WHAT I EAT IN A DAY // during crohns disease flare up and recovery //
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- čas přidán 13. 09. 2021
- Hi!!
I decided to finally upload my first video about life with crohns disease! I am excited to start making videos about my journey to hopefully help and connect with others going through similar things!
♡♡♡♡
Instagram: @isabela_sala
Music by frumhere, kevatta - warm feeling - thmatc.co/?l=E0D34A41
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I got diagnosed when i was 24, im now almost 40 and i will say this disease definitely progesses w age. I just filed for disability last year. Almost died in 2015 of bowel obstruction spent 13 days on life support but 5 major surgeries and an illieostomy laster i was released, had a reversal 10 months later and in the last 3 months, havent been able to eat much, very bad mornings, and lots of pain. Making a doc appointment today for sure. Tired of not feeling good. I just want to have one good day. Anyone else ever feel hopeless w this. I wouldn't wish this on my worst enemy!!! It is absoltely HORRIBLE!!! Sending so much love and good vibes!❤
I pray this gets better for you. Your good day is coming to you very soon :)
how are you doing??? i'm struggling now too
I just found out I have this. I’m 43 and pretty sure I’ve probably had it for a long time now. I think it’s just now getting found because like you said it gets worse with age. Currently waiting for my insurance to cover the medication. I hope anyone with this disease finds comfort in something. Because right now I’m struggling hard.
Praying for you!🙏🏻 I’m also struggling with crohns and it’s the worst. By getting through this you’ll be able to help others going through something similar - I know that’s no excuse to have the disease but it’s something I try to keep in mind. And pray.❤️
got diagnosed almost 10 years and had an ileostomy that got reversed. my parents have never learned how to help me deal with my disability and after a really bad morning of pain, i’ve realized that i have to do this on my own. hopefully i can find some more people sharing their tips on here
Same here. I recently got diagnosed after 10 years being undiagnosed, got put on remicade and had immediate improvements, not perfect but like 75% better which is huge difference from joy being able to eat or do anything without pain. Liek you, my parents/ family have not learned anything about it to help me, all on my own with my partner.
Thank you so much for this videos. I was just diagnosed with Crohn's 2 weeks ago and just coming out of a flareup but I'm scared to eat anything. This videos gave me some ideas💗
Hang in there love Ive had Crohns for 10yrs was diagnosed at 23 it’s trial and error you learn as you go what works best it’s steady fight I wish you the best it gets better It has its up and downs but things do get better I’m with you
Thank you for sharing! The worst part for me is not even digestion-related but all the other issues along the way caused by SIBO - vertigo, anxiety, depression, fatigue. Sucks to look at food and be like "Damn, I used to be able to eat that"
Omg the fatigue, anxiety and brain fog..... just makes you want to cry daily
How does SIBO cause vertigo?
Ik its a year later but thank you for making this video! It feels much better to see another young person dealing with Crohns. i can actually tolerate dairy and stuff too so this was relatable.
My mother was diagnosed with crohns disease in 1984.She was 79lbs before they finally came up with a reason why, she was losing so much weight.My mother had part of her intestines removed.She got better after a couple of months.She is.now 80 years old❤
Crohn's weight loss is no joke, I'm still working on getting my diagnoses because the health care system is failing me but my older sister has it as well as my father and it's hereditary. I've been sick for over a year, lost 40lbs, fatigued and barely able to eat almost everyday plus swelling and pain. I'm glad they helped your mother finally because 79lbs is terrifying.
@@shwanna3Yes it's terrifying I was 66 lbs and now I'm 110
I hear of all these remission stories. I don't feel like I've been lucky enough to experience that yet and it's been four years.
Honestly, it's been such a struggle for me to figure out what to eat, because everything seems to hurt later. Especially in the bloating/gas department. 😂
Before all this, I ate normally without issues. And it's still a daily struggle to tell myself no to all the foods I want so badly (like freaking cheesy garlic bread or Chinese food). I just look at my diet and hate it. It's so bland. I miss flavor, man. Lol
You aren't alone! ❤️
That’s horrible, I just started getting strictures. I had just had a cramp so bad I screamed as loud as I could
I know it can feel so frustrating and overwhelming. I've been in the same spot many times, and still go back to eating "bland" in moments where my stomach is feeling off. When I was first diagnosed I was so scared to eat anything, in fear of the pain I was used to feeling. Slowly but surely I had to train my body to get used to eating again (not everything I once did) but I was able to get some form of normalcy back eventually. I have faith you will get there soon too! Sending you lots of positive energy!!
Spicy food is one of my triggers, and giving that up bummed me out so much. I love food, and I love all kinds of flavor! I also like Chinese food, but a lot of the americanized stuff can be tough because it's fried or greasy (Szechuan was my favorite). There are certain styles of Chinese food I tolerate better than others, and I've really enjoyed trying new recipes and modifying them as needed. I'm currently in a flare and on medicine, and I made congee with some veggies and a soft boiled egg last night. It still had plenty of flavor with the green onion, ginger and toasted sesame oil, and it was easy to digest. It took me a little while to figure out what worked for me, but it's totally worth it. I may not be able to use chile oil, but miso, hoisin, five spice, black vinegar, turmeric, ginger, sesame oil, etc. have a lot of flavor and haven't triggered me. Best of luck to you! I hope you can find flavorful foods that don't hurt you!
I have Crohn’s disease and it sucks. I love everything, but I have to be very careful of what I eat, or it can cause stomachaches, and nausea… and they don’t have a cure, it’s so annoying but you know we’ll survive. Thx for sharing!❤❤
I take plant best diet , one egg a day , without yolk, probiotics curd and sometimes probiotics supplement,
Pressed rice, morning or bread with tea,
I get you about feeling alone. I’m the only one in my family with crohns as of rn 🥹 I got diagnosed when I was 17. Now I’m 23. It’s been definitely hard especially since I have no one close to me to relate to. But seeing your CZcams videos and others have definitely helped 💕
I’m so glad I found this video because I got diagnosed in 2019 and I’m currently 21. So you aren’t alone (even though I know it’s easy to feel that way because I do too) and I’m definitely gonna subscribe. I really hope we both can see full time remission soon
Thank you so much 🥰 I couldn't agree more!
I'm the same age and in the same situation. Took them so long to diagnose me, there is so much damage. Thanks everyone for sharing makes me feel more sane.
I also have Crohns and Wheat and milk are an absolute no go for me
me too, and I am allergic to eggs since childhood. I would love to be able to eat eggs.
I've been flaring with chrohns since November 2022 I've been living with chrond for 22 years my stomach has been taken off but I'm in a lot of pain hope ye healthy soon hope I am too 🙏
Thanks for this, I relate so much to the bloating day after day. I'm a 23 yo and waiting for my colonoscopy/endoscopy in January to see if I have Crohn's. Been in a flare for over three months at this point hoping it ends soon
Hi! I have UC, however a lot of this I can relate to. I got diagnosed when I was 9 (about 10 years ago) and it’s v hard sometimes. I feel like I’m the only person my age who struggles with it. Tysm for this
Hi I’m 31 and got diagnosed with UC a year ago after been extremely sick for a whole year before that.
I felt like I was alone with all this too and the anxiety has been terrible but now I’m starting to know how to manage it. Hope you are too!!
I'm 54, diagnosed at 38years old after years of just being told I has a spasmodic bowel and ibs and it was a reaction to my anxiety.
I probably eat only a quarter of what you eat as my crohns is so sensitive. I'm in and out of hospital at least 4 times a year, many times after ive passed out in pain and then multiple visits to the er after a fall, trying to get to the toilet.
Im currently in a flare and fresh out of a 6 day hospital visit, as my inflammatory markers were incrediblyhigh and passing blood. I would love to eat a bit more, but terrified of pain that usually follows. I go back into hospital next week as an admitted patient, for a top and tail camera search inside. As im high risk of falling and can't drink the fluid they give to cleanse the bowel out, I'll have a full time nurse with as I have to drink 3 cups of some high cleanse out fluid.
It's a very rough disease and has caused a lot of damage in different areas of my body, especially my joints.
Here's to you for being brave enough, as a young person, for helping other suffers that may be in the early stages too xxxx
Update... after my colonoscopy and endoscopy I've had many polyps removed and heaps of samples taken. The said it's ulcerative colitis and very scarred inside. They did find the tail of an old suture attached to my last small bowel op, they removed that too. Just waiting for results now.
I’m 35 and just started getting horrible cramps like I have a stricture cramps. I think it’s corhns? I didn’t know it could be as serious as you described. Now I’m scared
Thanks for your video I get my results on Thursday hoping that I don’t have this disease while feeling bloated after each meal and being scared to eat I still have faith
I have a colonoscopy coming up soon to see if I really have Crohn’s. The GI doctors and regular doctors agree that I possibly have it. They want me on a low fiber diet in the mean time. It’s hard :( but seeing what you eat gives me hope that I can still eat regularly!
Sorry to hear that and I hope you get your answer soon! I still eat low fibre, even when I'm not in an active flare up. I find I feel better and don't have as much stomach discomfort or gas pressure. I'm so glad you got a glimpse of hope from my video :) That's one of the main reasons I like to make them because it is so easy to feel alone or like you will never feel better when you're going through a flare up/diagnosis journey. But yes! You can definitely eat "normal foods" with crohn's. It may not happen right away and you will have to go through some trail and error to figure out what triggers you and what doesn't, but just keep trying. This is one disease that is so different for everyone and people I find myself speaking with in the community often have such different food triggers than me and vice versa.
I was diagnosed at the age of 2-3 and it's still so hard to manage and to know what I can tolerate because it changes for me but I know for sure a gluten free diet does help. Also same with the lactose intolerance I can't have milky stuff bit cheese is ok
I have Tyrosinemia Type 2 a rare genetic disease which affects my liver and kidneys. I can't break down the amino acid enzymes in my stomach. Which means no dairy foods, no high protein processed foods. Only vegetation/vegan foods. I've always been interested in how individuals cope with diseases like CD and the restrictive diet to decrease 'flare ups'.
Thank you for this!
Hi Bella, thanks for this vid, I was shouting at the screen "Don't eat that avocado!" cos that's what started my current nasty flare up! I was in need of a completely new diet and am finding that salmon, cheese, white bread and eggs are safe for me... miss spicy Indians terribly!
I'm not doubting you and know everyone's different, but I find it very strange that avacado would cause a flare up. How can you be sure it was that?
Yea I didn’t think avocado would cause a flare. Coffee yes
I’m 13 and was diagnosed with Crohn’s in 2020 and started a Crohn’s diet a couple days ago. Been rough so far and I can’t stop craving Chick Fil A chicken sandwiches 😭
I just turned 13 the 31st of march and got diagnosed 9 days ago
I'm so sorry you guys are so young. I've had Crohn's since I was 12 and they couldn't work out what it was until i was 16! Remember there are lots of young people like us and you are no worse than your friends, you are just stronger! :)
I feel like that I find out had crohns 2 days ago just got out hospital x
How can I get tested for this?
@@TomEatsNC find a gastroenterologist near you. They can order stool analysis, blood work, and scans such as a MRE or CT. May do a barium swallow or enema. Usually a colonoscopy with biopsy in combination with results from other scans are enough for diagnosis. Can take a long time from start of process to diagnosis depending on when you can get all tests done.
I hv colitis from last 20 yrs... It has changed my life.... Now im trying to concieve and no success because all of a sudden i have a flare up after 2 yrs...
How did you get diagnosed? Ive really been struggling. My sister and father have Crohn's and for the last year i have been having "flares" almost constantly, ive lost 40 pounds, cant eat most days, extremely fatigues, swelling and pain in the stomach, arthritis, etc. ive been to the hospital multipe times and a GI soecialist with no luck because they jepe pushing me away. Any tips would be amazing! ❤
Im also currently on flareup
I was diagnosed with Ulcerative Colitis in 2010, and fortunately a short course of steroids put me into remission. I experienced a minor flare in 2013 which didn't require steroids. Since then I have been taking a low dose, non steroidal anti inflammatory medication plus eating a whole food, plant based diet and I have been completely symptom free. My last colonoscopy was years ago and showed a normal colon. I believe that this high fibre, whole food diet has helped me stay well because it is abundant in omega 3s which are anti inflammatory and the fibre nourishes the microbiome.
I realise that all IBD suffers are different but I am surprised how many people feel better eating bland and low residue food plus animal products which are pro inflammatory.
Can you please share a bit more of what was prescribed for you and what you eat, just vegetables, raw or cooked?
@@aprilepp74 Hello and happy to help. Typically I eat oats for breakfast topped with a tablespoon of ground flaxseed, some raisins and a sprinkle of cinnamon. Lunch is a large salad alongside cooked starchy foods such as rice, potatoes or quinou. Dinner is also plant based and includes plenty of beans, potatoes, pasta and vegetables. I have some excellent vegan recipe books so the meals I make are always tasty. I usually make large amounts and keep the remainder in the fridge. Snacks are fruit, nuts and seeds and dark chocolate. On top of all this I am not perfect and often go off plan but this doesn't impact my IBD.
On diagnosis I was prescribed steroids which were very effective. My subsequent minor flare three years later didn't require steroids and I was given mezalazine tablets that I still take today. They are called Mezavant XL gastro-resistent, prolonged release tablets and the strength is 1200mg. The usual maintenance dose is four tablets daily but I am fine taking only two per day.
I hope all this is helpful and I wish you well.
I was diagnosed 6 months ago with the CU..I following a gluten and cereal free diet and it's working great...but i wanted to ask you can you eat walnuts, almonds? my nutritionist said ti avoid them, sorry for my terrible english
@@tomzxd6128 Hello and happy to help. I eat all kinds of nuts including walnuts and almonds and I don't have any problems. I understand that some people worry that small pieces will injure the colon but I have never had that experience. Obviously I chew the nuts before swallowing so I think that prevents the problem!
I hope this helps you and I think your English is very good. Wishing you well and take care.
@@helenhucker346 thank you hellen...you know it's all new to me and I'm scared to eat some foods...I hope i find the right path too like you did! I could even become a vegetarian if needed💪
Hello! I have crohns/colitis! I can have avocado & chocolate too! (thank god) but a salad, I could never! Definitely a major trigger for me.
Anyways, thanks for sharing!
How do you know that you can have chocolate? Doesn’t give you flares or bloatings, because I dont know how to identify if I can have certain foods..
@@jonhajdini6807 elimination diet, when you are not having a flare stay on safe foods and try to add in one food you are not certain about. Test it multiple times and if you flare any of the times you probably are not tolerant of it.
Thank you very much, im new to this and have no help. I appreciate your video alot!!
Videos like this make me feel less alone ..
I was diagnosis also colitis when I was 15 and it's been hard
What symptoms did you have leading up to your diagnosis they wanna do a colonoscopy on me to figure out why I've got a bunch of stomach issues. every time I eat I have to run to the toilet it's so embarrassing it's been like this for three almost four years I've had my gallbladder removed it made it worse but I can't eat anything without it doing that heat also makes it bad.
My first symptom was definitely the running to the bathroom after eating. I also stopped getting my period, weight loss, major loss of appetite (was maybe getting in around 300 calories a day) and so many more lol. It basically began to snowball until I had to be hospitalized because no one could figure out what was happening.
I made a video about how I got diagnosed where I go into much more detail if you want to take a look! Hope you get some clarity on what is going on soon :)
Please do. More videos
thank you for this
😍😍
Ooof , nah men, I can't do milk , Coffee , omlette , bread , cheese , everything you are eating except avocado and some other stuff would fuck me up . This proves that everyone is different .
Also if it is a flare up , for me I stay In bed because It incapacitates me !
Am i going to die if I have this illness I think I have it for 9months til now. 😢 I didn't visit a doctor also because I already did that but they just give me laxatives😢
hello, I was recently diagnosed with Crohn’s and was wondering what do you get from Chick fil a? I couldn’t imagine not eating lol
My boyfriend has crohn's so I am here trying to learn more about what types of things I can make him or should stay away from.
I got diagnosed in 2022 and I am currently 13 but Its 5 am and I am in a flare up so I need helllpppppp
🙏💜
I have UC can’t have fiber and lactose or too many sweets
Thanks for sharing your story, also, bread is bad it has gluten and fiber, instead eat rice and potatoes and chicken that is not breaded, go for gluten free cereals as well.
I’m new to the Crohn’s world. I haven’t officially been diagnosed yet but I’m having a colonoscopy meeting with a surgeon on Wednesday. When it comes to coffee, can you have it when you’re not in a flare up? I love my coffee and don’t want to give it up indefinitely.
You might want to try low-acid coffee or cold brew! I drink that, but I usually stick to tea nowadays. I love a good matcha latte with coconut milk.
Sacrifice first, until you are stable, and then… experiment the trials and errors. Cold brew is the least painful for me.
I’ve stopped drinking coffee in the morning as it was upsetting my stomach but I do drink one cup in the afternoon.
Decaf is ok
I found that when I cut out all gluten my symptoms improved a lot. Maybe you can try swapping the bread with a gluten-free alternative
Well you are not alone there...i am on the "club" since 2009...
So you on fler up and eat white bread...toast actually... and drinking coffee...
I know that euch person is different but eating white bread in general is bad for all types of digestive inflammations and specially toast (100% gluten) let alone in the moments you out of remission when you should help your self and avoid this type of food more then when you are in remission.
Coffee? 😆😋 i don't know... coffee does one thing for everybody...apart that makes you feel fresh... stimulates/increase the intestinal transit , that's why alot of people after drinking coffee they need to use bathroom especially in the morning. So again is not what you want wen you fler up i believe.
But with time you will understand better your self if you pay attention to your body and mind and educate your self towards that direction it will improve your life quality. From my experience Crohn s is not about adding things to your body to get better...is about getting things out of your body and mind that brought you there , like depression...is a response of the brain to something that you don't like and keep doing it for long , same whit Crohn s .
I whish you all the best, you are a beautiful human being .
Hi, thank you for your comment :) I was in remission for almost 4 years without any medication before this flare up (which was my first after the initial flare up that led to my diagnosis). In my most recent video I address eating white bread and gluten. It has never upset my stomach and was actually recommended by my doctor's and specialists to eat while i'm flaring up. It has worked great for me for 4 years and is the only thing my body can tolerate when i'm not feeling well. Caffeine 100% is NOT GOOD for crohn's at all and I don't consume anything with caffeine. With not having coffee for 4 years since my diagnosis, I now only have decaf if i feel like one and with that I don't actually drink it, I only use it to dip some cookies into (so i'm really only ingesting about 1 tbsp of decaf coffee). I also only do this once every couple months. So to your point about everyone being different, you are 100% right. There are so many things I can no longer eat that DO hurt my stomach why would I stop eating the things that don't? Through my own trial and error over 4 years I have come to know my body and what works/doesn't, just as I say in my video. My videos are not to say "this is what you have to do" but to showcase my life with crohn's, because it is sooo different for everyone. IBD comes in many different forms, and this is mine.
White bread? Sugar in coffee? Processed chicken nuggets? These are all considered highly inflammatory from everything I have read on IBD, so how are you eating them?
Not true. Whole grain bread and products should be replaced by white bread and products with a low fibre count when in a flare. When in a flare I eat in a low-residue diet (as little fibre intake as possible) as recommended by my doctors and specialist. It has worked for the last 5 years with only 1 flare up so I will continue to eat the diet that works for me. As always, crohns is different for everyone so do what is best for you.
Yes sugar is high inflammatory. But there are times, my body only accepts juice/ processed juice/ processed meats. With crohns, you cannot really predict. White bread is better more me too coz it’s low in lectin. Brown sugar/ brown bread/ brown rice hurts me real bad. So yea.. it’s a hard illness. It’s different for everyone.
My nutritionist (when I was hospitalized because of chrohns (didn't know I had it) told me white bread is safe to eat with chrohns.
Are you in any medication? Please share and how do you maintain your weight as I'm struggling so much with keeping my weight up
I'm currently on Stelara and have been since August. It's been my saving grace as nothing was working for over 8 months.
Weight is tricky and mine is always going up and down too just with changes in pain and appetite levels. My biggest thing is trying to listen to what my body wants and when its hungry. I try to eat things that will make me feel good and give myself the nutrients I need. I definitely tend to eat A LOT more carbs when i'm in the stages of gaining weight back, I eat smaller meals but more frequently so its easier to digest, and also find it helps to keep a consistent eating schedule!
@@bellasala please do som videos on meals as I can never seem to have any ideas apart from recently eating Peanut butter on toast with ripe banana and avoid dairy now so drink Oat milk instead
@@safah1978 to my understanding oat in any form its hard to digest, rice milk is the best option, i really recommend for u to try and see if it works. Hope it helps a little.
@@bellasala Just wondering are the Stelera arm injections painful or mild. The Dr. Wants me to do Remicade but I have venephobia and prefer injections.
Fellow sufferers the only but only diet that helps is banana mango blended daily 3 times for dinners only but only broccoli potato soup blended for at least 3 months with extreme patience repeat extreme patience is needed no other food whatsoever, information is key what helps is not food but consistency detox modify colon bacteria then healing begins
what about protein?
Wouldn't egg, cheese and gluten in the toast be an issue?
Yes! Eat rice and potatoes and chicken that is not breaded, and Gluten free cereals.
For how long have you had it?
I got diagnosed in 2018!
Look up Dane Johnson on youtube, hope it helps. wish you a full recovery
Do you take medications as well?
I wish I had same appetite with ice
Really suffering in a flare
My appetite definitely wasn’t/isnt always like this. Before this video there was 8 very long month of no appetite and barely eating. Take everyday one step at a time and stay positive on that you can and will feel better soon 💕
You can’t have caffeine?
I’m watching videos about what other ppl eat during flare ups, and I know everyone is different but I think my bf has struggled with this so badly.
He’ll have a flare of for a day or so and then he will go eat takeout foods and I can’t help but feel that’s a recipe for disaster. Somehow he doesn’t learn what works for him or not and he will stay sick for longer. He drinks a ton of caffeine products and still had a lot of dairy despite saying he is a bit lactose intolerant… it seems a big amount of oats domt sit well with him like it doesn’t digest but I’m trying to see what others do. He also just doesn’t eat all day and stuffs himself like a holiday Turkey at night 🤦🏻♀️ it’s so hard to watch this idk how to help him.
Breaded chicken nuggets flare me up for days
8 month flare up i didnt know flare ups could last that long
Can you please suggest me good recipies
Yes absolutely, I will have a video coming out soon of lunch recipes I like to eat :)
Your three worse friends are stress, sugar, and high amounts of fiber with crohns, if you could limit that you should do way better and go into remission mostly.
And stay away from skins and seeds (ie fresh tomatoes are a no go)
Indonesia subtitle please 😭😭😭
I only wish I could eat eggs and having this disease
😍
I can't even drink water without my stomach going crazy.
Ugh I have definitely been there :( so sorry you're dealing with that...I have full hope it will get better soon!
Drink bone broth with lots of ginger and turmeric.
Eat a quart of blueberries a day. It's amazing how good these are for your body.
Mash some potatoes to coat your gut lining
Also goat milk Kefir.
Drink filtered water that removes chlorine and the electrolytes they add in. You can get the electrolytes from your foods
@@bellasala thank you! I hope things get better for you too.
Unfiltered water can make things worse
I am 23 years old. I have Crohn's And hard. All the thing I had give up to make feel better I was diagnosed when I was 18 years old and very hard to figure out what hurts my tummy so far raw tomatoes and cows milk soy milk and gultten eggs and fish
Hang in there love Ive had Crohns for 10yrs was diagnosed at 23 it’s trial and error you learn as you go what works best it’s steady fight I wish you the best it gets better It has its up and downs but things do get better I’m with you
Thank you for your comment! I couldn't have said it better...wishing you the best as well :)
@@bellasala you’re welcome and thank you 😊 glad there’s a community for us to learn and help each other
I am sending prayers and thoughts for healing to everyone living with crohns🙏🏽 I was diagnosed in 1998. There were no commercials advertising medications at the time. My oldest sister also has it. Thank You for the video and hope for a cure❣️