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I think the most ideal for us now is to make our own society so we can not be treated cruel, thats the best idea left i have now.

One person described my smell as ‘dog’. Could I have TMAU?

I have Trimethylaminuria as well as Aromatase excess syndrome. Here is how I treat this im myself it works for me I have no detectable bad smells anymore, im 43 it took me decades of experimenting to figure out a working protocol for myself. I take 2000 mg of activated charcoal 3x per day once when I get up once mid day one when i go to bed. Also I take 4 target brand Fiber gummies 3x per day at the same time. I use Nu-Salt Potassium based salt and never eat sodium based salts. I only eat 2 meats ever they are chicken without skin and 99% fat free ground turkey. I only eat from 1 pm to 6 pm daily. I never eat eggs, red meats fish seafood , milk products etc. And I do mean never! I dont drink alcohol of any-kind. I avoid all sugars but use equal fake sugar. I eat lots of potatoes and corn but only in natural forms. I dont eat any nuts or beans of any type. No soy or soy products. My diet is very restricted and I never go out to eat. I do drink coffee and tea. I can eat any kind of fruit. I eat a tons of apples and figs and cherry's and plums all of which i grow. I have written down everything I have eaten for the last 15 years. In my 20s I was very depressed and had given up. Once i got dedicated to beating this life got better and livable. Also I used to be in the 300lbs range but have been under 200 now for 13 years. It alot of work at first but nowadays its just routine. I have no detectable odor under this protocol. This is a lifestyle not a cure. I slipped up 6 months ago and had a steak cooked in butter, it was Wagyu so I figured lets risk it. Within 12 hours I could smell some odor from myself. It took a few days back 100% on the protocol to get back to smell free. I have friend who also has Trimethylaminuria he literally only eats 5 things chicken, lettuces, popcorn, fruit and sweet potatoes. He drinks many drink types which are full sugar. He also has no detectable smell and he is a hippie looking guy who only baths about every 4 days or so. He does not take any supplements except a few various gummy vitamins. He is very thin about 140 at 5 foot 10 or 11. One thing is that just because you smell bad it does not mean you have Trimethylaminuria. Tons of other things can cause bad smells. The only way to know you have it for sure is to get a real test for it. The test is a urine test and its hard to find places that can do it. They look at your urine and see if you have trimethylamine in it. The key is to no put any foods into your body that contain trimethylamine or that make your body produce trimethylamine. If you actually have Trimethylaminuria your body cannot break down trimethylamine. This disease is genetic so both of your parents must have it or at least carry the gene for you to get it. If you actually have this then you will smell worse based on what you eat. Your body has no ability to break down trimethylamine so the more that goes into your body the more you will smell. Try my protocol for a few weeks its not really that hard in the long run. I know it will work for anyone who actually has Trimethylaminuria. If there is no trimethylamine in your body then you will not smell its simple science.

She's hot and I have no sense of smell so...

I also have tmua basically we all have a similar story it sucks like hell

So I had a rather short phase of maybe 6 to 9 months of this embarrassing condition back in highschool. I realized that it was due to the fact that I was taking in too much choline from eating too many multivitamins a day. I cured this through prayer to Yah and activated charcoal supplements, but it may not work for everyone since mine was not inherited, rather due to my vitamin overuse. However, do NOT lose hope.

So I had a rather short phase of maybe 6 to 9 months of this embarrassing condition back in highschool. I realized that it was due to the fact that I was taking in too much choline from eating too many multivitamins a day. I cured this through prayer to Yah and activated charcoal supplements, but it may not work for everyone since mine was not inherited, rather due to my vitamin overuse. However, do NOT lose hope.

So I had a rather short phase of maybe 6 to 9 months of this embarrassing condition back in highschool. I realized that it was due to the fact that I was taking in too much choline from eating too many multivitamins a day. I cured this through prayer to Yah and activated charcoal supplements, but it may not work for everyone since mine was not inherited, rather due to my vitamin overuse. However, do NOT lose hope.

When I eat seafood my urine smells like fish. This literally just started 2yrs ago. And I'm not sure why. I don't smell like this at all only when I eat seafood. I thought I had this syndrome now I'm not sure. But I love seafood and won't stop eating it. But I'm trying different things to see what will help. I had a baby almost 4yrs ago haven't been with a man since. And I'm so embarrassed to tell my soon to be bf about this. I'm glad it's only my urine.

Check out the channel The Gut War. He has helped lots of people cure their tmau2...the kind that develops after birth. I'm not sure if his technique works if you're born with it.

If this affects 1% that’s a heck of a lot of people....where are they?

Wait so there is a cure for TMAU?

It really seems to be a British Isles thing. I've never, ever, encountered it except for my trips there.

You have TMAU not because you are dirty, you are just lucky. : At home or in your personal & private space let the odour out freely, don’t control or block it. And in social situations use deodorants & antiperspirant (commercial/regular ones, if u r not comfortable with chemicals on products, don’t worry occasional use is fine, also try using natural deodorants like soda, apple cider vinegar, alum bar or powder, lime/lemon juice etc whichever is available at your place. For now Take them as solution/cure to the problem provided by God. At this stage it is not yet 100% curable. Just hang on a little longer. Also research more about the cause, what’s going on, what’s wrong, what is it etc....it helps when you have more knowledge about it ! PS: Forgive my English !

So cruel

So awful for her. She's so cute and seems sweet.

Poor girl. You can just tell this is on her mind constantly. I hope she's doing better now.

Seems to be anxiety related?

Wow inspiring to be honest. With all medical conditions I have this one sounds terrible just terrible how sad

I'm crying right now I didn't expect to watch this I'm not sure If I have this disorder but the systomps of having a bad odor that I been carrying for almost 2 years which affected my self esteem. But thank u for sharing ur story

What a horrible condition to have.

Check out cure trimethylaminuria youtuber if u suffer from fish odor or u think u might be check him out

Girl you're definitely not alone...

Does anyone know what her diet was as we all could try it

Everybody who’s still in love with FIFI La Fume from Tiny Toons that says “I don’t care I still love her even with the smell” Will she pretty and has a smell she a Human British version of FIFI La Fume

My life

Come join the discord group where We talk about this condition and beat it

There is a cureeeeeeeee come to join the Discord group online where we talk about microbiome

Please check “the gut war” channel

Just curious...when people with TMAU take a shower or bath does the smell go away temporarily? Or does the bath not make a difference?

I have the same thing too for the past 3 years. Airports and waiting on any queues are the worst. Eating any sugar makes it worst too. I think it is candida and it’s really hard to beat it. The only solution is not to pray to God to get you out of this misery but to ask God to come in with you into the non stop shame and anxiety. Let God into your troubles and the almighty will find a way am sure. Stay strong! May we all be healed in Jesus name! Amen.

how could it be a relief to know that u have uncurable condition like this?

I fucking hate the medical establishment, they fucking know best. Her high levels of Trymethylamine, are related to coline and phosphatidylcholine intake, but they just wont tell her.

I have the same problem with people around me I I don't know what you do

I also have trymethylaminuria try kefir and kombucha

I totally understand. Suddenly waking up with this condition is overwhelming. People chatter behind your back. Sigh. If they only knew the suffering that's happening inside trying to fight this disorder everyday of your life.

They shot her in the toilet😳😳😳😭

She sounds like me😪

I have this too.

I have suffered horrendously with this illness for many years. I tried everything to stop it inc low Choline diet. What works for me is Probiotics any I use actimel or the supermarket own brand and activated charcoal pills. I was my clothes always at 40c and always dry my clothes even in summer on the hottest days. I was a Taxi driver for a few months and got the cruellest feedback and know these were the only things that work along with a reduced choline diet but not excessively reduced.

I deal with this, I don't care anymore. I've dealt with a lifetime of humiliation. It hurts just always hoping that some day I could come out on top and be the best at something for a change. Is that so bad? I'd try so hard to be a well respected person in society. I just feel like it's a form of slavery. I also wish I had the ability to love others or form a loving relationship in real life.

If you have that disease does it matter if you bathe

This is really crazy I thought I was the only person going through this. but the only thing is Idk what I smell like and when I asks my family and friends they don’t smell anything but when I’m at work or around other ppl I don’t know, it seem they can smell me and the only way I can tell is by their Expression/ body reaction, they would start touching their noses or stand at a distance and it always feel like their talking/ making fun of me...and for me it’s been going on for about 2 years. And I believe it Thur my breath when I talk or Breathe out my nose that’s when I notice their reaction. So I tend to hold my breathe when I’m standing to close or passing by people. I brush almost 4 times a day I see the dentist regularly.

It is very possible this child will be looking at suicide in a few years.

I thought for years that I had TMAU but it turned out I had smelly hair syndrome and got it solved. please stay hopeful and remember your worth❤️❤️

I have the disease, I have lost jobs, can't use public transport (I either walk or cycle) despite taking a shower a day it will come back am in hell

Hi I am from Philippines. I have the same problem too. I am suffering from depression for almost a decade bcoz of this condition. I never had have gone to any test but I suspect it's TMAU.

My breath is always bad, have good hygiene, and Have visited dentists and diff types of doctors with no solution. People think I just choose to have bad hygiene and don’t care, but it’s a lot deeper than that

How many slice of bread can we eat a day?

This disease is destroying my life too