Sudden Sensorineural Hearing Loss || How I Went Deaf In An Instant || SSHL
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- čas přidán 1. 02. 2022
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-Esli
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![One year after sudden hearing loss [CC]](http://i.ytimg.com/vi/S65wvgXuhsk/mqdefault.jpg)
I know 100% what you are going through. I had sudden sensory neural hearing loss in February of 2020. Steroids prescribed by ENT, no change. Lost basically all high frequency hearing. 24/7 high hisssss sound since then. Some days good, some days bad. I still could hear low frequency. A little over a week ago, it happened again to the same ear. After about 3 days, I could no longer hear anything in that ear. Audiologist showed that my low frequency hearing was in profound loss. Saw ENT, put steroid directly into ear, as you said. Had it done yesterday. Also prescribed 60mg oral steroid for 2 weeks with taper. Two more injections to go. Even after 1 day, I notice only slight improvement in hearing. But, it takes time. I am just praying everyday that God gives me strength. Tinnitus is nothing new to me, which is why its not as traumatizing as 4 years ago. However, because I can no longer hear in that ear at all, the tinnitus is more intrusive, and now I cannot hear people talking to me on my right side.
I know all too well the anxiety of the constant worry of " what if this happens to my other ear?". If it wasnt for tje fact I have normal hearing in my left ear, I also probably would have jumped off a bridge. It is a truly dark place to be, and people will never understand or sympathize because they dont have to hear what I hear.
I have suffered anxiety for a long time now, and I think anxiety is what destroyed my hearing. Stress weakens the immune system. When I had this happen again recently, I had a bad cold the week before. Maybe the viral infection attacked my ear again and caused this.
I cant stand noizy places, or big gatherings. I no longer go to the movie theater. I used to be big into cycling, but no longer because it makes my T worse. T has really changed my life and taken away the things I used to enjoy. Its my own personal hell because no one else hear it, except for maybe God..
Man I hope you’re good. I have been living with ssnhl for 7 months now where I’ve lost more than half my hearing in the left ear. I do agree that the anxiety is on a different level and it changes your life forever. I hope we all stay strong and believe that god will guide us and give us the help we need.
As someone who also has SSHL, it’s a fact that there is no way for a normally hearing person to understand what we go through, even with the vivid descriptions like you’ve presented in this video. I applaud your husband as I do my wife, and anyone who seeks to sympathize when they can’t empathize. Proactive support, understanding, and patience are more valuable than anyone can imagine. Mine came on August 20, 2018, going to bed with perfect hearing and waking up just as you described, ringing and feeling like my ear was stopped up. I went through all the treatments you described and my deafness is still profound in my left ear. Tinnitis (I describe it as a jet plane in my ear 24-7), sound location deficiency, lack of being able to concentrate in conversational situations, the imposing harshness of restaurants and other loud places, and more, are all a part of my life now. The one thing that I’m so thankful not to have experienced is vertigo. I think we all feel and experience SSHL probably 80% the same and 20% a little differently, but when you know, you know. I did get Phonak CROS hearing aids. For those who don’t know, my left hearing aid is simply a bluetooth receiver that sends the sound on my left side over to the hearing aid in my right ear. It helps, and I’d say gives me about a 20-25% more “spatial” experience. But, it’s nowhere near like hearing normally. And, they’re very expensive. Not everyone can afford them. I can tell you that now, after 5+ years of SSHL, I’ve come a long ways in just not thinking about it (tinnitus included) and being able to enjoy life. It is what it is. Yes, it’s still frustrating at times. Yes, in certain situations, it’s effects reveal themselves and I get down. But with the understanding and encouragement of my wife, and for me, faith in Christ as my true hope in life, I have joy. If you’re experiencing SSHL or know someone who is, it does get better. There is hope. There is light at the end of the tunnel for a life of joy. I would encourage anyone who has it to make yourself available to others. Especially at first, people need hope. They need to talk to people who REALLY understand what they’re going through. Think about it, even an ENT, unless they have SSHL, doesn’t really know. You can’t fully replicate it. Make yourself available. Esli is. I’m starting to now myself. Thanks Esli! You’re making a difference!
Worst part about hearing loss? Right when it first happens. After that, life gets better
not true
What a joke!
Your are VERY courageous for speaking on this. My son was JUST diagnosed with SSHL, and as is expected, is not dealing with this well. I, as his Mom, am grieving, as he is. He was doing an internship in another city not too far from here, and he developed what he thought was an ear infection. He did see a doctor about a week into it, but she thought that it was wax buildup, flushed his ears with water (although I specifically told him not to allow her to do that if it was suggested, he didn't listen). Thereafter, the hearing loss was quite profound. I begged him over six weeks to please come back home on his days off and see an ENT. He had seen them before, but not recently. He could have easily gotten a STAT appointment, but he was so focused on the internship and doing well there that he would not take the time to do it (and, it has to be said, that many young people literally do the opposite things that their parents want them to do, under the guise of being "an adult" and not listening to advice. I believe that he thought that I was nagging him, when I know how delicate the ear can be. He was unable to hear as a one year old because of fluid in the ear, and so he had ear tubes put in at 13 months, and so I know what a difference these made in his life and how delicate the hearing apparatus really is).
Anyway. he finally went to the ENT the day that he was supposed to return to university, and lo and behold, this hearing loss was SSHL and it was now six or seven weeks after it had first developed! We BOTH were heartbroken for the wasted time. A few days afterward, he had the needle procedure injecting steroids into the intercranial space where the nerves are (very painful) and he is scheduled for one more identical procedure in a few days, a week apart. It hurts me to see him want so badly to hear when he cannot. It also hurts me to know that I can do nothing. He is hurting one way, and I am hurting for both his hearing loss and the fact that my beloved child is hurting. We are broken hearted, each in different ways. As a parent, I am programmed to take care of my son. I can do nothing to help him now except be supportive, but I fear that this isn't enough. So, please, don't ever delay ANNY ASPECT OF YOUR HEALTH! When something isn't right, go get medical help immediately. Do not delay. Your senses, ANY aspect of your health is VERY precious...you can't always get some thing back again once they are lost. I apologize for the long story, but this is really the first time that I have been able to speak about it, since my son doesn't want to talk about it (embarrassment, anger, everything...). He is a wonderfully intelligent and hard-working young man who made a terrible mistake. Take care of your body---always, and best wishes to all who are going through this terrible situation. I wouldn't wish this on anyone.
hello Sheila I'm sorry to hear you are going through this. do you think if your son went to ENT on time they could have done something? my son just got diagnosed for mild/severe SSHL on one ear. he is 11
@@soniasamuel5228 First of all, I’m so terribly sorry that this is happening to your dear child. I hope you guys have an excellent ENT. My son went, even late, to the ENTs at West Virginia University, and after three procedures where they injected steroid in his nerve of hearing, he has reclaimed all but 10% of his hearing back. We count this as a tremendous blessing, because we weren’t at all hopeful. The doctors told me point blank that there is a 2-6 week window where they can SOMETIMES get the nerve to regenerate with steroid injects. My son was outside that window, but it was worth a try. However, know that it is painful and there is really no good anesthesia that can be used to make it painless (they use some, but it was worthless, according to my son). I hope that your son will get to have this therapy, if he hasn’t already. It truly made a difference for my young man, thanks be to Gos!
I am so glad your son got his hearing back. We live in the UK and my son told me about not being able to hear in his right ear randomly about 2 years ago. I thought nothing of if it because at the same time I had ear wax build up and i thought it is may be ear wax. Since then through covid long appointments i took him to the family doctor who referred us to ENT
Here in UK there is a very long waiting list so we waited almost a year to see ENT. The thing is I couldn't see the problem because his other ear works fine and was compensating for his right ear.
When we got diagnosed 2 weeks ago I was shocked and couldn't even ask questions. I was expecting to be told may be ear wax blocking his ear drum or something. WE WAS NOT OFFORD any treatment. I did ask but was told there is nothing they coud do except give him hearing aid. And now waiting for MRI scan
@sheila even if the injection is painful, it is worth a try. I hope we get offered thank you so much for your information. You gave me a little hope
@@soniasamuel5228: Oh my dear Sonia, this is quite awful. First, please don’t blame yourself. It was COVID and there was no way you could have known about this disease, and at that time, most probably no way you would have been offered treatment, even then.
This is a really tough call. Were I in your position, I would try to find a private ENT to give you a second opinion. I don’t know where you live in the UK, but there is a gentleman on CZcams called Mr. Neel Raithatha, an Audiologist in Leicester I believe. While that may not be close to you, he has a colleague whom he talks about often, a mentor of his who is an ENT that is supposed to be really good. I have no idea how much it costs, if it is even possible for you to attend his clinic or what. But if you check with them, research this man and have the funding, I would strong suggest going and getting a second opinion as soon as possible. To me, there is nothing more important that getting your son the best care possible, and now, you may have a second chance. Don’t despair. Check Out the HEAR Clinic in Leicester: +44 116 271 0777. www.clearwax.co.uk.
Again, he knows an ENT doctor whom he works with that is supposed to be very good. It also wouldn’t hurt, if you have the money and time, to visit his HEAR clinic and have a follow-up audiological exam. Please keep me posted, and I will sincerely pray for your son’s recovery. You may need to take this into your own hands. Best wishes, from one Mom to another. And PLEASE, don’t beat yourself up!
Thank you so much for sharing, I'm about 9 months in with total loss in my right ear ( except of course for the unbearable tinnitus which at times can turn into a deafening lack of sound ). I am also blind in my right eye and therefore have no depth perception, I also have fibromyalgia and chronic pain after falling through a scaffold 15 years ago which had already compromised my balance and cognitive abilities. I spent a good many months in denial until that turned to self pity, last week was a particularly bad week for me so I've decided to try and reach out and possibly help and be helped. I've tried to explain to others what it's like with not a ton of success, your description nailed it ( I cried through pretty much the whole thing ). I applaud your bravery and honesty, I'll ask my wife to watch it later. Again thank you for this video, I found it very therapeutic
❤ I'm watching now I want to understand.
@@pickledragonrebel Thank you baby
Thank you for sharing your experience of SSHL. This is still a very little known thing and most people have never heard of it. I lost the hearing in my right ear 20 years ago. My experience was that I was in good health, simply watching tv, when suddenly I hear a rushing well up in the right ear, and I feel sick instantly and the need to vomit. I try to get up and get to the toilet, but crumple to the floor, I had such vertigo. I crawl as fast as I can to the bathroom and vomit violently for what seemed like minutes. It was evening and over night, I threw up several more times. The vertigo persisted into the early morning and I decided I needed to call 911. I threw up yet again in the ambulance. At the hospital, (I still have bad feelings about this) the doctor who examined me, essentially shrugged his shoulders and sent me home. Nothing seemed to be wrong with me, in his eyes. So it was only after seeing my own doctor some days later, that I was sent to an ENT, who diagnosed me as having suffered SSHL. I had zero hearing in that ear, and that remains the case these many years later. I was off work for two weeks during which I had to learn how to walk with a missing balance center. Fortunately, I have not had tinnitus or really any other issues from that ear, and I have gradually grown accustomed to living with only one ear. I hope the medical establishment has become better informed about SSNL in the years since I lost my hearing. Stories like your YT video will, I hope, make this issue better known and understood by the public, too.
I’ve had a very similar SSHL in my right ear 5 years ago. After Goohlingvit, and found that it was considered a medical emergency but no treatment, I didn’t go to the ER (for the reason you ran in to…nothing yo be fone about it). Since then, I have experienced sudden bouts of vertigo and have learned how to go the Epley maneuver, which greatly helps. Check it out if you haven’t heard of it!
If it can make you feel better, I had the exact same thing, sudden complete deafness in my right ear with severe tinnitus and heavy vertigo for 3 weeks. I work in an clinique that specialises in eye/ ear/ face surgery, so I was very well taken care off straight away. I was hospitalised for 10 days, I had 3 steroid injections in my ear drum. I even had a experimental surgery with a professor where they’ve put steroid cotton straight in my internal ear… So I believe I got the best medical care I could get and nothing has changed, I’m still deaf in that ear, still severe tinnitus, the vertigo is gone though, my brain managed to compensate.
Sometimes to know that there is nothing you could have done to get better is kind of relieving. At least to me.
I have CROS type hearing aid that helps with tinnitus and hearing shadow, it’s not amazing but it imporoves my life by 30%.
This video literally brought me to tears. I know exactly what you feel, Ive been dealing with this since March 2022. This isnt easy, I have social anxiety as well. Im still hoping for the day to wake up normal again.
❤❤❤ June 2022 🙏🏽❤️ I still hope for that day as well 🙏🏽
Sending prayers
I had exact same thing happen to me 100%. I cried when u cried. I felt everything u did. When u said u were scared about losing other ear, i freaked out too...😢
Hi sweetheart! I so understand ~ everything you say could come straight out of my mouth~ I've been living with this little fun fact since 2013~ mine is left ear...total deaf within 3 days...I walked out in front of 3 different cars before I learned to scan everywhere I go~ thankfully the Vertigo has eased up these past 5 years~ at least I'm not holding onto walls anymore and I can still work 40 hour week job as a dental assistant ~and no we will never experience total silence again~ it is exhausting!!! but I tell you it does get more tolerable...It really does~ our new normal~ God Bless you and yours~~ and thank you
I’m now in my 3rd straight month of complete loss of hearing in my left ear AND vertigo (and of course the accompanying tinnitus) 😵💫😵💫
You made me cry 🥺😢, my daughter lost her hearing suddenly but she was just 5 years so she couldn’t explain this to me 💔💔💔 im prayed that Allah heals her, May Allah heal you all
Gosh I despise autoplay on CZcams. I wrote a whole comment and when your video ended it deleted what I was in the middle of writing you. I have musical ear syndrome and it is closely linked to my emotions. It is a very short loop that never stops and sounds like a choir of aliens singing underwater. I know several people with tinnitis and they tell me they have learned that intense emotions make the noises intensify. I have adopted many calming routines and distractions and I use white noise to drown it out. Somedays it works better than others. I do better when I am at work paying close attention to difficult tasks. I play CZcamss going to my hearing aid via bluetooth. It’s a godsend.
One good thing that has come from this musical ear affliction is that I have become adept at seeking out and using sound coping methods. Medications can worsen it. I avoid Advil and other painkillers as well as SSRIs as they can bring on days of no relief because they make me stay in a state of self-forgetting. I don’t want to lose more of my hearing. They work by numbing the nervous system to a degree. Not that great for me in controlling sound disturbances in my ear. Topical pain relief seems fine like BioFreeze for muscle strains for instance. Does not mess with my ears.
I have taken on many creative process-oriented creative hobbies and try to stay somewhat active which also helps and I am super lazy so I have to be alert to self-care or I have problems. I don’t do hyper aerobics or unenjoyable routines because I hate those. I am naturally very lowkey and if I hate something it stresses me way the heck out. Biking and walking and swimming are my cuppa - more my speed. I also am much more willing to try things I might enjoy.
I have been deaf since birth (rubella syndrome baby) and have worn hearing aids in my right ear since 5. I agree that deafness in the hearing world where everyone I love lives is impossible to accept. I have slowly become better able to cope. My teen years were insane. I am so glad I basically had my methods down by the time I had children. I have also learned new things to help like creating our own home signs (not real ASL) to interact with people I’m close to …such as a sign to let me know someone wants to add something in the middle of a conversation so I will know they are talking. It’s because of my kid that I persist. And people who try are also awesome and make my life much more enjoyable and worth the hassle of being deaf.
All the love ❤ and thanks so much for posting this video. It means so so much.
I’ve watched many videos since this first happened to me in June and yours has probably touched me the most. So raw & genuine.
THANK YOU for sharing and as you said in the beginning, you are not alone.
Who even knew this was a thing, eh? But apparently there’s a whole community of us out there and most are truly helpful.
Best of luck to you! ❤🙏🏽
This just happen to me 2 weeks ago. I just got my first steroid. How’s is everything on your end?
It happened to me when I was 39. And now 7 years later it just got worse. Now I’m experiencing it all over again. I got used to it after a while. - as much as you can. But now it’s gone from severe to profound and everything you explained is exactly what happening. This is a great video explaining what its really like and how hard and scary and alone it can feel at times. We have to be strong to live with this.
You do a very good job of explaining the experience as this happened to me on one side a year ago. It is truly traumatic and trauma therapy has taught me to touch the edge and then orient to other things-over and over-keep going. Yes, we can retrain our brain to feel safe and we can work with our perception. Thanks for being so brave to share your story. My friends do not understand and it can be isolating. Sending love and compass to all of us in this experience.
My husband is recently dealing with this disorder I'm trying so hard to understand what he's going through. I'm hoping this video can help. Wishing you all the best dealing with this cruel condition.
Bless your heart, mama. My husband is dealing with ssnhl with constant tinnitus. I can't imagine having a newborn with health issues and postpartum depression on top of the grief of hearing loss and ringing.. Praying for you right now 🙏🏻
I have had tinnitus and occasional vertigo for two years. Then last Monday I woke up with hearing loss. Nothing visibly wrong in my ear. Audiology report said profound loss in higher registers, all left ear. ENT gave me steroid injection the same day - test and injection were on Thursday. I go back to audiology in a week to see if there’s improvement. Doc also wants an MRI to check for a tumor. Tinnitus is worse than ever. Never thought in a million years I’d be dealing with this. Hope I’m able to sustain my mental health through this. Thank you for sharing your story.
Im sorry to hear your going trough that! I have severe tinnitus in both ears since I was 16 (35 now). I'm glad I haven't had hearing loss tho.
🙏🏽🙏🏽🙏🏽🙏🏽
This just happened to me. I lost the bass in my left ear a few weeks ago. Thank you for your testimony! I am able to handle the trauma/drama better in my 50’s than I handled disability from sudden onset of inflammatory arthritis that is just as scary. I was able to walk again and still deal with terrible pain here and there.., but this sudden hearing loss is exactly how you describe. I’m older so health issues are something I’ve already grief processed so this deaf thing is…. Well it’s a bitch! I was raised around people with disabilities and I never heard once that deafness could be so loud and annoying!!!
Hang in there sister!!! ❤
Thank you for this your not alone and so glad to have been able to listen to your story. I have just been diagnosed with profound hearing loss in my right ear at the age of 27 to sudden hearing loss. As a very social person I too have found myself isolated on the fringes of social groups, as I’ve not been able to focus or stay on track in a conversation. The ringing is absolutely the worst part it really doesn’t stop at all. Once again thank you for sharing your very raw story. I’m wishing and hoping all our hearing magically come back.
Thank you for your heartfelt video, sharing some powerful, raw emotions. It takes a very strong person to make this video, mourn for yourself, adapt to the new you and to cope with your condition on a daily basis.
I went deaf in my left ear nearly 2 weeks ago. Shortly after waking up, I couldn't hear anything. Felt nauseous and off my food. Dr said it was an ear infection so gave me antibiotics and steroid ear spray. That didn't work. I've just finished strong antibiotics and nose steroid spray. Slight improvement in hearing but high pitch tinnitus with whooshing heartbeat pulsing is driving me mad.
I have an autoimmune disease affecting my spine mostly but I get inflammation anywhere, including ears.
I really worry about my ears and hearing because my Dad and Sister have Meniers disease. I've seen 1st hand how awful it can be.
I'm glad you have a support network and family to help you. Stay strong. 😊
I have the same as you. My right ear. You’re so brave to film this. I couldn’t watch it all, because I only found out 2 days ago, and I’m dealing with how it feels. I have the tinnitus, and vertigo. I didn’t have the steroid injection, as I can’t have anything in my ear (long story). I do hope you’re ok now, thank you for letting others know we’re not alone. Take care !
I'm 24 and just had this start about 1.5 weeks ago. I've been going to an audiologist since and they are doing everything they can. My hearing is part of my job and I'm huge into music. I'm trying to cope with the potential of losing hearing in my left ear for the rest of my life. So far I've been alright, but thinking about the constant ringing and not enjoying music the same way is starting to get to me. This video really does help come to terms with it so thank you. I hope my hearing will come back and in trying everything I can to get it back. I wish the best for you and thank you again. It's nice to know I'm not alone in dealing with this.
Me too! This just happened and everyone, including myself, sound like R2D2. It’s horrible! I can hardly hear music and it’s like a speaker went bad and nothing sounds harmonious. Like everything is out of tune! Terrible! Hang in there!
@@gailowenstudio1124 definitely not a fun thing. Ended up getting 5 steroid shots in my middle ear and doing hyperbaric oxygen therapy for about 4 weeks. Got back about 70-80% of my hearing back. It's still hard locating sound and hearing people speak with a lot of background noise. Been wearing a trial hearing aid for about a month so far and not sure if it helps or not. It definitely sucks having to say what all the time or making sure I have people walk and talk on the right side of me.
Do you have headphones that put stereo sound into your good ear so that you can enjoy music again? They are made specifically for mono hearers.
I lost my hearing once and I got it back. It took me a couple of years but I did it.
Don't tell your brain that it's impossible, believe that you can recover your hearing and you will.
@@TheFracturedfuture I wish man, I have SSHL. It causes damage to the nerves in my middle ear so until they have a way to repair it, I'm stuck with it. I have gotten use to it and also have a hearing aid. It was definitely rough at first.
Hi Inke, I am so glad I found this video because I relate to every single thing you said. Around 5 years ago when I was 16 ( 21 now) I suddenly went deaf in my right ear which was accompanied with loud tinnitus like you. I managed to regain a fair amount of hearing in the lower frequencies but was left with profound loss in all the higher frequencies used in speech ect. The tinnitus has stayed with me ever since and will always be with me, however as deliberating it can be sometimes this is something that over time I had to accept is my new reality. It completely changed my life, I became very withdrawn and often drowned in my own thoughts. I found it hard to enjoy things that I used to and struggled to be a part of my friendship group which was one of the worst things. My mental health deteriorated massively and I was in a very dark place for a long time. Like you I struggle to explain to people what happened and the impact it has had as I just break down. Luckily I have an extremely supportive mum who has helped me along every step and honestly Im not sure I would even be here now without her. I still have my bad days but every year I have made progress and can say that I am in a much better place now.
Thanks for sharing your story and I wish you the best for the future, stay positive!
Wow! I can’t tell you what your open honesty and vulnerability has meant to me. I’m 68 years old and woke with this condition one week ago. I was lucky in that I went to visit my son and my grandson for thanksgiving and found myself in the ER in Seattle which was a blessing because had I been home, I would have waited until I could see my PCP and wait more for a referral to an ENT.
It’s my right ear; I’m on 60mg prednisone, scheduled for MRI tomorrow and hoping for the best.
But I’m glad I’m not alone. Thank you!!! ❤
Thank you so much for sharing this. My own experience was nowhere near as severe as yours, but it was just as terrifying. I was initially misdiagnosed, and I didn’t receive the proper treatment because of that. I was just finishing an education degree- with plans to teach ESL to students- I was a musician and vocalist. My whole life surrounded hearing. The ENT told me I was likely to lose hearing in my other ear (before I was properly diagnosed), and so for months I lived in constant terror that everything would be taken from me and there’s nothing I could do.
Sound in that ear was so excruciatingly painful- it was almost like I could FEEL sound in that ear. Like someone inflated my eardrum and beat on it with hammers. That has mostly gone away, but lord, it hurt. And even though I know now that SSNHL isn’t likely to affect my other ear, I feel like an ax is hanging over me all the time.
Those initial symptoms have eased- there isn’t pain anymore and the dizziness and tinnitus has eased. The hearing loss is relatively mild, but speech recognition is within the affected range, and you’re right- spending any time in public is challenging. I relate so much to your comment about good ear days. Anytime I’m very stressed, it can flare up. Or if I’m sick or experiencing migraine. The hissing and ringing is always there, though. Even if it’s drowned out.
I got a hearing aid and…it’s frustrating. It feels like sounds are louder, but it’s all gibberish. Language comprehension in that ear is weirdly almost gone. I should wear it though, because they say comprehension can improve. But also- it’s important for brain health to access all the hearing we can.
Thank you for sharing this. It’s so relatable. I wish my doctors had seen this, instead of telling me that waking up one morning half deaf doesn’t just happen. Obviously it does! It felt like the right side of my head was underwater. Anyway- thank you for your vulnerability. You aren’t alone, either!
My 10 year old son was born with a unilateral hearing loss and could only hear from his left side. A couple of weeks ago he started experiencing sudden hearing loss from his hearing ear. They prescribed him steroids, and he since has been having horrible migraines, tinnitus, and he said it sounds like theirs music playing sometimes and he can’t stop it. He is now deaf, and we are scheduled to have an mri. As a mom I am breaking because I wish I could just take it all away. We now communicate with a notepad and pen and what asl we are beginning to learn. You have helped me understand more and I thank you for that.
My daughter is the same💔 May Allah make things easy to them and guide us to the best cure .. I tried the hearing aid.. it didn’t work with her, even though some people could hear from it, i don’t know what to do next …
Thankyou Elsi It is life changing & accepting the loss of hearing is very hard 🙏I always thought these things happened to other people ( was not prepared for it ) we just don’t know what life has around corner ! I try very hard to be strong & always keep going as giving up “is not the answer” Thankyou for sharing 🙏
I've had sudden complete hearing loss I'm my right ear for 10 years now, its a dead ear as they say. Unfortunately soon after I perforated my left eardrum and more recently I've stupidly allowed water to get into my perforated eardrum, which is what brought me onto this video. I'm worried I may go completely deaf. Getting the water into my ear has reminded me how bad tinnitus is and how it does get easier in time.
with regards to steroid injections, this is news to me. 10 years down the line now, I guess it will be too late for my dead ear.
Well done for the heartfelt video, everything you said I connect with. Are a lot of you having to stop eating at the dinner table to be able to hear the conversation, that's a pain, not knowing where sounds is coming from, social events are frustrating and draining.
I had profound hearing loss in my left hear due to idiopathic sudden sensorineural hearing loss. I woke up one day and felt numbness all around my left ear and an internal pressure. Internal pressure lasted till a week and my hearing was muffled, I thought I was having a cold or flu. After a week, I lost all the hearing on the left side and took three steroid injections into the middle ear. Treatment didn't help me restore my hearing. Still doctors haven't found a reason for my hearing loss! All reports are clear. I don't even understand what causes the hearing nerve to die all of a sudden.
thank you. this answered a lot of questions I had
Thank you for this video! I can so much relate to what you are saying. I am going through the same experience since I have had a sudden hearing loss in April, also with loud tinnitus. Lots of love to you!
I am 40 years old and a lecturer at one of the universities in Somalia. A week ago, while I was sitting on a chair in a class and giving a lecture to the class, I suddenly felt fullness in my right ear and mild hearing loss accompanied by tinnitus. A day later I felt that my hearing loss is deteriorating. I then went to an ENT specialist and was diagnosed with severe sudden sensorineural hearing loss. I was prescribed an antibiotic and a high dose of corticosteroid drug (prednisolone 16mg; 2 tablets for the first 10 days and then tapering to 1 tablet and lastly half a tablet to the next 10 days). Thank God, My hearing ability is getting better day by day. I recommend to anyone who feels sudden hearing loss with/without tinnitus, not to delay visiting a specialist, otherwise his/her hearing loss may be permanent. Your health is your life; take care of it.
Your strength and assurance is an inspiration. Thank you for letting know that it gets better. Lots of prayers to you and family so God keeps making it easier and life feels fuller.
5 days ago I realized I had tinnitus, and I have mild hearing loss on my left ear. The ringing is definitely stressful. Stay strong you’re not alone ❤. My strong mental fortitude kept me going but I strongly understand how one with tinnitus would feel. Hope we all get through this ❤
you are the best! sending a virtual hug. I’ve gone through (minus the pregnancy) almost exactly what you’ve described.. if it’s any consolation!
Buck up sweetie! You're not alone! You'll get through this! God put you here to challenge and test you because he has something VERY special in mind for you, so BE STRONG! And know that you're loved!
Your an amazing person and an amazing Mom. You are strong and courageous. I take one day at a time and hope for a good day. Sometimes they are, and sometimes not so much, but I keep going. I wish you and your family well!!
Thanks for sharing this. About a year ago I woke up almost completely deaf in my right ear out of nowhere (literally went to bed fine and woke up unable to hear the next morning), accompanied with severe tinnitus. Since then I've been diagnosed with an acoustic neuroma, a small tumor pressing on the nerve responsible for hearing, and had to go through radiation therapy. I was given steroids which brought back my hearing a bit and reduced the tinnitus but it's now getting severe again. I've been feeling so depressed, I canceled all my plans this weekend because it seems pointless when I can't even hear myself think around the tinnitus. I feel closed off from the world and stuck listening to ringing and my own thoughts. I'm still trying to come to terms with how I'm going to live like this.
I'm sorry. No one who has not had it happen understands how life changing it is. They go about their merry way of life and you're struggling to feel in tune with the world around you.
More power to you. May god bless you in every way possible. This helps a lot of people going through the same find motivation in life. Thank you
I was diagnosed on October 14 with unilateral hearing loss. I can't wrap my mind around this. I am blessed with a great ENT and audiologist. The steroids did not work for me. In a about 3 months if no improvements I will be seeking surgical options.
I have found that a sound machine helps me sleep my brain seems to be able to focus on something other the tinnitus. I am missing a beautiful worship service tonight because the loud music affects the tinnitus.
I resonated so much with the anxiety of this happening to my left ear. For me the fear is worst. I am making the decision to not live in that fear. It's a decision I am sometimes making every 5 minutes. The anxiety for me makes the tinnitus worse.
I am praying for you. I am sorry your going through this too. The comments certainly reminded me that although we may not have heard of this before, we are not alone now.
Thank you for this video. I’m on week two of this piercing hells cape in my head. Let’s hope technology improves and fixes this.
I hear ya. I'm struggling too and thanks for talking about the suicide part all the doctors i've seen don't understand that and blame it on mental health rather then the tinnitus, just aweful.
I lost hearing suddenly in my left ear, within seconds, last June. I thought it was just congestion as I had a cold and was on decongestants at the time. I waited too long to get to the dr and even longer to get to an ENT only to find out it probably wasn’t coming back. Went through the round of high dose steroids and nothing helped. My primary care Dr told me not to give up and got me an appt at the university of Utah. Almost exactly 3 months from the day I lost my hearing I was implanted with a cochlear implant. I have had it now for 4 months. I am listening to your video now through my implant for rehab and I can hear and understand every word! Please don’t give up because your insurance doesn’t cover CI’s. Get to a clinic that specializes in CI’s and they will help you fight for it. Join the cochlear implant support groups on Facebook and ask questions. This has all been such a roller coaster and I have a long way to go but what I am experiencing I consider to be a miracle!
Thank you for sharing your story, I had the same experience on August 1, you have explained what happened, and what you were going through so beautifully, gracefully, and in great detail. The depression is real, but, with faith in God, and the hope that my brain will eventually adapt to my new normal. I feel that I can, go on with minor adjustments you are young, have a wonderful support system and obviously a blessed, beautiful baby, focus on the good.
I’ve only been following you for about a year or two, but you are truly defying the odds! You’ve made it through so much. I hope one day technology/science catches up and there is a solution to the ringing in your ears. Thank you for sharing and I hope you continue to persevere!
Thank you so much ☺️
Glad that I found this video, gives me some hope. I have had tinnitus for basically my entire life so it isn't a bother anymore (you can acclimate!). However, this year for some reason I have had some weird stuff going on with my left ear. December and January I had bouts of some weird loss of low-frequency sound which caused people to sound like robots (that is another thing that can happen that I also did not know could happen). It went away for 6 months and just a couple days ago it was like someone turned the sound off and replaced it with a left blower in the distance in my left ear. I thought it was fleeting tinnitus which I would get from time to time...but this lingered for a couple hours this time. I am just preparing for the worst, I am thinking that someday my left ear is just going to shut off.
I did not experience SSHL, but I learned recently that someone I care about does. So thank you for this video.
I hope you and your doctors will be able to solution or at least reduce the tinnitus in your ear.
I'm writing this review while watching your video, so I can provide feedback on various aspects without forgetting anything you've discussed. As someone who is hard of hearing, I find it incredibly interesting to learn about how others navigate the world without proper hearing abilities. I'm also curious about what you can hear and how challenging it is for you.
Personally, I experience tinnitus due to my hearing loss, which has been a part of my life for as long as I can remember. I also encounter sensory deprivation, where I struggle to determine the direction of sounds. However, if my husband shouts from the next room and I have my hearing aids in, I can usually locate the sound, possibly relying on memory and other sensory cues. As I've aged, my hearing has deteriorated, and my doctor diagnosed me as being approximately 40% deaf in both ears. Consequently, I can relate to many of the difficulties you've mentioned. Unfortunately, people around me at work often fail to understand, but fortunately, my dad, who went through a similar experience, is very supportive. I've also experienced vertigo, which doctors diagnosed as Labyrinthitis. It was an incredibly unpleasant sensation as if my brain couldn't keep up whenever I moved my head. The disorientation and stress were overwhelming.
I have a quick question: Have you tried wearing hearing aids during periods of sensory deprivation? I found them to be incredibly helpful, particularly in discerning voices. However, my only issue is when there are background noises like rustling bags or the sound of chips, which tend to overpower someone's speech.
I believe things will become easier for you, and you'll learn to adapt over time. Speaking from my own experience of struggling for a significant portion of my life, you eventually discover your limitations. The most important thing is to be kind to yourself and allow ample time to navigate through life.
You're absolutely right about raising awareness. Working in retail, where my deafness is not immediately noticeable, people often continue talking without realizing that I can't hear them. I've had to explain to my manager numerous times, "I can't hear you if you're not facing me." This was especially true when I wasn't wearing hearing aids and relied on lip-reading. I would hear mumbles, but I couldn't distinguish the words until I could see their lips moving. On particularly challenging days, I would ask them to write things down when I couldn't hear them clearly.
In any case, I wanted to share my own experiences and let you know that you're not alone. We're all in this together! I appreciate you sharing your story, especially regarding your mental state, which is incredibly important, particularly for someone like yourself who experienced sudden hearing loss. Personally, I didn't struggle too much with that aspect, except for when I had an inner ear infection that caused severe vertigo-Labyrinthitis, as I mentioned before. That was an extremely stressful time.
Since my hearing loss occurred throughout my life, I never knew any different. I just assumed it was normal, and my teachers at school attributed my poor grades to a learning problem rather than hearing loss. I was labelled as "thick," not deaf, and couldn't hear most of what the teachers said. I also daydreamed a lot, which was noted on my report card: "Needs to pay more attention in class and be less distracted by what's happening outside the window." It wasn't until adulthood that I realized I wasn't unintelligent. However, this realization didn't come easily. For a long time, I believed I had a learning problem.
It was in my 30s that I finally sat down and contemplated whether I truly had a learning problem (except for math, of course) or if there was more to
it. It was around the same time that I had the inner ear infection, which led to the revelation of my significant hearing loss. Back then, I tried hearing aids, but I quickly removed them and ended up losing them because I couldn't stand the feeling in my ears. However, this year, at the age of 47, I decided to give them another chance as my hearing continues to deteriorate with age.
Once again, I want to reiterate my gratitude for sharing your experiences. Thank you so much!
Thanks for sharing. Have you considered a CROS hearing system? Yes it will only send sound to your good ear but may help you hear in a crowded room, hear sounds better coming from deaf side, localize sound better and may help with tinnitus.
I wish you well.
Thank you for sharing this - it’s so tough.
I had this happen but mine seems to be connected to having colitis. My hearing has improved over time, and I think with steroids that I’m taking for the colitis. Not sure what will happen when I stop those tho.
I have tinnitus - I had concussion a couple
Of years ago and it’s got worse since then.
Another symptom is not being able to bear noise - the hoover, the water in the shower, - they hurt. And it kinda feels like the crackling of an old radio interference if there are loud noises. When it was at its worst, I was having profound hearing loss for hours on end each day. Anyway - I’m wishing you so much love and thank you for sharing this. It helps just to not feel quite so alone xx 💕
thanks so much for sharing your experience. feels good to know other people have experienced this! I’m on day 7 of this nightmare 😫 and hope it gets better
My daughter is going through it for a week also,sending prayers, God has the last word🙏
How are you doing now any improvement
@@sauravpanigrahi2370 Hiya, I'm happy to say I have had a massive improvement. In my opinion, it wasn't due to either the oral steroids OR the intratympanic steroid injection...
I started improving day by day and the timing doesn't really correlate with either of those treatments.
But I have had a minor increase in tinnitus since going to a concert (although I had my ear plugged).. so I'm now in the process of ordering special musician ear plugs which are custom fitted to your ear canals.
Moral of the story is, even if you have improved from this, take care of your ear(s) and don't expose them to loud noises in small crowded bars (or other such places)
got Sensory hearing loss overnight 6 months ago
i can relate to every emotion you went through and going through still
like you with your baby, my partner and my grandson
saved my life
nobody knows what this loss does to you mentally
i went into my shell only at peace in bed at night
hated going out in crowds the balance issues
the noise in traffic cafes pubs just drove me crazy
i was on edge all the time
fortunately i have mild hearing loss ( so they say )
i beg to differ all i hear is deep bass if someone talks
i bought an ear amplifier from Amazon 70 pounds UK money
and i basically changed my life, don't get me wrong i still feel
i am not right mentally i seem to have no get up and go
i feel jealous when i see people laughing enjoying their life
because there was no reason for this, it was a shock to my life
i now have a hearing aid and just feel out of it
anyway there are people far worse than me
stay strong Elsi for your child and for yourself, God bless you
@@sedg1 thanks i wasn't dizzy i just feel lop sided
because of no noise coming through my left ear
i heard everything through my right ear
i was fine went to bed woke up couldn't hear properly
thought head cold? wax build up shower water in my ear
but after 2 weeks nada nothing
after that ear infection in my inner ear
fluid was building up inside
then the infection burst my ear drum
after that it all went wrong for me wrong antibiotics months later
no pain but hearing loss
i thought it was just a blocked eustachian tube disfunction
but nope : /
when i was 26, i lost my hearing over night (left ear only). It took four months to see an ear doctor and then for him to tell me that i only had 24 hours to go on antibiotics to have any chance in saving my ear. As far as my tinnitius, he told me to forget about it! I was mad at first but "forgetting about it" has been the best advice I've been given so far. the ringing is a phantom noise and gets louder the more you think about it. I'am 40 now and still no hearing in my left but right side still works, thank god. I have trouble hearing in loud restaurants but one on one i do fine. if i watch a movie i put the subtitles on which helps. I am hoping with new AI technology like the new google phone that cut out some sounds like wind noise and only focuses on voice. if this technology could be applied to a hearing device to help with sterio deafness. I have had two bouts of vertigo that lasted for about one week each time, which may have had something to do with being vitamin D deficient
Hi........
February 2022 i had exactly the same symptoms in my left ear
Its so weird because what your explaining is exactly the same as what happened to me ..
I had 23 weeks off work with dizzyness and sickness ..
I visited the doctors 5 times and pretty much got ignored and told my ears looked perfect .
After months i visited a ENT specialist,, but its too late , i was told 72 hours is the maximum time to administer the steroid , way too late for me .
Im profoundly deaf in my left ear , its absolutely life changing the tinitus is still there ,24/7 , its an horrible thing to happen, iv been told i have a dead ear .
Have you talked with your ENT specialist about a tinnitus masker? I've heard that it can help a lot when someone is suffering from tinnitus. I'm sending you lots of support and good energy!
Thank you so much ☺️ My ENT didn’t mention anything about a masker, I’ll have to ask
I can relate to this 100%, except for the doctor. I waited for over 6 months to see an ent. No-one understands. It’s very isolating and difficult to explain to anyone. You’re very lucky to have the support that you do, though. I am told that I have “selective hearing”, amongst other things.. it’s not just being able to hear. It’s the confusion, the constant noise, the fear of brain atrophy, worrying that your child will get it. The list could go on and on. It’s been a terrible experience, like you said life altering. Praying for you and everyone who is dealing with this.
Thank you for sharing your experience ❤️
Thank you for your courage..this happened to me in March of 2013..I've been to 6 ENTs 5 neurologists and still do not know what happened..I'm in the care of new Drs. Now who want to know more because of what I've gone thru..I watched your video last night and woke up stronger today..please keep posting..your voice is making an impact. I am 62 this month..I woke up this way when I was 52..take care..I'll be waiting for new content..🤗
Which ear was affected? This happened to me back in March 2021. Same as you, been to many doctors, MRI,MRA,CAT SCAN , Hyperbaric chamber, etc... I'm still deaf in my Right ear. Woke up to it.
Hi, I had a similar story. does sound therapy help? Did your ent mention cochlear implants? It could be an option for both the hearing loss and the tinnitus.
I had this happen in my left ear in January of 2020. I did high dose oral steroids, shots in my eardrum and then my ENT recommended HBOT. The steroids took me from profound to severe.
The HBOT took me down to a moderate loss and helped with the tinnitus...not gone but tolerable.
Fast forward....October 2023...i fell off a ladder...3 days late, same thing happened. I'm currently doing HBOT, hoping it helps again.
This time around....I got dizziness....so this ENT is questioning if i have Meniere's disease. However, i was just tested for autoimmune with no positive tests. He said there's no test for Menieres, just symptoms and ruling out other things. I had an MRI to check for ear tumor....not that. Mini ear strokes and nerve damage are possible causes too or retroactive viruses. Lyme Disease too.
Not having a cause has really messed with me and made me super angry and depressed!
I have cried and sat alone in my head for days cause ppl don't understand unless they have it happen. I really feel for you cause i understand.
HBOT has helped ppl with tinnitus. It's now approved through the FDA. Some insurances will approve treatment.
If you have Meniere's they are in clinical trials for a very promising drug that is showing improvements!
Hugs....i totally have been in the depression of it. Avoided all sounds for a awhile cause it hurt and i was afraid it would cause me to lose all hearing. I can't even listen to music in the car and it hurts when watching tv sometimes. I hate that you have this! I don't wish it on anyone....i call it the Joy Killer.
Sorry for the random sentences.....my thoughts are all over the place too!
I have SSNL since November 2023 and oral steroids did not help, steroid injections helped initially but after the 4th injection it started declining again. I don’t know what is the cause. They just said it’s SSNHL. Will this ever come back to normal?
@@himanshimisri5413 do oxygen treatments if you're in the timeframe window. They helped me. I am now learning I have eustation tube disfunction....which could be part of the issue.
What is HBOT?
@@naomilydick5235 hyperbaric oxygen treatment/ therapy
@himanshimisri5413 they say it can...but not likely. Your tinnitus can get better or worse. I saw a new ENT who was surprised I got it a 2nd time as that is unusual. I guess you can get a gradual decline as you age, but getting ssnhl twice is rare. They have me on flonase as it's a steroid to help with nadal inflammation...which can be a cause for hearing issues. It's also the 1st course of treatment for eustation tube disfunction which can also give you clogged ears leading to hearing loss. TMJ can also cause hearing loss
These are all things to check as causes.
I understand you. I also have profound hearing loss. I'm 51 and discovered my hearing loss at 43. It was unbeknown to me until my niece said I never heard her speak. I sometimes feel like I'm in a fish tank. The noise level can sometimes be very loud. I get anxious. But, I'm a person of faith. To be honest that keeps me going. Jesus has giving me peace. I will pray for your healing. I know how you feel.
Hi Inke, thank you for sharing your story. I had sshl 6 years ago due to a virus attacking the inner ear (I was 33). Like you I have good days and bad days. Watch what you eat because I've noticed that certain foods affect the level of tinnitus. Also, getting a good night's sleep is so important. Have you tried a hearing aid? I've heard that a hearing aid can help mask the tinnitus. Thanks again for sharing your story. Just remember that these challenges in life make us stronger. God bless you and your family. 🙏 ❤️
What foods to avoid?
Caffeine, Chocolate are two I know of.
Which sucks of course.....
@@stephaniehalo7005 what about salt?
@xshadowscreamx probably because it's my seasoning of choice. I don't notice because I always use it. But for meniere's disease(ear disease aka covid ear) they put you on low salt and diuretics because of fluid build up in the ear) so my thoughts are yes it will affect your ear.
This just happened to me in the last month. I was blown away that this could happen so easily. I'm hoping that a hearing aid can bring some function back and also diminish the ringing. This sucks so bad
I saw your whole video and I'm experiencing the same hearing loss out my right ear as well. Let me tell you my complete story. I was diagnosed with Type 2 diabetes back in 8/01, back then I was 34. A few years ago I'd say about 6 or 7 years ago diabetes diminished my vision out of my right eye. I'm not completely blind, I can see but I'd say I probably have 15 to 20% vision. I went to the eye doctor and basically in a nut shell they couldn't do nothing for me. Thank God my left eye is fine. Any let's fast forward to 2021. The pandemic years. I was leary in getting a covid shot, I held it off for as long as.I could, see I'm a karaoke host and DJ and during the end of 2021, things were slowly going back to normal, businesses were starting to open up jobs were being offered but only one condition that you get a covid shot or else you can't work. So my back was against the wall and I decided to get the covid shot. I mean it was my lively hood what else was I gonna do.. So I went to CVS pharmacy back in later part of October of 2021 got my 1st Pfizer Covid shot, no problem, 3 weeks later got the 2nd Covid Pfizer shot, had a sore arm the next day it only lasted a day. Now 3 weeks after that, I'm fine the next day I got facial paralysis on my right side of my face, which can only be described as either Bell Palsy or Ramsey Hunt disease, Vertigo (which I never had in my life) and complete deafness in my right ear. No warning no ringing in my ear I was able tovhear out of my right ear one day and when I woke up the next day my hearing was completely gone out of my right ear. I took nothing but my regular meds I've been taking daily and the only thing I could blame me getting these symptoms all in one shot was the last covid shot I took 3 weeks prior. Went to the ER a week later because I decided to give it a week and maybe this crap will wear off and I'll regain my muscle sensors on my face, loos the Vertigo and regain my hearing. Nothing changed after a week so I went to the ER @ my hospital. Told them my story all they did was prescribe this drug call meclizine, it's suppose to help me with the dizziness from the Vertigo. They gave me 2 weeks worth of that meds. It didn't do 💩 for me. It's like they prescribed me an empty container. When I finally told my personal physician he gave me a.months worth of that same medicine and again it was like putting.me in a car.with no engine, I wasn't going anywhere with that medicine it done squat for me. Anyway fast forward a year later to today, I've regain some facial muscle on my face at least maybe 85 to 90 % but not completely there, do I still have Vertigo? Yes but it's not as severe as it was last year, has my hearing come back? Nope not at all, had it checked too there was no wax or blockage build up nothing. So I'm trying to get a steroid shot like you did maybe it might have some positive effect on me. I no timing is everything they say if your going to do something do it within 72 hours, in my case it's been almost a year. But the difference between me and the average joe/Jane is as long as I'm alive I will never give up in finding either a cure or a partial cure. I'm still trying to reverse my diabetes and I've had it for over 30 years. Yes call me crazy but I will never give up never.
Everything I have read says the COVID-19 vaccine has nothing to do with this, even though there have been a few instances of hearing loss. I won't say that the 3rd vaccine I received at the end of September caused it, but I don't think it helped it. I have decided not get the flu vaccine.
I was on the cusp of injections being able to work and even though they didn't work I am glad I tried. The injection for me was not as bad as I imagined. The smell and taste was the worse. If it's an option for you I wish you the best.
How are you doing today? Better? I hope. I'm profoundly deaf in my right side and severe hearing loss in left side. Lost my hearing in less than 24 hours over 20 years ago. I wear a cochlear implant and hearing aid to cope. Same thing what you described happened to me.
Pls look into Liam stops tinnitus CZcams! I’m so sorry this happened you don’t deserve this. I’m going through very very similar experience.
Have you had any updates using his program or advice? Cause, I'm looking into doing it as well.
In every way I understand. I also very recently went profoundly deaf from SSHL in my left ear and also have horrible tinnitus as well. Literally identified with everything you said. It’s life altering it’s an entirely new reality. Since it happened I bounce from physician office to office trying to source a cause. Hormones/vascular/ blood clot we just aren’t sure. I’m trying like you to maintain sanity and stay grounded by taking it one day at a time. It’s been 4 months. I’m in Ohio BTW.
3 months here. Add in 24/7 vertigo as well 😵💫😵💫. Life changing is an understatement 😞
Only 7 days in and.. this is tough!
Me too. I had profound hearing loss in my left hear due to idiopathic sudden sensorineural hearing loss. I woke up one day and felt numbness all around my left ear and an internal pressure. Internal pressure lasted till a week and my hearing was muffled, I thought I was having a cold or flu. After a week, I lost all the hearing on the left side and took three steroid injections into the middle ear. Treatment didn't help me restore my hearing. Still doctors haven't found a reason for my hearing loss! All reports are clear. I don't even understand what causes the hearing nerve to die all of a sudden.
Did you ever find out the real cause? What kind of harmone issue can cause SSHL?
I've just found this video due to having 1st pains in one side of my face/head. Then it left and went to my right side. I ended up with vertigo and tinnitus then yesterday I felt a loss of hearing on right-side. Went to my gp this morning and am now waiting for a call from ENT at the hospital. For possible SSHL. I can't get a break from the ringing and hissing in my right ear. It's driving me insane. Sounds from the fan or doors shutting hurts. Talking is muffled but loud noises is amplified. So hopefully I will get a definitive answer today.
I feel for u
Same here....... Managing work and family with this.... Always feeling low and low energy but what to do we must move forward
hi esli! How are u doing now adays would love an update....I have hearing loss too and wondering how you are coping.... Have u ever thought of cochlear implant....or not sure if theres a hearing aid option ... also has the tinnitus or noise gotten less overtime... Do u have trouble when you go to louder places like restaurants etc just curious....Would love to hear an update....or any coping techniques. Best wishes to you and your beautiful family!
I got sick Oct29th with a bad head cold that lasted till about Nov.7th, at least the worse symptoms, I was still draining and congested days after that… somewhere between the 7th and 14th I woke up and noticed my left ear felt like like this pressure irritation feeling with low pitched ringing? Not piercing loud ringing, but just ringing you get from like pressure or like when your ear is full of water… slight fullness maybe? But never to the point where I can’t hear… I’ve been dealing with this for almost 2 months now on and off, I’ve been treated for middle ear fluid since December 5th and have been put on 2 different regiments of medicine (antibiotics, decongestants, antihistamines, etc) I’ve been told it looked infected, then it didn’t look infected blah blah blah but all 3 physicians I’ve seen all have told me that I’m just full of fluid but they did a cat scan on me, idk how enhanced or in depth the scan was but it said I don’t have fluid in my ear so that’s what confused me, I know they were trying to rule out any tumor or head trauma…
Somebody told me that my symptoms sounded similar to SSHL because the CT was normal with no fluid, but I can still hear out of my ear? Probably just as good as my right ear honestly. I can hear the lowest volume possible on my headphones just as good as my right ear can. I tried the humming test and couldn’t really tell which ear I was hearing it louder in, sounded pretty equal to me 🤷🏻♂️ I can talk on the phone fine in my left ear. My right ear may be a little clearer tho, but I can still pick up sound just as good as my right, when I’m outside I can pick up sound and hear things in the distance and birds etc. I’m almost 2 months in I would know if I had SSHL right? My symptoms seem to come and go, like the pressure and ringing sensation seem to ease up at night and then kind of amp up when I wake up or mid day? The physicians seem to think my situation is not urgent at all or any type of emergency.
I’ve experienced this similar sensation before in my right ear but it went away a lot faster than this has… the sensitivity to certain sounds was new to me tho, the fluttering of the eardrum yeah that was new. I’ve tried every test I can think of to test my hearing and I can hear just as good as my right it’s just my right ear is slightly clearer 🤷🏻♂️ I have an appointment with an ENT but not till Jan.26th
Esli, wondering if a hearing aid will help the ringing in your ear?
I had two days ago a severe SSHL on my right ear. I am still hopeful, that some of it might return. I do not have such a bad tinnitus.
SSHL Happened to me March 2021. Ive been dealing with it, but its hard. The ringing doesnt stop. I have found, that plugging my good ear up has helped my bad ear calm down with the ringing. It seems to equalize everything, if that makes sense. It also relaxes me and helps drown out all noise. Hope this helps
I lost hearing in my left ear overnight...I woke up to the deafness. It went from silence to a low white noise sound constantly...but no recognizable hearing. I took high dosages of Prednisone, followed by steroid injections into my ear...the only recovery so far 6 weeks later is a tinny, static like sound that is in no way tonal or recognizable...the problem is that this occasional static from loud or high pitched volume now competes with what I can hear from the right ear. It's very scary to lose part of your senses and as much as you don't want total silence I had initially, this partial and worthless hearing is interfering with the proper hearing ear. I have an MRI scheduled this week to check for a tumor or signs of a stroke....other than that, nothing more to report...just trying to deal.
you may consider hearing aid for ssd (single sided deafness) such as cros hearing aid...another optio n adhear bone conduction hearing aid....or even cochlear implant...consult your ENT specialist and audologist regarding the options...
They seem to be transplanting every other organ in the body, so why not ears? Is there not a surgery that you can have to at least turn off the annoying ringing in your right ear? Do you call that tinnitus? Strange that you are deaf in that ear and yet you still hear loud sounds in it. How are you able to sleep at night? Ears don't seem to be getting the attention and research they deserve. You are so young and beautiful and yet spite of everything that has happened to you feel a genuine empathy for others who are also afflicted. I am getting my first hearing aids next week and after watching your video I am no longer feeling sorry for myself. It's a good thing now....I should be celebrating and I think I will do just that. You are so brave. Thank you Esli for your video.
Cochlear implant
@@rmh691 If a cochlear implant was the answer, then why wasn't she offered one?
I asked my friend who has one and said that the cochlear implant is the standard of care if you are deaf in both ears. I didn’t realize this and don’t know why it’s the case that it’s not offered if you are only deaf in one ear. That is too bad because you do miss out on a lot if you are deaf in one ear.
Thank you 💓💓💓💓💓
hey can you update on your hearing loss.please????? im. going through the same thing...wondering if the pressure fullness and ringing EVER went away??? I just started this 5 days a go im really in a black whole, just started my first injection today ...but I don't really have hope after hearing sooooo many bad results... please answer or update us, any improvements or anything changed . thank you!......... hope you've gotten better.
I got an ear infection. I can relate to losing hearing. I just lost hearing in my right and left ears. I got subs on!
Have you heard about cochlear implants? Since you’re on CZcams, many videos there show immediate hearing occurs after several weeks after the operation. It takes patience and continued appointments to regain word recognition for the brain to adapt. This is just a suggestion. I’ve been watching the CZcams videos of all the deaf people ( young babies) who become so excited when they regain sounds. Good luck to you. I’m praying for you.
Thank you for your prayers. I’ve discussed cochlear implants with my ENT but unfortunately my insurance doesn’t cover it. Maybe some day though.
@@Esliday A friend of mine has a granddaughter who had a skiing accident at age 21 and is now a quadriplegic. I don’t know how NBC learned of her accident, but they interviewed the parents and the beautiful young girl on the news. As the publicity was heard throughout the country, George to the Rescue (look him up on CZcams) approached the family and went to their home and made it accessible for my friend's granddaughter. Do not go to the go fund me agency. I’ll get you the name of the agency that does give money donated from people around the country that enabled the family to pay the millions of dollars it has cost to save the life of this beautiful young girl. Please know that she felt like you during her extensive rehabilitation. Now that she is finally out of the hospital, she is surrounded by many of her college friends who take her on daily excursions in the van that was provided for her. She now helps others like herself live life. I hope this will enable you to become involved and enjoy one day at a time as you engage yourself in the joy of exploring a way to fund a cochlear implant. 🥰🥰🥰🥰
@@Esliday I am an audioloigst and you can challenge this with the support of your ENT. They can write a letter to your insurance that it is medically necessary. I would ask them to include that you are having symptoms of severe depression and potentially speak with the Chief Medical Officer at your insurance. You need an ENT who is willing to take the time to advocate for you with your insurance. Single side deafness is an indication for implantation in the US now. If one ENT won't write the letter - I would go to the next. The CI can help drown out the tinnitus during the day. There is the possibility that there will not be any benefit to decrease the tinnitus - but I would encourage you to pursue this farther. Depending on your income status, you may qualify for Medicaid - which also covers CIs. You can look for Medicaid opportunities and apply.
I was told by my mom, that I had to have eustachia tubes wouldn't drain, so the ent had to Lance my ears, so my ears would drain. When I was about 5 years old till I was a sophomore in high school, I was told that after a day of working hard to hear, for I was told that I didnt have enough hearing loss for a device, that was in the 89's and 90's so technology. And during that time period I would have many nights of vertigo when I first lay down to sleep. And it got worse after I served in the army for 9 years. And today I ha e hearing aids with tinnitus therapy in the hearing aid. And that help extremely, otherwise I would have many days I would want to pull my hair out many days.
No it don't get easier, but your body learns to adapt. You need to read the story about Helen Keller, for she overcame extreme odds.
At least with us we have our eyes to learn to hear with, and that's called lip reading. Helen Keller didn't, but she stayed strong. Had a great set of parents, and learned to o ercome. And live a wonderful happy life despite what happened to her.
Welcome to the family
Where you taking any medications at the time this happened? A lot of commonly prescribed medications can be ototoxic and cause irreversible hearing loss, if you were on any antibiotics that could've been the cause.
How have. things been for you. I may be going through this as I may have an autoimmune disease which might be attacking both ears. Very scary. Are you able to get the implant
My pawpaw who has hearing loss warned me abt listening to music very loud with headphones bcs he did it when he was younger, and I never listened to him and I wish I did, I now have hearing loss and it sucks bcs ppl get mad at me when they have to repeat themselves to me.
Last night I experienced a ringing sound in my left ear and then my hearing became muffled. I went to the EENT doctor about 15 hours later. She said that it was good I went early. She then prescribed me some anti vertigo drug and Polynerv 500 (Vitamin Bs). I still don't know If my hearing will come back. It's so hard with the constant ringing in my ear.
Did your hearing come back?
@@MickyBane Only a little hearing came back. I'm now dealing with the tinnitus.
Have you watched any CZcams videos of Julian Cowan Hill? I can't say whether his techniques will help - which they might - but at the very least you might find them comforting.
Cant you use hearing aids to mask the noise? Or get some noise back?
Did you try hyperbaric oxygen therapy?
Has anyone found anything to deal with not being able to tell where sounds are coming from? Mine ended up being a tumor and it's sounding like I'll be pretty much 100% deaf on that side once they take it out.
I already can't tell even what ROOM my phone's in when it's ringing and I'm really really sad I won't be able to spot random birds anymore when I'm out and about
Im really hoping there's a little device or something that could help
Hi I’m going thru the same thing. I was wondering if yours got any better?
I hope they can help you with hearing aids my audiologist at the hearing center I have a terrible right ear with tinnitus the phonak audio hearing aids I wear really reduce I don't notice my tinnitus anymore the hearing aid works in your brain please see a hearing center to fit you with hearing aids they will help you with tinnitus and with your balance and better direction good luck with my recommendation
2+ years in.. curious how you are doing these days? hope you are feeling less isolated, and doing well.
I can't listen to anything for long now but I want to comment because just 10 days ago, I all of a sudden lost my hearing in my right ear and since then have developed tinnitus so loud and at such a high frequency that I sometimes question that if this doesn't get better, my life is over. Will not deal with it. Other times, it seems better and I'm positive. Not right now. I've been getting steroid treatments and I've notice that about four hours after the prednisone, what had been an annoying radio static turns into - coalesces - speeds up - the static speeds up and morphs into one excruciatingly loud and high pitched dental drill on steel in my right ear. They said my hearing loss is total and that my odds are not good. I've been perked up by research to be dashed. Sorry I'm not making sense but I can't think. Wanted to comment. Anything about cochlear implants working that's legit. I'll watch later when I can handle it. Piercing headache right now.
I’m so sorry this happened to you. It’s so incredibly difficult, especially in the beginning. It took about 6 months for me to feel a little more normal and around the year mark it got a lot less difficult. I started therapy to help cope. Antidepressants also helped incredibly. Please please hang in there and reach out for help. It does get easier to cope as time passes. Your brain will learn to ignore the sound. I’m 2 years in and most days I only think about a few times. When it first happened I couldn’t think of anything else. The tinnitus was excruciating but I’ve slowly learned to adjust
@@Esliday Thank you. I'm going through phases right now. I'm also an alcoholic who quit four years ago. Keep wanting to go back. Not now. No family. I'm a musician with a studio. Decided not to cancel my piano lesson today though. It's crazy though, I almost feel like sometimes the tinnitus (which is an understatement - I HAD tinnitus - this is way more than run of the mill tinnitus) has a mind of its own. It is sometimes like static. That's it. Just static (with tones here and there) but then when I'm worn out or stressed, it gets faster. The static. It goes faster. And kind of swirls around. And then it morphs into something like a hornets nest that's been placed behind my right ear and then sealed off. And those hornets get mad and start buzzing really fast - until they finally coalesce into one really high frequency tone at around 13 kHz. And it's like a dentist's drill on steel just grinding into my head. And it's in there and you can't stop it. I've got tramadol which takes away the pain but the insane sensation is still there - it drives me absolutely insane. I almost wish - and I know this isn't it - but I wish I could just take an ice pick and bust my skull open to take it all out. It's that maddening. And other times... The static is almost relaxing. Petting my cat sometimes helps. And talking.... A lot. Anyway, that's where I'm at. One more intratympanic tomorrow. Tapering off the prednisone - which I think made it harder to deal with - 60 mgs of that really has me nervous. And they've got an MRI scheduled now. The doc thinks though it's related to a viral infection. Haven't had one recently if which I'm aware. And sometimes when zi decide to give up and drink (I haven't drunk - this is just when I let it go in my mind), it gets a lot better. Nights are the worst! Anyway, thanks for listening. Thanks for the post. I haven't watched it all yet. It makes me too emotional. I'm right now just trying not to go insane. It's like a Stephen King nightmare. Thank you so much! 💙 Having someone who knows helps a LOT.
@@cariboux2 mine gets like that too. Sometimes it beeps and swooshes too. It’s difficult to deal with but it has gotten better with time. I had an MRI also and it was fine. There’s no definitive answer. Just take it one day at a time. It will get easier
I can relate as well. I thought it was just ear wax, but wasn't :(
Buzzing ringing chirping and can only hear out of the left ear with a hearing aid and depressed cause I also had a stroke and on disability and feel abandoned.
Iv been suffering SSHL in my right ear.waiting for science innovation for passing quality life.
I had a stroke my right hearing gone along with balance and eye focusing
I’m really astonished that this is happening more and more often.I felt bad for the youngsters out there.I’m 53 right now .(So I enjoyed a lot of hearing already I still missing my hearing days )My journey on this SSNHL started 5 years ago right ese then 3 years ago (3 months into pandemic times)..Would like thank people like you that takes the time to share in full your experience and let everyone knows that We are not alone!!!Also for everyone whom is out there dealing with this situation HANG ON ,Be strong look around and you will always find someone dealing with a harder situation than yours.Enjoy the ride (Life)!!!
Hi ! How are you now? It happens to me to. Please tell me about the noise!! You still have it??
This happened to me but symptoms were the other way around. I had pain in one side of my head then it moved to my right side I had vertigo and tinnitus. Really loud. Couldn't sleep. Then at work I was on a zoom meeting I put headphones on and thought the right side wasn't working. I got home and in the morning it couldn't hear in right ear. Git steroids hearing came came after 6 or so weeks. But I couldn't decipher noises everything was mixed up
My sudden hearing loss was cause by the flu A that attacked my right ear.
Being unable to hear was driving me crazy. My ear started to hear a little better on my left ear because of the right being deaf.
This happened at end of March 2022.
Edit:
I still have ringing in my right ear.
Do you know for sure it was from flu? When it happened to me in my right ear, I had a COVID test and everything came back negative. I also did a Lyme disease test and it came back negative as well. I still don't understand why.
@@DR-di3kt
Ent told me it was from the flu. He had other patients pop up during my visit with the same complaint after having flu A.
@@luisaarana6768 Did you regain any hearing back in your right ear?
D R Yes . My doctor gave me steroid pills and when that didn't work, he gave me steroid ear injection through my ear drum.
@@DR-di3kt Me too. I had profound hearing loss in my left hear due to idiopathic sudden sensorineural hearing loss. I woke up one day and felt numbness all around my left ear and an internal pressure. Internal pressure lasted till a week and my hearing was muffled, I thought I was having a cold or flu. After a week, I lost all the hearing on the left side and took three steroid injections into the middle ear. Treatment didn't help me restore my hearing. Still doctors haven't found a reason for my hearing loss! All reports are clear. I don't even understand what causes the hearing nerve to die all of a sudden.