Curiosity: Uncovering the Secrets of Cancer Radiation Therapy
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- čas přidán 10. 12. 2022
- In this video, we dive deep into understanding radiation treatment for cancer. Learn about how radiation therapy works, its side effects, and how it is used to target and destroy cancer cells. Whether you or a loved one are considering radiation treatment, this video will provide valuable insights to help you make informed decisions. Stay informed and empowered in your cancer treatment journey with this comprehensive guide on radiation therapy for cancer.
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Finishing my 34th season tomorrow thanks to God, was far less painful than I had anticipated. But lost taste after 7 days, after 2weeks I couldn’t eat anything, mouth is completely sore, not so tired. Live at the hospital hotel while social worker look after my kid, it is different for everyone, I heard the worst starts 2weeks after finishing radiation, I hope God gives me strength to go through it.
Hi Juliana,
That is great news that you are finished with your treatments. I hope these tough two weeks are easier than you have heard. The hard work is finished, CONGRATULATIONS ON GETTING THROUGH IT!!
Lee
Good day Mr.Lee
Wishing you and your family a happy and healthy new year 2023.
Thank you Vijay!!
I have stage 4 tonsil cancer. I go for the mask fitting in the morning & start 35 sessions of radiotherapy in 2 weeks. I will also be having a session of chemo at the beginning & another one in the middle of the radiotherapy. So far the procedures I have had are, right tonsil out, feeding peg fitted & several teeth out.
Hi KarlJ,
My big advice is to follow medical instructions, keep an upbeat and positive attitude, USE THE PEG TUBE (my personal BIG fail), nap during chemo and or take a book, Journal your experiences. I found journaling and writing to be kind of therapeutic. Keep us updated, we are all here to help!
Lee
Had radiation therapy done for adenoid cystic carcinoma. I can tell you the worst part of my treatment was not the side effects but yes my damm mask. Urgggh feel for you Lee 💯
I was on exactly the same linac machine too
That mask definitely took some getting used too. I had to have a new mask made about 5 weeks into my treatment due to weight loss.
Lee
13/6 I went back for some follow-up appointments Lee
Thank you
You're very welcome!
Lee
Hi again, thank you so much for letting us know at what stages during radiation you started experiencing difficulties, I start radiation next week so extremely helpful! It will also be on an MR-Linac machine which is the only one in Victoria Australia and only since 2021, 20 minute drive from my house.
My husband also starts next week, along with chemo
@@tinalander2794 Yes, chemo as well, I was told my hair will fall out.
@@MrSurferglobal my husband was told the same, We are in Vermont so he will need a hat to keep warm, keeping you in my thoughts, you got this!
Good luck to you @Mrsurferglobal In all honesty, the effects will vary based on amount and type of radiation being used. I’m certainly glad my videos are helpful to you and once let us know if we can help! Looking forward to good news from down under!
Lee
Hey Tina @Tinalander,
Good luck to your husband. Tell your husband to full Dwayne Johnson on his new look! You’re right though, it gets mighty cold in Vermont so that will be crucial. We are all looking forward to good news from you and your husband. As always keep us informed!
Lee
8th treatment down! Chemo once per week (2 so far) and 8 radiation treatments. So far taste is changing day to day. Some things taste good other things not so much. I expect that to change after the second week from what I understand. Still working and walking about 2 miles a day.
Wow Michael! That’s fantastic! Stay as active as you can and yeah, the tastes will definitely change!
Lee
It's a tough, tough battle. I'm tuckered out. Wish I could eat a Thanksgiving dinner again. Don't think that'll happen. I'll fight.
That was my big motivator. My daughter was coming to visit at Thanksgiving. and I definitely wanted to be able to eat, even if it was just a little bit. AND I did. Carefully, slowly, a lot of chewing and lots of water to wash it down. You can do this!
Lee
Hello, I’m about 2 months out of treatment. 35 rads and 6 cisplatin. Started developing Lymphedema. Lymph nodes aren’t working properly. Did you experience any of my symptom? Thank you. Keep up the great videos
Hmmm, I have not had any lymphadema symptoms. It appears the nodes in my neck are working correctly. We had the same treatment, 35 rdiation and 6 cisplatin rounds. How long did it take you to get back to eating normal foods?
Lee
My appointment with ENT is on May 4, 2023, @ 1 p.m. My Dr is Dr SINACORI (he is a very renowned ENT) and I will be going to Eastern Virginia Medical School in Norfolk, VA.
Now THAT is great news!!
@@theregularguy141 Thank you so much! I’m positive he will figure out what is wrong with my throat. I’m still hoarse (a bit worse over the 8 weeks) and my throat just burns! I’ve recently lost almost 10 pounds in a matter of days. I’m not eating much, just wanting ice cream. My Weight is 169 pounds and I’m 5’2. I need to lose weight but not this way. My fatigue is the hardest thing I’m having to deal with. I’m in bed 75% of the time. I get up and do chores and the the fatigue hits after like 3-hrs, my eyes get real heavy and I have to go to bed. Anyways, when I was in the ER on April 18, 2023, the ER doctor said in his practicing career he has never seen a mono sore throat stay sore and hoarse for this long (since February 16, 2023). My PCP, (she is not a M.D.,) & she wouldn’t send me to ENT (I’m a Navy Veteran) in the beginning because she said my symptoms were consistent with Mono, despite trying to tell her how much pain I was in constantly and felt like something else was wrong. Finally, she had to send me to ENT because by now, the ER could not justify the sore throat for over 8 weeks, and she could get in trouble if something happened to me and my symptoms are not consistent with MONO, and my CT scan of the soft tissue in my neck showed no swollen lymph nodes and came back normal. But the radiologist said I need to go to ENT to be scoped and that is by far much better at catching a malignancy than the CT scan, and that is the only reason why she sent me to ENT. I had to push (and the ER dr) as well to get my CT done a month earlier to speed things up.
Thank you for positing your journey. It really helps a lot. How long of time was it between when your tumor was first discovered and your first chemo radiation treatment? My tumor was found on May 30th and I have my first treatment tomorrow (June 26th). Is that quick or slow?
That's a good question. I noticed the swollen lymph node in my neck in February of 2021 and after several scans and a biopsy, I believe I was diagnosed with cancer in April of 2021, started treatment in June of 2021. I would say yours is very quick!.
Lee
@@theregularguy141 Thank you for your reply and glad you are doing well.
Doing Awesome Kirk, Thanks!
My with is free fm throat cancer after her treatment. She completed her treatment in sep 22 and had pet scan in dec 2022 and she is free fm cancer. We can she some improvements but still she couldn’t eat well, no test and still has throat pain, she has very dry mouth and no saliva.
We would appreciate if you could share your experience after the treatment / pet scan. How long you had throat pain and when you could able to eat well. When did you got your test back? How long you had dry mouth.
Thanks and look forward to hear fm you.
Hi Vijay!
The pain just gradually faded. I was eating somewhat normally after the PET/CT, but still had some trouble swallowing. I had to take VERY small bites and chew much more than I used to. I would say that my eating was pretty much back to normal approx. a year after treatment ended although I had problems with spicy foods. The spicy foods I could eat before were way too hot. Unfortunately dry mouth is still an issue. I carry a bottle of water around with me and have one at my bedside. I have heard that it can take from 6-8 months after the treatment ends to get taste back and saliva to come back to normal, IF it does. So, my taste recovered to about 90% and the dry mouth still bugs me.
Lee
@@theregularguy141
Good morning Mr.Lee,
Thanks for your reply.
Very informative I am in New York City, Where do you live? l Where were you treated?
Joe
Hi Joe,
I am in Dubai, UAE. I was treated at Mediclinic Middle East Comprehensive Cancer City.
Lee
Jow long did you have yo jeep the feeding tube? ❤
I had it for about 6 months.
Lee
When do they have time to put in a feeding tube, when you have
Treatments everyday?
Mine was put in about 1 week to 10 days prior to starting treatment.
Lee
I finished my radiation on May 12 and after two months it’s still pretty rough on my system, I still cannot drink water
If I remember right, I didn't even come close to feeling like I was recovering until about the 5-8 week mark and then slowly started to sip water. Chin up, you will get there!!
Lee
About 3 months finished with radiation and chemo , Going for a Pet scan with Ct scan combined tomorrow. starting to eat slowly and drinking fluids my problem is aspiration swallowing . Oh Did the Pet scan getting results, so getting the news .
Hi George,
Fingers crossed for the good results. Let us know how you get on, PLEASE!
Lee
i was diagnose with invasive squamous cell carcinoma in background of squamous carcinoma in situ of base of the tonge 4x4cm going for ct scan for staying and planning can any one give me advise
Hi Deon,
The staging and planning are critical for getting the treatment targeted correctly and insure that the right treatment is prescribed. If it seems like the treatment is difficult, well, it is. That being said, you can do it and get through it. My advice is to make a list of questions for your doctor and ask them. Follow their advice and don't bail out on treatments. If you and your oncologist feel that you will have difficulty swallowing food, then ask about having a PEG tube put in. You may not need it, but better to get it earlier than later. Once you find out what treatment regimen you will be having, watch some of my other videos that may give you some insight. Of course you can always hit the community up with questions here.
Lee
Having throat cancer and 5-day a week radiation treatment how did you manage fatigue?
Great question. In all honesty I just simply slept when I was sleepy. Naps, etc. There was no real managing it, I just kind of did what felt right. Nap for 20 mins or 3 hours. The hardest was the 3+ hour days with chemo.
@@theregularguy141 I’m just so glad you survived and was able to endure the unbelievable grueling and at times, probably agonizing treatments that left your mouth dry and hard to speak. Thank God for saliva, right? 🥲 I don’t know how you did it by napping here and there and sleeping when u can, but you prove that life is worth living for and the human spirit can push you thrush sometimes the impossible. My Stepmom told me years back that her sister-n-law when she had chemo, the chemotherapy actually “burned” her insides and she passed away from this and not her cancer. Also, your strong despite losing the weight you did, and you were able to endure the treatments despite it “sunburning” the inside of your throat. Your a true inspiration, you really are. Your wife is an angel too because of her undying love and support for you, so I wanted to give her credit here because I’m sure this wasn’t easy on her.
I got 5 radiation treatments left and my skin on the left side of my throat is cooked! Chemo is finished lots of mucous to deal with , i feel like giving up ! Help!
Hi Rebel,
This is in fact the roughest patch. Your last week of radiation and the next 2-3 weeks of recovery post radiation are going to be a real bastard. Get lots, and lots of fluid intake (PEG, swallow, IV, etc. That will help somewhat) Use the magic mouthwash and then, well, you gut it out. You are nearly finished with this ordeal. You can do this. It seems impossible now, I know, I have been exactly where you are right now. YOU. CAN. DO. IT. Feel free to email me if you need anything! Look above @jonmichaels comments.
Lee
How are you? I hope you are feeling a little better!!
Was yours photon or proton radiation?
Proton…. I believe.
Sorry about the typos in my last text Lee , I’ll make sure I spellcheck it better next time,but I think you know what I meant.
LOL, I got it.
I've throat .
Hi Melissa,
I am assuming you have recent been diagnosed. I am sorry to hear that. It is a tough fight, but it is certainly a winnable one. I think I can speak for all of us here, that we are all here to support you and anyone else who finds themselves in this spot. Let us know how we can help.
Lee