Living with SLL/CLL: Kate's story
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- čas přidán 24. 10. 2018
- In this film Kate, diagnosed with small lymphocytic lymphoma (SLL) in 1998 (which later change to chronic lymphocytic leukaemia, or CLL), talks about living her life over the last 20 years with this condition. Kate talks about how she was initially misdiagnosed, how she has dealt with six different rounds of treatment, and how having SLL has changed the way she views life.
For more information visit www.lymphoma-action.org.uk
What a strong spirit! I was told 2 months ago I have CLL by an oncologist. I am 65. It makes me sad because I never want to die. I have told only two people who I dont know that well, and have decided not to tell anyone else. Except, of course, this bit I'm writing here. From this CLL diagnosis I have found I am accepting more that I will die, as well as appreciating being alive. Also, I am looking forward to being on the cutting edge of new therapies that may hold an answer for a cure. I feel we are getting close, as a few people seem to have no trace of CLL such as one person mentioned on this video. Also, people are surviving longer.
:) thank you. Diagnosed 2 weeks ago with CLL/SLL & its spread throughout my body. I’m 49. Thanks for your positive story.
Sorry about your Dx. I was Dx just shy of 2 weeks ago, and you’re the only other person I’ve seen so far who was Dx with both, like me. Hope you’re doing well.
Thank you.
I wonder how this lovely lady is doing now.
Thank you for sharing your story. I’m newly Dx CLL/SLL
I’m 34 and have SLL.
It’s very rare for my age. I don’t know what I did wrong. I was always careful for what I eat and such.
You didnt do anything wrong. It's just the luck of the draw. However, if you're a smoker, alcoholic, or recreational drug user, then yes, you're doing something wrong. I have cll. Its hard.
@@lisabeam4354 nope. None of those.
And I don’t even remember when I made that comment 😂
I was newly diagnosed and probably emotional.
I’m already in treatment though. Mine progressed very fast. And still SLL not CLL (no blood count representation).
It is genetic- you did nothing wrong
How are you doing with treatment now?