I Have Uncombable Hair Syndrome | BORN DIFFERENT
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- čas přidán 11. 08. 2022
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SHILAH Madison Calvert - Yin is 12 years old from Doreen, Melbourne. Shilah was diagnosed with Uncombable Hair Syndrome or ‘Spun Glass Hair’ when she was four years old. Until this point her mum was at a loss with how to manage Shilah’’s hair, which is thick, frizzy and matted at the root. Her hair can’t grow past a certain length, otherwise it breaks. It is hard to manage and damage occurs frequently. Shilah has received unwanted attention her whole life because of her unique look; judgment has come from other children at school and people on social media who have accused Shilah’s mum of being neglectful. Shilah and her mum now want to raise awareness of the genetic condition and use social media as a platform to celebrate why being different is beautiful.
Shilah's Instagram:
/ shilahmadison
Videographer: Meg Perrott
Producers: Georgia Embling, Kim Nguyen
Editor: Hailey Wang
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She has brittle bones and teeth but we're worried about her hair? They need to rename this disease smh
🙌
thank you!!! my point. her hair is no different to those with afros- conditions are when something impacts your health, such as brittle nails and teeth, which they barely spoke about
@@jessroutley1248 I've just read up on this condition and by early adulthood her hair will start to "appear normal". So that makes it even stranger that the serious symptoms aren't being talked about 🤷
Yeah I agree. At first I just thought it was a cosmetic thing but these other symptoms are more serious
Exactly. I hate the name of this condition. It's literally how black people hair grows (upward instead of downward).
Maybe this is just me but I don't see anything wrong with how her hair looks, looks normal to me. She doesn't look like your stereotypical white girl when it comes to her hair texture and there's honestly nothing wrong with that.
''stereotipical white girl'' there's no such things😂 ppl pretend to be a good person n care for n be kind but still say like this it's just switching hate
@@nekoneko5777 I hate when people act offended over simple stuff like this and act as if it's "showing hate". 😭When I was talking about "stereotypical white girl" I was obviously talking about her hair. She has "uncombable hair syndrome" but to me her hair just looks like an afro which most white girls don't have, in the video she seemed like she was feeling bad that her hair was different. There is already a stigma around afros in the natural hair community about it being "rough" and "hard to manage" and it seems that she's getting to experience a bit of that with her condition. She shouldn't feel bad about it because her hair looks fine to me.
@@byekitty5153 to me she just looks like someone who brushed out their curls so that's why the "typical white girl hair" comment made me chuckle a bit (since white people dont have pin straight hair) but I totally see what you mean. I'm a mixed race girl so her hair is like "whatever" to me I've been around irish girls with tons of tight curls that rivaled my afro. The name of the condition she has is so weird though. Her hair isnt a problem her brittle bones and teeth are though I undertsand how having extremely weak hair that breaks can be damaging to a girl self-esteem specially when they all have different length and it feels unmanageable like they said. But Im glad shes okay with it and accepted her hair, it makes her look like a little fairy ^^
@@byekitty5153 man black people being rac|st these days
@@byekitty5153 stop straightening your hair, it's white/Indian/Native American/middle easters appropriation.
I love how everyone is worried about how “uncombmable” her hair is when she has brittle bones and nails.
I believe the focus is on her hair because the hair is what’s causing her to be bullied. She’s not being tormented at school for her bones. I believe everyone is trying to give suggestions for how to help her better manage her hair.
Like hair is the sign of this disease and one of the first signs. And the obvious sign because you can see it. The hair gets very brittle and this is first obvious sign to this disease. You cannot see into the body and many diseases cause brittle bones and teeth but this one causes very brittle hair unlike others
Her hair might be uncombable but it actually looks pretty good It looks so fluffy like it’s made of cotton candy
I love it
I loved when she said she has set boundaries for people wanting to touch her hair❤People really don't understand how rude that is, she's not a dog to be petted😡
And black people collectively release a sigh of relief
Right!
My son (almost 30 now) is mixed, and has loved wearing his hair natural, and in a beautiful afro since I can remember. The amount of people that touch his hair is disgusting, that's not counting the "polite" people that ask first (they're definitely getting a no).
How can people think this is acceptable?
There was a brief period when it was silly and welcomed, but it quickly became rude and disrespectful.
He's not an animal, or a sideshow freak!
It’s ignorant of people to do that, but I think you should also calm down. Sounds like you internalized it and give it the meaning that: you are an “animal” that is being “petted.” Just say no and understand that people are dumb and curious instead of thinking of yourself as an animal
@@chanellee9762 You have alot of assumptions about me, when my comment was for the child in the video, but ok.
@@nikkic7776 I think she was referring to people that touch ethnic hair, not you. I could be wrong, but that's the way it sounded to me. ❤️
I can’t help but wonder if this beautiful girl were raised in an area with lots of black peers, if she would have been more normalized with her hair texture? I agree with the poster above who feels that the disease should be named to address the brittleness of bones and teeth rather than focusing on just hair…You are beautiful and young and wonderful Shila ❤️✌️
I think they might have said her hair breaks easily so it might be hard to slick it down with out breaking off but I might be wrong
But its not how it looks its because it easily breaks off just like her bons and teeth.
it isnt the texture of her hair, it looks straight, maybe a little wavy.. its just fluffly
I'm black and I was thinking the same thing. She would probably pass as mix race, and they would for sure be in touch with more creative ways to style her hair. Her hair reminds me of my sisters at her age.
Sooo when I saw this I thought the same thing - in other words, her parents prob just don't know how to do her hair.
I see some people getting upset that others are comparing her hair to afro textured hair. I think that's not to say that she doesn't actually have an issue with the hair (breaking off) but that maybe she could learn something from people with afro textured hair. It doesn't mean that this is the hair that she has but the methods that they seem to be using don't work for her. For example, the brushing. They seem to be trying to get her hair to lay down when it can't. So all in all, she could possibly learn something from people who's hair grows in a similar pattern.
I understand her hair is brittle and different from her family’s, but if she had African American friends she would see herself completely different. This is real life for many of us. We often struggle and have some of the most creativity when it comes to managing our hair and making it look neat. I agree that she could benefit from an ethic hair stylist who knows how to put moisture into her hair. Her mom, white doctors and the local hairstylists are probably not equipped to handle this situation,
This is interesting, is Black hair also brittle? Because one of her major issues is that it's brittle and damages easily, is it the same for Black people's hair, or only the looks but texture is not the same? Because she also has brittle bones and teeth as well due to this condition, I'm thinking Black people's hair are not brittle though?
@@flysmask it can be brittle and break when it's really dry
@@uhimgonnagotakeanap Thank you for clarifying. Man that sounds like a lot of work. I can further appreciate how much work Black women put into their routine now to look so good.
@@flysmask Black hair texture is some of the most fragile, much more so than straighter hair textures, and prone to breakage and dryness.
@@flysmask We have a lot of products that provide a lot of "slip" and intense moisture and hydration so that we can style our hair. It's a whole ordeal. Lol
Being black, this sounds so silly to me .. I’m sorry lol sounds like she needs to have a good ole black hair care regimen and use our products 😂
Yeah it will probably help. But it really isn't the same. Most people's hair gets damaged and brittle over time, her hair is basically brittle right out of the scalp which presents with certain unique challenges.
That’s what I thought Agree with you
100%
The ignorance is astonishing with you guys, wow. Is everyone in this comment section incapable of doin research?
😂😂😂
The amount of combing and brushing through dry hair makes the hairs in my neck stand up straight. Even though you cannot compare her hair to regular curly hair, she would probably benefit from treating it as curly hair. And she is beautiful the way she is, I hope she won't have problems with her teeth and brittle bones.
😯
I couldn't agree more. I wouldn't comb this hair at all. It makes it worse. I would use gel for curly hair with natural ingredients.
Only comb with your fingers or a wide tooth comb while having loads of conditioner in it and after that air dry with a good stay in conditioner in it. Anything more will just make it more frizzy and break the hair.
Yea she just needs moisturizer
Agreed, even if her hair is different than regular curly hair , dry brushing can be extremely damaging for brittle hair.... Like her mom is there complaining about frizz and then...still dry brushing her hair with a regular brush? I wonder what it would look like if she treats it as curly hair and just wet brushes it in the shower with a special brush or wide tooth comb even and then uses a good leave in conditioner and maybe a light gel ? I have curly hair and my hair would look like hers if I dry brushed it and although it's not exactly the same.... Still the way the mom treats her hair is the last thing you want to do in this situation...
I would trade my hair for hers in a heartbeat. I have alopecia. It started when I was just 14. It makes me look ill and old. Any hair is good hair, as long as it looks healthy! Cherish what you have.
Who ever named this I think they need to recheck that name because I think having brittle teeth and bones Is much more concerning and serious than having uncombable hair we have millions of people wit her type of hair In this world and we are not out hear calling our hair uncombable syndrome we just mosturize and treat our hair the way it should be treated not leaving it dry so it get more brittle, I am proud of this young lady for accepting her hair and lloving it
It’s actually ignorant to call it uncombable hair
Ikr? I think the name of this condition should be revamped.
I agree. It’s actually very racist!
@@Angela-mu5by lmao you're racist, claiming all black people can't comb their hair, her hair doesn't even look like 4c hair, geez
It's not. That's the condition. You can comb through any other hair type except this one. Which is why it's a condition. You guys really need to stop being ignorant and look up the condition for yourselves. The irony of you saying it's ignorant to call it that when the condition is quite literally that. Her hair cannot be manipulated in anyway. It will always be the same. If you're alluding to black ppls hair then you're still ignorant because we CAN manipulate our hair. we CAN comb our hair. People with this condition cannot change anything about their hair.
@@Angela-mu5by it's literally not. Her hair is not like back people's hair and it's not comparable to back people's hair. Please do better research and stop looking for ways to say something is racist. You're being ignorant. Don't get mad at me for calling you out.
Take her go a black hair care specialist! This “uncombable” hair resembles natural black hair. They honestly need to rename this disease 🤦🏽♀️
Right!? When they showed her hair wet briefly, I saw a wave pattern.
Wonder if they have really checked if they had black ancestors
@@trudy-annsmall9600 that's not how that condition works. It is not a racial thing.
@@basedblackgirl9920 it could be like albinism 🤷
@@unereats5541 it's not but I do see how you could confuse the two. People with albinism still are able to manipulate their hair
Idk but it makes her look ethereal. If I were her I would embrace it and use it to my style’s advantage. Be different
I think she should try straw curls, twist outs, braid outa with a sunny cut. goddess locks with the crinkled look could also be an option. finger waves for a classic look could be cute when she's older.
Great ideas!💡
As a black woman, trying to brush through my hair from root to end and dry never works. I wonder if she has tried working with her hair while it is wet/moisturized?
She could benefit from a black stylist giving her tips.
@@annicialadd7417 I don't think so, the condition quite literally is not the same as black hair. Did you guys watch the video or even do research? The hair is unable to be manipulated in anyways it cannot be combed to stay close to the scalp and it cannot be shaped in anyway. With people who do not have the condition their hair can be manipulated with heat, products, or even hair ties. Her hair literally cannot do anything but stay the way it is. Typically the hair goes back to it's "normal" state when the person gets older. The maoh t of ignorance to this condition comparing it to African American hair is astonishing and I'm baffled at some of y'all honestly. We have the answers at our finger tips and instead we spread misinformation because we feel a certain way about it? The only similarity this little girls hair has to black people's is the look of it.
@@basedblackgirl9920 if you took the time to look...B4 I made THIS comment I did research. The medical library goes into detail about how the hair strands are different shapes and that is what causes the issue. It goes into much detail and nowhere does it say anything about brittle bones and teeth as a symptom and if you look at the comment under "ghastly cretin" you will see that I posted the entire description copied and pasted from the medical library B4 I posted this. Also, if her hair can be braided it can be manipulated. I did see her hair in braids. I'm not saying that she has the hair texture of some black people but a black stylist would know more about different textures, techniques and products that could be useful.
@@annicialadd7417 nowhere did I said anything about brittle bones or teeth. Not sure where you got that from babes. But the problem is still with you comparing black hair to this.
@@annicialadd7417 The Mother says they don’t use heat or products. It does sound like it can be braided and treated like black hair, but they choose not too.
Trust black people know what to do with her hair
True
🤣
lol I was thinking the same thing
It's not the same 🤦🏾♀️. Her hair is STAIGHT. It's not textured!!!!! It's "uncombable" because it's brittle from her condition.
@@apara2005 our hair is brittle too 🤣😂
I don’t like that they’re referring to her hair as abnormal. Is it horrible to be questioned about possible African heritage? All hair is good hair. Learn how to care for that texture and work it! It’s beautiful to me.
I think the problem is that if she doesn't than that's offensive basically only implying black people only have hair like that even though black people's hair os not even like hers.
But her hair isn't exactly like that of black ppl, it's not curly
@@suslarry7 it’s literally 4C hair 🗿
@@Brothisisprivate her hair is straight, when 4c hair is supposed to be tight curls
@@Brothisisprivateit's not though, their aren't any coils
i am so proud of this young lady. shes a strong person to go on social media and raise awareness on this condition. and i love how supportive her family are also. 🙂👍
I feel that brushing the hair wet with loads of conditioner would be so much better than brushing dry 🤷♀️
“I have uncombable hair syndrome”.
Me, as a mixed race woman: “relatable”
I was looking for this comment, cause I was about to say the same... Mine is even worse 🤷🏾♀️
@@becca3415 she literally has a disorder and you're trying to make it about yourself disgusting
@@becca3415 trust it's not. Unless you have a severe form of this condition it's not the same nor is it worse.
It's just black people hair. Some of this lady's ancestors where black that's all
She’s not black 🤦🏽♀️🤦🏽♀️
I am so proud of this young lady
For a child this age to have the heart and the wisdom to say what you just said it is so heartwarming
And hopefully others can learn
Love yourself,
❤️🙏
I absolutely love her and how she loves her hair and doesn't care what other people think.
"I have uncombable hair"
*proceeds to comb hair*
She’s very unique and her hair doesn’t look bad it looks actually kind of cool she embraced who she is and they learned how to take care of her hair so who cares what other people say and think.
I completely agree . People are born with much more horrible conditions than that . She is so cool
Very nice video
how is she unique? this is what most black and mixed people go through. what she really needs is some parents who know how to do her hair. poor kid. they need to start using black moisturizes on it
@@beckystewartson6371 There you go turn it into a Racist thing very nice .
@@movieedge7370 Its none of my buisness but i really think you should leave the channel 'Truly' behind.
Theres so many inclusive CZcamsrs who are inclusive not for the sake of Views and are also not weird
about it.
Like Emma Thorne, Planarwalk, Hbomberguy.
Shes a gem. Its amazing what we can learn to make a positive. I hope shes getting treatment for the brittle bones and teeth as well.
"Uncombable hair syndrome is a condition that is characterized by dry, frizzy hair that cannot be combed flat. This condition develops in childhood, often between infancy and age 3, but can appear as late as age 12. Affected children have light-colored hair, described as blond or silvery with a glistening sheen.
Straight hair appears round, curly hair appears oblique, but uncombable hair is triangular or heart-shaped at the cross section and grooved from root to end. The hair stands out from the scalp and grows in different directions. It may be impossible to comb it flat against the scalp. (The condition only affects the hair of the scalp, not hair on other parts of the body)."
The above I found from googling the condition. To those saying she has curly, afro hair that's not quite the case. However I do agree that regardless of her hair type she should not have been bullied and should not have negative attention put on her hair. All hair is good hair. 💕
stop using white hair products and combing from root to ends, starting at the ends avoids knitting
Thank You’
✅✅✅✅💯❤️
I guarantee white shampoo is frying the hell out of her hair and ima guy.
I think they need your number sis! 🤣😭
That's not how this condition works.
This is LITERALLY what almost most black women go through with our type of hair texture. Our hair can be delicate and can break easily without proper care and good products and too much heat.
Her hair would probably be much cuter if she knew anything about black haircare 😅😅😅
@@SELVESTiR my exact thoughts!
Yeah it’s curly and they’re trying to make it straight…. I don’t get it 🤷🏼♀️
@@crystaldenee765 maybe it's the way she wants it. Who are you to judge
Not my hair. My hair doesn't break and very easy to comb and detangle. It's all about not following the stereotypical wash day routine social media has pushed on you.
1. Wash your hair frequently (at least 1x a week...I do it more).
2. Wash with sulfate shampoos (2x). To get rid of all styling products and oils.
3. Condition (rinse out, leave in, etc).
When you wash your hair once every 2 months of course it's going to fall out!!! Then wear tight weaves/braids on top of that.
P.S - I have long 4b/4a hair.
Charlotte, you are absolutely beautiful and unique. Your hair makes you that much more special. Keep spreading your love and kindness around. You're awesome!!!
She is the right attitude. She is owning who she is. Her Mom should be proud of her parenting job.
This is how I feel as a black woman looking at this. 🤦🏾♀️🤦🏾♀️🤦🏾♀️ somebody get her some Carol’s Daughters conditioner and keep your hair moisturized.
I was wondering had they tried going to a black hair dresser..I wasn't going to say at first but...🤷🏿♂️
Really? What is Carol's Daughters conditioner? My Lil granddaughter has kinky hair and I am the one that gives her baths and takes care of it.....I stopped washing it and I wet it when she in bath and then I use Miss Pinkys oil conditioner but- once a week it takes me around an hour to get all the rats out- she 2- it's a struggle!!!!! But my daughter won't comb it (says "she won't let me"- I set her down w the phone and DO IT) anyways- if I miss a week- it takes FOREVER and a day.........and she 2.......
Funny how a lot of black women are always the ones pushing themselves and others to wear anything but their hair. I'm a black man with extremely un combable hair and spent a lot of time as a young man trying to fix my hair because I was made to believe it wasn't true. I grew my hair out because it's impossible to comb and if I do, my scalp bleeds. Stop trying to make other people live by what you do. If you prefer to put chemicals, wear weaves and wigs on your hair while the rest of us don't, please keep it to yourself
@@williamriddick7508 that isn't "black people hair" did u LISTEN when they said it's genetic and causes brittle bones/teeth/fingernails????????
@@shannonobrien9922 duh we know it isn’t black hair type but it looks like African American hair type and a black hair dresser would be able to style her hair in a cute manageable style
There is nothing wrong with her hair. Her mother just doesn’t know how to manage it. Take her to a black salon and they will teach her how to properly care for her hair.
That's not how this condition works. Do more research.
That's exactly what I was thinking...
Ignorance, it’s a medical condition Lmaoo hairstylists aren’t gonna know more than doctors please. If they did then she wouldn’t still have the disease and her problem would be solved .
@@failuretolaunch3917 true but at least the stylist can help manage her hair , create something fun , unique and more socially acceptable so that at the very least her self esteem remains intact , while they are figuring out what they can do to help her medically.
Yup. Everybody should embrace and work with what they have.
I'm so glad she's learned to love her hair. She's a gorgeous young lady and I think she'll go far in life.❤️❤️
I think Shilah is awesome! I also really love that name, so pretty. You go girl, you're sending out such positive girl power and independence vibes! The teasing is just rolling off you, and you're handling everything so maturely, I can't say I was as mature as you when I was your age! Lol. Keep going and focus on living the best life you can! Loads of love from England 🇬🇧 ❤️
So black hair is considered uncombable hair syndrome
No, its the genetic disease that weakens her bones, teeth and hair.
THANK YOU!!! The fact that they call that a "syndrome" is so laughable!
Always has been.
She should get keratin treatments. Sleep with silk pillow cases and a bonnet. I have natural curls and all those things have helped a lot and hopefully they can help her as well. Worth a try 🤷🏻♀️
Well I think that you hair is beautiful and amazing just like you. A
Thank you so much for being so transparent and sharing your journey with us. Being the same is boring. Being unique and different is what makes you amazing . ❤️
Love Shilah's natural hair... She's a beautiful young person.🌟💫
WOC need to be the one's helping with her hair
African-Americans specifically are excellent with such things. The hairdressers would do a great job styling her hair. I hope she finds someone who can better assist with the hair.
It looks just fine. It's a cool style, and there are probably people who wish their hair looked like hers. 🤗
Yeah... Everyone is beautiful, she also have very cute baby face
Is this just me or does her hair make her look like an ethereal fairy from a fairy tale she’s beautiful
I love the way your hair looks . It’s beautiful
She has beautiful hair 💜 I don’t understand what some people’s problem is.
My niece hair was just like that growing up she found the right beauty salon & now her hair is down to her back & yes I do believe history has a lot to do with the texture of your hair....
Nothing wrong with your hair Baby Girl...♥️🖤💛💚 It's beautiful ❤️
What do you mean history has a lot to do with the texture of your hair?
@@NotAnotherKuromi I'm speaking on years of family Roots... History... Ancestry...Life Wayyyyyy Back When we wasn't even born...
Wow! Very inspirational. Being yourself is a great way to live full out.
Her hair reminds me of the paintings of angel babies. It’s so beautiful. I am glad she found self love because it truly is lovely. Perhaps she will get more length by putting her hair in a protective hair style with edge control if that’s what she wanted. But really her natural hair is fantastic and there is no reason to not accept her hair as it is.
A dude was a real ginger in high school and people called him 🥕Phil for the entire time! I met him few years later and he was honest about it ! He was still hurt and he told me he thought about committing suicide during high school! Teens can be so cruel 😭
Cheers from San Diego California
Sucks. Yeah redheaded kids are usually super bullied and usually hate their red hair and or freckles until adulthood. It's hard growing up when no one else looks like you. I so wanted dark skin and dark hair to look "normal". And back then there were no redhead celebrities. Thank God there are more now.
@@BrooklynAlien I love my red hair. Then again growing up watching Annie and Anne of Green Gables both helped. I’ve gotten lots of compliments on my hair too.
@@wintersprite yeah I had Annie growing up and friggin strawberry shortcake. Maybe it would have helped if I was a reader. I didn't find about Anne of green gables much later in life. Molly Ringwald helped a bit lol.
I do like my hair now though.
My youngest is like this. We manage their hair just fine but people are always in their face wanting to touch their hair and my child has social anxiety. It's rude when people bully and reject boundaries.
She’s so young and already so head strong and sure of herself. So inspiring 💜
She has a great family, too. All kids need a supportive & loving family, especially kids with unique traits 💖
i swear you’re on every CZcams video I watch. How’s your Japanese coming long?
I lux your hair !natural hair is the style now and forever! Stay blessed!
Her four braids were cute one her ♥️. Her hair routine for her hair type if she were my kid would be wash condition air dry and two French braids to see if it could maintain any length if that’s what they wanted. All that brushing every day if the hair is already brittle or breaks easily isn’t good.
Her hair is beautiful. She's beautiful. Inside and out.
Mops are definitely beautiful objects.
@@kallusive8986 Stop
@@anime4318 stop mop and drop
It's interesting how the brittle bones and teeth are just **implications** of the disease, but we're not shown any of those implications in the video. The focus is solely on the child's hair texture. Honestly, this hair is not falling out at the touch nor are clumps of it just dropping to the ground when she moves her head. If the mother was willing to consider that there are better ways to comb her hair (end to root) and that this is closely linked to 4a hair type and follow a few simple steps known as the L.O.C method which would require her to apply a liquid (water), then an oil(ex.coconut oil), and then a conditioner(a leave in conditioner) and put her hair into 2 braids/ponytail this child's hair would absolutely grow and retain length. Not only would it retain length and grow, but the texture would become much softer and likely show a softer wave or curl. We can keep referring to this hair under the Australian guidelines as a "disorder", but I think she would find a very different response from American physicians. Nevertheless, best wishes for the child!
It’s not 4a/4b hair. There is no curl pattern. It’s brittle and will break off. Just like she has brittle bones and enamel.
@@codename495 Where was the brittle bones/teeth? We didn't see her struggling with either in the video. According to the mother, those were simply IMPLICATIONS of a disease.
@@codename495 Also, there is a curl pattern present. You can see it in one of the pictures she shows.
@@codename495 she doesn't necessarily have brittle bones and teeth, but was just warned that this might be associated with the hair type
She is beautiful. I pray healing, health & happiness for her. 🙏🙂
Also brushing from the bottom of the hair to the top will help prevent breakage. One of the largest causes of hair breakage is from brushing hair root to bottom or from the middle of the hair down. Tip to roots helps if anyone has breakage
This condition should focus on the brittleness of the body, not just one portion. Because I really thought it was the hair only affected whenever hearing about this "hair" condition however teeth and bones are important to know about.
Chile Where my 4C Hair girls at 😂 . We need a documentary 💯
Smh 🤦♀
ok
Hello! 👋🏽
mood
Your hair is similar but yours doesn't make your bones, teeth and nails brittle as well. This is sadly an actual physical condition than can cause a lot of issues if they aren't careful.
She's beautiful! I get what people are saying about worrying more about her "uncombable" hair, as opposed to her brittle bones and teeth. However, it's worth noting that she's a young girl and would naturally be more conscious of her appearance. Her mum is clearly loving and nurturing, so I'm sure they're dealing with her brittle bones and teeth, behind the scenes...so it's clear that this particular video is focused on her hair. 🥰🥰
You are amazing young lady ❤️ Prayers for your brittle bone issues
The girl has texture that's all her hair has its own personality and it's electrical! I love it !
I must have this syndrome bc my hair is exactly like hers. Only difference is I'm black. Her hair looks great.
She has to be extremely careful with hers. That's the longest and fullest it's grown. Hopefully yours is much healthier.
Me too
Her hair follicles are more triangular than black hair which is eliptical/oval.
Right?!
BOMBASTIC side-eye from all the blacks with 4c hair...👀
Her hair is so full, unique, and absolutely gorgeous 😍
She’s so beautiful and has amazing supportive family. You’re so much more than your hair and beautiful just as you are ❤️
I really don't see anything wrong with it
Yeah but kids just want to fit in and look like everyone else. She might like it more and appreciate her uniqueness when she's older.
Keep shining baby girl!! You’re beautiful just the way you ARE!!! ❤ ❤ ❤ ❤
You are an inspiration, young Miss!!
🌻
I think it suits her! and she has so much volume!
I've seen this condition before and it makes me wonder or curious as to what stops them from braiding the hair down. There was a photo where she had four cornrows in the front and it stayed so why not all over. While they didn't mention it in the video the thing that makes her hair look like that is because the strands of hair are twisted, not like a curl... like a twizzler, and not all of the strands go in the same direction, which makes it brittle.
However I would think in a not tightly braided hairstyle it would give her hair a break as the tugging and pulling from the attempt to comb it isn't exactly helping .
Thought of that too, the braids were cute, they’re probably steering away from being accused of cultural appropriation
Agreed, definanly trying to avoid cultural appropriation. Not sure why she cant have two braids tho.
Beautiful girl, thank you for sharing your story ❤️
She’s beautiful!?❤ Thank you for sharing your story.
Despite how difficult it must be for her to look after her hair, it looks so beautiful on her and I so hope she can find more ways to help her condition and continue to look amazing
Literally sees your mom brushing your hair in the into. Seems pretty combable to me.
You are Unique And Beautiful
Shila ! ☺️❤️❤️❤️
Just ignore the haters !
Love what makes you different ! 👏
Keep on spreading joy and positivity💜☺️
As an African, her hair looks so much like mine. I thought that was just afro hair.... didn't think it was a condition. Looks great to me actually
Why wouldn't people who don't know her ask why, and if she may have black ancestry? Nobody should get annoyed about that. Those are logical questions. This is the first time in my 55 years I have heard of this. When people make jokes, go with it. Be proud of your hair, people only bully others when they can cause discomfort.
If you laugh with them and even exaggerate and own it, whatever it is, bullies go away. I think the hair is unique and totally ownable with pride. And when people have theories as to why your hair is like this, don't be angry or annoyed with them. They don't have a crystal ball. Just educate them quickly and most will be happy to learn.
well i assume it must be as annoying as when a black women is asked if she has white ancestry just because she has long hair
@@bluelight8664 if a black person has long *natural curly hair* in normal texture usually nobody asked that unless straightened.
@@d.h4421 exactly what is blue light talking about
It's a rare disorder that comes with other symptoms clearly stated in the video. Any white girl with 4c hair isn't going to be considered someone w this disorder. The structure of glass spun hair is fundamentaly distinct from both black and white hair textures
She's beautiful and I love her hair! Wonder since it's so delicate if she could do something like the sock roll on it, something that doesn't hurt it, something gentle if she wants a different look?
I see nothing wrong with her hair! It's awesome!! She is very pretty!!
For people that want to comment without looking into it further. It's not simply "black hair". It's more complicated than that. And many parents have said those routines haven't entirely helped either.
She looks uniquely beautiful. Nice to see she understands it doesn't affect her looks in a bad way.
This is standard WMD (white mom disorder). The young lady may be white, but it looks like she has Black or biracial hair and a well-meaning white mom. I am biracial and suffered WMD into early adulthood. The young lady needs some moisture and a patient Black friend or hair stylist. Unsure how feasible that is where they live.
Cringe
Putting in dread locks as a protective style would work in this case. It would protect from the damage, and she can get more length.
Beautiful little mama!! You fit right in with us sweetie… coarse curls don’t care 🫶🏾❤️🥰😝☝🏾🙌🏾
They need to take her to a black hair salon. They'll have her hair bone straight.
Uncombable hair syndrome??? Wait … can someone put this on Twitter and make something happen because you can’t be serious about naming an illness that in 2022.
My thoughts exactly
Woke police
A wide tooth comb may help stop breakage instead of just using a brush. You are blessed with so much natural volume that gently misting and scrunching your hair may achieve a bit of a beach wave look.
I wanna just put this out there:
Her hair is *NOT* comparable to Black hair. The reason it's called Uncombable Hair Syndrome is because her hair cuticle is shaped like a heart, rather than the typical circle and RIDICULOUSLY fragile. It tends to get easier to manage as the person gets older, but attempting to comb hair with this genetic condition can cause it to break off in large sections. Combing it wet - yes, even with conditioner - increases the chances of breakage because it makes the hair even weaker. Just because it looks like 4B/4C hair in need of some serious moisture, does not mean that it is.
Of course "it is comparable" to 4C hair. There are tons of comments on this thread comparing the hair types. In all seriousness, Black hair is diverse and you can't claim to know about all Black hair.
@@ThatSuzanneSchmid I can't claim to know about all black hair, but I CAN say that black hair texture isn't a genetic defect like Uncombable Hair Syndrome is. It doesn't matter how much you moisturize it, do treatments or put it in protective hairstyles, it will NEVER get better.
Breaks easily and doesn’t get past a certain point is definitely true of 4c hair
Truly never disappoints ❤️
they frequently do. this was a good one though.
That’s my hair type 😜 I’m a mix between African and white Norwegian
Just wash, use lots of conditioner, comb through it, and braid your hair (I do either one braid or two)
That’s all ☺️
Also when you remove the braids a few days later it looks so nice and wavy 😍
The mother brushing it while dry, yikes! Go to African saloon and learn some skills please 😖 My mother is white too but she went out of her way to learn from the African community because they know the hair well
I think her hair is lovely! It’s cute and fluffy!
She looks really pretty with this hair!❤
her hair is pretty normal to me.. an afro but blonde, it is simply a blonde afro????
I got a strong feeling both the mother and father have black DNA. And it has showed up in their beautiful daughter. Anyway, in australia, try and find some black that may be able to help with hair care
I think she's beautiful and being different is good.
Her hair is beautiful
I'm white and have very curly kinky ethnic hair. My whole life growing up my hair was an Afro. Then I went to a Latina hairdresser. She's an expert w/ ethnic hair. I now get Keratin treatments and it has been life changing!
How do you have ethnic hair as a white person you can have curly hair as a white woman
Just cause she white doesn't mean she isn't some what ethnic
@@girlidk6747 Maybe her mother lied about who her father is.
@@girlidk6747 look at the girl in the video. She has literally afro textured hair. It happens and I know three white people personally that have kinky hair. It's bizarre but it can happen.
@@hoganmisses7448 Um that’s not Afro texture it’s a disorder and I just said white woman can have curly hair
I think your hair looks awesome!!
My friend she’s indigenous and she has hair, all poofy and everywhere, always in my face (not a bad thing). She’s learnt how to style it, another friend of mine is black and has hair like this (not exactly) her mum always makes her amazing hairstyles