What A Seizure Looks Like In Class (bad FND day)
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- čas přidán 6. 05. 2023
- Vote for me in the National Diversity Awards Here!! ↓
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This is a more serious video for awareness of one of my conditions, functional neurological disorder 🎗️
Some people may find this hard to watch so please look after yourselves, but if you can watch, please take in all the information I've typed as captions as it really explains exactly how I feel during an episode like this
I wanted to share a very real-time and upfront experience to show the behind the scenes of my conditions that don't usually make it into my usual vlogs and videos.
FND can be an absolutely debilitating condition and many people suffer from it - if you have FND or a similar chronic illness, I sympathise with you so much. Please know that you are never ever alone ❤️
Learn about FND here ↓
fndhope.org/fnd-guide/
don't forget to subscribe! ♡
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FAQs ▹
1.What conditions do I have?
‣ I have Tourette's Syndrome, FND and suspected POTS
2. How tall are you?
‣ 5'4"
3. How old are you?
‣ 17
3. Am I in school?
‣ I'm currently studying art, music tech and English at college!
4. What is FND?
‣ fndhope.org/fnd-guide/
5. What is Tourette's?
‣ www.cdc.gov/ncbddd/tourette/f...
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Tourette's syndrome is a neurological condition and disability which causes involuntary movements called tics. I use my platforms on social media such as TikTok, CZcams and Instagram to advocate and raise awareness for the condition and show what it is like living with a disability as a teen in school.
My name is Zara Beth (zeezee25 on tiktok) and I post videos about tics, tic disorders and what its like to be a teen living with Tourette's syndrome, Functional Neurological Disorder (FND) and a seizure disorder (NEAD/NES).
I show what its like having tics and Tourettes in class and in school and college, vlog, and I also bake, do other challenges and answer all your questions in Q and A videos.
I am also an ambulatory wheelchair user so I show what life looks like using various mobility aids and how needs change from day to day!
I am also a musician! My newest release is my first single (original song) called "She's Mine" which is now available on all streaming services - I sing and play piano, guitar, ukulele and I write, produce, mix and master all my own songs and content myself!
zara, you are truly a light in this world and i’m so grateful you’re here
I was just wondering if you'd be able to make a full video just giving information on FND and what kind of feelings you get when you have your seizures? If that's an uncomfortable topic for you and you don't want to, that's completely understandable. Thank you so much for everything that you already have done and for your service to this world. You make it easier for people to understand and you don't get enough credit for your work
i’d love to! ❤
I one long time ago i know it feels dont Worry
@@Zara_Beth hi Zara! I have Tourrets too and I love ur channel! Also could you please tell me what FND means?
I am a (child) neurologist and I just want to say thank you to you for the exposure you're giving to FND. I know as a field neurologists often drop the ball especially with functional concerns but I just want you to know that I recognize your struggles are valid and the fact that you persist is a sign of your strength. You're doing an amazing thing, helping so many people and I am just impressed.
Thank you.
What do you think about her calling her FND spells as "seizure" - when they are actually PNEE.
@@Nagaash Is FND more of a psychiatric disorder? I work in healthcare, but have only recently heard of FND. Is this more common in children or young adults?
i’m so sorry you have to go through days like this, you are a massive inspiration to so many people ❤
I am a student, and I have a brain disorder that causes me to have seizures in class almost every other day, my dad had the same problem but his seizures are a bit different from mine, and he got his due to a brain surgery. I stumbled upon this video and I had one a few hours ago in the middle of a room full of kids. I haven’t seen or heard of any one who has the seizures like I do, that’s not my dad. Your video has made me feel connected, and valid. Thank you so much.
Sorry to hear that my grandma had convulsions alot
I'm so sorry for that. Hope your doing well :)
My best friend fainted in music of dehydration, and everyone saw her and assumed she had a seizure. The next day everyone spread rumors abt her having a seizure, this obviously upset me because she texted me the same day of her fainting that it was just dehydration, and I even told people but they kept assuming. So this video reminded me of that situation. (My best friend is OKAY! It’s was a month ago.) but thank you for making this video! 😊❤
Awh,that’s so upsetting,I hate how people just jump to conclusions without looking more into things,I’m glad you were there for her and she told you that she just fainted and it wasn’t a seizure.❤
I really hope you win the award!! You have made such a difference in my life dealing with a couple unexplained (to this day) illnesses. Hope you're having an alright day! And my god your school has good music tech facilities. Mine were awful 😂
I googled information about this diease it is horrible
Congrats on the award. I was diagnosed with FND in my early twenties. (I’m now late 30s). I also have circulation issues/conditions, nerve conduction issues, absence seizures, occasional tics, a sleep disorder they can only describe as ‘like narcolepsy’, cataplexy and several other orthopaedic and immunology issues.
It DOES get better. Because every day that we wake up and manage some kind of normal function, is a win.
Thanks for openly sharing your journey to educate the younger generations. Literally nobody barely knew about anything when I was diagnosed. It was quite terrifying. But it’s only now that I know that I didn’t need to be scared. You’re doing wonderful. Happy to have come across your videos. ❤
Wow. I was diagnosed by a neurologist with tourette syndrome but i feel like those seizures are extrememy familiar to me. The way you breath like you're lifting the whole word, the sudden but predictable seizures that for me people associate with lack of sleep...Thank you so much, hope one day i'll have words to put on all of that ❤
Im a Disabled Veteran in a wheelchair. I feel honored to have found your channel. You brighten my day as you share your life struggles. Blessings to you and may you find joy in your journey 💗
I’m so sorry you have to deal with this and you deserve this nomination. Much love ❤️❤️❤️❤️
love you bestie, we are gonna have amazing lives despite FND, you’re so strong 🩷
I hope your doing alright even with everything you go through 💜
This was super interesting to watch. You obviously know a lot about how you deal with it and it was super informative! I have an out-of-school friend who has absence seizures so it was helpful to see what they might go through. Keep going and being amazing lovely!
Thank you for this I have FND and this has been happening to me a lot lately and when I’m out with my children and I didn’t know what was going on. I hope your having a great weekend 🤗💕
Congratulations on your nomination! That's gotta be pretty crazy. Thank you for making videos.
It’s amazing that you share your story, I started having seizures, mostly tonic chronic seizures in September 2021. It came out of nowhere and massively effected me because I would get up to 7 big seizures every single day. I am so glad that you are showing how it affects you so I can have someone to relate to! I hope you are okay ❤
"I wish you all the happiness. You are strong and beautiful despite your circumstances."
I never knew there was such a thing as absence seizures i always thought siezures were just shaking very rapidly
My thoughts exactly! I'm really curious how you can tell spacing out from absence seizures
@@DoeDoKu in short, with an eeg- but someone who is spacing out will respond to their name being called/clapping/waving a hand in front of their face/etc. An absence seizure is lights off nobody home- it's like a 10 sec time jump. Oftentimes they're not noticed- hence the colloquialism "staring spells." Though there may be automatisms like lip smacking and eye fluttering, but those features are not requirements. If talking, the person may stop speaking during the middle of a word without any stuttering and pick up seconds later as if nothing happened, without any awareness a pause had taken place. And because they're generalized, you have no consciousness/awareness/recollection of the event unless someone notices, you're watching a clock face, or you have a sudden (snap-second) awareness that time has passed (suddenly crashed car, dropped something, 5 paces behind/lost a group, etc). Atypical onset absence seizures can be associated with impaired awareness rather than loss of consciousness and have a slightly longer course. The experience can also differ depending on where in the brain the seizure is originating from. Also, absence seizures can be so innocuously appearing/difficult to notice due to their length and lack of outward signs that people can go years without diagnosis. I am not a specialist so I recommend reading the Epilepsy Foundation's website if you are interested in learning more.
@@SageLlamassince this is FND, not epilepsy, I don't think anything would show up on an EEG. I have FND and have had episodes while hooked up to a V-EEG with no abnormalities found. FND is a generic term for something presenting as a neurological disorder but it isn't evidenced by any testing.
@@DoeDoKuThis might not be for everyone, but if you look at them you can kind of tell if part of their body is shaking and they’re just not moving.
I've been struggling with complications from a TBI I got in a car accident a few years ago and just found your channel tonight after feeling like crap for not getting everything done that I wanted to. I'm very type A personality and a perfectionist so the issues from my TBI making my old standards just not something I can realistically manage anymore is something I beat myself up about a lot and having you say it's OK to rest just did something for me so thank you. I'm also an animal science major so not a lot of ppl in my area of study really seem to get why I struggle as much as if I was like in engineering or something idk... or like why there are days I'm comfortable working with larger animals and days I'm not as comfortable (my emotional regulation was heavily impacted so if I'm already stressed I'm more prone to explosive episodes which the animals pick up on and it can make things dangerous for everyone involved, ie if the cows I work with get spooked, they can trample eachother or anyone near them because they're scared of my strong emotions and when I impact them like that I feel even worse and it's a whole cycle) I just gotta remember to take it a day at a time and continue to work on improving myself through therapy and coping methods so that I can be able to rationalize my emotions in the moment instead of breaking down and screaming and crying all at the same time 😅
I have FND as well. Your channel has brung me so much comfort since I got diagnosed and is making me think of making my own channel. Thank you for spreading awareness 🫶🏻
Tysm for all of your videos! You not only help make people aware but truly teach others throughout your videos. I am extremely sorry about you having to deal with these conditions
I'm so sorry you have to go through this but your so strong and brave. Stay safe and have a wonderful week
I’m so sorry you have to go through this, lovely. Hope you’re okay now. ☺️💛
I love your videos And I wish one day we can meet up and be best friends
zara, i’m so sorry that you go through this but you are so strong and i would never think i would go as far as you. thank you for your content
this was actually really helpful for me omg. i have fnd too but i’ve only been diagnosed for about 6 months and i’m still very much learning how to deal with it all. i have drop attacks and seizures pretty often but i always feel so anxious about it, as if it’s wrong to do or that i’m faking (lots of ocd too lmao). but seeing you have the same symptoms and the same reaction makes me feel so much better. thank you xoxoxox
you’re not alone ❤
I just voted for you. You are so strong to be able to stay calm in those situations! I am so proud of you! I also have POTS... It really is a struggle. But just seeing how strong your mental stability is during hard days makes me feel like I can also do hard things! Thank you for being in this world and sharing your experiences with the world! I hope you can live a long and happy life! Keep being a beam of light on this seemingly dark world!
With love❤,
A Fellow Nero-Divergent Person
Damn, you go through so much! You are such a strong person. And you are absolutely GORGEOUS! Also, congratulations for the nomination! I already voted for you
I appreciate you sharing this video! I also struggle with FND seizures and haven’t met anyone with them! I have experienced exactly what has happened in your video so many times I can’t count. Thank you for being brave enough to share. It makes me feel less alone! You are so brave!
I love how bright and sunny you make people feel! I hope your conditions get better, have a lovely day!
Thank you so much for posting these.
Zara you're so pretty! You have my full support. I recently found out that I have a few tics of my own. I never really noticed them until I started having vocal tics. It's definately worse than it use to be. Apparently I've had motorized tics when I was little. I happen to have tourettes in my family. My 9 yo brother has tourettes himself.
Thank you so much for sharing this video! I have been battling FND for 17 years. A typical day for me can look exactly like what you just showed in this video.
It has been a very isolating diagnosis because most people have never heard of FND. I constantly have to explain my disorder to friends, family, coworkers, or anyone who sees me having a seizure. I have felt so much shame for being “different,” and I spent many years trying to keep my FND a secret. THANK YOU for being willing to share this with the world. You are helping me reframe my beliefs… if you can confidently share your FND with the world, maybe I don’t need to be so ashamed of my FND. Thank you.
Didnt know seizures can be like this. Looks like a lot of work to go through the day with this
Hey Zara thank you so much for sharing this. I have a lot of absent and grand mal seizures as well as tourettes. I’m still in the phase where they seem like a big deal. So watching you handle it so gracefully is really helpful to me and I greatly appreciate it. I’ll try not to be so scared now.
Hi, I just wanted to say thank you i saw one of your video a while ago but it stayed with me for some reason and about a week ago had a seizure in class and was hospitalized and diagnosed with FND so thank you for being so openen about and spreading awareness.
Aw its so sad to see you struggling so much here sending much love to you you cope so well with your conditions 💖💖♥️♥️❤️❤️♥️❤️♥️❤️♥️♥️❤️❤️♥️❤️♥️♥️💖❤️♥️❤️💖❤️❤️💖❤️💖❤️💖❤️💖❤️💖❤️💖❤️♥️❤️💖❤️❤️💖❤️💖❤️💖❤️♥️❤️💖❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️💖❤️💖❤️💖💖❤️❤️💖❤️💖💖❤️💖❤️💖❤️💖❤️💖❤️💖❤️💖❤️💖❤️💖💖❤️❤️💖
I am so sorry for what you have to go through. God bless ❤🙏🏻❤
You are a great inspiration to many people and I am very glad people are realizing it. Congratulation and I send my prayers as I hope more and more for you. You deserve it. I smiled and teared up and smiled again all in under a minute. Hope all is well rgrds
i totally simpythis with you zara i have funtional tic and functional neurological disorder aswell where i get non epileptic sizures aswell and sometimes with get weak sore legs im here for you girl you can do this you got this girl i started watching you recently seeing the tics but just today i saw that you also had fnd and i almost cried for you in knowing how and what you have to go through cause i go through it myself keep moving forward girlly you got this
You are such an inspiration to me as I have my own things that I have to deal with but for a long time I felt like I was alone but when I discovered your chanel I could actually relate to you and see that I wasn't alone. ❤❤❤
Thank you for documenting these conditions and bringing more awareness to them. Often times, it is difficult to explain what is happening because it is so stigmatized. You are wonderful! (P.S. That is such an amazing mixing console right there, I love nerding out with cool tech!)
I have voted for the award you really help spread awareness and I did in the message I wrote for the vote. I have hardships too it may not be tics or NPD or Tourette’s but it is visual impairment and I have so many hardships too but not just that I have a high chance of ADHD, OCD , and Autism. Thank you Zara and keep making videos.
Be well, Zara. I pray your health improves. Thank you for sharing your health struggles so that people can better understand. We need more understanding of disability in our world.
Wow, you are so strong Zara, I could not see me faring well with the loss of control, in fact I would be a total disaster. You're a real live inspiration, you go girl! 💙💙
This has opened my eyes so much! Thank you!
P.s. Voted!!🏆🙏🏻
it's always hard for me to watch you struggling with your condition Zara but i always learn something new from your videos, your job of awareness is awesome ❤🙏🏻 you are probably helping so many people out there that are struggling with their conditions as well, and i bet this is so important for every single one of them, either to understand better their conditions or just to feel that they have someone who represents them 🙏🏻❤i hope you are feeling better already and had/are having a good weekend, have a good week as well Zara, take care ❤🙏🏻
what an incredibly sweet young lady, sharing an insight into how her condition affects her daily life, no doubt an inspiration to those who suffer the same or similar symptoms. thank you for sharing, and very interesting to watch, I will be following :)
Hi Zara,
Thank you for sharing your experiences. It really helps others to understand your particular neurodivergency.
I have severe sleep apnea, and when my cpap/bipap therapy is not working correctly, I can get very sleep deprived. That's when the weird stuff can happen for me.
I am an artist, and I have often found myself falling asleep mid-drawing, whether I am pencilling or inking. It is much easier to fix the resulting snafoos when I am working on my iPad rather than using traditional materials.
Your determination to continue onward and take time for self-care when needed is inspiring and comforting to me.
I'm so sorry you have to go through this everyday man. If you need any support, just know we're here for you, ok?:)
I always find these things interesting. Even tho you cannot control what goes on your brave. Thank you for always sharing these moments ❤️
Hi, another great video. Wish you all the best and I have voted for you too. Take it easy ! x
as someone with adhd, you are very inspiring to me. i often find my self feeling like I physically CANT do my work, but you still do with so much more going on. thank you for sharing all you do!
I've been trying to explain this to others for a while. And Friday I received my diagnosis, but I'm just seeing this today. I wouldn't have known what to look or video on my own since I didn't know what it was. Thank you for your strength and willingness to share your journey.
Thank you for this video, this helps me understand a lot of what my friend is going through, she has tics too, she says they can be painful at times because she has a lot of the head movements and clucking ones, i dont really know how to help her feel better so usually i just talk with her to try and help distract her from them but it dosent seem to help much. Thank you for this video :)
I am a 13 year old with POTS and FND aswell, I watch you videos to make myself know that I am not alone. I wear compression socks for my POTS and they seem to help. I came across your channel a few weeks ago and I watch it whenever I feel hopeless and upset I watch you and you make me feel better. Thank you ❤
Thank you for posting these kinds of videos it gives me something I can show the people around me I have had epilepsy since I was 5 I’m naw 30 and I still have them but those around me to notice my episodes not to mention how often a fainting spell looks like one is sleeping so agin thank you for making something I can show and explain to them so thay notes when it’s happening more
I love how you push through it in your life and work through stay strong❤
Your amazing Zara I know on these days it can get hard but like you said tomorrow is a new day and with all your fans you can get through it but I know it's really hard and I hope tomorrow is easier then today was
Good on you girl. Seem like your parents have done an amazing job, great character great human. I hope you live a happy life genuinely
I’m also a university student and have recently been diagnosed with FND, but I don’t experience the blackout / seizure symptoms. However I just wanted to say thank you for showing us this! Makes me feel a little less alone ❤. I’m always worried that with such a variable condition, it can get worse or better so seeing you gives me a lot of confidence for the future and that I’ll be able to continue my studies and learn how to best manage this❤️❤️
You absolutely deserved that award. Your ability to deal with your conditions is a light to a lot of us.
You are doing so well to still be in school and not giving up on learning xx
Zara, your awesome and im so happy you are in this world i feel so sad that you have to go through that
I hope you are resting ❤❤❤❤ hugs your way
I have severe anxiety & panic disorder. An I feel like I can't deal sometimes. But you have way more things going on. & are still very active & handle it super well. You also remain calm. You do such a great job with the issues you have. I like to think I'm a fairly strong person, but I couldn't handle anything near what you do! Awesome job .
Your videos help a lot because I have a lot of the safe disorders as you ❤stay strong
You are amazing, thanks for sharing your content
Thanks for posting this. Take care 👍 ☺ 💜
I love you Zara!!! I’m so proud of you and you are very beautiful ❤❤❤ KEEP GOING! ❤❤❤
So glad i found your page boo ❤ im 32 ., i have tonic clonicz , i had absense seizures at work Before also , i also get nocturnal at night 🌉 . Thanks for sharing 🙏 , i can seriously relate wen these make u feel out of ur body !
As someone who has never fainted before in my 21 years of life, I cannot imagine going through this every single day.
I love your videos, I have anxiety and dyslexia. I feel really really bad that you have tics.
Hi zara just voted for you let's hope you win. Your such an inspiration to people who have disabilities keep up the great work you do.
hi Zara i love your videos. i recently got diagnosed with Tourette's at the start of 2023 and your videos and tiktoks have helped me see a little bit of what i have, it's really exhausting like you've said and being a 15 yr old teenager and loving school has made a big turn in my life. school isn't bad for me actually because a teacher that i know also has Tourette's and he knows some kids at our school that have it as well. and also this comment took me 2 hours to write because of my active motor tics, they are just through the roof right . sending lots of love xxx 🥰💖❤❤💕💕💖🥰
You would be excellent at ASMR because your soul is beautiful & it's content like this just warms my heart, thank you ❤
u are so strong girl, keep it going
this is so relatable?? omg, it feels so validating to see that my experiences with FND/PNES are so incredibly similar to other people's
Wishing you all the best, love.Your one tough cookie✊
I found your channel by accident, but I'm glad I did, my younger sister also has seizures, mostly the absence one, she has them since she was a baby, she also has sleep apnea, hypotonia, scoliosis, shorter legs tendons and might be on the autism spectrum. I might show her, because sometimes she gets self-conscious, that she is not alone, she is now 11-years-old and she knows that she is not like her friends.
Since she started taking her medication, they are not as frequent as they were before, thank God that we live in Brazil and here we have free health care and medication for her, she even have free transportation, because her specific treatment is in a city 2 hours away from our house.
Seizures run in our family, but the only person in our family like her lives in another state.
I also have FND. Thank you for bringing more awareness to this.
Your so calm ❤️ and your like so inspirational to me and my sister because she has FND and I have Tourette’s so thank you ❤️
This made me cry... I just recently got told i might have FND by my new doctor after 8 years of unexplainable seizures and fainting spells. Everything you showed was literally everything I've been experiencing but had no way to express to others since a young age. Thank you so much for sharing, now i can use this to explain to my loved ones (i have difficulty explaining it and it makes me anxious). Thank you so much ❤
Omg first time I’ve seen someone else with FND other than myself - obviously I know there are other people with the condition but still felt like lonely not seeing others irl and then this video pops up in recommended! Haha definitely feeling less alone :)
pheww this looks so hard to deal with! I'm very proud of you.
This reminded me of my husband because he has epilepsy. This is sad what you're going through but we're all in this together ❤
I have different illnesses but I can see myself in you. I hope things get easier.
I find it very interesting that you show these things of you're disabilities.
Good that you keep showing and explaining it. Also that you tell how you deal with things.👍
One just never knows what is going on in a person's life until they bring it life. Thanks for these videos.
I’m so sorry you go through this. My son has been having seizures. He’s about to get tests done to see if he has epilepsy.
As a person with OCD, severe, I can relate to the tingly arms thing. I have to wear a cast on my wrist to school, I don’t know what it is and why it’s there but I’m very sorry for everyone who has OCD, Tourette’s, or anything such.
Hope your doing ok ❤ I’d like some more info on your fainting days because I don’t fully understand, it that’s ok 👍
I think it's really cool that your in a music tech class!!! I myself am really into music and I find it absolutely amazing. I just found your channel and I love all your videos 😊I heard that you had a new song coming out and I thought that was WAY TOO COOL 🤘 I always wanted to have some kind of career in music but I always thought that I would never get far in life. But I just wanted to know what inspired you to take a music tech class and compose songs? Again, love your channel and your videos😊😊
hey! thank you for your comment :) I've always loved music and have written little songs ever since I can remember (though they weren't quite as good when I was little🤣) so when I saw the studios in my college I knew that studying music tech felt right for me!
Zara i can relate to you because i have seizures and i've had them at school at home while i was sleeping and i even had them at school in our bathroom and i had to go to the hospital multiple time and i'm only 14 and i had a seizure so bad at school in our hallway the our principal had to do CPR on me and i only toke 3 deep breaths and i had to get rushed to the hospital and i had to get a tube stuck down my throat so i could breath so i can relate to you just know your not in this alone and i also have a stare seizure Just know you are amazing and your not in this alone we are all struggling our own battles and you gave me confidence to just be me❤😝🥰😍🥳🤯🤓
You're so pretty and talented
Oh its so interesting to see the like slow tics, and mine totally get slower as the day progresses and I get more tired, but to have seizures change them sounds horrible
Watching this video makes me feel seen. I have FND after a car accident. My seizures look exactly like yours. I am not dealing with ticks though. Your effort to show your world is so important!
When I come out of my absent seizures I'm always disoriented and confused, I generally forget where I am and dont know what im doing. Its kinda comforting seeing someone have similar episodes tbh
Being someone with uncontrolled epilepsy I get just quite how hard it is to be able to carry on with life after an extended period of seizures etc. the things that you do to raise awareness is absolutely amazing, thank you ❤❤
Inspiration ❤️