I have it on the left side of the face. Your information is well received. I had botox injections but to no success. My eye and lip never slowed with ticking. My left eye couldn't close properly and I drooled.
I am a hemi facial spasm sufferer. I have joined a Hemi Facial Spasm Worldwide support group on Facebook. I found your presentation easy to understand and actually posted your presentation to the support group today and must say, got some wonderful comments. Your presentation covered much of what some knew and others not. One member was very interested..but wondered why some MVD operations are not successful...or what could have happened in this instance.
Thanks for your comment Most experienced surgeons in micro vascular decompression should achieve greater than 90% successful outcomes Reasons for less than optimal results can include very large vessels that contact the nerve which are difficult to move away and pad completely and other anatomical variations
I have had HFS since 2002. It has progressed so much that I am now on disability. I don't know if it's related but since the spasms have become severe I have developed tinnitus. and vertigo. MEDICAID won't pay for it, which I understand as it is expensive. I just stay pretty much a recluse. I catch people staring at me when they think I don't notice. Hats and sunglasses are my best friends! lol
I'm positive this is what my son has. He's 5 and we noticed when he was 3 that his eye would twitch once in a while...but as of late, it has increased dramatically. It's now looking like he's winking constantly. Our family doctor said it was nothing but she's been wrong before and I'm sure she is again. Would you say botox for a 5 year old or surgery would be better?
Thank you Dr. Newell for your reply. Also, l suffer with TIA'S do to hard to control blood pressure. I am concern that this could be an early signal that a stroke may occur.
From my experience hemifacial spasm is an earthquake that occurs in the right part of my head. When the spasms/swtching starts I also hear vibrations in my right ear and I can not breath from my right nostril. I've been scared of both the surgery and botox but i need to start from some point as it's becoming unbearable. Thank you for the valuable knowledge.
I had hemifacial spasm years ago on my left and right side of my face. I was treated with an injection of Botox and it was successful. Unfortunately, l've started having them again following by months of physical pain and stress. My question is could pain and stress brought on my facial spasm back?
Hi Linda Thanks for your question Stress can make the symptoms of hfs worse and stress reduction can make symptoms better if the condition is mild Often if symptoms get worse simple stress reduction may not eliminate the spasms and repeat injections or other treatments may be needed Hope this helps DN
I also have HFS and find that stress can make it work - I can go through the whole day and nothing but if I am tired when I get home it will start up - I love foot reflexology and find that helps me relax
Dr. David W Newell, I have had microvascular decompression (MVD) on my right side in S'pore in 2008. Just a month ago (Oct 2018), I started to experience spasms returning and am praying for a total healing and set free from hemifacial spasm again. Meanwhile, may I know from you Dr. Newell, were there patients who also experienced spasms returned and needing a second microvascular decompression? Is it advisable to go for a second surgery (MVD) when spasm returns? Thank you.
Recurrence is well known in not every case but in some cases yes. Most of the time it's not recurrence but anxiety which pushes you to feel the twitching. Try to calm down, treat your anxiety. If there is definit recurrence one can go for redo surgery in expert hands. Regards Dr Shahid Bokhari Consultant Neurosurgeon
Hii mom have it form 5 years and she have taken botox injection but it didn't cure then we have done a micro vascular surgery but also it didn't cure and also even done physiotherapy but did not cure can u suggest any other method by which it can be cured like some exercise or anything by which it can go away
Good day sir, I really don't know if my own is hemifacial spasm. But my two ears moves with my forehead. But it's not everything and most times it's so uncomfortable and it causes a little headache
Hello Dr. Newell, I'm from the Philippines and my mom is suffering from hemifacial spasm. Would you know if the microvascular decompression procedure is available in our country?
reason for why my small skin part near lip is vibrating ?, is it bad condition ? really my face skin is vibrating continuously last six month . i don't know why please explain and diagnosis it it is continuous from last six month , but there is no pain small part of my face near right hand side lip is affected sir , please provide your email id , so i will send short video clip, please thanks
I suffered from this for 2 years. What worked for me was Accupuncture specifically the motuboxin method. One treatment and I was cured.
I have it on the left side of the face. Your information is well received. I had botox injections but to no success. My eye and lip never slowed with ticking. My left eye couldn't close properly and I drooled.
I am a hemi facial spasm sufferer. I have joined a Hemi Facial Spasm Worldwide support group on Facebook. I found your presentation easy to understand and actually posted your presentation to the support group today and must say, got some wonderful comments. Your presentation covered much of what some knew and others not. One member was very interested..but wondered why some MVD operations are not successful...or what could have happened in this instance.
Thanks for your comment
Most experienced surgeons in micro vascular decompression should achieve greater than 90% successful outcomes
Reasons for less than optimal results can include very large vessels that contact the nerve which are difficult to move away and pad completely and other anatomical variations
Thank you for such a quick response...it is very much appreciated and a big help to many.
I have had HFS since 2002. It has progressed so much that I am now on disability. I don't know if it's related but since the spasms have become severe I have developed tinnitus. and vertigo. MEDICAID won't pay for it, which I understand as it is expensive. I just stay pretty much a recluse. I catch people staring at me when they think I don't notice. Hats and sunglasses are my best friends! lol
Glad you seem positive despite having hfs
Have you tried Accupuncture? Got rid of mine
Have you tried any medication to help?
@@thegreyavenger2 Really?what method?I’m afraid I got HFS.It terrifies me.
@@lannythe6741 moxibustion acupuncture. You should also get an mri to see if you have cranial nerve damage.
I'm positive this is what my son has. He's 5 and we noticed when he was 3 that his eye would twitch once in a while...but as of late, it has increased dramatically. It's now looking like he's winking constantly. Our family doctor said it was nothing but she's been wrong before and I'm sure she is again. Would you say botox for a 5 year old or surgery would be better?
How has he been has it been better?
Thank you Dr. Newell for your reply. Also, l suffer with TIA'S do to hard to control blood pressure. I am concern that this could be an early signal that a stroke may occur.
MVD sounds like a cure for HFS? In most patients do they stay spasm free for the remaining of there life?
From my experience hemifacial spasm is an earthquake that occurs in the right part of my head. When the spasms/swtching starts I also hear vibrations in my right ear and I can not breath from my right nostril. I've been scared of both the surgery and botox but i need to start from some point as it's becoming unbearable. Thank you for the valuable knowledge.
Merhaba, Bakuden yazıyorum. Bu hastalıktan kurtuldunuz mu?
I had hemifacial spasm years ago on my left and right side of my face. I was treated with an injection of Botox and it was successful. Unfortunately, l've started having them again following by months of physical pain and stress. My question is could pain and stress brought on my facial spasm back?
Hi Linda
Thanks for your question
Stress can make the symptoms of hfs worse and stress reduction can make symptoms better if the condition is mild
Often if symptoms get worse simple stress reduction may not eliminate the spasms and repeat injections or other treatments may be needed
Hope this helps
DN
Please excuse any mistakes .l am experiencing HFS has l am typing.
I also have HFS and find that stress can make it work - I can go through the whole day and nothing but if I am tired when I get home it will start up - I love foot reflexology and find that helps me relax
Dr. David W Newell, I have had microvascular decompression (MVD) on my right side in S'pore in 2008. Just a month ago (Oct 2018), I started to experience spasms returning and am praying for a total healing and set free from hemifacial spasm again. Meanwhile, may I know from you Dr. Newell, were there patients who also experienced spasms returned and needing a second microvascular decompression? Is it advisable to go for a second surgery (MVD) when spasm returns? Thank you.
Recurrence is well known in not every case but in some cases yes. Most of the time it's not recurrence but anxiety which pushes you to feel the twitching.
Try to calm down, treat your anxiety.
If there is definit recurrence one can go for redo surgery in expert hands.
Regards
Dr Shahid Bokhari
Consultant Neurosurgeon
Try a warm foot bath with epson salts for 20 minutes. After that my twitching went away. God willing all of you with this twitch will go.
Deborah Alqanai - How often do we need to do this? Are you continuing the process?
Hi mam Deborah....is there timming when i need to do this? Should i do this every day? I am suffering for hemifacial spasm
Hii mom have it form 5 years and she have taken botox injection but it didn't cure then we have done a micro vascular surgery but also it didn't cure and also even done physiotherapy but did not cure can u suggest any other method by which it can be cured like some exercise or anything by which it can go away
Try moxibustion acupuncture
I am Genoveva from Romania and I am suffering from hemifacial spasms. I want to know how much costs the operation.
Thank you
You can call 206 661 6100 for more information
@@davidwnewellmd1643 thank you and the country prefix please?
@@davidwnewellmd1643 I practice yoga and this is helpful for me but not enough
Ați rezolvat ceva?Am aceași problemă cu soțul meu?
@@daliageorgescu5277 ameliorat
luați legătura pe Facebook același nume
Good day sir, I really don't know if my own is hemifacial spasm. But my two ears moves with my forehead. But it's not everything and most times it's so uncomfortable and it causes a little headache
I have a twitching Problem as i had facial injury before 7 years. Please suggest ME some exercises or treatment
Can you suggest a way for me to find a local (east Tennessee) doctor that has experience diagnosing and treating this? Thanks!
best bet is to go to Nashville / Vanderbilt
Hello Dr. Newell, I'm from the Philippines and my mom is suffering from hemifacial spasm. Would you know if the microvascular decompression procedure is available in our country?
Dr. Gap Legaspi of PGH.
With medication how long it takes ti recover
How long is the recovery time
It is USA
Other method is e mail @
Patientcare@seattleneurosciences.org
Hello Dr David...
A very informative video,
Happy New year to you doc.
Regards
Dr Shahid Bokhari
Consultant Neurosurgeon
reason for why my small skin part near lip is vibrating ?, is it bad condition ?
really my face skin is vibrating continuously last six month . i don't know why
please explain and diagnosis it
it is continuous from last six month , but there is no pain
small part of my face near right hand side lip is affected
sir , please provide your email id , so i will send short video clip, please
thanks
@KRISHNAKUMARverma What happened to you after 2 years...tell me I am also having this problem.....
@@rehaninamdar9476 How are you now?
how are you now?
@@moviemastiworld still same situation sir
@@kumarvermakri Eyes pe affect hua hai kya? Ya sirf one side of lips hi hai? How often does this happen? Mera 1 hour main 1bari.
What is the permanent solution for HFS ?
The most permanent solution for hemifacial spasm is an operation called microvascular decompression
@@davidwnewellmd1643 Sir, can you share your email id ?