Teenager With Butterfly Skin Inspires Others | BORN DIFFERENT

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  • čas přidán 18. 06. 2024
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    Despite being born with an incredibly rare condition that causes his skin to blister and tear with the slightest touch - John Hudson Dilgen is inspiring people with his motivational speaking. John, 15, was born with Epidermolysis Bullosa, a condition that leaves him in constant pain and affects only one in every 50,000 children in the United States. On a daily basis, John has to have the majority of his body wrapped in bandages to save him from infections and further harm - around 95 percent of John’s body is covered in open wounds. To find out more, visit: www.ebresearch.org
    For more info, please visit: tunnel2towers.org
    The motivational work John does is for the EB Research Partnership: www.ebresearcg.org
    Video Credits:
    Videographer / director: Adam Gray
    Producer: Nora Hakramaj, Ruby Coote
    Editor: Beth Angus
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Komentáře • 4,8K

  • @xDigitalMonster
    @xDigitalMonster Před 5 lety +5466

    She’s a damn good nurse and he’s a strong young man.

    • @reeses5212
      @reeses5212 Před 5 lety +12

      Noones ever been more right

    • @Pseudochick01
      @Pseudochick01 Před 5 lety +14

      xDigitalMonster You're so damn right! 💪🏻👍🏻

    • @dhamani
      @dhamani Před 5 lety +5

      Ikr , I though he died , I remember when he was 11

    • @rntn7148
      @rntn7148 Před 5 lety +21

      I’m a potato
      I thought he passed away also.
      Edit: I was wrong. Just googled and the family is being given a new house this week!

    • @sopranomegs
      @sopranomegs Před 5 lety +13

      Rn Tn You’re probably thinking of Jonathan Pitre from Ontario, Canada. He passed away of EB this past April.

  • @hal3yamazing
    @hal3yamazing Před 5 lety +3321

    That nurse cried, she showed she cared for that young man on a level that not every nurse cares for their patient. She is what every nurse should strive to be as.

    • @cuppyrobertson7164
      @cuppyrobertson7164 Před 5 lety +28

      I think she's doing a good job but she needs to put up her hair. That very germy.

    • @madisonnorthrop52
      @madisonnorthrop52 Před 5 lety +8

      Cuppy Robertson have you ever worked in an ER? A lot of nurses wear their hair down.

    • @cuppyrobertson7164
      @cuppyrobertson7164 Před 5 lety +1

      @@madisonnorthrop52 What qualifies you to ask me?

    • @justme6781
      @justme6781 Před 5 lety +23

      Not really. To be a good nurse u need to be strong and not to be emotional too much:/

    • @floatingchimney
      @floatingchimney Před 5 lety +22

      No, that's absolutely WRONG thing to strive to be. It's pretty obvious you're not a nurse or don't work in a medical field, or most most importantly - you don't work at all.
      A nurse is a professional, she has a job to do and needs to do it on a professional level, with precision and attentiveness. Crying and being emotional is not what ANY medical worker should strive to be. Her job is to do her job first and foremost.

  • @dovahkiink.7870
    @dovahkiink.7870 Před 4 lety +768

    I got in shock when I saw him with the bandages off, I cannot even imagine how painful having those wounds is, I wish all the best for him.

    • @arianacabrera9443
      @arianacabrera9443 Před 4 lety +8

      Dovahkiin K. I think they compared it to like a burn dont know the degree but could you imagine?

    • @MrKrabs-zp7on
      @MrKrabs-zp7on Před 4 lety +2

      @@arianacabrera9443 They compared it to a 3rd degree burn i think, i'm a but late but yee

    • @andressaloiola8669
      @andressaloiola8669 Před 3 lety +7

      Him in the shower.... I just broke down crying inside, my heart is in pieces

    • @andressaloiola8669
      @andressaloiola8669 Před 3 lety +9

      @@MrKrabs-zp7on man... when your body is covered in 3rd degree burns the doctors put you in an induced coma because the pain is just unbearable... I can’t even imagine how he goes through this everyday

    • @SRBOMBONICA86
      @SRBOMBONICA86 Před 2 lety +1

      @@andressaloiola8669 he is on strongest opiates Dilaudid ,but still it's not enough

  • @her2607
    @her2607 Před 2 lety +39

    when he apologised for not being able to get deeper into the water my heart sunk, god bless him and his family

    • @marilynwillett804
      @marilynwillett804 Před rokem

      God not god.

    • @TheTrueLadybug
      @TheTrueLadybug Před 2 měsíci +1

      @@marilynwillett804hush

    • @DantePizzaLover
      @DantePizzaLover Před měsícem +1

      God?
      Who made him having that?

    • @jennabateman1500
      @jennabateman1500 Před 26 dny

      @@marilynwillett804 the fact that that’s what you care about that the g in god is capitalized….Your god gave this kid this life. He’s disgusting if he’s real

  • @Christina-bm7np
    @Christina-bm7np Před 5 lety +4396

    No child deserves to go through this. It breaks my heart. Bless this whole family, including the nurse.

  • @vayneaurelius5238
    @vayneaurelius5238 Před 5 lety +1610

    95% of his body covered with open wounds?? i cant imagine everyday feel pain... this is so heavy

    • @iamkelisb
      @iamkelisb Před 5 lety +5

      That's so true

    • @hiphopdagame
      @hiphopdagame Před 5 lety +38

      i've had 80% of my body covered with open wounds before coz of a bad Eczema flare up... trust me, you just gotta be strong and have faith and pray for better days...

    • @iamkelisb
      @iamkelisb Před 5 lety +40

      @ItzNuttellqKinq you need help

    • @hiphopdagame
      @hiphopdagame Před 5 lety +8

      @@iamkelisb you know what's funny and truthful, someone like this teenager that has gone through ups and downs via his condition(or anything in life), will develop into a more compassionate, caring and understanding individual compared to peeps that took things(life especially) for granted and doesn't really react well to daily stresses.... i'm just telling it as it is as i don't think i'll be the individual that i am today without experiencing ups and downs with life and with having this skin condition...

    • @aaGirlification
      @aaGirlification Před 5 lety +1

      exactly wat i was thinking n felt.

  • @twocrazyboys4367
    @twocrazyboys4367 Před 4 lety +220

    This is horrible can’t imagine that poor boys pain he is literally in pain every minute of his life 🙁

  • @pkx5897
    @pkx5897 Před 4 lety +151

    I can honestly say this boy has changed my views on life and showed me that everyone is going through something, but there’s people who are going though something 100x worse. John is absolutely beautiful and his outlooks on life is what keeps me going every single day. I love how kind hearted and passionate he is as well as having the sense of humor that he does. Everyone needs to see these videos of this amazing kid and how inspiring he is, especially these days in society!!!

    • @CupCake-sc9eb
      @CupCake-sc9eb Před 2 lety +4

      I'v got tinitus like 2 monhts ago and feeling suicidal and now i am a bit ashamed. Seeing that John Hudson can wake up every day with this kind of pain and still have a smile on his face was like a wake up call for me.

  • @cassandraalaena1543
    @cassandraalaena1543 Před 5 lety +2063

    i’m not normally someone who finds these videos hard to watch but seeing him take his bath and the amount of dread and pain he was feeling was so hard to watch

    • @allisonrenae9615
      @allisonrenae9615 Před 5 lety +28

      it's just sad because you think about all the things he misses out on.

    • @adelina07
      @adelina07 Před 5 lety +4

      cassandra alaena don’t worry, he is ok, I really do know that

    • @nadaw1509
      @nadaw1509 Před 5 lety +7

      It's hard for me to watch kids suffer

    • @nadaw1509
      @nadaw1509 Před 5 lety +3

      Omg that looks so so painful I can't look at the blood skin and skinny arms and legs

    • @F8th63
      @F8th63 Před 5 lety +3

      Yes, it was very hard to watch. Poor sweet boy. God bless him.

  • @cccccccc549
    @cccccccc549 Před 5 lety +1760

    So sad....what an intelligent and well spoken young man

  • @karlajacome2802
    @karlajacome2802 Před 4 lety +258

    I’m crying 😭 This story broke my heart he’s warrior 🥺😍

  • @JDRodriguez9
    @JDRodriguez9 Před 3 lety +76

    I want to meet this kid and tell him how much he’s inspired me

  • @user-de6cx4em6s
    @user-de6cx4em6s Před 5 lety +1122

    This is like being skinned alive, daily.
    Which, fun fact, is supposed to be one of the most painful things to experience. One of the most painful ways to die.
    So the fact that he’s still here, living, making the most of life and being so positive, is really great.

    • @Bizartspirit
      @Bizartspirit Před 5 lety +7

      I though about something... What if this is hell? It's just an idea, but maybe in an other life he skinned someone?
      Maybe after this life his soul will be completely cleaned from all sins and in the next life he will be in heaven, in a lucky life?

    • @genericusername8337
      @genericusername8337 Před 5 lety +47

      @@Bizartspirit Delusional. An attempt to console yourself because reality is hard to accept. Not blaming you though. Humans have done it for millenia, and will continue to. Still, that doesn't add validity to these ideas.

    • @EvolvedJewel
      @EvolvedJewel Před 5 lety +16

      @@genericusername8337 You are intellectually superior to all of these people, I've read your posts. Know that. And I totally agree with you on all points. They cannot see the contradiction of a benevolent deity who imposes suffering such as this on a child. They lack critical thought, education, and are brainwashed.

    • @dogewoge6580
      @dogewoge6580 Před 5 lety +11

      @@Bizartspirit You are the definition of delusional. Don't mix your made up beliefs with reality.

    • @katie_jeanes
      @katie_jeanes Před 5 lety +16

      Doge Woge Who pissed in your cereal 🥣? Lol.. Leave him be, he’s aloud to believe in a higher power. Besides, he said it was just a thought.. Quit being a bully..lol

  • @marjoriesyoutube4530
    @marjoriesyoutube4530 Před 5 lety +4839

    My heart aches , I had to stop watching , I’m a nurse I know how much pain he is . God bless him , but he such a trooper , I pray they find a cure for him .

    • @korinantoinette8644
      @korinantoinette8644 Před 5 lety +10

      That is nice

    • @aya2722
      @aya2722 Před 5 lety +23

      Is there no cure for that disease till now? O my god

    • @jessw.6250
      @jessw.6250 Před 5 lety +8

      Marjorie’s CZcams God! I feel the same & will pray the same 🙏

    • @adelina07
      @adelina07 Před 5 lety +6

      Marjorie’s CZcams Everything is going to be fine

    • @rntn7148
      @rntn7148 Před 5 lety +10

      Carolyn Crouch
      This isn’t Jonathan Pitre. This Jonathan is still alive and their family is being given a new house this week. I was confused also.

  • @rorus9530
    @rorus9530 Před 4 lety +62

    he’s such an intelligent, brave boy. Life can be so unfair.

  • @frowniebrown86
    @frowniebrown86 Před 4 lety +103

    “I don’t think I can I’m really sorry 😢” oh my goodness when he said that, I could feel how unbearable it is for him 😭😭😭

    • @ellaelliott4415
      @ellaelliott4415 Před 2 lety +2

      It’s impossible to feel what he feels-I get what you mean but you can’t

  • @raynekraven
    @raynekraven Před 5 lety +897

    after watching this who can ever complain about a paper cut again?
    this kid has courage, I wouldn't be able to go through this

    • @Septembersend34
      @Septembersend34 Před 5 lety +24

      Because everyone's feelings are valid, including people who have paper cuts

    • @raynekraven
      @raynekraven Před 5 lety +6

      @@Septembersend34 seriously? a paper cut is NOTHING compared to what this kid has to go through. paper cuts heal.

    • @Septembersend34
      @Septembersend34 Před 5 lety +20

      @@raynekraven I know. His condition is horrible and I'd do anything to change it, but we can't. I'm still gonna complain about a paper cut though honestly just because usually it happens in class and I'm so bored I could eat my own eyeballs and I could laugh over dropping a textbook

    • @skeetskeeh7070
      @skeetskeeh7070 Před 5 lety +4

      You would be able to if you were forced into it since birth

    • @raynekraven
      @raynekraven Před 5 lety +1

      @@skeetskeeh7070 maybe maybe not it depends on one's personnality
      one headache knocks me down, not out, but almost

  • @miracole6469
    @miracole6469 Před 5 lety +896

    the fact that he's wearing avengers T-shirt is adorable. ure a strong fighter john. ure the real life hero

    • @dominickbanks3633
      @dominickbanks3633 Před 5 lety +18

      he loves superheroes, it’s a good thing. He love superheroes because it makes him feel courageous, and fight at the pain he goes through. He saves the day just like superman. He saves the world. I love him.

    • @hazmalfor162
      @hazmalfor162 Před 4 lety

      700 like

  • @brennangappy8360
    @brennangappy8360 Před 4 lety +30

    Also, the dad making the ice cream float just melted my heart. Such a supportive group he had around him. ♥️

    • @shinobiverse3068
      @shinobiverse3068 Před 2 lety +2

      That same dad is my science teacher, I never knew why he always acted so nice and why he just looked burnt out. Now I know.

  • @deaththekid3198
    @deaththekid3198 Před 3 lety +8

    The fact that this boy is my science teachers son is amazing, I remember once my teacher couldn’t arrive to class because his son had to get a surgery. I miss you mr.dilgen!!

  • @memequeen9091
    @memequeen9091 Před 5 lety +570

    This boy is the definition of strength and courage.

    • @poisonrain7462
      @poisonrain7462 Před 5 lety

      ikr he has had that for 15 years!

    • @ashblade8685
      @ashblade8685 Před 3 lety

      Yeah! He knows that it painful but he lso knows that he needs to be strong and work through this, I could never be a brave as him ❤️❤️

  • @kingofmeatballs763
    @kingofmeatballs763 Před 5 lety +1507

    *I wanna be this guy's best friend and help him....I wish I could be there go hang out with him after he takes a bath so he isn't lonely....*

    • @syafirafa
      @syafirafa Před 5 lety +14

      I wanna do it too

    • @orangeyes9888
      @orangeyes9888 Před 5 lety +15

      I feel the same way 100%

    • @elmoiscursed1692
      @elmoiscursed1692 Před 4 lety +8

      Me too THERE SHOULD BE A CURE FOR EB

    • @xxfarawolfxx
      @xxfarawolfxx Před 4 lety +4

      King of Meatballs same I would be there to help him through the pain

    • @petitecontrebassiste
      @petitecontrebassiste Před 4 lety +6

      I know I wish there were people who live close to him that would come over and just sit with him after baths and distract him. really sucks =(

  • @exclusive._dg9870
    @exclusive._dg9870 Před 4 lety +46

    THIS MADE ME CRYY 😭😢😞😪😩😫🤧☹️😔😢😢😭😭GOD BLESS THEM 🙏🏽🙏🏽

  • @kayleighwaters3878
    @kayleighwaters3878 Před 4 lety +61

    No kid, adult, or elderly human being should EVER have to go through this. Stay strong...

    • @techno05
      @techno05 Před 2 lety

      yeah it is something that i hope calms down in my 40's

  • @gracieshepardtothemax1743
    @gracieshepardtothemax1743 Před 5 lety +1636

    John Hudson I wish I could take away all your pain. I wish you didn’t have to suffer. I’m glad you have a support system and as family who loves you! Love from Canada 🇨🇦

  • @Mxer724
    @Mxer724 Před 5 lety +1002

    Wish i could give this young man a day without pain..

    • @user-bt7rz9pd2h
      @user-bt7rz9pd2h Před 4 lety +24

      Mary Oden Why’d you think that was funny?

    • @1NewsNewZealand
      @1NewsNewZealand Před 4 lety +1

      Stormi Webster it was

    • @SakMeibals
      @SakMeibals Před 4 lety

      @@user-bt7rz9pd2h yes it was

    • @lenadengel2145
      @lenadengel2145 Před 4 lety +20

      @@user-bt7rz9pd2h i agree, this isn't funny at all. seeing in how much pain he is everyday, not beeing able to live life like everybody else is just sad and heartbreaking. and then making such stupid jokes is really not funny

    • @pandachan3223
      @pandachan3223 Před 4 lety +11

      @@lenadengel2145 these dumbasses live in another reality, to them stuff like this is nothing but a joke, other people's suffering means nothing to them, and it's sick

  • @luna_exe7753
    @luna_exe7753 Před 4 lety +63

    When he was taking a bath tears just rolled down me face....

  • @deloresm7494
    @deloresm7494 Před 4 lety +20

    I am so sad that he has to suffer like this. God bless you sweetheart.

  • @gothicRomantic
    @gothicRomantic Před 5 lety +552

    meanwhile on another part of the world, there are people who dont go bath in weekend, people who yelling back to their mom when she asked em to go to bath.
    be grateful to ur life if u watching this. and keep fighting john!

  • @Laura-ym2gs
    @Laura-ym2gs Před 5 lety +1141

    That looks so damn painful. :(((

  • @andread4595
    @andread4595 Před 3 lety +8

    And to think about how many times I’ve winced because a little skin peeled off my finger and the way that hurts underwater… There are no words for how terrible I feel for what this child and his family go through. This nurse is also an angel and seeing her get so emotional was heart wrenching. John does definitely seem like a kind soul. Someone needs to find a cure for this. Bless this entire family and their providers.

  • @lulua512
    @lulua512 Před 4 lety +6

    My heart is shattered completely. No one deserves to got through this. This boy is so strong I want to help him with everything. A literal inspiration.

  • @Starqhi
    @Starqhi Před 5 lety +809

    I feel so sorry for him 😭😭 NO ONE DESERVES TO GO THROUGH THIS PAIN 😭😭😭

  • @Angel-pt2cf
    @Angel-pt2cf Před 5 lety +651

    Theres no words to describe how sad is to see this. 😔

    • @adelina07
      @adelina07 Před 5 lety +3

      Angel it’s ok, I know that he is ok and his father is happy that he is a strong boy... (I really do know)

    • @rashadep9758
      @rashadep9758 Před 5 lety +1

      Bravery takes over sadness and he is for sure a brave young man

    • @robertleveen4380
      @robertleveen4380 Před 5 lety +1

      He is a really strong boy

  • @jordanclark65
    @jordanclark65 Před 4 lety +7

    No kid should have to live with constant pain like this😭😭😭😢

  • @ProfessorKenneth
    @ProfessorKenneth Před 2 lety +5

    This poor kid...I'm crying because I wish I could help him ..🙏🏻😩😢

  • @kathleengoss5974
    @kathleengoss5974 Před 5 lety +384

    He lives pretty close to me. I remember seeing his story on the news and having it really touch me. He just got a new house that was donated to him with no mortgage and it’s accessible to him and makes it easier to function. He’s such a sweet kid and I hope he has an amazing life

    • @tamikabarr6732
      @tamikabarr6732 Před 5 lety +5

      😊 awww good for him 👏

    • @liIdecky
      @liIdecky Před 5 lety +1

      Did you ever talk to him?

    • @kathleengoss5974
      @kathleengoss5974 Před 5 lety +1

      Eragon Kvothe no, he loves in queens I think (?) And I live in upper westchester

    • @orion1two
      @orion1two Před 5 lety

      That's amazing!!

  • @aririnrin2571
    @aririnrin2571 Před 5 lety +817

    There's nobody who could know or imagine his pain. It's terrible....He must be scared and desperated, because he's the only one who feel the pain.......It's hard to say, but I wouldn't let anybody to live such a painful life,...i feel just so sorry.

    • @aririnrin2571
      @aririnrin2571 Před 5 lety +6

      @Bookshelf That's true that there are people who suffer from the same condition. However, the pain is not the same, you can't say that they know each other's pain, because each of them is different people with different mind and body. Maybe, they can imagine each other's pain more than someybody who has no such condition, but they will never know each other's pain.

    • @skarlettcage3922
      @skarlettcage3922 Před 5 lety +9

      @Bookshelf They Don't feel the same pain. There are many different kinds of EB. I have EB but mine isn't as severe. I don't feel as much pain as he does

    • @skarlettcage3922
      @skarlettcage3922 Před 5 lety +5

      @Bookshelf You were literally wrong. I support educating the underprivileged

    • @skarlettcage3922
      @skarlettcage3922 Před 5 lety +5

      @Bookshelf You commented on a public domain. It doesn't matter if you were talking to me or not

    • @troxycat
      @troxycat Před 5 lety +2

      @@skarlettcage3922 I have EB too...I very rarely meet anyone else with it. Mine is nowhere near as severe either, but it definitely causes problems.

  • @nathalie7312
    @nathalie7312 Před 4 lety +10

    I love how much his nurse cares about him. He needs someone like her and his parents to have patients and as much understanding as they can to what he is going through 💕

  • @gapeach4u
    @gapeach4u Před 5 měsíci +4

    Never in my life have I felt such shame at myself as I have now seeing this young child, this human, suffer so greatly when I complain that I have to even get up, make my coffee and work. At least I have a decent life, it’s not all rainbows mind ya but it’s damn great compared to his. The little things we take for granted and he faces that every single day! I just can’t stop my tears. I don’t know you John Hudson Jr but I am praying for you and thinking of you daily and I will live life better from now on bc you inspired me. You are handsome, brave, strong, determined, courageous, smart and inspiring and my love goes out to you, your family and nurse! They are all wonderful and I’m so very sorry for the loss of your father last year. With every tribulation you’ve faced you still are triumphant and deservingly so. 🩵🩵

  • @storyofmylife1550
    @storyofmylife1550 Před 5 lety +545

    Sorry sweetheart..can't stop crying...lord please do this family a miracle and heal their son....pls lord...this is too much

    • @savagefam5352
      @savagefam5352 Před 5 lety +3

      lana Ibin amen 🙏🏼

    • @storyofmylife1550
      @storyofmylife1550 Před 5 lety +3

      @@savagefam5352 yes.. God does wonders.. This sweetheart deserves one.. He is in pain..I just can't stop crying ..

    • @herutababalagasa1599
      @herutababalagasa1599 Před 5 lety +3

      Amen

    • @uhnothing1391
      @uhnothing1391 Před 5 lety +29

      if god exists then why did he give this kid this disease in the first place

    • @haithamlwar9781
      @haithamlwar9781 Před 5 lety +4

      @@uhnothing1391 if god doesnt exist there will be no life , god who create him and god who will give him wonderfull heaven

  • @bethrunkle76
    @bethrunkle76 Před 5 lety +357

    337 heartless people disliked this video. How could even one person dislike it. I live with pain every day but i can not even imagine what this brave boy goes thru.

    • @kenzie9231
      @kenzie9231 Před 5 lety +10

      It is probably because they don't like blood

    • @leahdavis8023
      @leahdavis8023 Před 5 lety +8

      It’s not them trying to be mean its because they’re sad for them

    • @ciennachelsie
      @ciennachelsie Před 5 lety +8

      They were probably crying and their tear touched the dislike button

    • @janetmorehouse4665
      @janetmorehouse4665 Před 5 lety +9

      For some people, I think they pushed the dislike button because it was just so sad/hard to watch. It’s probably a mistake to assume they meant anything wrong by it. Honestly, I can’t click on the like button because my heart hurts for this beautiful boy and all involved. There is nothing to like.

    • @Thisissarah815
      @Thisissarah815 Před 5 lety +4

      I think maybe they disliked the video because they hate seeing such a young, beautiful soul suffering

  • @amirhabaker1339
    @amirhabaker1339 Před 4 lety +3

    everyone who said a comment thank you for supporting jhon im so glad you are all on his side now hes not alone we are with you JHON

  • @Makeriaa
    @Makeriaa Před 4 lety +3

    This honestly made me cry, he’s so strong...praying for you John❤️❤️❤️❤️❤️

  • @pelumigbadamosi6819
    @pelumigbadamosi6819 Před 5 lety +363

    Who else was feeling bad as you were watching the shower part of the video,I definitely felt his pain

    • @FlipAndLand
      @FlipAndLand Před 5 lety +4

      Yeah. You know exactly how it feels. Idiot.

    • @Idk-kg8gr
      @Idk-kg8gr Před 5 lety +7

      @@FlipAndLand Not to be rude or anything, but I think what this person means, is by seeing this they can put themselves in that situation by using their imagination. Sometimes you don't really have to have the condition to able to imagine what it's like. So by calling this person an idiot isn't really the best choice of wording, and your comment at all isn't needed as well.

    • @alix6002
      @alix6002 Před 5 lety

      pelumi gbadamosi .... The thing is your pfp but no hate but just it’s distracting me XD

    • @Ash17030
      @Ash17030 Před 5 lety

      pelumi gbadamosi I almost cried

    • @doniay.210
      @doniay.210 Před 5 lety

      Yeah..
      Not to be rude but its a bath not a shower.

  • @mikaellaroberts6499
    @mikaellaroberts6499 Před 5 lety +601

    I pray he gets that special bath tub 😢🙏🏼

    • @kylie.jjohnson
      @kylie.jjohnson Před 5 lety +38

      He got the bath! That is what the nurse was bathing him in.

    • @vanessastarks6486
      @vanessastarks6486 Před 5 lety +79

      They actually ended up getting a brand new house built for them for free! The kid was sooooo grateful for it that he cried! It was truly AMAZING!!!

    • @jaredsantos6457
      @jaredsantos6457 Před 5 lety +4

      @@vanessastarks6486 I swear he died last year

    • @MrandMrsPaper
      @MrandMrsPaper Před 5 lety +2

      Instead of praying, donate!

    • @mikaellaroberts6499
      @mikaellaroberts6499 Před 5 lety +11

      MrandMrsPaper I pray because I do not have the financial means myself to donate. Trust me, I would be homeless if I donated to every person my heart felt for. 😕

  • @pamelatillery2841
    @pamelatillery2841 Před 5 lety +5

    Aw poor boy, he is strong and has a loving family. My heart breaks for him. Bless him. 👍👍

  • @thomaslawrence6038
    @thomaslawrence6038 Před 4 lety +1

    This child has the kindest soul ever. I wish him the best and i hope they can find some relief to him. My heart goes out to his family .

  • @gabbys5867
    @gabbys5867 Před 5 lety +369

    I handle pain so awfully and seeing the pain he had to go through just for a bath makes me feel awful. I hope the best for him and his family.
    Edit: Thanks for all the likes ❤️❤️❤️❤️❤️

    • @alextatertots4395
      @alextatertots4395 Před 5 lety +1

      Gab S He sadly pasted away back in April due to complications...

    • @rntn7148
      @rntn7148 Před 5 lety +2

      Alex Tater Tots
      No I thought so also but that was another child that died in April. This family is actually being given a new house this week. The one that passed in April’s last name was Pitre I think. Someone helped me on another comment when I thought same.

    • @alextatertots4395
      @alextatertots4395 Před 5 lety +1

      Rn Tn Oh ok... my bad, sorry.

    • @rntn7148
      @rntn7148 Před 5 lety +2

      Alex Tater Tots
      No problem. I was confused, also!

  • @raforsomething
    @raforsomething Před 5 lety +328

    I can't believe kids like this still find the courage to come in front of a camera a do what they do. Keep going and stay *STRONG*
    Edit: Also the parents and others are a key factor in this as well, so props to his mom, dad, and others who help.

    • @priscillaadomabadu2154
      @priscillaadomabadu2154 Před 5 lety +2

      SSJB his parents are really strong I keep pausing it cos it’s so hard to see the pain he has to go through just to take bath it’s such an ordeal, he’s very inspirational

  • @justinbalog7968
    @justinbalog7968 Před 4 lety +1

    This kids a warrior. He deserves all the respect in the world. The amount of people that would quit with what he deals with would be damn near everyone. He’s a hero for pushing through. If you end up seeing this brother I’m 23 and you’re my hero. God Bless

  • @Rose-ko4op
    @Rose-ko4op Před 3 lety +3

    I want to give him the biggest hug ever but then he'll be in so much pain🤧 Thank you for being an inspiration John and for reminding us to not take things for granted💜 Also props to the parents and also the wonderful nurse. I know it means a lot to John to have such supportive people around him.

  • @jenniferhalf1650
    @jenniferhalf1650 Před 5 lety +476

    Such an incredible boy....but I'm not going to lie this truly breaks my heart....

  • @makkenziebeer214
    @makkenziebeer214 Před 5 lety +462

    he’s so strong. every day he struggles with physical pain and it hurts to live. but he carries on.
    i am a healthy limber person, and i can barely get through one day without wanting to die. i wish i was as strong as him. you’re in my prayers, u and ur family. 💗

    • @MadeleineHenderson
      @MadeleineHenderson Před 5 lety +16

      Makkenzie you may be healthy physically but obviously not mentally and that doesn't make you less strong than someone with a physical condition lovely. He is an amazing strong kid, but you must be pretty strong too to make it to the end of each day if you are feeling so bad. I really hope you have a good support network xx

    • @efoxkitsune9493
      @efoxkitsune9493 Před 5 lety +12

      Hi, the fact you made it this far and are still here tells me you yourself are stronger than you know. I'm sorry you feel this way. You know, just because mental illness and suffering is not physically visible doesn't mean it's any easier to deal with - or that you're any less for struggling. I know that sometimes even getting out of bed is an impossible challenge. Some days it may even be too hard to overcome. But so far you've made it through 100 % of your days, that's quite an impressive score.
      I hope things get better soon. Hang in there. And remember that asking for help is never a weakness.
      Wishing you all the best and sending lots of love!

    • @kimkartrashianstopmakingst9060
      @kimkartrashianstopmakingst9060 Před 5 lety +9

      I know how you feel..and you ARE a strong person to keep going. I find what helps me is doing small things that make me happy....especially being outside grounds me, or being around my pets. They are very therapeutic for me. I also think watching uploads like these make me appreciate what I DO have even more. You are important and you do matter.
      I have struggled with depression since I was a kid. It never gets easier or really subsides, but learning small ways to take care of it make all the difference. I appreciate your comment and your honesty 💜

    • @kimkartrashianstopmakingst9060
      @kimkartrashianstopmakingst9060 Před 5 lety +1

      Reem Hassan very nicely said and true

    • @efoxkitsune9493
      @efoxkitsune9493 Před 5 lety

      Reem Hassan (idk where your comment went, but) I love what you said. "The key to happiness is letting each situation be what it is instead of what you think it should be-Mandy Hale" - that's something I'm gonna need to keep in mind myself.. :)

  • @personaljesus5019
    @personaljesus5019 Před 5 lety +1

    He doesn't deserve this pain. He seems to be a nice person. I wish him all the best ❤️

  • @devinwilde5967
    @devinwilde5967 Před 4 lety +32

    No one should go through anything like this

  • @Cath0505
    @Cath0505 Před 5 lety +331

    Instead of funding wars and many other atrocities is this world this is the kind of thing money should be used for, find the cure for horrible diseases like this.
    What a great kid, his parents and nurse are pretty awesome too

    • @personalpersonal9356
      @personalpersonal9356 Před 5 lety +4

      ... If we don't do that then everyone will die .. Well not everyone but many will die including more kids and resources will go . That was very stupid of you to comment . That's why it's a thing called donating so we give money to this too .

    • @Cath0505
      @Cath0505 Před 5 lety +9

      @@personalpersonal9356 Actually, the only stupid comment here is yours. Did I ask you to like my opinion? Get a life troll.

    • @personalpersonal9356
      @personalpersonal9356 Před 5 lety +1

      @Mandi W , War literally saves lives . How stupid are you ? Why else are you and whomever you love are alive ? Yes people die in war however it's to save idiots like you and other actually smart people . That's why people participate in war ... It's to protect the people even if they die . If a person that literally went through war had to see your freaking comment ... I'd pity him/her cause they literally risked their lives just to save an idiot like you however some will still say worth it somehow .

    • @personalpersonal9356
      @personalpersonal9356 Před 5 lety

      @Mandi W , Yes .. They do give money . Many rich people donate money either out of actual care or just to look good ... They still donate money at the end of the day and it's to actual organizations like to a kids health department and so on . Also , All you gotta donate is at least a dollar to any organization like for kids health or whatever ... It doesn't always have to be to the military cause that's why you pay taxes and where your tax money go but if you don't want to .. That's fine .

    • @personalpersonal9356
      @personalpersonal9356 Před 5 lety +1

      @Mandi W , The fact you know no common intelligence is worrying. We learn this in elementary school . We still learn it in middle and HS .. And college cause people are risking their lives to protect others . Why else do people go to war ? War happens to benefit the people and to protect the people and resources .

  • @beear2363
    @beear2363 Před 5 lety +744

    The people who disliked were crying too much and just missed the like button

    • @yazzyxx
      @yazzyxx Před 5 lety +27

      this actually happened l, and then I looked and I saw that I pressed dislike, and then I was like NUUUUUUU and pressed like.

    • @tessaknowlton41
      @tessaknowlton41 Před 5 lety +4

      I wish

    • @verenakelly1789
      @verenakelly1789 Před 4 lety +4

      Perhaps they think I don't like that this boy has so much suffer, so I dislike

    • @conservaserva5958
      @conservaserva5958 Před 4 lety +1

      This is just for watching...not for liking or disliking!

    • @crtx_wolf2252
      @crtx_wolf2252 Před 4 lety

      BEEAR I agree

  • @lespaul382
    @lespaul382 Před 4 lety +3

    This warrior will be greatly rewarded in the next life. Bless his heart🙏❤️

  • @AbbyH767
    @AbbyH767 Před 4 lety +2

    I came here from sbsk and in his video from there I literally started crying. He is so optimistic about his outlook on life! Go John, shine bright and never let anyone or anything dim that 💡🕯️

  • @queenjasmine7250
    @queenjasmine7250 Před 5 lety +512

    I loved the nurse 😭💯❣❣

    • @rozamiri8259
      @rozamiri8259 Před 5 lety

      على ما اضن اول عربي تحياتي

  • @michaelb.tysonson3375
    @michaelb.tysonson3375 Před 5 lety +295

    I almost cried... how is this any way to live??? Life is just cruel...

    • @michaelmyersplays4992
      @michaelmyersplays4992 Před 5 lety +7

      That's how life is it's unfair
      It's not in god's hands
      It just happens bad luck

    • @michaelb.tysonson3375
      @michaelb.tysonson3375 Před 5 lety +7

      Ricardo Uribe
      That’s basically what I said...

    • @michaelmyersplays4992
      @michaelmyersplays4992 Před 5 lety

      @@michaelb.tysonson3375 yes sir

    • @hectorchavez1877
      @hectorchavez1877 Před 5 lety

      @@michaelmyersplays4992 I don't believe in bad luck though,I don't believe in any luck but I guess good luck to him

    • @michaelmyersplays4992
      @michaelmyersplays4992 Před 5 lety

      @@hectorchavez1877 if you dont believe in luck then why does he have to suffer?

  • @marianakalen2448
    @marianakalen2448 Před 4 lety +5

    God bless this boy😭 bruh... I almost cried hes a strong person

  • @Slytherin_101
    @Slytherin_101 Před 9 měsíci +1

    This video brought me to tears. He deserves the world while going through this. I wish him the best of the best. ❤

  • @nettiewatkins6545
    @nettiewatkins6545 Před 5 lety +213

    Living with that kind of excruciating pain is not something others can understand who have not experienced pain at the same level that he does. Compassion and empathy are so important.

    • @dalejoseph9423
      @dalejoseph9423 Před 4 lety

      @Mary Oden what is wrong with you!! I don't see why you would say that!!!

    • @dalejoseph9423
      @dalejoseph9423 Před 4 lety

      @Mary Oden This is not a joke

    • @lochbessmonsta5348
      @lochbessmonsta5348 Před 4 lety

      @Mary Oden thats....a unique thing to say about his situation. Yes he needs pain medication and I'm sure he appreciates any means of escape from his pain but somehow I feel like your comment was a jab at him which is pretty insensitive. That kid is stronger than most and I adore him for his courage.

    • @SRBOMBONICA86
      @SRBOMBONICA86 Před 4 lety

      @Mary O'Bear true but these types of wounds not even morphine can help entirely

  • @krystallvinter7438
    @krystallvinter7438 Před 5 lety +91

    Just like his skin is being stripped away every day, so is his childhood. I can't even imagine how painful it must be, both physically and emotionally, to have your freedom taken away from you like that. I hope that he will one day be in a good enough condition to do all the things he ever dreamed of doing. Keep fighting, John.

  • @alyssaz5573
    @alyssaz5573 Před 4 lety +5

    Seeing this makes me never want to complain about a cut or a bruise that we say hurts 🙏🏼❤️Sending this family healing prayers!! You are an angle sweet boy!

  • @drearolle7026
    @drearolle7026 Před 5 lety +10

    Lord bless this child , prayers of healing

  • @demithys6236
    @demithys6236 Před 5 lety +32

    I can see the pain in his eyes when he talks about taking the bath. I’m so sorry that he has to live like that. I hope one day they find a cure for him because he deserves a life beyond the bandages and baths.

  • @belisariocastillo8695
    @belisariocastillo8695 Před 5 lety +73

    That’s one strong kid, a strong 💪 mother, strong family

  • @taevantae8283
    @taevantae8283 Před 4 lety +9

    I think he’s very brave, like, I wouldn’t survive a moment with that.

  • @12131569
    @12131569 Před 4 lety +16

    That’s so heartbreaking to see this kid go through life the way he does. 😢

  • @mncalapati415
    @mncalapati415 Před 5 lety +69

    Damn... I hate seeing kids in pain. My heart goes out to you John. You are a very strong person, stronger than most people. You are my motivation brotha. More power to you young man.

  • @Charlie-kt3tk
    @Charlie-kt3tk Před 5 lety +161

    Owwwwww
    I wouldn’t deal with the pain
    He’s a fighter
    I know he’ll get through it

  • @patriciamichael8506
    @patriciamichael8506 Před 4 lety +1

    I litterally cried during this. I hope he continues to have a great life..

  • @SolaGratia.
    @SolaGratia. Před 4 lety

    This young man just reached in and captured my heart. Not only him, but his family. I know that maybe most people who view this see a lot of pain, but what I see here is so much love. My God... So much love. ❤️

  • @boldfaith765
    @boldfaith765 Před 5 lety +82

    Grown: check. Man: check. Crying: check.
    This young man is an inspiration to anyone with half a brain to understand the strength it takes to have such a great disposition and personality despite all this. Hoping and praying for a cure, thankful for the example he is setting.

    • @Robert-mu6qq
      @Robert-mu6qq Před 5 lety +1

      He's a modern day stoic.

    • @Septembersend34
      @Septembersend34 Před 5 lety +1

      Just bc you're a man doesn't mean you can't cry bud

    • @boldfaith765
      @boldfaith765 Před 5 lety

      @@Septembersend34 I never said otherwise 🤜🤛👍

  • @totallysofte5548
    @totallysofte5548 Před 5 lety +140

    Trying to hard to cry. I don’t think I’ve really noticed how grateful I am until now. He’s so motivational and strong and deserves the whole entire world. This broke my heart, but trust me you’re one of God’s most special kids! He made you specifically the way you are and you’re unique for this ❤️

  • @brendaluna173
    @brendaluna173 Před 4 lety +15

    Why just why would a child have to go through such pain? My heart breaks for him, I wish I could do something to help him.

  • @etoilesln
    @etoilesln Před 4 lety +3

    John is really an adorable kid, he didn't deserves that at all, God bless him and his family 💜

  • @rickm7491
    @rickm7491 Před 5 lety +24

    John,
    I'm 60, and tough but after seeing your courage I am sorry that I can't be as tough as you.
    You are an inspiration in courage and endurance.
    You have motivated me as no one else ever has.
    Gladiators weren't as tough as you!
    Keep fighting and God bless you.

  • @fnizer
    @fnizer Před 5 lety +30

    Been on youtube since it launched in 2005. Never written a comment. But this person impressed me. Courageous, strong willed. Even though times might be tough, he keeps going. Genuinely inspirational.
    *And I have to add, he's a cool dude!

  • @jaykay1053
    @jaykay1053 Před 4 lety +1

    Hi John Hudson! I just watched your video again. I just want to say thanks for telling the truth about what you go through. For centuries, people with medical challenges were hidden away from society. You, being willing to get out there and tell your story really helps all kinds of people. Whether it's in helping them develop their own empathy or gain a new perspective on their own situation, sharing your way of approaching life is effective and yes, inspiring. Empathy and hope are two beacons of light in a sometime dark world. Thank you for your positive contribution to the world. Hoping all the best for you, John Hudson, especially in the realm of pain control.

  • @graciesmom62
    @graciesmom62 Před 3 lety

    This young man is stronger than I’ll ever be. I hope doctors can find a way to manage John Hudson’s pain. You’re amazing John Hudson. Sending you love and light. ❤️❤️

  • @AwkwardlySilenced
    @AwkwardlySilenced Před 5 lety +119

    I love this kid. He’s got mad wisdom and happily shares it, even though he has to make himself so vulnerable to the public. He helps a lot of folks. Be like John.

  • @thatsevenfrogger
    @thatsevenfrogger Před 5 lety +661

    any SBSK viewers here?

  • @zwhite3392
    @zwhite3392 Před 4 lety

    There he is in so much pain yet he still wants to help other people! How selfless! I salute you little man.

  • @jenniferoverstreet4299

    I cried. I cannot imagine this pain, or having a child that lives in this pain. He is such an inspiration, his nurse obviously loves him and his parents have to be strong as well. God Bless this family and his nurse.

  • @janesmith7274
    @janesmith7274 Před 5 lety +94

    this is so incredibly sad

  • @iceice2010
    @iceice2010 Před 5 lety +214

    Awww sweetie u are awesome a beautiful child and your parents and nurse rocks!!🌷

    • @numpty7695
      @numpty7695 Před 5 lety +3

      RALEK lifestyle unfortunately he is dead right now :(

    • @some-one-else
      @some-one-else Před 5 lety +5

      Numpty No he isn't, Jonathan pitre is.

    • @pautorr8629
      @pautorr8629 Před 5 lety

      Numpty lies! He didn’t die

  • @lucykanniard3635
    @lucykanniard3635 Před rokem +2

    OMG! That poor little boy. Sending prayers to him and his family! I really hope they find a cure!

  • @lenisesanders912
    @lenisesanders912 Před 4 lety +3

    He has a great mother & father! ❤️❤️❤️ My heart goes out to him!!

  • @dadjokes1159
    @dadjokes1159 Před 5 lety +101

    Its hard to watch a video where a child is in this much pain. I hope they can find a cure one day.

  • @ashleythrash7387
    @ashleythrash7387 Před 5 lety +90

    Your a great kid dont let anybody tell u different, I'm praying good works a miracle for you!

  • @baronkaedit3935
    @baronkaedit3935 Před 4 lety +2

    I pray for you, John. When I see this video, I cry and cry.
    You are Here. Really! Take care. Send Love from small republic - the Czech Republic.

  • @maddyoliver1642
    @maddyoliver1642 Před 4 lety +2

    I really want to give him a hug, poor lad ❤😢

  • @MRBallSlapper-gy1lr
    @MRBallSlapper-gy1lr Před 5 lety +69

    i really do hope they find a cure...

  • @heatherweath3r
    @heatherweath3r Před 5 lety +132

    my heart hurts so much for him. please god help us find a cure or at least a treatment to help ease his pain. 😞❤️

  • @the.synikalv6134
    @the.synikalv6134 Před 4 lety

    He is so strong he goes through this stuff everyday and he still wants to help people
    What and inspiring young man 💜

  • @shiromarry3200
    @shiromarry3200 Před 4 lety

    I cried, tears flowed, asking him to be painless, to recover quickly from the disease.