I have Cancer?
Vložit
- čas přidán 16. 02. 2022
- I had Throat Cancer. In this video, I'm sharing my story and how I fought cancer. I want to help other people who have cancer, so that they know that they are not alone and that there is hope. While I'm kind of back to normal, I know there are others out there who have been diagnosed with cancer or and are wondering what is next in their world. I'll be providing you with a step by step guide from my oral cancer diagnosis, through preparation, treatment, and recovery from Throat Cancer.
Follow along! Video 2 Link: • The Scary Diagnosis: H...
Found out June 2023 throat cancer. 5 chemo treatments 33 radiation treatments started August 10th. My advice is get peg tube (feeding tube) before you think you need it. Last radiation September 27th. It is almost end April 2024 ct scans clean but still have ringing in ears, pain in jaw and teeth. Wish all that are going through this or have been through this best wishes. ❤
I have had throat cancer and radiation treatment 13 months ago. I still cannot eat,no appetite and no sense of taste. I haven't had a meal for 14 months now. Still happy to be here though. All the best to you 👍
Baine, man, That really sucks. 14 months. Do the doctors have any information about what is going on? How much longer this will last? I feel for you man. Keep us updated!
Lee
Posting this information is so helpful! Although my cancer was at the opposite end of the intake/exhaust system, I also found the experience unnecessarily bewildering and answers hard to come by and understand. Stay strong! Love ya, Brother!
I plan on putting out more info over several more videos. Glad you are ok and doing well! Semper Fi buddy!
My husband decided to do the same thing. We go to our first appt today for radiation and chemo. He came home from work yesterday and said he wanted to journal his fight with throat cancer. Your videos are awesome. We made our first video yesterday and posted it. We have no clue what to expect from this point on. Thanks for sharing your story.
Please do! I have found that the more of us who document their experience with differents meds etc. the more the rest of us learn from it! I look forward to seeing his videos! Make sure you send me a link.
Lee
My husband had throat cancer.radiation & chemo everyday 3 mos. We were in the trenches. He made it. It's rough but you can do it.
Hi Nicole,
I can't imagine what that was like. You and your husband had almost double the amount of Chemo and radiation that I had and mine was pretty tough. I'm hoping everything is ok with you guys now!
Lee
I am so glad I found your channel. Priceless for me starting this process with my husband. You have answered so many questions I have
Hi Leslie,
Thank you for the kind words. I am certainly glad that what we are doing is helpful. We are always here to help and share information and experience, so keep us informed on your progress!
Lee
How’s hubby doing ? ❤
Hey brother, I hate to hear this about you. My thoughts and prayers are with you. Looking forward to following your journey and you coming out smelling like roses. Keep it on the bright side with your positive energy. Love you brother!! Reach out to us for support if you need to. As they say F cancer!!!
Thanks Chad, I appreciate it.
I’m sorry for your diagnosis, I will keep u in my prayers.
Thank you Katina! I am doing well now, just working on getting that 1 year scan through insurance!
@@theregularguy141 insurance companies piss me off because they’re not doctors, and yet they seem to dictate the treatments. Keep fighting, I’m personally rooting for u to get this 1-year scan so u can know if the cancer has come back or not.
Me too!
@@theregularguy141 hope all goes well tomorrow
Great job on your first video.
Thank you!
Hello, I’m 54 years old, and I just got diagnosed with this last Friday 10/20/23.
I found your site and I’m so happy you have this. I’m sure I will be asking a lot of questions.
I go next Tuesday for my PET scan. And then I guess I go from there and just keep plugging along. Thank you so much for your videos. And I hope you are doing well sir.
Hey Marine,
First of all I'm sorry you have to use the videos and I hope that they are helpful for you. Second, ask away. Others on here are helpful as well. Keep us updated on your progress as we are all here for you!
Lee
PS - Me: Paris Island, 1982, 2nd BN D Company, Platoon 2019, and I still remember the names of my Drill Instructors! Semper Fi!
Please go to the Channel page and click the community tab and participate in the poll to guide me on content you would like to see!
@@theregularguy141 Wow ! Semper Fi! I was at MCRD San Diego.
1988 Plt 2118 Golf. I also remember my drill instructors names.
Mos 0311 infantry.
Thanks for responding, I know this will be another interesting challenge to go through.
Looking forward to all the help I can get .
Thank you Lee
Semper FI
Be strong it is not easy. Just day by day. 😊
Hi Lee. I had a "sore throat," in June 2021. The doctors kept sending me to someone else. I got yanked around for almost a year. The labs would not do lab work on me because my blood pressure was too high. I just gave up. Then in July 2022; my pain was almost unbearable. My daughter got me some appointments and I was diagnosed with Head & Neck Squamous Cell Carcinoma stage 4a, 3 days after my 58th birthday; August 3rd, 2022. I would prefer to get "Targeted Therapy," or "Immunotherapy" but the FDA does not allow that. I started doing Chemo-Therapy, and refuse to do Radiation Therapy. I initially went to UCSF for treatment; because the small town I live in is limited for treatment. My first round of Chemo at UCSF put me into renal failure & I almost died. I took a month off & started Chemo again here in small town - don't like the idea of Chemo for the rest of my life. I went to UC Davis for a second opinion. They informed me that the FDA won't allow Immunotherapy. I keep researching & trying to get the treatment that I think would be best. I started 2023 Bald; I hope your journey is not as tough as mine. Be strong and use your "stubbornness" to your advantage - I am. I will pray for you. God is in control. I have no reason why He allowed this for me; but I know He has a reason.
Hi James,
I am really sorry you had to go through all of that. I was very lucky in that I had a great ENT Specialist who took one look and strongly suspected it was throat cancer. She immediately walked me down the hall to an ENT surgeon and had him confirm her suspicions and then it was off to the races. I will be having her on for an interview in the near future. I don't really know anything about targeted and/or immunotherapy but I now have something else to look into. My big struggle now is getting the 1 year PET/CT post treatment scan. through the insurance company. I hope it starts to ease up a bit for you and I'm sure I speak for all of us on here, we certainly wish nothing but the best for you. Reach out any time!
Lee
@@theregularguy141 Hi Lee - I found an awesome video - the TRUTH about cancer. You should watch it. Here is the title of the video on youtube = Discussion on Cancer with Professor Thomas Seyfried - Dr. Berg's Skype Interview
Hello Lee, I watched a few more of your videos and they answered my last questions. So no need to respond if you don’t went to. 😊 Semper Fi
Perfect!
I just completed treatment Friday and still have so much conjestion
Hi Bob,
It sounds like you are just about over the hump. These next 2-3 weeks will be really tough, but it will begin to settle out. The congestion was a huge pain for me, but it did start to slowly go away at about about a week later. Keep a good attitude and look at it this way. You are almost there.
Lee
Thank you. Starting my own page for HPV associated tonsilar cancer. Same as you I saw information from doctors but not people like us going through it. What type of throat cancer did you have. Thank you again. Tremendous site
Thank you Hope! I will certainly subscribe and watch!
Hi Lee - very helpful and thank you for sharing. I do have a couple of questions for you. 1sr is how long did it take to get your sense of taste back and two, are you still having the dry mouth? Again, thanks for sharing your journey.
Hi Bobby,
I want to say it was 3-4 months after treatment that I started to truly "taste normally" and it improved from there until about 8 months or so. In my estimation, I have about 80% of my taste back. Things just taste... different? As far as the dry mouth, that seemed to improve along the same time line and at about 12 months I stopped noticing any improvement. Unfortunately do still have the dry mouth. I pretty much dont go anywhere without a water bottle any more.
Lee
Is weight loss going to be a big thing? Even with the stomach tube? And is working out possible when going through this.
I like to box, that is my work out to stay in somewhat shape.
Hey Buddy,
Boxing may be out for a bit. I know my gastroenterologist told me no running, no core exercises, and limited stretching. I guess the hole in the stomach and abdominal wall thing..? Take it easy, try to stay active by walking and some light weight training.
Lee
Do you have swollen tonsils and earache on both sides or only one side
Only on the left side
I will prey for you , how are you doing in September 202
Hi Dale,
I'm just starting to get the next video together for that exact topic, Ho I'm doing 1 year after treatment. In a nutshell, doing great. I'll release the video this coming weekend with a lot more detail, the good and the not as good.
Thanks for asking!
Lee
About 2 weeks ago I noticed I started having a dry cough and now my throat burns and I’m in pain in my throat, but these are my only symptoms. I’ve never smoked and I’m a young looking 61 year old. I’m not sure if I should let my doctor know or not.
Hi Katina,
In my opinion, any time you have something that is abnormal or disturbing outsid eof the average cold/flu/24 hr bug, you should see your primary care physician and explain your concerns. Then if necessary, get a referral to see an ENT specialist.
Lee
@@theregularguy141 hi, I went to the ER yesterday and was diagnosed w/ acute pharyngitis. I was prescribed flonase, 2-days on a steroid, and “magic mouthwash.” I’m to gargle with warm salt water 2x daily. I also sent my PCP a secure message (I’m a Navy Veteran), for a follow-up appointment. If this doesn’t go away by March 15, I will request a throat ultrasound and/or a referral to ENT. Oh, I had 2-swabs, and both came back negative for COVID and Strep, however, they are going to see if anything grows, if so, they will call me.
I'm glad you went. There is definitely something going around right now. The "magic mouthwash" was prescribed for me during my cancer treatments to help keep my mouth cleaned out! It works! Nothing wrong with getting an ultrasound of the throat. Painless and quick.
Lee
@@theregularguy141 I’m hopeful it’s just a viral thing. I very seldom get a cold or sore throat, so this is extremely rare for me. My brother died from cancer of the nose in 2003.
My doctor EENT suspects I have cancer. CT on April 13th.
Ok CJ, keep us informed as to how you are going along. It appears you may be a veteran, if so check out the list of the 20 new "Preumptive Conditions" from the VA. Head and neck cancers are included in the list.
Lee
What type of throat cancer did you have ? Was it HPV virus related or smoking /drinking related ?
HPV 16 related. I was also a smoker, so may have also contributed.
@@theregularguy141 Yes same like me. When was you diagnosed and what year roughly? Did you ever catch Covid since 2020?
@@TheShazExperience I was diagnosed in 2021. As far as COVID, I tested positive 2-3 times but I had no symptoms.
Lee
I couldn't believe I had cancer let alone adenoid cystic carcinoma
Lee
It was absolutely shocking for me as well. Definitely a roller coaster ride for me and the family.
Lee
What were your symptoms?
Well,
Like many of us, I started out with a sore throat, ear ache combined with swollen lymph nodes. Just like you would find with some sort of throat infection. However even after antibiotics the swelling did not go away. A great ENT worked through the process with ultra-sound, biopsy, and then CT to determine that it was in fact throat cancer.
Lee
@@theregularguy141 Thanks for your response
I have been referred to ENT at EASTERN VIRGINIA MEDICAL SCHOOL, DR SINACORI.
Finally!! Hopefully you will get some solid answers!
Lee
@@theregularguy141 yes, I kinda had to over ride my primary care physician who btw is not a MD. The ER physician told me to get the CT scan ASAP and get into ENT. The next day my PCP put in a referral for me to be seen by an outside ENT. BTW, my soft tissue of the throat came back “normal.” I’m being seen by a renowned ENT named Dr SINACORI who works at EASTERN VIRGINIA MEDICAL SCHOOL at ENT.
I need to call and make an appointment now, was asleep (fatigue is kicking me in my butt), when my phone rang, it was the ER Dr calling me about my labs I had done in there. His extension just rings, but more than likely the MONO either tested positive “again,” like on March 3, or something grew in the lab. I will be finding out very soon.
Hi, just in, April 21, 2023, 1:04 pm, I tested positive “again” for MONO. This has to be wrong because I have no swollen lymph nodes. The ER physician said in all his years practicing medicine he has never seen MONO cause hoarseness/ severe burning 🔥 of back of throat for this long. My referral was just updated as URGENT and just faxed over to ENT, Dr SINACORI’s office, and I will be seen within the next 2-weeks.
Did you smoke cigs and maybe Cannabis ?
Yes, cigarettes for about 10 years. However, my throat cancer had all the indicators of being caused by HPV 16. HPV is responsible for approximately 70% of ortholaryngeal cancers. Captain Caveman… I haven’t heard that in a very long time. I got a good chuckle out of that.
@@theregularguy141 your left tonsils swelling??
@@theregularguy141 if tonsils oneside swelling means cancer??
@@mommystips9998 No necessarily. A swollen tonsil can simply be an infection.
@@mommystips9998 my left tonsil did swell, the tumor was inside it.
The whole world is lying in the power of the wicked one
What?