Newborns with Incontinentia Pigmenti: Neuro-imaging Findings | Aneta Soltirovska Šalamon | DMCN
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- čas přidán 21. 08. 2024
- In this podcast, Aneta Soltirovska Šalamon discusses her paper, entitled 'Clinical presentation and spectrum of neuro-imaging findings in newborns with incontinentia pigmenti'.
Read the paper here: onlinelibrary.w...
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Developmental Medicine & Child Neurology (DMCN) has defined the field of paediatric neurology and childhood-onset neurodisability for over 60 years. DMCN disseminates the latest clinical research results globally to enhance the care and improve the lives of disabled children and their families.
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My daughter was born in 1975 with this. There is no known cure.
My daughter has incontinentia pigmenti. Is there a cure?
i have it and unfortunately theres no cure so far. its a genetic disease
I have it too.
@@muckbaby2000 she has it since she was 1 month old. Its mainly on the right side of her body. Few on the left.
@@donnamarquez2624 how old is she? The skin problems will get better very soon, its „only“ in the baby age I would say
@@mariemuller6820 she is now 5 yrs old. It gets lighter on her right arms but not on her legs.. And other part of her body. Because of that i cannot let her wear shorts when we are going out because i dont like people staring at her like as if she has some kinds of a disease... 😢