A cystic fibrosis day-in-the-life with Gracie! CF Awareness Month đ
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- Äas pĆidĂĄn 29. 08. 2024
- đ„ We hope you tuned in to The Project last night to see Patrick Gowerâs latest Trikafta story with the wonderful Gracie! đ Thank you so very much for sharing your story.
We wanted to show you a little bit more of what Gracieâs day consists of when it comes to treatment.
âMy daily treatments often vary. I regularly have IV antibiotics, like in this video, which I manage in the mornings. When Iâm not on IVs I almost always have either oral antibiotics or nebulisers. I am fortunate that my pancreas functions normally and I donât need to take Creon. I do however do hoursâ worth of airway clearance to get the mucus out of my lungs before it settles each day.
I usually go day by day and depending on my energy levels after physio, thatâs how I navigate what Iâm going to do. Whether I go to uni or do work from home. Sometimes it can feel like a lot to manage, but its also what we CFers see as normal as this has always been our day to day.â
Watch a day in Gracieâs life, CF edition đ
If youâd like to support Kiwis with CF like Gracie, you can donate at www.giveafuture.org.nz
If you missed Gracieâs story on The Project, check it out here:
www.newshub.co...