thanks for this video! its great to hear other narcoleptics talking about this kind of stuff, because i really believe it makes it easier when you know other people are experiencing the same thing! especially since symptoms other than sleepiness and cataplexy get ignored a lot when people talk about narcolepsy...
i have both types..i got diagnosed because of them too. i dont have cataplexy so it was hard for them. i see people standing over my bed they dont have features at all theyre just black figures. they even touch me and shake the bed...i thought the lucid thing would make it better for me too but it actually made it worse and even triggerd paralysis.
I hallucinate ALL the time, and sometimes i dont even know when i do until i confront a situation that i thought happened and it didnt because i had hallucinated the memory... this is the scary thing (though none of them are scary i only seen or hear / have memories of conversations that are real... like a convo with a friend ect...) also i have only seen things like a deer running down the road once, and a cat walking around the room.... I have narcolepsy.
also do you know of any support groups or anything? im having a harder time dealing with this then i thought i would, but all these forrums are completely useless, noone will ever get back to me and ive tried all the sites my doctor gave me..none of them help...ive been going everywhere looking for something, which is how i found you lol
thanks for this video! its great to hear other narcoleptics talking about this kind of stuff, because i really believe it makes it easier when you know other people are experiencing the same thing! especially since symptoms other than sleepiness and cataplexy get ignored a lot when people talk about narcolepsy...
I hope you get to do some for Channel Seven 'Sunday Night'.
i have both types..i got diagnosed because of them too. i dont have cataplexy so it was hard for them. i see people standing over my bed they dont have features at all theyre just black figures. they even touch me and shake the bed...i thought the lucid thing would make it better for me too but it actually made it worse and even triggerd paralysis.
I hallucinate ALL the time, and sometimes i dont even know when i do until i confront a situation that i thought happened and it didnt because i had hallucinated the memory... this is the scary thing (though none of them are scary i only seen or hear / have memories of conversations that are real... like a convo with a friend ect...) also i have only seen things like a deer running down the road once, and a cat walking around the room.... I have narcolepsy.
also do you know of any support groups or anything? im having a harder time dealing with this then i thought i would, but all these forrums are completely useless, noone will ever get back to me and ive tried all the sites my doctor gave me..none of them help...ive been going everywhere looking for something, which is how i found you lol
why isent the sound working? it cut out all of a sudden
Send me your email i will send you a TON of info resources and links / communities