Rachel's bad body odor diagnosis : trimethylaminuria TMAU 2007
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- čas přidán 20. 05. 2016
- Rachel gets diagnosed with Trimethylaminuria (TMAU) at 32, after 14 years of smell incidents. From UK Docu 2007 ; Help I smell of Fish (watch on youtube). Show says she is 301 TMAU case in UK. Now it's probably 1-1.5K or more. 'Mild' cases are not rare.
The show mentions people with 'TMAU' can smell of feces. 1 theory is this is because people with a FMO3 enzyme issue will smell of all FMO3 substrates (mostly sulfides and amines) and not just trimethylamine.
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my heart bleeds for people with this illness
Hey,
I just wanted to let you know that I actually started a TMAU Podcast on my channel, check out some of the video we've done so far:
czcams.com/video/klcsueYiosk/video.html
I'm also looking for some guests for the TMAU podcast. If you ever are interested, please feel free to email me:
tmauup@gmail.com
You are so kind
Does it bleed for me too. I almost killed myself because of it
It hurts always being considered the least.
Would charcoal help? It absorbs odors - like keeping charcoal packets your pockets? Just thinking out loud
Thank God for helping me find out about this horrible disease which I have suffered from since a child. Even my doctor was too ashamed to talk with me about it. I have lived in humility forty years while thinking I was all alone, on my knees crying out to God in tears. I don’t know why I didn’t research it myself sooner, except for the pure shame of it. I couldn’t even stand to type it in the search engine. Hold on tight and standing firm in your faith, y’all. I will be praying for you and all fellow sufferers.
Patricia Link I know something that might help.. It was done to me when I was 13, not sure if it’ll work for adults too but you can try.. submerge your body in a tub with vinegar , and leave it for like 10 mins.. do this everyday for a month.. the metabolism should change.. don’t put any around your face thou.
she's not alone
I totally understand. Suddenly waking up with this condition is overwhelming. People chatter behind your back. Sigh. If they only knew the suffering that's happening inside trying to fight this disorder everyday of your life.
I have this condition it is extremely hard to live with, from the statements and comments from people around you
Hi how's live treating you know
I also have this syndrome
May God help you Amen czcams.com/video/uNGhN5JdCu4/video.html
Chloe Davies did you slove it isn’t there like pills for it
I also have to suffer with this condition...And it's really hard to live with the condition. Ask me any questions and I'll awnser them💖
Poor girl. You can just tell this is on her mind constantly. I hope she's doing better now.
Im a first year college student and tmau truly sucks, every class I sit elbow to elbow next to people and ik now they dont want to be rude and say it straight up that i smell bad or go take a shower but facial expressions and body movements do say alot and its extremely uncomfortable
Girl you're definitely not alone...
I’m so sorry..
I deal with this, I don't care anymore. I've dealt with a lifetime of humiliation. It hurts just always hoping that some day I could come out on top and be the best at something for a change. Is that so bad? I'd try so hard to be a well respected person in society. I just feel like it's a form of slavery. I also wish I had the ability to love others or form a loving relationship in real life.
So awful for her. She's so cute and seems sweet.
I have Trimethylaminuria as well as Aromatase excess syndrome. Here is
how I treat this im myself it works for me I have no detectable bad
smells anymore, im 43 it took me decades of experimenting to figure out a
working protocol for myself. I take 2000 mg of activated charcoal 3x
per day once when I get up once mid day one when i go to bed. Also I
take 4 target brand Fiber gummies 3x per day at the same time. I use
Nu-Salt Potassium based salt and never eat sodium based salts. I only
eat 2 meats ever they are chicken without skin and 99% fat free ground
turkey. I only eat from 1 pm to 6 pm daily. I never eat eggs, red meats
fish seafood , milk products etc. And I do mean never! I dont drink
alcohol of any-kind. I avoid all sugars but use equal fake sugar. I eat
lots of potatoes and corn but only in natural forms. I dont eat any
nuts or beans of any type. No soy or soy products. My diet is very
restricted and I never go out to eat. I do drink coffee and tea. I can
eat any kind of fruit. I eat a tons of apples and figs and cherry's and
plums all of which i grow. I have written down everything I have eaten
for the last 15 years. In my 20s I was very depressed and had given up.
Once i got dedicated to beating this life got better and livable. Also I
used to be in the 300lbs range but have been under 200 now for 13
years. It alot of work at first but nowadays its just routine. I have no
detectable odor under this protocol. This is a lifestyle not a cure. I
slipped up 6 months ago and had a steak cooked in butter, it was Wagyu
so I figured lets risk it. Within 12 hours I could smell some odor from
myself. It took a few days back 100% on the protocol to get back to
smell free. I have friend who also has Trimethylaminuria he literally
only eats 5 things chicken, lettuces, popcorn, fruit and sweet potatoes.
He drinks many drink types which are full sugar. He also has no
detectable smell and he is a hippie looking guy who only baths about
every 4 days or so. He does not take any supplements except a few
various gummy vitamins. He is very thin about 140 at 5 foot 10 or 11.
One thing is that just because you smell bad it does not mean you have
Trimethylaminuria. Tons of other things can cause bad smells. The only
way to know you have it for sure is to get a real test for it. The test
is a urine test and its hard to find places that can do it. They look at
your urine and see if you have trimethylamine in it. The key is to no
put any foods into your body that contain trimethylamine or that make
your body produce trimethylamine. If you actually have Trimethylaminuria
your body cannot break down trimethylamine. This disease is genetic so
both of your parents must have it or at least carry the gene for you to
get it. If you actually have this then you will smell worse based on
what you eat. Your body has no ability to break down trimethylamine so
the more that goes into your body the more you will smell. Try my
protocol for a few weeks its not really that hard in the long run. I
know it will work for anyone who actually has Trimethylaminuria. If
there is no trimethylamine in your body then you will not smell its
simple science.
I thought for years that I had TMAU but it turned out I had smelly hair syndrome and got it solved. please stay hopeful and remember your worth❤️❤️
What did you do, and how did you get solve??
Thank you. Been having the same symptoms since I was like 10. I've more or less intentionally avoided friendships just to avoid the awkwardness, and You can't imagine how it feels to even get a glimmer of a diagnosis. You guys really don't know how much I appreciate this after 18 years of suffering though this. If it wasn't for my wife and kids I probably honestly wouldn't even have yhe strength or will to keep going to work. In all fairness I may not have even been here.
I also have tmua basically we all have a similar story it sucks like hell
I really hope that they find a cure for these people. They deserve to be happy just like anyone else. Hopefully she’s avoiding fish and pork and drinking plenty of water. I know that won’t completely help but it may help to cut down on the smell.
Just 18 years old and suffering about this condition I don't know my live will continue
how is it going now? i suffer with the same and i’m 15
@@sabrinadavies3247 how r u doing ? I have same condition
I do have this problem after the birth of my first son 19 years ago. its really fishy bad odour all over. Doctors diagnose me with bacterial vaginosis but right after medication the problem always comes back i cry alot because i don't know what's going on in my body its just terrifying when people hold their noses or stay far away from you because of the smell. I want to isolate myself at times but i have to keep working for the sake of my children as i am their sole provider.
Im so sorry! How are you doing now?
how could it be a relief to know that u have uncurable condition like this?
What a horrible condition to have.
she has a goiter. she needs to get her thyroid checked
I don't know this disease and I don't have it, but I have a problem similar to it. Even after shower I stink some and no deodorant can completely solve the problem. The smell remains on clothes and it may remains after washing! So I use baking soda (Sodium bicarbonate) after shower and some other times, on underarms and between legs. And it works completely, I hope that can solve tmau patients problem a little. Try that.
Can you smell your odor? Or somebody said it to you? What are you using now to prevent body odor? My underarm stink and no deodorant can solve my problem
My underarm sweat a lot too
When I eat seafood my urine smells like fish. This literally just started 2yrs ago. And I'm not sure why. I don't smell like this at all only when I eat seafood. I thought I had this syndrome now I'm not sure. But I love seafood and won't stop eating it. But I'm trying different things to see what will help. I had a baby almost 4yrs ago haven't been with a man since. And I'm so embarrassed to tell my soon to be bf about this. I'm glad it's only my urine.
This sad asf😢😢
I am a freshmen in college and I have no friends because of TMAU. I live in Austin, Texas, would anyone want to hangout with me? I feel so lonely!
Same here. Eventualy we will find someone
I hope you found a friend. I know I would be but I'm rather far away :) All the best you are a champ you will pull through
I also suffer from this condition, it's really hard for a lot of people. Society is really mean sometimes. But, I'm grateful that I have a lot of friends..I've been down because they have to smell the smell of fish...
@@elizabethpalacios5546 do u have an Instagram acc? Or telegram etc
i am really sorry
So I had a rather short phase of maybe 6 to 9 months of this
embarrassing condition back in highschool. I realized that it was due to
the fact that I was taking in too much choline from eating too many
multivitamins a day. I cured this through prayer to Yah and activated
charcoal supplements, but it may not work for everyone since mine was
not inherited, rather due to my vitamin overuse. However, do NOT lose
hope.
i have a problem with my breath, noone seems to be able to help and people are rude and I feel so alone. :( I'll be on the bus and people will make rude comments, etc. :'(
Lucky you, I would rather have smelly breath then have my condition (Trimethylaminuria) I smell like rotten eggs and I get treated different, there is no cure for my condition :( you are lucky I hope u know that 😔 ❤️
I feel like her and yet not, because i can't help this problem, it's not like i"m doing it on purpose. :'(
Wow inspiring to be honest. With all medical conditions I have this one sounds terrible just terrible how sad
They could have just hid the poor kids face so embarrassing.
I have the same problem with people around me I I don't know what you do
I had TMAU and I cured it! I have a channel about it!
What's channel called
drink black tea...low choline diet...helps trust me
Tim Cox I've heard eating no meat, no sugary drinks, just fresh fruit, water, pineapple etc helps a lot
Tim Cox what do you eat throughout the day? I have trouble coming up with ideas.
Tim does it work for urine smell? I’m a dialysis patient and I know at times my skin smells of pungent urine.. even on my breath!! My Dr claims she doesn’t smell it but others complain when I’m around
I wasn't able to catch her description of her odor, did she say "rotten/sewage"?
She said a bad rancid smell
im 15 also have this problem i quit school always be alone
Hi how's is live treating you know
I am with u... Reply and we'll talk.
Me too. DM me if you want to talk because I am also a teen suffering with this
Don't give up
You can try use dr mist odor from watson, it really helps
Dude... That sucks.
Nobody is covering their noses or anything. Are they extras or something?
Hey,
I just wanted to let you know that I actually started a TMAU Podcast on my channel, check out some of the video we've done so far:
czcams.com/video/klcsueYiosk/video.html
I'm also looking for some guests for the TMAU podcast. If you ever are interested, please feel free to email me:
tmauup@gmail.com
My life
I’m very curious about this disease. Where do you smell from? Like ur pits? Privates? Hair? Everywhere? Is it just everywhere in ur skin?
Me too
The whole body
Everywhere.
Is Rachel still single?
yes
Everybody who’s still in love with FIFI La Fume from Tiny Toons that says
“I don’t care I still love her even with the smell”
Will she pretty and has a smell she a Human British version of FIFI La Fume
If you have that disease does it matter if you bathe
it doesn't work :/ bathing is useless when you have tmau
No
@@vivre5816 i think I have this because after I shower my room smells like garbage and bad food and i know it's because of me and when I sweat my sweat smells like fish.
No. It’s completely useless.
Sofro muito com isso😢
Try riboflavin (Vitamin B2)
Como é viver cm essa condição?
With this you are not human and you don't deserve respect and if you demand it then you are considered haughty or arrogant.
Angel H oh wow ima pray for you
Please check “the gut war” channel
Find a nice congenital anosmic man!
Wow im now realizing why this white chick i knew in high school had this condition. She was really pretty but i couldnt get past that smell so i stopped hanging out with her lol. I thought it was me because nobody i knew said anything about it. God i feel bad for her now.
Seems to be anxiety related?
Do it's biological, either a lack of enzyme of the enzyme isn't working properly, that's why it comes out through the pores, but like all health issues, stress makes the situation worse.