Day in my Life - Chronic illness Vlog. Realistic day with ME/CFS including daytime nap and café trip
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- čas přidán 16. 06. 2024
- This is a look into a realistic day in the life of someone with a chronic illness life me/cfs (Chronic fatigue/myalgic encephalomyelitis) may look like for a young adult. Chronic illness like ME/CFS can be very variable so this is a look into how being chronically ill effects my life at the moment and how i manage my illness day to day. I also have anxiety and depression but found this day not overly effected by my mental health so this is a good representation of how the physical parts of my illnesses effect my body and life.
Reminder: everyone with ME/CFS is different! So you or someone you know might have a very different experience with ME/CFS than I do at the moment! Also, remember that chronic conditions such as these can change dramatically over time, so my life may look very different to this in the future (and has be A LOT worse in the past).
Thank you so much for watching!! Make sure to like, comment, and subscribe to see more videos from me most FRIDAYS!
About Me:
My name is Elinor, I am a 25-year-old sociology graduate who has been living with ME/CFS for 8 years. I also have anxiety and depression as co-morbid conditions! I started making CZcams Videos consistently about my experience with chronic illness and mental health struggles in June 2020! I also love fashion, connecting with people in the community and being creative!!
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Social Media:
Follow me on Instagram / ellellell_brown
Contact Me:
Direct Message me on Instagram / ellellell_brown
For Business enquiries elinorbrownbusiness@gmail.com
#babewithamobilityaid
#neowalk
#walkingstick
#Chronicfatiguesyndrome
#Myalgicencephalomeylitis
#mecfs
I want to tell you how much I appreciate your videos. They have meant so much to me. Though we are quite different, I am 57 living in California with my wife , we share the illness of ME/CFS. Your realness, acceptance and spirit have moved me and inspired me. Your videos about mobility aids have been amazing, but so is this video. Thank you so much. I am a fan .
thank you so much, seeing someone else with cfs makes me feel less alone
This time last year I was working full time and was even covering as manager until they hired a new one, now most days I struggle to even get out of bed.
At home I furniture walk or use my crutches. Out of the house 75% of the time I'm in my wheelchair the rest I'm using my crutches.
I'm still grieving the person I used to be and trying to accept the person I am now but it's difficult.
Seeing videos like this help so much and give me the courage to keep on going with the knowledge that I'm not alone in this ❤
loved this, elinor! i resonate so deeply with the hard emotions felt when realizing how easily you tire out, flare up, etc. i've been going through a similar process as i'm learning what it is my symptoms mean (seeking diagnosis) and what my "rules" are. thank you for your vulnerability, you're making so many of us feel less alone. much love 💞💞
Thank you so much for sharing this. It makes me feel so much less alone to see someone else with days so similar to my own.
Also happy birthday :)
I like this kind of content. Also congratz on graduating. I’m about to get my high school degree at the age of 30.
Congratulations! 🎉
Having obvious days where you can easily compare your state of health can be a great encouragement when things are on the up but it’s hard not to get disheartened when things seem to be going down. Hopefully the next one will show an upturn now that university is over 🤞🏼🤞🏼💜💜
Lol..''no one cares about lunch''...so true!
I hope you had a good birthday!🎉 Birthdays are so difficult. I got sick when I was sixteen and am now nineteen and keep getting worse every year. Holidays and also family members birthdays are difficult as well. It was my moms birthday last week and I was too ill to go to dinner with everyone else. Things like that can really be a punch to the gut.😢 On another note- I think your outfit is so pretty! I love that lavender jumper.💜
My birthday is on Monday and it will be my first birthday diagnosed… so I totally understand your feelings. I love your videos, you make me feel so much less alone. ❤️
Hi Elinor. Subscribed today after watching a few of your vlogs. It’s nice to see that you have your days mostly mapped out. I’m retired myself, so time to search around YT and fill my head with rumours and other assorted rubbish. I’m looking forward to seeing more videos of your life journey and how you cope with the downs whilst enjoying lots of ups, and I know you will. Take care. Jeff
I love watching your videos! I'm newly diagnoses with ME/CFS and adapting to my new life has been really hard. I've learned alot of helpful tips from you :)
Thank you so much for this video Elinor. I've been in a really bad flare the last couple weeks after having had an upswing in my symptoms for the last few months, and seeing this made me feel less alone
What kind of cereal is that, definitely doesn’t look like American cereal. The after breakfast nap looked heavenly!
I’m also a chronically ill person. Love ur outfit and nails!
Really glad you’re sharing this! I’ve recently been diagnosed but still struggle with accepting it’s actually true. But this day really reflects my average day. I have to figure out how to finish my grad studies while not making myself worse and your videos help a lot 💖
Happy birthday! 🎉😄🎁🎈
My comfort show is “Call the midwives”
I love call the midwife!! 💛 such a good comfort show!
Love your videos. Not many youtubers to watch that have the disability as me.
If you don't mind sharing, what tablets do you take and how do you find they help if they do?
Beautiful ❤
❤
Hi Elinor, thank you for the vlog. I was wondering if you could let me know how you were diagnosed, I find the doctor very dismissive and just says its a vitamin d deficiency and stress, it’s a little disheartening
I feel the need to recommend these books to people with this illness and many many others- as I am also one of them. Medical Medium "Brain Saver" by Anthony William. The methods are working. Someone told me about it and I feel like I owe them everything for it. I've done my own research on natural medicine and the science behind the way the body works and how these illnesses happen- and they are the same as this book. Please consider.
Elinor, please ask your mum if she ever heard of an English pop group named Herman’s Hermits? They made a song called “ Mrs Brown, you’ve got a lovely daughter.” Give it a listen and smile. Jeff
مرحبا لا يستحق ان تعبدي مخلوق ضعيف يموت لم يخلقكي فقط خالقك يستحق ان تعبديه وحده لا شريك له من فضلكي تعرفي على الاسلام الحياة قصيرة تنتهي في اي وقت ونعود لربنا ليحاسبنا اني ناصح لكي امين وشكرا