soon as possible. We know how important it is to get diagnostic imaging tests, so don't hesitate to reach out to us for help!
Just an update on my husband, he is down to 9 radiations and 2 chemo left, so far hasn’t been awful, some throat pain, lack of taste, not able to eat solid foods but able to get in some protein shakes and the ones I make for him. Some days he feels great and other days can barely function. He has lost about 20 lbs so far, still drives himself to appointments after 5 weeks in the middle of winter in VT. We are very ready for the healing process to begin, this is awful to watch your loved one go through but even worse for them. I’m very thankful for the great support from family and friends
Hi Tina,
Thank you for the update! Your husband is a rock star. At 5 weeks, I'm pretty sure I was not driving anywhere. I may even have done my hospital stint at 5 weeks? Nothing like a bit of stubborness to get one sent off to the hospital... It sounds like you guys have it all working as well as can be expected for now. Keep us updated on your progress!
Lee
PS - Your right, family and friends make the journey a bit easier!
Thank you! I want to make sure I put in info that could be helpful to someone down the road, there really isn’t too many people talking about the journey on U Tube and I’m very thankful you took the courage, it’s a scary time and you helped us so much! Much love to you and your family
Hi Tina, my husband will be three weeks post treatment tomorrow and is still in really rough shape. His mouth still is awful and he still has terrible phlegm. Is your husband feeling better? When did he see improvements?
@@hylah16 yes he is! But he is still having a hard time with food, he did better for about 6 weeks and then it changed, he can take a few bites but then he’s done, he meets the ENT on Tuesday so we will see what he says, also his 3 month scan was clean. I will also add, be prepared for the changes in his personality, cancer changes everything and everyone one way or the other, my husband is not nearly the same but I love him still!
@@tinalander2794 thanks Tina. Just having advice and a response from somebody who has been through the same thing I’m going through means so much!
I finished radiation for throat cancer 3 months ago and my throat still hurts but is tolerable but have left ear pain but all in all the doctors say I did well on treatment. Having a pet scan today
Hi James,
Glad you are feeling better. How did the scan go?
Lee
So thankful i never had to go through that...two years later and still in treatment. Americans can say what they want about our system but when you are really sick...you go to the top of the list.🇨🇦
Are in treatment for throat cancer or another type? 2 years... That is A LOT!
@@theregularguy141 Bile duct new and colon relapse from 8 years ago ...two primaries. So far I've been very fortunate. Ten hour surgery for bile duct, clear margins, no lymph node invasion. First rad treatment today for 15 mm module on lung...stage 4 colon. If they had not expedited me to surgery in two weeks I would be gone. Doctors like my progress and there's a very good chance moving forward that this could all be controlled. I am not saying the system is not frustrating at times but they don't mess around when you are really ill. Sure you might wait a while for a knee replacement but not when it's life threatening. You guys have been duped about our system being a complete failure. I have my suspicions why that might be.
@@theregularguy141 btw...bile duct operation was over two years ago and had chemo for that.
Thank goodness here in the UK cost isn’t something you have to worry about at this stressful time, everything is covered by the NHS including all the supplement drinks. I can’t imagine having to deal with the stress of health insurance while going through the cancer treatments.
I admit that this has been a huge shock. During the pre-treatment, treatment, and initial post treatment phases, the insurance company was fantastic. It seems that this is a sticking point on this 1 year scan. The fight is still ongoing!
Lee
Ditto . I’m from the UK too and recently been through throat cancer treatment. No extra worries about treatment ❤
I read a book on celery juice and how it helps to defeat cancer along with carrot juice.
Hey Randy,
Send us some links on this. We are definitely interested in checking that out!
Lee
That's terrible, it's all covered by medicare here in Australia, free. I've just started week 6 and still eating soft food with the fast oxy and lidocaine. I'm on IMRT 70 gray just like you, seems to be an international standard IMO. I hope this works out for you with the insurance, this is so terrible to hear you have to go through all of this. Keep on posting those videos with all the updates. Cheers champ!
Great news about the eating! I'm hoping the insurance will see reason once the complaint has gone through the ministry of health here. Here's to a quick recovery and back to surfing!
Another Ozzie here. Just waiting for a mri for conformation.
Here's the thing. There are two phases of cancer; before your diagnosis and after. They are never the same. As you move from one to the other, you learn a lot about stuff you never wanted to.
You are right there, as late as January/February 2019 I NEVER expected to be researching cancer and cancer treatments...
Lee
The celery juice book is written by Anthony William.
Thanks Randy!
I'll check it out
Lee
I’m still waiting for the ok from my Insurance for my pet scans due the 1st week of Feb. I’m going to call this week but I also just had the NavDx blood test that’s supposed to be 99% accurate for any HPV left in your system after treatment. Is this a test you’ve heard of? I believe my Dr said I would get tested every 4 months for the 1st year but he did order the pet scan.
I’m still loving the dry mouth and lack of taste but at least I can eat again. One day at a time. You take care and good luck.
I've been getting a regular exam through the ENT every 6 months with no issues. The Oncologist wants a PET/CT annually for at least 3 years... So, I guess I get to do an annual insurance battle? LOL... Now, that NAVDx sounds interesting! I'll be checking on that as well. Great info, thanks!
I’m in the same boat with a pet scan for the next few years also. I trust the pet more, it’s going to pickup anything different that’s not just HPV related. Let’s just hope that never happens. The wife called again today and I’m still waiting on my insurance approval. Funny because the Dr already has me down for the 3rd for the follow up on the pet…
Keep us posted on how things go for you.
Thanks Lance! I sure will.
How are you feeling now bro?
I'm doing well, the dry mouth is still an issue, but other than that, all is well! Thanks!
My diagnosis just came back yesterday, I have MONO
THAT is great news! I'm sure that is a big relief!
Lee
@@theregularguy141 OMG, yes, because I honestly thought I had throat cancer like you. I was so relieved, like a big Weight off my shoulders. I think I mentioned to u that my favorite brother died of head/neck cancer (nose) and was not pretty what I witnessed.
Hi, it looks like I’m not doing too good afterall. Yes, I really did test positive for Mono on March 7, but today is March 26 2023, and I’ve been hoarse now for over 5-weeks. I’ve been to the ER (4) times now and everything is now being blamed on my Mono. Even with Mono, I shouldn’t be hoarse for over 5-weeks. I’m getting blood out of both nostrils daily and my prescription pills are getting stuck in my throat.
@@katinabotten I think there is something going around, my daughter (in her 20's) also has had a sore throat, cough, hoarse voice etc. for the past 5-6 weeks as has a friend of hers in a different state.
Insurance, what a shame!
Yeah, they were great during the whole treatment phase, but the post treatment scans etc. have been difficult to get approved.
Lee
Thanks so much for your channel learning a lot just received back my pathology report HPV 16 positive from the tumor on the tonsil size was 1.5 cm grade 1. I had a CT scan with dye 4 weeks scan came back negative. Found out early stages can be hard to detect on a CT scan
Did you loose your beard for a while? My husband wants his back.
Hi Infinity,
Most of it! It was patchy and scraggly for quite a while. Even now, the left side of my neck is baby smooth as that's where the majority of the radiation was focused. Basically growing any facial hair below the jaw line is an exercise in futility for me.
Lee
Got mustache and gotte left