Video

Their is a man at my job who does this when he gets no overtime or he is hungry

I'm suffering with this. My blood pressure and heart rate can no longer be properly controlled. Waiting to see somebody. Gulp

Excellent work sir

Hi

My doctor say botox is for the face .venon

The surgery is going Tobe in the brain lam very scare and depress my doctor say when ready to call him but ldon.t what todo and l need the surgery 🙏🙏🙏🙏

I have the same problem get botox it did work for me now l have to have surgery but iam very scary streess 🙏🙏🙏 lbeen having it 3 year is very embracing people been looking me lcant been around a lot of people because my face start shaking so l have Tobe by my self..

Hello, can I send you the certificate of my 13-year-old daughter who is suffering from AVM and tell me your opinion? Iam from iran

I have cavernous malformations on my brain and spine

What would be the reason to dissect if blood flow is good?

That was amazing! The things you guys can do is just mindblowing!

I have a bunch in my brain. I have the hereditary type because i just found out my mom has them too. She started having seizures affecting her arm and after an MRI the docs found she had a bunch of cavernous malformations in her brain like i do. So far anti seizure medication has made her back to normal. Unfortunately, this is not the case for me. I have a bunch in my head like my mother but i also have a fairly large one right in my c2 in my spinal cord. This one is causing me to have really bad chronic pain throughout my body and my head. I have constsnt head pain that usually sits at a 5-7 on a pain scale but about 3-5 times a week i get really bad headache pain that i would call an 8 or even a 9 at times. These headaches last anywhere from a few hours to almost 48 hours. It just depends and honestly seems very random. I do know that physical or mental exertion increases the chances of me getting one of these bad headache events. So i try to not do anything that causes this reaction. The worst thing is I cant work because of this stupid chronic pain from these cavernous malformations (it affects my head AND my body) but after 3 attempts, i still cant get help social security. Its really messed up and I thank God i have parents who are willing to support and take care of me. Sadly, they too are getting older and coming down with their own illnesses now so we are all screwed i guess.

I have AVM in thalamus I am from Greece

This illness can make patients mad or like they can behave other things or can talk a lot like mad people. Please reply

I live in Seattle and I cannot find location where doctor Newell now . if it possible to get location and phone number to find him? I checked Bellevue location which is cross 116 street from Overlake parking garage in November 2022,but office was closed and nobody knew where he moved. Please help and give his location. THANKS .

Dr., I have a cavernoma between T3 and T4 on my spine. This was discovered through an MRI as a bleed caused me to immediately develop Brown Sequard symptoms. The bleed was on the left side of my spine and my left leg became weak and my right leg experienced numbness. I also have numbness on my left side of my stomach and left lower back. Over the past 90 days since the bleed occurred, my Brown Sequard Symptoms have improved. I am being treated by a vascular neurosurgeon in Philadelphia, who is suggesting surgery, but surgery will be complicated as the cavernoma is not located in the center of the spine and instead is located more towards the edge. I am 72 years of age and in good health with no other major conditions. My question to you is who in the US would have the most experience in performing this complicated type of surgery? Looking forward to your response. Eugene Levin

I have a relative with an acute case. He’s already gone the medication route and it’s not working. Loss of appetite he’s lost about 60 pounds. How successful is the surgery. It took him two years of circling the earth different doctors to figure out what he had.

Thank you for this info Dr. I had my cavernoma completely resected in my frontal left lobe in 2011 after experiencing a seizure when I was 15. I have no family history and experienced no neurological deficits. Surgery was successful and my surgeon cleared me from needing any more follow ups or MRIs since 2014. When I called my surgeon’s office to ask about getting an MRI just for peace of mind after all this time they didn’t seem concerned unless I was experiencing symptoms. I have been symptom free and on no medication but I’m a little worried that I haven’t gotten an MRI in years. Should I be worried about the formation of another cavernoma? Is it common for cavernoma to form again after successful resection of a single lesion if the case is sporadic or is that very rare? Thank you!

thanks!

What about forehead only as if someone is putting their finger pushing it down like a frown. And a congested feeling above nose

Big Fan of you. please post more videos on cervical surgeries

Thanks for posting this as my TN has started to develop this. Unfortunately its more severe than this patient. Got an appt with pain doctor who works with neurosurgeon fingers crossed.

Hi I am from india my mother has an aneurysm 4.5 mm what would I do doctor says do Colling but it's small and I don't have money to spend on Colling treatment can we observ

Omg

Hello Dr. David my right face is twitching the same as the lady in this video and I had been seen the neurologist specialist they said can't do anything about it only botox because my MRI is normal.

Please what is the average cost for the treatment of AVM

Medication 💊 only helps for a short period then doses have to be increased. My pain is constantly 😫 3 branches are effected my hair will even hurt to touch. I am on pain medication 5 times a day and nurontin when I can't take anymore pain meds I can't take it regularly because side-effects are horrible. I am allergic to everything. I have had TN for 20+years.

I know i have glossopharyngeal neuralgia, though not fully diagnosed as theyve said its Trigeminal...i actually think i have both....Trigeminal effects my face cheek forehead and especially the eye and temple regions...yet for years ive told Drs i get severe stabbing and cramps where my tonsils use to be(removed in 1985) can be both sides..but mainly right...and as i type...ive just come home from m having a right ear operation yesterday for 20yr ear pain..which i believe is linked to the glossopharyngeal neuralgia, which hasnt been diagnosed....the surgeon noticed **Enlarged** Jacobsons nerve and lexus on proxymontory..Intact ossicular chain,,No myoclonus of stapedius and tensor tympani,Bony CNVii :Procedure Medtronic facial nerve monitor used. 1 x 2% lignospan and 1:80000 Adrenaline Permetal approach TM FLAP ELEVATED 0 degree endoscope used to identify Jacobsons nerve Middle portion of Jacobson nerve from tympanic calculi across promontory excised and removed. Remaining portion of jacobson never exiting promontary lasered with 1W KTP Examined at the end with endoscope Flap replaced-good closure Betnovate ointment into ear canal. Ok! so my Q....if you dont mind....after having this procedure yesterday..i assume its going to not address the glossopharyngeal neuralgia,ie pain in tonsil region etc....?? also.....a Dr in London hospital has tried to treat what he thinks of occipital neuralgia ,by injection anaesthesia in base of skull...occipital region...under skin..not directly into occip nerve. This hasnt helped at all....so i figure that its not address the actual culprit the glossopharyngeal nerve.... I always have 24/7 varying pain in the base of my skull...all the time...and it feels its here that everything is jammed up!.. I have had numerous MRI's and no one ever mentioned that my cerebellum tonsils do hang lower than the foreman magnum, by how many mm's i dont know...I have seen worse chairi but never the less my cerebellum looks packed and the base of the brain looks to be completely resting and pushing on the base of my skull where the issues seems to stem from.. I know you can give a definitive response...but am i in the right ball park? as im looked at with a shrug when i mention all my symptoms...especially the throat/tonsil regions and even upper palate...inner ear etc... Any response would be appreciated ...as the pain for 20yrs has been unbearable at times..

Hi dear can I have a question I don't have a stroke but I have hemiparesis and my face have a spasms make my eye 1 big and 1 small you think the Botox can help for that thank you so much

It truly depends on where they are located within the human body. They are NOT JUST in the brain and spinal cord. (The local children's hospital called my daughter's bad foot a cavernous malformation. Shriner's Hospital corrected her file and called it a vascular malformation, clearing up any confusion, because of its location on her body.) My daughter had one in her right foot in utero before she was born. She became a Shriner's Hospital patient at the age of one, and she had her first amputation at 1 1/2. Before her first amputation, she did bleed everywhere when she started crawling, after accidental knocks of her right foot. With her, when she became ill, she got a number of problems at the same time (strep, bronchitis and thrush, etc. - no matter what I did to keep her as well as possible, she still got sick that way, so it is a fact your immune system does take quite a hit, and you are always sick.) When she refused to walk after one such illness, I knew something else had to be done; hence Shriner's Hospital. Vascular malformations are just as serious as any in the brain and spinal cord because they create more clots. She will be 32 this August, and she is a fully functioning adult with a prosthetic :)

Can you suggest a way for me to find a local (east Tennessee) doctor that has experience diagnosing and treating this? Thanks!

Why? I hate to ask. But why does it look like she’s faking it? I know she’s not. But it just looks like it.

Good day sir, I really don't know if my own is hemifacial spasm. But my two ears moves with my forehead. But it's not everything and most times it's so uncomfortable and it causes a little headache

This procedure was a life saver for me. It didn't show up the MRI though because the artery was at the base of the trigeminal nerve. When they went in they found it. I don't know if I'd be alive right now without the surgery.

thanks so much

This video was so informative for me. I've just been diagnosed with this and put on tegretol medication for it and it's starting to help. Thanks again for this video

Hii mom have it form 5 years and she have taken botox injection but it didn't cure then we have done a micro vascular surgery but also it didn't cure and also even done physiotherapy but did not cure can u suggest any other method by which it can be cured like some exercise or anything by which it can go away

I suffered from this for 2 years. What worked for me was Accupuncture specifically the motuboxin method. One treatment and I was cured.

Hello doc. I was diagnosed with cavernoma last 2013. Today, I have right sided numbness and weakness. The cavernoma is located at the thalamic area. Is it possible to be operated? TIA.

I have one in my brain was told it was tricky location and just watch, how do i get a second opinion

This is my worst fear if I rate my spinal cord just kill me

👁 👁 👄

Is it normal for the avm to be on left and right of the back of my head with swelling? My migrains seem to be getting worse and now they are almost everyday. And what does 3.7mm in size mean?

Had cipls n coils..7years. .2 yrs ago..they askd me anything 2 say 4b we do this..my reply dont put it on backwards....lately the other sides been drop. N. me 2. My nees

Did your finger have to go inside towards the ending?? Why did you show that??

Damn. So dangerous when you move that nerve.. isnt it?. It can break??

From my experience hemifacial spasm is an earthquake that occurs in the right part of my head. When the spasms/swtching starts I also hear vibrations in my right ear and I can not breath from my right nostril. I've been scared of both the surgery and botox but i need to start from some point as it's becoming unbearable. Thank you for the valuable knowledge.

I have this and i hate it!

Can a a man be on other parts of the body besides the brain..?

Sounds like MVD is a cure for HFS if done correctly? What will cause reoccurrence of spasms?