Why Can't He Talk? Nonverbal Autism and RPM
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- čas přidán 7. 06. 2024
- Here are ways my Autistic son communicates, even when he can't speak.
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I will say his process is pretty successful. I’m really proud of him considering he is eight years old.
Agreed!🩵🩵 He has had so much growth!🩵🩵
She’s a good teacher y’all need to keep her
Yes. Very true.
Ezra is getting so big! That’s great he’s learning to use his computer.
He is learning and I can’t wait to see what he continues to learn.
This was really interesting! I had a classmate in primary school who had severe autism. Everyone assumed he couldn't do anything but I would sit next to him and do the work step by step. I realised he knew so much, he was just so overwhelmed all the time, sometimes he would rip the paper and then apologise. He'd ask me to take away distractions so he could work better. I wasn't diagnosed at the time, but I was the only kid in the whole class who managed to help him when he got upset
Thank you for sharing. It sounds like you were a blessing to him and he taught you in return. ❤️
Ezra has something called "Severe childhood apraxia of speech" and it makes it hard for him to move the mouth to verbalize any words out loud. This is why he cannot speak. Do I blame him? Absolutely NOT. Because Ezra was born like that. Ezra wants to communicate, he wants to speak. But he can't because of his autism. Again, I do not blame him. He's fine with being nonverbal. Thank God he only has autism, ADHD, SPD, OCD, and childhood apraxia of speech Because if he had more disabilities on top of severe autism like some other severely autistic adults kids he would possibly not be fine with being non-verbal. He would feel trapped. He would have self-injurous behaviors. It's a good thing that he's not doing any of that under any circumstances. Ezra is very intelligent than people think. It does not make him any less just because he has severe nonverbal autism. I also have autism but thankfully I'm not non-verbal because I was non-verbal until I was 5. I like to do 3D modeling and make elevators. I also do industrial automation solutions. 3d modeling electrical equipment, HVAC, VF drives, and other electrical equipment for buildings.
Thank you for your insight. Ezra was diagnosed with Apraxia of Speech when he was only 2 years old. So I was grateful we were able to know about that fairly early on.
Astounding insight.
My boy is same age as Ezra he has severe autism non verbal the older he gets the more things he wants to do. But lately he gets frustrated he becomes aggressive. We have difficulty calming him down
Yeah, that can be difficult. We have done a few videos on that subject that might be helpful…
Autism Meltdowns, Triggers, Tantrums, and Helpful Tips - czcams.com/video/1G5ZvUqQIwo/video.html
Also Ezra’s RPM therapist seems like an amazing woman
Yes!
Hi, I'm not fluent in English, so I need to read the subtitles to understand you, but I'm enjoying watching the videos of your beautiful family. I only have a 5-year-old son who is moderately autistic. It is not easy. I cannot imagine you with so many children and two autistic kids. However, I am sure that your two autistic children will learn a lot from their neurotypical siblings and such loving and dedicated parents.❤️
Thank you so much!
Ezra is communicating so well. Well done to your supportive family. Love from Zimbabwe ❤.
Thank you so much! He is learning and we are excited for him to keep learning
Ezra really come on he knows what he wants very clever my son has come on so much since going into a special school they are very talented my son doesn't like food touching your right what you said about them being very caring they care to much and hear to much well done ezra and family giving him all the encouragement he needs 😊❤❤
Thank you so much!❤️❤️
Ezra's making amazing progress and he's so handsome and lovely. Love you Ezra ❤❤ xx
He is! We are excited to share how he is doing!
So fantastic watching him learn!
It is!🩷🩷
This is soo impressive! We have 2 autistic kids. One had no speech delay, and one has a significant delay. He’s still nonverbal at close to 4, but is just starting to say a few words after 2 years in speech.
Thank you for watching and sharing!❤️❤️❤️
I just found out about this channel and you guys are amazing!
Glad you enjoy it!🩷🩷
You guys are my favorite!
Thank you so much for sharing! ❤️
Is it my imagination Holly or has Ezra been on a growth spurt? He looks so much taller! Great to see the progress he has been making. Hope you and everyone are doing great.
He is growing so fast! We are doing great. Thanks for asking.
Ezra has grown up and changed so much lately! He’s doing great!
Yeah! Thank you so much for watching and commenting! ❤️
It is normal my brother want to be a baby or it his autism he is adult?@@7Aheadfamily
Picture language is good, but it needs words under them so they can build more complex ideas later on. It's just nouns. Just post picture functions on the items used like the door. What symbol is used for doors? Then post a big sign that is used for the door on the door. He needs to build nouns up first before complex instructions can be added. Right now, it needs to be want or need then the noun.
Thank you for your feedback❤
Over time you will want to use the high chair less and less with Ezra. At some point he will no longer need it because he will outgrow it.
If Ezra does end up needing a larger high chair for a while you will want to get one that is made of wood because wood tends to be more durable than plastic and in many instances can support more weight. It may also have more stability. A high chair made of wood might be able to work for him as long as he needs it as long as it is constructed correctly.
I think I read online some time back that some people and one or two companies can make high chairs (for example) out of wood that can be built to any specifications needed in order to support any necessary size and weight. They can be difficult to find and quite expensive, though, from what I have read. Also because they need to be custom made getting one in the correct size and having it delivered can take weeks or even longer from what I have heard and read on the subject.
Thank you for the great ideas
Its good 2 see you all finally treating Ezra like a lil boy instead of a baby all the time..
Thank you!
Ezra is getting so good at using his iPad and using his communication to talk and his getting good at spelling
He is improving so much!💜💜
Great progress!
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Thank you! We will have to look into that.
Ezra is growing up so quick!
He is!💕💕💕
Jessica Duarte has a CZcams channel about her son who is on the autism spectrum (level two) and he is nonverbal but able to sing.
The videos are in Portuguese and the automatic translation of the captions (once it has been activated) is not as precise as it could be. The only language I speak fluently is English. I speak some French and I read it better than I speak it. I learned some French from spending an entire academic year in France in 1999 to 2000 and I still remember some French.
In any case if I think about the French that I do remember and I look at the Portuguese captions I sometimes feel like I can guess about what is being said in a few scenes in the videos. In one of the videos I recognized the melody of the song as being the “Wheels on the Bus” song, but in Portuguese. Also I was sort of able to get the gist of some of what was said in the flash card style descriptions/captions at the beginning of some of the videos. This is because French, Spanish, Italian, and Portuguese have some words (especially nouns) that are either identical or very similar. I can only get the gist, though, because the verbs, adjectives, and adverbs (for example) vary quite a bit more from one language to another.
The bottom line of all of this is that even if you can’t get Ezra to talk right away he might be able to learn to sing. In addition to sign language and other communication methods it might help him to express his needs better. Even this might take a while (with Ezra being level three), but singing uses a different brain area than speech. For example, some people with Broca’s Aphasia are still able to sing.
If Ezra can learn singing maybe he can eventually sing different songs to express different needs (e.g. hunger, thirst, etc.).
Thank you for your insight!❤❤❤
Hello again! I’m getting my son on the 15th. He’s 20 and non verbal. We have so little time to get ready. Can you tell me what tablet you are using for Ezra? Having a hard time finding the one I want. I’ve gotten the locks for the cabinets in the fridge as he is very very food driven. I’ve gotten alarms for the doors in case he tries to leave in the middle of the night. If you can think of anything, I’m not thinking of please feel free to reach out and let me know. Thank you so much for answering my comments and for making these videos it has been amazing learning how to best be there for my son.
Great question! We use an iPad🩵🩵🩵
Im still on the waiting list to be assessed for Autism , my parents already took me in for a screening ( psycholigst note taking about autism ) with my psychologist in late February ( 4 months ago ) . My appointment should be sometime this month
Great. Keep us updated. And thank you for sharing. That can be a long process.
*#MayTheLORDContinueToBlessEzraAndFamille. What an incredible Gift to Mankind he is. Spitting image of his Daddy. Growing Up So Rapidly. He loves his Teacher. We All love him😊
Thank you so much!💕💕💕
At one of the restaurants that I ate at in the last few days hamburgers were listed on the sandwiches portion of the menu so arguably he’s right either way when he tapped on hamburger and then sandwich.
The hamburger I had included bacon, Jalopeño cream cheese and had French Fries and ketchup on the side.
😂😂😂
That’s awesome! You’re right! Thanks for sharing. 😊 that hamburger and french fries sounds amazing. 😊
Honest he can write. He is so smart in other way.
Thank you😊😊😊
You are so kind!💕💕
@@7Aheadfamily Thank you!
@@7Aheadfamily You’re welcome
🩷🩷🩷
I am verbal but sometimes around people I don't know or I'm overwhelmed or something I become non verbal. And I also play geometry dash 🌈💖♾️ you guys are my favorite CZcamsrs (i have alot of favorite CZcamsrs lol and you are one of them 😊)
Me too! It's really difficult to be verbal and then become non verbal when too over stimulated
Thank you for sharing. We are very happy you are here and liking the channel. What types of videos do you like to watch the best?
Ezra is both intelligent and strong :) I have seen proof on that more than one time in your videos, Simon is very intelligent too :)
Yes! I love that we can share that. He really understands a lot.
Ezra is growing up so fast ❤
I know! He is getting so tall!
@@7Aheadfamily ❤️❤️
🩵🩵🩵
I sometimes wonder, if i have autism but just a bit. I am very sensitive for noise, smell and crowded places, also for light/sunlight or in rooms if it comes from the ceiling. I can't sleep with noise. I hate my food mixed together before eating, but i like mixing it on the fork in the mouth. I am very eager to organise things so that they are even and it feels uncomfortable to have itchy clothes or so. I also don't like when my food gets wet or when people wanna share their food from their lunchbox with me, because of the strange smell. I don't have a problem with dirt when i am in the garden, but i need to clean afterwards and wash my fingernails etc. Yeah... sometimes i am unsure why i am so sensitive and if it would be autism, but on the other hand i talked a lot with 2 years, am very social etc... :/
Thank you for sharing!🩷🩷 By today’s diagnostic criteria, Autism is a neurodevelopmental disorder characterized by 3 specific challenges in social interaction, communication difficulties, and repetitive behaviors. An individual must have struggles with all three in order for them to be autistic. It is considered a spectrum disorder because it can manifest in a variety of ways and to varying degrees of severity. Hope this helps!💕💕💕
When did you guys start using AAC device? How long did it take Ezra to get the hang of it. His progress is great 👍
We started very young to try to teach him to use the device. But at first he would just throw it. So we started the PECs system with flash cards, having him point to the picture of what he wanted. He has learned how to use the iPad in the past year or so. And has only just recently used this ACC device regularly.
Im infirmally diagnosed level one I've always done that with sanies even at present day also have a thing for bread and butter and no meat on it
Thank you for sharing. Ezra likes the meat, but he takes it off of his sandwich before he eats it.
I think I may have an idea for you - when he can type on his iPad, he could use a Text to Speech function for more complicated sentences
That is great. He is learning. I hope he will be able to do that someday.
I can be picky with foods too I would eat peas with my chicken cube potatoes that covered in sauce but I won’t have them if fish and chips as it dried I not keen I eat baked beans with chips sausage fish etc and I does mix up foods not separate as I don’t like too dried I remember one time last Christmas Day I was eating my Christmas dinner I was given a little bit of gravy but I did added little bit more my cousin said that enough but I did explained to him that due of my autism and sensory food texture that I like extra moisture taste is this common for people with autism?
I think that is common. I know of many people who don’t like food mixed together.
I also picky with tomatoes 🍅 like as fresh tomatoes grilled cherries tomatoes tinned tomatoes but I love tomato ketchup tomato soup tomato pasta sauce I also only eat scrambled eggs but not fried boiled or egg with toast dip in yolk no no
I agree it peas I won’t have but baked beans mixed together yes with chippies
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@7-Ahead How is Ezra doing with his ADHD? Last time I was here you guys were talking about his ADHD meds. I have lost my job since the last time I messaged you guys here. I haven't found a job yet or attempted because I get distracted easily at any job and it's really hard but I am working on that issue.
I’m sorry about your job. That can be very difficult. Ezra’s ADHD has been something we’ve tried to help him with by giving him medication. But we’ve noticed that all the ADHD medication’s we tried to give him have not been good for him. So we took him off those meds and we are trying different medication to help him calm down. That seems to be working better. He is on Abilify right now. Good luck with your job search. I hope you can find some thing that is a good fit.
My son is also 8 and uses a AAC but communication in many different ways.
Thank you for sharing. I love that he is the same age as Ezra!
Hello, you might have seen me in your other videos comments but I’m curious with something. How can I tell my non verbal autistic daughter is sick?. It’s really confusing because she can’t communicate to me what she wants or needs. Any tips will help thank you!.
That is a very good and important question. Honestly there is no easy answer. I would encourage you to observe if she reacts differently when she is sick or hurting, compared to when she is upset for other reasons. Some things that Ezra does, is he will cry in a different way. His wine will sound different when he is sick. He’ll usually not have as much energy, he will usually act in ways that are strange to him or unusual for him. For example, Ezra will sometimes go in circles really slowly when he’s sick. He usually goes in circles really fast when he feels healthy. Also when he is sick, he will go sit in his bed by himself during the day. He will not usually do that if he is healthy. What’s really difficult about Ezra is even when we think that he is sick most the time, it is just a guessing game to figure out what is wrong with him.
@@7Aheadfamily Thank you, I was a bit concerned because she was making these yelping noises instead of her normal noises. This really helps
Glad it helped! If you have any more questions, feel free to ask!❤❤
My autistic little brother eats the same way Ezra does, he takes apart food and eats it piece by piece - or just eats the parts he likes.
Yes! Sounds familiar. Ezra will do this with fruit bread sandwiches and especially anything that I have put different foods together. He wants all the different foods to be separate.
@@7Aheadfamily I can defintily understand wanting the different food groups to be seperate!
My son hates food combining. Example he likes pizza but deconstructed. The pepperoni, cheese, crust, and sauce all have to be separated on the plate.
He's never eaten a burger or any sandwich. Same situation with pasta, I can't add more than one ingredient.
😂❤️❤️
Yeah! That sounds a lot like Ezra . 😊
He is doing very well with his spelling
Yes!
@@7Aheadfamily 👍🏻😁
❤️❤️❤️
I also like to take my sandwiches apart sometimes. I have TMJ and it’s easier for me to eat sandwiches that way sometimes (especially if the sandwich is very thick, if the bread is toasted, or both).
My sister and I are both on the autism spectrum (level one currently) and we both have TMJ. I wonder if there’s any correlation. I have not yet seen any research on this.
Interesting. Thank you so much for sharing.
Yeah, we should definitely do some research on that. 😊
Love that you take apart your sandwiches as well. 😊
@@7Aheadfamily I don’t always do it. These days I take my sandwiches apart maybe half the time (give or take).
That’s awesome, thanks for sharing. ❤️
Can you do a video about what he does in school and what his accommodations are
Yea, we should do another one like that, but here are some videos on that subject that we have done in the past...
This is his school he is in right now... czcams.com/video/HD0Nfu-laA4/video.html
@@7Aheadfamily thank you
❤️❤️❤️❤️
whats the name of the app on your sons ipad i going to try to see if i can get on my tabet to see if i can communicate better with my mom and others
Proloquo2go
I'm your first like and comment
You’re the best!
Thanks for watching and commenting ❤️
What's the name of the ACC program
Proloquo2go
Regarding stem cell treatments mentioned in some of the comments.
From what I can gather even on the off chance that they do work they would work by significantly (or even completely) rewiring the brain. Since it is the general consensus that our synaptic connections are what make us who we are there is every possibility that if the treatment changes his brain enough for him to not be autistic anymore that Ezra would no longer be Ezra.
Thank you for sharing❤
Does Ezra say yes and no with head nod or head shake just because a lot of people with severe autism don’t have the ability to do that
Good question. He doesn’t have the ability to do that.
@@7AheadfamilyMaybe with time he can learn this.
❤️
If my friend couldn’t find out what I want he will probably be what do you want if I push chocolate he will probably be like okay!
Chocolate is the best!
I wonder if Ezra has any friends. It might be hard for him to have friends because he can’t talk. I had autism and friends when I was Ezra’s age.
Ezra has some wonderful siblings who are his friends. He also has cousins who are his friends. And he has friends at his church group too.
where do we download that app?
It's called Proquolo2go and it's on the app store.
@@7Aheadfamily thank you so much
❤️❤️❤️
I love your channel
So glad!
Thank you for watching and commenting ❤️
What type of videos do you like the best?
@@7Aheadfamily Day in the life
@@7Aheadfamily Day in the life
Salmon and Ezra,is so lucky for school my kids have no help in school because he talk but he autism he is 14 year old with 30 kids in one classroom , lunch room very loud ,in our schools help no have no kids in public schools and my and school say you’re not autism.
That can be difficult. ❤️
Do you have an IEP set up?
Yes 20 time in one year
I see, yes, an IEP can really help, but sometimes even then it takes a lot of work to get the help you need.
I do have autism. One psychologist says that I don’t have it. It’s undiagnosed. My doctor said I do have autism. I don’t like crowd, smell, etc.
I go to a special School that has to pt ct in Lexington
Thank you for sharing!❤❤❤
Is the teacher through his school or hired privately? Help guide me please.
She is private. She does RPM with Ezra in this video.
Wait did he say boring after he spelled it? Does he repeat words sometimes? I think I missed this.
I don't think so, maybe I better watch it again. :) He very rarely ever speaks any words.
@@7Aheadfamily Ah okay- who is speaking at 7:15?
Amazing catch! He did say boring right there! We didn't even notice. Thank you for pointing that out! Just one more proof that he is learning and probably knows and understands a lot more than we give him credit for.
@@7Aheadfamily what a heartwarming update. He certainly knows so much - communication being the main barrier.
He’s a really sweet kid.
Thank you so much for your attention to detail and sharing with us!
When did he start showing simptoms?
Ezra started showing signs of Autism at a very young age g age. Even when he was only 3 months old. He didn’t like to be held and he wouldn’t make eye contact.
Here is a video where I tell Ezra’s story when we were first realizing that he may be Autistic. 5 Signs of Autism in Babies
czcams.com/video/_U1G1d0fWU8/video.html
What app does he use to communicate?
Great question! Ezra uses the app Proquolo2go
I’m wondering: Which voice is His device’s voice? Is it Oven?
Yea you're right, I just checked!!!
@@7Aheadfamily (My english isn’t great. Sorry for the gramatical mistakes.)
This is surprised to me. Because, Oven isn’t the first choice for AAC. Generally, Ella or Josh the first. Because, Generally, their voices are more understandable for who don’t using or hear a voice like that.
But, I think, others aren’t very bad. For example; Oven (His voice) isn’t perfect. But it is understandable. Specially; If the child between 4 and 7 years-old, Oven is the best choice for His age. Oven’s voice has pronunciation mistakes like a 5 or 6.
As I said, These are only my opinions.
@@7Aheadfamily For me, we can say that I am a fan of ACAPELA GROUP VOICES, the company that created the voice of Oven.
Agreed! thanks for Sharing. :)
How did u potty train him? I'm working on that with my child
That’s definitely a work in progress. 😊 we’re getting close though. Hopefully do another video on that soon.
Here’s the video, though that we’ve already done…
12 Steps to Potty Train Your Autistic Child
czcams.com/video/OurXSSny3ew/video.html
Hi my level is like five letter words for spelling
Cool! Thanks for Sharing!
what is RPM?
RPM refers to the Rapid Prompting Method which is a technique used to aid communication for individuals with Autism Spectrum Disorder and other disabilities that affect communication. RPM encourages those who are struggling to communicate through spoken word to use techniques such as typing, pointing, and writing.❤️
@@7Aheadfamily ahh ok thank you
❤️❤️❤️❤️
Hey guys hey kids and the parents
Hi! Glad to have you here
You like my family by choice who act like a baby out of your boys ?
Simon will often act “like a baby” for fun or because he wants something and is mad. 😊
@@7Aheadfamily what he like to do to act like a baby?
It looks like someone still needs to invent a spill-proof sippy cup.
Also eventually with some physical therapy Ezra might not need a sippy cup anymore.
We actually used to have one of those but Ezra did not like using it. I wonder where it is now.
You are right. That’s is one of his goals. ❤️
Hey there Ezra
Ezra says HI! ❤️
Oh, wow. That's something I do : Put my hand palm up on the floor and gently press it with my foot.
Thank you for sharing🩵
Why you are not doing stem-cell therapy.
We have looked into it a little. What can you tell us about it? We know it is very expensive.
@@7Aheadfamily Yes expensive but it will help 80%
@@7AheadfamilyFrom what I have read there is not much evidence yet for its effectiveness.
Also I would be concerned about the health effects of it. For example, what percentage of patients (if any) end up with cancer or other serious complications? I would imagine that it has some side effects.
Cool.❤️
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Does he know how to eat by himself ? Does he make a huge mess? Looks like hes too big for high chair hes getting big! Also why was he scratching himself so much?
He had a couple mosquito bites. That is why he was itching. A lot of times he doesn’t sit in his high chair. He usually needs help eating. He usually makes a big mess, but as of late he is able to eat cereal with a spoon. We show that in our latest morning routine video.
Even though Ezra is nonverbal he’s still intelligent.
Very
@@7Aheadfamily Tysm for replying
Of course!❤❤
Hey there
Hello!
How are you doing? ❤️
Im aumism two
Thank you so much for sharing! How are doing? ❤️❤️❤️
Im god
Good!❤️❤️❤️
Why does mu child act strange 🤔. Hand flopping or repetitive motions. What animals are humans related to. What instructions are in our dna. So, there is a clear location of what information is being projected from the motions of the child. Now the dna experts need to locate where those are.
Thank you for watching and sharing!❤❤
NES
I’m not exactly sure what you mean by that. 😊
@@7Aheadfamily NES stands for the Nintendo Entertainment System. Awesome that you have one! Love those old school games.
@@7Aheadfamily at the beginning of the video there's an NES under the TV!
Good taste 👌
😂❤️❤️
That’s awesome! Yes! Benson and I were just playing that the other day. 😊
Really cool that he can tell you just what he needs and wants. I love the part where he just wants to play games lol. I use AAC myself but I’m also verbal so AAC helps me learn new words that I couldn’t say before.
Thank you for watching sharing!❤❤❤
Meivin ross
Not sure we're following you❤️
6:44 haha good job Ezra spelling boring
Thank you foe watching and commenting!💕💕
I also found squirrels to be boring when I was younger. By high school I was more interested in them.
@@7Aheadfamily i love you’re family and seeing Ezra and Simon in vlogs
Thank you❤
Im god
You’re good?
Yes
Good!🩷🩷
What is the name of the program in which you communicate with Ezra?🤍
It's called Proquolo2go.
@@7Aheadfamily Thank you very much, I love your video clips, they are useful🤍🤍🤍.
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does Ezra still sit in the highchair?
Great question! He uses it sometimes but not all the time❤️❤️
Hope this helps😊😊
@@7AheadfamilyI know I have mentioned this before, but eating standing up from time to time will help him to get used to eating without sitting in his high chair.
Thank you for your insight❤
I have a family living downstairs from me and they have a son who reminds me of Ezra. He makes the same noises as him too We don't know if he's autistic but his parents are trying to get a diagnosis. He's 5 or 6 years old and I don't think he can talk at all, he just makes loud almost guttural and groaning and screaming noises and they're a lot like Ezra
also, that teacher is amazing, and I swear Ezra almost said "boring" after spelling it. he is amazing and so smart
Thank you so much for sharing!🩵🩵🩵
@@7Aheadfamily you're welcome! the neighbour he's a lovely and happy little kid and his family seem to be very nice and patient with him and because of his possible autism, everyone in the building is more patient with the noises he makes as we all know how difficult it can be. i'm autistic too and although verbal myself, i do find it hard to verbalise some things so i can only imagine how frustrating it can be for Ezra and my neighbours kid when people don't understand what they're trying to say without talking
Yes, the whole family is very loving with Ezra❤️
@@7Aheadfamily that’s good. You seem like an amazing family!
Hello again! I’m getting my son on the 15th. He’s 20 and non verbal. We have so little time to get ready. Can you tell me what tablet you are using for Ezra? Having a hard time finding the one I want. I’ve gotten the locks for the cabinets in the fridge as he is very very food driven. I’ve gotten alarms for the doors in case he tries to leave in the middle of the night. If you can think of anything, I’m not thinking of please feel free to reach out and let me know. Thank you so much for answering my comments and for making these videos it has been amazing learning how to best be there for my son.
Great question! We use an iPad🩵🩵🩵
@@7Aheadfamily is it an app you download on your iPad? For Ezra to communicate?
Yes! So the app is called Proquolo2go
Hope this help!❤️
@@7Aheadfamilythank you!