Beth's Cystic Fibrosis Story | Nuffield Health
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- čas přidán 18. 12. 2016
- The 16-year-old isn’t taking the life-limiting condition lying down. She’s fighting her CF with a fitness programme designed to improve her quality of life. Find out more at bit.ly/2gITnyj
For five years Nuffield Health have been running a cystic fibrosis programme in partnership with Great Ormond Street Hospital enabling over 100 children and teenagers to benefit from the exercise-based initiative.
The programme provides free Nuffield Health gym memberships and personal training sessions to both the young patient and their parent or carer, with the aim of slowing the rate of decline and reducing the amount of time children and teenagers have to stay in hospital for treatment.
What's wrong with people disliking important videos like this? 😒
This is why self isolating is so important at the moment.
Important eh? That same isolation is killing people. Unless you trust the almighty Saint Fauci word for word, then the real science suggests lockdowns do nothing to stop the virus and weaken people's immune systems by making them depressed. In Fauci we trust!
Haha I have cf and I’m watching this while I’m doing my nebulizer treatment. Keep it up, it’ll never be easy but you can do it! I’m I’m my teens and have never been hospitalized!
ItsGpx Still going strong! I recently received the new Trikafta treatment, and it is totally a life changer! I am hoping to start cutting back on medicines gradually! The Lord has been so good to me and it feels amazing that He has used me though my weaknesses.
Hope everything is going good for you!
How are you doing now
I have been hospitalised and I am doing my nebulizer whilst watching this
My friend just lost his daughter to this condition ... She was only 10 years old 😓... Please pray we find a cure for this condition , so no parent goes threw what my friend is going threw right now ever again 🙏🏾🙌🏾
Praying daily. I'm so terribly sorry for you and your friends loss.
Unfortunately it’s a genetic issue and there’s so much taboo around genetic engineering. Some Christians just view it as playing God. They’ve made some great advances in treatments. There is one form of CF that is almost curable as they can make the faulty gene stop reproducing the faulty gene and produce a healthy one.
@@Youre_Right what is that form please tell me I am 15 year old boy with cf
I’m sorry to hear that, May she Rest In Peace 🙏
I was born with CF. You’re a fighter, keep up the good work:) Im happy I was born an “athletic” person, I can keep my lungs healthy
I hope she’s doing good still, I can’t imagine what’s it like to go through this but she’s very brave 🙏
Excellent, I love medical science because how it can improve peoples lives! Especially if it was not their fault to begin with :)
Thank you for sharing this inspirational story!
God bless her I hope she is doing well 💙
that's great for her well done guys 💜
Thank you s k!
Nuffield Health
Ide happily have her personal trainer 😅🙈 shes pretty too
Anyone else thinks she looks older than she is?
What amazing work GOSH is doing
I love boxing. Boxing is a great sport and exercise for your lungs ;) Good job!! You will be ok young lady keep it up!
I have cysic fibrosis too but my pancreas works and i dont cough at all thanks to the doctors and the medication i hope every one has acces to the new symkevi medication for cystic fybrosis
It so obvious that patients with herpes virus are being enslaved to the antiviral drugs that is being prescribed by medical doctors to help suppress and not to cure them completely from the virus they have been battling with "a society that keeps cure a secret so they can continue to sell medication for huge profits is not a real society but a huge mental asylum" I suffered from herpes for three years using medical treatment hoping that one day God will do wonders In my life, a stranger I met at the park felt sorry when she saw the blisters on my face she immediately introduced me to herbalist oduntun from west africa I was convinced that he can cure me completely from the virus so I decided to go into natural remedy with herbalist oduntun.
I contacted him on his instagram page @herbalist_oduntun we discussed and he explained everything to me how I will get the herbal medication, the prescription and food diets i will be on while taking the herbal medicine, I was on medication for 21 days following the these rules without eating meat or any diary product. (i'm on plant base🌿 )
I give thanks to God almighty for leading me to the stranger that introduced me to this genuine herbal doctor I'm really grateful🙏🏼 for more information on how to reach him here is his email address: herbalistoduntun@gmail.com or what'sApp number: +2349039463501 Stay Safe Good luck.
@@laylasleiman1981 dont care
@@dkdkdkdk0037 Your Choice Not Mine 🙋
@@laylasleiman1981 theres no cure for cystic fibrosis they is new medication coming out for it just cause u belive everything you see on the internet
@@laylasleiman1981 just say to the my doctors 'oh i saw this comment saying doctors just give medicen for no reason so im gonna go'
i have cistic fribrosis and more like azma and more my life sucks
Jennifer Workman Sorry to hear that, but don’t pity yourself! Live your life as best as you can!
My life sucks too. I have respiratory reflux, also known as lpr.
My weak physique due to illness
Can a transplant of gut flora help this condition?
No. CF is caused by a mutation in a gene that allows the flow of salt through organs. This causes thick mucus like secretions that result in a higher chance of Infections, lung failure, and more. CF is fatal and there is no cure.
No, it's genetic. Besides, that wouldn't do anything.
I have it to and it’s hard
May i ask what is your main symptom? My dyspnea is 24/7.
@@urospeteh2637 how are you now? Do you use oxygen pumps?
It so obvious that patients with herpes virus are being enslaved to the antiviral drugs that is being prescribed by medical doctors to help suppress and not to cure them completely from the virus they have been battling with "a society that keeps cure a secret so they can continue to sell medication for huge profits is not a real society but a huge mental asylum" I suffered from herpes for three years using medical treatment hoping that one day God will do wonders In my life, a stranger I met at the park felt sorry when she saw the blisters on my face she immediately introduced me to herbalist oduntun from west africa I was convinced that he can cure me completely from the virus so I decided to go into natural remedy with herbalist oduntun.
I contacted him on his instagram page @herbalist_oduntun we discussed and he explained everything to me how I will get the herbal medication, the prescription and food diets i will be on while taking the herbal medicine, I was on medication for 21 days following the these rules without eating meat or any diary product. (i'm on plant base🌿 )
I give thanks to God almighty for leading me to the stranger that introduced me to this genuine herbal doctor I'm really grateful🙏🏼 for more information on how to reach him here is his email address: herbalistoduntun@gmail.com or what'sApp number: +2349039463501 Stay Safe Good luck.
@@urospeteh2637 It so obvious that patients with herpes virus are being enslaved to the antiviral drugs that is being prescribed by medical doctors to help suppress and not to cure them completely from the virus they have been battling with "a society that keeps cure a secret so they can continue to sell medication for huge profits is not a real society but a huge mental asylum" I suffered from herpes for three years using medical treatment hoping that one day God will do wonders In my life, a stranger I met at the park felt sorry when she saw the blisters on my face she immediately introduced me to herbalist oduntun from west africa I was convinced that he can cure me completely from the virus so I decided to go into natural remedy with herbalist oduntun.
I contacted him on his instagram page @herbalist_oduntun we discussed and he explained everything to me how I will get the herbal medication, the prescription and food diets i will be on while taking the herbal medicine, I was on medication for 21 days following the these rules without eating meat or any diary product. (i'm on plant base🌿 )
I give thanks to God almighty for leading me to the stranger that introduced me to this genuine herbal doctor I'm really grateful🙏🏼 for more information on how to reach him here is his email address: herbalistoduntun@gmail.com or what'sApp number: +2349039463501 Stay Safe Good luck.
@@thevilkids Hi, sorry, i havent seen your reply. No, no pumps. I don't have CF, but a secondary lung disease due to a post viral autonomic nervous system damage. You can read about it. Esophageal aperistalsis-dyspnea.
if you know you have the gene why not adopt i dont get it
Because even with CF it’s still worth having a life in the first place.
Badminton racket
Hey that’s me! @mbpt_coaching
Hi Michael!
Nuffield Health
Nuffield Health Hey👋🏼
Hey that's me aswell! @Ninja
I also have cf and a very similar story to you. Check out my instagram and youtube
Box woman
It's not like that for everyone
Yes it id
@@fontzy6010 how would you know? Are you everyone?
@@eidygra5350 everyone with cf has the same thing
@@fontzy6010 nope
Overall it's pretty similar but it varies from case to case
I honestly don't even remember what the video is about but I can tell you that there can be a huge difference on how CF effects one patient or another
It's mostly about which mutation you have
Every mutation is different
Oh okay sorry. It’s just because I have cf and I do the same stuff as her
shes litteraly capping soooooooo hard rn she doesnt have cystic fibrosis... i researched about it in my 9th grade biology class today and she doesn't show any symptoms....
What a horrible comment, I have this and you wouldn't think it at all .
@@xrachybabex1 when were you diagnosed? What are your symptoms? I just started researching this as I think my son may have this. He never had the new born blood screening.
feeling there is something unhealthy between the trainer and her.. the way he talks sounds more like a bf
Because he doesn't sound professional like most personal trainers would?? Definitely doesn't sound like her bf lmao