What I needed to know from DAY ONE (but no one told me) about ME/CFS RECOVERY
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- čas přidán 8. 05. 2020
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In this video: Here’s everything I wish someone would have told me when I first got sick with chronic fatigue syndrome (ME/CFS). It’s the information that no doctor told me and wasn’t in any book and could have helped me have an easier and faster CFS recovery journey.
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Remember that I am not a professional - this is what worked for me, and it absolutely will not be suitable for everyone. Please make your own assessment, do your own further research, and consult your trusted healthcare professionals before deciding if anything I talk about here might be right for you.
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WHAT TO WATCH NEXT
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In this class you'll learn:
- Three powerful strategies for pacing your activities and maximizing your output from whatever usable time and energy you have.
- How to prioritize treatment options and make space for the things that are a good fit for you.
- How to shape your environment and harness the power of habits to get you on an upward trajectory. (And have fun while doing it!)
- How to eliminate energy vampires while simplifying your life and routines.
- How to hack your motivation with tools for keeping yourself on track and continually showing up for yourself - even on the days you don't feel like it.
Thank you for the support and I hope you find these strategies as helpful as I and others have!
Join for free here 👉skl.sh/3vaMQqg
I'm at the beginning of my journey with long covid and I have severe fatigue and PEMs and brain fog... My old life is completely gone now, and this is so hard to accept. I cried through the whole video. Some days are so hard that I lose hope. Thank you Realan for your channel. All these testimonies of hope and advice are so helpful. I don't know how I would keep going without them.
I remember this happening four years ago to myself. It was bloody awful. But, there is a way through. Surround yourself with help. Videos like this are pure gold!
You fully recovered?
Thanks for the hope ❤
I know I am late to this video, but I wanted to say that during the worst of my LC symptoms I was trying everything everyone was saying was working for them. At one point (after 1000's of dollars and nothing was working) I told myself, "It can't be this hard and/or complicated." Later I learned that my gut was right. It was not hard. I just needed to go make sure I gave my body the things it needed. Nutrition, rest, sunlight, and stress reduction. I am a classic type A person and was always stressed and running on empty. I am still now in that 80-90% recovered and everyday I have to make sure I am doing the best I can for my body so that it can heal. So...I would tell my past self, "You were right, it does not need to be this hard and complicated. Stop trying all these weird or unusual supplements and practices and go back to the basics." I also feel that one day LC won't be a thing. That covid, like other viruses or illness trigger ME/CFS and science will understand better this condition that is triggered by these causes and not in our "heads" (just my opinion)
Woah! I literally cried and laughed and tapped through that whole video. This just changed my heart. You have no idea how much your message is changing my life. THIS is the real medicine I’ve always needed!
So glad you enjoyed it, Bianca! And thanks so much for your super kind words here, you have made my week 💛
I think the most frustrating thing for me is I can't be excited. Being too happy brings on symptoms and then I'm frustrated. If i stay level headed I'm okay.
Wow Raelan, I’m almost two decades into my recovery from CFS and this was SO helpful and inspiring. I can’t thank you enough!! Bless you!! 💗
Thank you! 💓💓💓
Wow! I have started including fermented foods into my diet and instant results. I have been vegan for a while but not the healthy kind, as I have been struggling with sugar cravings and the need to eat all the time. However, since eating fermented foods(only been 3 DAYS!), I have no sugar cravings and I don't need to eat all the time. It just shows how all the antibiotics in meat, dairy, and pills can mess your gut right up! Reading your book just now and so much of it relates to me! My period has also been infrequent, I hope with continuing to make my gut feel good, that will get better too. Her book is the book I have been waiting for! I read "How Not to Die" By Michael Gregor (Brillant book) a while ago and that turned me vegan straight away but It never helped me understand how important it is to sort out your gut to get healthy like this book. EAT YOUR FERMENTED FOODS! Thank You!
Pamela!! How incredible!!! This is amazing, I'm THRILLED that you are finding things that are helping you out. Isn't it such a crazy experience when the over eating and sugar cravings start to go away?! For so long I thought it was a will power issue, when in fact my gut just needed work. SO much stress for so many years for nothing. But at least we are fixing it now! I also read How Not to Die and LOVED it. And I am over the moon that you are finding my book helpful as well. Thanks so much for taking the time to share all of this. And Yay for progress!!!
Did you do this fermented food by yourself or i can buy some? I feel overwhelmed again so the least effort seems complicated right now…
I have had personal struggles that are taking a toll. Today it became clear my health is my number one priority and my focus came back to where it belonged...on me. I wish others would see it that like that. thank you for inspiring me.
Been struggling with long covid for 1.5 years. Feel like I already know all this stuff but you just make me feel like someone gets it and i needed that today so thank you ❤
The part about thinking you're invincible and pushing so far beyond your limits is so true and really struck a chord. Thank you for making this
You're so welcome! Glad it resonated :)
Oh Raelan, I don’t know how to thank you! I’ve been clinging to your videos of hope and for some reason only stumbled upon this one today. You have lifted my spirits up so so much and I actually dare to hope again. Love and blessings to you and all the wonderful things you do to help people with ME/CFS. Sending you my biggest, warmest, fattest hug ever xoxox
awww Thank you! ❤️❤️❤️
This is so good. Thank you for sharing!!
Thanks so much for the feedback! Of all the videos that I've made so far, this just might be the video that means the most to me, so I'm so glad you enjoyed it as well ☺️
I cried through this whole video. Thank you so much Raelan. You've helped me so much on my journey
I appreciate that a lot, Adelynn! You got this! 💓
Thank you Raelan you are such an inspiration. Loved the positivity in your message, im sure this will help so many people.
I read your book and found it so helpful. You have come out the other end such a happier person filled with zest of life...i am confident we all will come out of this...just a matter of time and perseverance 🙏
I appreciate that Alka and I am confident in the same!
I never comment but I just had to say thank you! I just finished your book and after suffering from hashimotos for 20+ yrs, fibromyalgia and my daughter just being diagnosed with cfs, it was exactly what I needed to read. So practical, so filled with empathy and love! Your experience cannot fail to be of some help to anyone with cfs or even just trying to get a better quality of life. Thanks so much for sharing your journey and your experiences, your openness and honesty. Stay healthy! We really appreciate you!
Thank you so much, Melanie! This comment brings me so much joy 💓💓💓
Hi, I know this is an older video but I do hope you see this message. I feel blessed to have found your channel. I am epileptic and have had it all my life. I never actually stopped to think the fatigue could be delt with or get better in any capacity but I do know my body needs more than I give it. I have seen so many Drs and they all seemed to believe that I was doomed to this life of just watching life go by instead of participating in this experience called life. I have hope now and I'm wanting to watch all your videos now. 😊
Hi Raelan I am 51 year old mum of 4 and had chronic fatigue since I was 20 years old . I now have fibromyalgia, arthritis and other symptoms that get me down but I do try to be positive. It was positive finding you Raelan you hsve given me positivity to going forward and sharing my story and finding friends. By the way I live in the United Kingdom 🇬🇧
Hi Sonia! Wow, 4 kids and 30 years of CFS. I can't even imagine. That's a lot to face, great job working to stay positive. Although I suspect that anyone in your shoes would be struggling some times. This really is a lot and can make life feel impossibly hard sometimes, in my experience. Thanks so much for saying hello and sharing a bit of your story. It's very nice to "meet" you! Hello from the USA 🇺🇸 (although I'm actually Canadian 🇨🇦) And I'm so glad that you've found my videos uplifting and that you are connecting with others and sharing your story. Good for you 😊❤️
Raelan Agle Hi raelan , Thankyou for your reply it was really nice to hear back from you . I must admit in my time of positivity I do have really awful times when I feel like I’m not dealing with things to well. I have had some recent new symptoms during the outbreak of covid 19 . I have had this draining symptom where my eyes 👀 are closing but my eyes roll into the back of my head and it stays like that for a period of time which really frightens me as I have no control over the eye lid or the eye . I hope we will be able to keep in contact with each other as it’s nice to share times with people and new symptoms. . Sorry 😐 🤗I didn’t say Canadian we can put this down to my fatigue. Thankyou for your videos they are very uplifting which is what one needs when struggling 🤗😊 💓
@@unsolvedcasesandnews yeah I suspect that unfortunately most (all?!) of us have some awful times when we're not dealing with things well. It's a lot to have to face every day. And wow, that eye symptom sounds really scary! I'm so sorry to hear that. I hope that one resolves soon. Are you Canadian as well? How cool! Nice to meet you Sonia and let's definitely stay in touch! And thanks so much for the kind and supportive feedback on my videos - I really appreciate it a lot 😀💜
25 years CFS,arthritis and Fybromyalgia. I completely understand what you're going through.
I have zero control of my life and how I'm going to feel minute to minute, nevermind day to day
Fingers crossed we get over this sooner rather than later 🙏
Thank you for such an uplifting approach and giving me hope to get up the battle. Much grattitude.
You are so welcome, Kay. I'm thrilled that this was helpful in some way 💛
My ME/CFS did start with a virus. I'll never forget the date for I was pregnant with my 1st and only child. Ive had it 33 years!! Many of your suggestions I figured out over the years and helped me. Your talent in bringing our illness to the forefront is a blessing straight from God. Everything you share is right on point. I've been seeing some news about the aftermath of some people who have had covid but are struggling months after. My prayers are with them, you and our families. Never give up hope of an easier fix for this unbelievable illness!! Thank you for all you do for the cause!!
Wow Debbie, I can't imagine how scary it must have been to face this while pregnant with your first child. And now 33 years . . . I'm so sorry to hear that. This is quite the journey you've been on. I hope you are managing ok, it sounds like you've learned a lot over the years and I imagine that helps a lot in dealing with this. Thanks so much for your kind words and support and I completely agree - let's not give up hope on an easier fix!
33 years?? I do not want to live
Debbie tapp, I got a bacteria when I was pregnant and was on antibiotics the whole pregnancy and had a traumatic birth with my only son and child. I was never the same again. Could not like after him my husband had to give up work to look after both of us. I describe it as hell on earth. The negativity and misery this illness causes is overwhelming. Nearly 6 years into it, I am experiencing hope that I might get better. I experienced a little joy and sense of encouragement from my 2 Nd driving lesson. I pray to God this is the start of my life crawling out of the pit iv been in for years. Thank God for all the people who try to help people with this horrendous disease. God has allowed us to go through this, he is with us.no doctor helped me. A doctor said tome you wouldn't wish this illness on your we worst enemy. Watch these videos heed instruction and turn to God for strength.
I needed this!!!!
I needed this today… I know this is an older video and you probably won’t see it but thank you so much
Much appreciated 🧡 🧡 I'm so glad you found it helpful!
My goodness, I’m so happy that I’ve found your channel 💕 After my initial chronic fatigue onset, after some improvement, I had a crash. During this time I was so down I was searching for hope and kept coming across horror CFS stories and so called CFS expert practitioners who advocate some horrible things (just trying to make money from fear). And then I found you and you are like a spiders web, linking us to more and more information and stories and websites/books etc that all have a running theme of hope, recovery, compassion, kindness and community 💕
I want to say a big THANK YOU 💕 As corny as this sounds, this is what real life hero’s look like
aww.. Thank you, Khatija! It means a lot!!
I do love your book. ❤
Gosh Raelan, we even were ill at the same time!! I wish so much I had heard this amazing video when I was first sick. It was so scary and isolating. It was definitely the result of so much stress and difficulty!!
You are amazing!!! I love the grey hair comment- I am a little older than you are and I can attest that they’re coming but I don’t even care about that anymore!! Since moving towards healing, I have adopted five mustangs, have been caring and training them myself... I went from having a crazy personal life to a very clear, simple and honest life. The illness was HORRIBLE but I’m learning so much how to view the beauty in my life as a result from that time. You are such a LIGHT!!!! Thank yo so much my dear Spirit Sister!!!❤️❤️
Sage advice and prudent insight. Thank you for sharing your personal journey.
Thanks so much, Geoffrey! ☺️
@@RaelanAgle Thank you!
Such an inspiring and positive video, thank you so much Raelan, from a new subscriber 👍😊
Thanks for subbing, MellyJo! And I'm so glad to hear you enjoyed the video :)
An epic video! Thanks for sharing all your insights. I got ME 19 years ago. My time machine moment was when I saw my 16 year old son starting to crash. I pulled out all the stops to rescue him from the horror of getting ME so young and he is now so strong and responsible about his health. And we continue on this fascinating journey of health protocol discovery together. Thanks God!
Oh my goodness, I can't even imagine what it would be like to see your own child getting sick. But what an incredible success story! Good for you (and him!) for working so hard and how amazing that he is now so strong and healthy. I used to feel like the only one who was seeing a genetic component to this illness (my mother had CFS), but stories like yours seem to be popping up more and more. Thanks so much for sharing this!
@@RaelanAgle thanks for your encouragement.
Yeah genetics is sadly a part of this nasty. We inherit our mother's mitochondria. My mom was sick my whole life and my 3 sisters all got it in the 80's when it was completely fobbed off as 'Yuppie flu'. Now it is starting to gain understanding in the med world. I am so desperate to protect the generation coming up from getting it. I'm on a mission! Looks like you are too! Go girl! Hugs
Thank you very much for this wonderful video! This definitely gave me my hope back that I can recover!
💗💗💗
Great video Raelen! You covered it all! The emotional side was the biggest for me. I literally went to war with my body in my mind. That's when EFT came into my life. I'm about 80% recovered now, because of Ehler's Dahnlos complications and I use EFT daily on myself and on the chronic fatigue clients I work with and it's a revelation. I'm going to share this video with a couple of my clients. Love your channel - you're helping loads of people ❤
Hi Rachel! Thanks so much for the feedback and I'm very happy you found this video useful. I'm also so glad to hear you've seen so much progress with your recovery (and that you've found such effective tools!) Great work helping others out and thanks for passing the video on!
How do you use eft on yourself? I am so interested!
I get better & then plummet backwards over & over & over & over & over (ad nauseum/ad infinitim) again. 30 years now. So frustrated, so exhausted, & so broke , and lost...
I'm so sorry to hear this, what a rough journey with this illness. Sending support your way and hope you are managing ok 🌞
Me too😢😢😢
And me…
Thank you!!! Amazing information 💕
Great to hear, Irene! Thanks so much for the feedback and I'm so happy you enjoyed this video 😀
So helpful and a tall order! Thank you so much
💓💓💓
So much wisdom here Raelan, thank you so much 🙏🏻💜😘
Thank you Janie for what you contributed to this video! And yes, collectively we have gained a lot of insight into this haven't we 💙
Raelan I am so very happy to be sharing your story and I have learned so much 😍🥰
Brilliant video, thank you 🙏
Wonderful information. ❤️❤️❤️
Hi Raelan! Thank you so much for this video, and many others. I’m wondering whether you could do a video on cultivating joy and entertainment while bedbound / housebound? I am unable to read books, call friends, or watch tv, so I’m currently relying on audiobooks but after almost 18 months of this...I am very, very bored! The rest of my lifestyle is extremely restful and nurturing but man, I am STRUGGLING to feel that little spark of joy that’s so important for our overall health. I’d love to hear your advice on this 💖 thank you
Hey Alisha, I am SO sorry to hear that you are going through this right now. Anyone would be struggling! This is a great topic idea, I've added it to the list and will get to work on it 😊
This is such a hard battle to fight I go through so many emotions in one day as well as the pain and the fatigue. I’ve been on soo many diets and it’s been hard not to relapse I’m only 20 and man only been 9 months of this but crying every other day is exhausting. Never been the same since taking antibiotics for an infection I had :/ gotta keep our heads up
I'm so sorry to hear that you are facing this, Hannah. Hang in there! You are not alone and people do get past this. Sending love 🌟
@@sq5 Hiya! I’ve been doing a lot better actually just like Raelan said people do beat this! Diet changes, supplements and learning ways to manage my emotions were a big part for me. I hope you’re doing well yourself, sometimes it’s a slow process but you do get there and when you do it’s so freeing!
Thanks Raelan...I would add that the devastating effect of losing vitality and energy produces a grieving process...which should be self acknowledged and worked through in the same way as grief in any other of life. But then the focus should be forward and not backward ..so don't compare life with ME to how it was before...which of course is the natural thing to do. I now know, it's better to live ' in the moment' as far as possible......which is actually all that is ever possible anyway...and what you said about mental health is vital, and easily overlooked with the deluge of physical symptoms.
That is such a great point, Dorothy. I totally agree, there is absolutely a huge grieving process that's happening that needs to be acknowledged and processed. 1000% with you on everything you said!
This is so helpful. Thank you.
Glad it was helpful, Tiffany! And thanks for taking the time to let me know :)
THANK YOU ! HOPE IS WHAT IS NEEDED
💗💗💗
This video always makes me emotional😢💃
❤ thanks for the video 😊 helpful information,
Thank you so much for these videos - beyond words ❤❤
You are so welcome, Eva! ❤️❤️❤️
Thank you so much for this video! ❤️
Thank you, Carrie! 💓
Hi .I am still slowly exercising even though I have pain in my arms and this week I started the vegan diet .
I don't think I've ever felt so full no feeling hungry and trying to drink more water.
All you can do is try these things you can't feel any worse.x
Hi Kay! Wow, it sounds like you are working hard at this and are so open to trying new things. I think that is incredible. Good for you. I also find that I feel much less hungry on the vegan diet! I hope you make some progress with your health and that your hard work and dedication is paying off for you. You're so right and I found the same thing - you have to keep trying things and experimenting. Sending virtual hugs to you for your healing journey ❤️
Very nice. I definitely grieve for lost years of my life... but now I get a tremendous amount of...Optimism...from my belief in Reincarnation. I now believe I have much more time than 80 years. I had two past life memories come to me in my 20's: in one I was in a war, lost both my feet (have many foot problems in this life), in the other I was a monk in a monastery. That second memory came w a wonderful feeling of Love and Brotherhood. So now I see myself coming right back here after this incarnation ends. Woo hoo, flying cars and integrative medicine!
Wow Donovan, how incredible! That's fascinating, thanks for sharing that. Flying cars and integrative medicine 😂 Sounds perfect!
Bless you, I love this video!
Aw I'm so happy to hear that, thanks for taking a moment to let me know 🌞
You are a gem!❤
Thank you so much for this encouragement this give me hope that this shall pass.
So glad to hear that, Elleni! Hang in there, you've got this ✨
Thank you so much.
15 years of a tortured nightmare. One step away from a nursing home with no family to help me. Feeling shaky like I'm going to die every minute.
Sending love to you, Jennifer ❤️
🤗💐😔 Did you try neurological retraining?
I am sseing good results after using earthing and grounding products from Clint Ober. Takes away all the stress and inflammation in the body over time. The earth is healing you kind of. Hope you're well ❤️
You’re so on point, I’m glad I found your, and Dan’s program, for me the ketoish-dr berg high vegetables, low fruit Diet changed my life. It’s been a long journey, everything you’re saying, has been true for me. Love you so much ❤️
Oh how joy is returning 🥰
Yay for joy! And for you, Sylvia!! ❤️❤️❤️
I'm late watching this, but found it very valuable. I hope my comment and like will get it to the recommendations of others too.
I can relate to so much of this, 6 years in.
It will go a long way! Thank you 💓💓💓
If I had known about CFS I would have rested years ago when the PEMs started and avoided all of this. The hard thing for me is that I was already eating super clean when i got CFS so that I can't improve.
This is a really good video. I have had CFS for 30 plus years and have been through/ experienced everything you talk about and live a pretty good life now and have full acceptance of my limitations. The only thing I am concerned about with your message is that everyone can get ' better'. I think after 30 years of progress I can say with some confidence that some of us can not completely move anyway from CFS
I'm sorry to hear you've had such a long struggle with this Rowena. And you're right, we each have our own journeys! My advice is only for myself - and for me that has to be to never give up. But we each must make our own decision on that one ☺️ I'm glad you enjoyed the video and thanks for the feedback!
Thanks! Beautiful and so helpful! Could you please make a video for how to manage marriage/being in a relationship with CFS, maybe some information for partners that isn't all gloom and doom? Ideas for low engery activities to do together, etc? ❤️🙏
Great suggestion! Thanks, I've added it to the list 😀
You video is really help. I am still finding my way out after 20 years.
Nam, I'm so sorry to hear that you've been dealing with this for so long. I hope you find all your puzzles pieces and can finally put this all behind you soon ❤️
Just brilliant! Love this video. One question: when you talk about having a schedule and having things on it besides rest/sleep, what are those things? What are those things that will make you well?
I am struggling with this one myself, I have lots of boredom and the constant pressure ‘i have to do things to get better’ but I just dont know what.
Hi Matthijs! I'm so glad you enjoyed this and thanks for taking the time to share that 😊 And yes - great question! And unfortunately one that seems to have a slightly (or dramatically) different answer for everyone. For me, it was a mix of things like finding the right diet for me, finding a movement/exercise program that could strengthen my body (and not make me worse), finding ways to support my lymphatic system, etc. Basically a ton of lifestyle medicine. I have much of this info scattered among a few videos here and I am also working on one video right now that will sum it all up so that people can find it all in one place. I will have it out soon! It can be confusing and frustrating, can't it! (and yes - boring 😒) I hope you are managing ok and good for you for researching and searching for your own answers to get past this!
Yup!!! Thank you 😊
💜😊💛
What seems a little off to me is your diet point. You said that if you find the right diet it will feel good from the start.
I startet with MM info, so a hole plant based diet.
In the beginning it actually got worse until it got a better little by little (but still not recovered).
Seems off to me, that somebody would have a direct benifit from the diet. Most people I met did not have this experience.
This is all very new for me and your video is totally what I needed. I have a question- how do you recommend answering someone when they ask how you are doing? I am tired of complaining, but then when I lie and say I am good they expect me to be doing more or hear I have a cold/flu again and really don’t get it. Also, do you do coaching?
Hi Kristin, I'm so glad you found this helpful. And that's a really good question. And a tough one! It can be draining can't it to have to try and keep explaining this to people who don't get it. Personally I've found that talking too much about my health struggles and my symptoms is not helpful so I try to avoid it. I'd usually aim to give some sort of generic answer that acknowledged I was unwell but that didn't sound overly negative. Something along the lines of "still facing some health challenges but working hard to get past them".
I suspect that we each have to find a way to deal with this that sits well with us. What feels right to you?
I did a video where I shared more on this if you're interested in checking it out: czcams.com/video/UQCiI6uwxfc/video.html
I hope you find a system that works well for you and sending you virtual hugs for your health journey.
(Oh, and currently I don't do health coaching but it is kind of you to ask!)
Hey Raelan, I've been watching your videos for awhile now, I had no idea you were from Edmonton ☺Greetings from YEG. Keep up your wonderful content. I especially enjoyed this one ❤ Much love, Alina
Sending much love back to you, Alina! ❤️
Gosh thank you :) x Second round of this for me....one year on and such slow going :(
Elle, I'm so sorry to hear that. Hang in there, so many people do fully get past this 💛
@@RaelanAgle thank you x
Thank you and BLESS you ❣🥰
🤗
wow ! I needed that. Do you know if covid long hauler have tried this with success?
Great video. Thx for the great info. I have had my symptoms for 18 months, and been to lots of doctors with no answers. I can't work or drive or etc and it's been devestating. Just heard about ME/CFS recently, so I feel like I'm on "Day one" now. What type of specialist can I see to get diagnosed?
I'm so sorry to hear that. I got diagnosed by an integrative medicine doctor, but I think people see all sorts of doctors for this. Wishing you all the best in finding your answers 🙂
People need to understand how powerful mind/body is!
You’re mind can
Literally make you feel alll these symptoms ! You have to fix the mind to fix the body
True. I know mental and emotional stress from abusive relationships triggered my breakdown. Add to it toxic work environment. Too much chronic stress.
Thank you for this video. 2021 brought me to the point of physically breaking.. Looking for answers for this very issue. 46yrs old and the reset button has been pressed (didn't ask permission) but I pray to find my answers...♥️
I'm so sorry to hear that you've been dealing with this for so long. I hope you find all your puzzles pieces and can finally put this all behind you soon ❤️
Dear Raelan, your videos are incredible. I was diagnosed with ME/CFS yesterday and doctor said there is no cure for this illness. But when i was looking at some of your video, it gave me a lot of hopes to understand. I am from indonesia😊🙏. Does your book available in indonesia?
Hello! I'm sorry to hear that you are facing this. But there is definitely hope! Many people do recover. Where in Indonesia are you? I lived in Jakarta for two years and loved it ❤️ Unfortunately I don't think my book ships to Indonesia, but you could get the Kindle version and download the free Kindle app on your phone or computer 😊
Thank you for these videos! I was thinking I can't be this lazy, and why my body hurts something is wrg..I didn't talk to anyone I googled n I found your videos Thank you Thank you
You're so welcome!
This was a wonderful video, one I wish I had found 19 years ago when I got sick! 😊 I agree with everything but the diet part. For me I have tried many different diets and never noticed that much difference. From being vegetarian 13 years, to vegan 6 years, and now I'm trying some animal products since March. Can't say that I notice that much difference unfortunately... but everyone has their puzzle pieces, for me the biggest have been working on emotional trauma and so on. Hopefully I'll recover fully one day ❤
Hey Bex! I'm so glad you enjoyed the video and thanks so much for taking the time to share a bit of your experience. I think you've highlighted such an important thing - that each of our experiences are somewhat unique and not everything is always going to resonate. I think it's so important to be able to recognize that and know that things that were impactful for others won't necessarily be a huge part of our own experience. I am wishing you ALL the best with your own journey with this - I hope you are fully recovered one day soon 🌷
@@RaelanAgle very true ☺ Thank you so much, and thank you for making wonderful videos, I've watched a lot of them now! ❤
Look into building up the probiotics in your gut.
@@princesswarrior6945 I've already done that many times, different types etc, and now I'm having sauerkraut instead every day. Not noticing any difference with probiotics unfortunately 😊
@@rebeccaledam7544 I'm sorry to hear that. Don't give up.
Do you pray? I've been looking into neuroplasticity and I believe its of the utmost importance to take care of the mental side when things are so chronic.
My faith in Jesus has really pulled me through the valleys.
Some wise words indeed 😁👍
Thank 🙏 u. How come u care but I have been to so many doctors, acupuncturist s, nutritionists who could care less but boy do they want a couple hundred dollars! Helpful liked it.
Hi Christina! I'm so sorry that you have had so many expensive and unhelpful medical professionals in your journey. I suspect that those of us who have personally faced this illness have a bit more empathy. Thanks for the feedback and I'm so glad to hear you enjoyed this video and I hope you find the support you need soon!
2 years update:
The only thing that truly made a difference for me is taking cold foot and arm baths daily for 2 minutes. I now have little energy, but haven't felt beyond exhausted since the beginning of the hydrotherapy. I can even do some daily exercises and go for walks. While before, 15 min of reading would make me exhausted for the rest of the day/week. Maybe this will help someone.
Regarding the mental health. I've been giving my body lots of daily rest (most of the waken hours) for the past 5 months, and can see small improvements in exhaustion level and muscle pains, but mentally I feel significantly better. I don't have the overwhelming worries and thoughts that I'm good for nothing. The fact that I'm still renting at 34 nor have a car doesn't crush my self-esteem anymore. So, I thought to myself that my body is repairing the most important thing first with the little energy it got from resting, and the fatigue will be taken care of after that. I hope that's the case.
I appreciate you taking the time (and energy!) to share a bit of your health journey. It's nice to share these stories and know that we are all not alone in this ❤️
The problem is that litterally no one will know immediately that he has ME. I only got diagnosed with it after 5 years because I did researches and discover it exists.
Yes it's a slow diagnosis for many, unfortunately. But not all - I was diagnosed in within about 8 months 😊
Hi, thanks for sharing this. When I first knew something was wrong 7 years ago, I had had a really bad virus and noticed no matter how much sleep I got, I was still exhausted which was new for me. It’s just been getting worse and I have 17 off the 20 symptoms associated with CFS. The problem is getting diagnosed! The doctors keep telling me I am fine, I just need rest. My rash and other skin problems are that I just need the right lotion for my “dry skin”. What are the magic words that I can say to a doctor that will get them to take this seriously? I can barely function. I really have to force myself getting out of bed, walking my dog, doing dishes etc. Any advice on how to get a diagnosis?
Do you have any guidance around what best diet to follow ❤
So.. what if your 80 and have just discovered what you've been going through for the past year is , that being ME/CFS. Almost every aspect of my life is different th
an it used to b. This illness is only one
aspect. Seems quite daunting to me. However I WILL NOT GIVE UP. Challenge can be an opportunity for growth!! I say the same for all of us. ❤😊
Is there a diagnosis fir this or is it something that you think yiu have and try to fix it.
Danke!
Thank you so much! ❤️
How do you define fully recovered?
Do you mean 100%?
Your fatigue disappeared completely? And never came back?
Hello can you elaborate a program for Whom who want to be healed
Hi Reda, it seems to be a different for everyone. But I share lots on this channel in terms of options ❤️
You covered a lot. Every thing you said it is true.
There is a slow progressive form of cfs /me.. It starts on teenegers age..
That it is much more difficult or nearly impossibile to go on remission.
And it is not good for them to keep thinking that they are going to heal. Instead to accept their condition would be more relaxing.
Don't you think so?
Hard for me to comment - I've interviewed people who recovered after many decades, so personally I would want to hold on to hope for recovery 💛
@@RaelanAgle Thank you for your inspiring hope you put in people with CFS.
Maybe soon very soon, my 27 beautiful daughter will be next testimony at your program! 😔💔
Why do we react badly to some foods? Is it the nervous system or the gut? Sometimes, all it takes is one "wrong food," and my symptoms flare up.. can thinking differently about food change that? Maybe stop seing them as a threat or we just eliminate foods that seems to trigger us?
TIMEBLINDNESS Impair. Disability. Causes bad behaviors. ALWAYS LATE. ALWAYS causing people upset.😢😢😢😢😢
What is your madicin
so i watched all your videos with parts 1-6 while stretching, and at the end , did you ultimately just relax and not work? and stop pushing
Thanks for watching, Snapcracklefizzle! When I finally did recover I quit my job and spent about 2 years almost completely focused on my recovery. I'll share the video here where I sum up what ended up working for me. The video is a bit long but you can skip to the end where I share what worked for me (the first half or so is just me summarizing my whole journey with this). czcams.com/video/2Zvc_YUvWPY/video.html
What did you eat at that moment
I am smack dab in the middle of a flare up and I came to You Tube to find motivation. I’ve watched a few videos here and it feels gimmicky and disingenuous. Perhaps I’m not mentally ready to accept all that’s being said but it just feels like a sales ploy.
To others struggling with this monstrous diagnosis, I pray you find your way through her tools/resources or your own way.
Here’s to healing and feeling better.
❤️
How you caught chronic fatigue
For me it started with a bad flu, but I believe it was a variety of factors that ultimately caused this.
💐
❤️❤️❤️
I have CFS and much of what you said rings true. However, you’re sending a very mixed message when you say “this is definitely not your fault.“ And then you follow that with all the things we’ve done to cause this.
How responsible of our own fate are we if we weren’t aware of the consequences of our actions. If you do things expecting good things in return and bad things happen, are you to blame to chasing after positive outcomes?
Hi Raelan, was your CFS triggered by a virus?
Hi Eric, yes, to the best of my knowledge it was. It started for me with a bad flu, and then shortly after I had a flu shot that might or might not have intensified my deteriorating condition.
Some of us are alone. Completely alone, without family or friends. And we can not afford a couselor, especially not a useful one. I can barely afford my food. So in that sense I think it is somewhat irresponsible to tell people they can most certainly not do it alone.
❤️❤️❤️❤️❤️❤️❤️❤️❤️
❤️❤️❤️
I been suffering so long (decades) that I have just given up. I only can manage
it. Recovery seems impossible for me.
I’m so sorry to hear that you’ve been facing this for so long ❤️❤️❤️
Do you have any success stories of people with a dramatic viral onset? I'm nearly 8 months into longcovid and can't even manage a walk a day, I used to be an athlete /bodybuilder with a successful career and right now Im CEO of laying in bed..
I'm so sorry to hear that you are going through this. My onset was from a very bad flu that initially had me bed-bound and definitely not able to manage a walk a day, so I empathize. Also many of the interviews I've done are with people who got things like glandular fever and then didn't recovery for years. I'll share the playlist here in case you'd like to check it out. Wishing you all the best with this and I hope you find what you need to put this behind you soon 💛
czcams.com/play/PLNX_MIJ_pJAa_wpF1y9p9acM3cn443B0t.html
Every point, each and every one…. my brain wants to scream…. No. Just “No”.
I’m not saying “No” to the truth of what you are saying. Not at all.
My “No” is basically…. different. There is something different about the functioning of the whole system.
Most people do not HAVE to work this hard to simply exist without suffering and pain.
Working this hard to simply exist without being “a productive part of society” aka someone who can self sustain financially or provide for other’s sustenance then you are not “working”.
Yes. People can recover themselves. But it doesn’t have to be “work YOU have to do”.
Find someone who bring love and validation and time and space, a healthy environment for you to recover. I don’t mean a nurse maid. I mean someone who brings into your life a kind of loving environment that brings back the desire to live life fully.
If the people or your environment brings into your life a NEED or DEMAND on you to sustain them and their desire to live life then that is work.
You recovers not because of what you did but because someone came into your life that brought a desire to live, space to recover, a loving touch that is primal, a partner, a live life partner vs a partner that drains your reserves and takes and doesn’t sustain.
TLC ❤. Just an opinion
Step 1, cry yourself a river. I am still on step 1.