This disease sucks...scary as hell first episode, thought I was having a stroke or similar. So far diet and exercise is helping but its totally unpredictable. I dont like venturing too far from home..
I have had it more than 25 years. You will get used to it and learn how to manage it. You will start to see the warning signs that you will have an attack in the next few days or couple of weeks. Keep the meclizine on your person at all times. Put some in your wallet. Under the brand name Bonnie, it comes on cards with 8 pills per card. Read the package carefully. Recently Bonnie has started selling Benadryl, diphenhydramine, in the exact same package. I just got a couple boxes and it is the wrong thing. Vinnie is about a dollar or so more than other brands, but it is dissolvable/chewable and the taste is not unpleasant. I find it works better. If you take the diuretic only for attacks ( I did for the first 20 years or so) then ask your doctor to please write for some you can keep on hand along with nausea medicine. I am on diuretics all the time now. Honestly, I used to fall at least once a day - now, almost never. I never realized the connection before. I have both zofran ( ondansetron) and phenergan ( promethazine). For the first couple of days of an attack, the phenergan works better for me then I can switch back to the zofran for a few days before I can stop it all together. For attacks I use prednisone in a high dose taper. When the usual meds don’t help is when you would use the Valium or whatever benzo your doctor likes to use. It was explained to me that the meclizine suppresses the dizziness and benzos will stop it completely Every 2 years or so I have a big issue. I keep these meds together in a big baggie labeled Meniere’s rescue kit. It is on the top self on the bathroom closet so I can send someone or get it myself easily. Avoiding attacks is key. Stress from any cause is a big one to avoid. Some things are just part of life - the holidays, weddings, death of a close person, job stress, I’ll children or spouse, home stress like a pipe breaking or appliance breaking, financial, weather disasters et cetera. A happy time, such as weddings or grandchildren’s birth- is still a stressor to your body. When I travel I bring my emergency kit in my carry-on if I am flying, or bring in the car wherever I am sitting. Just knowing I have the emergency meds greatly decreases my worry You can do this and travel and have a full normal life. I urge you to have a heart to heart talk with the doc regarding your concerns. I will pray for you
I was diagnosed with menieres disease a couple of years ago, I've had three sessions of steroid injections into my inner ear and am also on Betahistine 16mg 3 times a day. My doctor has also put me on acetazolamide. Which appears to be used to treat altitude sickness and glaucoma. I'm curious to know if anyone else is taking acetazolamide in relation to menieres?
current nursing student. my nursing book says that diuretic therapy can help... and my drug guide says acetazolomide can be used for diuresis and altitude sickness so thats probably why your doctor prescribed it. your other medication is an antihistamine which will help with the vertigo and nausea and vomiting. hope that helped you to have somewhat of a better understanding. again...just a student soooo...might be best to ask your doctor or pharmacist why exactly you are taking these medications and what they do.
This disease sucks...scary as hell first episode, thought I was having a stroke or similar.
So far diet and exercise is helping but its totally unpredictable. I dont like venturing too far from home..
I have had it more than 25 years. You will get used to it and learn how to manage it. You will start to see the warning signs that you will have an attack in the next few days or couple of weeks. Keep the meclizine on your person at all times. Put some in your wallet. Under the brand name Bonnie, it comes on cards with 8 pills per card. Read the package carefully. Recently Bonnie has started selling Benadryl, diphenhydramine, in the exact same package. I just got a couple boxes and it is the wrong thing. Vinnie is about a dollar or so more than other brands, but it is dissolvable/chewable and the taste is not unpleasant. I find it works better. If you take the diuretic only for attacks ( I did for the first 20 years or so) then ask your doctor to please write for some you can keep on hand along with nausea medicine. I am on diuretics all the time now. Honestly, I used to fall at least once a day - now, almost never. I never realized the connection before. I have both zofran ( ondansetron) and phenergan ( promethazine). For the first couple of days of an attack, the phenergan works better for me then I can switch back to the zofran for a few days before I can stop it all together. For attacks I use prednisone in a high dose taper. When the usual meds don’t help is when you would use the Valium or whatever benzo your doctor likes to use. It was explained to me that the meclizine suppresses the dizziness and benzos will stop it completely Every 2 years or so I have a big issue. I keep these meds together in a big baggie labeled Meniere’s rescue kit. It is on the top self on the bathroom closet so I can send someone or get it myself easily.
Avoiding attacks is key. Stress from any cause is a big one to avoid. Some things are just part of life - the holidays, weddings, death of a close person, job stress, I’ll children or spouse, home stress like a pipe breaking or appliance breaking, financial, weather disasters et cetera. A happy time, such as weddings or grandchildren’s birth- is still a stressor to your body.
When I travel I bring my emergency kit in my carry-on if I am flying, or bring in the car wherever I am sitting. Just knowing I have the emergency meds greatly decreases my worry
You can do this and travel and have a full normal life. I urge you to have a heart to heart talk with the doc regarding your concerns. I will pray for you
I've been through the lot , then started fainting falling, I had the epliley done it's great 😅
Useful and important information
Thanks a lot
I've been in a week long episode 🤢 have not been able to eat solid foods either.
Are you any better now? Did you get help or some specific medication?
Been having non stop ringing in both ears dizzy spell but I'm only 30. Not sure what's happening. All I know is the ringing gets so loud!
Thank u ..very helpful video
Very informative video
I was diagnosed with menieres disease a couple of years ago, I've had three sessions of steroid injections into my inner ear and am also on Betahistine 16mg 3 times a day. My doctor has also put me on acetazolamide. Which appears to be used to treat altitude sickness and glaucoma. I'm curious to know if anyone else is taking acetazolamide in relation to menieres?
current nursing student. my nursing book says that diuretic therapy can help... and my drug guide says acetazolomide can be used for diuresis and altitude sickness so thats probably why your doctor prescribed it. your other medication is an antihistamine which will help with the vertigo and nausea and vomiting. hope that helped you to have somewhat of a better understanding. again...just a student soooo...might be best to ask your doctor or pharmacist why exactly you are taking these medications and what they do.
are you better fell??i also have same problm..😰
@@ibrahimdawood2321 how r u brother?
At what are did it occur .. and how it felt at first .. please reply
Been through it all, the epliley test is great, had it done feel great.
Thanku
You are welcome
Can you please share this ppt link
Im so lucky at 25 I got it bilateral and at 26 I now where hearing aids
I'm fortunate to have gotten bilateral hearing aids at 25 and now wear them at 26, greatly enhancing my quality of life. ❤️
@@MedicalCentricbro how you get relief from meniers
❤
❤