A Slow, Healing Recovery Day In The Life | Chronic Fatigue & Fibromyalgia FLARE UP
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- čas přidán 3. 07. 2021
- How I Cope On Tough Days, I struggle with Chronic Fatigue & Fibromyalgia join me on flare up Recovery Day. A Slow, healing recovery day in the life.
m e n t i o n e d
Stephanie Whittek Chronic Illness Vlogger & inspiration - / stephaniewittek
v i d e o s
minimalist cottage tour - • Minimalist Cosy Cottag...
bringing home our ragdoll kitten - • Bringing Home Our Ragd...
cosy fall evening routine - • Fall Evening Routine 🕯...
day in the life playlist - • Moving into my cottage 🏡🥰
s u p p o r t
✧My etsy store (hand made crystal jewellery) - www.etsy.com/uk/shop/luanacre...
✧ My Ethical Crystals Store - www.etsy.com/uk/shop/luanagem...
┈ ✧☽☼☾✧ ┈
Other places to find + connect with me .
✧ Instagram - / livingthelifeyoulove
✧ Echos Instagram 🐾 - / dailylifewithecho
✧ My blog - www.livingthelifeyoulove.co.uk/
~ m u s i c ~
Epidemic Sound
This video isn't sponsored, all opinions are my own
Kay ✨
Happy Sunday lovely people 🤍
I understand your pain I have multiple problems that being one. Stretching is great and personally I went vegan in 2009 and that helps a lot.
Don’t ever feel like your complaining. Chronic illness is very real and very common among us all. I find it comforting to hear of others stories. It makes you feel not alone.
im watching this at 03.14 with a fibro flare up. i never comment on youtube but i wanted to say thank you for sharing, i feel a little less alone now:)❤️
It is very hard, you never feel hundred percent everyday is a struggle,always struggling with hundreds of side effects of fibromyalgia it is exhausting,I hope they will find a cure for it one day.Very sad that we have to go through this.
When the dark thoughts come, don't judge them/yourself, just observe them. Let them pass through you instead of sticking to you.
The doctor you mentioned should be ashamed because giving such information is neglectful at best and very harmful at worst. I'm glad you changed GP's. I've got Fibromyalgia and CFS including IBS. I smiled when I saw you do the stretching exercises. Many of us wouldnt dare do that... we would never be able to get up from the floor. Wishing you a good journey as you navigate your life and take care.
It took me 12 years before I was diagnosed with fibromyalgia. My own doctor didn’t believe in it and sent me to a psychiatrist. She said I was obsessed with my health. I felt so defeated. Finally I found a doctor who diagnosed me after being in his office for 5 minutes. I have had it for 26 years now and still haven’t found any real relief. Like you said, I try to fight and struggle through every day, but sometimes you just have to give in to it and feel sorry for yourself and give yourself lots of Tender Loving Care. There is nothing wrong with that. Living with chronic pain takes a great deal of strength and energy to get through each and every day. We all deserve to just Let Go once in a while. I find swimming lengths of the pool is the best relief for me. I used to do aqua fitness in the pool, but can’t do that anymore. It just exacerbates my pain. When you get into the water you really don’t feel any pain for a while. The water is so gentle on your body. I hope you get some answers. Take care of yourself. Surround yourself with nice things and things that make you happy. Love and hugs to everyone out there with this awful illness. ❤❤❤
This video made my cry in sympathy. I have the exact same symptoms, sometimes I can function, sometimes I can't and the "am I just making it all up" hit me in the gut so hard! Thank you so much for sharing honey, it's so nice to not feel alone with these struggles. I wish you a better week this week coming 😘😘
Actually Excercise is no longer suggested for CFS. It was for many years but recently doctors have been told not to prescribe this as part of a therapeutic treatment. It can do more harm than good. Sending you love and healing 🙏
BACME and NICE guidelines. Well said 🌻
So just succumb to a wheelchair life? No thank you. Ive heard some stupid shit but that is outstanding. **U know just because a Dr says something doesn't make it right right?
Thank you. I was diagnosed one month ago. My family says stuff like you just need to be more active. If you try harder. You have to push yourself. You need to shower more. You need to be more active. When are you gonna make dinner. You need to do the dishes. I am 45. My husband is 50 n my daughter is 27. She has aspbergers. I just found your video. I’m in us. I’m glad I found you. ^Hugs*
You’ve always been so candid about you’re ‘struggles’. Not something we see all the time and it’s definitely helping someone. Hugs and all the best to you ❤️
Just you going outside and doing yoga is more than I could ever do in a year
I was lucky to have a great physiotherapist at my GP practice, who back me up and I had a doctor who actually comunicated and thanks to them I got my fibro diagnosis, pets are amazing my wee dog actually knows when and where my pain is, she'll cuddle in to the pain area and cuddles from fur babies always help x
I didn't believe when Dr okouromi on CZcams said he can help me beat fibromyalgia with his natural herbal medicine, after taking the herbs I feel much better now no more pains I'm so happy! You can also reach out to him for permanent cure
I know how you feel, life seems to be more of a struggle when we don't get proper sleep. Hope you feel better soon!
I have similar symptoms, and my doctor kept trying to tell me for 3 years it was in my head - suggested depression (hadn't mentioned any mental symptoms), and to 'just get a massage'. Blood tests fine, ultrasound scan fine also. I've now finally been diagnosed with Celiac disease, seeing a neurologist (may be nerve related) and booked in for an abdominal CT scan. You know when you're not well and exhausted. So frustrating when doctors keep trying to tell you you're ok and not sending you for tests.
me too! felt so unwell for ages. diagnosed celiac in December
I didn't believe when Dr okouromi on CZcams said he can help me beat fibromyalgia with his natural herbal medicine, after taking the herbs I feel much better now no more pains I'm so happy! You can also reach out to him for permanent cure
Thank you for bringing this debilitating disease to the forefront, Its very real!
I used to watch your minimalism and van life videos before I got too sick (ME/CFS). I had no idea you got a chronic illness too. 💙
It makes me so mad when doctors say “just lose weight and you’ll be better”…it’s such bullshit and a complete cop out…you’re beautiful and perfect ❤️ and your health symptoms are real and valid ❤️❤️ loved this video and it really helped me!
It's 3 in the morning and watching you, I suffer to with Chronic pain, my Husband has just suffered a massive Stroke so sleep for the last 2 weeks has been dreadful, just the exhaustion. So thank you for keeping me company at this awful time of the 🌙night. Bless you 🙏♥
Bless you x fellow Chronic illness lady here.. Sending you big hugs.. I think what you are showing others here on your channel is good for people to know they are not alone, well done for being brave to share. I struggle to share, so I have deep respect for you lovely lady x Sending you big hugs, you really are the sweetest and your cute family bless you. Take care fellow Warrior lady! 🤗😇💕
My wife started having TIA’s (mini strokes) 3 years ago, and doctors eventually diagnosed her with Moya Moya, which is a genetic brain disease. Their fix? Intercranial bypass surgery that involves rerouting blood vessels from outside the skull to the inside through a hole cut in the skull. The result of this “fix”? She had a massive stroke while in recovery and hasn’t walked since or regained the use of her left arm. Also greatly affected her mental ability, and has turned her into a mean, nasty disposition type person! Sleep sometimes doesn’t happen, and the overwhelming feeling of knowing that this is how it is! After 3 years there’s no chance that her function will return, or her ability to do anything for herself! I retired last year after 41 years on the railroad, and our retirement is quite different than I had envisioned all those years. I live one day at a time, and always keep in mind each tomorrow is a new start! God never puts more on us than we can handle, but I didn’t realize I could handle this much! Keep your head up, forget yesterday, and look for that brighter tomorrow!
I hope your husband is getting better and please look after yourself 🙏
❤
You dont seem like you're "complaining", i actually found your video so helpful and validating! Im trying to explore whether i have fibro or cfs, and based on your video and some others iv watched today, i think i have cfs. Im in the process of getting diagnosed. It's so difficult when doctors are assholes xx
Cfs 26 years since a fall fybromyalgia n6 but same thing muscle pain.is in me anyways though found out why ADHD now diagnosed with Asperger's since sons diagnosis and heds Dr lenz ADHD fybromyalgia connection
I really loved this video. I suffer from severe endometriosis, and there was definitely a lot of gaslighting in the early days of my diagnosis. Finding the right GP was honestly a life-saver. Nothing ever showed up on scans (although a specialist could see deep endo via an MRI after my first, diagnostic surgery). Endometriosis is an invisible illness too, and sometimes people are amazing about my struggles, but others aren't. I just had surgery from my second surgery, and it has been a very slow, difficult recovery, but I was so lucky to have two top specialists operating on me to excise the disease. It's an incurable disease, but I do have hope now that my future might be a bit brighter. I actually really enjoyed the tea you mentioned in your video about your period during my recovery from surgery. I don't know if you're life me, but flare-ups can be so scary - and I think that a lot of people don't get that, especially when it's something chronic. Chronic pain changes you and it turns up the volume on all pain on the body. I pray that you feel some substantial relief soon. Lots of gentle hugs. xx
I doubted when dr okouromi on youtube said he can help me beat fibromyalgia with his herbal supplement, now I'm totally cured, all symptoms gone thank you doctor.
I have endometriosis too, so I can relate to lots of your comment. X
3 invisible symptoms and life saving treatment for fibromyalgia you need to know therxprescription.com/product/fibromyalgia-support
I had a similar experience in getting diagnosed with Endometriosis. Hope you had a full recovery from your 2nd surgery.
@G G I know you're not asking me, but in case it helps. I went through multiple gynecologists before I found someone who was knowledgeable about endometriosis. Most GPs only seem to have a basic understanding of it.
I have fibromyalgia as well and some times i struggle to sleep especially when im in pain n I don't sleep at all due to pain or being sick and watching this made me realise im not alone with chronic pain but it does get hard trying to have a life with this pain because some days i feel like not getting up out of bed at all due to pain.
Glad you have your kitty 😊 animals help keep you distracted sometimes ❤ hope we all get a cure soon. Gentle hugs!
I have fibro chronic fatigue and IBS. And I suffered for years u til I went onto the keto diet. No car sat all no dairy no soy. And I basically follow Dr berg on utube and I am a million times better, yes I have flare ups. No coffee and I do Intermittent fasting and lost 13 K and feel like a different person. I am old enough to be your grandma and had these symptoms even younger than you. I hope you find someone who can help you as med doctors do not know. Good luck darling ❤
4:06 that moment when Echo came over to test out the mat for you 🥰😍🤍🐈
I want to send you a huge hug and wish you all the best. Take your time and don't do a video if it is getting to much for you,i think you need to get a rest whenever you feel like it,or you don't ferl to well...Wishing you all the best and stay safe🥰🌻
Have a happy sunday too🐈🌻
I doubted when dr okouromi on youtube said he can help me beat fibromyalgia with his herbal supplement, now I'm totally cured, all symptoms gone thank you doctor.
I can totally relate, I suffer from chronic migraine, IBS, endometriosis and have two prolapsed discs in my lower back. I gained twenty kilos over an eighteen month period which I just can't seem to lose. I also suffer from insomnia and wake up pretty much every two hours every night. Life often feels like an up hill struggle. I have just had four months away from work due to my health and am in the process of a slow, phased return to work. I am an emergency and critical care out of hours veterinary nurse. Before I went off sick I was the Principal Nurse Manager of the clinic but have now stepped down and returned as just an out of hours nurse. I'm on my new journey looking after myself and doing all that I can to maintain a good work / life balance. Eating well, staying hydrated, moving my body, stretching, mindfulness and meditation. I now just take things one day at a time. I have started new medication for my migraines which fingers crossed seems to be helping, reducing from an average of 21 attacks a month each lasting up to 48 hours to eleven from 8th June (when I did my first injection) to today (7th July) I'm due to do my second injection tomorrow. I have to inject myself every month. Sending lots of love xx ❤️ PS don't ever apologise, you're not moaning you're sharing and it helps you and so many others. I love your videos xx 😘
Definitely agree on your views on doctors, I have health issues and all they're interested in is giving out medication x
Researchers at the University of Edinburgh - music like the #fresh John Newman combats mental fatigue whilst running czcams.com/video/kXx9SI4wGZI/video.html
Thank you for being so honest about your struggles. I have fibromyalgia so can relate a lot to how disruptive and upsetting flare ups can be. I’ve turned a corner recently with lots of trial and error, but it’s still a battle and I’m still learning to understand it better. Sending big hugs 💛
I really feel for you. As someone who also has Chronic Fatigue and fibromyalgia it's an experience few can understand unless they have lived it too. With regards to doctors, I have come to realise that I have to be my own advocate when talking to them. I now only see only one doctor who listens more if it is something I want taken seriously and I just keep chasing and pushing if things don't seem to be happening. I came to realise that seeing any old doctor who I can get a quicker appointment with is just too random and it is better to be patient and speak to the right person instead even if it means waiting a few weeks.
Also, that doctor lied to you, there are medications for fibromyalgia, no they don't cure it but they do help with the pain. You don't have to just see the doctor you are assigned by the surgery you can "try" different doctors until you find one you gel with more. Good luck. You are totally within your rights to ask for a referral to a rheumatologist for fibromyalgia
I doubted when dr okouromi on youtube said he can help me beat fibromyalgia with his herbal supplement, now I'm totally cured, all symptoms gone thank you doctor.
I am 58 years old and just have been diagnosed with neuropathy, chronic fatigue, and diverticulitis and I am very active but I have found like today I have to slow down and rest. I am so very tired!! Thank you for sharing your story, it helps to know I am not the only person who has this problem.
I didn't believe when Dr okouromi on CZcams said he can help me beat fibromyalgia with his natural herbal medicine, after taking the herbs I feel much better now no more pains I'm so happy! You can also reach out to him for permanent cure
❤️ it’s good to be honest about how you are feeling and not hide it from the world. I don’t suffer as bad as you or my friends with fibromyalgia but I do suffer from painful flat feet when I’ve been walking on them for hours. And ibs. It’s great that you are talking about this xx
Thank you for sharing this. I can really relate.I’ve been diagnosed with fibromyalgia in 2009 and I am not any better than when I was diagnosed. I was in a car accident at that time. Have been in 7 in total but in general my blood work has been fine. I do have complex ptsd, anxiety and depression due to childhood trauma. I have to work two jobs to support myself and it’s exhausting. I wish I could afford to stay home in rest more often. But drs aren’t even able to give me intermittent fmla for my symptoms to protect my job even though I have over maxed my sick time.
I also have chronic fatigue and had the corona which resulted in a massive flare up but could not discuss it with anyone. I have mostly done my own research and look after myself the best I can.
Hi Kay, I have found the pacing guidelines from Mindfulness for Health really helped me to cope with chronic pain (arthritis now and plantar fasciitis in the past). Sorry for giving advice, I am sure you will have tried pacing already, but I know many people with fibromyalgia and chronic pain who have found it transformative.😘
I doubted when dr okouromi on youtube said he can help me beat fibromyalgia with his herbal supplement, now I'm totally cured, all symptoms gone thank you doctor.
Remember it's your right to get a GP that listens. My ex GP was struck off I was a victim and now only have use of one leg and although the other leg is paralysed I still have pain. You need to go when your at your worst.
We had extreme heat the past week and the past 2 days have just been terrible for me.
I’m sitting here on my computer and just not wanting to move because it hurts.
I have IBS/Oral Allergy Syndrome/potential Gastroparesis (haven’t gone through the testing for the last one yet - thanks to 2020).
I feel you on all that you have shared. My experience as well
I didn't believe when Dr okouromi on CZcams said he can help me beat fibromyalgia with his natural herbal medicine, after taking the herbs I feel much better now no more pains I'm so happy! You can also reach out to him for permanent cure.
You are so not alone ❤ Pain and heat made it really hard for me to sleep this week, and I was feeling really low when I saw that you had made this video. It really helped. Please keep sharing. Love from Sweden ❤
I doubted when dr okouromi on youtube said he can help me beat fibromyalgia with his herbal supplement, now I'm totally cured, all symptoms gone thank you doctor.
@@emmanuellaadjegan9571 0
@@emmanuellaadjegan9571 sorry pressed the wrong button I was just going to look at the CZcams video you mention. I.have fibromyalgia. Many blessings 🙏
@@suespiers9943 Dr okouromi
Thank you for sharing I can't always put into words how I feel when I tell my family and friends that I'm not coping with my fibrom symptoms but you expressed exactly how I have been feeling so thank you for that.
Thank you so much for sharing all this with us ❤
You don't need a diagnosis, you already have one. ❤ This is my life too so totally understand. Take care. Frances x
Thank you for sharing your story. It was so helpful! ❤
Gorgeous Cat. Hope you feel better soon.
❤️. Bless you sweetheart. I hope you start to feel better soon. Xx
Thank you for sharing your story ❤️. Be well. Love all your stories!
Beautiful relaxing videos, thank you x
Sending you a big hug. And I am excited about 'that" video.xx
Thank you for sharing. Sending love and best wishes your way for better days ahead 😊
❤️ we are always here love. Sending hugs xx
We are not alone. Thank you so much for sharing these difficult moments with us.
Thank you so much for sharing this. I appreciate your honesty so much! You beautiful soul 🙏🏼
💕💕💕 hope you feed better soon n take care of yourself 💕💕💕💕
Sending you a healing hug.. and Echo is adorable running around like that on the yard.. excellent idea to keep that sweetie safe 🐾
I hope you get better soon, in my prayers ❤️
❤️ Thank you for sharing. And your herbs are looking beautiful!
Peace and rest to you. Take care of you, sending warm thoughts.✨💫
It's very brave and selfless of you to share your struggles in the hopes of helping other people with their own. I hope you find the answers you're looking for soon, and good for you for advocating for yourself by finding a gp that is a good fit for you.
It's clear you have a very solid handle on your own symptoms too. If your doctor has never suggested it, maybe consider having them check for Celiac disease, there is a specific blood marker they can test for. Best wishes to you and thanks for your videos.
Take care and take your time, kay, and fingers crossed for your recovery 🤞have a lovely Sunday 💚
Thank you for sharing! I resonated with everything you said!
Thank you so much for this video Kay. I can Totally relate to how you feel & All you e said. you’re not alone. I’m sending you love & hugs 🤗✨💕
Oh bless you dear Kay, listen to your body and do what you think is right X
This must be hard. Thank you for explaining it so well. Hope you feel better soon! 💜💜💜💜
I'm glad you are sharing about your illness! You really haven't shared much! It helps for understanding others and normalizing my own issues!
Thank you for sharing this with us. I feel your pain and know what it's like to have a chronic illness. My heart is with you.
Bless you.....lots of love Sue from Melbourne Australia. Xxxx
Thank you for being so true! You are right to share all the good with all the bad is important, because everything belongs to our lives.❤️
You're so lovely! Thank you for sharing
Thank you for sharing your struggles so openly. Sending lots of love and good vibes your way, and I hope the week ahead will be brighter for you ❤️❤️
Thanks for sharing your personal story. Very inspiring! I love how beautiful your garden looks.
We have a ragdoll cat too and she knows always my worst health days, they are the best x
I am so glad Ive discovered this video and your channel. Finding someone you can relate is so important
I was happy to see and hear you were feeling a little better by the end of this video. Hugs to you. Keep doing what you know works for you and keep looking for new things to try. 🤗🥰
You have encouraged me so much, your are kind and sweet and I am so grateful for this video today. Thank you! ⚘
Hello lovely Kay, I just wanted to send you a gentle hug and lots of love through this hard time. Taking things slow and just looking after yourself really does help me. Xxx
Thanks for sharing. Sending you a virtual hug. ❤
Thank you for sharing your struggles and being real. You never know who you may help by doing it. I am praying for you. ❤
Thanks for sharing your rough moments with us. It does help those of us with chronic illness to see others who are enduring and get tips for self-care and healing. Excited to check out that podcast. Enjoy your day, Kay. 🌸
Absolutely enjoyed this, thank you for sharing. Absolutely excellent video as always, Kay you are such a beautiful person.
Awe so sorry you r so unwell😰 hope you get really good sleep tonight and feel much better tomorrow 🙏 bless echo hes so funny not wanting wet paws lol🤣💙
Take care it’s so sad u r in so much pain I have a lot of your aches and pains it is so hard to get through the days thinking of u lots u are doing well to keep going the way u do ❤️😊
Thank you so much for this. I feel less alone now 🙏
Wishing you all the best ❤️ Thanks for sharing this with us. I deal with chronic illness so I felt like I could relate with some of your struggles. For me the best thing has been being kind to myself and rest a lot.
Thank you for Sharing 💜 this has been so helpful...especially our inner thoughts and struggles to express...but warm baths have been my saviour🙏😊
Hello Kay ,I'm sending you a hug , adorable boy 😍
❤thank you for being so open and honest. So many of us strugle with something in private and that makes it seem sometimes you are the only one that is nog feeling like anybody else. Over the years I got really good in hiding my depression and so my bad days. When I opend up to people for many (including my family) it came as a surprise. Now a days those are the people I call on my bad days. I wish you all the wisdom on your journey!
Thank you for sharing this and being so honest. I have lupus and suffer with similar health issues. So difficult when your illness is invisible. Hope you feel better soon xxx
You’re a beautiful person, I love your honesty and gentleness. Thank you because you definitely help people with expressing your truth. Wish you healing and strength. 🕊
❤️ I can relate so much. 💐 Wishing you more better days. Wishing everyone with chronic pain the understanding we don't always receive. I felt so moved by this, my life is so similar.
Hope things gets sorted with the doctor soon hun. I always appreciate how honest and open you are about your life. it’s makes watching you for all these years a privilege 😘
❤️ sending you lots of love Kay!
Hope you are feeling much better❤
I love your videos so much you make me feel very relaxed and chilled. X
Get well soon x
What a smart kitty!
Thank you for thinking of others when you are not in a good place yourself. I hope you get things sorted soon and life becomes easier for you. Take care x
Thank you so much for sharing your experiences with CFS and fibro. I suffer with these also. Hope you have many more well days than bad days. Love you home and those kitties
Thank you for sharing, it helps to know you are not alone. ❤
thank you for sharing your honest experiences and life journeys. i feel less alone when i watch your videos. sending lots of love from Indonesia🌼
I'm soooooo sorry to hear about your struggles Kay🌺 Thanks for sharing I think it's truely important to express and it's really helpful and informative for other people too I've had cancer recurrences for the forth time and I too feel really fatigued. Your lentils recipe is yummy I usually wash and soak the lentils till all the white milky frothy water washes away because that causes gas but it's just what I do I'm just sharing. Love your videos and your beautiful cats they're gorgeous. Love and hugs to you💖 I have a beautiful tabby cat but yes he's very demanding and it's true they want their hugs and kisses sometimes it's hard but he always will come first he's soooooo adorable. You are just lovely and sweet and I love your videos 😘
I was touched by your video. I too have a chronic illness (Hashimoto's) and a lot of what you said resonated with me. Thank you for your honesty, it helps others to feel less alone in their own struggles with chronic illness and it is appreciated.