Already pre ordered Ren😊Excited to have and hear it! Much love and take of yourself! You and Sam are the most lovely people! He just put out an acoustic for "see me " Much love to you both!
"You need to get a hobby" This made my blood boil. The insensitivity of some humans is mind boggling. Thank goodness you met the 3rd Angel. You did this Ren, your tenacious attitude, never giving up. So glad you found refuge within homes of others that understood your struggle with pain. I applaud your stubbornness and willingness to find help. If it only took love and admiration to heal, you would be in rude health. Keep going you remarkable man, paying it forward. Your Ali reach is connecting with the world. 🥊
@seth1455 common tactic with drs who don't know what's wrong. They go to the it's all in your mind. Push the latest drug for mh. Have you ever wondered why everyone gets the same antidepressants. Kick backs. People with me have this stigma that they just need to push through and be positive. This ruins lives 💔 as makes them much more severe. One dr told me drs should listen to patients more, the patients are giving you the clues. Many patients spend so much money trying as ren did. They fight hard and definitely not lack of positive attitude. You lose years of your life til you find the right dr diagnosis and treatment. We need funding as hiv got. Thank you for such a passionate response. So grateful to ren for telling his journey. Gives hope 🤍
I have a life altering illness like, Ren. I’m totally disabled. I used to be an athlete that traveled the world. Doctors told me to go on an anti-depressant. That there’s nothing wrong. Things to do that within the chronic illness community we know will make us worse. It’s pathetic tbh.
I wanted to add that because of your story, my son n law got tested for Lyme as he had a tick on him for some time as a kid. Test says he did have Lyme. Maybe why he has some health issues but, of course, doctors didn’t say this. You ARE spreading awareness. Bless your heart.
Ren your resilience and ability to seek out the humanity and good in others is remarkable considering everything you’ve been through. You deserve each of those angels. Thank you for sharing your journey. You are making a difference. The RENeffect is real!!! ❤
It’s so crazy that England and Wales have an average of 1500 cases Lyme disease a year and it’s nearly unheard of there but Texas has an average of 85 cases a year and everyone I know in Texas is aware and cautious of Lyme disease and its symptoms. I can’t believe it took so long for medical professionals to correctly diagnose Ren, it’s gut wrenching and heartbreaking to listen to his experience and walk with him through his memories of pain and suffering, it’s hard to share a story so detailed and personal like this but by sharing it he’s really saving the lives and souls of others. Others who may be suffering from Lyme disease and don’t know it, who have been given the worst cards in life and can’t see things getting better, and even those who just feel lost in the fog of life
Yeah. Lyme Disease is actually a huge issue in the UK, and yet, the awareness is abysmal, even among medical professionals. The really terrible part is that the test for Lyme is really basic and cheap. And while it might not show positive during the initial infection, a simple second test a few months later will be more reliable. And if caught early, treatment for Lyme is also fairly basic and inexpensive. It really is criminal that it isn't the standard protocol everywhere to just toss that test in, even if it's a longshot.
My doctor has refused to test me for Lyme for years, because the test is unreliable. I’m sure I have it. I wish it would have been caught (by diagnosis) years ago, when antibiotics could have helped. Now I have arthritis, and am in chronic pain, and looking for a new doctor.
I am a newborn neophyte, a follower of Ren. So I'm in the full story from the beginning. One thing I kept wondering was that it took a shocking amount of time to get the correct diagnosis. For example, in Poland there has been constant talk about ticks for years. I don't know the disease statistics, but I haven't met a single person who hasn't heard about it. And yes, if you are going to the forest or a meadows, it is best to check yourself thoroughly afterwards, and it is not for sporting. If you have dogs, not providing them with regular medical protection, is like a death sentence.
I think it depends where you are. I’m Uk born and raised and have always been aware of Lyme disease, due to living my life with working dogs and hunters.
It really does doesn't it? I'm also coming up on 20 years myself. Currently fighting insurance to cover the medical costs that have finally allowed me to have an almost normal life. Cards are tapped out, and there is no way to cover it this month. My appointment is on my birthday too top it off. Disability hearing keeps telling me I'm young enough that I may one day be OK. Yet my diagnoses are ALL degenerative......literally only getting worse every time I wake up. It makes me so furious that there are no words to describe the sinking dark void ahead of me. But listening to Ren tell his story helps a great deal more than I could ever have expected. I wish you the absolute best on your journey and hope things work out for you. 💖🙏💖
Im a Crohns Disease sufferer of over 10 years. Had multiple bowel surgeries, multiple courses of immunosuppressive drugs, steroids, and, right now, weekly injections. Music and Celtic get me through the week! YNWA 💚🍀
It's devastatingly sad to hear about your experience of being let down by the NHS. I worked for the NHS for eight years and saw far too many young people not being taken seriously. Please know that most of the staff are simply doing the best they can in a horribly stretched service. I know that this does not make up for your experience, but many people like myself feel desperately sad about the state of the service right now and how it lets down so many.
We all appricate and know with every cell of our being that the NHS is stretched and so are the staff; some do genuinely care. All are restricted by a system which doesnt meet the needs of the population. The NHS keeps you alive. It doesnt help you live. The guilt felt by patients for wanting help from a system that tells you its stretched, at capsity ect while tell you the patient that your 'complex'; is a truely painful guilt. The sort of guilt that makes you crawl into a hole and bother no one. Living a torturous exsistance watching rhe light change on the ceiling, while everyone thinks your out there living
Hopefully, one day soon, stem cell treatments will become more accessible. I'm so happy you met the third angel of your story. I truly feel he couldn't have found a more deserving person than you, Ren. You have been an angel in my life, so I thank you from the bottom of my heart. I'm still missing from my life. I've gone to 92 doctor appointments in the last year, all just to manage my MS, ME, and Fibromyalgia. America has much work to do .Right now, our pharmaceutical industry is the current mafia, and they love profiting off the sick!!
As someone who's been both let down & saved by the NHS, I think a lot of us know that most people working in it are doing their best under unacceptable circumstances. It sucks for all of us. I for one am so grateful for every kindness I've been shown & the many times people have gone out of their way to help me. I can only cross my fingers for the future after the election. I mean , I can also vote & encourage others to do the same. Don't forget your ID 😉
The NHS need re-educating, they are a nightmare they dont even treat Lyme disease even if you test positive for it, they need to change their attitude because it is on the increase and this year there are a huge amount of tics already
I think every single healthcare worker, nurse, and doctor should be made to watch these videos, in full (no edits!!!!)! I work in a hospital, and I see the lack of empathy, compassion, and understanding of the total process someone goes through with their illness. The absolute heartache of not knowing what's going on with you (or worse, nothing can be done to help you!!!), to the pure joy of being cured and gaining their lives back! For whatever reason, too many healthcare workers forget why they got into healthcare in the first place: to help make people's lives better! These videos are a real eye-opener!!! This takes real courage. Thank you!!!!
Greetings from Germany, My best friend died a few months ago when he was hit by a car. That shattered my whole world. Life felt unfair and like a constant pain. I've lost relatives before but it never felt like that. There was no disease, no old age, no nothing. He was only 20 and the biggest hustler I knew. I'm not gonna say that I'm fine by now but your stories and your music as well as watching many reactions to it have done great bits for me. So I want to sincerely thank you for putting your stuff out there. Much love
"you seem obsessed you should get a hobby" Me silently shrieking: OF COURSE HE'S "OBSESSED" IT'S F***ING WITH HIS LIFE!!! From one (probably former in my case) busker, I wish you well.
Right there, for a brief second at 16:21, is the woman in the bright orange crop top who drew my gaze from a thumbnail of a Big Push vid (I think it was War Pigs?) and made me click. That was the key that opened the door to Ren's music for me, and I've been a fan ever since. Thank you orange crop top girl, you changed my life for the better.
Ren these chapters have been one hell of an experience and journey and I'm so glad to be part of it! So proud of your strength and bravery ! Thank you and i see how hard you try. You are my absolute favorite and i adore you! Always here to support!❤❤❤
The fight that medical professionals have put up over the years is sickening. My friend’s beautiful intelligent son went down a horrible road of Lymes. The professional told her it was a behavioral issue and wanted to send him to a special ed for difficult slow kids. She self educated and became a warrior for him, eventually she found a series of treatments and diet that brought him back to life. The beautiful boy was well enough to start college a year early ( not the backward class) he is doing great. She is still speaking to groups and is pretty well known in our area. I always think about all the souls who didn’t have a warrior of their own. Thanks for sharing, it gives individuals hope and a hand to not feel so isolated
The whole world needs to know you Ren ,your music ,your story ,your chacacter ,your determination & strength ,your compassion & empathy ,your way of thinking ,your hope & your unselfish generousity in sharing it all with us is a gift that I for one treasure ,thankyou ❤ .... So EVERYONE EVERYONE please SHARE SHARE SHARE the fckn living daylights outta this phenomenal man's STUFF ‼️❤️🔥
I'm a minute in and already pissed off. I'm in Pennsylvania - we have over 8000 *reported* cases per year of Lymes. CDC estimates actual number at 10x that which are not reported. You would have gotten that test so so so long before you got it as just a routine test. My freaking DOG gets yearly Lyme tests.
What a story!!! An absolute rollercoaster of emotions. We've laughed with you, we've cried with you. But best of all we understand why you are as driven as you are..... you've ran with this gift of life given back to you and won't stop. That alone combined with your unbridled talent is a true force to be reckoned with and extremely rare to find Ren.....you deserve every success, nothing is unattainable for you......can not wait for the concluding Chapter 💙
I hurt..physically and emotionally sometimes. But i will always keep YOU as my guardian angel, to remind me that life and an empowered self makes me blessed indeed. I'll be working side by side with others in your community to help manifest your mission to bring awareness, research and treatment to the Million Missing. We won't let your suffering and bravery go for nothing. That's my promise.
I had doctors scoff at me when I suggested testing for Lyme’s here in FL. Medical attitude hasn’t changed much in the last 15 years. Doctors still downplay it. Still question why they should test for it. I know 2 people with permanent limitations from Lyme. One tested negative for it 10 times over a year with only the last test showing a positive result. I think too many doctors have little regard for their patients. I’m glad you found something that has worked. Your genius needs to be put out to the world Ren. I can’t imagine my emotional state if I’d never found your music.
How amazingly courageous and awe inspiring you are Ren. How glad we are that you are still here. You are loved greatly by hundreds of thousands of people. ❤
Today I feel hope. Thank you again for baring your soul with the selfless intent of spreading awareness and creating compassion for invisible illnesses. Much love and respect, Ren. ❤
its no exaggeration for me to say youve helped me still be here Ren. Ive never had a persons story resonate with me like yours did and i found you in the darkest chapter of my very bleak life. Thank you for everything Ren.
Something tells me your message will make it's way through - if not to medical professionals - then to would-be patients who won't be gaslit as easily as they might once have been. And to their supporters, us. We're quite capable of making some noise, together.
Maybe it's just me, but it seems that people who are truly good souls never feel like they deserve to be loved. They feel like they deserve to either be alone or used. But Ren, you deserve love, and to be able to trust, and be happy. You have gone through a living hell. One that could have broken you and made you a bitter, hateful individual. Instead, even as you were suffering, you tried to help others. And now that you are getting better, you are still trying to help and inspire others. You a a good man, a truly good man in your heart. And I hope you get the love and happiness you deserve.
God put that third angel in your life cause He will have you fulfill His purpose. Sometimes we’re put through the fire cause fire purifies. And now Ren, you’re fully ready and you’re fulfilling that purpose fully. Going through the flames was just the way to get you started. You have been doing it throughout all the process with you vlog. In this chapter He showed you the light and the path for you to follow. You’re amazing and always worthy of love and all through that process love was there with you proof of it is you still being here with us sharing your story and sharing love and empathy and hope to all of us in one way or another lost souls. Oh my dear Ren… you’re one of His biggest miracles. Thank you 🙏🏽 for trusting the process no matter how much it broke you. I’m so glad you’re here. He put you in my path for a reason and that reason is keeping me here everyday. Thanks again ❤
What a great way to tell your story and read your book for people like me with ADHD and a short attention span. 25 minutes is perfect for the average attention span. I too have been struggling with ME and know more than 4 specialists who don't read their own journals. Scary and lonely to be left hung out to dry but I keep searching and reading as you did. This series has been extremely depressing but important to me.
I grew up in the Hamptons on Long Island, NY. We have a lot of ticks. I got lymes when I was 12. It was the worst exhaustion I've ever experienced. My parents didn't believe how bad it was and would leave me to piss myself bc I didn't even have the strength for the bathroom. With antibiotics i was cured in time for it to not be lifelong. That's bc we grew up hearing the horror of ticks. Crazy how we share an ocean and the internet but we didn't share that information to children worldwide. It's a horrible and preventable disease and I'm so sorry Ren. I'm sorry the health system failed you and the world failed you.
Among the millions of little sperm that create life, only one keeps on swimming and fighting to find its way into the egg of life. You never stopped swimming and fighting with everything in you to stay in the game of Life. Everything is trying to kill us from the start, to believe differently is an illusion. We only evade and survive the inevitable, sometimes to our own amazement when we do stupid things. You are playing and winning the game in a special way, Ren. Teaching others the value of staying in the game.
The juxtaposition of your journey and the joy you bring to the world with your music leaves me awestruck. This is the song that made me follow the story instead of the artist….
Thank you for another chapter and for sharing your life with us all. Cannot wait for Troubles tomorrow so hope we can get it charting for you. Your strength and determination encourages others to keep fighting. You are a truly beautiful human being. Big love ❤
Hi Ren, thank you for sharing. Living painfree is truely a blessing, but I changed that to Living with pain I can cope with. Sry you had to go through so much so young, but it certainly made who you are today. Coping with Lots of problems since I was 24 but today I can wholehartedly say that I would not be who I am without my Story. Feeling blessed despite all of my chronic illness problems. Stay strong ❤
The more I know of your story the more real the person you become. It’s so crazy how much you have suffered, endured and persevered only to turn around and help others as much as possible, as soon as you’re feeling better! There’s not another human being like you man. Now, when you gonna jump on that Metro beat? 😂❤ Long live the RENegades!
THANK YOU REN FOR THE CHAPTERS OF THE MOST HIDEOUS LIFE IMAGABLE...MAD RESPECT N LOVE FOR U SIR...MY OLDEST SON (PASSED AWAY IN MAY OF 2017) WOULD HAVE LOVED U HAS MUCH AS I DO ...💝
Hello, my brother from the mother earth, I love you music, I love your message, I love your spirit, you're amazing, you help me get through times of hardship, you also help me understand what my wife goes through she has been diagnosed with fibromyalgia and I know you battle with some of the same symptoms and you always bring it you don't let your disability affects your ability, thank you, sir, I will continue to enjoy you from your songs
I have been following your music for over 5 years. It is a pleasure to watch your growth after such a horrific a health journey. It s great to see this documentary and I believe, Netflix is next for you :)
I wanted to write a proper comment since chapter one, but it is so difficult for me to find "good" words. I really don't know what to say. Something about how brave you are, how good it feels too listen to a person sharing themselves in such an authentic way, how hard it is to imagine the pain and suffering you have and had to endure. Many of the feelings you describe are familiar to me, but on a much lower scale, I can't even imagine how this must be in the intensity you experienced it. What I definitely take away from this is to be more patient with other people (at least I will try it). You never know what others are going through. You seemed to share a good part of your story before that, but as it turns out there is so much more and so many deeper layers to it. So I deeply appreciate you and your courage! May you life healthy, long and prosper 🖖💜
Your story is important in so many ways. I'm glad you decided to tell it. It contains just about everything we human beings are capable of - the good, the bad, the indifference and the clumsiness, as well as despair, hope, and endurance. I look forward to the next chapter, with gratitude to your angels.
I suffered for many years with Lyme disease as well. Repeated bells palsy, sunlight was excruciating, short term memory loss brain fog, pain, twitches etc. Ignored and blown off by doctors because they didn't know enough and didn't care to. Luckily I landed myself an angel doctor too. Brain scans show the white matter in the pons region... permanent damage from it. Who knows how it's still effecting me after all these years. Oil of oregano is still something I use and was prescribed by my 2nd Lymes Dr years later when I had a reoccurrence. It gets into all the hiding places that man made antibiotics do not. I'm so happy for you Ren.
I missed the premiere, ironically hanging with a friend with chronic illness brought on by HIV. Fantastic segment. Thank you, Ren, and your whole crew helping you accomplish this video sequence and premier. It's been amazing! I can't wait for tomorrow! And, of course, I've pre-ordered -- let's get this to No. 1!!!
I'm sitting here in tears! Tears of Sadness for the hell you have had to ensure at the hands of incompetent imbeciles, tears of admiration to you for your tenacious character. Tears of utter JOY that you were provided a path to HEALTH! THANK YOU for being so honest and vulnerable. Thank you for sharing YOU with us all! I have no clue how i found your Hi Ren video, but in the past 2 weeks, YOU have brought such hope to my 53 year old self!!! I have a much bigger desire to stop being stuck in my head and my PTSD, anxiety and depression...THANK YOU BEAUTIFUL REN!!
Chronic illness affects every aspect of life and is almost impossible to explain to healthy people. Sounds crazy but some food, additive or perfume can bring you down for days. Constantly having to explain your condition and to hear comments about how you’re overreacting or making stuff up is exhausting and frustrating. Respect for your openness, perseverance and vulnerability! ❤❤❤
Thank you for everything. Thank you for existing and making our lives better. Thank you for spreading awerness where lyme disease isnt know. Here in Quebec, Canada, every single person knows about it, and how if treated fast can be cured, yet if not lead to heavy consequences like you. It is heartbreaking to see how unknown it is to other country in a world like today. But thanks for bringing changes. And also thanks for your music. It is always with me, whether i feel happy or terrible or numb, i can always find whats best for me in your songs. Thanks for everything
1) Breaking my heart but bursting with admiration again for your sheer will to overcome. 2) Absolutely buzzing over that busking montage. Fucking awesome.
I found you for a reason, I'm working on a project to substantially reduce wasting disease and Lyme disease worldwide. I need a angel investor. My second project is building a prototype hydroelectric generator and use the profits to clean all waterways worldwide. Third project, reintroduce vegetation that removes contaminates from soil and brain eating amebas from waterways. I did the math, we can clean this mess up so people aren't desperate for resources anymore or reliant on governments or corporations. Your music is motivating, thank you for being here.
THE THEORY WAS NEVER THE STRONGEST. IT IS AND HAS ALWAYS BEEN SURVIVAL OF THE SPECIES BEST SUITED TO A SPECIFIC HABITATE- A COMPLETELY DIFFERENT CONCEPT! 🙄
Just waking up well is such a blessing. My friend has ME and another chronic disease that can’t express as well as you. This has helped me understand sooo much. 🙏🙏❤️
I can't believe how a human can be this strong. I only had a really rough childhood that gave me depression and social anxiety. I tried for a few years but somewhere i gave up. I'm still alive, yeah, but i'm not living a life worth living. I admire strong people like you that could dig themself out. I wish you only the best
Please hang in there find any one you can and tell them you are hurting friend! You too can overcome and a difficult painful childhood is also devastating! Please find hope some where!!
@@heididonaho296 thanks. I don't really have anyone. I distanced myself long ago from everyone because i convinced myself that i was not worth being loved. I also have no hobbies. All i do is distract myself, because if i don't, i will start thinking about depressing things. I will try to get better tho. I'm going to a therapist next month again, even tho i have little hope. Thank you for your kind words.
Thanks for sharing everything. I used to live in BTN but moved out eventually before Covid. I miss this city and It's a shame I never had the chance to see you live in the street. Glad you made it. Go ahead and keep rocking this world. You found peace, now share it
I’m sure I’m not alone when I point out that, like the angels that helped you thru dark times, you have become that for so many of us. I found HiRen in the midst of one of the darkest and most hopeless feeling times of my life, I honestly don’t know how bad it would’ve gotten without the beauty and inspiration of your art and story. Ty for surviving, creating and sharing yourself ✨🖤✨
So blessed to be watching this out of bed walking & thankful. So much love has come from your suffering it begs the question but answers the same as if it never was a question. Nothing has been pointless just as nothing is pointless. Love you Ren!
Crazy to see the “Global news” tv clips on the video. All 🇨🇦 broadcasting right there! Can also tell the background is Calgary so I’m interested to see how a bloke from Wales ends up in the great white north. :) glad you are sharing the journey.
You raising awareness and empathy for Lyme's and other extremely challenging conditions will definitely help a lot of people :) Looking forward to tomorrow :)
The small people who work for the NHS are saints, the people who have the final say, the ‘big’ people need a day in someone else’s shoes to see how it feels to be batted away time and time again ❤
There's a very good documentary on CZcams called "Lyme disease and the fight for recognition" worth watching for an insite into what it's like to live with. It on the D C documentary channel.
My mother was one of the first people to be diagnosed with Lyme's in Wisconsin. I was fairly young, maybe 10 (I'm now 50). They must have successfully diagnosed and treated her fairly quickly because she recovered fairly quickly I think (although parents don't always reveal hard times in their life to children). I actually thought they had decided they got the diagnosis wrong because her dentist had missed a dead tooth for a long time and once a root canal was performed she started feeling better. However, bringing up your story with her she indicated that they were separate issues and she had, in fact, been diagnosed correctly. We're so fortunate that diagnosed and treatment happened relatively quickly. I'm glad a competent doctor finally figured it out for you too, and treatment is giving you your life back. Hopefully your story will help many others.
1 more chapter before Troubles comes out!! Tomorrow's chapter is a happier one. Pre-order my new song here renmakesmusic.lnk.to/Troubles
Ordered!
Already pre ordered Ren😊Excited to have and hear it! Much love and take of yourself! You and Sam are the most lovely people! He just put out an acoustic for "see me " Much love to you both!
I love being part of your RENegade Community. You're so brave and courageous. Thank you Ren 🫶❤️✨️
Done : ) xx Can't wait to hear from you tomorrow. (My birthdaaay also lol)
❤ you showing love to Sam still.
"You need to get a hobby" This made my blood boil. The insensitivity of some humans is mind boggling. Thank goodness you met the 3rd Angel. You did this Ren, your tenacious attitude, never giving up. So glad you found refuge within homes of others that understood your struggle with pain. I applaud your stubbornness and willingness to find help. If it only took love and admiration to heal, you would be in rude health. Keep going you remarkable man, paying it forward. Your Ali reach is connecting with the world. 🥊
they also said "you seem obsessed" he's fighting for his life, WTF
@seth1455 common tactic with drs who don't know what's wrong. They go to the it's all in your mind.
Push the latest drug for mh.
Have you ever wondered why everyone gets the same antidepressants. Kick backs.
People with me have this stigma that they just need to push through and be positive.
This ruins lives 💔 as makes them much more severe.
One dr told me drs should listen to patients more, the patients are giving you the clues.
Many patients spend so much money trying as ren did.
They fight hard and definitely not lack of positive attitude.
You lose years of your life til you find the right dr diagnosis and treatment.
We need funding as hiv got.
Thank you for such a passionate response.
So grateful to ren for telling his journey.
Gives hope 🤍
I have a life altering illness like, Ren. I’m totally disabled. I used to be an athlete that traveled the world.
Doctors told me to go on an anti-depressant.
That there’s nothing wrong.
Things to do that within the chronic illness community we know will make us worse.
It’s pathetic tbh.
@@lancelotthanksalot7777 it is pathetic and very sad
I hope you can find some help
You've been leaving out an angel.
That angel is you 🕊
💯 😇
AMEN !!!
YES!
Amen. 🤍
I wanted to add that because of your story, my son n law got tested for Lyme as he had a tick on him for some time as a kid. Test says he did have Lyme. Maybe why he has some health issues but, of course, doctors didn’t say this. You ARE spreading awareness. Bless your heart.
My son was training in the army ..back in the day. He had 20 ticks stuck to him in his groin. He never got lyme . Miracle 💫🙏
I'm still awaiting results been 13 years of investigations 😢
@@katie-mariesavage4654 Can't believe 13 yrs ! Hurting - With no answers . Sorry 🙏 . 🫂
@carlahelin5203 😊 you're so right about Ren spreading awareness. I hope that your son-in-law manages to resolve his health issues.
"To be alive and not hurt is a blessing. To be alive and not hurt is all I want." This.
I dream about this too... Endometriosis my dark friend 😢
I can’t remember how it is to live without pain , I have fibromyalgia
this makes me feel bad about how im wasting my life ngl
It's crazy that you felt unlovable when i swear the world wants to hug you, Ren 💓
I agree 100%!!! Such a beautiful human being!!
Ren your resilience and ability to seek out the humanity and good in others is remarkable considering everything you’ve been through. You deserve each of those angels. Thank you for sharing your journey. You are making a difference. The RENeffect is real!!! ❤
It’s so crazy that England and Wales have an average of 1500 cases Lyme disease a year and it’s nearly unheard of there but Texas has an average of 85 cases a year and everyone I know in Texas is aware and cautious of Lyme disease and its symptoms. I can’t believe it took so long for medical professionals to correctly diagnose Ren, it’s gut wrenching and heartbreaking to listen to his experience and walk with him through his memories of pain and suffering, it’s hard to share a story so detailed and personal like this but by sharing it he’s really saving the lives and souls of others. Others who may be suffering from Lyme disease and don’t know it, who have been given the worst cards in life and can’t see things getting better, and even those who just feel lost in the fog of life
Yeah. Lyme Disease is actually a huge issue in the UK, and yet, the awareness is abysmal, even among medical professionals.
The really terrible part is that the test for Lyme is really basic and cheap. And while it might not show positive during the initial infection, a simple second test a few months later will be more reliable. And if caught early, treatment for Lyme is also fairly basic and inexpensive. It really is criminal that it isn't the standard protocol everywhere to just toss that test in, even if it's a longshot.
My doctor has refused to test me for Lyme for years, because the test is unreliable. I’m sure I have it. I wish it would have been caught (by diagnosis) years ago, when antibiotics could have helped. Now I have arthritis, and am in chronic pain, and looking for a new doctor.
I am a newborn neophyte, a follower of Ren. So I'm in the full story from the beginning. One thing I kept wondering was that it took a shocking amount of time to get the correct diagnosis. For example, in Poland there has been constant talk about ticks for years. I don't know the disease statistics, but I haven't met a single person who hasn't heard about it. And yes, if you are going to the forest or a meadows, it is best to check yourself thoroughly afterwards, and it is not for sporting. If you have dogs, not providing them with regular medical protection, is like a death sentence.
I think it depends where you are. I’m Uk born and raised and have always been aware of Lyme disease, due to living my life with working dogs and hunters.
The problem with the medical community is, there’s more money treating not curing.
As someone who has dealt with chronic pain for over 20 years....this one hit hard.
It really does doesn't it? I'm also coming up on 20 years myself. Currently fighting insurance to cover the medical costs that have finally allowed me to have an almost normal life. Cards are tapped out, and there is no way to cover it this month. My appointment is on my birthday too top it off. Disability hearing keeps telling me I'm young enough that I may one day be OK. Yet my diagnoses are ALL degenerative......literally only getting worse every time I wake up. It makes me so furious that there are no words to describe the sinking dark void ahead of me. But listening to Ren tell his story helps a great deal more than I could ever have expected. I wish you the absolute best on your journey and hope things work out for you. 💖🙏💖
@WhatTheWHAT524 so sorry to hear of the diverse struggles you've faced and are still facing.
Sending you prayers and a 🫂.
🙏💙
Im a Crohns Disease sufferer of over 10 years. Had multiple bowel surgeries, multiple courses of immunosuppressive drugs, steroids, and, right now, weekly injections.
Music and Celtic get me through the week! YNWA 💚🍀
Thank you, God, for helping this star shine again.
Mouth wide open, neck and arm hairs standing at attention, hanging on every word. What a gift to humanity!
Goosebumps!
Yes Ren is a True Gift From Above and He Gives the Gift of Understanding & that's One He// of a Gift. He Understands My & Many others Plight. ❤
Thank you for your words Brian. I’m speechless. This makes my 2 1/2 years of cancer treatment look like a joy ride
God Bless you Ren
@@lindaoconnor6783 😘❤️🫂
It's devastatingly sad to hear about your experience of being let down by the NHS. I worked for the NHS for eight years and saw far too many young people not being taken seriously. Please know that most of the staff are simply doing the best they can in a horribly stretched service. I know that this does not make up for your experience, but many people like myself feel desperately sad about the state of the service right now and how it lets down so many.
We all appricate and know with every cell of our being that the NHS is stretched and so are the staff; some do genuinely care. All are restricted by a system which doesnt meet the needs of the population.
The NHS keeps you alive. It doesnt help you live.
The guilt felt by patients for wanting help from a system that tells you its stretched, at capsity ect while tell you the patient that your 'complex'; is a truely painful guilt. The sort of guilt that makes you crawl into a hole and bother no one. Living a torturous exsistance watching rhe light change on the ceiling, while everyone thinks your out there living
Hopefully, one day soon, stem cell treatments will become more accessible. I'm so happy you met the third angel of your story. I truly feel he couldn't have found a more deserving person than you, Ren. You have been an angel in my life, so I thank you from the bottom of my heart. I'm still missing from my life. I've gone to 92 doctor appointments in the last year, all just to manage my MS, ME, and Fibromyalgia. America has much work to do .Right now, our pharmaceutical industry is the current mafia, and they love profiting off the sick!!
As someone who's been both let down & saved by the NHS, I think a lot of us know that most people working in it are doing their best under unacceptable circumstances. It sucks for all of us. I for one am so grateful for every kindness I've been shown & the many times people have gone out of their way to help me. I can only cross my fingers for the future after the election. I mean , I can also vote & encourage others to do the same. Don't forget your ID 😉
The NHS need re-educating, they are a nightmare they dont even treat Lyme disease even if you test positive for it, they need to change their attitude because it is on the increase and this year there are a huge amount of tics already
I think every single healthcare worker, nurse, and doctor should be made to watch these videos, in full (no edits!!!!)! I work in a hospital, and I see the lack of empathy, compassion, and understanding of the total process someone goes through with their illness. The absolute heartache of not knowing what's going on with you (or worse, nothing can be done to help you!!!), to the pure joy of being cured and gaining their lives back! For whatever reason, too many healthcare workers forget why they got into healthcare in the first place: to help make people's lives better! These videos are a real eye-opener!!! This takes real courage. Thank you!!!!
"Ren makes music, that's it." And it certainly is. 💙
Greetings from Germany,
My best friend died a few months ago when he was hit by a car.
That shattered my whole world. Life felt unfair and like a constant pain. I've lost relatives before but it never felt like that. There was no disease, no old age, no nothing. He was only 20 and the biggest hustler I knew.
I'm not gonna say that I'm fine by now but your stories and your music as well as watching many reactions to it have done great bits for me.
So I want to sincerely thank you for putting your stuff out there.
Much love
"you seem obsessed you should get a hobby"
Me silently shrieking: OF COURSE HE'S "OBSESSED" IT'S F***ING WITH HIS LIFE!!!
From one (probably former in my case) busker, I wish you well.
Right there, for a brief second at 16:21, is the woman in the bright orange crop top who drew my gaze from a thumbnail of a Big Push vid (I think it was War Pigs?) and made me click. That was the key that opened the door to Ren's music for me, and I've been a fan ever since. Thank you orange crop top girl, you changed my life for the better.
Oh Ren, there is nothing unlovable about you. Please know this 🙏 ❤
Ren these chapters have been one hell of an experience and journey and I'm so glad to be part of it! So proud of your strength and bravery ! Thank you and i see how hard you try. You are my absolute favorite and i adore you! Always here to support!❤❤❤
🎉🎉🎉❤
"Luck is a Karmic Consequence". Damn!
to be alive & not to hurt is a blessing 🤍
Thank god that nurse got you in time. You are truly special.
The fight that medical professionals have put up over the years is sickening. My friend’s beautiful intelligent son went down a horrible road of Lymes. The professional told her it was a behavioral issue and wanted to send him to a special ed for difficult slow kids. She self educated and became a warrior for him, eventually she found a series of treatments and diet that brought him back to life. The beautiful boy was well enough to start college a year early ( not the backward class) he is doing great. She is still speaking to groups and is pretty well known in our area. I always think about all the souls who didn’t have a warrior of their own. Thanks for sharing, it gives individuals hope and a hand to not feel so isolated
Hoping that all those affected by ME and Lyme (as well as other chronic illnesses) get to meet their own angels 💙
After yesterday's harrowing tale, it's so wonderful to get to the part where life starts to get better for you 🙏
The whole world needs to know you Ren ,your music ,your story ,your chacacter ,your determination & strength ,your compassion & empathy ,your way of thinking ,your hope & your unselfish generousity in sharing it all with us is a gift that I for one treasure ,thankyou ❤ .... So EVERYONE EVERYONE please SHARE SHARE SHARE the fckn living daylights outta this phenomenal man's STUFF ‼️❤️🔥
I cannot even finish watching this without seeing so much of me and the last 20 years of my life, in you. I can't stop crying and I don't cry.
When you have no words to describe your thoughts, you know what you have heard has hit hard. Nothing but admiration!
I'm a minute in and already pissed off. I'm in Pennsylvania - we have over 8000 *reported* cases per year of Lymes. CDC estimates actual number at 10x that which are not reported. You would have gotten that test so so so long before you got it as just a routine test. My freaking DOG gets yearly Lyme tests.
Not gunna lie , this has opened few old open wounds for me . But im Stronger now the age of 56 . You .....🌈
What a story!!! An absolute rollercoaster of emotions. We've laughed with you, we've cried with you. But best of all we understand why you are as driven as you are..... you've ran with this gift of life given back to you and won't stop. That alone combined with your unbridled talent is a true force to be reckoned with and extremely rare to find Ren.....you deserve every success, nothing is unattainable for you......can not wait for the concluding Chapter 💙
I hurt..physically and emotionally sometimes. But i will always keep YOU as my guardian angel, to remind me that life and an empowered self makes me blessed indeed. I'll be working side by side with others in your community to help manifest your mission to bring awareness, research and treatment to the Million Missing. We won't let your suffering and bravery go for nothing. That's my promise.
I had doctors scoff at me when I suggested testing for Lyme’s here in FL. Medical attitude hasn’t changed much in the last 15 years. Doctors still downplay it. Still question why they should test for it. I know 2 people with permanent limitations from Lyme. One tested negative for it 10 times over a year with only the last test showing a positive result. I think too many doctors have little regard for their patients. I’m glad you found something that has worked. Your genius needs to be put out to the world Ren. I can’t imagine my emotional state if I’d never found your music.
How amazingly courageous and awe inspiring you are Ren. How glad we are that you are still here. You are loved greatly by hundreds of thousands of people. ❤
Loved this chapter way more.
Finally some HOPE!
I probably will love the next chapter EVEN MORE!
Love, love, love. 🥰
❤
Today I feel hope. Thank you again for baring your soul with the selfless intent of spreading awareness and creating compassion for invisible illnesses. Much love and respect, Ren. ❤
its no exaggeration for me to say youve helped me still be here Ren. Ive never had a persons story resonate with me like yours did and i found you in the darkest chapter of my very bleak life. Thank you for everything Ren.
I love that you're sharing your story. Bless up kind brother.
Something tells me your message will make it's way through - if not to medical professionals - then to would-be patients who won't be gaslit as easily as they might once have been. And to their supporters, us. We're quite capable of making some noise, together.
Can’t wait for last chapter and troubles tomorrow…thank you Ren! So much love for you and everything you do ❤
It’s kind of surreal seeing this video of Blind Eyed used as it was my first exposure to Ren🤩
The healthcare services must do better.
Thank you, I have learned a lot. And thank you for sharing, even if it takes a lot too from you.
Maybe it's just me, but it seems that people who are truly good souls never feel like they deserve to be loved. They feel like they deserve to either be alone or used. But Ren, you deserve love, and to be able to trust, and be happy. You have gone through a living hell. One that could have broken you and made you a bitter, hateful individual. Instead, even as you were suffering, you tried to help others. And now that you are getting better, you are still trying to help and inspire others. You a a good man, a truly good man in your heart. And I hope you get the love and happiness you deserve.
God put that third angel in your life cause He will have you fulfill His purpose. Sometimes we’re put through the fire cause fire purifies. And now Ren, you’re fully ready and you’re fulfilling that purpose fully. Going through the flames was just the way to get you started. You have been doing it throughout all the process with you vlog. In this chapter He showed you the light and the path for you to follow. You’re amazing and always worthy of love and all through that process love was there with you proof of it is you still being here with us sharing your story and sharing love and empathy and hope to all of us in one way or another lost souls. Oh my dear Ren… you’re one of His biggest miracles. Thank you 🙏🏽 for trusting the process no matter how much it broke you. I’m so glad you’re here. He put you in my path for a reason and that reason is keeping me here everyday. Thanks again ❤
I don't know what you are going through, but may God bless you 🙏 ❤️ 🤗
@@TL-vp8uh Amén. God bless you more ❤️
If you couldn't love me at my worst, you don't deserve me at my best. That's one of my biggest take away from my journey so far ...
What a great way to tell your story and read your book for people like me with ADHD and a short attention span. 25 minutes is perfect for the average attention span. I too have been struggling with ME and know more than 4 specialists who don't read their own journals. Scary and lonely to be left hung out to dry but I keep searching and reading as you did. This series has been extremely depressing but important to me.
I grew up in the Hamptons on Long Island, NY. We have a lot of ticks. I got lymes when I was 12. It was the worst exhaustion I've ever experienced. My parents didn't believe how bad it was and would leave me to piss myself bc I didn't even have the strength for the bathroom. With antibiotics i was cured in time for it to not be lifelong. That's bc we grew up hearing the horror of ticks. Crazy how we share an ocean and the internet but we didn't share that information to children worldwide. It's a horrible and preventable disease and I'm so sorry Ren. I'm sorry the health system failed you and the world failed you.
RIP Joe Hughes 🕊🌹🕊
Among the millions of little sperm that create life, only one keeps on swimming and fighting to find its way into the egg of life. You never stopped swimming and fighting with everything in you to stay in the game of Life. Everything is trying to kill us from the start, to believe differently is an illusion. We only evade and survive the inevitable, sometimes to our own amazement when we do stupid things. You are playing and winning the game in a special way, Ren. Teaching others the value of staying in the game.
This.
The juxtaposition of your journey and the joy you bring to the world with your music leaves me awestruck. This is the song that made me follow the story instead of the artist….
Thank you for another chapter and for sharing your life with us all. Cannot wait for Troubles tomorrow so hope we can get it charting for you. Your strength and determination encourages others to keep fighting. You are a truly beautiful human being. Big love ❤
Hi Ren, thank you for sharing. Living painfree is truely a blessing, but I changed that to Living with pain I can cope with. Sry you had to go through so much so young, but it certainly made who you are today. Coping with Lots of problems since I was 24 but today I can wholehartedly say that I would not be who I am without my Story. Feeling blessed despite all of my chronic illness problems. Stay strong ❤
The more I know of your story the more real the person you become. It’s so crazy how much you have suffered, endured and persevered only to turn around and help others as much as possible, as soon as you’re feeling better! There’s not another human being like you man.
Now, when you gonna jump on that Metro beat? 😂❤
Long live the RENegades!
Thanks for bringing us along on your journey.❤
THANK YOU REN FOR THE CHAPTERS OF THE MOST HIDEOUS LIFE IMAGABLE...MAD RESPECT N LOVE FOR U SIR...MY OLDEST SON (PASSED AWAY IN MAY OF 2017) WOULD HAVE LOVED U HAS MUCH AS I DO ...💝
Much love ❤
Hello, my brother from the mother earth, I love you music, I love your message, I love your spirit, you're amazing, you help me get through times of hardship, you also help me understand what my wife goes through she has been diagnosed with fibromyalgia and I know you battle with some of the same symptoms and you always bring it you don't let your disability affects your ability, thank you, sir, I will continue to enjoy you from your songs
Man. That number 1 hits different after hearing your chapters so far, and it was already an unbelievable achievement.
Mind yourself ❤
I have been following your music for over 5 years. It is a pleasure to watch your growth after such a horrific a health journey. It s great to see this documentary and I believe, Netflix is next for you :)
I wanted to write a proper comment since chapter one, but it is so difficult for me to find "good" words. I really don't know what to say. Something about how brave you are, how good it feels too listen to a person sharing themselves in such an authentic way, how hard it is to imagine the pain and suffering you have and had to endure. Many of the feelings you describe are familiar to me, but on a much lower scale, I can't even imagine how this must be in the intensity you experienced it.
What I definitely take away from this is to be more patient with other people (at least I will try it). You never know what others are going through. You seemed to share a good part of your story before that, but as it turns out there is so much more and so many deeper layers to it.
So I deeply appreciate you and your courage!
May you life healthy, long and prosper 🖖💜
You said it perfectly 🥰
@@TL-vp8uh Awww ☺️, thank you 🥰
Your story is important in so many ways. I'm glad you decided to tell it. It contains just about everything we human beings are capable of - the good, the bad, the indifference and the clumsiness, as well as despair, hope, and endurance. I look forward to the next chapter, with gratitude to your angels.
I will never get this story out of my head. Your music has a huge reach.
I suffered for many years with Lyme disease as well. Repeated bells palsy, sunlight was excruciating, short term memory loss brain fog, pain, twitches etc. Ignored and blown off by doctors because they didn't know enough and didn't care to. Luckily I landed myself an angel doctor too. Brain scans show the white matter in the pons region... permanent damage from it. Who knows how it's still effecting me after all these years. Oil of oregano is still something I use and was prescribed by my 2nd Lymes Dr years later when I had a reoccurrence. It gets into all the hiding places that man made antibiotics do not. I'm so happy for you Ren.
Ren you amaze me each chapter. Thank you for taking us with you on this journey and revisiting those dark times. Lots of love to you!
I missed the premiere, ironically hanging with a friend with chronic illness brought on by HIV. Fantastic segment. Thank you, Ren, and your whole crew helping you accomplish this video sequence and premier. It's been amazing! I can't wait for tomorrow! And, of course, I've pre-ordered -- let's get this to No. 1!!!
Thanks for sharing so much of your life to help others ❤
I'm sitting here in tears! Tears of Sadness for the hell you have had to ensure at the hands of incompetent imbeciles, tears of admiration to you for your tenacious character. Tears of utter JOY that you were provided a path to HEALTH! THANK YOU for being so honest and vulnerable. Thank you for sharing YOU with us all! I have no clue how i found your Hi Ren video, but in the past 2 weeks, YOU have brought such hope to my 53 year old self!!!
I have a much bigger desire to stop being stuck in my head and my PTSD, anxiety and depression...THANK YOU BEAUTIFUL REN!!
Love you kid, keep shining bright, you are FAR from done.
man you really get the artist inside me vibrating, what am I gonna do with that energy?!
Make Art 😁 - czcams.com/video/CTLds5ufQ8Q/video.html
Chronic illness affects every aspect of life and is almost impossible to explain to healthy people. Sounds crazy but some food, additive or perfume can bring you down for days. Constantly having to explain your condition and to hear comments about how you’re overreacting or making stuff up is exhausting and frustrating. Respect for your openness, perseverance and vulnerability! ❤❤❤
Definitely got me when he talked about empathy!
Thank you for everything. Thank you for existing and making our lives better. Thank you for spreading awerness where lyme disease isnt know. Here in Quebec, Canada, every single person knows about it, and how if treated fast can be cured, yet if not lead to heavy consequences like you. It is heartbreaking to see how unknown it is to other country in a world like today. But thanks for bringing changes. And also thanks for your music. It is always with me, whether i feel happy or terrible or numb, i can always find whats best for me in your songs. Thanks for everything
1) Breaking my heart but bursting with admiration again for your sheer will to overcome.
2) Absolutely buzzing over that busking montage. Fucking awesome.
It still makes me tear up with happiness when I see that clip of Ren hearing he's gotten a #1 album. 💓
I found you for a reason, I'm working on a project to substantially reduce wasting disease and Lyme disease worldwide. I need a angel investor. My second project is building a prototype hydroelectric generator and use the profits to clean all waterways worldwide. Third project, reintroduce vegetation that removes contaminates from soil and brain eating amebas from waterways. I did the math, we can clean this mess up so people aren't desperate for resources anymore or reliant on governments or corporations.
Your music is motivating, thank you for being here.
THE THEORY WAS NEVER THE STRONGEST. IT IS AND HAS ALWAYS BEEN SURVIVAL OF THE SPECIES BEST SUITED TO A SPECIFIC HABITATE- A COMPLETELY DIFFERENT CONCEPT! 🙄
Just waking up well is such a blessing. My friend has ME and another chronic disease that can’t express as well as you.
This has helped me understand sooo much.
🙏🙏❤️
I can't believe how a human can be this strong. I only had a really rough childhood that gave me depression and social anxiety. I tried for a few years but somewhere i gave up. I'm still alive, yeah, but i'm not living a life worth living. I admire strong people like you that could dig themself out. I wish you only the best
Please hang in there find any one you can and tell them you are hurting friend! You too can overcome and a difficult painful childhood is also devastating! Please find hope some where!!
@@heididonaho296 thanks. I don't really have anyone. I distanced myself long ago from everyone because i convinced myself that i was not worth being loved. I also have no hobbies. All i do is distract myself, because if i don't, i will start thinking about depressing things. I will try to get better tho. I'm going to a therapist next month again, even tho i have little hope. Thank you for your kind words.
Thanks for sharing everything. I used to live in BTN but moved out eventually before Covid. I miss this city and It's a shame I never had the chance to see you live in the street. Glad you made it. Go ahead and keep rocking this world. You found peace, now share it
I’m sure I’m not alone when I point out that, like the angels that helped you thru dark times, you have become that for so many of us. I found HiRen in the midst of one of the darkest and most hopeless feeling times of my life, I honestly don’t know how bad it would’ve gotten without the beauty and inspiration of your art and story. Ty for surviving, creating and sharing yourself ✨🖤✨
My dad passed a few months ago he used to say if you got you health you got everything….👍🏽🐷✌🏼
Within the first 20 seconds, I could breathe again. Bless you, my man.
Weeping with joy for you and Sam the whole last few minutes from the Number #1 freak out scene…you guys are so adorable 😻💗🙏
So blessed to be watching this out of bed walking & thankful. So much love has come from your suffering it begs the question but answers the same as if it never was a question. Nothing has been pointless just as nothing is pointless. Love you Ren!
Crazy to see the “Global news” tv clips on the video. All 🇨🇦 broadcasting right there! Can also tell the background is Calgary so I’m interested to see how a bloke from Wales ends up in the great white north. :) glad you are sharing the journey.
I look forward every day to the next chapter and lovely to see a beautiful view my hometown in the background.
You raising awareness and empathy for Lyme's and other extremely challenging conditions will definitely help a lot of people :) Looking forward to tomorrow :)
Thank you. ME diagnose since 1998
And Borellia too...
Aw man you are needed to share this. It is appreciated greatly.
Empathy will save us - no better words. ❤
Thank you again Ren, you really are a force of nature and rest assured that you are loved for the human being and artist that you are. 💜
It would be interesting to know how Fontaine is doing these days. I hope she received a miracle too 🙏 ❤
The small people who work for the NHS are saints, the people who have the final say, the ‘big’ people need a day in someone else’s shoes to see how it feels to be batted away time and time again ❤
Thank you for your strength, openness, and honesty. We’re all better for it. ❤
I wish you Chapter happiness from now on Ren ❤️
Yes ..on wouds , and up wouds ❤ Let's make Troubles " An A 1 #Spotify
Never met someone so honest so inspirational and I never met you but I don't need two even though be a dream just thank you❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤
There's a very good documentary on CZcams called "Lyme disease and the fight for recognition" worth watching for an insite into what
it's like to live with.
It on the D C documentary channel.
this is a story of triumph, its sad and dark at times, but all stories of life are.
Dude all thoses chapters are quite emotional, but this one really made me cry. All the best.
My mother was one of the first people to be diagnosed with Lyme's in Wisconsin. I was fairly young, maybe 10 (I'm now 50). They must have successfully diagnosed and treated her fairly quickly because she recovered fairly quickly I think (although parents don't always reveal hard times in their life to children).
I actually thought they had decided they got the diagnosis wrong because her dentist had missed a dead tooth for a long time and once a root canal was performed she started feeling better. However, bringing up your story with her she indicated that they were separate issues and she had, in fact, been diagnosed correctly. We're so fortunate that diagnosed and treatment happened relatively quickly. I'm glad a competent doctor finally figured it out for you too, and treatment is giving you your life back. Hopefully your story will help many others.
Ren, it sounds like your mother is also one of the angels 😇