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Ask Dr. Julie: Dr. Julie Explains In Full Detail All About Nystagmus
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- čas přidán 26. 04. 2020
- Dr. Julie explains what nystagmus is, the different types, causes, resulted conditions, and how we treat it in our clinic.
Vision For Life Works is located in Glen Carbon, IL. We work with children and adults with various vision problems that affect their ability to read, write, comprehend, perform in sports or perform on the job. We utilize Syntonic Phototherapy and traditional in office Vision Therapy to correct these problems and improve quality of life. At Vision For Life, we strive to make every patient experience exceptional. We are very excited when we have the opportunity to dramatically improve our patients lives! Our motto is "Improving Vision Today, Ensuring Success Tomorrow". Take the Quality Of Life Questionnaire on our website home page to get started today!
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Copyright 2020, Vision For Life, Ltd. All Rights Reserved. Unauthorized copying, reproduction or republication without express permission is prohibited. This video is for informational and educational purposes only and is not a diagnosis. All therapy exercises should not be used without the proper supervision of a trained professional after a full diagnostic exam.
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I was diagnosed with nystagmus at a very young age but I know nothing about it. I grew up knowing I was different from everyone and i couldn't see as well as others but no one ever really told me why. Now I'm in my 20's and learning as much as I possibly can. Everything in life makes so much more sense. Thank you for videos like this ❤
You are so welcome! Let us know if we can help you!
I’m 21 and have it aswell and am slowly learning about what my parents always told me there was no hope.
@@alexschmidt2895 There is hope! Contact us today! info@visionforlifeworks.com
My daughter has it just 2 days ago and hers are like looking up and down kind of nystagmus im so worried and scared
Vision Therapy i am 27 from UAE i have congental nystagmus it can be cutr!!!! Pls reply me
My new eye doctor just diagnosed me with nystagmus a few weeks ago, but I've had symptoms my whole life, so he suggested it might be congenital. He was surprised that none of my doctors said anything before because it's so obvious just by watching my eyes for a few seconds. The main reason I don't play sports is because it's hard to track things, and it gets worse in the dark. I've gotten several injuries and am just clumsy in general because I can't track things and have trouble focusing on things. I'm starting vision therapy soon, so hopefully it will get better! Thanks for making videos so I can learn more about my condition! ❤
Great. Good luck!
I’m 53 with CN. You caught my attention. I have pretty much accepted the fact there’s nothing that can be done. At least that’s what I have been told my entire life. So I am very reluctant. Just concerned about making my situation worse. Right now I’m managing well. I believe I will give you a call.
Please do. We customize our vision therapy programs to each individual. We need to learn more about you specifically. We help people all over the world! Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
I was found to have nystagmus at a few months old n I've known no better mine moves side to side and I've never met anyone with my condition I also have had no operations for mine I chose not to to be honest I don't know why I didn't but its amazing to see all the people on here my whole life in my area no one has it but me
We help people all over the world! Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
Bruhh.. i also hv it, whr r u from?? I'm from andheri mumbai!!
@@swapnilbhirwandekar1466 I'm from the UK I live in a small area I know its obvious people will have it near me but I've met no one its a shame we don't live closer
Nice to see a video about it. Have it since I was 3 months old. Honestly, visually it never bothered me much, but in recent years (I’m 40 now), I do feel like my eyes have more difficulty focusing. People point something out to me and I can’t see it because my eyes tend to go everywhere except the point I’m supposed to focus on. Also my eyes feel a lot more tired, but that might just be an age thing. Looking at screens constantly also doesn’t help. I’m also much more self-conscious about it now than I used to be, avoiding longer eye contact with people. Oh well, it is what it is.
Hi Jaros. Over time just like other muscles the ocular muscles get weaker especially strained as in your case. It however does not have to remain that way. Imagine that if you lived to be 70 or 80 you’ll have to put up with it for another 3 to 4 decades!
We can help if you decide to change it!
Thanks for your comment.
@@visontherapy well, I live in Belgium so I don't know how feasible that is bur I'll check it out.
@@jarosbodytko6462 we work with people from Australia to Europe, to Asia so distance is not an issue.
First step is to schedule an online consult with Dr Steinhauer on our website (www.visionforlifeworks.com) to get a full picture of where you are and what is possible. There she can also answer any questions that are specific to you.
I have congenital, bilateral nystagmus, diagnosed at 6 months of age. My eyes move together in all directions. My vision is 20/40 in the right eye and 20/50 on the left. My hand eye coordination and depth perception are flawed, which affect my balance. My corneas are soft, which can cause migraines when I catch a flash of light or reflection. The shaking increases when I’m tired. My vision does not adjust quickly when looking up from my computer screen or a book. I can have fuzzy vision for 20 minutes after working on close work. To see best, I have to bend my head down to see at the top of my eye. This will give me an RBF effect, especially if I’m concentrating. This really unnerves people. I find that to listen well I need to look down or bow my head down so my eyes don’t distract me. I can drive, but only surface streets and mountain roads, no highways or freeways. Reflections get to me badly. With all this, I know that my incidence is mild and others with this are legally blind. I am not. Thank you for answering on this topic. Happy New Year!
You are welcome! We are happy to work with you to resolve this anytime!
Happy new year!
Welp, now I know why my aiming sucks even though I've been trying to train my aim.
Thank you! I'm a COVID longhauler (nurse) from March 2020 and was severely oxygen deprived, left home to stroke, seize and I had no help. It was AWFUL. So many trips to the ER,911 called by many of my doctors, only to not be admitted. I'm undergoing hyperbaric chamber, and been on Ivermectin for cereal months now, along with a local holistic nurse practitioner and nutritional chiropractor, but man this is difficult. Neuro sent me to opthamoligist who sent me to a neuro opth who I'm seeing later July. Optho said optic neuritis or nystagmus. I used to teach zumba as well. It's all so debilitating because my brain and eyes don't feel attached, and everything is in slow motion, for some one who was a type A extrovert energizer bunny.....so this is a big rough. I had a LOT of neuro issues. I did a short stint with Fluvox per the Americas Frontline Doctors who are awesome in helping those of us who really want to know what's going on, and not just push a shot ("vaccine") that is further from healthy. Anyway, anything you add would be appreciative. I see black spots in my right eye (both were so burry from the start of the infection after the pneumonitis, and it went into inflammatory storm), and can't move my head fast at all. I can't look at too much stimuli like items on a shelf at the store. I was dizzy for over a year (until I met Ivermectin, Fluvox and now the hyperbaric chamber). No more blurry vision but the right eye black dots still there and it's only when I move my head - side to side or up and down. Not at rest or in one position. My first thoughts were that exactly...MS, GBS, etc. I never got the flu shot, nor will I get the COVID shot. I still have positive antibodies and even if I didn't, I'd not. Anyway, any information to share would be great. Thank you! And THANK YOU for speaking about your seeing this secondary to 'vaccines.'
Oh my you sure have been through so much. Praying for your fast recovery.
I had bad cerebral stroke developed dioopida and nystagmus limbs fine through
Thank you for the best description of this I've found💜🙏
Thanks for finding it helpful Michael 🙏
@@visontherapy it's a great channel which I've subbed👍 You also responded the other day re your myopia video when I said I was in the UK and it was a shame I couldn't use your services. But you said I still could set up an online consultation 💙
@@michael5089 yessir. You are remembered. Just thought it nice to acknowledge this comment also.
THANK YOU SO MUCH! I have strabismus and i didnt know why i had nystagmus
I had it since I could remember. The eye doctor never to me and my mom what it was called. None tried to treat it. But they gave me glasses and said it would help.
We are very successful with our programs!
I have severe congenital nystagmus. 2 years ago I still could drive with it because one of my eyes is practically not affected but the right one is getting worse, I'm 23 now I've seen so many surgeons but my parents won't pay for the surgery because they're too scared and me being a student it is hell to study with this condition
We are sorry to hear this. However, we help people all over the world. Even after multiple surgeries. If you are interested, please email us at info@visionforlifeworks.com as well as take the Quality of Life Questionnaire located on our home page. www.visionforlifeworks.com
same here😭
How much does it cost ?
Thank you for this information!!
Hi Marilyn, thank you for watching and commenting!
I'm curious, why do you think it is so much more common now than it used to be??
Dctr jully it's very nice video thank u so much
Great video. Thank you
Glad you liked it!
I have nystagmus and i was in my college varsity basketball team. I was also in a soccer academy when i was 10-15 years old. Im 24 years old now and i can drive and live a normal life. I did perform a surgery when i was young though. But its still there and it occurs mostly when im nervous or focusing on something. I dont wear glasses nor contacts ( although i should) and its unfortunate that i have it :/ but thats life guys, dont ever give up ❤️
We can still help you if you are interested, but we need to learn more about your condition specifically. Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
Plz from where u got ur surgery done
Reply plz n let me know tht did u got LASIK surgery done for nystagmus I mean at what age u got ur surgery done n frm where how come u manage without glasses what type of nystagmus did u had plz replyy
this started at a construction sight years ago... I did not have ear protection and upon leaving the sight and driving home when I got out of my vehicle I stumbled off to the left 20 feet . For hours my eyesight was like a stuttering film traveling up and down but jumping up to the top over and over. Today after lawn mowing without ear protection I 'm dizzy again and eyes are going horizontal. I definitely have fluid always inside my right ear as I play drums 2 hours daily sometimes more. When you talk about the eyes I am a monocular vision candidate where as I can make either one in charge but they never work together especially under stress. I find less noise and less movement until it subsides the only answer. Always felt playing soccer was a good practice for depth perception skills and I imagine head trauma could be a factor as well....pretty sure it's fluid as I hear it move when drinking coffee or laying down after drumming. Usually blowing my nose always clears a lot of it and sugar manifests more fluid is my observation.
You may want to see your doctor as well. Just to be safe.
I got Acquired Nystagmus from being B1 deficiency 5 years ago. It is so debilitating at times, I can’t drive, some days I walk like I’m drunk. I take Klonopin and I don’t see it helping to be quite honest with you. I’ve tried many other prescription medications and they just make me feel worse. I’ve done VRT twice, it really doesn’t help me since mine comes from the central nervous system and not the vestibular system.I barely can even read, it will trigger more dizziness/vertigo. Any help is greatly appreciated.
We customize our vision therapy programs to each individual. We need to learn more about you specifically. We help people all over the world! Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
Hi Linda have you found anything to help?
Why are you NOT TAKING B1? Nystagmus from a B1 deficiency is corrected when you take B1... if you still have it, it is not from a B1 deficiency... just sayin
How are you doing now? Your symptoms sound similar to mine.
Iam 19 year boy iam also suffering from this problem please give me best suggestion my vision is not good 😪
Hi Rajat, it requires professional help and treatment. The great news is that we work with people from all over the world and can help you if that is what you choose. Thanks for being here!
I had a brainstem stroke. If it was not for an eye 5 i could deal with rest
I am really interested in how the treatment works. I am 27 years old and also have secondary albinism.
I have always been told that nothing can be done to improve my nystagmus and my vision. I am from the UK and I think there hasn’t been enough research done over here. I am also unable to drive due to laws here which is very frustrating. Could I contact you to discuss further?
Absolutely! We help people all over the world! Please take the Quality of Life quiz on our homepage and one of our therapists will be in touch to help you. www.visionforlifeworks.com
When I cover my left eye I can read better out of my right eye.
i think i have a nystagmus that moves side to side. it’s induced by stress and it’s acquired. it’s hell to try to study or drive with it, and i also have some nerve pain especially in my medial nerve in my carpals that was originally thought as carpal tunnel. i think they might be connected. i’m thinking guillian barre
We need to learn more about your condition specifically before we can say either way. Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
Hello Dr Julie, Iam 53 year old man and have congenital nystagmus which has also wrecked my confidence and life so as to speak. Although I can drive but at night it’s a bit difficult because of my poor myopic vision. But my real problem is the null point of the compensatory positioning of the head, which may be appearing very abnormally placed or funny as almost all who face to talk to me have laughed on my face and it sinks me and it happens only when I talk animatedly.
Secondly my social life is a wreck because I can’t fix my gaze to my left as my eyes begin to oscillate and head begins to wiggle and jerk like a marionette. So I try to avoid looking to my left instantly which have made me lose friends who think Iam haughty ,arrogant and disrespectful .
Also I can’t pick or identify familiar faces of people waving from inside their cars while driving as I can’t see well through their windscreen so I naturally will ignore them but I can’t pick or decipher their acknowledgement at all !
Thirdly whenever I speak to a woman she always tends to cover or adjust her neckline or cleavage be it in a blouse shirt or anything thinking I peer into it when I do nothing of the sort it’s only my null point and head positioning which gives the impression and out of shame I don’t disclose my problems.
Is there any hope? My self esteem is crawling at the moment.
Fourthly Iam cannot play a sport well because hand eye coordination is dismal.
Please can you help me?
We are sorry to hear this. We would love to help you, but we need to learn more about you specifically. We customize our vision therapy programs to each individual. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
Interesting video. Thanks. I wonder if nystagmus can be also caused by neurological infections, such as parasite or bacterial from tick bite gone neurological? If I have this, I acquired in my early 40s and it’s pendulum, but only with both eyes closed when trying to sleep. Would that also be called latent?
It is possible!
Mine is up and down bouncing and affects my sleep as well. I thought no one else had sleep problems from this
Nice video
Thanx
Most welcome Amandeep!
I have congenital nystagmus. Had strabismus too but my null point was corrected. It really sucks
We help people all over the world. If you are interested, please email us at info@visionforlifeworks.com as well as take the Quality of Life Questionnaire located on our home page. www.visionforlifeworks.com
Can you please help me....I was born with nystagmous and I'm far away from your country its like a whole different world for me I duno if I will ever be there for my treatment...I really want to be normal like everyone else please make videos like what therapy treats nystagmous and exercises for reducing my condition. I'd be really be thankful❤
We are sorry to hear this. However, we help people all over the world. Even after multiple surgeries. If you are interested, please email us at info@visionforlifeworks.com as well as take the Quality of Life Questionnaire located on our home page. www.visionforlifeworks.com
Thank you so much!❤
You're welcome 😊
I have nystagmus but had surgery to keep them from moving. My eyesight is still very poor and I really wish there was a fix to this
We need to learn more about you specifically. Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
Did the surgery work? Did your eyes stop moving? I really want to get surgery.
I have nystagmus on my both eyes when I look to the left and I have strabismus, I am 35 years old I live in Kansas City Missouri how you can help me I am suffering all my life thank you
Hi there this falls squarely in our wheelhouse. However the first step to see what is possible for you is to have an online consultation with Dr Steinhauer and fortunately distance isn’t an issue as we have patients from all over the world.
During the consultation Dr Steinhauer will gather the specifics of your case and deliver an assessment of if we can and what program would be ideal to help you.
To schedule a consultation please visit www.visionforlifeworks.com.
Looking forward to seeing you on the schedule!
Hi,
I found this video very useful. I need to know more about the patient with such condition.
I need to connect with such people inorder to know about their experiences and what they did in different situations.
Furthermore, I want to connect with you as i'm seeking for more information.
Are you a vision specialist or doctor?
I would like to help you.
I also want to connect with people who have the problem of nystagmus as i am also experiecing the same situation
Hello ma'am I'm from India and I have been high myopia and nystagmus I have to difficulty in sun light when I walk in sun light my eyes are not stable they are commonly move
So how to treat this problem
We customize our vision therapy programs to each individual. We need to learn more about you specifically. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
Realizing all the times my mom would get mad at me as a child for being clumsy and boisterous was just my nystagmus…
Yup. They don’t know what they don’t know.
I wish someone would come with a solution.
We have had great success treating this condition. We help people all over the world! We would love to learn more about her. Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
@@visontherapy 149 is a huge amount as it is 10000 in indian currency 💔
My child is just 7 months old and he is diagnosed with Nystagmus, Can you please help as i am very worried about my child.
We would love to help you. Please email us at info@visionforlifeworks.com so we can put you in touch with one of our therapists.
Myself and both my children have nystagmus I wanted to reach out and say it has not held us back and your child can have a full and happy life 🤗😘
@@tracymagowan2652 hello both my children were born with Nystagmus. Is there anything that you or your children have found to help your Nystagmus? Do you wear glasses or contacts? Please share anything that you have found helpful. My sim wants to have a surgery to help his vision and Nystagmus, but I am scared to death of him having any surgery.
I have this an for years I tell Dr's an there like 🤷🏻 I'm like really
Many docs are not familiar with how to deal with it. But we can help whenever you are ready.
I think i got it from my mothers father, genes whatever yo call them i forgot
Question- My son (now 3 years old) was born at 27wks, 1lb 6oz. He had some complications including brain bleeds that may have affected his visual center in his brain; also had Retinopathy of Prematurity which did resolve without treatment. He started with horizontal nystagmus around 5 months of age. Would this still be considered congenital? Or acquired since it is possibly/likely due to complications of prematurity?
Usually congenital is believed to occur within the first few months of life, however, the case could be made for an acquired nystagmus due to the brain hemorrhaging. We would be happy to help - please fill out the Quality Of Life Questionnaire on our home page so one of our therapists can be in touch. www.visionforlifeworks.com
Can Nystagmus person able to do medical course ? please tell me mam
We are not sure what your question is....
cerebellum stroke is another aquired form of nystagmus :)
Correct!
I think that I have nystagmus and it came last year and I’m 16. I’m really anxious that it could be a brain tumor now. It only lasts for about 2 mins and I’d say it happens once or twice a week. I think I will book a doctors appointment.
Yes - please see a doctor. After you do, we can help with Vision Therapy. Please visit our website at www.visionforlifeworks.com
Mine only do this when I read or paint my nails. When I’m focusing on something small, but then it stops?
Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
What is the photosyntonic That you mentioned ?
I hope I spelled it correctly if I didn't please write the correct spelling of it additionally to the explaination of it.
This video explains it really well. czcams.com/video/O526xQk0CNE/video.html
my daughter is born with nervus opticus hypoplasia and she also has nystagmus. She has some vision at her right eye but is completely blind on her left eye. Is it possible to treat it with her condition?
It is hard to say without knowing more about her condition specifically. However, we have great success treating this condition with vision therapy! We help people all over the world! Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
Can cluster headache or migraine cause nystagmus? I've had a cluster headache attack today, but I woke up with nystagmus this morning and the CH attack was this evening and now the nystagmus is worse. My eyes is moving in sideways motion towards the right, but my CH is on the left side always. I have not been to a neurologist since 2019 and I get no medicine for my CH, but lately I discovered that Voltaren diclofenac is making the CH attacks shorter and not that painfull. I have had CH attacks every other day or more for 3,5 years and have been commtted to hospital twice for this as they thought it could be a stroke. The last time I was in hospital is exactly 4 years today, I remember this as I had to leave my unchles 70th birthday and go to the E.R and was put into the hospital for observation over night, but they didn't do anything other than giving me medicine for migraine, it was incetion Imigrane that was supposed to shorten the attacs or something, but it only made it worse as I took the incetion and my face got so swollen I couldn't breathe and I had to go to the E.R to have oxygen for treatment. I later got oxygen at home, but it didn't work so they didn't give me more and since then I have not had any medicine other than Imigrane tablets that I think might have made me have triggered more attacks as when I didn't take the medicine anymore as it made me nochious I also didn't have as many attacks, it now lowered from up to 8 attacks a day to approximately twice a week, but then it got worse again and in 2019 I had attacks every day except June, and in 2020 I had attacks approximately 3-4 times a week but with several attacks the same day at the same time starting at 1-2 PM to 1130-12 PM sometimes. The attacks last around 1-3 hours each. Today the attack stopped after around 25 minutes but the nystagmus is still there, and the numbness in my left eye and cheek. I have a eyelid that decides to close by itself when I have CH attacks and my eye drips and my left nostril is stuffed and runny too but this stopped when the attack stopped and my nose and eye stoppes rinning when my eyelid opens usually when the attack stoppes. Sorry about my English grammar, I'm Norwegian. I forgot to mention I am a 44 year old woman, my picture is from 2016 so it's old. I have been wondering if it could be MS as I also have urine retention or incontinence every time I get a CH attack and now I also have urinary tract infection, which I have had chronically since I was 2, and it have some of the same symptoms, but the urologist can not find anything wrong with my kidneys or bladder that causes the urine retention and that is why I think of MS as I also have had numbness in my legs and arms and double visio, but my eyes seems to be fine according to the eye specialist. I was also sent to a psychologist as they thought it might be just me being crazy. The psychologist didn't find anything wrong apart from my already diagnosed ADHD since childhood, and Fibromyalgia since my early teens, I also have Menières disease so it could be one of those conditions causing my nystagmus also. I'm afraid to tell my doctor as he might take my driver's license away, and I really need to have a driver's license to get around as there is no bus or anything as I live outside the city on the countryside and can not afford to move. I know when I get a CH attack as I can feel it in my eye a few hours prior to the attack and I also get a bit moody and hungry and can not look at flashing lights like on TV when the pictures shift fast or watching programs that has flashing lights and I also react to loud sounds the day before, so it's really no danger for having an attack while driving, I never had one coming while driving and my first CH attack was in 2012. The pain is so extreme that I couldn't drive if I wanted to either, I would have to stop the car. It usually takes ten minutes from the start of the attack to it reaching it's highest pain level, so I could easily have stopped anyway.
The cluster headache does not cause nystagmus. Please see a neurologist ASAP.
Hello my name is Dile I suffer Nystagmus I would like to talk to some one please I’m from Michigan
We help people all over the country and the world! Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
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I had nystagmus for like 1-2 days and now I’m ok is this a bad or a god ?
*Good
You should get checked out by a specialist.
@@visontherapy can it be a brain tumour (sorry I have Heath anxiety) can the symptoms come and go?
@@visontherapy sorry I’m super anxious
We have no way of diagnosing you over CZcams. If you would like our help, We need to learn more about their condition specifically. Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
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57 years of nystagmus from birth. Had a vision therapist tell me few years ago that therapy could potentially help, but there was a risk of developing double vision from the therapy. That naturally put me off, as the last thing I want is my 20/500 eyesight to get any worse. Thoughts?
I have ocular Albanism with nystagmus. I can’t drive and I am also clumsy. Would like to speak with you.
Great! Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
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My 7 years old child has it by the two months of age
We would love to help you, but we need to learn more about you specifically. We customize our vision therapy programs to each individual. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
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Null point vs eccentric view explain mam
Null point in nystagmus is the point a which the patient has the most ease or comfort and sometimes that point can be an eccentric one ie a weird position.
I have duagther 8yrs old now she diagnosed nystagmus fron inborn and she is 8yrs old now can you help me from Philippines thanks
@@JorahmaeLamodin hi there, it is very likely we can still help. Please visit our website at www.visionforlifeworks.com and schedule a consultation to speak with Dr Julie about her case. Of course it would be best if she is present also during that. Looking forward to seeing you on the schedule!
idk if this is related, but i notice that my eyes will move in a rounded triangle sometimes. it lasts a good couple of seconds, and my vision will go dark during said seconds. i was just wondering if this sounds concerning or not skfnnf
We would need to learn more about your specific condition since we cannot diagnose anything online. Feel free to email us at info@visionforlifeworks.com as well as take our Quality of Life Questionnaire on our home page so one of our therapists can reach out. www.visionforlifeworks.com
I’m living with nystagmus. Can I apply as Person with disability in our country?
Unfortunately, we do not know the answer to that.
Hi. Any recommendations for doctors in New York? In NYC or Long Island
We help people all over the world! We customize our vision therapy programs to each individual. We need to learn more about you specifically. Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
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I have been diagnosed with POTS Syndrome, dysautonomia, nystagmus, hippus and a number of other symptoms. Should I look for an underlying medical condition specifically for the nystagmus? I can't drive, have had trouble focusing on words for the past year or two and 'skip' words in the middle of sentences since the past year. Could some kind of condition be causing it?
Yes, you should look for underlying conditions. You want to rule out serious reasons why nystagmus has suddenly occurred for you. If you need our help with nystagmus, let us know.
Can myasthenia gravis cause this along with almost like my tongue is thick to speak correctly. Thank you 🙏🏼
Yes, ocular myasthenia gravis can present as a from of nystagmus.
I was born with nystagmus and I have a question. Does baclofen help to improve vision and do you recommend it?
Per Dr. Julie: I have heard of some doctors using this but I have no knowledge of any benefits for nystagmus.
Hello doctor could I ask you i have nystagmus from when I was a kid but after i being a teenager it's probably make me annoying. ,Since that my vision less pls doctor give me advice how i could be better or fix it nystagmus
Hi Naufal. Getting treatment by a professional is recommended. We can help if you desire. Thanks for your question.
Hello ,I have a very weird case , I feel like I have some type of nystagmus but not like everyone else that has this condition,... my eyes don’t shake all day at all , or when I have a conversation I’m completely fine with eye Contact ... my eyes only shake when I’m nervous or super tired but mostly when I’m nervous ! And Idk what’s the deal I’m so confused please help with this question
We need to learn more about you specifically. Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
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I think im going threw the same thing😩
Does it happen when u focus on looking at something like words
I have horizontal nystagmus, m 28 years old, I can't play cricket perfectly, what can I do?
We cannot comment on your medical condition without knowing more. Please visit our website to take the Quality of Life Questionnaire and one of our therapists will be in touch. www.visionforlifeworks.com
Can it get worse? I have a mild tic in my eyes when tracking right to left. It just skips once or twice. I have been experiencing vertigo, floaty issues. Mine is aquired so I'm still being diagnosed of the cause.
Depending on why you have developed nystagmus, yes it can change and even worsen with time. If it is a new development, it is important to be evaluated by a neurologist to determine a cause. After that, there are many steps that can be taken depending on the cause of the movement.
Hi, ive had this since birth but has never really affected my quality of life, i am 16 now and since june (so about 5 months now) ive experienced it a lot in my actual vision. and it really is affecting my quality of life quite badly and i never had that problem before june this year, im wondering why and what it is? and maybe its just because im in a phase of growing during puberty? id love to know so my mind would be more at ease thank you.
We cannot comment on your condition without knowing more about you. If you are interested, we help people all over the world and all ages!! We would love to learn more about her. Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
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Dr july i have nystigmas but i am situated in Pakistan so is there a way that you can help we with this issue
We help people all over the world, but we need to know more about your condition specifically. Please take the Quality of Life quiz on our homepage and one of our therapists will be in touch to help you. www.visionforlifeworks.com
@@visontherapy i took the test but no one has contacted yet
We get to emails as quickly as we can. Someone will be in touch!
Hi, my three month old son just got diagnosed for nystagmus. Do you think there can be something about it that can decrease it as he is still young and we can work on it to prevent it?
Hi there, Yes there is and you are better of doing so while they are still young and things as set as it will be the older he gets. I developed a program for infants and toddlers many years ago because I needed to find a way to help my baby boy. Since then, hundreds of parents have been able to benefit from this breakthrough for their infants and toddlers. Feel free to schedule a consultation to discuss his case further! You can do so at www.visionforlifeworks.com. Thanks for being here!
Wow
What if it comes randomly and not all that often?
You have to decide if you want therapy. We help people all over the world! We would love to learn more about you. Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
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I think I might have nystagmus.
But only my left eye.
Whenever I focus on something or whenever I am looking to something or even when I am looking to someone when I'm talking. I notice (also the other person) that my left eye is suddenly moving on its own while my right eye is steady or in focus (center).
If you are interested, we help people all over the world and all ages!! We would love to learn more about you. Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can schedule a consultation for $149 by clicking the link below:
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@@visontherapy If I wait for a therapist would it cost the same if I set a schedule?
Vision therapy is calculated based on your need, so yes.
Helo Dr. Julie, I'm not sure if I have Nystagmus. My eyes definitely move in bizarre, involuntary ways frequently. It's like you said when I look up or off to the side. People look at me like wow, why do your eyes move like that. This all started around 8 years ago and got gradually worse. I do it more when I'm stressed, anxious, tired, bored, or even excited. But, other than the fact I wear glasses and I wore glasses before this started. There is no problem with my vision. Does having Nystagmus always affect your vision? I also don't recall taking a vaccine or new medication around the times this started.
Typically nystagmus does affect your vision. We would be glad to help you get to the bottom of it. Please visit our website to take the Quality of Life Questionnaire and one of our therapists will be in touch! www.visionforlifeworks.com
Hi does it happen when u try to focus on something
@@firestyt3440 Yes
@@onepieceistheg.o.a.t8359 what’s your current situation? Any diagnosis or updates?
@@firestyt3440 Same situation, No diagnosis. I'm hoping cognitive behavioral therapy might be helpful to my situation. I have not started treatment though.
I have genetics nystagmus.. for the first time, just now im sufferring from dizziness .when i bend down... my head looks like spinning... sometimes when i walk look like im drank i cannot walk straight.....so i search on yutube how to treat this ...
We would love to help you, but we need to learn more about you specifically. We customize our vision therapy programs to each individual. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
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I really want to treat my eyes 😢
We would really love to help you. Feel free to visit us at www.visionforlifeworks.com and schedule an online consultation to discuss the specifics of your case and how we can help!
I had nystagmus first at 17. When I went to the eye doctor and get my script updated, it went away. It caused my to wake up every hour and have trouble sleeping. Then it went away completely. Then at 21 it came back. My eye dr was an idiot and and update my far away script but did not give me the progressive, the shaking did not go away. It goes through phases where it gets worse but it’s always there and affects my sleep. I got my script updated with progressives and a stronger script but it has not gone away this time. What do you think it could be?
We cannot diagnose over CZcams. We need to learn more about your condition specifically. If you are interested in our help - please reach out! Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
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Reading glasses are a game changer for this condition
No not true
Incorrect.
Hello. My name is Andy. I have a question. I’m 24 years old. I’m visually impaired and I have a shunt in place. I have nystagmus and I am almost 100% certain it came on after my shunt malfunction in mid to late 2013. Is there anyway I can get rid of my nystagmus? It’s only in one eye. (My right eye which is my dominant eye)
We would need to learn more about your condition specifically. We have had great success treating this condition. We help people all over the world! Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
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I have nystagmus as I was born with ocular albanism I’m from the UK but the doctors have always told me there’s nothing that can be done about it is this therapy helpful over a long period of time or are the effects temporary?
Yes it is, but you have to keep up with your exercises. Let us know if you are interested. We customize our vision therapy programs to each individual. We need to learn more about you specifically. We help people all over the world! Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
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I have a really strange side effect of my nystagmus, i feel is related. If I'm in a long hallway or a large open room like a convention hall or stadium i have a sensation of falling horizontally.. like my brain tells me I'm falling when I'm standing there. I can sometimes stop it by touching something stationary... Anyone else do this?
We help people all over the world. If you are interested, please email us at info@visionforlifeworks.com as well as take the Quality of Life Questionnaire located on our home page. www.visionforlifeworks.com
@@ranjitharanjuranj3831 oh thank God. I thought I was alone. It's caused such horrible anxiety all these years
@@ranjitharanjuranj3831 yea! I can't go into like Loes or Home Depo, or other department stores without having a severe panic attack. Im pretty badly medicated now for anxiety and depression for it now.
@@ranjitharanjuranj3831 actually yes I can do that. I guess different people different issues eh
Same dude :(
Can this treat with surgery?
We don't recommend surgery. We only use vision therapy and photo-syntonic light therapy in our clinic.
Does nystagmus cause lathargic feeling and unable to walk properly and body shivering
Please go to the doctor, these are symptoms from something else and sound more like a potential virus.
My eyes moves uncontrollable some times , example if I focus on some things. Is that nystagmus. Anyone explain me about this
We need to learn more about you specifically. Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
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my eyes does shake sometimes and i can make them shake, but i dont know really if i have nystagmus. do you know if it is nystagmus or just a normal thing that happens to anyone?
We would need to learn more about your specific condition since we cannot diagnose anything online. Feel free to email us at info@visionforlifeworks.com as well as take our Quality of Life Questionnaire on our home page so one of our therapists can reach out. www.visionforlifeworks.com
I feel my eyes moving when I close them. Is it the same thing?
We cannot diagnose over CZcams.We need to learn more about your condition specifically. Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
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Hello.l have nystagmus of born.l am very deep bad,what's way the nystagmus???
I'm from iran
We would love to help you, but we need to learn more about you specifically. We customize our vision therapy programs to each individual. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
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Hello Dr i am this problem can contact with u Dear Dr
And i am a Physiotherapist
Please visit our website for all contact information. www.visionforlifeworks.com
Hi Dr Julie, I'm wondering how strabismus can cause nystagmus? I can't find much info online. My condition is weird. I have oscillopsia all the time (even sitting still) but when I record my self the eyes don't dash. It only happens I'm watching something where the camera moves such as a soccer game. It feels related to my strabismus. Would surgery fix my problem?
Generally strabismus does not cause nystagmus. Usually nystagmus exists and due to decreased eyesight, strabismus will develop. In some cases, surgery can reduce the amount of nystagmus and in others, it may not change much. I recommend having a consultation prior to any decision on surgery.
@@visontherapy An update! I saw a specialist and she said I haven't got nystagmus. I asked her if strabismus caused oscillopsia and she said no. Is this also true? I thought it did!
Had a concussion 2 years ago and i got thia hoq can i treat myself
We have great success treating your condition with vision therapy! We help people all over the world! Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
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hey noww came across this video...i have a 5month old baby who was born with cateract in both eyes ,got them remove and is now in glasses😓but ive noticed his eyes moving from side to side 😭can that be cure or is that a life time thing?realy confused and worried...
We would love to help him, but we need to learn more about him and his condition specifically. We customize our vision therapy programs to each individual. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
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Please allow two business days for us to respond to accommodate all time zones. Thanks!
Hi Dr Julie I have a 10 month old son who has has nystagmus since birth I would consider it severe. He has been checked to see if he is a candidate for glasses but I was told no because his eye sight isn’t bad. Is vision therapy something that could help him?
Most definitely! We would love to help you, but we need to learn more about his condition specifically. If you are interested in our help - please reach out! Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
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How is yur son ...??? My daughter is 10 month nw.... Has nystagmus....
Does it get worse over time? I was born with nystagmus and I’m scared that it will become worse when I’m older.
Unfortunately, everyone's situation is different. If you are concerned about something specific, we encourage you to email us at info@visionforlifeworks.com. We help people all over the world.
I was diagnosed when I was five, it doesn’t seem any worse now that I’m forty nine. My case is mild as I can drive a car and I don’t usually notice my impairment.
I need help asap
@@seansantiago9616 Sean visit our website at www.visionforlifeworks.com and schedule a consultation with Dr Julie and we are more than happy to help you asap. But it all starts with a consultation to discuss your case. Look forward to seeing you on the schedule!
@@visontherapy ok I will now
Mam I have albinism nystagmus any exercise treatment am student I am very tense 🥺
We recommend you get therapy for the nystagmus. There is also a chance there are other underlying visual deficiencies present and that need to be resolved. If you are serious about finding a solution, please visit us at www.visionforlifeworks.com and schedule a consultation to discuss your case further. Thanks for your question!
Mam my brother is suffering from "BOTH EYES HYPERMETROPIC AMBLYOPIA WITH NYSTAGMUS" and he is now 22 years old please help me mam please I can do anything for my brother but My condition is poor. Please mam help me.
We would love to help him, but we need to learn more about him specifically. We customize our vision therapy programs to each individual. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
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Gaze center could you explain
Not sure what the context is as it relates to Nystagmus. Feel free to give more context to this question. Thanks.
@@visontherapy mam what kind of nystagmus is seen in left pprf lesion any idea on these topic mam..if there is squint extortion which side pt turn his head to correct it
My eyes just started moving horizontal rapidly about a month ago. But they only do it when I focus on an object or try to read. It had me very has nervous. I just started a new job and my benefits haven't started yet. Any suggestions on what to do?
We help people all over the world. Feel free to visit our website and take the Quality of Life Questionnaire on the homepage. One of our therapists will be in touch! www.visionforlifeworks.com
Hi any updates on your situation? I have the same thing
My dauqhter who is 5 y.o now is sufferrinq from the same rare eye disease calLed conqenitaL nystaqmus .. i dont know what to do 😔
My son who is 7 months oLd now .. dont know if he has the same condition or maybe im just paranoid ..
But i do think that he cant see us cLearLy ..
We help people all over the world, but we need to learn more about you specifically. We have great success treating vision problems associated with Duane's Syndrome. Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
I have acquired nystagmus
... because I have MS ..... so ms is the cause of my nystagmus when my nerve will be completely remylinated again the nystagmus will go away .....
We would love to help you, but we need to learn more about your condition specifically. If you are interested in our help - please reach out! Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
@@visontherapy thank you 🌹🌹🌹🌹🌹🌹🌹🌹💐💐💐💐
Hi! My congenital nystagmus story is very long. So, I’ll just ask- is this network familiar with the autism/nystagmus connection. Or the one with schizophrenia? If so, are you able to make referrals or proved resources to seek diagnosis from a specialist? I’m a 35 year old woman and I am only now learning how to advocate for myself, after a lifetime of trauma and disenfranchisement related to the vulnerabilities I have as a low vision person.
Thank you.
Yes we are! We help people of all ages all over the world! However, we need to learn more about you specifically. Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
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@@visontherapy thank you. I just filled out the questionnaire.
Hello
I had been diagnose with nystagmus but it's not from the birth i believe i want to get it treated as I'm an aspiring actor i am so underconfident while facing camera
Kindly do tell me
I'm from India. Though i have visited a lot of doctors they say it's not cure able
We have had great success treating this condition. We help people all over the world! We would love to learn more about you. Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY