Cystic fibrosis drug Trikafta helps most but not all with the deadly genetic disease

The cystic fibrosis drug Trikafta helps roughly 90 percent of people who have the deadly genetic disease. The drug enables patients to live a healthy life, start families, and think of a future. But for those left in the 10 percent, for whom Trikafta does not work, the daily struggles of living with a chronic, terminal illness continue. “Waiting for Hope, Fighting for Tomorrow” explores the lives of people at opposite ends of the spectrum: those who are benefiting from the drug, including young children who will escape much of the damage that CF causes, and those still waiting for their “miracle drug.”
Full story: bit.ly/45Vk1Ob
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[@ShehnaazS-hq5cu]

Gabriela and Emily you are our inspiration and our heroes. Thank you Martin and Dr. Yonker for your care, compassion and commitment to a cure. We at ReCode are right there alongside you.

[@jringo45acp]

I've been on Trikafta for 3 1/2 years, now. It helped me get back in the shape I was in wrestling in high school. I've been able to get back to work full time. It's been a miracle. I hate that it can't help everyone the way it's helped me. I haven't been in the hospital since 2018. I barely cough anymore, rarely get sick. I haven't done a treatment since I started taking it. Now I only take two meds, Trikafta, and Creon.

[@boula9994]

And all that is because the medecine works exactly on your genes?

[@pramohar_1455]

hi jrinog could you help me to buy this tablet

[@stephanieandlollipop5424]

Thank you Ela and Emily for being amazing CF spokeswomen. And thank you Boston Globe for the CF coverage. Let’s find a cure for 100%!

[@sonia15702]

I lift up all my friends who died of CF in the 90s even prior to pulmozyme here in Australia! Aija, Michelle, dimity, Adam, and Jenny ! I loved you all .
Sonia x

[@Noah_-_l]

Thank you for documenting the the progress made and the strides still needed to go to cure this disease for all.

[@UNITEDWEFALLthemovie]

My daughter just got it and she’s 2 years old

[@proximacentauri8038]

trikafta can cause heavy mental aberrations