A Very Ticcy Car Journey 😅 (ft Tourette's Alphabet Challenge)
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- čas přidán 16. 06. 2024
- i wanted to share this moment between me and my family showing a pretty normal long car journey with Tourette's! 🎗️
i haven't posted a compilation of tics for a while (i felt uncomfortable posting any coprolalia tics after so many comments) but i feel it's important to show these sides as well as educating on the negatives, because although TS is really hard to live with, it also does make me laugh at times! i hope this brings you some laughter, joy or understanding 🙂
don't forget to subscribe! ♡
-------- ✨ TIMESTAMPS✨
00:00 - intro
00:39 - disclaimer 1
01:12 - disclaimer 2
02:33 - tics in car
06:12 - alphabet challenge
11:13 - more tics
12:02 - outro
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✰ FAQs ✰
1.What conditions do I have?
‣ I have Tourette's Syndrome, FND and orthostatic hypotension along with being neurodivergent!
2. How old are you?
‣ 18
3. What is FND? 🧠
‣ fndhope.org/fnd-guide/
4. What is Tourette's?
‣ www.cdc.gov/ncbddd/tourette/f...
5. What do I use to edit videos? 🖥️
‣ Final Cut Pro X
6. What filming equipment do I use? 📸
‣ main camera - amzn.to/3MW7v8w
‣ tripod - amzn.to/3P7G8Ly
‣ vlogging camera - amzn.to/42CBQ1G
‣ mic - amzn.to/3qD5gjg
‣ wireless mics - amzn.to/3X2RxOE
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⭐️ Recommended Products ▹ amzn.to/41wXJPX
(not sponsored! but these are af links so i make a small cut from any purchases, but this doesn't cost or affect you 💕)
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✰ About Me ✰
My name is Zara Beth (zeezee25 on tiktok) and I post videos about disability, neurodiversity and what its like living with Tourette's Syndrome, Functional Neurological Disorder (FND) and Orthostatic Hypotension. Tourette's syndrome is a neurological condition causing involuntary movements called tics.
I use my social media (TikTok, CZcams and Instagram) to advocate and raise awareness for my conditions and show what it is like living with a disability as a neurodivergent person. I am also autistic and share my sensory struggles along with my experiences with mental health disorders.
I show what its like having a disability and the accommodations I have to help my daily life. I am an ambulatory wheelchair user showing my life using mobility aids and how chronic illness symptoms change from day to day!
I am also a musician with a popular song called "She's Mine" available on all streaming services - I wrote, produced, mixed and mastered all my songs myself! I am also an artist and a writer. I love reading and I'm currently writing a novel and a book about my life! - Zábava
p.s - don’t mind the strange contraption of dog ball thrower + packaging to keep my dog from licking me 🤣 the black snout in the background is my dog lottie, she says hi (or should i say woof) x
cute :3
I love u so much and you’re video is I don’t mind the language😊
Your whistle that sounds like "yoo-hoo!?" Is my favorite! Is this right or wrong of me?? 💜
Hi Zara!
The 'I hate you, have a cupcake' is my favourite tick that you have, because its quite complex but it makes no sense at all.
Isn't it "I don't like you, have a Cupcake"?
as someone who also has tourettes, ur videos help me sm ty for posting 🌻🌻🌻🌻
Ahh Zara you’re such an inspiration to me. For most of my life, I had minimal physical health issues other than constant injuries. Recently, I was diagnosed with fibromyalgia and hEDS, and I’ve had a hard time processing that my life is changing physically. You’re the reason I’ve been able to continue as well as I can, so thank you :)
this means so so much to me, thank you for sharing!!! 🥺❤
2:37 ZARA NOOO, YOU'VE REVEALED YOUR IDENTITY🤯😮
look what tics can do to you like reveal your identity
lol
Hello Zara !
Thank you for sharing this trip with us.
I am 25 and a few days ago I started to develop both motor and vocal tics. I sometimes feel like I'm a weirdo when it happens, but thanks to your videos I feel less alone.
Have a good week !
That's very late. Do you know why you're starting to develop tics? I hope I don't come off rude, English is not my strongest language :)
@@user_nothing4035 I don't really know. I know tics can be an autistic or an ADHD comorbidity. Since I am neurodivergent, there may be a link. I also have medication for mood stabilisation. Plus a friend told me I had some very minor tics a while ago. But I will talk to my psychiatrist tomorrow to clear this thing up.
-I take no offence, don't worry :) -
I have ADHD and autism, I have some tics, mainly caused by anxious situations, maybe it's something similar to that?
@@athunderofdragons3132 It is very unlikely in my case. My psychiatrist told me that it is a neurological problem, we'll see next month if the situation gets better
Hi Zara do you think maybe the tics come on when to much is going on around you or maybe your overwhelmed? I always thought there was a corolation thanks for sharing so Informative.
bless you this must be so exhausting for you :( glad to see you can find the humour in it though😂❤
I love "I don't like you.". " Have a cupcake"
I'm sorry but the spiderman thing made me lol 😅 only because it reminded me of the time my 5 year old son did exactly that in his sleep once 😂 ❤
the heartstopper books >>>>> ❤
Im so glad someone else noticied that!
It’s weird how the brain can be wired in ways that it makes things like tics happen it’s insane but i also love the diverse ways people’s brains can be. I also love when u share stuff like this it makes more people aware of the life u have and the was people are with tics it’s actually very awesome. I love ur vids a lot this was actually kinda funny to watch u are such an inspiration i love all u do😊
This is what you, your family, and friends have to deal with on an daily basis. All of you do deal with it well. This could be a frightening situation but you are stronger than you sometimes think.
I love the “I’m spiderman” and “do you like waffles?”
Ok I have autism and I'm really obsessed with tourettes as autistics can have similar tics, I do. I was concentrating too much to laugh with you on this one as the voice was so quiet, but I lost my damn mind with the "I'm a dinosaur" 😂 thank you for sharing the funny stuff too!
When you first meet someone, do you tell them you have Tourette’s? I’m asking because if you start swearing at them, they might take it the wrong way. You don’t have to answer if you don’t want to.
yes, it's usually one of the first things i do if i'm having a ticcy day!
@@Zara_Beth I’m learning so much from you. I really want to thank you for sharing your journey. Sending lots of hugs 🤗❤️❤️.
@@Zara_BethHI!!! You are like my hero because i have Tourettes and i was insecure about it but you inspired me and showed me that im not weird and that there is a reason to live ❤❤
I don't have it but I think you should let em know before it happens bc like that they know ur not doing it in purpose
@@joeclinton9991 that’s what I was thinking, because she swears. I do know a friend of a friend, that doesn’t say anything. That’s why I asked.
Thanks so much for being my inspiration. Because if it wasn’t for finding someone like you. I wouldn’t of been able to know that my seizures and blackouts and many other symptoms were down to FND so I’ve now finally after nearly 10-15 years of unknown symptoms that have had me in and out of hospital. I’ve now been told I have possible FND and POTS all thanks to your support and video awareness. If I could I would shake your hand and say thank you and buy you a gift. So thanks so much. Also I’m able to show my autism more cause of you as well 🥰🥰💕💕❤️❤️☺️☺️
you're so incredibly inspiring Zara, thank you for doing what you do
Hey zara! I've watched your videos since I started looking into tourette's (about a year ago), as my dad has it, and as I've recently developed tics, seeing your videos really helps me know that I'm not alone
Zara!! You are my favorite CZcamsr/Tiktoker ever. I always watch your content. I love how productive you are and how you always keep going strong. WE LOVE YOU 🎉🎉🎉💜💜💜💜✊🏽✊🏽✊🏽✊🏽
8:50 the dog is sooooooooo cute lol
I actually love your videos your voice is literally so calming I am also neurodivergent so your a big inspiration being able to speak about it💗
3:04
You're so cute on that Spider Web tics ❤🫶
Love watching your vlog Zara
The only thing I could think of through the whole video was how amazingly beautiful your shirt combo and necklace are. Btw thank you for posting that podcast thing you were in because it really helped me in my journey of trying to get an autism diagnosis
i'm so glad it helped out!!!
@@Zara_Beth just to clarify because I reread my comment, I am still trying to get the diagnosis :) Though it made it feel like it was the right decision and that even though I doubt myself sometimes I am probably correct
This was very amusing to me, I've watched your tic compilations before, but they've never triggered my own before! I have CMTD (chronic motor tic disorder) and it's not usually too much of a problem, because they're mostly just look like I shivered or was doing something weird, and people don't tend to judge. But this one made my tics go off a few times, how fascinating! As difficult as tic disorders can be, there's always funky times like that.
I experience both vocal tics and motor tics, so I’m a bit curious. Do you only have motor tics, nothing verbal?
@@Therian_Paws_ I believe so, yes! I'm also autistic so I have a lot of echolalia, so we don't know if it's just autistic echolalia or verbal tics. I used to have a whistle tic, too, it hasn't happened since last October, and I don't know if that counts as a verbal or motor tic. Different sources say different things.
@@DroplightStudios Whistle tics are generally considered vocal tics, but some people think they’re both. Anyway, thank you for explaining!
@@Therian_Paws_ Of course! Always happy to help. :)
Doggy in the back omg!!! So cute💗
Thank you for taking my idea, love you! ❤
Thank you for taking my idea, loveyou!❤
Zara!!! I just have to say you're really awesome and a wonderful person 😊😊😊 i always enjoy watcing your videos, plus learning about tourettes!! Thank you!!! ❤️❤️❤️
Your dog sticking their head through the back is so cute omg
I love the Spider-Man things
AND I LOVE WAFFLES
COMPLETELY off topic, but your dog is ADORABLE!!!! ❤
Love ur channel ❤❤
for anyone curious, the long word at 10:15 was floccinaucinihilipilification - the estimation of something as worthless.
The I don’t like u have a cupcake got me so hard, hope ur doing okay and stay safe
You are awesome. So is your family
That one long tic though lol. Love to you Zara
"do you like waffles?"
2 seconds later
"I'm spiderman 💅✨"
Hi Zara, I love your videos and appreciate the awareness you bring - you've definitely educated me over the years. That said, noodley nipples killed me 🤣🤣🤣
"Bruh I'm spider man" best tick ever😂😂
ur so pretty ❤❤
Early squad because of Zara’s Discord server ❤
you're a real one 😎🤝
I have Tourette’s ADHD, OCD, and also autism and I know what it’s like. I’m only 11 and I’m still in school. It’s really hard.
Wow! That’s the best Turtle car share I’ve ever been on 🐢😀
Yay top 362 and top 52 likes and comments. Best to you and your family. Thanks for making this video. I always enjoy your videos.
Hey Zara thank you for your videos. I don't know anyone with Tourette's but it's really interesting to learn about it, I'm also neuro divergent and your positive vision of life is really inspiring.
I had a question during this video, when you ticked "i'm spiderman" : do you sometimes tic secrets, like things you would keep for yourself but it gets revealed by ticking, or is it just as you said in another video, like a random speech of subconcious ? Of course I know you're not spiderman haha bur it made me wonder. (Sorry for the mistakes i'm not english)
First thing comes to my mind when I see people with Tourette’s syndrome is how exhausting it is: it even making me tired.
just a question, do you always have to sit in the back in the car to prevent your tics from interfering or distracting with the driver, or were you just in the back because why not?
Me and my colleague both have ticks. It's sometimes quite funny, when we car pool to work.
Aw this is so awful and irrating for you to deal with but can also be absolutely hilarious, especially with you being "Spiderman" hahahahaha 🕷️🕷️🕸️🕸️🕷️🕷️🕸️🕸️🕸️🕸️🕸️🕸️🕸️🕸️🕸️🕸️🕸️🕸️🕸️🕸️🕸️🕸️🕸️🕸️🕸️🕸️🕷️🕷️🕷️🕷️🕷️🕷️🕷️
Out of context but...ARE THOSE HEARTSTOPPER BOOKS I SEE?!
I have a question : in your dreams, do you tic or have fnd symptoms?? I have fnd and it sometimes affects my dreams, just wanted to know about you (ps love the content and disability awareness ❤)
You are a beautiful ❤️ soul young lady. Lv n 💜 prayers frm Michigan USA 😊. Be happy 😁 n safe kiddo. Peace 😀🕊️.
Your way cooler than spider-man 😉
I wish I could know you in real life😂 I feel like we'd be such good friends 😂❤
Do you ever have "written" tics when typing? I don't have tourettes or any ticcing disorder afaik, but I have always had this thing where I will just start typing vulgar/dirty stuff when taking notes or writing documentation.
(goes down a google rabbit hole and discovers "coprographia" exists)
I'm not sure if it qualifies as a tic, but I have often worried about forgetting to delete it in emails or code commits or other "permanent" things that could ruin my day. It is like it just pops out whenever my mind wanders when writing, or when I forget what I was going to say mid sentence, or otherwise get stuck. I've done it as long as I can remember, but I have always been able to repress it whenever I'm not alone (thankfully).
I do have mild motor tics (neck twitching and sniffing), but only really noticed them as such after stumbling onto your channel. I have ADHD, and my motor tics only really show up when I'm bored or anxious (or both, lol). I can also suppress them most of the time, but when I'm bored it's just a matter of time 😂. It was weird feeling a sense of understanding when I first watched your videos, and I can see how seeing tics could easily set off tics.
I've learned a lot about Tourette's from your channel, and a bit about myself, too. Thanks for putting out the interesting and educational content :)
4:00 i love it
everyone who are saying the tics she did please dont if she read the comments she could end up getting more tics and stuff
Hi Zara!
Hey Zara, i have a quick question. So i was told that i have a high risk of getting seizures. IF i ever were to get seizures, what is the best way to handle them after completely having one? Hopefully i made sense 😅
I wonder if a small dose of Valium or a similar muscle relaxer might help with car rides. It's got to be exhausting with all the physical tics.
R the heart stopper books the background (I luv them)
heck yes they are!!
zara finally admitted that shes spiderman
Hey Zara❤❤❤
My tics are just like that
Hey Zara do u actually know how to whistle or do u just have a whistle tic?
Hi Zara, I have Tourette’s as well when I was 12 I started swearing at my teacher unexpectedly, so that night I went to the doctors and I was diagnosed with Tourette’s and I was shocked. I’m 19 now and my tics are still quite bad sometimes I have a necklace with a teddy and fidgets on it (a bit like your one). I love your content and what does it matter that you don’t post videos as quick as long as you post that all that matters.
Congrats on your diagnosis and answers, I mean this in the nicest way, but neurologists should not diagnose Tourettes until you’ve had both vocal and motor tics for longer than one year, and do blood tests and examinations to ensure it isn’t caused by something else.
I’m not sure I believe this story, because the criteria for being diagnosed with Tourette Syndrome is you must have at least two motor tics and at least one vocal tics, and the tics must be consistent for over a year. You can’t just go to the doctor and get diagnosed after involuntarily cussing one day. Plus, before getting a diagnosis, they must perform blood tests and brain scans to determine if it is perhaps not Tourette Syndrome, and instead a different thing.
Hello Zara! Since you have Coprolalia, did you ever say curses before you knew what they meant? I’m sorry if you’ve answered this question before
You mean before she knew the definition or beforre she knew they were bad?
Assuming she never heard curse words shed likely associate stupid and dumb with being bad but if she heard cuss words even with no definition or sense of good/bad word she could still tic them her tics may not make sense though lol
@@flameepidemic4839 I meant before she knew they were bad or shouldn’t be said. Thank you for clearing that up, that makes sense lol
I have met some people with tics, so I totally understand the worry! Do you have any favorite tics you have heard yourself say? And, do you know what you are saying when you have a tic? (Just some questions to get to know you and get to better understand the symptom.)
im just thinking of what it would be like to edit these videos with tourettes and activating your own tics
im spiderman do you like waffles caught me off gaurd XD
Hi, I just wanted to ask if Tourrette's has to negatively affect people, or be a really big issue. Often times my tics don't bother any body or me, (with a few exceptions) but I wanted to know what you have to say on this topic. Thank you!
EARLY SQUAD ❤
Help I started saying "I don't like you, have a fuckcake" instead of cupcake cause of mishearing it ☠
Hello I’m just wondering have you ever crashed because if your tics not hating your amazing hopefully no thing bad ever happens to you 😊❤
Hi Zara! First, love your content! As a fellow neurodivergent, I really appreciate your constant efforts to spread awareness.
Second, I am writing a novel right now and one of my main characters has Tourettes. It's very important to me to write her condition realistically and respectfully, and I was wondering if you have any tips?
I have some tips! (coming from my own experience)
Keep the tics consistent, but not non-stop. Tics do waver at points. When experiencing any strong emotion, tics get worse, especially in stressful situations and when uncomfortable. Tics may also be repetitive. Sometimes, a certain tic happens multiple times or is just very repetitive throughout the day. Tics do sometimes interrupt your sentences, but also can stop during a sentence. When you are very focused, tics become reduced or stop entirely.
Thats just a little explanation, please do ask if there is anything you would like to know!
@@Therian_Paws_ Wow, thank you so much!
Is there like a sensation or any other kind of forewarning before a tic? I seem to remember hearing that but haven't found anything about it in my research. If so, what does it feel like and does it fluctuate?
@@jessica_bishop There is something called a premonitory urge, and its when tension builds up where you are about to tic. Its a very uncomfortable sensation, and you can suppress it. Large tics aren’t always aboe to be suppressed, but little ones can.
Here is a quite a lot of information to take hold of:
When you suppress a tic, it is very similar to a sneeze. You can hold back the sneeze, but its very uncomfortable and keeps trying to come out. Eventually, it comes out anyway. Thats how suppressing a tic works. When you do suppress a tic, it causes more, but they are usually smaller. You can also make your vocal tics quieter, but that also causes more frequent tics. I hope this helps, and remember, please don’t be afraid to ask questions! I would love to help you in the novel you are writing!
@@Therian_Paws_ Thank you for answering my questions!! I can't think of any others but I'll reach out if I think of more later 💙
@@jessica_bishop Alright, I’m honored to have been able to give you tips!
Sometimes my shit goes away for days. Then, when I'm relaxing at home one night. It starts back up again. Oh well
Do your tics trigger seizures when they are at a peak like this?
Also was that whole bit where you talk about God being an it and not a he or a she a tic because that’s was pretty complex.
sometimes tic attacks do trigger seizures! tiredness is a big FND trigger, so tics tire me out and FND kicks in and shuts my body off
oh, and - the god conversation was just me, i'm not sure why i was so disjointed speaking though 🤣
You are so beautiful i wouldent care what you say or do being out with you is enough to fill my life up for the rest of my life love the videos and you.sorry you don't have to reply just know that you are beautiful.❤
Is the spider-man tic new?
i've had it for about a year 😂 it's still going strong, but hasn't made it into videos yet
Hey Zara,
Just a question: What is your favorite colour?
Greetings and have a nice day/night!❤🧡💛💚💙💜
Hi i also have Tourette's and i would like to know what is the one most funniest thing your Tourette's made you say
Hiiii!
doggyyyyyy😁😁😁😁😆😆
I have tourettes I us to copy your tic when I was 9
I am quite curious, what makes a vocal tic a vocal tic? I would ask google, but I'm sure I'll ask a more experienced community. Does whistling count as a vocal tic?
I'm sure this is some other videos, I have yet to catch up on.
Vocal tics involve using the vocal chords, so I'm really not sure if whistling counts as motor or vocal😂
Depends on who you ask, some say it’s both, but it is considered a vocal tic as it makes sounds with your mouth
@@charlotteeee3854you would think it doesnt but it is counted as a vocal tic! Along with grunting, mouth pops and the like, and not all of those include actively using vocal chords which makes it seem confusing
@@reunitingetal1327 That's a good point, I guess since it makes a sound regardless it's a vocal tic😂 I literally have Tourette's Syndrome yet I couldn't really classify them!😅
And say im Spiderman
❤😂😊
I love you 😘
Hiii zara
Zara not to joke or anything but you're the most beautiful woman in the world despite your disability
Draga Zara, predpostavljam da si vec cula za molitve, da one mogu poboljsati tvoje stanje. Ako nisi pokušala od srca ti želim da odeš u neku jaku Crkvu da mole za tebe. Poznajem mnoge koji su zauvijek molitvom riješili taj problem i sada imaju vlast nad sobom. Šaljem ti veliki zagrljaj❤
Praying cant cure or treat tourettes or other neurological conditions x
Why do u whistle 😮
Its a tic.
I have a qustion can you ever dive a car
If you have severe Tourette’s (like Zara) then you can’t legally drive a car.
My friend has Tourette’s syndrome I don’t know how people can be mean about this genuinely
I don’t want to trigger your tics, and I don’t want to vent or anything. But I’ve been struggling figuring out of i have Tourette’s or anything. I never swear, or do anything vocal. But I have shoulder shrugging, eye rolling/eye movements. Grimacing, ones with my mouth/tongue. And used to have one with my stomach, and it hurt. If I don’t do any of these I don’t feel right. So maybe somethings wrong with me. I don’t know.
You don’t have to respond if you don’t want to. I’m not begging.
The criteria fir having Tourette Syndrome is that you must have at least two motor tics and at least one vocal tic, and the tics must be consistent for over a year. If you don’t have any vocal tics, then you don’t have Tourette’s, but you likely do have a tic disorder. See a doctor and you can be referred to a neurologist. Just a heads up-you will likely have to have blood tests and brain scans performed! (Thats what happened to me)
@@Therian_Paws_ they’ve been here for over six months, and I’m scared to ask my parents for a doctor and stuff because they’re already dealing with my sister that has severe OCD (and has been diagnosed). And they hate doctors so my mom will probably just tell me it’ll go away. It hasn’t.
@@toe._. Try talking to your parents about it, explain it to them. Getting a proper diagnosis and making adjustments in your life to help deal with tics is VERY important. If your parents refuse to get you to a doctor, tell a teacher or a counselor.
Just curious what happens with your tourettes when your asleep.🤩🦋🌼🍄⭐🌈
didn’t we learn from Tics and Roses that we shouldn’t be faking mental illnesses.
One more thing you're ticks ain't so bad quite cute actually.
Hey Zara can you do another Minecraft vid please 🥺🙏🏿🥺🙏🏿🩷🩷🩷🩷🌺
First!!! 😁