My Dancing Eyes - Living With Nystagmus (Nystagmus Documentary)
Vložit
- čas přidán 6. 09. 2024
- My Dancing Eyes explores the challenges and lived experience of living with Nystagmus, a visual impairment.
Nystagmus has an incident rate of one in 100 births.
You can also acquire Nystagmus later on in life from injury or related medical complications.
Matt Morris a vision impaired filmmaker from Newcastle Australia conceptualised the idea for the film in 2015.
Matt was unable to drive and didn’t know anyone else living with the eye condition. Frustrated by his circumstances he shared his experience online and was quickly swamped by parents demanding answers about what the quality of life might be like for their children.
Realising the need, and information Matt had on hand he decided to turn a negative into a positive and create a documentary that explored, empowered and connected people with Nystagmus.
Matt Morris | Nystagmus Filmmaker (Newcastle, Australia)
mattymorris.com
My Dancing Eyes Website:
mydancingeyes.net
Continue the Nystagmus conversation in our free online Nystagmus & Low Vision community.
community.myda...
Facebook: / mydancingeyes
Twitter: / mydancingeyes
Instagram: / mydancingeyes
Production would like to thank:
Dylan Faulkner
Temara Heta
Sarah Potts
Steph Meyrick
Gabe Grace
Melissa Eastwell
Mitchell Catt
Hannah Hartley
Chris Davies
Justine Bessell
Hunter TAFE & Cert III Students
My daughter has nystagmus, so this was very cool for her to watch. To know that she is not alone. Thank you!
Hi Lisa, thats great to hear!
Great video. You did well making it! I am Molly, a 51 year old woman in America. I was born premature, so not only do I have severe nystagmus, but I'm also legally blind since birth. I can definitely relate to what having 'dancing eyes' is like. I get so tired sometimes, and I find it extremely difficult to look other people in the eye. I do not like to look directly at people.... it's very tiring for my eyes. A big hug from me in the USA. You made a wonderful video!
This is honestly the best explanation ever
I’ve always found it hard to try to explain it to other people teachers and friends and they are always asking whether the worlds moving around me, this is amazing!
Hi Chloe, thanks for the kind words, feel free to share with your teachers and friends! :)
I was born with Nystagmus and until today I couldn't understand my condition even after going for several eye tests. Now am about to turn 32 and just trying to find out from my own research that am not alone. Now I understand my condition but a very difficult life have gone through with it .
Thank you for this. I have congenital nystagmus and this was beautifully put together ❤
I am also. I am19 year old. I am so afraid of thinking my future. Can you please reply, I want to do conversation with you.
Thank you 🙏🏽 🤍
Thank you for the video! It is a very good explanation for a mom of 3month old daughter with nystagmus.
This is a great documentary Matt, thanks so much for putting this out there. Our 6 year old son has congenital nystagmus and this is very informative and helpful. All the participants are a great inspiration!
Hello my daughter has is too.. May I ask about his vision?
I'm worried about hers because she's a baby and I have to wait.
@@diesassi7558 strictly adviced to use spectacles. I am19 years old. I am also patient of that.
@@Hum483 hey we are at the doctors once a year. They check up her eyes..but until now, we dont need glasses
But thank u so much for answering
This is honestly great. I've had nystagmus since I was a baby. Interestingly, because I have a divergent squint in both my eyes too my nystagmus is very mild and only appears when I'm super tired! (Not gonna lie, that's more often than not. I like working too much oops). I wish there was more *no pun intended* visibility for the nystagmus community! Thank you for making this documentary! It's really fun to see how people describe it, and I think your speaker was right when they said 'It's like autism for eyes' because mine is a lot different to the people here!
Hey, thanks for the kind words and your views on Nystagmus. We have a free online community linked in the description you might be interested in.
Thanks for this. I constantly struggle to explain my nystagmus. But this documentary will help and maybe help other guys to understand.
Hi
i m from bangladesh. I have nystagmus problem and i am in deep difficulties. Pls tell me how can i get treatment and survive me.
I would like to create a Live so we could talk about nystagmus, tell about our experiences, as well as we managed to overcome our limitations. We can combine the day and time, so I send everyone an email with the Live link to participate. What do you think of the idea?
Hi Lulz,
Thanks for your message. We would love to hear any thoughts you have or suggestions for future content via our main channels.
Please send us a message via the contact form on mydancingeyes.net/contact
Thank you!
@luiz what exactly is nystagmus