A brave lady with trimethylaminuria (TMAU) body odor appears on a UK TV show to be given advice about her diet. For more info on systemic body odors, see systemicbodyodo...
hi i'm Reynan from philippines, and i have the same situation, i diagnosed TMAU last 2012, and i really hate TMAU, that is the reason why i stopped studying, there are so many people judging me about my smell, some of them laughing and bullying me, that is why sometimes i can't stop my self to hurt the people who bullying me, because i'm thinking that i have to hurt them to stop them bullying me,,, but now i realized that violence is not the answer to stop them, all i did is ignoring them and just let them judging, laughing, and bullying me, because i realized that i can still do all what i want to do, and i can still enjoy my life with this life breaker 'TMAU' , and also i realized that i can still achieve my goals by helping my self to get up and still frighting for my future and make my dream come true, and i learned how to accept that this is now a part of my life, and i think GOD gave me this because i think GOD want me to be a stronger person, i know that no amount of positive thinking can solve TMAU problem, but by helping ourselves and acceptance is the only way to survive TMAU, i'm sorry about my english, i'm not good ni english language,,
I have noticed (and so has family members) that certain times, I have really bad onion, musty odor that can funk up a whole room extremely. My parents used to joke about it with me when I was four (especially my father) for having armpit odor. When puberty hit, it wasn't really a big deal until life started to get stressful and hectic. That was probably around 14/15. I never did anything about the issue, but now I feel that i should definitely change my diet because my diet is horrible. I thank those of you who have documented and made people aware of this or many would think they are alone.
I'm crying right now I didn't expect to watch this I'm not sure If I have this disorder but the systomps of having a bad odor that I been carrying for almost 2 years which affected my self esteem. But thank u for sharing ur story
i have the same issue. i dont smell myself and usually get clues from observing people around me. its very embarrassing and people can be so cruel about it. but i refuse to isolate myself. i usually get a fecal or skunky type smell.
We should all try and support each other. I am so saddened by the depression I'm seeing on here and what I'm experiencing personally. I've tried lots of things and currently am taking probiotics and cranberry pills, plus take b-complex after each meal for the B2. Wish me luck, I will be job hunting soon. Keep ya head up and keep praying.
I have this as well as all of you, ur not alone, I ml know what u all feel like looking over and seeing people covering there noses... Try to keep ur head up and never, ever let people bring u down, god has a plan for all of us, and it will all work out when the time is right, no sooner, stay strong... Ur not alone :(
fashionhistorylover I'm sorry you feel this way. Please know that God does love and care for you. No one understands more than he does. Jesus suffered more than anyone of us and he never sinned. Cast your cares on him because he cares for you.
Aira Castro We have to let this make us stronger, Ive been weakened but have decided to be open and completely honest with myself and others. This has taken the weight off my shoulders. Those sufferers know that weight which one feels you have to carry. Love for yourself is the key for psychological help.
Go look at the channel "the gut war", there you will find a link to a discord. There is a community of TMAU sufferers. If you developed it later in life you might be able to cure it, some people have.
I'm about ready to give up. I don't know if I have tmau but I have suffered from bad body odor since I was in middle school. I don't want to kill myself, I've thought about many times but I truly love my life its just this that I can't bare anymore. Help me somebody!
hey hope youre still fighting. I have bromhidrosis and it has affected my life drastically. Ive been unemployed for months bec of my odor and i rarely go out anymore. It's so depressing. Hope youre doing good.
Hey friends, we are doing wrong. We are letting our problem control our mental power although it cripples us physically. I have been down with this problem since long. There was time when I used to consider taking my own life because of social exclusion. Along the passage of time, I began to empower myself instead of waiting for people to understand my feelings. I know people do prick and pierce me , be it smelly or any other problem. It is pointless to expect anything from them. We can't let them rule us by getting affected from their unfavorable and humiliating reactions. These days, I keep motivating myself by patterning my food plan and feeling positive towards my environment. Why don't we befriend and form a group so that we fight together to overcome it?
Hi I am from Philippines. I have the same problem too. I am suffering from depression for almost a decade bcoz of this condition. I never had have gone to any test but I suspect it's TMAU.
I suffer from this and I just discovered that including cilantro(dahnia). Parsley, helps a lot. I'm using certain essential oils as well. This is a horrible condition and so anti social that causes depression...God help us
You have TMAU not because you are dirty, you are just lucky. : At home or in your personal & private space let the odour out freely, don’t control or block it. And in social situations use deodorants & antiperspirant (commercial/regular ones, if u r not comfortable with chemicals on products, don’t worry occasional use is fine, also try using natural deodorants like soda, apple cider vinegar, alum bar or powder, lime/lemon juice etc whichever is available at your place. For now Take them as solution/cure to the problem provided by God. At this stage it is not yet 100% curable. Just hang on a little longer. Also research more about the cause, what’s going on, what’s wrong, what is it etc....it helps when you have more knowledge about it ! PS: Forgive my English !
I know this video is old, but I hope someone sees this. I believe I have this, and it has gotten worse the past few years. About a year ago I tried using baking soda and it totally cut out the smell. The only thing is over time my body got used to it, and now it doesn’t work as well. But it helped me very well for almost a year so it’s worth a shot!!!!! I also spray a fresh scent under my arms like freshwater lavender. I’ve found that some deodorant scents like vanilla make it smell so much worse, and that more fresh scents can hide it more
I have this too for 5 years and I dont even eat meat or anythin...i really love fruits and soup too..and I take a shower a lot but lot of people makes fun of my smell and I cant make frnds couse of that!! I need help couse its hard
I sits really sad for me couse I have body odor for 5 years n I thought it wass my foult n I took shower a lot..people made fun of me n I cried a lot too...i need help!!!
I have this disease i have only recently heard of tmau.life is really hard atm.My partner has just lost her mother and i couldnt be there for her.i tried bt when her family were all together i could see all thier faces turn and twist in my presence
patrick ohere never give up man. I thought about the same thing as u dude its not worth it just cope with it as best as u can and go to the right people for help. Your not alone
You can still go out even you have this just ignored them there reaction there coughing stare in comment i know your pain this disease is destroying my life for 16 year in there is nothing i can do about it just to live with it
I know how ridiculous it feels when doctors turn indifferent towards this problems. They step back and easily turn away from their responsibility. They could make it a case study if they have failed to diagnose it with all procedure they have had so far. I can't help condemning few doctors I stopped by for my own diagnosis. What is so shameful about them is they embarrass us by symbolically questioning our sanitation. I have lost hope. Still, I have been googling the victims of this problems and been following what's been suggested about food plan.
Me too. I went to 35 Dr. Do not what to here . For me I stop milk and I eat Gluteen free Bread. No meat no fish . And all that I did all by my self . With no help from the Dr. But still it's ther. No body going to put me down. I did not ask for that. I ask my self y. I am good person.
גם לי יש את המחלה הנוראה הזאת . ביקרתי בכל כך הרבה רופאים והם אומרים לי שאין דבר כזה.אבל האנשים לידי אומרים לי בפנים. לי יש את המחלה הזאת עוד מילדותי. אני נשואה עם ילדים. מאד קשה לי ,אבל אני לא אתן לאף אחד להוריד אותי למטה . אני לא ביקשתי את המחלה הזאת. אני כל שבת הולכת לבית הכנסת. את יכולה לתאר לך מה אני עוברת. אני ממשיכה להגיע לבית הכנסת כל שבת. וזה עכשיו 9 שנים. האנשים לא רצו אותי שם וכולם דיברו עלי רע. עכשיו הם היתרגלו אילי. אני היפ קתי לאכול לחם ודברים מחיטה. לא אוכלת דגים ,בשר לא מוצרי חלב. מאחלת לך כל טוב . הרבה בריאות .
I’m also a sufferer; just binge-watching these videos in order not to feel so alone. It’s truly life-wrecking.
Erica Lopez may i ask ur symptoms
Go look at the channel "the gut war", there you will find a link to a discord. There is a community of TMAU sufferers.
I am crying as I watch this, because I have the same problem. As a result, I rarely go out.
......... sorry...
Me too I never socializing... because of the odour
when i go to bed at nigth i always think ....WHY ???
Sorry the same here.
hi i'm Reynan from philippines, and i have the same situation, i diagnosed TMAU last 2012, and i really hate TMAU, that is the reason why i stopped studying, there are so many people judging me about my smell, some of them laughing and bullying me, that is why sometimes i can't stop my self to hurt the people who bullying me, because i'm thinking that i have to hurt them to stop them bullying me,,, but now i realized that violence is not the answer to stop them, all i did is ignoring them and just let them judging, laughing, and bullying me, because i realized that i can still do all what i want to do, and i can still enjoy my life with this life breaker 'TMAU' , and also i realized that i can still achieve my goals by helping my self to get up and still frighting for my future and make my dream come true, and i learned how to accept that this is now a part of my life, and i think GOD gave me this because i think GOD want me to be a stronger person,
i know that no amount of positive thinking can solve TMAU problem, but by helping ourselves and acceptance is the only way to survive TMAU,
i'm sorry about my english, i'm not good ni english language,,
i can feel you. it's an internal body issue. we just try to avoid consuming high choline foods.
Brother may Allah help us I have the something u have and I go trough bad experiences but how's your situation know please comment me back
Ako din bro, saan ka nagpadiagnose ng tmau? Di ko pa sure kung tmau or fbo ung sakin
God continue to keep you strong
Try kombucha and kefir. Trust me
I have noticed (and so has family members) that certain times, I have really bad onion, musty odor that can funk up a whole room extremely. My parents used to joke about it with me when I was four (especially my father) for having armpit odor. When puberty hit, it wasn't really a big deal until life started to get stressful and hectic. That was probably around 14/15. I never did anything about the issue, but now I feel that i should definitely change my diet because my diet is horrible. I thank those of you who have documented and made people aware of this or many would think they are alone.
have you tried killing the bacteria under your underarms? can u smell the odor on your skin?
Have you figured it out yet? Its probably hyperhidrosis and bronhidrosis
I'm crying right now I didn't expect to watch this I'm not sure If I have this disorder but the systomps of having a bad odor that I been carrying for almost 2 years which affected my self esteem.
But thank u for sharing ur story
I have this condition, I'm glad someone is getting better control over it. I hope they find a cure soon.
How did it start with you
It hit home when Ellie said emit a smell upto 15ft.sometimes ive heard people say i can smell him from here. GOD help me
Sorry about your experience. Focus on your diet. Relax. We are here for you. Lets talk about it. I know exactly how you feel.
How's your situation know ....i feeling to kill my self
Same thing happen to me at school
😢😢
i have the same issue. i dont smell myself and usually get clues from observing people around me. its very embarrassing and people can be so cruel about it. but i refuse to isolate myself. i usually get a fecal or skunky type smell.
Merryl Elliott did you find anything to help
Same
Stay strong Sister! Love and blessings to you.
@@user-tu5kp4ci9w a gut war - you can watch a good guy with the same problen
We should all try and support each other. I am so saddened by the depression I'm seeing on here and what I'm experiencing personally. I've tried lots of things and currently am taking probiotics and cranberry pills, plus take b-complex after each meal for the B2. Wish me luck, I will be job hunting soon. Keep ya head up and keep praying.
Loving Harris did anything help
Hi!Did it help you,I mean your diet and your medications?
They have chlorophyll drink that supposed to help ot a eternal deodorant
I have this as well as all of you, ur not alone, I ml know what u all feel like looking over and seeing people covering there noses... Try to keep ur head up and never, ever let people bring u down, god has a plan for all of us, and it will all work out when the time is right, no sooner, stay strong... Ur not alone
:(
This disease makes me doubt God exists or at least a loving one.
fashionhistorylover i feel the same 😞
+fashionhistorylover I've lost faith because of this. why would he let us go through the embarrassment and pain
fashionhistorylover I'm sorry you feel this way. Please know that God does love and care for you. No one understands more than he does. Jesus suffered more than anyone of us and he never sinned. Cast your cares on him because he cares for you.
Aira Castro We have to let this make us stronger, Ive been weakened but have decided to be open and completely honest with myself and others. This has taken the weight off my shoulders. Those sufferers know that weight which one feels you have to carry. Love for yourself is the key for psychological help.
I have the disease, I have lost jobs, can't use public transport (I either walk or cycle) despite taking a shower a day it will come back am in hell
same here... difficult to live.. before foods are happiness but now foods are my enemies... this s soo sad...
This disease is destroying my life too
Go look at the channel "the gut war", there you will find a link to a discord. There is a community of TMAU sufferers. If you developed it later in life you might be able to cure it, some people have.
I'm about ready to give up. I don't know if I have tmau but I have suffered from bad body odor since I was in middle school. I don't want to kill myself, I've thought about many times but I truly love my life its just this that I can't bare anymore. Help me somebody!
VaRetha Davis what are ur symptoms
hey hope youre still fighting. I have bromhidrosis and it has affected my life drastically. Ive been unemployed for months bec of my odor and i rarely go out anymore. It's so depressing. Hope youre doing good.
I am 51 I rarely go out people are very cruel. I feel totally alone I just want to just die sometime!
Loretta Caston me too I really don't want to live anymore I'm not happy and only 18
Kelly_Yoncé You hang in there, you are to important and pretty for that.
@@kelly__0507 me too
Hey friends, we are doing wrong. We are letting our problem control our mental power although it cripples us physically. I have been down with this problem since long. There was time when I used to consider taking my own life because of social exclusion. Along the passage of time, I began to empower myself instead of waiting for people to understand my feelings. I know people do prick and pierce me , be it smelly or any other problem. It is pointless to expect anything from them. We can't let them rule us by getting affected from their unfavorable and humiliating reactions. These days, I keep motivating myself by patterning my food plan and feeling positive towards my environment. Why don't we befriend and form a group so that we fight together to overcome it?
@@kelly__0507 How are you doing?? Are you still having problems with malodor?
Everyone should know about this struggle, so they won't be so cruel on the people that have this.
He's telling her things she already knows.. what was the point of going there???
The nutritionist was the one who helped her, not the useless guy.
Unfortunately, I figured out that I have this. Made me quit school and isolate.
Go look at the channel "the gut war", there you will find a link to a discord. There is a community of TMAU sufferers.
THEY DIDNT SOLVE ANYTHING.
Hi I am from Philippines. I have the same problem too. I am suffering from depression for almost a decade bcoz of this condition.
I never had have gone to any test but I suspect it's TMAU.
I suffer from this and I just discovered that including cilantro(dahnia). Parsley, helps a lot. I'm using certain essential oils as well. This is a horrible condition and so anti social that causes depression...God help us
Thank you Eli for doing this. I've learned a lot because of your experience. I will be able to help myself and my family.
we all have that same look we look okay but we have the miserable eyes
Cindymaru a Hidden Leaf Shinobi yes
I can't believe how similiar all your symptoms are to mine. Changing diets is very tough. Blessings.
You have TMAU not because you are dirty, you are just lucky.
: At home or in your personal & private space let the odour out freely, don’t control or block it. And in social situations use deodorants & antiperspirant (commercial/regular ones, if u r not comfortable with chemicals on products, don’t worry occasional use is fine, also try using natural deodorants like soda, apple cider vinegar, alum bar or powder, lime/lemon juice etc whichever is available at your place. For now Take them as solution/cure to the problem provided by God. At this stage it is not yet 100% curable. Just hang on a little longer.
Also research more about the cause, what’s going on, what’s wrong, what is it etc....it helps when you have more knowledge about it !
PS: Forgive my English !
I know this video is old, but I hope someone sees this. I believe I have this, and it has gotten worse the past few years. About a year ago I tried using baking soda and it totally cut out the smell. The only thing is over time my body got used to it, and now it doesn’t work as well. But it helped me very well for almost a year so it’s worth a shot!!!!! I also spray a fresh scent under my arms like freshwater lavender. I’ve found that some deodorant scents like vanilla make it smell so much worse, and that more fresh scents can hide it more
I have this too for 5 years and I dont even eat meat or anythin...i really love fruits and soup too..and I take a shower a lot but lot of people makes fun of my smell and I cant make frnds couse of that!! I need help couse its hard
This is so sad viewing these comments 😥😥
It’s awful that we have to endure this. Everyday is a struggle.
I sits really sad for me couse I have body odor for 5 years n I thought it wass my foult n I took shower a lot..people made fun of me n I cried a lot too...i need help!!!
Sera shukuru I hope we can at some point find a cure
My Dr said this was just the way my life would be. Not to worry. So frustrating....
Im just happy that im not alone..
I had tmau and I cured it! I have a video about it!
Please share the link to your video
I have this disease i have only recently heard of tmau.life is really hard atm.My partner has just lost her mother and i couldnt be there for her.i tried bt when her family were all together i could see all thier faces turn and twist in my presence
Sorry man
You are not alone. Please keep coming and talk about it.
At least you have a partner
@@lovehope3778 me also your not alone bro just be strong dont let your emotion brings you down be your self god is always there for you godbless!!
@patrick ohere
me also your not alone bro just be strong dont let your emotion brings you down be your self god is always there for you godbless!!
I believe I suffer from this too
Im at the brink almost suicidal.that was the last straw for me with this disease.
patrick ohere never give up man. I thought about the same thing as u dude its not worth it just cope with it as best as u can and go to the right people for help. Your not alone
Pray Patrick. Remember you are not alone. I love you.
fuck this shit bro fuck life I lost my job, pride, heart, family and my apartment cause the smell
Try kombucha or kefir. Trust me
You can still go out even you have this just ignored them there reaction there coughing stare in comment i know your pain this disease is destroying my life for 16 year in there is nothing i can do about it just to live with it
I've never heard of this before. Didn't know that this even exist
why not making community for this kind f people .... for social perpose and pyschology needs
same problem here i live in germany but doctors do not take me seriouse
I know how ridiculous it feels when doctors turn indifferent towards this problems. They step back and easily turn away from their responsibility. They could make it a case study if they have failed to diagnose it with all procedure they have had so far. I can't help condemning few doctors I stopped by for my own diagnosis. What is so shameful about them is they embarrass us by symbolically questioning our sanitation. I have lost hope. Still, I have been googling the victims of this problems and been following what's been suggested about food plan.
Let's communicate!I have the same problem.I just live with it.
Geht's dir jetzt besser?
How many slice of bread can we eat a day?
please help me....im from philippines
jeff martinez haha maswerte tayu hindi masyado maarte mga tao dto
Hirap pa din, lalo na pag may nagugustuhan ka na babae, tska di ka makapag work
Go look at the channel "the gut war", there you will find a link to a discord. There is a community of TMAU sufferers.
It's so tough. And when you think about how stupid it is you get even more mad. I play football and can't even take protein shakes...hate it
Just curious...when people with TMAU take a shower or bath does the smell go away temporarily? Or does the bath not make a difference?
Me too.
I went to 35 Dr.
Do not what to here .
For me I stop milk and I eat Gluteen free Bread.
No meat no fish .
And all that I did all by my self .
With no help from the Dr.
But still it's ther.
No body going to put me down.
I did not ask for that.
I ask my self y.
I am good person.
i live in isreal place help me, i have the same disease.
Sorry you have to experience what you are going through. Come and talk about it. We are here for you.
גם לי יש את המחלה הנוראה הזאת .
ביקרתי בכל כך הרבה רופאים והם אומרים לי שאין דבר כזה.אבל האנשים לידי אומרים לי בפנים.
לי יש את המחלה הזאת עוד מילדותי.
אני נשואה עם ילדים.
מאד קשה לי ,אבל אני לא אתן לאף אחד להוריד אותי למטה .
אני לא ביקשתי את המחלה הזאת.
אני כל שבת הולכת לבית הכנסת.
את יכולה לתאר לך מה אני עוברת.
אני ממשיכה להגיע לבית הכנסת כל שבת.
וזה עכשיו 9 שנים.
האנשים לא רצו אותי שם וכולם דיברו עלי רע.
עכשיו הם היתרגלו אילי.
אני היפ קתי לאכול לחם ודברים מחיטה.
לא אוכלת דגים ,בשר לא מוצרי חלב.
מאחלת לך כל טוב .
הרבה בריאות .
i am really sorry
I know I have this but I want to start vegan lifestyle but are some foods that I can eat .I supper confused please help me with this.
She sounds like me😪
This is very informative but can someone let me know what three stones are. I aware that it's British numbers . But I don't know how much it is.
a stone equals 14lbs. :)
thanks
i go out to but im wear mask to cover my face atleast im not feel shame
She should try the Raw Food Diet.
You need to get tested for ibs or chrohn's disease. Devrom or Nullo can help fecal odor. I am sorry that you are depressed.
Guys try kombucha/kefir. Excellent results
Chlorophyll and charcoal
I have it .
That hospital looks so fancy like most are grungy
Vinegar bath ?
i have diz shxt too...its stupid...i ju
st call them coughers!
do u still hv this problem
@greenbenjimin337 Me 2 ¡¡¡ I wish ...
Drink oregean tea