Excellent video, well done all brave enough to share. I love the fact many are people whose partners have CLL, We do not realise sometimes the emotional stress if puts on the family.
Thankyou to everyone who shared. Have to say though it makes me really angry to hear Doctors with platitudes like "If you're going to get a cancer, then this is the one to get" and/ or "you'll probably die of something else first"- especially when you're a 37 years old, pregnant with a 2 year old as I was. My Haematologist was very empathetic. Instead of platitudes, he acknowledged my fears and talked me through the next steps - staging etc. And I think this is the key for Doctors - acknowledge the patient's response, talk about next steps and avoid platitudes. And by the way, the term "watch and wait" is of no comfort. Wait for what? A bomb to go off inside you? I'm Neutropenic, thrombocytopenic, have IVIG every 2 weeks but still no chemo though so does that mean I'm still waiting? After 26 years, It does means I'm extremely grateful!
Excellent video, well done all brave enough to share. I love the fact many are people whose partners have CLL, We do not realise sometimes the emotional stress if puts on the family.
Thankyou to everyone who shared. Have to say though it makes me really angry to hear Doctors with platitudes like "If you're going to get a cancer, then this is the one to get" and/ or "you'll probably die of something else first"- especially when you're a 37 years old, pregnant with a 2 year old as I was. My Haematologist was very empathetic. Instead of platitudes, he acknowledged my fears and talked me through the next steps - staging etc. And I think this is the key for Doctors - acknowledge the patient's response, talk about next steps and avoid platitudes.
And by the way, the term "watch and wait" is of no comfort. Wait for what? A bomb to go off inside you? I'm Neutropenic, thrombocytopenic, have IVIG every 2 weeks but still no chemo though so does that mean I'm still waiting? After 26 years, It does means I'm extremely grateful!