Bag Change & Chat | Full Stoma Care Routine | Let's Talk IBD
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- čas přidán 23. 09. 2023
- Here's a little ostomy bag change in prep for another wedding! Thankfully, my stoma behaved so I was able to chat while completing this.
For 𝐛𝐮𝐬𝐢𝐧𝐞𝐬𝐬 & 𝐜𝐨𝐥𝐥𝐚𝐛𝐨𝐫𝐚𝐭𝐢𝐨𝐧 requests ONLY, please reach out at maggie@redefined-agency.com!
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*This video is not meant to diagnose or treat any illness or condition. This is for entertainment purposes and to get you thinking! Please ALWAYS refer to your physician for medical care.
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Hi, I'm Maggie and I have Crohn's disease. I am thrilled to be here sharing my personal experiences with Inflammatory Bowel Disease as well as living with an ostomy. I'm proud to share a little bit from a clinical experience as well, having worked as a GI pediatric nurse and ostomy telehealth nurse. I am so glad you are here. ♥ #ostomy #ibd #chronicillness
Thank you Maggie, I love your videos and they give me courage to face new adventures. I do all the ostomy care for my sweet 27 year old daughter, Emily. She is a meningitis survivor (aged 4) and has brain injury and SCI T3 complete. Our wonderful stoma is our best friend!! We are off to Disneyland Paris soon and you help me believe we can do anything we set our minds to! Thank you, from Stephanie and Emily
Thanks for being so open. It makes me feel better about being open with my health and disability issues.
Your content is so helpful. I’m having surgery soon to remove structures. I have Crohn’s disease. I have a 50/50 chance of ending up with an ostomy at least temporarily or possibly permanently. I’m really nervous about it. Your videos help me to be more prepared for what may happen and a little less scared.
I like to watch this channel before my remicade appointments
When I had my ostomy 21 years ago, I didn't have much support in managing it. One lesson from my stoma nurse before I left the hospital & I was on my own. I figured it out, but it was overwhelming at first. I ended up getting a j-pouch later in that year & it worked fine for many years, but I have since developed tons if fistulas & signs are pointing to pouch failure. I'm seriously considering a permanent ileostomy, but have to wait because I don't have insurance. Seeing how well you are doing with your ostomy gives me hope that I will be able to manage better this time if I choose a permanent ostomy. Thank you for sharing your experience & demystifying daily living with IBD! God bless!!!💜
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So educational. And you present it so well. I have a neighbor who recently had to have this kind of surgery. I don't want to be invasive of her privacy, but I wish I could let her know about your channel. I'm sure you are helping so many people.
It never stops surprising me that you can use a hairdryer in the bathroom in the US! Here in the UK we don't have plug sockets in the bathroom.
We like to live dangerously. 😅
We have power plugs sockets in our bathrooms here in Australia too 😊😊🇦🇺🇦🇺
What really
We have power plugs in our bathroom here in Germany too!
In Spain, we also have plugs in bathrooms. Crazy peolpe, ha? 😂😂😂
Such great content! I love learning about this since I peripherally work with medically involved people. G-Tubes and ostomies are something I want to learn more about. Also I noticed your'e at 100k subscribers! Congrats!
I am an ostomate this year. Thank you for all your videos. You have really helped me through it. Keep videos coming. You help all of us. ❤
Tip…I had a skin infection around stoma site and I was unable to push down on ring to attach bag to flange. You can attach bag to flange before you put it on your skin. Now I havent stopped doing it this way in years. Of course do what works best for you 😊
First diamond is great from convatec!!!!
I am so sorry that you have to go through this, it brought tears to my eyes. My best wishes for you.❤
Enjoyed your presentation. My Baby Stoma was born Aug. 4, 2023 and she is well behaved too. I haven't decided what kind of birthday party we will give her next year.😊
Your skin around your stoma looks healthy. Mine bleeds around the stoma when I wipe it. Right now my skin is irritated because I kept my flange for 5 days. Now I also have a parastomal hernia. I've had mine just a year now. Thank You for sharing your life with Us.
24 days in with my colostomy. Thank you, I have learned so much from your videos.
Leroy! Lol! Mine's called Kermit (because when he was first born and very young, he used to make a lot of froggie noises). I talk to him all the time! I also say, "BEHAVE!" and if he doesn't, he gets bashed on the head with a dry wipe for his pains! He's generally very good though, because he tends to go to sleep in the middle part of the day, which is when we are able to shower together without the bag (which we both enjoy). I often tell him he's a good boy and I thank him for saving my life. Till the next time he squirts on my feet, when he gets roundly told off!!!
Here in the UK I think it is more common for us to have one-piece bags, which I use - I have the Coloplast Sensura Mio soft convex drainable bags which are great. I am having to change the bag more frequently these days because my parastomal hernia (called Miss Piggy - neither Kermit nor I like her much) causes more leaks. I've never got on with rings or seals - in fact these used to make things a lot worse, and when I was still seeing the stoma nurse regularly, we tried everything, and then she suggested convex bags and that solved the problem immediately. I am fortunate that my skin is generally very good and I have no trouble with it. I use a barrier wipe, and sprinkle on some stoma powder around the edge of Kermit if there's anything, and generally by next bag change it's cleared up. To dry things quickly, I use the new bag as a fan.
Kermit says "Hi!" to Leroy and tells him to behave during the wedding. Hope you have fun!
'Rain-brella'.. LOL.. Nice.. I enjoy your videos and the education you provide.Thanks again for your content!
Thank you for showing us the bag change. Hope you enjoyed the wedding.
Your such a blessing and an inspiration. God bless you sweet girl. Thank you for alllllll your help your information and sense of humor
Why do I find Leroy's tan lines so cute😂!!
Thank you for this. I have IBD with incontinence. I ge little tot no warning and about 30 seconds to get to the Bathroom. I'm happy that you've mastered being normal despite our disease.
I'm glad other people have add the same experience!!!!!!
I'll never look at an umbrella the same Maggie, they'll always be a rainbella to me 😂😂 ☔☔☔☔ Much love from Australia 🇦🇺 ❤
Yes! I have a German Shepherd who got into the bathroom before I could dispose of the trash and dragged it everywhere. Never again!!
Also, I use a heating pad on low to warm up the barrier so it molds better to my body.
Hi Maggie how are you keeping, I was watching your video changing your ostomy bag I and I following your CZcams channel. I suffer from crohns disease over 20 years, my crohns disease got out of control 2 years ago I was in bad way in alot of pain I lost 4stone weight in week I was rushed to hospital had emergency surgery they removed 16 inches of my bowel I had 6 fistula and infection was so close it was nearly hitting off my spine bone.. I had ostomy bag for 8 months it was temporary so I had reversed bowel surgery done 31st May 2022. so far so good thank god alot of regular checkup to keep an eye crohns diease. so that my story crohns disease. Maggie you are amazing person you are helping people how to manage with ostomy bag temporary or permanent..😃❤😊
I’ve had my stoma 5 months. It seemed I might be allergic to the Coloplast flange. But it actually was the removal spray my skin was reacting to. I changed brands from Salts to Brava and it made such a difference.
I had a 5-hour abdominal surgery for ovarian cancer in February. It was scheduled for 9 hours. A GIv surgeon was on stand by. They really thought i would need at least a temporary ostomy. I have to admit i was terrified of it. I knew about your channel and i know i would have been really checking out your channel more
Have you tried the convatec mouldable baseplates? They are supposed to be much more comfortable and secure as there's no cutting required - the hole springs back to fit your stoma perfectly. Just a thought for when you're travelling.. Hope you had a great time at the wedding! ❤
Thank you, just thank you.
Hello, and have a great time and weekend thank you for sharing 😉
I love watching ur videos! It's great content..
It's true that I never wore gloves when going to the bathroom pre-ostomy. But I also never caught a handful while wiping! It's a little over a year since my first colostomy, and I feel like I have a better handle on things now. But Old Unfaithful is still unpredictable enough that I'd rather glove up.
Thank you Maggie, I enjoy looking at your videos, did you know that hollister has new bags the ring is much smaller and it’s pre -cut
They are very confortable. The number of the bad is 18112 - 44 mm, 1 3/4 inch.
My dog eats used cotton swabs, so I had to get a covered trash can for the bathroom. Although, he did get into the kitchen trash night before. It's also covered.
Im jealous how fast you change. It takes me an hour
I have a diaper pail I use for throwing my bags away in
Hi Maggie, What spray skin protector do you use? I hope that you had an amazing time at the wedding. Hugs and blessings!
Love your content! My stoma, Vesuvius, has a birthday coming up on September 29th. He will be one-year-old. Could you tell me the number of the Hollister bag you are wearing in this video? I would love to give it a try. I usually only use at drainable because I have a problem clicking a two-piece system together. I have severe neuropathy in my hands from rectal cancer chemo. Thanks!
What brand of mattress protector would you recommend? I'm going in for a proto colectomy in a couple of weeks and I am having a hard time finding one that seems like it would work without being too hot?
But your peristomal skin is so perfect! I can never get mine so good!.
Maggie your video is terrific! You have just a sweet, natural approach to it all. Really fab work❤ Have fun at the wedding.❤ from 🇦🇺 Australia 😊🌻
Maggie, I have seen about 3 of you videos,your speaking is very well. YOU are a good commentator this one you talk about eating broccoli and Brussels sprouts. I was told that I can not eat those among other food items. Do you have a food video .? 😣 😢😢😢
My girl child said to me, what about using a "diaper genie".? I am so glad I purchased one. No melodies odor.
Great job! I call my ostomy Blanch. She is my belly butt…. Most of the time I can time it to shower and such…. Wed like not having poo in the shower.
❤❤❤ I use Hollister. Fortunately the VA sends me some supplies. My stoma likes to percolate at times. It also challenging for me to do a bag change because I'm a wheelchair user and can't stand up. But I find Methods to do my bag changes.
Deborah, I am in a wheelchair, still hoping for a Stoma. What methods do you use to help with bag changes?
My son is in wheelchair too. He has other kind of congenital disease an he is tetraplegic and so smart. When he was 16 a very bad bacteria did it an irreversible damage in all the rectum, colon and some part of the thin intestine. By the way, he has and ileostomy for all his life . For his dissability I change him the ostomy fot the last 23 years. I speak spanish but If I can help you tell me. We live in Uruguay, South America. Best regards
Have a fantastic time away.❤❤❤❤😊😊XOXOXOXO
Thanx
So cute❤
Enjoy the wedding. I am know you will be beautiful!
I have the "turtleneck" as well, but mine is a tad smaller and below my belly button (urostoma) 🙂
ok, I use those bags and flanges, Once or twice I tried to empty and clean the bag, even after washing it and letting it dry, it stinks.
Does the ring melts within the bag? Sometimes I clean and I find a bit of the ring barrier out of place . Adhesive is very itchy on my skin after bag change. what can I use on my skin?
Oh I had a dog get into my bathroom trash and get my heavily soaked overnight period pad once and had it torn to shreds throughout several rooms in my house. I fully understand that 🤣🤣 🤣🤣. Bad Dog, BAD BAD Dog!!!!!!!
😂re. The trashcan and dogs: when people say "they are just like humans"--- sometimes- no! Ha ha
Man Im highoutput and SBS so my changes are as fast as I can. I wear drainable cuz I empty 10-20 times a day and balloon all day n night so cant wear anything over my bag not even underwear. I live in sweats.
I'm jealous that your stoma is a lovely shape.. I have a loop stoma & it's miss shaped so it's a pain to cut a hole the right shape & size as it changes by the second.. keep hoping to find a video of someone with a stoma like mine to watch how they manage changing it x
My stoma is a kidney shape and changes as i put on weight.. I used a stoma guide measuring width and length. So I know I am 35x25... so in a pinch I could cut and apply. What I regularly do, is keep the previous backing of the baseplate, when i change mybbagel, and then next change, I trace it on my new baseplate and cut. It's very close.
Hi Maggie, my insurance absolutely sucks when it comes to paying for my bags, I’ve been getting the convetec esteem bags from Amazon for $25 for a box of ten for years now. Also, I’m not sure what your using to discard the waste filled appliance, but BOS bags from Amazon are the best for zero smell when disposing used bags. Love your channel and look forward to your insight!
Do you get stomach pains due to needing to pass wind
Would having a diaper genie help in making things a little more convenient vs having to go outside to trash can every time? I used a diaper genie for my babies diapers n i loved them! Same permise no?
It may for some, especially if getting to your trash is a hike! Since I do this process every 3-4 days, and my trash is right outside my kitchen, it's super easy for me! Great idea!!
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Did you ever listen to "Kent Carnivore" - he is amazing what he experienced and learned about food and how to be in control with a stoma bag.
Interesting that insurance only covers 60 bags per month which works out to only 2 bags a day. I use drainable bags and usually empty an average of 3 times a day. I order 20 bags per month which is a lot for drainable which I change twice a week. I’ve built up a stash that fills an entire bedroom with supplies now so I have enough to be comfortable through any type of possible supply chain issues. I guess it depends on the insurance you have. The plan I have through my employer is very good plus I’m double covered through my wife’s employer as well which has been nice because I typically don’t pay anything for any procedures or doctor’s cost. It probably costs more to be covered that way but its nice to just not ever have to think about it.
I wish I had a stash of backup supplies like that! My supply company tells me that Medicare won't allow them to ship until I'm down to a week or less worth of supplies. It scares me to death, because I once went through an entire box of 10 over a particularly bad weekend! My current (although not recent, fortunately) record is 8 changes in 24 hours. I understand they're trying to curb waste, but I wish the people who make these rules could come live our lives for a few days and see how much unnecessary stress they're causing.
They really should find other people/businesses to pick on about cutting waste rather than people who have no choice.
Hi you talked about using barrier ring on but I didn’t see how you used it on the video . I only saw you adhere the flange to your belly . Can you let me know where you put the barrier ring. Thank you
I put the ring directly on the flange! So when I put the flange on, it was already on there!
@@LetsTalkIBD I’m being stupid I know but the flange would be touching the skin and the ring on top or the ring touches the skin and the circular flange on top of that.
🌼☀️
We have to shut our bathroom door in the house for our dog because he likes to go in the trash as well and most of the time it's when I'm on my time of the month it's so nasty
You mentioned something about insurance and getting your products. Do you pay for it and if you have insurance, how much products does that cover please
Yes! My insurance covers most, and I pay anywhere between $30-$60 per round of supplies. One shipment is 20 flanges, 60 nondrainable bags, 20 rings, 1 bottle of deodorizer! They also send skin barrier and adhesive removed, but this has varied in amount so I'm not sure what is going on with that!
Are they expensive?
Did you decide not to use the barrier ring after all?
I was wondering that also
I decided to use a regular Hollister one on this, which worked out well since output thickened up a bit! Love the other ostoform one for when it's watery!
Welp, it is time for me, 4 more days and I am getting the operation >_
You got this!!! Wishing you so much luck and fast healing!
@@LetsTalkIBD Thank you very mutch! i am somewhat nervous for the whole thing, and i just hope that sleeping and such like I used to still works oke >_
@@Anon-ed1bb Yea that must be your muscles right or? i had my gal blather removed last year or so, and that did hurt to move and such and also took some time before i could sleep how i wanted again.
All the best for your operation and recovery! We all have to go through the learning curve and the stoma nurses really help. I hope you have someone at home to support and encourage you. I have been so fortunate with my wonderful hubby. I got Kermit in 2015 and he is now so much just a regular part of my life that I don't give him a second thought most of the time. You find your own routines and learn on the job what suits you best - equipment-wise, and diet etc. I eat whole-food plant-based - very rich in fibre which a lot of ostomates throw up their hands in horror at, but my surgeon said I should be able to eat anything I wanted. Just chew everything really well - my theme tune from the beginning was "The Chattanooga Chew Chew" lol! We all have our ups and downs, but having a positive attitude, and above all a sense of humour, will see you through (not to mention faith in Jesus!). I shall be thinking of you over the coming days!
@@ShoshiPlatypus Thank you very much
What's the ostoform
I just had the most random thought... Is it possible that you could have a Latex allergy? I know for those with Spina Bifida when you are exposed to medical Latex for long periods of time it can cause an allergy. I don't know if any or certain rings have Latex but it might be worth looking into.
I'm actually not sure, but also am fairly certain their isn't any latex in most ostomy products!
@@LetsTalkIBD you'd be surprised what Latex, or something used to make it, shows up in. The only reason it made me think of it was because you were a nurse and always around medical stuff 😆
You
Ball and chain that sucks
Hello Leroy from my stoma I named Bob
Was your stomach swollen where your stoma was? It looked like your stomach was distended. You have a very good outlook on your life with a stoma.
Nope, just where my weight gain has gone! Hahaha!
Why not just use a drainable bag?
I have a lot of trouble cleaning the end of a drainable bag, so I empty these through the ring. I also find non-drainables much more lower-profile (clips/velcro-ended tend to stick out under my pants).
Man. Dogs will eat anything.
Ugh dogs sometimes.