Gastroparesis Makes Man Vomit Everything He Eats l Body Bizarre
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- Äas pĆidĂĄn 16. 05. 2024
- 45 year old Lee is suffering from gastroparesis which is a condition in which his stomach cant be emptied naturally, resulting in him vomiting everything he consumes disallowing his body from retrieving its daily essentials.
From season 6 episode 14.
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My daughter had gastroparesis at 17 years old. She was in a bad car accident that caused damage to her vagus nerve. That caused the gastroparesis. She couldnât keep anything down. She lost so much weight it was terrifying. She finally found some foods she could digest and overtime she got better as her nerve repaired itself. Now she is 24 and can eat normally.
God bless your daughter
thatâs horrible accidents like that happen, but super glad sheâs all good
I absolutely loathe vomiting I can't imagine what this guy went through.
I have it, and itâs as awful as you imagine. I havenât eaten anything but chocolate milk for the last two years. Iâve lost 100 pounds without trying, and Iâve developed an aversion for any type of food.
@@graciesmom62 My heart goes out to you and I hope they find a cure. I absolutely hate, hate vomiting I can't even imagine what you go through on a daily basis.
@@ThatBearHasMoxie Thank you for the well-wishes. đ
It drains all the strength out of me. If i'm nauseated to the point where I have to vomit normally afterwards I have to lay down. Ehxausted.
@@Zarathustra-rj4yz that sounds just like me. After I đ€ź, I break out in a cold sweat, and more times than not, I have to lie down for a bit, as the đ€ź takes all of my energy. It even happens as Iâm walking down the street, shopping, etc. itâs projectile and I have only 2-3 seconds to find a bathroom before I start. People stare; they assume that Iâm some sort of drunk or druggie. I canât live my life just sitting in the house next to the bathroom, waiting to be sick. Itâs a really nasty illness.
That's rough! I really feel for the man. That's no living. his just surviving. The doctors have really let him down. But I'm wishing him the best with this new treatment.
I had this when I was 17. It was such a scary diagnosis. I had to eat radioactive eggs for them to take images to see where the eggs were and how long they stayed in my stomach. They tried so many things. I would look 8 months pregnant, in one stomach episode I had the receptionist literally think I was going into labor. It caused me horrible pain. And eventually I would vomit. They had to put multiple Tubes down my nose into my stomach to pump it, and to make sure I didnât vomit into my lungs.
One day, it just stopped. And Iâve never had an issue since. The doctors still donât understand what exactly caused it or caused it to go away. I feel for this man.
Jam SO, GLAD It DISAPPEARED, My LATE ROOMMATE had it and passed of DIABETESCOMPILATIONS
My heart goes out to you
That actually happened to me too. I suffered for almost 4 years and then one day it just stopped. Thank God đ đ
@@kaseyj4103 seriously? Has you gastroparesis disappeared after 4 years?.
Sometimes our bodies can heal itself. So glad you're okay and prayers for continued good health!
Why in the World wasn't that man on IV nutrients, vitamins and fluids?
because doctors always keep enteral and parenteral feeding unless we are inches away from dying. An obese person can be malnourished and they wont even bat an eye on nutrition, and even underweight they barely care. Its like us not being able to eat doesnt matter but for people take away 1 meal a day and they are "dying"..
I have same exactly but add I can drink anything without regurgitation so am on TP & LR via port in my chest.. yes mine was caused by paralysis from chemical warfare and then they attempted multiple surgeries to try to get my system working again. But I have complete paralysis from the lower esophagus to the lower intestine. I live a pretty normal life though you still have deterioration on IVs, but as long as you walk deer water therapy and your IV nutrition you donât waste away that much and you can live a semi-normal life. This is a sign of stubbornness or poor doctoring
Wouldnât he vomit his food from the enteral feeding ? His condition needs to be corrected. The only thing he should be on his Iv fluids ex: dextrose normal saline
@@Zee-ob1pe He wouldnt vomit if the feeds are in his jejunum. The stomach is paralised, Enteral feeding can either be delivered into the stomach or small intestin/jejunum
@@Zee-ob1pe If he tolerates tube feeding/enteral, continue with such. if he shows intolerance, proceed to check if the intolerance is feed itself or the formula. if its general tube feed intolerance, proceed with IV nutrition/parenteral if there is no other way.
doctors need to stop gaslighting patients. i had my symptoms ignored for 7 years until a doctor finally listened to me. wound up with stage 4 endometriosis. doctors are overwhelmed i get it, but we just want to feel seen and heard and we'd rather be told I DONT KNOW from a doctor vs "no youre lying/wrong/imagining it" its degrading and makes you question your own sanity.
so happy to see his recovery, thats an amazing journey hes been on and i hope it continues for him.
I can't say enough how much I agree with your comment. I've read stories of people whose symptoms were ignored and they ended up with the end stages of cancer which could have been prevented sooner. lives could have been saved if doctors listened and took patients seriously.
Same happened to me with Endometriosis, doctors really ignore this disease and for most women it goes unnoticed and untreated for years, it's also not talked about enough and I don't see doctors doing enough research to try find a cure. I hope one day they will, in the meantime we have no choice but to endure.
My daughter was a diabetic and she would suffer for almost a year with gastroparises it was so bad. If she was not vomiting she had severe diarrhea, she could not leave the house that's how bad and random it was. Hope this surgery helps and corrects itđ
My sister suffered as a result of her type 2 diabetes. She passed away from complications at the age of 46. It was so bad she got to the point they tried to bypass her stomach but it didn't work.
@@lorettacarroll6015 that Ăs so sad Loretta đą. There are cures for every disease known to man, with thousands of patents about to be released. I'm so sorry your sister could not be helped . đą
Oh my God. I hope your daughter is okay now.
I have been suffering from this for a year now. I tested negative for diabetes and my colonoscopy and endoscopy results came back fine.
@@ozgal6929 no, there arenât cures for every disease.
I have gastroperesis also and it has caused me so much trauma. it's hard so I understand his pain so much. my heart goes out to him. â€
Is there any treatment or surgery that may help? I hope there is hope for you to get better. đđŸ
You're awesome đ«ąđ„șđđđŠ
@@jazzya7383 you are so sweet â€ïžđ as of now no. I heard as crazy as it sounds botox injections in my stomach. I'm wondering if that could help.
@@jazzya7383 my friend has this and she takes Gabapentin and it helps her so much.
I'm now skipping meals to avoid vomiting but end up with gas pains.
My uncle, at age 92, came down with this. He opted not to treat it and chose to have nature take its course. He passed about a month later.
God bless him
Letting nature take its course! Thats Crazy way of dealing with death
@@end.olives At the age of 92, itâs understandable.
ââ@@end.olivesseriously.. I'm a Doctor here.. The old body is a mental torture! Everything starts to failing and degrade fast... Vision, strenght, mobility (if not exercising) senior need an exercise to keep maintaining the muscle function. Yet their body is terribly slow at repairing and disgesting.. also the sleep function went south..
We have no nanotechnology, and youth rejuvenization to prevent "natural" dna damage is not practical in term of affordability.. have you heard of Brian Johnson guy? You'll get what I mean when you see the regimen to preserve that..
I'm so glad he kept searching until he found a doctor that believed him. A lot of people, including me I'm afraid, would have just given up after so much rejection and just resigned themselves for death.
Omg thatâs awful đą
How are things going for you now?
I had the same thing after having gastric bypass surgery. I had to be put on a feeding tube. I canât believe he went through all of that for 6 years before a doctor came up with an idea of how to treat him.
I really feel for him. That was a really hard time in my life. I hope that he is well today.
My friend got that surgery and she began vomiting as well. She started off 5â5 330 lbs. she under 80 lbs now. I hope you are well now!!!
My dad has puked for over 10 years because of his lap band
In all likelihood, if you were a diabetic pre surgery, it it more likely it happened due to that, and the trauma of the surgery just set it off.
Did the surgery work? My son is having surgery for it in a week. I'm terrified it won't work. He can't eat or barely drink. I'm praying everyday it helps him. He's only 27.
My friend had issues like that after having the gastric bypass. He was so skinny in comparison and not only skinny but looked sick. But he sold always say he couldn't eat etc unfortunately he also did hard drugs and ultimately passing away to young. My heart hurts and eyes are burning with tears as I type this, he was the one of the most loving souls in life I've ever known
I am so darn HAPPY that *LEE* was able to find a *Dr* who was compassionate and willing to try to help a man who was clearly suffering. It is sad that some Drs keep telling patients that certain issues they have are all in their head. Doctors need to make the effort to try to help their patients and not turn them away or tell them nothing is wrong with you simply because as a doctor they don't know how to deal with the condition or ailments a person has.
Jesus fuckin christ, what absolutely gets to me is how you can see is entire posture has just been like
"adapted" to throwing up. I used to be bullimic and i swear i could almost feel the "motions" and mechanics of it just looking at him. I hope the best for em' and anyone else struggling with conditions like this.
Good on his wife for sticking with him and being so supportive. Always lovely to see people willing to care for their loved ones when they become ill.
I am so happy for him now that he is getting better. Amazing. That doctor is incredible. I wish my sister knew about this. Unfortunately this along with other diabetes complications resulted in her passing at the age of 46.
Sorry about your sister đ
as someone who struggles with this illness, it makes me feel validated to finally know there are other people out in the world who struggle also â€ïžâźïž may we all heal eventually
As somebody who also have severe Gastroparesis, it makes me happy to finally see it shared on TV. Nobody seems to talk about it, itâs a horrible disease Iâd never wish on anybody. Most doctors donât take us seriously, I was 69 pounds at 17-18 and my doctor still wouldnât give me a feeding tube despite not eating any solid foods for nearly a year and surviving off 1-3 carnation drinks a day. Iâm 22 now and finally found a doctor who took me seriously, took four years and seeing multiple specialists, but I finally have a GJ tube and am better than I was before. Itâs a still a struggle, especially with my tube cause feeding tubes comes with its own problems but Iâm incredibly thankful for it. Thanks TLC for spreading awareness for us
Hi kaylee
I just wanted to ask how you are doing, I hope your feeling better, I am glad that TLC aired this programme and I am glad that my illness has helped others, especially the ones that weâre getting no help, or not taken seriously.
Just over 3 years now since my surgery and Iâm fit & healthy and very lucky to be alive, I thank god every single day.
Have a good evening
Kind regards
Lee
I'm so so sorry for what you went through. I cannot fathom how a doctor could look at a 69 lb 18 year old and say "yep, everything's fine here". I know it's been a year, but I hope you're doing as well as possible. I'm sending positive vibes into the universe for you đ
Ah God bless this man and heal this horrible disease. I am sorry Lee; blessings to you and your family. I hope you feel a complete turnaround in your health and build back your strength.
Amen
đđœ
Happy he is now able to eat solid food!
He shouldâve been had a feeding tube what the fuck
Sadly doctors do not care unless you are literally close to dying then they give people a feeding tube.
My best friend had this same condition, and she had a surgery where they placed a heart pacemaker in in her stomach, and she is doing great. đ
Can I ask a question, the doctor follow up her condition was a specialist in gastroparesis, digestive diseases doctor or a surgeon?
Iâm getting ready for this surgery. Gastric pacemaker with a pylorplasty.
â@@slconley How are you? did you get better?
@@user-qq4mj8dj5h I havenât had the surgery yet. Itâs scheduled for next month.
@@slconley Thank you, Amrj, promise, doctor, that he will perform an operation. Can you provide the address and name of the hospital? Thank you
My mom had this disease for 12 years, it was caused by her diabetes that fried her vagus nerve. She was on disability because of it, but she was able to eat more than Lee, his disease seems even more severe than hers was which is hard for me to comprehend. My mom died from diabetes complications, but gastroparesis patients are at increased risk for dying. Unfortunately there isn't any full cure that I'm aware of, but I'm so glad that Lee is feeling some relief. Feel so bad for him đ
Yes that's what triggered mine was type 2
Chemo triggered mine
@@VIXENCOWBOY127 so sorry to hear this. I hope you are finding some relief. All the best â€ïž
@@audrab27 very sorry to hear. Did your doctors confirm this? When my mom was diagnosed in the late 2000s they called her gastroparesis "idiopathic"/unknown origin. They NEVER mentioned a connection to her diabetes. It was only right at the end of her life when the diabetes domino effect was killing multiple other organs that the big picture of the diabetes was acknowledged. At any rate I hope you're able to manage your disease to some extent â€ïž
The cure is high strength B1. B1 is crucial for not only glucose metabolism but also vagus nerve function. Unfortunately hardly any doctors are taught these things, theyâre just glorified drug dealers.
I used to vomit anything I ate for 4-5 months. In just 2 months, I lost 12 kgs. In the span of those months I lost around nearly 18kg! I went to see a doctor and helped me normalise my feeding. Itâs not similar to Leeâs condition. Praying for Leeâs health to come back and may he have the will to fight this through! đ
When I was younger, I had surgeries on my legs (I was born with cerebral palsy). Because of the pain, I was given medications that were really bad for my stomach, making me vomit EVERYTHING, even water After they treated that and I was 'cured' I was still vomiting a lot. I had gotten so used to my body rejecting food that my mind tricked my body into rejecting food and got diagnosed with bulimia, doctors said I'd die.. It's been 10 years since I recovered but I ll never forget that
i am actually very glad to see a video with gastroparesis being the topic. i am only 16 years old and have been diagnosed just a few months ago. it is definitely not easy and i wish there was more information on it, as well as some remedies. i wish everyone with this condition nothing but the best. you are not alone âĄ
Gatorade, ensure and boost are my friends right now, one day I can have something next day no, salad was staying down now it won't, it is so depressing not being able to eat. I wish there was a support group or something because it's hard when no one else understands what you're going through
So glad to see a successful story regarding the Gastric Stimulator. As a Gastroparesis Warrior myself, I can relate to Lee's story and life. I was diagnosed with Gastroparesis In early 2019 after years of suffering and misdiagnosis. Although my stomach is not "completely" paralyzed, I was diagnosed with severe Gastroparesis as many of the treatment options available did not work for me. I was referred to a Motility Clinic in my city in the U.S who deemed I was a good candidate for placement of the Gastric pacemaker. I had my initial surgery to place the Stim in November of 2019 and over time had to have the electrical stimulation turned to almost the MAX setting. My disclaimer is this: the Gastric Stimulator is not for everyone. Everyone's body will react differently in different situations. I have known many who have had the surgery with no success and I have seen those get the surgery with the utmost success. It sounds like Lee is one of those stories. the pacemaker for me has decreased my instances of naseau and vomiting but of course at a price. Due to being at the highest setting, my battery is currently only at 8% and due for another surgery to replace the battery (hopefully) sometime soon.
My message is this .. not all diseases can be seen. We need to stop judging others who may at first "look ok", while honestly deep down they are battling a disease or illness that is ravaging their body. Gastroparesis can be an "unseen illness" with most battling their nausea and vomiting and weakness "behind closed doors ". It is only when the illness starts to show that many of us are believed. Gastroparesis IS a rare disease. 1) It affects only a small amount of the total population. 2)Gastroparesis has very few effective treatment options.
3) There is currently NO cure for Gastroparesis.
As sad as it may seem, stories like Lee's, stories like mine, stories like other Gastroparesis sufferers need to be seen and heard. It is the only way to raise the flag on a disease that needs more attention given to it. Don't get me wrong and by no means am I saying diseases like cancer or heart disease, Alzheimers etc are not important, I am just trying to make it known that there are other diseases with no cures or less effective treatments that people are suffering from every single day. #GastroparesisAwareness
I have Gastroparesis(caused by Ehlers-Danlos Syndrome) as well and it's hell. I have a feeding tube too and it's saved my life and quality of life.
I'm so glad that he finally found a doctor that could help him đ đâ€ïž
I've been dealing with regular daily vomiting for the past year+, sometimes up to 20 times in one 24 hour span. Got my gallbladder removed a month or so ago and now I'm finally seeing some relief, but I still have some bad days like yesterday for example. The hardest thing for me is going on walks personally, I'm drenched in sweat to the point of needing to towel myself down after a half hour walk even when it's dark out and staircases render me out of breath so quickly that I sometimes need breaks for my two flights leading to my apartment. I hope he sees a full end to this hell that I can relate to, even though mine isn't nearly as bad as his is. I wouldn't wish the feeling of my head spinning right before I start gagging on my worst enemy. Sending love into the world for Lee, that's for sure.
@Vic Rose
Go to a holistic doctor they will help you. Have discernment
Did you get covid âvaccinated?â If so seek help from a doctor who specializes in helping covid jab victims.
Have u checked your heart
@@Teewriter I threw up way before I got vaccinated pal. Take your idiocy somewhere else please
Get evaluated for Irritable Bowel Disease, it causes a lot of systemic problems..
Oh yes... I love that he's on the mend... never ever take 1 doctors word... always always get more opinions until you find the one you're after.
I occasionally get this from my EDS and my vagus nerve being pinched, especially if i make the miatake of eating less than 4 hours before lying down.. I'm blessed to have figured out the triggers are for my nerves (they include certain foods that seem to mess with my vagus nerve firing properly) Every time it happens I feel like I'm dying, its painful and so intensely bizarrely sickly feeling. Sweats, dizziness, feels like a full nervous system malfunction. I immediately hop in the shower and start gently rocking my torso side to side slowly. It seems helps reset my nerve and empty the contents into my intestine. I've heard other folks describe how shower and running water over the body seems to help relieve some of the intense discomfort and help the nerve soothe. I absolutely kno it's not going to "fix" it for everyone so don't get mad at me, it's not a cure it's a coping mechanism and it works for me.
Having this condition is really hard and doesn't only traumatize you but your family as well. It's a heart breaking thing to go through.
I have gastroparesis as well (idiopathic) and it's a horrible disease!! It's a struggle every day. I'll never give up tho!
I love how the drs are telling him his sarcoidosis, his diabetes, and gastroparesis are all in his head and that even though heâs vomiting every time he eats and is literally wasting away thereâs nothing wrong with him đ€Šââïž
The NHS will tell people anything before they have to diagnose someone. A diagnosis means that person is entitled to care, treatment and resources and the gatekeeping is so cruel as the funding is so badly mismanaged
My son has had this for six years and itâs like watching him die Drs say nothing can be done nothing can be done. They put a tube in his stomach and he was so desperate that he ripped it out after four years trying to commit suicide and now they wonât put it back in Iâm going to see if I can get him seen by this dr
Heâs 39 now
Prayers to you and your family xoxoxo
Please make a doctor examine his ghrelin and leptin levels which are probably low. If he can supplement with rikkunshito from Japan, give it a shot, i had Gastroparesis from covid and it was a nightmare from hell. It was the only thing that helped me. Iâm so sorry. Youâre an awesome mom!! The rikkunshito also has been documented in medical journals how effective it has been with slow gastric motility. Give it a couple of weeks
@@AyyRalphy thank you so much
Sadly, it's too typical for doctors to claim it's "all mental," when they don't know what's wrong with a patient! After all, if they (with their God-like brilliance) can't figure it out, then blame the patient! **rolls eyes**
The clip showing him after the surgery made me so happy for him. He didn't look like a living corpse anymore! I hope he never have to suffer with it again.
This is such an amazing story! Glad FINALLY helped you!
These videos really make you appreciate just how good your regular life is, with bladder problems I find it hard to live happily but it pails in comparison to this, there is truly no limit to how bad life can get
Thankfully he is doing better!â„ïž
It makes you wonder where some of these doctors graduated, when all they have in response to conditions they donât understand is; âitâs all in your headâ. I thought weâd moved past that 1800âs psychological BS; apparently not. Iâve been told the same, & still am, in regards to my 2 chronic genetic disabilities (fibromyalgia - which has now plenty of got scientific research behind it, most recent being from the Royal London to say there is strong evidence to suggest itâs an auto immune condition. As well as Ehlers Danlos Syndrome, which ironically can cause gastropersis just like this gentlemen suffered from, & many of those who suffer are told there is no cure & sadly end up passing from it / complications from it).
Iâm so very glad he was able to have such life changing surgery. I only wish this was more freely available to all who struggle with this terribly debilitating condition. He looked immediately healthy as soon as he was filmed a few weeks after his operation! Iâm so glad heâs able to enjoy food again. Long may it continue for him. x
Some doctors just canât be bothered doing good work. Itâs disappointing and makes a patient feel like theyâre imagining things
God bless that doctor a million times.
He looks so much better after that surgery! I'm so happy for him!
This is heart breaking đą I want to give him a hug and say youâre such an inspiration and legend â€
O my word this poor guy. Bless his heart
My eyes welled up seeing him in that cafe!! How incredible to see him getting better â€
Wow I am so happy the procedure seems to have worked.best of luck to Lee đ„°
He should of been put on IV fluids and vitamins also a feeding tube a long time ago
Unfortunately doctors donât take us seriously most of the time đI didnât even get either of those when I was 69 pounds when I first got sick. Itâs awful
I was in kidney failure for about a year before my Dr's took me seriously. I passed out and needed to be carried to the hospital. Medical gaslighting is real. Glad to see he's doing better.
That guy went through hell. Iâm so happy for him and his wife that he is doing so good now. He looks great now. I couldnât believe he ate that big plate of food lol. Thatâs awesome. GOD BLESS
Poor man hope he gets better..
I have gastroparesis also and I feel his pain. I'm eating baby food and it's just not enough! Doctor said that they can't do anything because they don't want my stomach to stop working. My stomach only works 6% out of 100 and was denied disability.
Find a different doctor and advocate for a feeding tube! My GJ tube has been a miracle but it took years to find a doctor who took me seriously about that request
Wow, amazing outcome! Thank God!
All the best in your recovery x
And I think I have issues. Praying for you
Makes you rethink, doesn't it?
@@peaches44 yes it does
Wonder how many times over those years he was congratulated by doctors for the weight loss. Sounds absurd but almost every heavy person I know or have heard from when they started dropping weight without cause or effort and went to the doctor because of the massive weight loss and other symptoms were congratulated and told to keep doing what they were doing. 2 of them were dxd years later with stage 4 cancer...they couldnt be assed to check for cancer so long as the bloods were relatively normal
So wonderful that this surgery helped him.
so happy for him!
Congratulations Lee for your health and thank God for your wife who supported you
This is so heartbreaking
Awesome! So glad he is doing better.
So happy for him and his family!
Eat more and stay healthy!
In all honesty I didnt think this was gonna end well given his original prognosis, but im so glad he ended up getting help and can now eat normally. It seems like it was something they couldve fixed a long time ago though and perhaps the show was just enough to get the attention he needed to be set up with the right doctor.
I had a friend who died from the same disease at age 32. She had lost her job because she was too sick to work and had been told there was no cure.
I'm so happy for this gentleman to have a second chance at life. It's amazing to see the surgery worked and I hope the procedure becomes more widely known.
I also have gastroparesis, althought not as severe as him, I still failed all treatment and rely on a gastro jejunostomy feeding tube to survive. This disease is absolutly hell, you see everyone eat normally around you yet you cant, you lose weight so fast that everyone compliments you and wish they had this disease to"shed extra pounds off" while you look at yourself in the mirror seeing the fat you, obese or overweight you even though you are a stick. You dont see how sick you are while others keep complimenting how good you look even though your hair is falling out and you faint and have to sleep 15h a day to have the bare minimum of energy. Its intense cravings in your head but knowing damn well you'll be as sick as a dog. Its now having this constany fight between yourself and mental hunger, Its trying diet after diet, or chemical drink after chemical drinks that absolutly taste horrible to be kept alive. Its constantly having your disease minimized to the level of a gastro flu or similar viruses or being told just to eat even though you cant. People dont see it, buy this disease is an insane lifelong battle with barely any hope. Im only 19, yet Im going to be stuck with a feeding tube or being unable to eat large amounts most likely until I die.
Oh hey, finally one that contains one of my weird disabilities. My sister and I both have this, with hers manifesting similar to his while mine ended up being better controlled by the meds for one of my other disorders.
Thatâs not to say that I donât occasionally wake up at night or try and eat a meal and immediately throw up, though. There is literally a bowl that lives in my room for that exact reason.
Gastroparesis sucks, its treatments suck, and since it is a super common EDS comorbid itâs, it occasionally arrives with friends that equally suck.
It results in tons of EDS patients requiring feeding tubes.
First time hearing about this. God bless you lee
Bon Apetit, love! My prayers to you and your loved ones.
Iâm glad heâs doing better
I'm so happy for this man that the surgery was successful and he's gaining weight and feeling better!
Bless your heart I hope youâre gonna be OK I hope you gonna get better
Gastroparesis does NOT mean one throws up after every time they eat. It absolutely can be a symptom, but for example, I do not tend to vomit after eating despite having gastroparesis myself. It's great to see the illness spoken about, I just wanted to add my two cents as an affected individual to show further diversity in symptoms! (My issues are more like my food hanging around in my stomach for too long which affects my hunger cues, significant bloating and cramping, associated constipation, etc.)
Yes same. I have severe Gastroparesis but Iâve never thrown up, I get severe nausea but have never thrown up from it. My main symptoms are bad stomach pain, nausea, bloating and constipation. I got a GJ tube
A men. God bless this man and his family âđżâđżđȘđżđȘđż
God bless you Lee. I, too, suffer from this terrible disease and it has changed my life. Iâm currently working with my doctors on what I can do to manage this horrible condition. đđ
It's usually ehlers danlos or some mixed connective tissue disorder. Ibs, fibro, cyclic vomiting syndrome, panic attacks,...i was dxd with all of that and then some. Which is common with eds etc.
Very informative.
I have had gastroparesis for 10 + yrs. It is miserable to say the least
My son has this exact thing. He's having surgery next week. He can't eat or even drink really. I'm freaking out. If it doesn't work he'll be on a feeding tube for maybe the rest of his life. He's 27. This is a horrible condition. đȘ
What kind of surgery did he get if you donât mind me asking? I got very sick with Gastroparesis at 16, got a feeding tube at 20 and Iâm now 22. My feeding tube has been a miracle but I feel like Iâll have it for the rest of my life. I can thankfully eat and drink some, but with my feeding tube I am able to drain it out so I wonât feel so sick
This is scary. I have type 1 diabetes for 21 years and a few years ago I had a severe stomach ache that lasted days. Got diagnosed with GERD. I had a brief period of daily vomiting when I was around 18 but the last 2 years have been hell. Ran a bunch of tests including an endoscopy and they can't seem to figure out the issue. I'm now vomiting almost daily. It's so sour and acidic. Very rough on my teeth and throat. I'm so fed up. I would be asleep and wake up suddenly with vomit in my mouth. I got prescribed Reglan but it doesn't always work. I'm now basically skipping meals but then I end of with gas pains in my stomach. Totally totally fed up
Hi Monique. I was diagnosed with gastroparesis last year. Worst year of my entire life. Mine was caused by an MS relapse which paralyzed my stomach. Since it was caused by a relapse, with high dose steroids and time, I was able to recover completely in approximately a year. But i was prescribed Remeron (Mirtazapine). This medicine changed my life completely. Read about this medicine and Gastroparesis. For some people bas been a miracle.
@@Sofia-te4dp so glad to hear that it's now gone. I will definitely look into that medication and mention it to my doctor. I just hate that eating is so unpleasant now because I worry about throwing everything up or having hours of nausea and stomach aches. Take care and thanks so much.
@@moniqueg7144 I really wish you find some relief and that youâll start to live better soon. I know how horrible GP is.
@@Sofia-te4dp thank you so much. I'm seeing my GI in a couple of weeks because I'm still throwing up every few days. I lost 9 pounds which I'm happy about but I just hope it's not associated with my symptoms. I want to lose weight but a healthy way.
iâve had gastroparesis for over a year now and itâs the worst thing iâve ever experienced. wouldnât wish it on my worst enemy.
Good to see Lee is doing better, I hope he continues to do so. I like his wifeâs sense of humor. I also hope that the healthcare systemâs everywhere takes gastric problems more seriously, especially since those health issues are arising
Thanks uploader
The doctor really let him down!! So glad he found the right Dr !!
i pray for him hope he is gets better
God bless đ you đ Lee
Mainly like someone else mentioned....messed up connective tissue is what vagus nerve is made of so more mutant your tissue is the more chronic conditions you will have and develop. Mast cell activation and pots/dysautonomia are usually dxd with eds too for a lot of people
I'm so happy for this man â€â€â€
Well done Lee on surviving all thatđȘđ» Iâve got to admit, Iâm very jealous. I havenât eaten since 2016. If only all doctors were like this & gastric pacemakers were prescribed every severe patient on the NHS! I was accused of having an eating disorder for several years before getting help. I now have a G tube, J tube, PICC line, & central line. Currently on TPN & have a stoma bag. Thankfully Iâm no longer a skeleton because of this but itâs risky treatment I donât want to be on forever⊠đ
Dr.Cline or Kline in the US at the Cleveland clinic is leading research on this. Itâs who my husband saw in 2015/2016 when the condition was still be looked into. I would see if he can see you virtual or see if you can go to Cleveland Clinic London
My friend has this and she was very sick until she started Gabapentin. God speed for recovery to anyone suffering.
Oh this poor man:(
Poor guy I pray for him đ
wow he looks amazing after the operation
Gastroparesis is a common comorbidity of Ehlers Danlos Syndrome. If you have GP, please look into EDS and consider getting evaluated for it.
How do you get tested for EDS? I have Gastroparesis and always suspected EDS too, especially with all my bone pain and joints and other symptoms I have of it
Someone with gastroparesis this is a fairly extreme case. However, itâs not entirely out of the ordinary theyâre often times days when I canât eat anything without vomiting and here in America, the only drug that gets my body to digest the food cost $600 per month out of pocket.
I hope you feel better
Thank God for the doctors that never give up
I am so glad he's able to eat again
So happy for you
I have gastritis lost 86 lbs in 3 months . Iâm really fat but they put anorexia as my diagnoses my vitamins depleted , my teeth are breaking. Iâm finally getting an esophageal stretch next month I can only imagine his pain . Bless him shalom
Hopefully Lee's life gets better!
I had this for about 4-6 months and it is awful. Praying for you đ
Really? Was it diagnosed? How did it just go away? Iâve had it for six years đ
@@kaylee1769 Yes, it was diagnosed by my GI doctor and I underwent several tests. I should say I was unable to work for 3 months and it took a year to feel better. I was in a very basic diet and meds.