Why I'm using my walker (and other health updates)

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  • čas přidán 14. 08. 2023
  • It's been a busy summer! Well, busy with health appointments (probably the most I've had consecutively since I was a baby). I wanted to share an overall update including some vulnerable lows I've been sorting through, as well as what I've been doing to help with my knee pain and overall mobility.
    1:11 recap about my knee problems
    2:26 how my knee feels today
    3:19 physical therapy update (didn’t go well)
    5:42 opening up about a recent panic attack about walking
    12:22 what I’m doing now for knee pain overall mobility
    Instagram - / realchelseabear
    TikTok - / realchelseabear
    ChelseaBear.com
    #Disability #ChelseaBear #CerebralPalsy #CerebralPalsyAwareness #AgingWithCerebralPalsy #PhysicalTherapy #StretchZone

Komentáře • 280

  • @realchelseabear
    @realchelseabear  Před 10 měsíci +42

    hi friends! I included timing breakdowns in the description if there's certain updates you're interested in listening to over others. thank you for watching and supporting my content!

    • @heatherfulton7550
      @heatherfulton7550 Před 10 měsíci +3

      Prayer helps all physical conditions and find someone to talk to. The walker is good, too. Keep on stretching 😊

    • @robaldridge6505
      @robaldridge6505 Před 10 měsíci +1

      rhank you for providing interesting content

    • @davidjibson4199
      @davidjibson4199 Před 10 měsíci +2

      Hang in there. I live in Texas and where I am at we also been having heat warnings and all. Glad u got your AC fixed.

    • @levihunter2334
      @levihunter2334 Před 10 měsíci

      Hi, Chelsea. I keep getting an invalid gmail when I put @realchelseabear. So I will just give u this important message here. First, don't get anymore injections for your knees. The more injections u get, the worst your knees will get. Second, don't take any CALCIUM. Instead, take MAGNESIUM. Calcium will give you bone spurs, Magnesium reverses it. Third, stop doing strenuous exercises. Your bones will continue to fracture. I know it's rough. It took me a long time to learn these things. U can Google these things too. Please don't be afraid to reply to me. There's a lot more stuff I have for u. 😚❤️

    • @missbethie
      @missbethie Před 10 měsíci +2

      As someone living with cerebral palsy too, I have learned that I'm more likely to get panic attacks if I'm worried about not walking "properly". Distancing myself from people who kept suggesting things that I could do to walk "properly" has helped.

  • @SarahEve1123
    @SarahEve1123 Před 10 měsíci +6

    I feel you.❤️🙏 I'm glad to know that I'm not the only disabled thirty-something feeling anxious about our bodies changing and not knowing how my disability will evolve (since there's more research on how it affects children). Stay safe and thank you for sharing this❤️

  • @starkorg282
    @starkorg282 Před 10 měsíci +26

    Hang in there, Chelsea, we are rooting for you.

  • @wheelchairmanjon
    @wheelchairmanjon Před 10 měsíci +23

    Stay strong, beautiful lady. Hope your knee pain goes away. You’re such a beautiful lady stay strong as a person with cerebral palsy myself. I appreciate your videos. They are very relatable to me.

    • @realchelseabear
      @realchelseabear  Před 10 měsíci +10

      thank you so much! I'm glad my videos are relatable to you too.

    • @wheelchairmanjon
      @wheelchairmanjon Před 10 měsíci

      @@realchelseabear you are very welcome pretty lady always remember to stay positive and strong even on tough days and someone always has it worse than you I have a spastic quadriplegia. I am wheelchair-bound and do not have the ability to drive but at least I have complete cognitive ability so that is a blessing and I’m proud to smile in the face of challenges every day because adversity makes you a stronger person over time.

    • @meghanjaramillo1897
      @meghanjaramillo1897 Před 10 měsíci +1

      Hi, I'm Meghan I have Cebrial Palsy too. I'm wheelchair bound as well.
      I find these videos very helpful and motivating!

    • @wheelchairmanjon
      @wheelchairmanjon Před 7 měsíci

      @@meghanjaramillo1897 same here Megan it is nice too communicate with people that have the sum of the same challenges it makes you feel like you’re not alone and it makes you want to achieve more like you said is motivational.

  • @utubestratman
    @utubestratman Před 10 měsíci +28

    Following you on your journey. At 74, mine is likely close to the finish line and I find your courage inspiring. Just got back from Miami after a 7-day cruise and felt the heat. Sadly, I jumped from the frying pan into the fire. Here in Oklahoma, we're averaged over 100 degrees for many days. I may seldom comment but know that I'm listening and sending my best wishes.

    • @realchelseabear
      @realchelseabear  Před 10 měsíci +10

      thank you for following along! I hope you enjoyed your cruise besides the heat! hopefully it'll start to cool down soon. I truly appreciate your support and following along. Have a great rest of your day :)

    • @creepycrawlything
      @creepycrawlything Před 10 měsíci +2

      I'm also 74, and share your sentiments about Chelsea. Still looking forward to another twenty years or so of active and useful life. Best wishes to you on your journey.

  • @mmbar51
    @mmbar51 Před 10 měsíci +10

    It's been tough for you lately, but it also sounds to me you're taking the right steps to deal with it all. Panic attacks are no fun! I used to have them back in the '90's. I was really sick with Lyme Disease and splitting up with my first husband(very verbally abusive and managing). So you can kind of see how it happened with me. I developed arthritis in my spine and neck. I've had both knees replaced and my left hip. I developed a scoliosis in my older age. Found out I have degenerative disc disease and will need more surgery in my neck and lower spine. Since I started with panic attacks, I took care of my emotional health as well by going to a counselor. I do take medication since then but not the amount, it has helped immensely. Someone else mentioned meditation here & that's a really great help. It's important to take care of your emotional health as well as physical health. I'm not recommending medication, I only mentioned that as part of what I do. My Neuro diagnosis is MS, which thankfully hasn't acted up but the worry is there in the back of mind. Thank you for sharing your experience, strength and hope. You are most definitely an inspiration.

  • @Dont-ms-with-my-coffee
    @Dont-ms-with-my-coffee Před 10 měsíci +3

    I have Multiple Sclerosis, I too have similar difficulties with my PT experiences. 😢 it’s stressful and discouraging. I empathize with the trial and tribulations you face.
    ❤❤❤❤you are a warrior ✊🏼💪🏼🧡🧡🧡🧡

  • @steverino015
    @steverino015 Před 10 měsíci +4

    Holy cow, so glad your AC is fixed! Prayers for your knee pain!!

  • @SewTubular
    @SewTubular Před 10 měsíci +9

    Hi Chelsea, I'm sorry to hear you had a panic-attack. It must be scary and frustrating to feel like you can't depend on yourself to get around when making small trips. ( nobody likes feeling helpless, and panic-attacks take away all your confidence when you need it ) It's great to hear that you finally found some people familiar with CP at the Stretch Zone. I'm sure they will help you to bring back your confidence in being able to get around. I don't know if you've ever tried meditation to help calm yourself when you're feeling like your confidence is floating away. Even 10 minutes of meditation can make a difference, so you start to feel like your confident self. ( lots of meditation recordings you can download to your phone : I like short guided meditations with ocean waves in the background. Really helps to center myself. ) Hope you enjoy what's left of the summer. Thanks for the update. Take care ! ❤

  • @brucek6563
    @brucek6563 Před 10 měsíci +7

    Glad you're doing ok!! Being without AC when it is so hot can be very serious!!

    • @mythdusterds
      @mythdusterds Před 10 měsíci +1

      It’s definitely not fun to deal with in Florida, especially during the warm season.

  • @TractorMan104
    @TractorMan104 Před 10 měsíci +7

    I had my first panic attack in 1999, I didn't know what was happening. I still have them every now and then, but they are really small. Arthritis is not good but stay on top of it. I'm developing it in my neck! You are such a warm and caring person, never change that, we need more Chelseas in the world.

    • @realchelseabear
      @realchelseabear  Před 10 měsíci +3

      thank you for sharing, I'm glad they've gotten smaller for you. and thank you so much for the kind words

  • @marcmakesit
    @marcmakesit Před 10 měsíci +7

    Hello Chelsea. so much is still unknown about neurological disorders and disease. I have a form of Muscular Dystrophy. It was inherited from my father and my three brothers suffer with this disease.
    I have started using a rollator walker and can relate to the uneasy feeling you experienced while returning to your car. It is okay to slow down, take a step back, regroup, rest or rethink your options.
    Thank you for sharing and inspiring others.
    Marc.

  • @davedemyan3302
    @davedemyan3302 Před 10 měsíci +2

    It is a good thing for you to share your perspective on coping with your challenges. It helps me, and I assume others, understand how best to interact with those with similar mobility issues.
    Thank you ❤

  • @bgrimlan
    @bgrimlan Před 10 měsíci +1

    Chelsea, ask about Magnesium (Magnesium DiMalate) and Potassium. Those two have helped with my muscles and inflammation the most. I take fish oil too, it helps with inflammation. Make sure your Vitamin D3 levels are up too. Being a lady, you are more likely to have low bone density. Magnesium (not just for muscles) and Vitamin D3 (with Vitamin K) will help you when it comes to strong bones.
    I have never had a panic attack under those circumstances like yours, but I did had one once before. My family and I had gone to Hawaii for a vacation. We were touring, of course, and there was a water fall that you can see from a high bridge. So...we pulled over and started to walk up to the middle of the bridge on the sidewalk. On my left, it was a "rail" that wasn't even knee high. On my right was 50 mph traffic, it wasn't busy but still 50 mph zone and cars maybe 10 seconds apart. I already felt something usual was going on in my head, my flight instinct alert was going off but still controllable (barely). As you know from personal experience, someone with CP that walks, you are constantly calculating how you are going to fall (it's not a matter of "if", but "when". For me it could be 2, 3, 4 times per day down to once every couple days. Even weather (temp) can throw me off), so with a danger zone on each side of me and my family wanted us to sit down on the rail so we can get a picture, it was a wide rail (maybe 2-3 ft wide), just not tall. It was out of question and I went into a full blown panic attack. On normal circumstances, my sit downs are more of a control crash and burns and not to mention, there was no backing to stop my momentum. I was probably around 30 years old at that time, never had one before. I had to be led off of the bridge before I could catch my breath again. I think it's just maybe we are constantly calculating for our safety that we just get overwhelm every once awhile. I wish I was there to help you, knowing what it feels like.

  • @poimendave9536
    @poimendave9536 Před 10 měsíci +1

    Your brave for being vulnerable and sharing your struggles, but I believe you’re strong enough to overcome , you’ve come a long way baby.

  • @STAXBITCOIN
    @STAXBITCOIN Před 10 měsíci +1

    ❤❤❤ Hang in there, you are an amazing person. I know panic attacks, I went to the hospital thinking I was having a heart attack, after all the tests they said I was fine. I was so confused, never heard of panic attacks. 😂 Now I’m just used to them. The power of the mind is amazing in good and sometimes bad ways.

  • @diecast_MikeEspo
    @diecast_MikeEspo Před 10 měsíci +1

    God Bless all these beautiful people leaving awesome comments for a truly beautiful strong woman.
    Your great 👍. Chelsea.

  • @caraevans2609
    @caraevans2609 Před 9 měsíci +1

    I was born with Spina Bifida and I can relate to a lot of what you’ve experienced. I’m in my forties now but I remember transitioning from a teen to a young adult and realizing what little support there was for myself and other young adults like me. I actually had a receptionist tell me once when I had moved and was looking for new doctors that Spina Bifida was only in children! I hate having to ask for help as well and I can completely relate to how you felt afterwards with having a breakdown. It’s hard getting older and I’ve spent a lot of time in therapy working through my fears. My body doesn’t bounce back like it use to when I was younger and it absolutely sucks! You’re doing an awesome job! Thank you for sharing your experiences with all of us.

  • @scotttharp5015
    @scotttharp5015 Před 10 měsíci +1

    You are the Most Beautiful & Amazing Young Lady , Your always so Positive and Up Beat , and THAT SMILE ! ! ! Stay Strong , Keep moving Forward and Life Will Reward YOU . . . LIFE has Rewarded All of Us Because of YOU ! ! !

  • @MrsAlmaTrumble
    @MrsAlmaTrumble Před 10 měsíci +3

    This heat is no joke. We'll continue to pray for you, sweet friend.

  • @joelbeer1985
    @joelbeer1985 Před 10 měsíci +1

    Hi Chelsea. How are you?. I'm Joel from the UK. I'm 46. I was born with Cerebral Palsy too and it affects me in very similar ways to yourself. I can relate to alot of things you've said in this video. I had physio therapy from when I was a baby until I was 18. From then on, its been difficult to get regular sessions. I have to refer myself if I want therapy, which I have to wait for and then I only get six sessions a time, unless I want to pay hundreds of pounds £££💷 for regular sessions. This is very frustrating because my walking and balance seem to be getting worse. I'm also losing confidence, due to falling alot more and I'm constantly looking for things to grab onto when I walk.I do go to the gym 2 or 3 times a week, so that helps. I use my walker regularly and I am currently looking for a scooter to buy. Keep going darlin', you are a wonderful lady and beautiful as well. I love to chat with you more, so we can swap stories and advice about our disability. Would that be OK. Take care for now. Joel xx

  • @Olga-zr6wh
    @Olga-zr6wh Před 10 měsíci +9

    I have had panic attacks all my life. They are terrifying and very hard to explain to someone who has never experienced one. I think you are doing a fantastic job of finding healthy ways to empower yourself physically and mentally. Using your walker to make you feel safe when you need it is an example of an intelligent, well thought out way of taking care of yourself. You are a brave, smart beautiful young lady and you deserve all the best things in life!

  • @harleyironhead7090
    @harleyironhead7090 Před 10 měsíci +4

    stay safe, stay strong girl and remember that we all care about you. The world is a better place because of you, you provide so much help to an untold number of people all around the world, thank you.

    • @carolynohara2534
      @carolynohara2534 Před 10 měsíci +1

      I have mild CP and was able to walk pretty well most of my life. I had the odd freezing episode over the years, but always brushed them off. About 5 years ago (when I was 49) I had a severe freezing episode on a side walk when walking to meet a friend for lunch. I was about to cross at a crosswalk and didn't ( thank goodness) and had a severe freezing episode. I was stuck, too far from anything to grab onto and I was terrified. When I finally managed to move on I met my friend and she convinced me to go to a doctor. I hadn't seen a specialist since I was a kid because I thought I was doing well enough. It took almost 2 years to see a Neurologist. It was awful. When I finally was able to see her it was such a relief as she was amazed I had made it that long before asking for help. I wasn't crazy after all. My brain just wasn't compensating as well as it did when I was younger. I now use a cane when I'm out while also holding onto my husband. If I need to walk a lot I use my walker. I also have an awful time trying to get off my couch. I grab onto the coffee table to try and pull myself up. I've done PT as well and I also find many therapists also have more experience with people recovering from injury or such. They feel I'll be all fixed in a few months. It doesn't work like that unfortunately. Thank you for your videos. I'm older than you (54 today actually!), but it's nice to know someone else understands the issues we have and we're not alone. Thank you!

  • @thomasbrown5081
    @thomasbrown5081 Před 10 měsíci +3

    Hello cheslea lovely to see you back looking stunning as always ❤❤

  • @davidmahan4160
    @davidmahan4160 Před 10 měsíci +5

    Wow, a lot has happened since your great Alaskan cruise.
    I'm sorry to hear about your recent health problems and setbacks, but you just keep going. I'm glad to hear you've been sensibly avoiding the excessive Florida heat.
    Good to hear your concentrating on your own health. If you have to use your walker, then so be it. You've done remarkably well Chelsea and you are an inspiration to other. Best wishes. 😊✌️

  • @chrissyramirez
    @chrissyramirez Před 10 měsíci

    I started using a walker 11 years ago, when my balance became weak now I have to use my walker all the time. I try not to let Cerebral palsy get me down ❤ in highschool I had knee injuries and I wear knee braces because I'm scared my knee caps might come out. When I had an ankle fracture in June it was so hard to walk even to the car. My ankle fracture is feeling better, but my ankle will still act up sometimes. My ankle fracture took 3 months to get better. And it's still hard for me to walk to the car but using a walker helps. Thank you for sharing your story. It feels good to find someone with Cerebral palsy. Your videos make me happy Chelsea. It's hard for me to get in the car I struggle with that.

  • @forevervigilant4892
    @forevervigilant4892 Před 10 měsíci +3

    Whenever you feel like that just think of all of us here in the comments saying "you can do this!" We have nothing but love for you and even though we're not physically there to cheer you on, we're all with you in spirit! Stay strong!

  • @user-hs2ec9cd4k
    @user-hs2ec9cd4k Před 10 měsíci +1

    Thank you for Posting this. It is nice to be able to relate to someone. I am 44 years old and have CP. It for the most part only effects my legs. I two have recently dusted off my walker due to the fact that my left hip is now Bone on Bone with arthritis. Makes more sense now why I fell in front of a gym full of people at my daughters Volleyball game. After that fall I knew it was time to go back to the walker at least till I could figure out what was going on.
    I have had those moments in my life that 4 or 5 steps feels like 4 or 5 miles away. Like you though it doesn't happen often so it surprises me when it does. I also have had good and very bad experiences with Physical Therapy some know what to do with me and some DON'T!!! I probably am going to have to have the hip replaced in January or so if all else fails. I have gotten some help but I am not where I need to be. The Thought of Surgery Scares me to be honest because it has been since 1998 since I had my last Surgery and I didn't bounce back quick then and I was 19 not 44. However I know the Lord will carry me through He has always been faithful even when I tried my best to reject him when I was younger. Anyway thank you for sharing your Video's I really enjoy them and they are a blessing to me I know a few people with CP but not many and the ones I know are unfortunately for them not like you and me they are in wheelchairs.
    Respectfully Submitted,
    Brad Stover

  • @donaldphelps7031
    @donaldphelps7031 Před 8 měsíci +1

    Yes we are all on our prayer lists.

  • @EviesHangout
    @EviesHangout Před 10 měsíci +1

    Thank you so much for sharing about your journey. Ever since I’ve been an adult, it’s so difficult to find a PT. I’ve had people look shocked I’m an adult, because they said CP was a “childhood disability”, which shocked me even more. I definitely relate too to the sudden onset of being fearful of just…moving around in the outside world.
    You got this and know you are not alone 💚 sincerely,
    Evie, another adult with CP

  • @creepycrawlything
    @creepycrawlything Před 10 měsíci

    Your willingness and ability in sharing, is very valuable. How you inspire offers transferrable resource. That is, how you are going through and communicating your CP journey, offers insight and hope that applies generally, where a resourceful effort is required to see things made better. I'm thinking of a neighbour in his 50s who needs to recover capacity after having a massive stroke, where one area of needed recovery has to do with speech and speaking. I can't quite put it in to words, but the way you draw on your total self and person, offers something of a meta-perspective on what needs to be accessed and tapped to motivate that neighbour to the effort required, so that they can use their total self and and person to drive forward.

  • @deanderose4931
    @deanderose4931 Před 10 měsíci

    You got this! You have a ton of strength and courage, and as such, I admire you very much. I recently finished roughly 2 months at the hospital for septic shock. I was actually clinically dead, and had to be revived. As a result of sepsis, my spine was heavily damaged, and among other things, my lower right leg had to be amputated. You have been an inspiration for me, which makes recovery a bit easier! Thank you so much for that!

  • @bassiclymike
    @bassiclymike Před 10 měsíci +1

    Hi Chelsea, glad you're doing OK. I knew someone who has CP as an adult, she's around 50 right now. She was able to go through some therapy as a child, and her symptoms essentially disappeared. In her early 40's they came back after she experienced a wave of traumatic persona experiences and at the same time she was highly active and walking several miles each day. It mainly affected one leg, she would get the muscular tightness and cramping. Seeing a good physical therapist was really starting to help, she was able to walk places she could not have done before. One thing added to her therapy that she enjoyed and found very helpful was swimming and exercising in a pool. The ability to take weight off her leg combined with the smooth water resistance did wonders. I hope you can find a therapist you like and keeps up to date on the most current treatment programs. You're a lovely, vibrant young woman, full of positivity and energy, I wish all the best for you in working on your mobility and becoming more independent. Big hugs to you!

  • @brettvickers23
    @brettvickers23 Před 10 měsíci +1

    It's interesting to hear you say you have a panic attack and freeze when walking. Being 41 over the last year or so I've noticed that it happens to me as well. I will start to walk and get to a point where I feel as if my brain just cuts off and I'm not sure what to do. I've been able to overcome it and keep moving but once I get where I need I have to take a minute to process that I'm ok. Maybe it's something to do with CP but I always felt like it was something wrong with me. Listening to you explain your process makes me realize I'm not alone like I've always felt 💚

  • @wards1fan
    @wards1fan Před 10 měsíci +1

    Glad that you're using a walker. It should help with the wear and tear on the patella. Every little bit helps!
    "Go Lightning"!😘

  • @secerto
    @secerto Před 10 měsíci

    I love to see you smile but a cry now and then keeps it real. We all have issues in life. I don't know you but feel so proud of who you are. We can all learn a lot from watching your journey.

  • @ggeimer
    @ggeimer Před 8 měsíci

    Thanks, my son is about to go through the process of finding a therapist as an adult.
    His therapy will end when he turns 21. I appreciate your honesty and your determination.

  • @SKYKOP1972
    @SKYKOP1972 Před 10 měsíci

    You hang in there young lady. I appreciate your tenacity. I'm 70 and my knees are paying for my youth today. But we're still vertical right! Keep up with the PT. I believe it helps. Stay strong Miss Chelsea.

  • @edwardlabonte6341
    @edwardlabonte6341 Před 6 měsíci

    I think you are so attractive and beautiful inside and out. You have such a bright outlook on life with your challenges. It’s a shame that most people take their good health for granted. I wish you well in life and keep that beautiful smile beaming.

  • @thomasmallow9310
    @thomasmallow9310 Před 10 měsíci +2

    You are such a beautiful person inside and out! Such a positive person! Hope things get better with the supplements and therapy!

    • @realchelseabear
      @realchelseabear  Před 10 měsíci +2

      thank you! me too lol! I appreciate the kind words :)

  • @epicparody411
    @epicparody411 Před 10 měsíci +1

    Hang in there I understand. I have spina bifida myself had surgery in 2020 to remove vertebrae with pinch nerve. I used a walker and canes. Its so hard get the strength back. But I workout at home.
    Thanks for sharing your journey. I might start sharing as well.

  • @producethom4875
    @producethom4875 Před 10 měsíci

    All I can always think of is “what a precious precious person”

  • @megany0510
    @megany0510 Před 6 měsíci

    I've had MS for 20+ years now and have had the same problems finding a PT company but I finally found one! Keep positive 🙂

  • @steve-ti5rz
    @steve-ti5rz Před 10 měsíci +1

    So glad you're having less pain
    I truly wish I could be there to assist you with anything you may need. You're a very charming and beautiful woman ❤

  • @jeremycarpenter5550
    @jeremycarpenter5550 Před 10 měsíci +1

    Just find a surgeon that you like and trust mine helped me out a lot i wish you the best your channel is the best on cerebral palsy keep up the good work .

  • @robaldridge6505
    @robaldridge6505 Před 10 měsíci

    it's been hot everywhere.. we hit 100 AGAIN up here in Montana today..
    im glad you fixed your knee, I broke the top off my tibia (front lower leg bone) on Jan 3, was in P.T.for 4 months, still not 100% my 'advice' is stick with your P.T. for the knee as long as possible, 'my' insurance cut me off and now I'm on my own, I too get panics especially on my stairs, I have a full set of stairs between my apartment and the street, 4 times now I have had to SIT at the top of the stairs until I 'chill out' and THEN I still need to get back UP and go down the damn stairs.. it ain't easy, I wish it were especially for YOU..... keep on and try to enjoy the ride.... God Bless you young lady.

  • @edwinbell6741
    @edwinbell6741 Před 10 měsíci

    Never be of being yourself. We all have our own limitations. Sometimes my limits get to me. But that makes me work harder. 🙂 Take care girl.

  • @scottyboyny
    @scottyboyny Před 10 měsíci +2

    ❤ hey, i an ups driver in Arizona. Gets to 150 plus in the back of our trucks. I'm glad you're doing ok👍

    • @realchelseabear
      @realchelseabear  Před 10 měsíci +3

      oh my goodness!! I hope you're staying safe and have some personal mini fans. thank you for all you do!

  • @JW-jl8iq
    @JW-jl8iq Před 10 měsíci

    we miss you Chelsea. You are a saint on what you do

  • @josiew.8383
    @josiew.8383 Před 9 měsíci +1

    Oh my gosh Chelsea 😢 I’m very sorry for what you are going through! I can completely understand about freezing and not being able to take steps…it’s happened to me too
    I use a cane. I feel like I have to use it now. I fractured my right knee and I have cp as well and I’m 35, so it hasn’t been easy. You’re right there’s hardly any resources for people who have cp. I’m in California, siskiyou county. Hardly anything here for my health benefit

  • @jeremycarpenter5550
    @jeremycarpenter5550 Před 10 měsíci

    Information is the key to success in dealing with cerebral palsy . I wish the c p community was bigger where i live but i live in a small town .

  • @amyw188
    @amyw188 Před 10 měsíci

    Hi Chelsea,
    It'll be interesting to hear what the Neurologist says. I think continuing to see your Orthopedist regularly will be good too. Next time you see your Orthopedist, ask him about whether seeing a Rehabilitation Physician would benefit you. I have CP diplegia as well. I am 24 years old and I noticed my symptoms like spasticity were getting worse all of a sudden, just over 2 years ago (when I was 22 years old) after not having proper treatment for my CP for over 10 years. I also have new issues with my upper body that I previously didn't have. I ended up seeing a Rehabilitation Physician after having surgery on my foot and ankle just over 2 years ago. My Rehabilitation Physician has been fantastic. He has linked me up to Occupational Therapists (OT), physios and other medical and health care professionals that specialise in neurological rehab. A few of the health care professionals I've seen actually work together as part of a multidisciplinary team with my Rehabilitation Physician. I live in Australia, so a lot of my health care is free, but some of my medical team are private practitioners (including my family doctor/Primary Care Physician/PCP - we call them General Practitioners or GP's here in Australia), so I do still pay some out of pocket for treatment, but it's totally worth it. I suggest that maybe you look into trying to find some sort of clinic that specialises in neurological rehab. They are fairly difficult to find here in Australia (it took about 8 years after I was discharged from the public hospital outpatients clinic at 16 years old to find the clinic I found, meaning 8 years of no physiotherapy unless I injured myself, minimal occupational therapy, no regular exercise to maintain my body and my GP not knowing who to refer me to), especially for adults which is strange, but you might be able to find one in your area.
    My Orthopaedic surgeon ended up referring me to a Rehabilitation Physician to help with my Rehabilitation from some complex foot and ankle surgery he did, shortly after the surgery. I ended up in a Rehabilitation unit in hospital for a few weeks to help me learn how to do things for myself on one leg (I couldn't wait bear on the foot that had surgery for a while after the surgery and I live on my own, so I didn't want to leave hospital until I could do my transfers safely, etc). The Rehabilitation Physician who looked after me while I was in the Rehab unit told me that he had an outpatient's clinic and that he treated adults with CP and does Botox injections in adults, etc. So when I had the flareup with my spasticity I went back to see him, after I had been out of hospital and doing some physiotherapy with therapists familiar with CP, who mainly only treated children with CP, for a few months with no improvement. Since receiving Botox injections in my legs (after not having them since I was 12 years old) I have seen a huge improvement in my spasticity. I have been getting Botox for 6 months or so now (my Rehabilitation Physician tried a few other treatments before deciding to give me Botox). My Rehabilitation Physician has also been investigating the issues I have with my neck, shoulders and wrists and I am now seeing a hand therapist (it is an OT who specialises in treatment of the hand and upper limb and also predominantly works with people with neurological conditions) to try to work out what's going on. My medical team think it may be mild spasticity in my upper body that wasn't picked up when I was a child, but they are still investigating it. My Rehabilitation Physician has also helped me with my pain management as well and has given me cortisone injections as well and given me better medication that is more targeted to the type of pain I have. I have had pain in my neck and shoulders and back for years, and I finally started getting some relief after seeing my Rehabilitation Physician (although I still have bad flareups). My Rehabilitation Physician has basically been able to treat or investigate everything that is CP related. My specialists are so good, I don't even bother going to my GP for anything related to my CP or really anything musculoskeletal or neurological related anymore.
    I hope your knee gets better soon.

  • @ashtont.griffin5717
    @ashtont.griffin5717 Před 10 měsíci +1

    As someone who also has CP, you are making some great choices.

  • @Jude13able
    @Jude13able Před 8 měsíci

    I hope your knee gets better keep up the exercising. Whatever you do don't let this event get you down. Keep the positive attitude it will take you very far in life.

  • @ChristopherBix2
    @ChristopherBix2 Před 10 měsíci

    Unfortunate that discussing health issues here seems to compel others to write long descriptions of all THEIR health problems, even if they don’t have CP.
    the hazards of mentioning health issues online. It inevitably causes some to think it’s an invitation to detail their unrelated heath issues.
    I’m glad that you share your travail and what you are up again like so many others. We are certainly interested in you and your well-being.

  • @FreshwaterSouL
    @FreshwaterSouL Před 10 měsíci +2

    I'm praying for you👍

  • @ronkasdorf
    @ronkasdorf Před 10 měsíci

    Chelsea, thank you for sharing. You are a real trooper. I’m glad that I found you today as I have been thinking about you and am praying for your safety as the hurricane is approaching the west coast. Thank you for sharing your journey. Whilst I am not having your experience, I am compassionate and have a great appreciation for you. 😊

  • @brianwilcox1686
    @brianwilcox1686 Před 10 měsíci +1

    I have cerebral palsy to, and I have a fourth grade brain bleed, but I walk with a limp. It’s still hard for me to do stuff like get up from the couch without hanging onto some thing. Or jumping I can’t just make friends because they have no idea what I’m going through I’m 20 I’m isolated, except for when I talk to my dad and my stepmom, but I exercise every day I do five laps on the treadmill and I am really trying to eat healthy

  • @SparkeyCox
    @SparkeyCox Před 10 měsíci

    You and your health are more important - Love your updates

  • @kathryncara13m
    @kathryncara13m Před 7 měsíci

    I' started in home physical therapy there is no co pay and I found a wonderful pt who gives me what I need above and beyond ....my cp is similar to yours..I've learned to keep stress low

  • @mauijiminar1
    @mauijiminar1 Před 10 měsíci +1

    Glad I found your you tube channel. I follow you on Tik tok. Very inspiring

  • @danlafleur2151
    @danlafleur2151 Před 10 měsíci

    I'm in TN. Going on vacation to Florida in 2 weeks. Haven't seen my sister in years and am so stoked to hang with her.
    Just found out I may have skin cancer. My body is trying to take me out of the game. Lol
    I struggle with extreme anxiety. Never had any trouble with anxiety until my health started going down hill. I'm 34.

  • @c-rad2419
    @c-rad2419 Před 10 měsíci +1

    Hi Chelsea, I also have Spastic Diplegia CP. I don't know if you've tried this before, but if you haven't. You may want to consider asking your doctor about botox injections. I have gotten them in my legs, and it helped loosen up muscles and ease spasticity.

  • @norm5785
    @norm5785 Před 10 měsíci

    You have definitely had your plate full with your home and mibility concerns. I am so sorrybthe PT person made that statement. Youndo an awesome job on sharing thentrials and tribulations younencounter with CP. I am fortunate at my age that my only medical issues are my knees and lower back have arthritis. But i am sure that those who do have CP, benefit from your sharing. You are such an inspiration to everyone (me inuded). Stay safe, happy and healthy. From Henrico County Virginia.

  • @davidbailey239
    @davidbailey239 Před 7 měsíci

    You are a very good inspiration for other people that have disabilities, you are a very very wonderful person Ms Chelsea your great and Beautiful Thank you Ms Chelsea

  • @peacethroughstrength172
    @peacethroughstrength172 Před 10 měsíci

    No doubt youll conquer this also, one way or another. Stay up Chelsea and great to hear from you!

  • @marianwasitowski8684
    @marianwasitowski8684 Před 10 měsíci

    Your an amazing young lady to teach us about CP. Love your spirit an energy. Keep up the hard work. Love watching your channel.

  • @Greg-kj5rr
    @Greg-kj5rr Před 10 měsíci

    Thank you for sharing Chelsea!! I had a similar instance going to another clinic to have a test done for my heart so my cardiologist could assess how my heart was doing ... going into the clinic, I only made it half the way to the front entrance, due to unavailability of handicapped parking spots. And 'no' resting spots to 'sit' 'anywhere' between the lot and entrance at all!! And being 400 lbs, if I go 'down' there's no getting me 'up' due to my conditions and 'everybody's' inability to 'lift' 400 lbs!! So THIS generates some fears on my part when just trying to get from the parking lot to the entrance on a good weather day in Minnesota (which are 'rare' generally and can be 'deadly' in the winter). So I feel your pain, and thank you for making our fears felt and understood by a few out there!!! You're an angel sent from heaven. Giving me hope and strength to push on when I have nothing left inside to do it!! I should get a powered wheel chair but living on disability alone by myself leaves nothing for any other aids at all. So many 'other' bills no money for 'anything at all. Money needed for roof repairs/replacement, vehicle replacement, etc. and winter coming soon. Thank you for giving hope no matter how short lived. You 'ARE' an 'Angel'!!! Hugs - Greg Leonard 💜💗💜

  • @johnnyd386
    @johnnyd386 Před 10 měsíci +1

    I said it before and I’ll say it again Chelsea, you’re a very strong young woman and I’m sure that you inspire many.

  • @stephenbierlein2517
    @stephenbierlein2517 Před 10 měsíci

    Beautiful lady hang in there. You're such a strong person. Don't worry about what other people think. ❤have a great day.

  • @robc1961
    @robc1961 Před 9 měsíci

    Stretch zone is what PT is supposed to do for you. Hopefully they take insurance and it's not out of pocket. You are confident and more beautiful than ever. Don't sweat the small things. Accept challenges and conquer them head on. There is just about nothing you cannot do. Be well and keep up the great work on awareness.

  • @scipio6979
    @scipio6979 Před 10 měsíci

    I think you were holding many things in. My wife was like that. Always trying to put a happy face on but felt terrible. Be happy, be sad, be angry, just be yourself.

  • @LILVOKA
    @LILVOKA Před 10 měsíci

    I appreciate your videos. You show beauty and strength. Chelsea, keep your head up.

  • @lisaannkey
    @lisaannkey Před 10 měsíci +1

    Does this so relatable Chelsea! I had that same situation where my legs just locked up and I couldn't walk. I had a feeling that anxiety was behind it too! Thank you for sharing your story!

  • @traceyshock2898
    @traceyshock2898 Před 29 dny

    I'm so happy you are doing this. You are such a beautiful young lady.

  • @trishacourtney5808
    @trishacourtney5808 Před 10 měsíci +5

    I have 3 kids with CP
    One with hypertoned hemiplegic spastic cp
    2 with Hypotoned cp
    I love watching these to see what things look like for their possible future ❤️

    • @jeremycarpenter5550
      @jeremycarpenter5550 Před 10 měsíci +1

      I am 48 years old and I have had a pretty good life I am single and loving it I have cerebral palsy in my legs don't worry they will adjust to life my advice is just encourage them as much as possible . God bless you and your children .

    • @jeremycarpenter5550
      @jeremycarpenter5550 Před 10 měsíci +1

      I was in special Olympics as a child i highly recommend getting them involved with this great organization the people are great .

    • @trishacourtney5808
      @trishacourtney5808 Před 10 měsíci

      @@jeremycarpenter5550 yes we encourage them a ton! My daughter struggles the most with spasms and dystonia in her legs. They’re just getting to the age where I’ve started to look into the special Olympics for them!

  • @kenyongreg
    @kenyongreg Před 10 měsíci +2

    I got your back ❤ always

  • @mattmaulden3502
    @mattmaulden3502 Před 10 měsíci

    Big hugs, much love and prayers to you precious woman. ❤

  • @68fuel
    @68fuel Před 10 měsíci

    Hoping you feel better!! I look to you for positivity and inspiration several times a week!! Hang in there!! Scootz rocks!!!

  • @autk
    @autk Před 10 měsíci

    Keep fighting Chelsea, you're and amazing inspiration, you will get better, know that and believe it, there's nothing you cant do!
    Be well 🙏☀️

  • @dennisketterer814
    @dennisketterer814 Před 10 měsíci

    Your so incredible. You just love life and everything that you do. Every chance I get,I watch your videos and your such an amazing Person. ❤

  • @dogsface1931
    @dogsface1931 Před 10 měsíci

    Thx for the updates, keep working hard. You are doing great, and you are an inspiration ✨️ ❤️ 😊

  • @user-zn9yt4lf9m
    @user-zn9yt4lf9m Před 10 měsíci

    Hi Chelsea! I’m so happy to follow your journey. I’m 48 and live with CP also. You are so inspiring. I’m rooting for you and grateful for your sharing.

  • @astkcin
    @astkcin Před 8 měsíci

    Thank you for your videos they have really raised my awareness! I wish you all the best.

  • @michaelake9814
    @michaelake9814 Před 10 měsíci

    Thank you so much for sharing your stories. I’m learning a great deal.

  • @davidneil8917
    @davidneil8917 Před 10 měsíci

    Pure inspiration thanks Chelsea

  • @thomasgoins7320
    @thomasgoins7320 Před 10 měsíci

    Hi Chelsea thanks for sharing this video it was good one. I'm proud of you sounds like you've got everything under control. Thanks for everything I'm praying for you

  • @uncralph4354
    @uncralph4354 Před 10 měsíci

    Glad you found someone to help you. Admire your spirit! Never quit!!

  • @davidrichardson5347
    @davidrichardson5347 Před 10 měsíci +1

    Thank you for your teaching, 😊

  • @HeadtoTailBBQCooking
    @HeadtoTailBBQCooking Před 10 měsíci +1

    My mom has Stiff Persons Syndrome and she will get like that with major a stiffness and anxiety if she doesn’t have her walker or something to hold on to.

  • @user-kx4xy8vu7h
    @user-kx4xy8vu7h Před 10 měsíci

    You seem so confident to me. I learn from you, even in this case when you show the same vulnerabilities that i feel. Thank you. I admire you.

  • @mikewilson8594
    @mikewilson8594 Před 10 měsíci

    Thanks for the update! Much love and respect. Try and stay cool!

  • @daviddupre2420
    @daviddupre2420 Před 10 měsíci

    Very good, you're so courageous. Have seen you a couple times and more. Keep going and giving us updates your and encourager to others.

  • @keonikaig9247
    @keonikaig9247 Před 10 měsíci

    Sending Blessings to you....
    Thank you sooo for this update..
    Keep well...LOVE YOU ❤

  • @jordanmcdonald1985
    @jordanmcdonald1985 Před 10 měsíci

    Awe you're such a sweet heart. I hope you are well.

  • @MrMit50101
    @MrMit50101 Před 10 měsíci +1

    Not sure if you've ever seen people that do like physio in a pool or like water therapy (aquatic therapy) that puts less strain on the muscles etc however the water helps to create bigger range of motion

  • @MarkK395
    @MarkK395 Před 10 měsíci

    Chelsea, I've been following you for a while and the one thing that I have noticed is that you are a strong, smart woman who doesn't let anything get in her way! I hope your knee continues to get better. 🙂I'm from Minnesota and it's been hot here as well and supposed to get hot again but I'm flying to Seattle tomorrow for a much deserved vacation visiting my niece, where it's a lot cooler!

  • @davidbrown4271
    @davidbrown4271 Před 10 měsíci

    You are beautiful inside and out , plus your so inspirational to everyone ❤ .

  • @poplife8115
    @poplife8115 Před 10 měsíci

    Thanks for sharing, yea it’s been really warm here in Northern California but not to crazy heat, but hot enough that I’m happy I have a pool! Sending you good vibes for your knee, glad you are not in pain. massage therapy dude didn’t try I’m so so sorry. It’s ok you have to let those emotions loose from time to time and you’ll decide what to share. I had a friend with CP growing up as a kid and there was a lot I didn’t know about it then. You go through a lot daily you are amazing and strong with a great sense of humor.
    Truth being an adult makes you think so differently about what you can and can’t do I’ve been there. It’s definitely a mental challenge. Just wanna say Big Bear 🐻 Hugs 🤗 for you and I believe in you!!Did you name your walker yet?
    Wish we had a stretch zone here! Stay Strong 💪🏼 ❤

  • @jaredmatthews252
    @jaredmatthews252 Před 10 měsíci

    I bet you'd like river snorkeling. I do it alot in tennessee, it's great to get out of the heat, and if you wear a pfd, pretty easy as far as the physical stuff goes.