About 1 in 5,000 people currently live with Marfan Syndrome
Vložit
- čas přidán 11. 09. 2024
- From the start of her young life, 6-year-old Haley Langford has faced challenges. For the next few years, her parents took Haley to dozens of specialists in an effort to figure out why she was growing but not putting on weight.
Ffs out of 5k people , i was chosen to be that guy ! I'm 23 ! I'm 188 cm and 61 kg
Does it affect your life in any way?
@@Watermelonsone depends .. for me heart beats increase when u get stressed so you have to either calm down or take propranol ( medicine ) , and you don't really get fat and your muscles and bones may be weaker compared to a normal body, you can do sports but don't pick heavy stuff cuz it might put pressure on your heart . But as I said , it all depends on the person and the condition they are in .. Im 23 atm and 188 cm ,63 kg . U have to get yourself checked up every 6 months for the eye sight + Heart diseases so nothin bad happens
@@itzspryzen95 I got a blood test recently to know if i have it but it will take a while to know what the results are. Thanks for answering my question by the way.
@@Watermelonsone np dear anytime , hope good things happen to you , goodluck my friend ✨️
I hate mitral valve regurgitation, blurry vision, small lower jaw, high arched palate and some other "Marfanoid" signs but not all of them, I'm so worried I may have it, I'm male, 35 y.o., 179cm, 77kgs
Omg she’s so adorable
Haley's dad is hella fine
I'm sure his wife thought she won the genetic lottery with him.... Until... Well ...
😂😂😂😂
@@Jaggerbush Muh tall men good genes
He is unusally handsome 😂
How come her parents both healthy
Spontaneous mutations can occur during development, not everyone inherits genetic disorders from their parents
I was diagnosed at a young age and I was a spontaneous mutation case. It’s also important to note that major problems didn’t really begin until age 30 and I’m 47 now. I’ve had multiple surgeries including a random dissection to my descending aorta while driving to lunch one day back in 2/2011. D
@@janellee250 😰
@@wallacesousuke1433 Exactly!!!
The dad is unusally handsome
Abraham Lincoln had marfans syndrome 😊
That's a theory. They didn't know about it then.
@@fazole yeah but his ancestors have it now.
I have this 😭 I'm freaking out about it rn
Sorry to hear that buddy, i had an aortic aneurysm so i might have it too. Im gonna undergo testing for it this week. May i know how you got diagnosed?
I've had Marfan syndrome for 33 years, I've been in a wheelchair twice in my life and got myself back out of it twice, we are stronger than we know, you must look after your hearts 💜 take detox supplements like spiralina and ginko leaf supplements to empower your brain and detox your nervous system, calcium and sodium ion channels.
Before I lost my job to disability I was a lecturer, course manager and assessor of biological sciences teaching zoology and animal behaviour.
It's time to listen to teacher because I've been to the mountain top, ive ascended into my own power and I know how strong people with marfan syndrome are.
We have alien DNA, they called us nephilim, annunaki, titans, giants, I have the power to switch off pain at will because we sit with it every day and it becomes our teachers, you have to listen to your body, detox. (Research water fasting, become a water dragon)
Meditation.
Mindfulness.
Deep nasal breathing.
Polyvagal theory (essential).
Everything you can about conciousness and awareness.
Perrin technique.
Yoga/tai chi/ stretching daily before and after bed
@@Shinigamigaz sorry about that. I'm only 16 and I have it. I got diagnosed with it but I don't think I have it severely because I'm still quite active or I don't know maybe I do. I play singles tennis and I get around really good but you can definitely tell I have it. I have most symptoms if it and I went undiagnosed for so long. I've always been kinda tall and skinny and stuff and my back is werid. I can lift weights kind of okay but I can't do it consistently
The path of the immortal warrior is painful, it is a conversation with the U-niverse, you have to master your biological functions, to know yourself is to research the inner workings of a cell, an organ, an endocrine gland, an enzyme, an atom, a quark and apply that knowledge to everything around you, you have to survive the impossible, you have to rise like a Phoenix from the ashes of who you thought you were, dig deep inside of you and ask yourself.
Why do I want to live forever, if the awnser is anything other than i want to protect everything I love in this reality so that others can achieve what I have achieved in their own time, I want you to walk slowly, I want you to move with purpose and confidence, I want to see a smile on your face, not because anyone wants you to but because you understand that something as simple as a smile at higher levels of conciousness and awareness has the power to drastically change your perception of what is and is not real through analytical thinking techniques and shadow work so you can shrink your amygdala and be free from trauma that is holding back your potential.
I want you to research the tools needed to understand conciousness if you are struggling. I want for you to feel safe, to feel happy, to be loved, not because its essential but because it is what you deserve, self love is all you need. Believe in yourself and the universe starts to believe in you. When we smile into the void, the void smiles back.
The Universe is a Teacher, an assessor and is invested in your continuous professional development as a proud human of planet earth, watching over you proudly, seeing you struggle and overcome everything life throws at you, I want you to develop an analytical mind, unlock your senses so you can sniff out your inner demons, grab them by the scruff of the neck and vivisect them to understand where, when how and why you keep repeating the same patterns, negative thoughts and actions.
I want you to feel the strength inside that I feel and feel confident enough to know you dont need to use any of it unless it's for positive actions. The Universe is a cannibal and will eat you alive if you stop believing in yourself.
All actions have consequences, you have to be ok with that, you have to be ok with Death, if you're not you will fall again and again until you learn either in this life or in limbo where you will relive your trauma again and again until you forgive yourself for not knowing any better at the time, there are no failures in life, no broken people, there is just you and the Universe dancing to the cosmic beat of the light reprogramming the void to lead you to your goals in life. To be able to protect yourself and those you love with pride and the willpower to move mountains.
I want you to know you are capable of anything, the good the bad and the impossible, you truly are only limited by your imagination and your belief in yourself.
I want you to know I'm rooting for all of you and I wish I could hold your hand and walk you through the storms and the fire, I would dive headfirst back into hell if I could save just one more soul, I am with you, you just cant see me yet until you open your eye, your pineal gland is your connection to the alien god within and once you tap into that primal energy, you become more than you ever thought possible and you laugh at your old life with a smile on your face, love in your heart, finally healthy and whole again, not because somebody told you to but because that is what your DNA drives you to achieve.
Remember you are cosmic jellyfish fused within an immortal dragon monkey, research neurobiology and take the time to learn about your biology, your brain and your nervous systems, how to regulate them effectively and how to breathe, stay calm and live laxidazically, we learn these lessons on DMT and our bodies produce it naturally 🙂 (psssssssssst: water fasting and oxidative stress, endo-ayahuasca is the best)
Dont give up, you are loved and you are needed, the Universe needs protectors just as you are protected, without judgement and without fear, it is natural to judge yourself and others during the process of becoming an adult but dont you dare dwell on the past when your future could be whatever you want it to be.
My name is Gary Arthur Cooper, I am the Universe, i am you and you are me, there is no difference between the spark within you and the spark that ignited this dimension so we could all develop and thrive, here together.
It is normal to enter survival mode when you are dealing with the God of life and Death and what do we say to the god of death?
Not today.
🙂 dont be fooled by anyone including your family and acquaintances, you are powerful beyond measure and I hope you realise that before you decide to leave this world as vulnerable as you entered it.
Slowly slowly catch the monkey 🙂
Thank you for your patience 💜
I'm back 🥳
I have it too but it’s nothing to worry about just take the provide medication for it until you get surgery for it
I have this and 36
I have This Deasese I have two brothers and one sister And We have this I'll So This Deasese any type of Treatment Please Give me Information 🙏
Hey!
You can visit a good doctor .
Hey !
You can visit a good doctor.
@@vandita4006 ok thank you
@@vandita4006 what the doctor can donig??
hello bro kaha se ho ap
It’s important to note that Marfans patients can also have extremely high arched feet and a high arch in mouth
R a c h m a n i n o f f