Why Levothyroxine (Synthroid) Sucks & Why You Can Feel Worse After Taking It | Sara Peternell
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- čas přidán 6. 07. 2020
- Levothyroxine, a generic medication is also known as Synthroid, which is a brand name, or Tirosint or by other names depending on who the manufacturer is. It’s the top medication prescribed for thyroid problems in the United States. And 9 out of 10 times that’s the medication that most insurance companies prefer to cover. Today, I'm going to cover why levothyroxine sucks, why it is not suitable for everyone and how it could exacerbate your Hashimoto’s or hypothyroidism symptoms. Watch this video to learn more.
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They NEVER look at the root cause. I have been battling with hashimotos for 35 years. Not one doctor mentioned gluten or dairy. I finally found a functional doctor who has done more testing through bloodwork , Dutch test, and an allergy test than any other "doctors" have. We discussed at length my diet and I have made some serious changes. I've been on all the different types of medications and I am currently working towards getting off all medications. Not sure if it's possible but I'm over medicated by these pill pushers. I've spent a lifetime trying to understand why I can't function at full capacity.
I thought I was Dying. I couldn't walk without holding on to a wall or something. I didn't have the energy to move in bed. I had had emotional turmoil. I got tested. Was told the meds would take two weeks to Work. Twenty four hours later I felt so energetic. My doctor was amazed. Now ten years later. I'm tired.y hair is shedding. I'm on the Lowest dose. I can't tolerate a bigger dose. I wish I'd been told that it could of been possibly fixed with dietary changes.
This is just criminal. Disgusting and shameful, I cannot believe they’re allowed to get away with messing with people medication. I had the worst reaction with t4 and t3 medication. This is the worst. I’m 30 years old and I feel 50
Thank you. I just started this journey. I had a thyroidectomy on the 8th of September. The surgeon put me on levothyroxzine. I got so sick with it. My BP shot up. My stomach is a mess. I went to a NP who specializes in thyroid. She switched me to armour. I just started today. I pray this works. I've been so sick with levothyroxzine and argued with the surgeon about levothyroxzine making me sick I was afraid I had no hope. I'm changing the way I eat as my stomach is a mess. I've taken glutten and dairy out. Looking forward to watching you videos and educating nyself.
I also had a thyroidectomy due to thyroid cancer in mid-July. I’m also having the hardest time adjusting to LEVOTHYROXINE. I’ve had it adjusted twice already. I’m now having so much pain in my wrists & feet. My endocrinologist referred me to an Arthritis doctor! It’s the thyroid meds…
@@hopegonzales4145omg, literally tears right now finding “my community” fellow thyroid cancer survivor here and when I tell you since having a thyroidectomy i literally having been dying for 7 years!! It’s so sad we are often brushed off, misunderstood and concerns often disregarded, you eventually end up asking yourself “ how the hell is this my life?” The unspoken Gut issues alone is too many to count, yet none tells you this shit before hand ,the fatigue is crippling, but yet again, no one prepares you for this struggle… smdh I’m learning to survive with dietary changes and daily exercise but it gets tiring. The thought of the years ahead is a daunting thought and a fatiguing journey all on its own! Hope you’re feeling better, Stay blessed!
i really needed to hear this! i was diagnosed with hashimotos thyroiditis when I was 13 and I am now 17. I am still on levothyroxine now but i feel like death on it. i have been to 6 doctors about this. Every single one of them called me a liar. I am still fighting with them now
Omg Kate, Im not alone , I feel the same
That is crazy! The true lies are they.
ive been on it since I was 23. Im 39 now.
@Lucas Sonny unfortunately not much better. Still waiting to see an endocrinologist. Appointment keeps getting cancelled
In what way?
I ended up taking 250mcg daily of levo as my TSH wouldn't go down.
They weren't testing the T4 which had ended up at twice the max normal range.
Absolute scum doctors in UK.
No empathy.
Accused me of not taking the medication properly.
So I'll be dead soon because of them. No point existing in such a world where we can't even have basic health. Told to smile while the fat cats shove another finger up our arse each year.
Enjoyed your video, really encouraged, just want to have more energy and feel better and not have the many side effects.
Thank you for sharing this video. I just discovered your channel and it has a great deal of information I may arm myself with dealing with Hashimoto's. Back in 2020, in the mist of the pandemic I was diagnosed with Hashimoto's. And guess what?? The Dr prescribed Levothyroxine and said nothing more. New dr..... Levothyroxine adjustments 4 times in 5 months. I have absolutely no energy whatsoever and its getting worse at the age of 62. I found a few very good books on diet and Hashimoto's and have decided to see a nutritionist / dietitian to get to the bottom of this mess I'm in. And now the info you have provided in this video about the medicine I'm taking is getting me to think the Dr has me on the not so right past. I'm hoping that the nutritionist will help in many ways, including gluten and dairy free options. THANK YOU so much!
I think I’m over it. I’m tired. I can’t believe I’m on a scavenger hunt to live a NORMAL LIFE. Ugh. There is always something!!
I know.. it’s a mind field of information out there but…
This is what I have found..
Carnivore way of eating HAS helped my thyroid problems..just stay away from processed food..
Do this..BBBE Dr Ken Berry…..it actually works..
Many of us are. Ck diet. Get allergy tes
Get allergy testing for food, allergens, etc from an allergist and asthma dr.
U just came up with a synopsis of my life🤦♀️ hope you find wat works for you ❤
Wow,,you said it,,,,trying to get Dr to test and diagnose why I have hypo,,,,,like pulling teeth !
Suffer so could you please give me some idea what can i do to make myself feel better i have change the way im eating and do alot of diets and still feel the same.
I just found your video. Did I understand that hypothyroidism is the same as Hashimotos? I jave been on levothyroxine for 20 years. But my levels keep going up and down. Owas recently changed to 100 but after testing my thyroid levels were very low. The Doc said they wanted to wait a while and recheck but I haven't been back. I have had all these issues. The mental and all the other health problems like my hair falling out, terribly dry skin,dry hair, dry eyes and I lost my teeth to dry mouth. I stay so tired all the tiy. I had no idea that it might be the Levo. Thank you so much for your video.
What I know as the difference is that 2hen you have Harshimoto Thyroiditis your body actually attacts your thyroid hormone the body produces so Harshi is worse than jyst your plane old vanilla hypothyroid.
I was having night time panic attacks until after I got on levothyroxine. I just noticed how I wasn’t having any after I took it so I’m assuming it helped the panic attacks.
I have to use the generic because the name brand causes me anxiety and depression. I'm very sensitive to it. The Mylan brand is what I have to use.
im on this medication for life i lost my thyroid 2017 let my Doctor talk me into getting Radiaction Iodine feel worst not being able to get my meds right im going up and down give blood work every time but still cant get my blood work right so now i have to
I've been on the medication for years ive had panic attacks nervousness heart racing
Me too I’m allergic to it so have given up
I was put on Levothyroxine as a young adult after being diagnosed with Hashimoto’s hypothyroidism.
After that I started noticing gradual negative changes.
Major hair loss, heat intolerance, weight gain & lethargy.
I had none of those issues before being on Levothyroxine.
Looked into alternative RX. Tried Armor, a natural thyroid RX, but my co-pay went from $5 to several hundred, and simply couldn’t justify the natural version.
Armor ought to be ashamed of their exorbitant prices.
Last time I checked, there weren’t any competitors to lower the cost.
It’s sad since Armor RX seemed to work almost instantly.
Now back to watching this video.
Was on Levothyroxine, felt like crap, switched to Armour Thyroid, felt like crap, more anxious. Now seeing a Endocrinologist that wants me on Unithroid.
Here we go again...
what are you on now? I am struggling with feeling sick on levo
@@PraseenaPrabhakar was on Unithroid for a little while upon the doctor's insistence. Then the pharmacy told me that they can't get it, and switched me back to Levothyroxine. It really didn't make any difference. I feel like crap on all of them.
I don't have much confidence in my endocrinologist, insurance, and pharmacy.
They just want to prescribe something and hope you will shut up and be happy. I hope you can find what you need!
@@ericskinner7355 Thank you for your reply. I've been on and off medication. I feel like crap on it, and less crappy off it. Going through the same cycles.
I never felt bad before this medication. Just started it this morning. My TSH went from 10 to 24 in the last six months. I’m a little worried that modern medicine doesn’t care. They just want people more medicated.
I am SO glad I found you!!! I had both grave’s and Hashimotos. I also had hyperparathyroidism. They took out my thyroid and two parathyroid glands. Now my two “asleep” parathyroid glands are 5x more hyper than the ones they took out, and I cannot take the Levothyroxine makes me sick. Arm & leg pain & weakness, short of breath, EXHAUSTED. But, I sweat PROFUSELY, my face/head is HOT, RED & throbbing. My heart is racing. No caffeine at all. The Levothyroxine makes my symptoms WORSE. I am VERY HYPO with both hypo AND hyper symptoms. I’ve been passed around from different doctors for over a year. Im becoming very depressed. I’ve changed my diet, I’ve become more active, and nothing helps. This is not the life I want to live. Im starting Tirosint tomorrow. I hope it helps, because generic Armour and generic Lio both made my symptoms worse like the Levothyroxine. Im hoping it’s the additives. Im going to binge ALL your videos today. Thank you for all your wonderful information!!!
Yes but how much - quantitive ? Starch or what ever filler can there be in a small tablet ? I always wonder about this as yes I have huge digestive issues - I have NO thyroid and years on levothyro and feel permanently horrific
Do people have the cleanest diets on earth where 100mg of starch or lactose or a bit of food die will affect them that much??? I've been trying out 300mg/day of OTC dessicated tyroid for the past 1.5 months for low T3 and T4, high TSH and haven't felt much better, aside from crap sleep, so am thinking about seeing a doc to get a script for T4 and see so many negative sides from people.
so what do you do when you have no thyroid ?
Can we get armour in Uk?
THIS IS AN UPDATE from my post below: I could barely function on Levothyroxine. I couldn’t even get out of bed on most days. I hurt from head to toe, I was depressed, I couldn’t hold a job and no one would help me. My internal medicine PA suggested TIROSINT. Within 2 weeks of starting it, my whole life changed. I felt 10-15 years younger. I had energy, I didn’t hurt, my life was back! There was a short window of adjustment because you cannot split a dose. So I take 112 mcg M-T. On Wednesday I take 137. Th-F I take 112 mcg and Sunday I take 137. Most insurances don’t cover it, but there is a manufacturer’s coupon & also GoodRx. Try it please! I’ve told others about this and they too have had the same results. It literally saved my life.
Tirosint, is levothyroxine sodium , not sure how it is different from regular levothyroxine but im going to as my dr about it because i'm feel terrible on regular levo
What did you take on Saturday?
I take levothyroxine 50mcg and I notice I have a headache that is around the base of my head and ears
I'm done !! I've been on a journey to feel better for 7 freaking YEARS and I just felt worse . I went to the Dr for help and just ended up on a hand full of pills!!! It's taken me a long time but I'm off all the pills except for the levothyroxine. I am weaning myself of that to and using herbal remedies instead. I am feeling better and SO DONE with pharmaceuticals. They don't care about me yhey just want my money.
^ THIS! I feel the same way.
Do you mind listing the herbal remedies you're taking
@DogDog-fi7hx that is a hard question to answer. It's not straight forward I've had to tweek and change it up a lot. First I had to ease off the levothyroxine slowly and other pharmaceutical garbage I was on. I do take a good multi vitamin, solinium vitamin b among many other herbs. The one thing that has helped me a ton was rubbing caster oil into my neck. But you need to research and find what works for you. It has taken me 2 years but I'm off all the garbage and still researching . Good luck with your health journey
Oh ya I also drink a lot of green tea. I also gave up alcohol and limit carbonation and gluten.
Spot on! The pharmacists, doctors and big Pharma only care about money they can get from sick patients
I was diagnosed with hashimotos 1 year ago and have been asymptomatic the whole time, do you have any insight on this? Love your videos!
Being asymptomatic at some point in your journey with Hashimoto's is actually quite common. Good to know you have had a pretty easy year so far. Keep up with your healthy foods and lifestyle choices and it can be a better ride. Thank you for watching my videos as a resource for your optimal health!
Also have anxiety
I have thyroid cancer had have both thyroids taken out thanks for your video it pop up glad it did i need hear this im on that i have test every month it's not helping me tired all time sweating his got me on brand name it not helping im get him put me on something else or im find a different doctor my TSH level this month was 0.010 my hair coming out 😢 thanks for your video
My TSH is 0.8 I just had blood work
Excuse me it was 0.08
I have been taking levothyroxine for more than 30 years. Since these past few years, my T4 has not converted my T3. I stopped taking it altogether and am now on every clean natural supplement, but I still have absolutely no energy at all . What I'd like to know is what is a clean nautural alternative. ???
Look into glandulars sold through Chiropractors, Nutritionists, functional medicine Drs. They use the best of the best vitamins/supplements
a year hahaha um I took one, I am hyper-senstive to meds I feel, haven't taken ANYTHING in my 56 yrs until recently with this stuff and stopped anything they would give me only days after cuz what? lol I'm not into it...I know some save lives, this is just for me. Diagnosed myself before this with Hashimoto's which my Doc NOW has diagnosed me with Hypothyroidism, but I seem to know more as they don't tell me much, just look at numbers - sure my TSH is 8.9 but and then I got it to 6.8 or something but my TPO in the 200s - so yeah, I feel like my Dr. "believes" in Grave's Disease but she really put up her nose to Hashimoto's weirdly. REGARDLESS of all of that, I immediately stopped gluten, refined sugar, soy, corn anything, seed oils, dairy, no grains at all...6 mos, felt a little better, definitely my mood is WAY better..numbers a bit better but still last week finally prescribed Synthroid...I took ONE. One day, within 2 hrs of taking it, sour stomach, heart palpitations, an intense sleepy feeling took me over (not just our general Hashi's fatigue) The heart thing was enough and a headache (cutting out all those foods, took away my headaches for months. One pill, back. Then I read the possible side effects? I was like nahhhh I'm out. I'm not even telling my Primary doc, she doesn't listen to me, to be very candid. I am seeing a Naturopath, functional med Doc in early Jan...very soon...I hope they will work with me on some of the ideas I have about what to do next. Sub'd cuz I like your plain way of speaking and yup. WE HAVE TO ADVOCATE for ourselves BIG TIME. I'm in Canada and yeah, treatments and brand-drugs don't cost an arm and a leg but we WAIT, AND WAIT AND WAIT for treatment AT ALL. K be well everyone! and thank you
I needed to hear you today so bad!! I have felt so alone since getting my last bloodwork results. My doctor's appointment is in less than a week, but after taking name brand Synthroid 125mgs for over 4 months, my T3 is unchanged, my TSH is
Aw! This is so nice and I am doing these videos to help people like you. Hope it gives you hope and encouragement. Keep up the good work being an advocate for yourself.
How are you doing now? Better I hope!
I had gut issues and had to take supplements to absorb nutrients.. I took a lot of supplements.. plus high doses of iodine. Iodine is a detox and I’m sure it did it’s job because the faucet calmed down. But my tsh went up (was having a hard time with weight, and tired) So I started drinking apple cider vinegar.. The iodine caused high cortisol which changed my muscles to fat. Now I’m trying to change my fat to muscles. So she gave me 50 mcg of levothyroxine. I loved my hair and fingernails.. but my ankles swelled so big that they hurt. I’ve weaned myself down to 25 mcg. I take it every other day. My feet, legs, arms and hands are so cold they’re painful. I’m not going to take it anymore. I don’t care how tired I get. Well, I do but luckily I’m adhd and the aderall gives me energy. I don’t take it daily either. I’m trying to go naturally. I have iodine capsules that I only take every once in a while too. I do want to mention that I’m 67 years young and taking BHRT.. That is my lifesaver..
Thank you Sara. I have found the generic form of Synthroid does not work for me. I take Synthroid but as you say it is only part of the journey. Spiritual health , mindset, nutrition, lifestyle, exercise, sleep and so many other factors are part of the Hashimoto’s journey. 💕💕
I feel really weak and never good . Stomach issues all issues
So glad I found you. This answered my questions. I just got put on the Levothyroxine and I thought I was going to die. Got switched to Armour so we will see how this goes.
How is it going?
Hopefully it's better for you? Please respond 🙏
Good day. I believe when I take levothyroxine That it causes Headaches, Body aches, I'm Super HOT 🥵 my vision is blurry and i believe it messes with my BP!! are these possible symptoms of this medicine? What if i just stop taking this medicine how will it affect me?? Thanks
You are so right!!
I hate it but no choice.I have no thyroid.😢my legs hurt and I can’t sleep.changed from generic to the original and keeping a light headache too
I have been on levothyroxine for years and my quality of life has gone down the pan, I have regular bad anxiety, palpitations, bad sleep, plus all the minor issues, I missed the med for 2 days and felt much better, yes it sucks, glad I found you, thank you
Susie, you might be interested in my program Nourished and Renewed With Hashimoto's. It is a perfect place to resolve many symptoms related to your thyroid. bit.ly/nourished-renewed. Thank you for watching. Glad you are here! Sara
Hi Sara , I just wanted to let you know how truly helpful your videos are.....I'm a man of 56 years of age and have been dealing with hashimoto's for about two and a half years now... Just wondering about your hashimoto's checklist...Where can I see that because I'm going to see my endocrinologist next week... Thank you so much Sara..
Dear James - here is the link: sarapeternell.com/download-hashimotos-checklist/ Thank you so much for watching! Take care!
@@SaraPeternell Why do we have to give full name and email address and then have to have the list sent to us??? Just wondering why we have to give out that info just to see a list?
@@countrylivers because it subscribes you to her email mailing list. It is simply a marketing strategy to give out something for free but get your email in exchange. It's harmless.
I was treated for graves 20 years ago and have been on levothyroxine since. I am tired, my skin is dry, my hair is thinning. Is there help for me?
Same here.
You are right it doesn't work.
I have been taking it for 20 years have never felt good always so fatigued and foggy brained. I just want to stop taking it and doctors say you cannot.
I'm having sore throat and neck pain where my thyroid was anyone else have this problem
Please talk to your endocrinologist. I wish healing!
I have seen many folks online say they struggle with symptoms from levothyroxine and switch to Armor, etc. I have had Hashimoto's since 2002 to now, 2022, 20 years and it has worked fine for me. It stopped my hair loss, sleeping all the time, etc. But for some time I have had problems with weight control and blood glucose is running high despite being low carb since the '90's. I was even carnivore for 2 1/2 years. Right now the doctor has raised it, so will see what happens. I cut our gluten long ago, but now cut out dairy and that seems to really help. Thanks for your channel.
Yes! It does suck. My doctor has made me stay on this for 5 years or more after I have requested a new medication. I had RAI in 2016 and I have gain 100lbs and feel terrible!! This medicine is awful!
Thank you for your help!
I been used Armour thyroid but now I am living in different country and has been difficult because like you I don’t trust on much on that medication.
Heart palpitation makes me feel like I am dying.
My thyroid went hypo after I withdrew from an antidepressant and anti anxiety medication. I always had a healthy thyroid. My hypothesis is that the medication caused an HPA axis dysfunction and gut issues which in turn messed up my adrenals, thyroid and hormones. I don’t know if I should try medication in the mean time, while I fix the dysfunction and gut, to avoid the rapid weight gain (I’m already up 30 pounds and feel miserable 😅) But I’m scared I’ll become dependent for life on it. Do you know if thyroid meds cause dependency? Or can I use it and then stop using it if I get to fix my system? Thanks a lot!
You definitely need to discuss medication with your provider. I do know of people who do not need to remain on medication for life. However, every person is different. The best approach is to do the lifestyle/nutrition components in conjunction with medication and standard treatment options.
I believe the same thing happened to me with medication. I think the medication (tramadol, baclofen, and gabapentin) started my vitiligo, but it was till I got the Mirena IUD, that the vitiligo started spreading more. Then, I got diagnosed with Hashimoto’s in 2014. Got rid of the IUD and all BC in 2017, and the antibodies started dropping. 2019, I started having side effects and couldn’t figure out why. March 3021, I stopped taking levothyroxine and my side effects went away. Went into Hashi remission in Sept 2021. Got a UTI on Dec 2021, and felt fatigued from taking the antibiotic. Asked for blood work, and my numbers were off again with Hashi’s. I, also, got off my all my other three meds, last month, that I had been on for 20 1/2 years. I feel fine, even, with high numbers. I do take some supplements.
Hi Sara, I have hashimotos my tsh is 0.1 but I still have mexodema type non pitting odema, muscle pain and tendonitis. The problem I'm having is now broken veins around my knees due to the puffy skin and bursar's above my knees. Any ideas what could be happening? T4 is converting ok aswell so I'm a little confused .
Did you figure it out? .1 is still hyperthyroid
Hi, I’ve been taking Levo...for one year. I feel horrible. I feel down, tired, don’t sleep well, horrible bloating and fullness all the time despite eating very little and healthy. I exercise regularly, “fit”, but my energy level has been so low. I’ll make an appt with my not so helpful doctor, but can one just stop taking Levo suddenly or best to wean off it?
Please speak to your doctor about the best and right way for YOU to discontinue or change medication. Everyone is different. Sorry you feel so terrible. Hang in there. Speak with your doctor and change your meds. Also, check out my program Nourished and Renewed With Hashimoto's - a 30-day online program that helps educated you about what you can do to help improve symptoms, feel better and liver your best life!
Doesnt the liver convert t4 to t3?
I was born with hypothyroid(22yrs with this now) my whole life the dose has been going up, now with my 2 pregnancies(last year and this year) I was bumped up to 250mg (levo) my normal dose is 200mg when I take the extra 50 being pregnant I get side effects(immediate headache, fatigue, I even got a fever before after being perfectly fine a day before) doctor says headache and fatigue may be from pregnancy. She’s tried so many ways but I just can’t take more than 200 do you suggest anything?
Always a good idea to keep working with your doctor on medication changes. Especially in pregnancy, you want to be well-managed for the health of mom and baby! Have you tried going gluten free? That can help with better absorption of your medication. Thank you for watching.
Is liothyronine good?
Exactly I feel it gives my constant anxiety in upper chest and throat feel on the verge of my heart beating fast ect, i take levothyroxine, hydrocodone come back every 3 months to the Dr. For test...I've gone to the emergency room during covid19 2 days in a row ..thought I was having a heart attack..wore a monitor for a week. It was tacacardia from meds ..said the Dr,s at the hospital. When I told my endocrinologist he hasn't done much to help. I'm left in the dark. I'm a 51 yr old male I do have leaky gut.. Heat from hot day in the sun ,showers smoke has all brought on 180 bpm heart beat shaking ,nausea and speach issues during the adrenal fatigue or whatever is happening...I take hydrocortisone for adrenal issue and levothyroxine for thyroid..I've been on the meds 2 years and still feel in the dark...quit drinking and smoking......thx for info
Brian I know that feeling. Best to keep on your docs about monitoring meds. Find an integrative practitioner who can help with your gut and work with you to restore your adrenals. Thank you for watching.
Me too, tight throat like someone kicked me in the throat. Levothyroxine has horrible side effects for me! Armour works the best for me so far.
So basically Im doomed... Thats the jist of this. Im without insurance and cant have all these tests and then if I do manage to find out why I still feel like death.Ive been on Levothyroxine for a year and have all the symptoms and feel like DEATH. My doctor says its both my Hashimotos and Menopause and now wants me to go on HRT. THIS IS NOT LIVING. I used to be able to walk to the park and do the trail 3miles and walk home now I cant walk around the block
I hear ya. I just paid for my own labs and found I'm hypothyroid and adrenal insufficient (low chortisol throughout the day) and likely htpogonodial (low-t) but haven't bought that test yet. Been taking 300mg of over the counter dessicated beef thyroid per day for 1.5 months and not feeling much better. Will be getting thyroid tested in a week to see if the beef thyroid is helping or not otherwise will bite the bullet and see a doc and get a script for T4 and whatever else I need... Good luck.
@@homevalueglass3809 its crazy I was fine last yr. My father and Aunt passed within days of each other, and ever since then its been downhill. I thought I wasnt feeling right because of that but nope turns out hypothyroidism Hashimotos and Menopause all at the same time lol. My doctor has adjust my Levothyroxine at my pushing him into it. Its the number one most prescribed med every year out of any medication. My joints hurt so bad I cant even put my arms over my head and the fatigue is horrible.Now my dr. keeps saying your levels are great!!!Then why do I feel like crap lol. He just says its Menopause there is NO way that its this bad. I just started taking Provitalize and its helping regulate my digestion...but think I may try gluten free for 3mo. I wish you well and hope you find something that gives you relief. For me this is not living and Im going to figure this out. Im rasing my granddaughter and need to be able to keep up with her💗
@lisaplatt3697 @lisaplatt3697 Same thing kind of. Really painful breakup of 24 years. Then work stress, then cought covid and got mold exposure all around the same time, broke the camels back and tanked my system. Now f'ed up for 2 years running. I tried jogging on my treadmill a few weeks ago and my knees and ankles swelled up so bad like i was 300 lbs and my knees and arms hurt all the time. Time to feel better at any cost. Hope you get it figured out and start feeling better.
@@homevalueglass3809 Sorry to hear your struggle and I hope it gets better our stories are similar we all had Covid in my house last yr as well. Its crazy how stress can effect ones physical health. Trying to avoid stress is difficult we all have busy lives. This diagnosis has me completely flipped around I feel like Im in the Twighlight Zone. I guess the one positive thing is we have a lot more knowledge right at our fingertips.Its a lot to digest and of course trial and error to find out what works for us it affects everyone differently. I wish you luck on this journey and hopefully we both find our normal... At this point I'd take feeling like half my normal self🤣💗👍
Yes! Thanks for sharing! I used to hike hills and walk miles and run like the ever ready bunny! Now after 1-2 miles I crash. Spend 1/2 the day in bed! Ugh! Most conventional doctors are horrible and don’t know or care to go deeper. So grateful for this info! Thanks
I restricted myself to iceberg lettuce
I'm allergic to levothyroxine. I take synthroid only.
So I started off taking 50mcg then 75 then 100. All blood tests have shown my thyroid going the wrong way(hypo). The doc now wants 125 and to keep trying until it somehow magically reversed. Anyone have insight on this? What should I do? If I go off my thyroid levels get better lol makes no sense
I don’t have a thyroid no more I had thyroid cancer 19 years ago and I still have problems with the thyroid medication levothyroxine and synthroid.
I'm in the same boat never felt same
I give up
Please try a "Functional medicine doctor or they are called D.O's they deal with the whole body reaction to this diease. Regular m.d's suck at treating this. Look up Dr. Westin Childs on youtube he is great at this he actually left his practice to research and help people like you and I understand and gives us hope try, Cytomel, Armore or NDH these are better medications
What are the alternative drugs?
In the video, I suggest working with your doctor to better understand the drug options for you based on symptoms, lab values, etc. Working with a doctor who believes in nutrition can be very helpful if you wish to use a combination of supplements, proper foods, etc. Because the health of your digestive system may impact your ability to take certain medications. I am so happy you are here! Sara
Started Levothyroxine June 3,2020 for hypo. I was hyper but had my thyroid completely removed. I gained some weight which i was ok with it since I was so small. But then I started getting heart palpitations, extremely tired and light headed, sleeping so much, sensitive stomach so supposedly now I have gastritis, & my white blood count & red went down & they don’t know why say it’s not my thyroid cause the levels look good my ekgs look good so their confused. Ever since I got out of surgery everything has been horrible! I just want answers I’m only 21 and been going thru so much my life has been so hard in & out ER and appointments😭
Dayce, your story is a common one and that does not make it any better (to hear you are not alone) but yes, this scenario is WHY I do what I do. Your doctor needs to be working closely with you on medications and treatment. It's challenging but you will have to be a strong advocate for your health and really push until you get the right approach. Keep asking questions and researching different medication options. Are you following a gluten free diet? That is the first place to start with your food choices. I am sorry you are going through this. Thank you for watching. You are in a good place for getting info... Sara
Did you ever figure out the correct dosage? Hope you're doing better bow 🙏
It's pretty common to have delayed digestion causing gastritis and bacteria overthrowing with autoimmune disorders
Ive been on levo for almost 17 years now. Started in my early 20s, Il be 40 in january. I feel worse now than I did before I was put on medicine. Normal t3 and t4 levels, very low tsh. I take levo and lio daily. I feel like I have wasted half my life trying to figure out whats wrong with me and drs arent much help.
Same!! Just this year learned about t3 tests. Dr does not understand it.. Insane
What are you symptoms with everything "In range" I'm currently dealing with suddenly my Lev dose I've been on for 20 years has made me severely hyperthyroid 0.02. When just last year same dose I was 1.2
@@BTyler808 bad head fog, drowsiness sometimes as early as 8-9am even after a good night sleep, moody and depressed even when i was working out 5-6 days a week, low sex drive and ED. I was finally taken off the levo a few months back and put on armour thyroid. its helped out quite a bit. im still not 100% but im better off than I was
What finally worked for me was getting vitamin D levels into the 60 - 90 ng/ml range and getting iron stores (ferritin) above 100 ng/ml. Vitamin D and iron are crucial for your body to use thyroid hormones and for reducing autoimmunity, which is common in people with thyroid problems.
@@HelloHaven how did you boost your ferritin? Just iron supplements? Or did you take Vitamin C and L Lysine with it? Happy you're doing better. I'm still trying to figure it out. My doctor won't test my ft3 and I can't get into an Endocrinologist for 2 more months
I have hypo para thyroid ism. I quit taking my thyroid medicine. It is made from pig thyroid and is against my religion. Wasn't helping me much if at all.
Tell me about it ive had it and my doc better prescribe armor. Im tired of being tired and weak
This medication ruined my life for a year and a half. I was only prescribed it for a slightly elevated TSH. I stopped taking it after I was at my wits end. Went on Whole30 diet along with exercise. Lost 19 lbs. 5 months later after diet and exercise TSH was normal on no medication. How's that work?
I believe this medication has caused me ‘asthma’. I cannot sleep and cannot breathe. I’m on my 4th week and I’ve developed ‘asthma’ and I’ve never had asthma in my life. I’ve went from jogging to not going up stairs. Literally all this one 4 weeks. How do you come off this medication. Slowly I heard. I’m doing testing to solve this but right now it’s speculation this medication is the cause but I cannot find many people with my issue taking this medication. I’m taking Euthyroxin. Also, is 8.5 so high that medication is needed. Can I reduce this on my own? I’m 39 and fairly healthy. I’m 5’3 and 115 lbs. I’m up at 3am trying to desperately find answers and all the doctors do is give me inhaler and say nothing about the medication !
It is a horrible drug. I have been on Levothyroxine for yrs just came off it totally.feel very tired and I was losing my hair while on this drug. Also weight gain. I don’t understand why Doctors use it. Almost wrecked my health. Never felt right on it. Please let me know what someone with low thyroid problems should take in its place that is natural. I am vegan. Any help advice would be very much appreciated, Thankyou. Watching from UK. Best wishes Catherine xxxxxx
Catherine, the drug options in the UK are somewhat varied from what you can get in the US. I do know that many vegans do well with Tirosint, which I believe is manufactured in Switzerland. It does not have any fillers or binders which makes it a good choice for people with gut issues. It contains levothyroxine (synthetic) but it is carefully and accurately dosed. Many of my clients found that taking Tirosint reduced symptoms and also they needed a lower dose. Are you already gluten free? Start there with your food plan. Going gluten free is shown in research studies to make your medicine more effective. Thanks for watching! Sara
Sara Peternell Family Nutrition Hello Sara, Thankyou so much for this Information. How can I buy this please? I am still off The Levothyroxine but now quite ill. No energy at all. And reluctant too go back on it. Very kind of you too reply too me. Best wishes Catherine xxx
I've been on levo for 35 years since age 12 never had issues until probably the past 8 years now I feel shitty when I take it and my levels are ok. But I don't think it's necessarily the meds I think it's because I have other autoimmune disorders now and all meds now I react poorly to
I'm currently trying to find something else other than levothyroxine it makes my heart race and makes me really irritable.
typical side effects.
Wow I have same problem and don't feel good I had thyroid cancer had have both taken out surgery was almost 3 hours my last TSH level was 0.010 I never felt the same
This medication give me horrible depression and anxiety but my Docotor says there is no way it’s a side effect … it may not be a common one but it’s 100% one for me. They refuse to put me on a different med.
I was on synthroid and I had the worst depression! Always angry, easily frustrated, no energy to even go to the bathroom, hot when everyone else is cold, head aches all the time, absolutely no joy in anything ( not even with my babies 😢
The only emotions I feel when on synthroid is depression and anger! It’s definitely a side effect!!! My dr took me off completely to get a better reading of my blood levels. My other dr prescribed me higher mes dose when I told him about the side effects but symptoms only got worse and I got more depressed. I’ve been off it for 3 weeks now and I haven’t felt this much joy and pleasure in simply enjoying my family and being able to laugh and play with my children in almost 2 years!
@@cariesmamalife4428 How have you felt not taking levothyroxine? have you been tested? I am hypothyroid but I have symptoms of hyperthyroidism and I don't know if I am overdoing it even though the tests come out in range
Synthroid suck lol think im going to love this channel. i just quit my NP Thyroid COLD TURKEY because i cant afford it any more . so I'm not willing to take synthroids i hate big pharma any way.
All these medicines are a joke. Do not know answer but am sure doctors do. This drug does not help......
So what are you taking for your Thyroid?
@@sparkledonut4860 right now nothing.. oh and now they think i have diabetes and poly neuropathy i still dont want to take anything,, today blood test with natural doctor after test im going to start taking berberine today.
Cytomel has gluten in it. I have celiac and my endocrinologist added cytomel and I started getting nauseous every day and feeling very sick. I have celiac and I was having a reaction to cytomel.
When I stopped taking cytomel my symptoms immediately improved.
Drug manufacturers do not have to legally disclose whether any medications havr gluten in it or not.
For this reason, many doctors and even pharmacists do not know if some medication has gluten or not.
I had to do research and I found a GF alternative to cytomel. It's Liothyronine by SigmaPharm. They do disclose it is gluten free.
Cytomel should not be taken by anyone who has celiac.
I do have a lot of antibodies but not yet diagnosed with hashimotos… I have hypothyroidism and levothydroxine is making me HUNGRY AS HELL … has anyone had this ?
It makes me hungry and bloated. My ankles swell too. I cannot take synthetic anything.
@@jannlittle4745 what do you take instead?
I take l tyrosine with a small amount of iodine. I also try not to eat very many vegetables. But I do eat beef and liver plus lots of butter. Butter is supposed to help menopausal women make hormones (ie: thyroid, DHEA, Estrogen/estriol and progesterone. Adrenals take over when ovaries stop .... Dr Elizabeth Bright .. CZcams
This medication really helps me, I lost a lot of weight and feel overall very good but it does make food pass through your small intestines faster so you may expereince more frequent bowels or diarreah, I'm ok with more frequent bowel movements because I loke getting it all pmout of my stomach! It works for me but it may not certainky work for you! Everyone is different.
I started Levo March of this year and within a few days I had the worst breast pain and swelling and it started my period even though I’d just had one, after my period the pain continued for about 3 weeks, until I had a period again, and ever since then the week AFTER my period I have terrible breast pain for about a week. It feels like the pain and swelling I had during my pregnancies. I go back to endo for my 6 month check in in September
I had this happen too. It was like this weird burning sensation in my left breast. Had ultrasounds and they found nothing. Continued to tell drs. They said "pulled muscle" or "underwire in bras". Out of all the times i said "I think it's this medication" i was dismissed. When i finally stopped taking the medication on my own, 2 months later there was no more pain.
@@misspiggy9647 so glad I’m not alone in this! I’m thinking I’ll have to find another medication to finally get relief it sounds like. When you stopped the levo did you get on another thyroid medication or just no meds now?
@@lynzeestatzer7992 I never went back on it. My TSH was only 5.6 when they put me on it. I had joined a biggest loser weight loss competition with my job. I'm not super heavy but a little chunky. Lost 19lbs in 4 months. went to gym 4 days a week. Did Whole30 diet. I was still on the medication at this time Seems as I lost weight I felt WORSE. That's when i threw it in the trash. Felt amazing just a week later. 2 months after stopping the medication, I ended up in the ER (long story. lol) They checked my blood and tsh. Tsh was normal. How's that work???? Switched doctors. New doctor believes i have subclinical hypothyroidism. Believes medication was over prescribed. Agreed to just monitor and no meds. My T4 is normal, it's just the tsh that was off. Just had bloodwork recently. TSH was high at 9.6, but T4 was normal. I haven't been exercising. I guess it's back to the gym again. Will retest in another month. Started zinc and selenium supplements. Will see what the results are in a month. Since being off meds, the breast pain went away, heart palpations went away, and that feeling of my body feeling like a ton of bricks and being so tired went away. I was asked about meds recently with the new labs and said "I don't want levo". So, lets see how this works out in a month of working out and strict clean diet with supplements. If the value drops, I have my answer. If not, I would be willing to try a medication, but not Levo. It seemed the longer you were on that medication, the worse the side effect were.
@@misspiggy9647 wow that is incredible! I’m so happy you found a way to heal yourself without needing medication. I would really love to stop taking levo as well, it seems like some of my hypo symptoms did subside when I started it but the breast pain and worsened PMS since I’ve started doesn’t feel worth it. My current endo is on Mat leave right now but I’m going t try to get in with her when she’s back and discuss alternatives. It seems like a lot of people react terrible to Levothyroxine
You are or are not a Dr? Saw another video you claimed to be a Dr. If u are. What type of doc?
I have a hypothyroidism, But I feel great, no any symptoms of that problem, I haven't been talking meds at all. But my T3 and T4 was extremely high and I agreed to take the syntroid medication, after which I started having mental problems, like fatigue, no strength, etc. What is wrong with me? 😳 And what to do? 😭
Did you figure it out?
@@BTyler808 Actually, Yes! From what I have found
🌟 all the problems with the thyroid are about inner psychological problems, trauma.
🌟especially when a person is not accepting himself, or against himself, or he’s rejecting something in himself, these kind of things are all connected with the thyroid.
🌟 Yoga asana, meditation, therapist are extremely helpful in that case, and a lifesaver for me.
🌟 plus I'm taking vitamins and other nutrition supplements. Feels good 🌟
Hope that someone will find my comment helpful 🙏
P.S. Meditations on a throat chakra also very powerful and healing.
@@avocado5740 Good! I'm glad you found some answers and relief. As for me I was hyperthyroid when I was a teen. My parents made the decision for radioactive iodine. With my thyroid now dead essentially. I was taking 150mcgs of Lev. Did fine on that for 15+ years. All of a sudden became severely hyperthyroid on that dose. Weird huh? But for a month and a half was told by ER doctors and my regular doctor that I just had anxiety and they tossed antidepressants at me. I suffered for almost 2 months before they figured out I was severely hyper. Lost 30lbs in 2 months. Still battling tachycardia because of it but they lowered my dose by 50mcgs! 4 days into that. Anyways, hope you're well 🙏
How are you feeling now? I am super interested in the emotional connection. I too struggle with mental health since i take thyroid medicine. I hope you find the time to reply.
@@bliep85 Hi. I’m feeling great, thank you for asking. I decided to be on Regular therapy with my awesome therapist, this is helping me A Lot to get rid of my issue with thyroid.
❣️I’m still taking thyroid medicine but the lowest dose
❣️ Still taking iodine, gingo beloba, multivitamins
❣️Regular yoga asanas and meditations relative to Throat Chakra! Oh, this is just amazing discovery 💡
❣️ Guided meditations before sleep (topics like: stress relief, accept yourself, etc etc) also extremely helpful with Anxiety and to level up Consciousness and awareness.
💎 Interesting thing I found out about the thyroid issue is that it’s like a great sign from your Karma and Universe that you Must work on yourself! There’s no other way, either you are Suffering or accept it -> work on it and became a better version of yourself and leave happy life.
💙 The thyroid represents the essential aspect of a human being. It is through our throat that we express our inner most strength of will, ability to follow our dreams and to share out inner most desires of the heart.💙
From my realization:
💚 Curing the thyroid means work on your inner peace, on your traumas, on your ability to accept yourself and except life.
💚 Change lifestyle!
Eat healthy, take care or your mental health, your physical body and your soul (spiritual practice).
So, it’s a process, and I would say this is a beautiful process!!!
Problem with the thyroid finally made me work on myself, take care of myself on many levels. And I’m absolutely grateful it, my life changed and I love it! Thank God 💝
I hope this might help you at least a little bit. Take care 🙏🌟❤️
I'm doing this search because my doctor prescribed me and obviously I'm not taking this 💩
Feeling worse after 2 weeks on this. It so sucks! My doctor listen she claims to be holistic but clearly she isnt.
Im so frustrated with levothyroxine! I am listening to you and tears are rolling down my eyes. I've been taking levothyroxine for aprox. 15 months and even though the thryroid finally leveled out, I cant tell you how awful I've been feeling. Starting with weight gaining in the last 15 months (50 pounds)! On a daily basis I experience extreme muscle aches, low energy/slugish, brain fog, swelling of my hole body, including arms, wrists, ankles, bloated belly. At the end of the day I feel like I ate 1 whole pig while I eat very little. arthritis have started to creep in on my hands and feet. I dont' know what to do.! I've asked my doctor to switch me to the brand name synthroid on a trial basis to see if the sympstoms get better, also asked her to look into perhaps switching to cytomel but still waiting for a response.
Thank you for your videos.
I am sorry. I know it can get better. Please join my Nourished and Renewed program so you can work with your doc better to get on the right meds.
Me too I never works n my thyroid levels are almost always off...
I die if I don't take it. Sooooooo
BBBE.. Dr Ken Berry.. Simple…