Ask the Expert - Hydrocephalus Episode 3: Pregnancy and Hydrocephalus, Is it Safe?
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- čas přidán 23. 08. 2024
- In this episode of our Adult Hydrocephalus Ask the Expert Video Series, Drs. Mark Luciano and Abhay Moghekar, from Johns Hopkins Medicine, answer a commonly asked question - is it safe for women with hydrocephalus to have children? They also explore issues that may arise for hydrocephalus patients if they become pregnant and how to address them.
Thank you so much for making these videos! As a woman of reproductive age with a shunt who is starting to consider pregnancy, this information is very helpful!
I am a patient of Dr Luciano’s, he performed my Chiari malformation decompression and a few others (had some complications as a result of intracranial hypotension) before he placed my VP shunt. This man is the most knowledgeable and most gentle human I have ever met. 100/10 would recommend ANYONE AND EVERYONE who needs to see a neurosurgeon to see Dr. Luciano.
Thank you so much for this! My partner and I are very much planning a pregnancy in the near future - and this has been heavy on my mind for a few years now. I developed hydrocephalus after an accident I had at 11 years old and spent 4 years in and out of hospital for shunt revisions due to blockage. The prospect of another revision has had me scared of actually taking this step for a long time now. But as always: information is key. And so this has been so great to be able to watch!
Yes I have Hydrocephalus no shunt but I was fortunate to have 2 beautiful daughters who light up my life every day.
Did you headaches get worse during pregnancy? If so what did they give you?
Thanks for this, I would love to speak with someone on this topic
Hi my name is Meriem and am 24 years old from north Africa and am sending love to people like me 😉❤️
Hi Meriem. I'm from East Africa 👋
I was shunted at 6 months old. I was discharged from nsg care when I was about 8 years old as I had been stable since infancy. My shunt drains into my jugular vein . I had an OB/GYN for my first three pregnancies. My last four babies were born at home, my choice, because the hospital would not let me deliver the way my body needed to. .
I've had shunted hydrocephalus since 1965 due to bacterial meningitis. Back in 2000 I delivered our first son via emergency c-section plus they found out that my pelvis is way too small, this was after a grueling HARD labor on a Pitocin IV the whole entire night with no progression past 2 centimeters. Our first son after a 21 hour HARD labor was delivered via emergency c-section, and weighed in at 8 pounds 4 ounces at 21 inches long. Our second son was delivered by repeat c-section in 2003, he was even bigger weighing in at 9 pounds 4 ounces and 20 inches, I had gestational diabetes with him.
Tammy king may I know please how many times u have undergone replaced since 1965? And any contraindications during pregnancy please may I know?
I have always wanted to know abd even asked my Dr about this just a few weeks ago..
Elective cesarean birth when no legitimate threat to the mother or baby exists sets up the baby for a life-long set of challenges that are completely preventable. Cesarean birth as elective or convenient should never be an option. Research is starting to show that many issues a child or even adult may develop can be traced back to the unnatural way in which a cesarean throws off critical hormonal responses among many other issues. So I get it that a mom with hydrocephalus needs to take precautions that perhaps others do not but a cesarean should be avoided if at all possible. Many cesareans are chosen for the protection and convenience of the doctors or because a mom (or perhaps the family as a whole) wants to choose a date or some other self-serving reason and this should never happen. Nature should be left to take its course.
I was pregnant this year...due to hydrocephalus i got aborted at 9 month pregnancy... If there any possibilities for my 2nd baby to get affected by the same disease???? Kindly please rly.......i think really worry about that....
Do you have the any info about it.plz let me share..i have the same problem
@@anushajonnala1527 its ur first baby or not
@@shamisid2311 its my Second baby nd i got aborted also last year..now im 8 weeks pregnent.... im afraid of this now
@@anushajonnala1527 how is first baby sista
@@anushajonnala1527 dont worry about that.... Dont over think negatively its affected baby....so everything will be fine......