CAVERNOUS MALFORMATIONS OF THE BRAIN AND SPINAL CORD
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- čas přidán 27. 10. 2017
- This video provides information on cavernous malformation of the brain and spinal cord and answers frequently asked questions regarding the causes, symptoms and treatment of these lesions
Dr thank you for your information, I will pray for you and Wisal Khan, and for the one person who disliked this video.
I have a bunch in my brain. I have the hereditary type because i just found out my mom has them too. She started having seizures affecting her arm and after an MRI the docs found she had a bunch of cavernous malformations in her brain like i do. So far anti seizure medication has made her back to normal. Unfortunately, this is not the case for me. I have a bunch in my head like my mother but i also have a fairly large one right in my c2 in my spinal cord. This one is causing me to have really bad chronic pain throughout my body and my head. I have constsnt head pain that usually sits at a 5-7 on a pain scale but about 3-5 times a week i get really bad headache pain that i would call an 8 or even a 9 at times. These headaches last anywhere from a few hours to almost 48 hours. It just depends and honestly seems very random. I do know that physical or mental exertion increases the chances of me getting one of these bad headache events. So i try to not do anything that causes this reaction. The worst thing is I cant work because of this stupid chronic pain from these cavernous malformations (it affects my head AND my body) but after 3 attempts, i still cant get help social security. Its really messed up and I thank God i have parents who are willing to support and take care of me. Sadly, they too are getting older and coming down with their own illnesses now so we are all screwed i guess.
Doc ., my mom’s mri shows an 8 x 8 mm cavernoma on the left parietal lobe ... she’s 49 and has had migraine all her life ... but recently., the headaches of 2 episodes , in a gap of 1 week each were severe and that’s how we ended up doing the scan...
but she’s otherwise fine and healthy and there was no headache after that over the last two weeks ..
Does it make sense to wait and see how severe or mild her next headaches are gonna be ? Or should we opt for surgery right away ? Thanks in advance !
Thank you for this info Dr. I had my cavernoma completely resected in my frontal left lobe in 2011 after experiencing a seizure when I was 15. I have no family history and experienced no neurological deficits. Surgery was successful and my surgeon cleared me from needing any more follow ups or MRIs since 2014. When I called my surgeon’s office to ask about getting an MRI just for peace of mind after all this time they didn’t seem concerned unless I was experiencing symptoms.
I have been symptom free and on no medication but I’m a little worried that I haven’t gotten an MRI in years. Should I be worried about the formation of another cavernoma? Is it common for cavernoma to form again after successful resection of a single lesion if the case is sporadic or is that very rare? Thank you!
Dr., I have a cavernoma between T3 and T4 on my spine. This was discovered through an MRI as a bleed caused me to immediately develop Brown Sequard symptoms. The bleed was on the left side of my spine and my left leg became weak and my right leg experienced numbness. I also have numbness on my left side of my stomach and left lower back. Over the past 90 days since the bleed occurred, my Brown Sequard Symptoms have improved. I am being treated by a vascular neurosurgeon in Philadelphia, who is suggesting surgery, but surgery will be complicated as the cavernoma is not located in the center of the spine and instead is located more towards the edge. I am 72 years of age and in good health with no other major conditions. My question to you is who in the US would have the most experience in performing this complicated type of surgery?
Looking forward to your response. Eugene Levin
Hello doc. I was diagnosed with cavernoma last 2013. Today, I have right sided numbness and weakness. The cavernoma is located at the thalamic area. Is it possible to be operated? TIA.
I have one in my brain was told it was tricky location and just watch, how do i get a second opinion
Do you still do surgery? I need to get a second opinion for a spinal one.
Yes
You can call 206 661 6100 for more information
Thanks
Do all cavernous malformations leak slowly?
I have cavernous malformations on my brain and spine
Hi ,
I had undergone cavernous surgery exactly 1 year back but still I am not recovered from it. out of control of my body, balance problem , vision problem, giddiness if I turn my head down. Surgery happened in Hyderabad, india. Please help me how much it still it take for full recovery
How are you now ?
How arre you and who operated you. Where is your cavernoma located
@@vivekrajeev nothing changed. Still have balance issues
It truly depends on where they are located within the human body. They are NOT JUST in the brain and spinal cord. (The local children's hospital called my daughter's bad foot a cavernous malformation. Shriner's Hospital corrected her file and called it a vascular malformation, clearing up any confusion, because of its location on her body.) My daughter had one in her right foot in utero before she was born. She became a Shriner's Hospital patient at the age of one, and she had her first amputation at 1 1/2. Before her first amputation, she did bleed everywhere when she started crawling, after accidental knocks of her right foot. With her, when she became ill, she got a number of problems at the same time (strep, bronchitis and thrush, etc. - no matter what I did to keep her as well as possible, she still got sick that way, so it is a fact your immune system does take quite a hit, and you are always sick.) When she refused to walk after one such illness, I knew something else had to be done; hence Shriner's Hospital. Vascular malformations are just as serious as any in the brain and spinal cord because they create more clots. She will be 32 this August, and she is a fully functioning adult with a prosthetic :)
I have the same Issue, The Covernoma in the right temporal lobe of my head. So plz guide me regarding the surgery if its safe for me.. Thanks
Hi wisal khan
what are the symptoms of it
Wisal Khan haii ., did you do the surgery ??? How you doing now ??